Recent Posts - DAFNE Online

Feb 5, 2012

Peter 109 posts

Further update on these discussions.....

Due to the amount of feedback to the original presentation on dafneonline, it has been decided by the DAFNE Executive that further information needs to be provided on each of the subject areas covered. As a result we can expect, over the coming months, more detail to be provided both to us as Graduates, but also to the HCPs (Health Care Professionals) who run the DAFNE courses. When the data becomes available (probably one topic at a time) we will get it loaded on dafneonline in the most suitable way. I have been told that the first topic to be covered will be Rebound Hyperglycemia.

Feb 5, 2012

Stew B 125 posts

Topic: General Discussion / DAFNE shop

I'd just like to give a thumbs up to the DAFNE shop at www.dafne.uk.com. I posted an order for diaries and carb lists on Monday with payment by cheque, and they were delivered by post on Friday - nice going guys!!

Stew

Feb 5, 2012

Alan Jock Ni... 19 posts

Topic: DAFNE Online Mobile / Download entries from site?

Have you entered and saved your user name and password for entries? This is separate from the user name and password to log in, although it is the same user name and password. I'm afraid it's gone 2.00 a.m. and I can't remember the procedure, but I'm sure you'll sort it out.

Do you mean the username & password in settings on the iPhone, (DAFNE Online Credentials) if it is I have done that.

Thank You.

Alan

Feb 5, 2012

Ahmentep 99 posts

Topic: General Discussion / Panicking When Taking Hypos

Hi Laney,

I did the DAFNE course a week ago, although I have been following the general principles for about two years. I have been type 1 since 1978 and found a tremendous improvement after adopting the DAFNE principles. It has given me much better control and much greater flexibility in life. It is difficult to say whether the course itself has effected any change as I have a gut infection at the moment and the treatment for it is definitely affecting me, as is the infection itself.

I hope you get your panic problem sorted out soon. I think I was greatly helped to accept my diabetes by the fact that, when I was admitted to Stobhill to be stabilised, I was put in a general medical ward. I was the only diabetic there. For the week I was there, every night someone died. This convinced me that, if I was to be afflicted with something, diabetes was probably one of the best things to have. It can be managed, and that is even more true now under the DAFNE procedures.

Best wishes for the future,

Roger

Feb 5, 2012

Ahmentep 99 posts

Topic: DAFNE Online Mobile / Download entries from site?

Have you entered and saved your user name and password for entries? This is separate from the user name and password to log in, although it is the same user name and password. I'm afraid it's gone 2.00 a.m. and I can't remember the procedure, but I'm sure you'll sort it out.

Feb 4, 2012

samshine 3 posts

Topic: General Discussion / new graduate today

my first day after the DAFNE course has been a bit strange Confused

, i had a low before beakfast, a good blood four hours later, i had a late lunch but my bg had gone up by 4mmol in 2 hours?? I have done my correction with my lunch and will wait to see my dinner bg.

I have been hard on myself to get the right results but ended up getting upset when they were very high. I have struggled with the self disciplin but will do my best to look after myself, DAFNE has taught my not to expect to much too soon.
Its a new start for me and my diabetes and hope to get there in the end. DAFNE should be there for every type 1 and agree its a shame that funding makes it hard for people to get the support which is greatly needed to help to understand diabetes and how the insulin works with cp's.

I want to be in control of my diabetes not my diabetes controlling me. Laughing

Feb 4, 2012

LaneyH82 6 posts

Topic: General Discussion / new graduate today

Hi Samshine

Congrats on completing the course. I also completed the course yesterday aswell. I feel i will be more in control of my diabetes than it being in control of me Very Happy

. Today is the 1st day of doing it dafne style without having the tutors around me and i feel i am doing well so far. I am also on levimir and have been on it for a year or so but i have now divided my units and take them 12 hours apart. Seems to be working well. I still cant get over that i can eat nearly anything aslong as i count it for insulin. I had cocopops for my breakfast the other morning for the first time in 13 years and they tasted gooooood Laughing

Laney

Feb 4, 2012

LaneyH82 6 posts

Topic: General Discussion / Panicking When Taking Hypos

Hi Roger,
I spoke to the Doctor at the Clinic yesterday and explained what I was feeling. He said it is something that you can experience and is normal however, we would need to see if I am feeling the panic because of my hypos or is it caused by something else(related tho). He said that I can be referred by my GP to a therapist instead of taking medication for the panics. I am going to see how things go now that I am doing it dafne style Smile

.
I normally always feel shaky when a hypo is coming on but this is a different feeling i have been experiencing. When was it you done the dafne course? Do you feel it has helped and reduced any hypos or hypers?

Laney.

Feb 4, 2012

Mairead 10 posts

Topic: General Discussion / new graduate today

I also had my last day on the DAFNE course yesterday, in a different centre and have written a post in its forum. I found the course and the tutors to be very helpful and informative. By the end of the week my tests were pretty normal and I was very happy with that.

This morning my BG iwas high. I had worked late last night, writing, got a hypo of 3.3 and had eaten too many carbs to correct it. had also woken up late, a change from 5am to 10am so that threw the balance out too with the BI. I was shocked at how high it was, nonetheless. But I will try much harder not to let it happen again. Being back at home full-time where I had developed the bad habits, the course was helping me overcome, is a bit daunting - I know where the temptations lie. I should not have taken so many carbs for the mild hypo [had unerestimated the carb ratio at the time] or slept in so late. I will wait a couple of days before making considering making any changes to my BI, and have corrected the high BG with QA.

Thank God for DAFNE! In my 30 years of a diabetic I have never seen such an excellent and positive intervention in patient care. It is up to me now, and that is where I have to be self-disciplined about tests and ratios. Bought kitchen weighing scales, it arrived today, and am looking forward to be able to look at my diary without such high or low tests again Despite my bad result this morning - I do not feel as helpless and have more confidence in getting it back on track. I am also glad that this site is here. Don't have my centre code to show I am a graduate.

I hope it and the DAFNE course will be around and evolving for many years for the benefit of so many diabetics. I look forward to the day when the numbers of people with different kinds of diabetes is reversed. I think that DAFNE can and is making a big difference to the lives of Type 1 Diabetics and I aim to be one of them Very Happy

Mairead

Feb 4, 2012

Alan Jock Ni... 19 posts

Topic: DAFNE Online Mobile / Download entries from site?

Download entries from site not downloading to iPhone (the little circle continues to go round)

iPhone 3gs
OS - 5.01

The iPhone app is really great for when I'am out and about as it's always in my pocket and preferred over a paper diary. When I am at home/work I prefer to fill in the online diary as usually there is a PC in front of me and the iPhone could be on the docking station charging or playing music. I don't want to be filling in the diary entries twice so I would love to use the Download entries from site but nothing is happening, am I missing a setting somewhere?

Thank you.

Alan

Feb 4, 2012

Ahmentep 99 posts

Topic: General Discussion / Panicking When Taking Hypos

Hi Laney,

Just to clarify what I said earlier about panic being a psychological state. I too occasionaly shake almost uncontrollably when having a hypo, but this is not panic. This is a physical condition brought about by there being insufficient glucose in the system to enable the brain to give fine tuning instructions to the muscles and and to enable the muscles to move in a controlled fashion.

All the best,

Roger

Feb 4, 2012

novorapidboi26 1,819 posts

Topic: General Discussion / new graduate today

Congratulations, and welcome to the forum.....

Sound advice from Roger there. I am constantly learning new things about my diabetic control, however still dont have perfect control.....................

Levemir is much more felxible, and although everyone is different, I believe everyone should be on it...............[Levemire Lover.... Very Happy

].....

I felt the same as you after the course, I just couldnt believe how I was just letting life pass by with no clue about my diabetes, it will never be the same after DAFNE.............and its a shame funding cuts are cutting people out of getting the basic education they deserve...........

I look forward to hearing from you.............. Wink

Feb 4, 2012

JennyNZ 29 posts

Topic: General Discussion / diarrhoea

are you drinking enough g and t's!!???

Feb 4, 2012

Ahmentep 99 posts

Topic: General Discussion / new graduate today

Congratulations! Very Happy

Don't be in a rush to get things perfect, they probably never will be. Just keep looking for patterns and making adjustments (one at a time, with two days minimum in between) and the improvement you have noticed will continue, and get better. Well done, and the best of luck.

Roger

Feb 3, 2012

samshine 3 posts

Topic: General Discussion / new graduate today

Hi, i had the last day of the DAFNE course today and am so pleased i went. After many years of abusing my diabetes its time to start again and control my diabetes.
Cant believe i can eat anything now (with the right insulin) I thought the course was great, got new needles, have been taken off of lantus and put onto levemir twice a day which seems to be doing the job, although ive had quite a few hypos (which i hate). Hopefully things will settle down and i will be in control for the first time in nearly 30 years. Shocked

Feb 3, 2012

LaneyH82 6 posts

Topic: General Discussion / Panicking When Taking Hypos

Thanks everyone for the feedback. I have had diabetes since i was 13 and i am now 29. I have just recently started experiencing panic attacks when i am hypoing.Its frustrating as i have never experienced anything like this before. I thought it would have been a good question to ask as i don't know anyone else with type 1 and its good to get oter peoples views that have diabetes.i completed the dafne course today and hoping that my hypos are very minimum now.

Smile

Feb 3, 2012

thebatoutofhull 60 posts

Topic: General Discussion / no carb/sugar free drinks

Digging a hole for myself now. When we were kids my mum used to make us veggi stock for bonfire night. She'd kid us it was soup. A small stock cube is not the same but only 0.9 carbs is not too bad and you get a couple of cups out of it. other ideas, fruit teas nettle tea or a dry mulled wine. Ok hole definitely deeper.

Feb 3, 2012

MARIER 42 posts

Topic: General Discussion / no carb/sugar free drinks

Thanx All !!! Veggi Stock ?????????????? sounds intreging but cant have sugar as it has Carbs in it

Feb 3, 2012

thebatoutofhull 60 posts

Topic: General Discussion / no carb/sugar free drinks

ah. no probs, I should try to be clearer. Keep postin' I've not been on here long but learned an awful lot from you.

Feb 3, 2012

novorapidboi26 1,819 posts

Topic: General Discussion / no carb/sugar free drinks

lol, sorry, i misunderstood you............ Laughing

Feb 5, 2012 Peter 109 posts	Topic: General Discussion / DAFNE Myths Further update on these discussions..... Due to the amount of feedback to the original presentation on dafneonline, it has been decided by the DAFNE Executive that further information needs to be provided on each of the subject areas covered. As a result we can expect, over the coming months, more detail to be provided both to us as Graduates, but also to the HCPs (Health Care Professionals) who run the DAFNE courses. When the data becomes available (probably one topic at a time) we will get it loaded on dafneonline in the most suitable way. I have been told that the first topic to be covered will be Rebound Hyperglycemia.

Feb 5, 2012 Stew B 125 posts	Topic: General Discussion / DAFNE shop I'd just like to give a thumbs up to the DAFNE shop at www.dafne.uk.com. I posted an order for diaries and carb lists on Monday with payment by cheque, and they were delivered by post on Friday - nice going guys!! Stew

Feb 5, 2012 Alan Jock Ni... 19 posts	Topic: DAFNE Online Mobile / Download entries from site? Have you entered and saved your user name and password for entries? This is separate from the user name and password to log in, although it is the same user name and password. I'm afraid it's gone 2.00 a.m. and I can't remember the procedure, but I'm sure you'll sort it out. Do you mean the username & password in settings on the iPhone, (DAFNE Online Credentials) if it is I have done that. Thank You. Alan

Feb 5, 2012 Ahmentep 99 posts	Topic: General Discussion / Panicking When Taking Hypos Hi Laney, I did the DAFNE course a week ago, although I have been following the general principles for about two years. I have been type 1 since 1978 and found a tremendous improvement after adopting the DAFNE principles. It has given me much better control and much greater flexibility in life. It is difficult to say whether the course itself has effected any change as I have a gut infection at the moment and the treatment for it is definitely affecting me, as is the infection itself. I hope you get your panic problem sorted out soon. I think I was greatly helped to accept my diabetes by the fact that, when I was admitted to Stobhill to be stabilised, I was put in a general medical ward. I was the only diabetic there. For the week I was there, every night someone died. This convinced me that, if I was to be afflicted with something, diabetes was probably one of the best things to have. It can be managed, and that is even more true now under the DAFNE procedures. Best wishes for the future, Roger

Feb 5, 2012 Ahmentep 99 posts	Topic: DAFNE Online Mobile / Download entries from site? Have you entered and saved your user name and password for entries? This is separate from the user name and password to log in, although it is the same user name and password. I'm afraid it's gone 2.00 a.m. and I can't remember the procedure, but I'm sure you'll sort it out.

Feb 4, 2012 samshine 3 posts	Topic: General Discussion / new graduate today my first day after the DAFNE course has been a bit strange , i had a low before beakfast, a good blood four hours later, i had a late lunch but my bg had gone up by 4mmol in 2 hours?? I have done my correction with my lunch and will wait to see my dinner bg. I have been hard on myself to get the right results but ended up getting upset when they were very high. I have struggled with the self disciplin but will do my best to look after myself, DAFNE has taught my not to expect to much too soon. Its a new start for me and my diabetes and hope to get there in the end. DAFNE should be there for every type 1 and agree its a shame that funding makes it hard for people to get the support which is greatly needed to help to understand diabetes and how the insulin works with cp's. I want to be in control of my diabetes not my diabetes controlling me.

Feb 4, 2012 LaneyH82 6 posts	Topic: General Discussion / new graduate today Hi Samshine Congrats on completing the course. I also completed the course yesterday aswell. I feel i will be more in control of my diabetes than it being in control of me . Today is the 1st day of doing it dafne style without having the tutors around me and i feel i am doing well so far. I am also on levimir and have been on it for a year or so but i have now divided my units and take them 12 hours apart. Seems to be working well. I still cant get over that i can eat nearly anything aslong as i count it for insulin. I had cocopops for my breakfast the other morning for the first time in 13 years and they tasted gooooood Laney

Feb 4, 2012 LaneyH82 6 posts	Topic: General Discussion / Panicking When Taking Hypos Hi Roger, I spoke to the Doctor at the Clinic yesterday and explained what I was feeling. He said it is something that you can experience and is normal however, we would need to see if I am feeling the panic because of my hypos or is it caused by something else(related tho). He said that I can be referred by my GP to a therapist instead of taking medication for the panics. I am going to see how things go now that I am doing it dafne style . I normally always feel shaky when a hypo is coming on but this is a different feeling i have been experiencing. When was it you done the dafne course? Do you feel it has helped and reduced any hypos or hypers? Laney.

Feb 4, 2012 Mairead 10 posts	Topic: General Discussion / new graduate today I also had my last day on the DAFNE course yesterday, in a different centre and have written a post in its forum. I found the course and the tutors to be very helpful and informative. By the end of the week my tests were pretty normal and I was very happy with that. This morning my BG iwas high. I had worked late last night, writing, got a hypo of 3.3 and had eaten too many carbs to correct it. had also woken up late, a change from 5am to 10am so that threw the balance out too with the BI. I was shocked at how high it was, nonetheless. But I will try much harder not to let it happen again. Being back at home full-time where I had developed the bad habits, the course was helping me overcome, is a bit daunting - I know where the temptations lie. I should not have taken so many carbs for the mild hypo [had unerestimated the carb ratio at the time] or slept in so late. I will wait a couple of days before making considering making any changes to my BI, and have corrected the high BG with QA. Thank God for DAFNE! In my 30 years of a diabetic I have never seen such an excellent and positive intervention in patient care. It is up to me now, and that is where I have to be self-disciplined about tests and ratios. Bought kitchen weighing scales, it arrived today, and am looking forward to be able to look at my diary without such high or low tests again Despite my bad result this morning - I do not feel as helpless and have more confidence in getting it back on track. I am also glad that this site is here. Don't have my centre code to show I am a graduate. I hope it and the DAFNE course will be around and evolving for many years for the benefit of so many diabetics. I look forward to the day when the numbers of people with different kinds of diabetes is reversed. I think that DAFNE can and is making a big difference to the lives of Type 1 Diabetics and I aim to be one of them Mairead

Feb 4, 2012 Alan Jock Ni... 19 posts	Topic: DAFNE Online Mobile / Download entries from site? Download entries from site not downloading to iPhone (the little circle continues to go round) iPhone 3gs OS - 5.01 The iPhone app is really great for when I'am out and about as it's always in my pocket and preferred over a paper diary. When I am at home/work I prefer to fill in the online diary as usually there is a PC in front of me and the iPhone could be on the docking station charging or playing music. I don't want to be filling in the diary entries twice so I would love to use the Download entries from site but nothing is happening, am I missing a setting somewhere? Thank you. Alan

Feb 4, 2012 Ahmentep 99 posts	Topic: General Discussion / Panicking When Taking Hypos Hi Laney, Just to clarify what I said earlier about panic being a psychological state. I too occasionaly shake almost uncontrollably when having a hypo, but this is not panic. This is a physical condition brought about by there being insufficient glucose in the system to enable the brain to give fine tuning instructions to the muscles and and to enable the muscles to move in a controlled fashion. All the best, Roger

Feb 4, 2012 novorapidboi26 1,819 posts	Topic: General Discussion / new graduate today Congratulations, and welcome to the forum..... Sound advice from Roger there. I am constantly learning new things about my diabetic control, however still dont have perfect control..................... Levemir is much more felxible, and although everyone is different, I believe everyone should be on it...............[Levemire Lover.... ]..... I felt the same as you after the course, I just couldnt believe how I was just letting life pass by with no clue about my diabetes, it will never be the same after DAFNE.............and its a shame funding cuts are cutting people out of getting the basic education they deserve........... I look forward to hearing from you..............

Feb 4, 2012 JennyNZ 29 posts	Topic: General Discussion / diarrhoea are you drinking enough g and t's!!???

Feb 4, 2012 Ahmentep 99 posts	Topic: General Discussion / new graduate today Congratulations! Don't be in a rush to get things perfect, they probably never will be. Just keep looking for patterns and making adjustments (one at a time, with two days minimum in between) and the improvement you have noticed will continue, and get better. Well done, and the best of luck. Roger

Feb 3, 2012 samshine 3 posts	Topic: General Discussion / new graduate today Hi, i had the last day of the DAFNE course today and am so pleased i went. After many years of abusing my diabetes its time to start again and control my diabetes. Cant believe i can eat anything now (with the right insulin) I thought the course was great, got new needles, have been taken off of lantus and put onto levemir twice a day which seems to be doing the job, although ive had quite a few hypos (which i hate). Hopefully things will settle down and i will be in control for the first time in nearly 30 years.

Feb 3, 2012 LaneyH82 6 posts	Topic: General Discussion / Panicking When Taking Hypos Thanks everyone for the feedback. I have had diabetes since i was 13 and i am now 29. I have just recently started experiencing panic attacks when i am hypoing.Its frustrating as i have never experienced anything like this before. I thought it would have been a good question to ask as i don't know anyone else with type 1 and its good to get oter peoples views that have diabetes.i completed the dafne course today and hoping that my hypos are very minimum now.

Feb 3, 2012 thebatoutofhull 60 posts	Topic: General Discussion / no carb/sugar free drinks Digging a hole for myself now. When we were kids my mum used to make us veggi stock for bonfire night. She'd kid us it was soup. A small stock cube is not the same but only 0.9 carbs is not too bad and you get a couple of cups out of it. other ideas, fruit teas nettle tea or a dry mulled wine. Ok hole definitely deeper.

Feb 3, 2012 MARIER 42 posts	Topic: General Discussion / no carb/sugar free drinks Thanx All !!! Veggi Stock ?????????????? sounds intreging but cant have sugar as it has Carbs in it

Feb 3, 2012 thebatoutofhull 60 posts	Topic: General Discussion / no carb/sugar free drinks ah. no probs, I should try to be clearer. Keep postin' I've not been on here long but learned an awful lot from you.

Feb 3, 2012 novorapidboi26 1,819 posts	Topic: General Discussion / no carb/sugar free drinks lol, sorry, i misunderstood you............