Recent Posts - DAFNE Online

Jul 1, 2013

youone 102 posts

Topic: General Discussion / New change to DVLA driving guide April 2013

If you haven't noticed on the front page of this site, DVLA have changed the guide to testing your BG,
I'll add it's for the better

Type 1 diabetic ~ 42 years

Jul 1, 2013

HelenP 218 posts

Topic: General Discussion / Another reason to avoid hospitals

I am on a pump and got a blood infection whilst travelling overseas. Arrived back in Brisbane with BGs (6 ish) but feeling very sick. Rang an ambulance and was admitted immediately to hospital. On the second day full of antibiotics and feeling much better, decided to take a shower, took off the pump and left it on the bedside table. Fear of dropping it on the tiles and the usual practice at home. Came out of the shower and the pump was gone! Major panic. Asked the geriatric I was sharing a room with if she had seen anybody near by bed...only the nurse. Took me over an hour to get it back as I was not supposed to have insulin as it was not on my drug list. A note on the admission sheet said I had an insulin pump in situ but did not specify I could have insulin in it!

Doctor very apologetic. Patient dumbstruck!

Jul 1, 2013

Gerald 2 posts

Topic: DAFNE Graduate Group (DGG) / hypos

Gerald said:
When I have ahypo I take my locozade which , after awhile cause my blood glucose to spike. At my next meal do I then include a corrective dose?
Eg 4.7 hypo take 125 ml lucozade blood spikes to 12 at next meal normal carboydrate value + corrective dose (or not)

Thanks vickyp that's got that sorted! Smile

Jul 1, 2013

eelong 3 posts

Topic: General Discussion / interesting lecture on dietary recommendations over the last 50-60 years

Check out the following link for some interesting ideas/concepts regarding dietary advice. The concluding points from this lecture have particular relevance to diabetics!

http://www.youtube.com/watch?feature=player_embedded&v=5IYVIdztWWs&list=PLJHP-Y-w4v319kDSCIKBr53nCsgY34fhy

Tim Noakes, director of the UCT/Medical Research Council (MRC) Research Unit for Exercise Science and Sports Medicine and Discovery Health professor of exercise and sports science shares his views during the "The Great Centenary Debate" at the University of Cape Town's Faculty of Health Sciences. The debate was a showdown between Noakes and Dr Jacques Rossouw on the topic "Cholesterol is not an important factor for heart disease and current dietary recommendations do even more harm than good."

Posted by Tom Longbottom
BSc (Hons.) Exercise and Sport Science
Personal Trainer

Type 1 Diabetic ~4yrs

Jun 30, 2013

Vickyp 137 posts

Topic: DAFNE Graduate Group (DGG) / hypos

No corrective dose at next meal.
However 4.7 is not a hypo...below 4 is..or 3.5 according to DAFNE principles...so I wouldn't treat 4.7 with fast acting.
You should always follow fast acting with slow release, eg lucozade followed by a biscuit or fruit as the lucozade will cause a spike but BGs are then likely to plummet so you need a longer acting carb to prevent the bg crash happening.

Jun 30, 2013

Gerald 2 posts

Topic: DAFNE Graduate Group (DGG) / hypos

When I have ahypo I take my locozade which , after awhile cause my blood glucose to spike. At my next meal do I then include a corrective dose?
Eg 4.7 hypo take 125 ml lucozade blood spikes to 12 at next meal normal carboydrate value + corrective dose (or not)

Jun 30, 2013

julienne 1 post

Topic: DAFNE Online Mobile / App alarm

I love this app, it is the simplest and most reliable app out there for recording my readings. However, there was an app I was using previously that allowed an alarm to set for post meal testing and I am seriously missing that facility. Is this anything that is likely to be added soon?

I could use the app on my phone but invariably I forget (either I am ditzy or a busy mum with three kids) and what was nice before was once I added a pre-meal reading I would automatically get an alarm.

thanks

julienne

Jun 30, 2013

Nettie 7 posts

Topic: General Discussion / Lantus Prefilled Pen

Hi, I always take spares after being stranded in Corfu during the dust storm caused by the volcano in Iceland. I had just enough but it was very worrying for me at the time. You can't be too careful!

Jun 30, 2013

Nettie 7 posts

Topic: General Discussion / Changing Injection sites

Hi, I don't have an order. I usually do thighs and stomach. Perhaps I should think about a plan. By the way isn't DAFNE great. Very Happy

Jun 30, 2013

MaryJC 10 posts

Topic: Questions for HCPs / Figures muddle me!!!

I've always been a compulsive over eater. I binge eat. Since being diagnosed I am much better but I still crave the carbs. If I don't eat regular I do have hypos. Sometimes I'm as low as 2 mm ol. I find these rather scary as I live alone and I don't always have warning signs. Just going for a walk can make me hypo so I overcompensate with the carbs because I don't know how to juggle my insulin. If I eat regular and stay sedentary I'm ok. Not good for the weight though. Lol
I also find all the different advice confusing. The clinic tell me to have carbs with every meal and never to skip meals. I'm getting good with working out how many carbs and how much insulin. But to me they are just numbers that don't mean anything. I've been reading everything I can find so am much better informed now. It's the correcting and juggling and looking for patterns that I don't seem to get. I've always been a 'words' person and not good with numbers at all.

Jun 30, 2013

novorapidboi26 1,819 posts

Topic: Questions for HCPs / Figures muddle me!!!

Thats exactly right...

I Usually go for meat, cheese or egg meals....although for complete accuracy your best just missing the meal altogether. ...

its difficult for most but thats why its good its only down now and again....

do you think you will go hypo if you go carb free or is it just a hunger thing...

Its

Jun 30, 2013

Stew B 125 posts

Topic: General Discussion / Apps

Nice one - thanks googs!

Stew

Jun 30, 2013

Stew B 125 posts

Topic: General Discussion / pump therapy to reduce hypos?

Hi Richard
I had (for me) an unsuccessful pump attempt last year (see my post on this thread: http://www.dafneonline.co.uk/forums/1/topics/1903 ). However, the one aspect that the pump did help with was to reduce the number of hypos I was experiencing.

Stew

Jun 30, 2013

MaryJC 10 posts

Topic: Questions for HCPs / Figures muddle me!!!

Thank you very much. I will try tomorrow for carb free meals. But I will be honest and admit I have never been able to go without carbs. I have trouble just trying to keep them lower than normal.
Am I right in thinking then, that the basal insulin keeps my blood sugar stable and the bolus only covers what I have just eaten. Does that sum it up?

Jun 29, 2013

novorapidboi26 1,819 posts

Topic: Questions for HCPs / Figures muddle me!!!

when DAFNE is started you learn that the background dose is the most critical.......its the foundation.........so for you the 9 in the morning and the 9 before bed.........

you will need to test these doses by having carb free meals, this will tell you what the current dose of 9 is actually doing..........it should be holding your blood sugar steady from one meal time to the next......

Its also taught to obtain 3 consecutive days results in order to make accurate conclusions about what is happening........

these 2 background doses will need to be adjusted and correct before any real evaluation of the bolus/mealtime insulin doses can be done....

it seems as though your ratios are really low, so you need not a lot of insulin, this may be the case, but it may also be that your background doses are too much........

I hope that made sense........basically you need to get some background test results down on paper........

Welcome to the forum Mary......... Smile

Jun 29, 2013

novorapidboi26 1,819 posts

Topic: General Discussion / pump therapy to reduce hypos?

I never had a problem with hypos as such but the pump has changed my diabetes for the better.........much more efficient use of the insulin and therefore less is used....

pumps are able to deliver much smaller doses and therefore will reduce hypos significantly.........

the CGM is a good device to have with a pump, but I don't know of many who use one permanently, ideally they are used to ascertain certain blood sugar pattern, especially overnight, which will then allow critical dose changes to basal rates to be made........having it all the time isn't really practical or cheap I suppose.........some exceptional circumstances may warrant it, but for the majority it would, in my opinion make you lazy.......

Do you drive..........?

I ask because you had paramedics phoned for a 2.6........this is low but can be treated normally............more than 2 paramedic events would mean your license would be revoked........did you feel you were not able to deal with the hypo....... seeing as there were no symptoms.......

Jun 29, 2013

youone 102 posts

Topic: Carbohydrate Counting / New to carb counting

Hwrighttype1 said:
I am new to this site and carb counting. I have been type 1 for 20 years. I haven't had much problem with control overall but I was recently hit by a car leaving me unable to move around for the last six months. I find my control has been more difficult and overall sugars higher. Typically gone from 7/8 in morning to now 11/12. Increased short acting and basal insulin from 11 to 14 still not coming down. Is there any courses that I could attend I live in Northern Ireland. I haven't been given much help from diabetic team except just to increase insulin. Can anyone offer advice on carb counting. Eg how much is a good ratio of carbs to eat per day and how much protein. Thanks

Hi sorry you had an accident.
The Dafne course is a must for any type1, I hope the information you've been given will speed up the process for you..
I myself go through periods of blindness not more than two weeks the blindness is not diabetes related but does cause me some issues especially where BG testing is involved.
I find that while I'm sitting waiting for the eye to repair itself usually two weeks I'm inactive for most of this period.
My normal ratio of insulin is 1:1 that is for evey 10grams of carbohydrate (1CP) I take 1 unit of QA (humolog) insulin.
When I'm inactive that ratio can increase to 2:1 2 units of QA to 10 grams of carbohydrare.
If you are changing your amounts of insulin remember to test more also the time period for correcting you'll find many references to this on these forums.
I wish you a speedy route to your course
Regards
Brian

Jun 29, 2013

youone 102 posts

Topic: General Discussion / New vaccine! Should we get our hopes up?

SimonC said:
This is interesting - and obviously we shouldn't try to read too much into the headline, as a type 1, whose father was type 1, with kids, whose mother's mother was type 1, there is a real risk in their bloodline, and if the kids lived in the UK, I would be very interested in some of the research.

To be honest, my holy grail is getting a continuous glucose monitoring kit - there are plenty around, but the dear old NHS won't let me have one, and I can't afford to fund one myself

I 2nd you the saving on a CGM kit over a meter and strips must be a large saving for the NHS so what's the issue?

Jun 28, 2013

IanS 5 posts

Topic: General Discussion / New vaccine! Should we get our hopes up?

After 24 years with Type 1 I've seen plenty of these kinds of articles and have always taken them with a pinch of salt. Not one of them has come true yet, but I always live in hope Smile

I'm quite excited about the Artificial Pancreas research, although like you Simon, I can't get a CGM from the NHS so I doubt that I could get an Artificial Pancreas either.

Jun 28, 2013

SimonC 78 posts

Topic: General Discussion / New vaccine! Should we get our hopes up?

This is interesting - and obviously we shouldn't try to read too much into the headline, as a type 1, whose father was type 1, with kids, whose mother's mother was type 1, there is a real risk in their bloodline, and if the kids lived in the UK, I would be very interested in some of the research.

To be honest, my holy grail is getting a continuous glucose monitoring kit - there are plenty around, but the dear old NHS won't let me have one, and I can't afford to fund one myself

Jun 28, 2013

marke 681 posts

Topic: Carbohydrate Counting / New to carb counting

The centres in NI are:

Royal Victoria Hospital, Belfast
Lagan Valley Hospital
Lisburn Health Centre
Castlewellan Health Centre
Downe Hospital, Downpatrick
Ulster Hospital, Dundonald
Northern Health and Social Care Trust

If any of these are familiar speak to your doctor and consultant about being referred to a DAFNE course.

Jun 28, 2013

marke 681 posts

Topic: General Discussion / New vaccine! Should we get our hopes up?

As ever, I think you need to bear in mind this is a small trial at an early stage. A vaccine that can be used commercially is probably at least 5 years away. Not that it isn't a promising line of research its just these things take time. As we all know everyone is different and the effects of modifying the immune system need to be fully understood before we start pumping it into large numbers of people.
Still as an existing Type 1 I'm more interested in something that will make me produce insulin again and stop me having to stare glumly at BG results on a machine whilst thinking 'how did that happen' Confused

Jun 28, 2013

IanS 5 posts

Topic: General Discussion / New vaccine! Should we get our hopes up?

That's a good point, currently you'd have to take anti-rejection drugs as your immune system would destroy them as they are foreign bodies. It could also be useful for those who have had pancreas transplants for the same reason. It may also help for stem cell islet transplantation as I understand that the cells would be destroyed as you have described. Obviously stem cell research is quite controversial, but that is another topic.

Jun 28, 2013

MaryJC 10 posts

Topic: Questions for HCPs / Figures muddle me!!!

Hello everyone
I have been 'lurking' for some time now. Reading all I can and trying to figure it all out.
I am 64 yrs old female. Told I was T2. Tried dieting and all kinds of pills but nothing worked. After lots more testing they decided I was T1 and I went onto insulin. I had gestational diabetes during my pregnancies. my consultant says i have probably been on the borderline ever since. Maybe this explains why i never ever felt well.
I'm on a waiting list for training (May 2014). ive been studying all I can find on the Dafne course while I'm waiting and I think I understand the concept of it all. I have no trouble counting carbs and working out insulin needed. My problem is what to do with the figures when I've got them!!!
I look at them and they mean nothing to me. I can see that most times my BG is too high. Usually at bedtime it's in the 20's. I'm sharing yesterday's diary in hopes of some ideas. Is my bolus too high or too low? Is my QA not enough? That's the numbers that I can't grasp. When I look at them I don't see any patterns just that BG is too high.
They are better than when diagnosed. Nov 2012 my HbA1c was 98. It's now 69 so that must be an improvement.
Any help or advice gratefully received
Maryjc

Jun 28, 2013

NuMo 28 posts

Topic: General Discussion / New vaccine! Should we get our hopes up?

This sounds very interesting.

What occurs to me is how this might be used in conjunction with the Beta cell transplant programme. As I understand it, the cells transplanted ok but were then destroyed much as the original cells had been.

What would also be an interesting line of study would be late onset type 1. What holds back the development of the disease in these subjects?

Jul 1, 2013 youone 102 posts	Topic: General Discussion / New change to DVLA driving guide April 2013 If you haven't noticed on the front page of this site, DVLA have changed the guide to testing your BG, I'll add it's for the better Type 1 diabetic ~ 42 years

Jul 1, 2013 HelenP 218 posts	Topic: General Discussion / Another reason to avoid hospitals I am on a pump and got a blood infection whilst travelling overseas. Arrived back in Brisbane with BGs (6 ish) but feeling very sick. Rang an ambulance and was admitted immediately to hospital. On the second day full of antibiotics and feeling much better, decided to take a shower, took off the pump and left it on the bedside table. Fear of dropping it on the tiles and the usual practice at home. Came out of the shower and the pump was gone! Major panic. Asked the geriatric I was sharing a room with if she had seen anybody near by bed...only the nurse. Took me over an hour to get it back as I was not supposed to have insulin as it was not on my drug list. A note on the admission sheet said I had an insulin pump in situ but did not specify I could have insulin in it! Doctor very apologetic. Patient dumbstruck!

Jul 1, 2013 Gerald 2 posts	Topic: DAFNE Graduate Group (DGG) / hypos Gerald said: When I have ahypo I take my locozade which , after awhile cause my blood glucose to spike. At my next meal do I then include a corrective dose? Eg 4.7 hypo take 125 ml lucozade blood spikes to 12 at next meal normal carboydrate value + corrective dose (or not) Thanks vickyp that's got that sorted!

Jul 1, 2013 eelong 3 posts	Topic: General Discussion / interesting lecture on dietary recommendations over the last 50-60 years Check out the following link for some interesting ideas/concepts regarding dietary advice. The concluding points from this lecture have particular relevance to diabetics! http://www.youtube.com/watch?feature=player_embedded&v=5IYVIdztWWs&list=PLJHP-Y-w4v319kDSCIKBr53nCsgY34fhy Tim Noakes, director of the UCT/Medical Research Council (MRC) Research Unit for Exercise Science and Sports Medicine and Discovery Health professor of exercise and sports science shares his views during the "The Great Centenary Debate" at the University of Cape Town's Faculty of Health Sciences. The debate was a showdown between Noakes and Dr Jacques Rossouw on the topic "Cholesterol is not an important factor for heart disease and current dietary recommendations do even more harm than good." Posted by Tom Longbottom BSc (Hons.) Exercise and Sport Science Personal Trainer Type 1 Diabetic ~4yrs

Jun 30, 2013 Vickyp 137 posts	Topic: DAFNE Graduate Group (DGG) / hypos No corrective dose at next meal. However 4.7 is not a hypo...below 4 is..or 3.5 according to DAFNE principles...so I wouldn't treat 4.7 with fast acting. You should always follow fast acting with slow release, eg lucozade followed by a biscuit or fruit as the lucozade will cause a spike but BGs are then likely to plummet so you need a longer acting carb to prevent the bg crash happening.

Jun 30, 2013 Gerald 2 posts	Topic: DAFNE Graduate Group (DGG) / hypos When I have ahypo I take my locozade which , after awhile cause my blood glucose to spike. At my next meal do I then include a corrective dose? Eg 4.7 hypo take 125 ml lucozade blood spikes to 12 at next meal normal carboydrate value + corrective dose (or not)

Jun 30, 2013 julienne 1 post	Topic: DAFNE Online Mobile / App alarm I love this app, it is the simplest and most reliable app out there for recording my readings. However, there was an app I was using previously that allowed an alarm to set for post meal testing and I am seriously missing that facility. Is this anything that is likely to be added soon? I could use the app on my phone but invariably I forget (either I am ditzy or a busy mum with three kids) and what was nice before was once I added a pre-meal reading I would automatically get an alarm. thanks julienne

Jun 30, 2013 Nettie 7 posts	Topic: General Discussion / Lantus Prefilled Pen Hi, I always take spares after being stranded in Corfu during the dust storm caused by the volcano in Iceland. I had just enough but it was very worrying for me at the time. You can't be too careful!

Jun 30, 2013 Nettie 7 posts	Topic: General Discussion / Changing Injection sites Hi, I don't have an order. I usually do thighs and stomach. Perhaps I should think about a plan. By the way isn't DAFNE great.

Jun 30, 2013 MaryJC 10 posts	Topic: Questions for HCPs / Figures muddle me!!! I've always been a compulsive over eater. I binge eat. Since being diagnosed I am much better but I still crave the carbs. If I don't eat regular I do have hypos. Sometimes I'm as low as 2 mm ol. I find these rather scary as I live alone and I don't always have warning signs. Just going for a walk can make me hypo so I overcompensate with the carbs because I don't know how to juggle my insulin. If I eat regular and stay sedentary I'm ok. Not good for the weight though. Lol I also find all the different advice confusing. The clinic tell me to have carbs with every meal and never to skip meals. I'm getting good with working out how many carbs and how much insulin. But to me they are just numbers that don't mean anything. I've been reading everything I can find so am much better informed now. It's the correcting and juggling and looking for patterns that I don't seem to get. I've always been a 'words' person and not good with numbers at all.

Jun 30, 2013 novorapidboi26 1,819 posts	Topic: Questions for HCPs / Figures muddle me!!! Thats exactly right... I Usually go for meat, cheese or egg meals....although for complete accuracy your best just missing the meal altogether. ... its difficult for most but thats why its good its only down now and again.... do you think you will go hypo if you go carb free or is it just a hunger thing... Its

Jun 30, 2013 Stew B 125 posts	Topic: General Discussion / Apps Nice one - thanks googs! Stew

Jun 30, 2013 Stew B 125 posts	Topic: General Discussion / pump therapy to reduce hypos? Hi Richard I had (for me) an unsuccessful pump attempt last year (see my post on this thread: http://www.dafneonline.co.uk/forums/1/topics/1903 ). However, the one aspect that the pump did help with was to reduce the number of hypos I was experiencing. Stew

Jun 30, 2013 MaryJC 10 posts	Topic: Questions for HCPs / Figures muddle me!!! Thank you very much. I will try tomorrow for carb free meals. But I will be honest and admit I have never been able to go without carbs. I have trouble just trying to keep them lower than normal. Am I right in thinking then, that the basal insulin keeps my blood sugar stable and the bolus only covers what I have just eaten. Does that sum it up?

Jun 29, 2013 novorapidboi26 1,819 posts	Topic: Questions for HCPs / Figures muddle me!!! when DAFNE is started you learn that the background dose is the most critical.......its the foundation.........so for you the 9 in the morning and the 9 before bed......... you will need to test these doses by having carb free meals, this will tell you what the current dose of 9 is actually doing..........it should be holding your blood sugar steady from one meal time to the next...... Its also taught to obtain 3 consecutive days results in order to make accurate conclusions about what is happening........ these 2 background doses will need to be adjusted and correct before any real evaluation of the bolus/mealtime insulin doses can be done.... it seems as though your ratios are really low, so you need not a lot of insulin, this may be the case, but it may also be that your background doses are too much........ I hope that made sense........basically you need to get some background test results down on paper........ Welcome to the forum Mary.........

Jun 29, 2013 novorapidboi26 1,819 posts	Topic: General Discussion / pump therapy to reduce hypos? I never had a problem with hypos as such but the pump has changed my diabetes for the better.........much more efficient use of the insulin and therefore less is used.... pumps are able to deliver much smaller doses and therefore will reduce hypos significantly......... the CGM is a good device to have with a pump, but I don't know of many who use one permanently, ideally they are used to ascertain certain blood sugar pattern, especially overnight, which will then allow critical dose changes to basal rates to be made........having it all the time isn't really practical or cheap I suppose.........some exceptional circumstances may warrant it, but for the majority it would, in my opinion make you lazy....... Do you drive..........? I ask because you had paramedics phoned for a 2.6........this is low but can be treated normally............more than 2 paramedic events would mean your license would be revoked........did you feel you were not able to deal with the hypo....... seeing as there were no symptoms.......

Jun 29, 2013 youone 102 posts	Topic: Carbohydrate Counting / New to carb counting Hwrighttype1 said: I am new to this site and carb counting. I have been type 1 for 20 years. I haven't had much problem with control overall but I was recently hit by a car leaving me unable to move around for the last six months. I find my control has been more difficult and overall sugars higher. Typically gone from 7/8 in morning to now 11/12. Increased short acting and basal insulin from 11 to 14 still not coming down. Is there any courses that I could attend I live in Northern Ireland. I haven't been given much help from diabetic team except just to increase insulin. Can anyone offer advice on carb counting. Eg how much is a good ratio of carbs to eat per day and how much protein. Thanks Hi sorry you had an accident. The Dafne course is a must for any type1, I hope the information you've been given will speed up the process for you.. I myself go through periods of blindness not more than two weeks the blindness is not diabetes related but does cause me some issues especially where BG testing is involved. I find that while I'm sitting waiting for the eye to repair itself usually two weeks I'm inactive for most of this period. My normal ratio of insulin is 1:1 that is for evey 10grams of carbohydrate (1CP) I take 1 unit of QA (humolog) insulin. When I'm inactive that ratio can increase to 2:1 2 units of QA to 10 grams of carbohydrare. If you are changing your amounts of insulin remember to test more also the time period for correcting you'll find many references to this on these forums. I wish you a speedy route to your course Regards Brian

Jun 29, 2013 youone 102 posts	Topic: General Discussion / New vaccine! Should we get our hopes up? SimonC said: This is interesting - and obviously we shouldn't try to read too much into the headline, as a type 1, whose father was type 1, with kids, whose mother's mother was type 1, there is a real risk in their bloodline, and if the kids lived in the UK, I would be very interested in some of the research. To be honest, my holy grail is getting a continuous glucose monitoring kit - there are plenty around, but the dear old NHS won't let me have one, and I can't afford to fund one myself I 2nd you the saving on a CGM kit over a meter and strips must be a large saving for the NHS so what's the issue?

Jun 28, 2013 IanS 5 posts	Topic: General Discussion / New vaccine! Should we get our hopes up? After 24 years with Type 1 I've seen plenty of these kinds of articles and have always taken them with a pinch of salt. Not one of them has come true yet, but I always live in hope I'm quite excited about the Artificial Pancreas research, although like you Simon, I can't get a CGM from the NHS so I doubt that I could get an Artificial Pancreas either.

Jun 28, 2013 SimonC 78 posts	Topic: General Discussion / New vaccine! Should we get our hopes up? This is interesting - and obviously we shouldn't try to read too much into the headline, as a type 1, whose father was type 1, with kids, whose mother's mother was type 1, there is a real risk in their bloodline, and if the kids lived in the UK, I would be very interested in some of the research. To be honest, my holy grail is getting a continuous glucose monitoring kit - there are plenty around, but the dear old NHS won't let me have one, and I can't afford to fund one myself

Jun 28, 2013 marke 681 posts	Topic: Carbohydrate Counting / New to carb counting The centres in NI are: Royal Victoria Hospital, Belfast Lagan Valley Hospital Lisburn Health Centre Castlewellan Health Centre Downe Hospital, Downpatrick Ulster Hospital, Dundonald Northern Health and Social Care Trust If any of these are familiar speak to your doctor and consultant about being referred to a DAFNE course.

Jun 28, 2013 marke 681 posts	Topic: General Discussion / New vaccine! Should we get our hopes up? As ever, I think you need to bear in mind this is a small trial at an early stage. A vaccine that can be used commercially is probably at least 5 years away. Not that it isn't a promising line of research its just these things take time. As we all know everyone is different and the effects of modifying the immune system need to be fully understood before we start pumping it into large numbers of people. Still as an existing Type 1 I'm more interested in something that will make me produce insulin again and stop me having to stare glumly at BG results on a machine whilst thinking 'how did that happen'

Jun 28, 2013 IanS 5 posts	Topic: General Discussion / New vaccine! Should we get our hopes up? That's a good point, currently you'd have to take anti-rejection drugs as your immune system would destroy them as they are foreign bodies. It could also be useful for those who have had pancreas transplants for the same reason. It may also help for stem cell islet transplantation as I understand that the cells would be destroyed as you have described. Obviously stem cell research is quite controversial, but that is another topic.

Jun 28, 2013 MaryJC 10 posts	Topic: Questions for HCPs / Figures muddle me!!! Hello everyone I have been 'lurking' for some time now. Reading all I can and trying to figure it all out. I am 64 yrs old female. Told I was T2. Tried dieting and all kinds of pills but nothing worked. After lots more testing they decided I was T1 and I went onto insulin. I had gestational diabetes during my pregnancies. my consultant says i have probably been on the borderline ever since. Maybe this explains why i never ever felt well. I'm on a waiting list for training (May 2014). ive been studying all I can find on the Dafne course while I'm waiting and I think I understand the concept of it all. I have no trouble counting carbs and working out insulin needed. My problem is what to do with the figures when I've got them!!! I look at them and they mean nothing to me. I can see that most times my BG is too high. Usually at bedtime it's in the 20's. I'm sharing yesterday's diary in hopes of some ideas. Is my bolus too high or too low? Is my QA not enough? That's the numbers that I can't grasp. When I look at them I don't see any patterns just that BG is too high. They are better than when diagnosed. Nov 2012 my HbA1c was 98. It's now 69 so that must be an improvement. Any help or advice gratefully received Maryjc

Jun 28, 2013 NuMo 28 posts	Topic: General Discussion / New vaccine! Should we get our hopes up? This sounds very interesting. What occurs to me is how this might be used in conjunction with the Beta cell transplant programme. As I understand it, the cells transplanted ok but were then destroyed much as the original cells had been. What would also be an interesting line of study would be late onset type 1. What holds back the development of the disease in these subjects?