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15,864 posts found
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Jun 30, 2013
Nettie
7 posts
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Topic: General Discussion / Changing Injection sites Hi, I don't have an order. I usually do thighs and stomach. Perhaps I should think about a plan. By the way isn't DAFNE great.
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Jun 30, 2013
MaryJC
10 posts
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Topic: Questions for HCPs / Figures muddle me!!! I've always been a compulsive over eater. I binge eat. Since being diagnosed I am much better but I still crave the carbs. If I don't eat regular I do have hypos. Sometimes I'm as low as 2 mm ol. I find these rather scary as I live alone and I don't always have warning signs. Just going for a walk can make me hypo so I overcompensate with the carbs because I don't know how to juggle my insulin. If I eat regular and stay sedentary I'm ok. Not good for the weight though. LolI also find all the different advice confusing. The clinic tell me to have carbs with every meal and never to skip meals. I'm getting good with working out how many carbs and how much insulin. But to me they are just numbers that don't mean anything. I've been reading everything I can find so am much better informed now. It's the correcting and juggling and looking for patterns that I don't seem to get. I've always been a 'words' person and not good with numbers at all. |
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Jun 30, 2013
novorapidboi26
1,819 posts
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Topic: Questions for HCPs / Figures muddle me!!! Thats exactly right...I Usually go for meat, cheese or egg meals....although for complete accuracy your best just missing the meal altogether. ... its difficult for most but thats why its good its only down now and again.... do you think you will go hypo if you go carb free or is it just a hunger thing... Its |
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Jun 30, 2013
Stew B
125 posts
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Topic: General Discussion / Apps Nice one - thanks googs!Stew |
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Jun 30, 2013
Stew B
125 posts
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Topic: General Discussion / pump therapy to reduce hypos? Hi RichardI had (for me) an unsuccessful pump attempt last year (see my post on this thread: http://www.dafneonline.co.uk/forums/1/topics/1903 ). However, the one aspect that the pump did help with was to reduce the number of hypos I was experiencing. Stew |
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Jun 30, 2013
MaryJC
10 posts
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Topic: Questions for HCPs / Figures muddle me!!! Thank you very much. I will try tomorrow for carb free meals. But I will be honest and admit I have never been able to go without carbs. I have trouble just trying to keep them lower than normal.Am I right in thinking then, that the basal insulin keeps my blood sugar stable and the bolus only covers what I have just eaten. Does that sum it up? |
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Jun 29, 2013
novorapidboi26
1,819 posts
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Topic: Questions for HCPs / Figures muddle me!!! when DAFNE is started you learn that the background dose is the most critical.......its the foundation.........so for you the 9 in the morning and the 9 before bed.........you will need to test these doses by having carb free meals, this will tell you what the current dose of 9 is actually doing..........it should be holding your blood sugar steady from one meal time to the next...... Its also taught to obtain 3 consecutive days results in order to make accurate conclusions about what is happening........ these 2 background doses will need to be adjusted and correct before any real evaluation of the bolus/mealtime insulin doses can be done.... it seems as though your ratios are really low, so you need not a lot of insulin, this may be the case, but it may also be that your background doses are too much........ I hope that made sense........basically you need to get some background test results down on paper........ Welcome to the forum Mary......... 
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Jun 29, 2013
novorapidboi26
1,819 posts
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Topic: General Discussion / pump therapy to reduce hypos? I never had a problem with hypos as such but the pump has changed my diabetes for the better.........much more efficient use of the insulin and therefore less is used....pumps are able to deliver much smaller doses and therefore will reduce hypos significantly......... the CGM is a good device to have with a pump, but I don't know of many who use one permanently, ideally they are used to ascertain certain blood sugar pattern, especially overnight, which will then allow critical dose changes to basal rates to be made........having it all the time isn't really practical or cheap I suppose.........some exceptional circumstances may warrant it, but for the majority it would, in my opinion make you lazy....... Do you drive..........? I ask because you had paramedics phoned for a 2.6........this is low but can be treated normally............more than 2 paramedic events would mean your license would be revoked........did you feel you were not able to deal with the hypo....... seeing as there were no symptoms....... |
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Jun 29, 2013
youone
102 posts
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Topic: Carbohydrate Counting / New to carb counting
Hi sorry you had an accident. The Dafne course is a must for any type1, I hope the information you've been given will speed up the process for you.. I myself go through periods of blindness not more than two weeks the blindness is not diabetes related but does cause me some issues especially where BG testing is involved. I find that while I'm sitting waiting for the eye to repair itself usually two weeks I'm inactive for most of this period. My normal ratio of insulin is 1:1 that is for evey 10grams of carbohydrate (1CP) I take 1 unit of QA (humolog) insulin. When I'm inactive that ratio can increase to 2:1 2 units of QA to 10 grams of carbohydrare. If you are changing your amounts of insulin remember to test more also the time period for correcting you'll find many references to this on these forums. I wish you a speedy route to your course Regards Brian |
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Jun 29, 2013
youone
102 posts
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Topic: General Discussion / New vaccine! Should we get our hopes up?
I 2nd you the saving on a CGM kit over a meter and strips must be a large saving for the NHS so what's the issue? |
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Jun 28, 2013
IanS
5 posts
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Topic: General Discussion / New vaccine! Should we get our hopes up? After 24 years with Type 1 I've seen plenty of these kinds of articles and have always taken them with a pinch of salt. Not one of them has come true yet, but I always live in hope I'm quite excited about the Artificial Pancreas research, although like you Simon, I can't get a CGM from the NHS so I doubt that I could get an Artificial Pancreas either. |
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Jun 28, 2013
SimonC
78 posts
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Topic: General Discussion / New vaccine! Should we get our hopes up? This is interesting - and obviously we shouldn't try to read too much into the headline, as a type 1, whose father was type 1, with kids, whose mother's mother was type 1, there is a real risk in their bloodline, and if the kids lived in the UK, I would be very interested in some of the research.To be honest, my holy grail is getting a continuous glucose monitoring kit - there are plenty around, but the dear old NHS won't let me have one, and I can't afford to fund one myself |
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Jun 28, 2013
marke
686 posts
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Topic: Carbohydrate Counting / New to carb counting The centres in NI are:Royal Victoria Hospital, Belfast Lagan Valley Hospital Lisburn Health Centre Castlewellan Health Centre Downe Hospital, Downpatrick Ulster Hospital, Dundonald Northern Health and Social Care Trust If any of these are familiar speak to your doctor and consultant about being referred to a DAFNE course. |
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Jun 28, 2013
marke
686 posts
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Topic: General Discussion / New vaccine! Should we get our hopes up? As ever, I think you need to bear in mind this is a small trial at an early stage. A vaccine that can be used commercially is probably at least 5 years away. Not that it isn't a promising line of research its just these things take time. As we all know everyone is different and the effects of modifying the immune system need to be fully understood before we start pumping it into large numbers of people.Still as an existing Type 1 I'm more interested in something that will make me produce insulin again and stop me having to stare glumly at BG results on a machine whilst thinking 'how did that happen' 
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Jun 28, 2013
IanS
5 posts
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Topic: General Discussion / New vaccine! Should we get our hopes up? That's a good point, currently you'd have to take anti-rejection drugs as your immune system would destroy them as they are foreign bodies. It could also be useful for those who have had pancreas transplants for the same reason. It may also help for stem cell islet transplantation as I understand that the cells would be destroyed as you have described. Obviously stem cell research is quite controversial, but that is another topic. |
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Jun 28, 2013
MaryJC
10 posts
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Topic: Questions for HCPs / Figures muddle me!!! Hello everyoneI have been 'lurking' for some time now. Reading all I can and trying to figure it all out. I am 64 yrs old female. Told I was T2. Tried dieting and all kinds of pills but nothing worked. After lots more testing they decided I was T1 and I went onto insulin. I had gestational diabetes during my pregnancies. my consultant says i have probably been on the borderline ever since. Maybe this explains why i never ever felt well. I'm on a waiting list for training (May 2014). ive been studying all I can find on the Dafne course while I'm waiting and I think I understand the concept of it all. I have no trouble counting carbs and working out insulin needed. My problem is what to do with the figures when I've got them!!! I look at them and they mean nothing to me. I can see that most times my BG is too high. Usually at bedtime it's in the 20's. I'm sharing yesterday's diary in hopes of some ideas. Is my bolus too high or too low? Is my QA not enough? That's the numbers that I can't grasp. When I look at them I don't see any patterns just that BG is too high. They are better than when diagnosed. Nov 2012 my HbA1c was 98. It's now 69 so that must be an improvement. Any help or advice gratefully received Maryjc |
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Jun 28, 2013
NuMo
28 posts
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Topic: General Discussion / New vaccine! Should we get our hopes up? This sounds very interesting.What occurs to me is how this might be used in conjunction with the Beta cell transplant programme. As I understand it, the cells transplanted ok but were then destroyed much as the original cells had been. What would also be an interesting line of study would be late onset type 1. What holds back the development of the disease in these subjects? |
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Jun 28, 2013
NuMo
28 posts
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Topic: Carbohydrate Counting / New to carb counting Welcome to Dafne forum Hwrighttype1.As you will know, your BG will rise if you are less active. So while you are recovering and inactive you will need more insulin. With Dafne, we count carbs in Carbohydrate Portions (CP) which nicely ratio to the insulin thus reducing the amount of guesswork involved. I don't know where the Dafne Centres are in Northern Ireland, perhaps you might find out on the main Dafne website which you can find on our home page here. To get on a Dafne course you have to go through your Doctor or Diabetes team. It is well worth doing. Dafne enables you to be in control again. You learn how to adjust your insulin dose according to what you eat, how to cope when ill, and a whole lot more besides. I can thoroughly recommend it. Good luck |
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Jun 27, 2013
Jackie Elliott
1 post
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Topic: General Discussion / New vaccine! Should we get our hopes up? I think your interpretation is correct, these initial results look as though the vaccine would only help those newly diagnosed to slow down the destruction of beta cells, or indeed those with antibodies to prevent progression to diabetes.There is a research trial called TrialNet which is trying to recruit relatives of patients with Type 1 diabetes, who are then tested for the presence of antibodies. These high risk individuals would then be suitable to enter a trial of any new vaccine, we in Sheffield are a UK centre for this, there are several more across the country trying to recruit relatives. |
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Jun 27, 2013
IanS
5 posts
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Topic: General Discussion / New vaccine! Should we get our hopes up? Today on the BBC:http://www.bbc.co.uk/news/health-23064897 If this vaccine can prevent the immune system from attacking the insulin producing cells it looks to me like it would only be useful either to prevent diabetes in the first place, or to stop further cells from being destroyed after diagnosis (i.e. in the honeymoon period). If the cells have already been destoyed then I think it is doubtful that type 1 diabetes could be reversed. Anybody have any opinions on this? It will be interesting to see what Diabetes UK say on it in the next Balance. |
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Jun 27, 2013
Hwrighttype1
1 post
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I am new to this site and carb counting. I have been type 1 for 20 years. I haven't had much problem with control overall but I was recently hit by a car leaving me unable to move around for the last six months. I find my control has been more difficult and overall sugars higher. Typically gone from 7/8 in morning to now 11/12. Increased short acting and basal insulin from 11 to 14 still not coming down. Is there any courses that I could attend I live in Northern Ireland. I haven't been given much help from diabetic team except just to increase insulin. Can anyone offer advice on carb counting. Eg how much is a good ratio of carbs to eat per day and how much protein. Thanks |
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Jun 27, 2013
Warwick
425 posts
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Topic: General Discussion / Another reason to avoid hospitals http://www.guardian.co.uk/society/2013/jun/27/diabetes-treatment-hospitals-patients-riskA really good reason to insist on your own management of your diabetes while in hospital. |
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Jun 26, 2013
youone
102 posts
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Topic: General Discussion / popcorn heaven
Hi gemmal Thanks I've got a local dominoes,so I'll check their web site,always the same you never notice the closest Looks like their starting to realise where here;) |
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Jun 26, 2013
GemmaLong
2 posts
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Topic: General Discussion / popcorn heaven Hi. 'Youone'was just reading down this and saw u mentioned pizza places if you haven't found one yet I would suggest dominoes as they have a section on their websit that lists every pizza and choices of base and they tell u how many carbs per slice they cut... And its spot on as I was in my target after 4 hours after eating this and doing injection
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Jun 26, 2013
Vickyp
137 posts
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Topic: General Discussion / pump therapy to reduce hypos? I am on the omnipod pump due to my insulin sensitivity. Have had a few more hypos (3.5-3. since going on the pump whilst we get the ratios etc sorted but feel so much more in control of my BGs than when on injections! The Medtronic has the CGM and that's the pump that was originally advised for me but I wanted the omnipod...we are in the same area (Durham) so don't see why you wouldn't get that pump. Worth speaking to your consultant as mine took on board what I said! Vicky |