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Jun 29, 2013
youone
102 posts
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Topic: Carbohydrate Counting / New to carb counting
Hi sorry you had an accident. The Dafne course is a must for any type1, I hope the information you've been given will speed up the process for you.. I myself go through periods of blindness not more than two weeks the blindness is not diabetes related but does cause me some issues especially where BG testing is involved. I find that while I'm sitting waiting for the eye to repair itself usually two weeks I'm inactive for most of this period. My normal ratio of insulin is 1:1 that is for evey 10grams of carbohydrate (1CP) I take 1 unit of QA (humolog) insulin. When I'm inactive that ratio can increase to 2:1 2 units of QA to 10 grams of carbohydrare. If you are changing your amounts of insulin remember to test more also the time period for correcting you'll find many references to this on these forums. I wish you a speedy route to your course Regards Brian |
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Jun 29, 2013
youone
102 posts
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Topic: General Discussion / New vaccine! Should we get our hopes up?
I 2nd you the saving on a CGM kit over a meter and strips must be a large saving for the NHS so what's the issue? |
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Jun 28, 2013
IanS
5 posts
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Topic: General Discussion / New vaccine! Should we get our hopes up? After 24 years with Type 1 I've seen plenty of these kinds of articles and have always taken them with a pinch of salt. Not one of them has come true yet, but I always live in hope I'm quite excited about the Artificial Pancreas research, although like you Simon, I can't get a CGM from the NHS so I doubt that I could get an Artificial Pancreas either. |
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Jun 28, 2013
SimonC
78 posts
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Topic: General Discussion / New vaccine! Should we get our hopes up? This is interesting - and obviously we shouldn't try to read too much into the headline, as a type 1, whose father was type 1, with kids, whose mother's mother was type 1, there is a real risk in their bloodline, and if the kids lived in the UK, I would be very interested in some of the research.To be honest, my holy grail is getting a continuous glucose monitoring kit - there are plenty around, but the dear old NHS won't let me have one, and I can't afford to fund one myself |
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Jun 28, 2013
marke
655 posts
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Topic: Carbohydrate Counting / New to carb counting The centres in NI are:Royal Victoria Hospital, Belfast Lagan Valley Hospital Lisburn Health Centre Castlewellan Health Centre Downe Hospital, Downpatrick Ulster Hospital, Dundonald Northern Health and Social Care Trust If any of these are familiar speak to your doctor and consultant about being referred to a DAFNE course. |
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Jun 28, 2013
marke
655 posts
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Topic: General Discussion / New vaccine! Should we get our hopes up? As ever, I think you need to bear in mind this is a small trial at an early stage. A vaccine that can be used commercially is probably at least 5 years away. Not that it isn't a promising line of research its just these things take time. As we all know everyone is different and the effects of modifying the immune system need to be fully understood before we start pumping it into large numbers of people.Still as an existing Type 1 I'm more interested in something that will make me produce insulin again and stop me having to stare glumly at BG results on a machine whilst thinking 'how did that happen' 
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Jun 28, 2013
IanS
5 posts
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Topic: General Discussion / New vaccine! Should we get our hopes up? That's a good point, currently you'd have to take anti-rejection drugs as your immune system would destroy them as they are foreign bodies. It could also be useful for those who have had pancreas transplants for the same reason. It may also help for stem cell islet transplantation as I understand that the cells would be destroyed as you have described. Obviously stem cell research is quite controversial, but that is another topic. |
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Jun 28, 2013
MaryJC
10 posts
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Topic: Questions ? / Figures muddle me!!! Hello everyoneI have been 'lurking' for some time now. Reading all I can and trying to figure it all out. I am 64 yrs old female. Told I was T2. Tried dieting and all kinds of pills but nothing worked. After lots more testing they decided I was T1 and I went onto insulin. I had gestational diabetes during my pregnancies. my consultant says i have probably been on the borderline ever since. Maybe this explains why i never ever felt well. I'm on a waiting list for training (May 2014). ive been studying all I can find on the Dafne course while I'm waiting and I think I understand the concept of it all. I have no trouble counting carbs and working out insulin needed. My problem is what to do with the figures when I've got them!!! I look at them and they mean nothing to me. I can see that most times my BG is too high. Usually at bedtime it's in the 20's. I'm sharing yesterday's diary in hopes of some ideas. Is my bolus too high or too low? Is my QA not enough? That's the numbers that I can't grasp. When I look at them I don't see any patterns just that BG is too high. They are better than when diagnosed. Nov 2012 my HbA1c was 98. It's now 69 so that must be an improvement. Any help or advice gratefully received Maryjc |
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Jun 28, 2013
NuMo
28 posts
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Topic: General Discussion / New vaccine! Should we get our hopes up? This sounds very interesting.What occurs to me is how this might be used in conjunction with the Beta cell transplant programme. As I understand it, the cells transplanted ok but were then destroyed much as the original cells had been. What would also be an interesting line of study would be late onset type 1. What holds back the development of the disease in these subjects? |
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Jun 28, 2013
NuMo
28 posts
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Topic: Carbohydrate Counting / New to carb counting Welcome to Dafne forum Hwrighttype1.As you will know, your BG will rise if you are less active. So while you are recovering and inactive you will need more insulin. With Dafne, we count carbs in Carbohydrate Portions (CP) which nicely ratio to the insulin thus reducing the amount of guesswork involved. I don't know where the Dafne Centres are in Northern Ireland, perhaps you might find out on the main Dafne website which you can find on our home page here. To get on a Dafne course you have to go through your Doctor or Diabetes team. It is well worth doing. Dafne enables you to be in control again. You learn how to adjust your insulin dose according to what you eat, how to cope when ill, and a whole lot more besides. I can thoroughly recommend it. Good luck |
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Jun 27, 2013
Jackie Elliott
1 post
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Topic: General Discussion / New vaccine! Should we get our hopes up? I think your interpretation is correct, these initial results look as though the vaccine would only help those newly diagnosed to slow down the destruction of beta cells, or indeed those with antibodies to prevent progression to diabetes.There is a research trial called TrialNet which is trying to recruit relatives of patients with Type 1 diabetes, who are then tested for the presence of antibodies. These high risk individuals would then be suitable to enter a trial of any new vaccine, we in Sheffield are a UK centre for this, there are several more across the country trying to recruit relatives. |
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Jun 27, 2013
IanS
5 posts
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Topic: General Discussion / New vaccine! Should we get our hopes up? Today on the BBC:http://www.bbc.co.uk/news/health-23064897 If this vaccine can prevent the immune system from attacking the insulin producing cells it looks to me like it would only be useful either to prevent diabetes in the first place, or to stop further cells from being destroyed after diagnosis (i.e. in the honeymoon period). If the cells have already been destoyed then I think it is doubtful that type 1 diabetes could be reversed. Anybody have any opinions on this? It will be interesting to see what Diabetes UK say on it in the next Balance. |
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Jun 27, 2013
Hwrighttype1
1 post
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I am new to this site and carb counting. I have been type 1 for 20 years. I haven't had much problem with control overall but I was recently hit by a car leaving me unable to move around for the last six months. I find my control has been more difficult and overall sugars higher. Typically gone from 7/8 in morning to now 11/12. Increased short acting and basal insulin from 11 to 14 still not coming down. Is there any courses that I could attend I live in Northern Ireland. I haven't been given much help from diabetic team except just to increase insulin. Can anyone offer advice on carb counting. Eg how much is a good ratio of carbs to eat per day and how much protein. Thanks |
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Jun 27, 2013
Warwick
434 posts
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Topic: General Discussion / Another reason to avoid hospitals http://www.guardian.co.uk/society/2013/jun/27/diabetes-treatment-hospitals-patients-riskA really good reason to insist on your own management of your diabetes while in hospital. |
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Jun 26, 2013
youone
102 posts
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Topic: General Discussion / popcorn heaven
Hi gemmal Thanks I've got a local dominoes,so I'll check their web site,always the same you never notice the closest  Looks like their starting to realise where here;) |
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Jun 26, 2013
GemmaLong
2 posts
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Topic: General Discussion / popcorn heaven Hi. 'Youone'was just reading down this and saw u mentioned pizza places if you haven't found one yet I would suggest dominoes as they have a section on their websit that lists every pizza and choices of base and they tell u how many carbs per slice they cut... And its spot on as I was in my target after 4 hours after eating this and doing injection
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Jun 26, 2013
Vickyp
135 posts
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Topic: General Discussion / pump therapy to reduce hypos? I am on the omnipod pump due to my insulin sensitivity. Have had a few more hypos (3.5-3. since going on the pump whilst we get the ratios etc sorted but feel so much more in control of my BGs than when on injections! The Medtronic has the CGM and that's the pump that was originally advised for me but I wanted the omnipod...we are in the same area (Durham) so don't see why you wouldn't get that pump. Worth speaking to your consultant as mine took on board what I said! Vicky |
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Jun 26, 2013
baldrick040561
5 posts
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Have just visited my diabetic nurse today and discussed about the amount of hypos that I am having and the lack of warning signs I get. In fact went to 2.6 during afternoon recently while watching tv and did not realise. my wife had to call paramedics out, but on other occasions have managed to catch as just before meals when I do a test. Diabetic nurse has suggested that I move from regular injections to an insulin pump. My question is has this worked for anybody? I have also been looking at a pump with Continual Glucose Monitoring (CGM) but this is very expensive and apparently in our area there is only one person who has managed to receive funding to obtain it. Again has anyone tried these and have they made a difference? Richard |
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Jun 26, 2013
FayeM
4 posts
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Topic: Questions ? / Hypos leaving me 'wiped out'. Hey all. Turned out there was another underlying condition that was making my hypos 'behave differently'.I definately think if your hypos start doing different things after a long time it's worth checking with a doctor to make sure there's nothing more going on. =] Luckily i'm back to the normal 'dizzy, numb tongue, spinny room' hypos I normally have. |
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Jun 26, 2013
googs
6 posts
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Topic: General Discussion / Apps Hey Stew,I found carbs and cals a bit limited but good none the less,Even better though is calorie counter its a free android app that even die localised foods,Nice to know yumyum.The logo is a pair of feet on a scales,Hope this helps my man... |
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Jun 25, 2013
Sarah Birkett
3 posts
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Topic: General Discussion / NHS Medication Changes: Are you affected? Hi,When it comes to doctors trying to force you to change meter or refusing to issue blood ketone strips because of cost, I've found that the best thing to do is get your diabetes team to deal with it. If I go to my nurse saying I've been told I can't have blood ketone strips, she's just spoken to my GP and demanded he give me them because it is cheaper for us to be able to test for ketones ourselves and treat them ourselves than if they refuse to let us have any and us ending up in A & E with ketoacidosis. They also apparently aren't allowed to refuse you the choice of blood glucose meter, you just have to persist (or ask your nurse to speak to them on your behalf). Sarah |
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Jun 25, 2013
Sarah Birkett
3 posts
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Topic: Questions ? / Hypos leaving me 'wiped out'. Hi Faye,I have this sometimes too (although not always so I don't know what the explanation for that is), where I feel totally fatigued for a good 24 hours after a hypo, I actually find it makes me feel incredibly emotional too, it's like being depressed for 24 hours! Have you been having quite a few hypos, or big swings between blood glucose readings? Because I find that when my control is more rollercoaster-like, hypos affect me for much longer than when it's just an odd blip? Sarah |
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Jun 25, 2013
Anele46
108 posts
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Topic: General Discussion / popcorn heaven
Have requested the image to be deleted also from postimage.org. Thanks, Anele. |
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Jun 24, 2013
youone
102 posts
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Topic: General Discussion / Night shifts HiI've being a type1 for 40 years and have worked Day/Double Days/ and 3years of nights, The Night shift was the worst time in my life, I got myself off nights with the aid of the in house union. 7 years ago the company was taken over and that's when I came under pressure to cover the night shift when their off or on holiday. I foolishly agreed to this because at the time the economy went bad as we all know. After a period of covering nights I started to suffer my health was poor my BG was all over the place, I asked both the union and company management to come off the machine since I was covering and working up to 70 hours a week. Too this day I should have been more forceable and pushed to come off this working pattern, But I didn't and I allowed it too continue to which I had a hypo the only 1 in 24 years at this company. The company suspended me on the spot, it was only my work mate he helped me that I got my BG back up to normal Again I was foolish and didn't take action against the company, I should have,but looking back the union and company must have realised there had between them made a large mistake and as I said with the economy I was glad to get my job back. Even now they still ask me to cover nights, but I don't I'm wiser unless you work in a non physical job working nights is extremely differ cult to cope with especially if the company dosn't support you. People have said to me why did you allow this,there's laws against this.I believe like you when you need help it suddenly vanishes into the shadows and your left to defend your self. It was never in my nature to be "NO" person I would always try to help others, but for me when I needed help it wasn't there. All I would say for your BG levels on nights test and test any unusual physical work test and correct don't just carry on. Take a break when "YOU" need to. Production comes 2nd to your health. Check your BG before you go to bed, don't over sleep. Your BI insulin is very important here Dafne will help. I hope your not like me and get the help you need to persuade your employer to realise the issues Nights can have on a type1 I look back when I started work being young you think your indestructible I praised working in the printing industry, now I know I should have took a different job. Keep in touch maybe the administrator of this these forums can give you the correct help you need. Best regards Brian |
