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Feb 8, 2012
Billie 5 posts

Topic: General Discussion / new graduate today

Many thanks Garry Laughing
I did read what you said about depending on insulins you can work out the rate of BG reduction? I,m not great with numbers so would I check BG more often after eating? Question
I'm on levemir 12am -13pm QA
Humalog QA
 
Feb 8, 2012
Garry 328 posts

Topic: General Discussion / new graduate today

Good on yer Billie
Stay positive
Regards
Garry
 
Feb 8, 2012
marke 643 posts

Topic: Carbohydrate Counting / Carb counting help!!!

at the moment it is unlikely there will be an app that runs on a Nokia. You can however access the mobile version of the site on your phone if it has internet access. This is a cut down version of the site designed to run on mobile phones. Obviously the downside is you need internet access to use it. If there is anyone out there that wants to develop a Java based app that will run on phones like this, we would of course be interested in hearing from them Laughing
 
Feb 8, 2012
Billie 5 posts

Topic: General Discussion / new graduate today

Hi my names Billie I have been graduate since early January. It's the best course I ever did even tho over a month I still get high readings I don't feel terrified each time I look at my BG machine. I now fully understand what is wrong with me and have the tools to help me try to control what,s going on in my body lol. I was diagnosed with gestational diabetes in 2008 then went on to learn I was type1 I won't lie it was total life changer, I think I was in denial for a long while. But there was no change over from midwife to doc so was really having hard time was hospitalised 3 times last year due to ketois that when I was noticed as needing help. That's how I ended up doing DAFNE, I personally believe it should be compulsory for all type ones.
I truly believe without DAFNE I would have continued to be hospitalised and would never have learnt to control the disease it would have consumed me eventually.
Keeping on this positive new road and will keep trying my best.
Good luck to all
 
Feb 8, 2012
marke 643 posts

Topic: General Discussion / Excercise or Depleted Insulin

the lows are definately caused by the exercise. generally the effects of exercise will be felt for 24 hours afterwards. Maybe more, maybe less as we are all different. It is basically the fact that your muscles etc are still using more energy ( from blood sugar) than normal. I always had to lower my QA the morning after an evening at the gym, and sometimes my BI depended on the level of exercise. Sadly I saved money by not going to the gym and now just cycle as its generally cheaper ;-)
I think its also true that most exercise results in adrenaline being released which is a hormone that primes the body for action. Any 'action' generally requires more 'energy' than resting so more sugar in the blood to provide the energy. Sadly being diabetic means you don't get the corresponding insulin boost to process this blood sugar. However injecting extra insulin is also potentially dangerous, so probably best to do exercise when there is some QA in the blood but not injected specially rather as a tail off from a previous meal. Of course the difficulty is the only way to work out the best solution for each individual is by trial and error. Still nobody said being Diabetic would be easy even with DAFNE Very Happy
I would also be careful about moving your Levemir to that much earlier. Generally having Levemir before bed and when you get up is it gives you a greater overlap in the morning when generally your insulin requirements tend to be higher. This is due to dawn phenomenon type effects if not the full blown thing. Instead you would be more likely to get an overlap in the evening. This might have the effect you require, but could also leave you higher in the morning. All could's of course because we are react differently.
 
Feb 8, 2012
marke 643 posts

Topic: General Discussion / grace1961

Sorry it seems that in Scotland you don't have a PALS service Sad There is a group in Scotland called Local Health Council which has a wonderful website full of marketing and hollow promises but no real substance. I also tried googling for podiatry and diabetes in Glasgow and got very little, more than I little worrying. Do you not have Podiatrists who are also Diabetes experts in Scotland ?? There is supposed to be a national Diabetes Framework and number of 'standards' that PCT's are suposed to meet and footcare should be amongst these. I would agree with Novarapidboi surely your Diabetes team can give you a number for the podiatrist, how can they not have one when its a basic part of diabetes care. If any of our other graduates from Glasgow have any ideas please let us know, this is an unacceptable situation.
 
Feb 8, 2012
Maradie 2 posts

Topic: Questions for HCPs / Fitting when hypo

Hi,
I am a 28 year old woman who has been diagnosed since 1995 (I was 12).

While in my mid teens I had a brace fiitted to my teeth. About a year later, I started having fits, especially at night time. I used to wake up with a bad headache, achey ribs, a ripped up mouth and blood everywhere. My parents and the dentist thought I was rubbing my tongue against my brace in my sleep, causing it to rip into my tongue and cheeks.
The dentist removed the brace and we thought that was the end of it.

A couple of weeks later, my mum heard me banging my head against the wall during the night and realised I was having a fit.
I went to hospital, and was told it was due to my bloods dropping too low while I was asleep. They fiddled with my insulins and told me to eat before I went to sleep.
This seemed to fix it....at least for a while.

I have been having fits and bad reactions to hypos now for over 10 years and what I have learnt is the following things can increase the risk of a hypo/fit. This list isn't exhaustive, it is just the current things I have noticed over the years. A change in hormones (menstrual cycle etc), starting new medicines, weight gain and weight loss, unplanned activity and stress all affect my diabetes and can cause me to have a fit.

I can have a fit without realising I am hypo and they happen during the day and the night. MY GP, DSN and consultant do not know how to treat my fits and hypos successfully and always tell me to "record my bloods constantly, log everything including what I eat and where I inject and they will review it in a month". This is never helpful because that doesn't give me any suggestions of ways to deal with the fits now, sigh and at the reviews just tell me...they don't know why I keep having them.
I am currently in a stage of having 2-3 fits and 3-4 bad hypos each week and am waiting to see my DSN and GP as I can not work out what the causes are. I am hoping to have a new thing to add to my list soon Rolling Eyes

If you seem to be having them regularly, I would suggest that you always have some hypo food by your bed that you do not have to chew (orange juice, coke, lucozade, hypogel) and always carry something like this with you. I have a little tuck-shop in my desk at work of orange juice, lucozade and biscuits (to keep my BM up once I am out of hypo). My work colleagues and all of my family know how to recognise and deal with my hypos and fits and I would suggest explaining the best ways to deal with your hypos/fits to people who are around you. Everyone is different and has different reactions to hypos.

Hypos/fits can be very scary for others around you, especially if they do not know how to help you but being prepared and treating them like bad hypos (which they basically are) is the best way forward.

I hope this information is of use to anyone out there who is struggling with hypo/fits.
Take care Maradie xx
 
Feb 8, 2012
teresa green... 2 posts

Topic: DAFNE Online Mobile / Nokia N8

Me again I ment october 2011 not 2010
 
Feb 8, 2012
teresa green... 2 posts

Topic: DAFNE Online Mobile / Nokia N8

Hi to anyone who wants listen. I have been a D.A.F.N.E graurate since october 2010 and my bg then was 9 and I have just been to see my diabetic consultant and was told my bg is now 8.4. Smile not quite there yet but it's going in the right direction!

regards teresa
 
Feb 8, 2012
Mairead 10 posts

Topic: DAFNE Online Mobile / Nokia N8

Mairead said:

novorapidboi26 said:
Different dudes I am afraid...............




Thanks Alan and novorapidboi26 for your replies.


Mairead



I went on the iPhone apps website to look at Simon Fisher's app and there was a link for his site, when I clicked on it I was brought back here to the dafneonline site. So he must be here somewhere or perhaps he no longer logs in. I know he can't adapt the app for all phones, and Apple often insists on exclusive rights, but it is also on the android phones. Nokia has many users, the Symbian 3 on the Nokia N8 is very interesting for developers . Anyway, heard many good reviews from people who use it and any thing that helps with diabetic management is a plus. Thanks again.
 
Feb 8, 2012
novorapidboi26 1,816 posts

Topic: General Discussion / Excercise or Depleted Insulin

As you can see my problem with rising blood sugar has been taken over by lows throughout yesterday and this morning............

Is this because of my muscles replenishing, or is it down to a high ratio in the evening?

The possibility my Levemir is running out by the time 21:00 comes is also possible...........[been working up until now]......

If today is the same, I think I will try taking my Levemir with dinner, then run that for a few days.............

However all this bother may be down to the effects of Monday nights activity, and could wear off at the end of today, returning everything to normal.......

Any discussions/comments welcome............
 
Feb 8, 2012
Mairead 10 posts

Topic: DAFNE Online Mobile / Nokia N8

novorapidboi26 said:
Different dudes I am afraid...............




Thanks Alan and novorapidboi26 for your replies.


Mairead
 
Feb 8, 2012
novorapidboi26 1,816 posts

Topic: DAFNE Online Mobile / Nokia N8

Different dudes I am afraid...............
 
Feb 8, 2012
Alan Jock Ni... 19 posts

Topic: DAFNE Online Mobile / Nokia N8

The Lead Developer for the iPhone App is Simon Fisher, I'm not 100% sure if it is the same Simon who is the co-creator & admin on this site. Go to Users and look for Simon (admin) and send him a message.

Alan

Site Administrator from: Sheffield Teaching Hospitals
Hi,

I'm Simon and I'm the co-creator of DAFNE Online. I'm 24 and was diagnosed with Type 1 in May 2006 whilst at university in Sheffield. I took the DAFNE course a year later, also in Sheffield. I found the DAFNE course to be not only a great tool for managing my diabetes, but also a fantastic opportunity to hear from people who had lived with diabetes for a lot longer than I had. That's where the idea of DAFNE Online came from - I wanted the feeling of a community that supported itself long after the course had finished, and realised that the Internet was a great medium for this.

When not developing/administering DAFNE Online, I enjoy Rugby Union (more recently watching rather than playing as my fitness levels have dropped now I've started working life), drama films, video games (xbox 360) and socialising. Oh, and cooking curry - which I can now fully appreciate thanks to DAFNE! Smile

If you would like to get in touch about DAFNE Online, or anything at all - please don't hesitate!

User since December 17, 2008

 
Feb 8, 2012
novorapidboi26 1,816 posts

Topic: General Discussion / Exercise classes and type1?

I do martial arts training once a week for 2 hours.............so light to moderate, sometimes intense activity levels................

Its Wing Chun Kung Fu, so not intense as Thai Boxing for example..........

I need to do more though, to lose some weight, but I just cant get motivated to go to a gym. I have started extending the dog walking time and choosing up hill routes...........and of course cutting calories.........

Sorry, I am rambling.........

Regarding your Lantus, I wouldn't say for sure its related............

Is your Lantus dose significantly more than your Insulatard?

If so, I would do some basal testing.........
 
Feb 8, 2012
novorapidboi26 1,816 posts

Topic: General Discussion / Excercise or Depleted Insulin

Thank you all for your suggestions, they are all valid........

It could be a hormonal response to the activity, or the fact I had no QA insulin on board, however my muscles would then use energy from their stores, does this process need insulin? I would assume not.....

Its also possible I went low first, but I should of felt it, no? There was no QA in my system at dinner time, so dont know if I could of went low first......

So many possibilities............ Crying or Very sad


Will put the following day up shortly.......... Wink
 
Feb 8, 2012
thebatoutofhull 60 posts

Topic: General Discussion / Exercise classes and type1?

Hi. I am wondering what type of exercise you all do? I don't have a specific exercise regime, do you and what is it? and how do you find it? I could do to lose a few (quite a few) pounds +. I don't know if this is related but was put on Lantus a year ago from Insulatard and gained 2 1/2 stone. Bloods no better or worse than before. Thanks.
 
Feb 8, 2012
Mairead 10 posts

Topic: DAFNE Online Mobile / Nokia N8

How can we ask for an app for Nokia smartphones, including Nokia N8. Is the designer of the app that everyone talks about for iPhone and the Android phones contactable? Thank you.
 
Feb 8, 2012
JennyNZ 29 posts

Topic: General Discussion / Excercise or Depleted Insulin

not sure if I'm reading it right but it looks like you had a BG of 4.2 and did your 2 hours exercicise on that - is that right? Maybe you went hypo and your glycogen stores kicked in so it read as 14.7? So 14.7 is a post hypo rebound?
 
Feb 8, 2012
dafne-jim 2 posts

Topic: General Discussion / new graduate today

LaneyH82 said:
Hi Samshine

Congrats on completing the course. I also completed the course yesterday aswell. I feel i will be more in control of my diabetes than it being in control of me Very Happy . Today is the 1st day of doing it dafne style without having the tutors around me and i feel i am doing well so far. I am also on levimir and have been on it for a year or so but i have now divided my units and take them 12 hours apart. Seems to be working well. I still cant get over that i can eat nearly anything aslong as i count it for insulin. I had cocopops for my breakfast the other morning for the first time in 13 years and they tasted gooooood Laughing
Laney

hi laney congrats on finishing the dafne course i did it 9 years ago and i felt like a new person after doing it Very Happy since ive been on dafne my hba1cs have all been in the 6s apart from 2 that were in the high 5s before dafne i was in the 7s but hypoing 3times aweek .i have so much more feedom over eating or not eating its been great . so congrats again and enjoy your new leash of life Laughing dafne jim
 
Feb 7, 2012
Mairead 10 posts

Topic: Carbohydrate Counting / Carb counting help!!!

Very true, thanks Stew.
 
Feb 7, 2012
Stew B 123 posts

Topic: Carbohydrate Counting / Carb counting help!!!

As everyone says, its a matter of observation, memory and using the tools available. However the real beauty of DAFNE is the ability to correct later if you get it "wrong", without getting into the yo-yo ing cycle that many of us used to when (poorly) educated guesswork was the only thing available. Once you get your head round this it becomes possible to relax a bit when eating out, knowing that you can have a properly calculated next meal and quickly get back on track. If you're eating at one of the many chains of eating establishments its worth checking their website before you go. Many have nutritional info for their products, and you can print these off and take them with you.


Stew
 
Feb 7, 2012
ketostix pla... 25 posts

Topic: General Discussion / Excercise or Depleted Insulin

Hi Novorapidboi, I play a bit of 5aside(Im know beckham lol) and gym(or arnie lol), and have found blood test increases if no QA remaining in system. What I have been doing and seems to work is have 2cp before excercising and 1 unit of QA, which was difficult to get head round injection before excercising and it seems to work. But I have to watch results for remainder of day as blood tests do tend to drop while body recovering.
 
Feb 7, 2012
Garry 328 posts

Topic: General Discussion / Excercise or Depleted Insulin

Alan has cleared this kind of thing up for me in the past.
I have gone out whilst high and exercised, trying to knock it back and expecting to find my BG well down.
But found it going up..... BG BE 13.2 AE 13.4 and was puzzled by my personal experience.
The logic seems sound.
Garry
 
Feb 7, 2012
Alan 49 280 posts

Topic: General Discussion / Excercise or Depleted Insulin

My Blood Sugar always goes up when I go swimming before breakfast - last week, for instance, my BS was 5.6 before swimming (half an hour's worth) and it was 8.9 afterwards. This is not a one-off, it's consistently like this. I queried this with my HCP and he said that it was probably caused by the act of going to the swimming baths and meeting other people - which then causes the release of adrenaline, which in turn leads to the release of glucagon from the liver - hence the increase in BGs.

If you went to a gym for your exercise, perhaps it was the same for you.