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May 18, 2013
skyesmum 3 posts

Topic: General Discussion / Hi New Here

Thanks NuMo,

You are probably right re the not eating enough - my meals are sporadic but always have been. I am trying to eat more regularly but old habits die hard.

Pre diagnosis I would happily go 3 days without a proper meal and probably survived on my numerous cups of tea with two sugars which has now stopped.

Pre bed last night was 18.9 had 30g carbs (ready meal so stated on packet, was at 17.2 pre meal had 4u QA + 5u BI, the bed time reading was only an hour later.

Woke up at 12.9 BI 5u and just tested again now at 11.5 3.5 hours later but as yet have not eaten or had anything except cup of tea.

Keeping notes etc is very hard as am out and about alot and normally very active but this last week due to feeling so awful not so much so. Discipline is really something I need to concentrate more on but the more pressure I put on myself the harder it is and I just end up feeling like I don't end up wanting to eat by time have worked it all out etc.

I run my own business etc and am terrified of loosing my licence so really worries me to have a hypo but also am now feeling dreadful and cannot function properly being so high, whereas a few months ago I was sailing along nicely at 15 and if got any lower was the most awful person to live with! 'sigh'
 
May 18, 2013
NuMo 28 posts

Topic: General Discussion / Hi New Here

Hello Skyesmum.

Welcome to Dafne.

Like you I am on 0.5 - 1 ratio, and like you directly after the course (October) my bg was all over the place. Only this last week do I feel that I am getting somewhere close to target, but I am still not getting a useful pattern, so I have a bit of a way to go yet. Don't lose heart. We have the extra annoyance of being highly sensitive, and what I have discovered is that being very sensitive and working with small doses means that the slightest error either way causes a huge swing - again, either way. This means that if you take an interim reading, before driving for example, you can really give yourself a scare, but if you can "ignore" that reading and wait till the pre-meal one, it often is down somewhere reasonable.

Be as accurate as possible with your carb counting, weighing as much as is feasible and using a calculator if necessary as a miscalculation of just half a CP can make a massive difference. Keep your liquids up.

I notice from your first post that your carb intake seems modest. Are you eating enough? If your body thinks it is short it chucks out reserves which can show as a spike.

Make lots of notes so you can learn and take the information to your follow up.

With Dafne, you have the information to take control of your life again, it's just that for we hyper-sensitive ones it takes longer to get there.

Best Wishes
 
May 18, 2013
youone 102 posts

Topic: General Discussion / My BG (Trending) Diary - All Comments Welcomed

Hi
Looking at the 2.8 BG any data after that for a period of 12 hours I personally dismiss
What in your opinion caused the sudden drop the 4.2 BG was already indicating something was going out of what you had calculated.
You only took BI between your bedtime 11.4 and the 6.7 morning yet you had 4CP's
If I had done that it would have risen not dropped.
After you take the BI of 10 units it goes up to 12.7
If all was correct it should have stay around the 6.7 +- 1.5
You keep your same ratio at dinner and have to correct which you've done on a previous day
That's a pattern
Ask yourself why you are having to correct and look at the ratio's you took before this point and the times
Although you where high BG on the 1st days there where constant after dinner. The area to look at is the morning since that is the important since what ever you done after this point is a reaction to something you've already done.
Set yourself a week
Start at 6am with your BI and breakfast with CP and matching QA
Test every 2 hours to see that you aren't going low this will set your QA ratio
Correct only after the 4 hour period
Don't worry if you have high BG's its if their consistent that's important.
Once you have a consistent BG you then adapt it to your target by increasing or reducing the ratio of the QA
To set the BI for the evening check your bedtime BG to your morning BG
Remeber if your taking the morning BI at 6am take the evening at 6pm
I found putting 1 week of my life to getting things correct the rest is a bike ride
Of course its your decision
All my opinions are from my experience and are what I've done to correct any movement away from the targets I've set myself.
Hope you find the issue
 
May 17, 2013
skyesmum 3 posts

Topic: General Discussion / Hi New Here

I don't have an online diary as such. Will try and update one using my readings from home.
Am a bit rubbish at writing it all down tbh but 10-12 is a happy wake up reading for me at the moment bearing in mind have gradually come down from high 20's.
Just dies seem to matter what i do this week slightest morsal of food is making me fly high.
Have got follow up meeting for dafne on 30th but not sure i can cope feeling like this until then :-(
 
May 17, 2013
Vickyp 135 posts

Topic: General Discussion / Hi New Here

Welcome.
As Garry says viewing your diary would help. Highs on waking could be a sign of nighttime hypos but without knowing bedtime values etc its difficult to tell. May be worth doing a 3am test to check what's going on.
I am also on a 0.5:1 ratio (even lower at breakfast) with a half unit pen!
Vicky
 
May 17, 2013
Garry 328 posts

Topic: General Discussion / Hi New Here

Welcome Smile
It seems from your ratios that you are insulin sensitive. So steady as you go.
Would you be confident enough to share your online Blood Glucose Diary with us?
Between us all we should be able to offer some good support for your situation - but need information to help.
Regards
Garry
 
May 17, 2013
Garry 328 posts

Topic: Site Development / Javascript must be enabled

I am unable to view my BG dairy graphs. This title is supposed to offer explanation. I have installed the latest update 7.21 or whatever it is......and have used the Java site to eliminate any earlier versions...switched off and rebooted...
Reminds me of one of the Engineers at work - who has now retired - every time he had trouble he would phone the computer department and spend goodness knows how much time on the blower - eventually to be told...try switching the computer off and on again.
He waited some three years...but yes his time had come...the heating in the Admin block had failed and the computer department phoned up to complain that they were freezing....and he was responsible for utility services...to be able say to them....have you tried switching it off and on again...it was one of his favourite stories as he had waited so long to get his own back!
So can anyone help? Simon?
Regards
Garry
 
May 17, 2013
skyesmum 3 posts

Topic: General Discussion / Hi New Here

Hi,
Am a DAFNE Graduate from beginning of April, found it very useful but seem to of lost my way a little.
Was diagnosed last June and has been a bit of a mindfield really. After DAFNE have been doing quite well, although this week I am really struggling.
Am on 0.5u QA - 1CP so was given a half unit pen - same insulin which is great, however this week despite checking the pen works and needle etc is dispensing insulin when I inject is making no difference to my BG.

Today for instance woke at 12.9 have had a very small sandwich for lunch (small breadbun) had 3 units of QA and still gone up to 15.9 so have had an additional 2 units.

Feel absolutely dreadful and have been checking for ketones - monitor says none at moment though was at 0.3 two days ago but managed to get rid of those over 4 hours of small doses of insulin.

I have always been high and felt fine and now I just feel rotton but cannot seem to bring my levels down - if I dont eat I stay stable (though still high) so feel sure my BI is ok I am on twice daily 5 units of levimir.

Any suggestions? I work on my own in my own business so a bit frightened to go mad on cranking up the QA too much!

TIA
 
May 16, 2013
SA2010 69 posts

Topic: General Discussion / Exercise

Thanks everyone for the advice and feedback. Most appreciated. I took a 4 day break from cycling and now back again for 2nd day today. I agree that it appears to need more frequent BG testing for the hours that follow the cycling activity, Yesterday the 15th was good but today not so, Extra CPs before exercise when BG was not high were not sufficient and obviously it needs BG tests after the exercise and CP top ups before hypo develops.

I am sharing diary for last 3 days here.
 
May 16, 2013
SA2010 69 posts

Topic: Site Development / Date/Timestamp of posts

marke said:
Ok, the first point. re-dating posts would potentially cause problems, if people comment on a post and the posts are re-ordered based on dates then the comments would be out of context. Ideally you shouldn't be editing posts very often, its more of an exception than a rule. If you want to update a post just post again referencing the original post.



Thanks Marke for the feedback. Obviously I have not thought of the technicalities in implementing such a change. I definitely would not want or expect the updated post to reposition itself in the list of posts and replies. Probably to implement would need a creation date and last updated date fields and the last updated date/time field used in the lists that show the most recent updates and how long ago that was. The post itself could show both dates creation and last update. I say all this without really knowing how the forum technology is developed and whether it is standard off-the-shelf technology with no scope for changes or bespoke application where one can add extra data fields.
 
May 16, 2013
marke 655 posts

Topic: DAFNE Online Mobile / Thinking of upgrading iphone 3GS to a Galaxy. Anyone got any views on this?

Hi the app will work on both, in terms of the app you are unlikely to see much difference between the 3GS and a galaxy. The galaxy will be faster generally because it is newer but so will an iPhone 5. as the O2 Ad says there is always a better, faster phone around the corner. Its personal preference at the end of the day and I don't want to get into that debate Confused
 
May 16, 2013
marke 655 posts

Topic: DAFNE Online Mobile / iBGStar

no they don't, however in future who knows. There have been suggestions but we haven't yet got to the 'discussion' stage. We will let you know if things move forward in this area.
 
May 16, 2013
marke 655 posts

Topic: Site Development / Date/Timestamp of posts

Ok, the first point. re-dating posts would potentially cause problems, if people comment on a post and the posts are re-ordered based on dates then the comments would be out of context. Ideally you shouldn't be editing posts very often, its more of an exception than a rule. If you want to update a post just post again referencing the original post.

With regards to removing diary entries, I would say don't put them on in the first place, or at least think carefully about what you are putting on the forums for general consumption. Recently people seem to be posting large amounts of Diary entries in posts. Personally I think this overwhelms people and reduces the number of comments. We can look at allowing the removal of Diary entries from posts however as with the comments above if you do that then peoples subsequent posts on the Diary entries won't make sense if they are removed.
 
May 16, 2013
marke 655 posts

Topic: General Discussion / Fundraising Walk for Diabetes

I should also point out on Leighton's behalf that the DAFNE programme are trying to help with this by providing his team with DAFNE tee-shirts etc. I hope we can all get behind this effort. He is also helping to provide the online petition for Diabetes Structured Education at http://epetitions.direct.gov.uk which seems to have stalled a bit at the moment Crying or Very sad
 
May 16, 2013
marke 655 posts

Topic: General Discussion / CareSens meters

Hi, I cannot comment on the CareSense, I have seen one briefly but never used one. I think you suspicions are correct with regards to motives though.
I attended a meeting organised by my local NHS people before Xmas regarding the selection of 'preferred' meters , this was promoted as being to make
giving advice about them more straightforward if local Diabetes Nurses only had to work with a few. However it was also about cost reductions. For your
info the CareSens strips cost £12.75 approx and the OneTouch Ultra strips cost around £15.07 so that is potentially a large saving. However in my area the 'rationalisation' of test strips was for Type 2's only and T1's are to continue using their current meters without change.
Its not at all good that you are being asked to change your meter without a proper meeting and explanation of the reasons and if told if you are actually being given a choice about changing. Change is not necessarily a bad thing but it needs to be done in the right way. I know some areas of the country have just imposed change without consulting the local Diabetics, however that has not gone down very well and most areas seem to have learnt from this mistake.
 
May 16, 2013
mum2westiesGill 502 posts

Topic: General Discussion / My BG (Trending) Diary - All Comments Welcomed

Mon 13/05 - Wed 15/05
Can anybody see if there are any trends I am missing?

Have done today a meter control solution test - all was ok Smile

Also wondering of 2 possibilities:
1. changing BI back to once a day instead of a morning & evening dose - not really happy about this because I feel happy in myself atm doing the split dose
2. upping ratios slightly from 1:1 to 1:1.5
 
May 16, 2013
mum2westiesGill 502 posts

Topic: General Discussion / My BG (Trending) Diary - All Comments Welcomed

Fri 10/05 - Sun 12/05
Can anybody see if there are any trends I am missing?
 
May 16, 2013
mum2westiesGill 502 posts

Topic: General Discussion / My BG (Trending) Diary - All Comments Welcomed

Tue 07/05 - Thu 09/05
Can anybody see if there are any trends I am missing?
 
May 16, 2013
Anele46 108 posts

Topic: Questions ? / Help! Pregnant and type one

Congratulations Aphriel Very Happy
I am a Type 1 and have been for over 3 years and my daughter is nearly 6 mths old Smile
I was looked after very well by the diabetic team at my hospital (Glasgow Southern General) and had numerous scans and fortnightly then towards the end weekly checkups.
I was always told that my Insulin requirements would increase rapidly especially in the last trimester but this never happened for me, if anything my insulin requirements plummeted in the last trimester and it's only now that they're almost the same pre-pregnancy.
It sounds as though Addenbrookes will take good care of you Smile
All the very best and good luck! Smile xx
 
May 16, 2013
Anele46 108 posts

Topic: Carbohydrate Counting / Tesco sandwich labelling

I find it is a complete hit or miss with a lot of pre-packed food. Most of the time ASDA gives you both the amount of CHO per 100g and per pack but not always so I've been caught out before. Sad
 
May 16, 2013
Leighton84 3 posts

Topic: General Discussion / Fundraising Walk for Diabetes

5mile walk!!!!
I am trying to raise £200 for research for Diabetes UK and also promoting DAFNE (Dose Adjustment for Normal Eating) course for people in the backcountry to attend, There GP has to pay for the course so that’s why people don’t know about DAFNE. My aim is to promote DAFNE at events all over the place because I believe it shouldn’t have to be a postcode lottery it should be available to everyone.
ALSO don’t forget to please Donate and let’s get more research into Diabetes so it can change of lives. Thank you http://www.justgiving.com/Leighton-Webb
Or TEXT WEBB84 AND £AMOUNT TOO 70070
 
May 16, 2013
ketostix pla... 25 posts

Topic: General Discussion / Travel Insurance

I always use boots, never had problem and provides good cover. I think the only time you actually find how good a company is when you need to make claim, and if you were to use in worse case scenario it would most likely not be you dealing with them but your travel companion. So it's worth mentioning at time to give your travel insurance permission to speak to them due to data protection as the world gone crazy.
 
May 15, 2013
Alan 49 280 posts

Topic: General Discussion / bosses

Kay
Is there an HR department where you work? If so, you should report this to them. Are you a member of a trade union - they would take this up. It's just not acceptable.
 
May 15, 2013
ketostix pla... 25 posts

Topic: Questions ? / excercise help

Hi, I am a 39 old diabetic, who was diagnosed when 3 years old. I fortunately do not have any complications, just mild changes of someone who has had diabetes for my length of time. I completed DAFNE almost 3 years ago, and overall in better control but suffer from dawn phenomena which I control with corrections, and have had discussions with doctor and am happy to treat this way.
I know this is a grey area but any advice or guidance would be appreciated. I visit the gym between 3-5 a week and suffer with recovery before my next visit and am really going through the motions on following visits, and building a bit of tone does seem impossible. I must point out that I am not looking to become the hulk or a throwback from the wrestler days of the 80's lol, just get a bit of tone and definition.
I know supplements are widely frowned upon, and honestly I would not want to cause complications or issues but a little help without problems. I have found a whey protein which is advised to be taken before and after exercise and in morning, which I would only want to take after exercise to help recovery and not the stated 3 times a day. it contains for every 100g of dose which is taken with milk(which I would count) 25g protein, 1.2g carb & 0.75g sugar. what is your feelings on this as stated I would not want to cause kidney/problems or erratic blood tests.
The other option which was advised by trainer in gym (limited diabetic knowledge) says that enomo acid tablets before and after training would not cause problems. I have searched web with mixed views on this. Any advice would be greatly appreciated as stated without causing any problems short term or long term. Many thanks Dean Confused