Recent Posts - DAFNE Online

May 25, 2013

marke 681 posts

Topic: General Discussion / NHS Medication Changes: Are you affected?

Alan, the freestyle optium strips are about Â£15 for 50. Now I'm not a mathematician but even I can work out that's not Â£2 per strip, I'm surprised you are getting this attitude from you GP I suspect its not CCG policy. I am working with the CCG's in East Kent and its definitely NOT the policy there. There is still a PALS in your area their email is [email protected]. Contact them, tell them what your GP told you and ask if its policy, they should be able to resolve the issue.

May 24, 2013

Garry 328 posts

Topic: General Discussion / NHS Medication Changes: Are you affected?

Alan...Need to explain to her that urine test strips give an indication of what was happening 6 to 8 hours ago....not now. My consultant 35 years ago agreed that at the time...the same physical rules applied as long ago, when he used to issue them then...as then - there were no other home sampling methods available.
Times have changed. It is 2013. Yes they are Â£2 a pot because nobody uses them. They are useless to put your current situation right.
Current sample strip at Â£2 a sample...well that's fine seeing as I have used about 4 boxes of 10 strips in the last 4 years...and one of those boxes of 10 ran out of date!

We all need have the attitude to face out our GP over this kind of tosh.
Say that until you sort out my needs....I'm not moving out of your surgery.
We must be prepared to challenge a GP and say that GPs must give back some of the additional fees that they get from the Department of Health, for you as a diabetic, in the prescription needs that you have personally.
Regards
Garry

May 24, 2013

Vickyp 137 posts

Topic: General Discussion / NHS Medication Changes: Are you affected?

I was given the freestyle optium on my DAFNE course in February, and the only issue I had was for the first 4 weeks GP gave me one box of glucose strips at a time so was at surgery every week...it's now changed and get 4 boxes at a time and was originally given 2boxes of ketone strips...which I haven't needed to use but they are on my repeat! Can't believe your GP refusing them Alan!

May 24, 2013

Nettie 7 posts

Topic: General Discussion / New Graduate in DAFNE

nitaparmar said:
Hi all,

I attended DAFNE last month. It was nice to be around other people who are in the same situation as me.

I was diagnosed three years ago so this is all new to me...

Just wanted to say hey

I have just finished a course. What a revelation!!

May 24, 2013

Alan 49 284 posts

Topic: General Discussion / NHS Medication Changes: Are you affected?

I was given an Optium Xceed meter for blood-testing ketones on my DAFNE course. When I asked my GP to add the test-strips to my prescription request form, she said that the strips were Â£2 each and were too expensive. She would only give me the urine test strips - which she said were Â£2 per pot.

May 24, 2013

Garry 328 posts

Topic: General Discussion / NHS Medication Changes: Are you affected?

Very sensible your DAFNE team as the Freestyle Optium has ability to do Ketones, by prescription available, ketone specific test strips.
Regards
Garry

May 23, 2013

Angela C 1 post

Topic: General Discussion / NHS Medication Changes: Are you affected?

Hi i was stripped of my one touch meter about 2 years ago and given a care sens one , ive since been on the dafne course and now been changed to the freestyle optium , as they said the care sens is only suitable for type 2 diabetics. Not sure my local surgery is going to like this but we shall see.

May 23, 2013

JayBee 587 posts

Topic: General Discussion / Carbs - Rounding Up/Down & BG levels

Yup. I bare my BGs in mind everytime, since 0.5QA can drop me by 3BG. I aim for 6BG since it sits nicely in the middle of the 4-8 ideal range.

May 23, 2013

novorapidboi26 1,819 posts

Topic: General Discussion / Carbs - Rounding Up/Down & BG levels

I always just used the target 5.5 for all my bg readings.....if I was 4.0 or above though I would just dose up as normal.......

my pump us nor programmed with a target of 6.5, so if I am below this, the pump will take units of my mealtime dose..

May 23, 2013

JayBee 587 posts

Topic: General Discussion / NHS Medication Changes: Are you affected?

Thought I'd just update on my new machine. It stopped working properly yesterday and I've been issued a new one with minimum hassle today.

I'm a bit appalled though - none of my old machines have ever packed up within a year of use like this iCare Advanced machine. :/

May 22, 2013

SimonC 78 posts

Topic: Site Development / Javascript must be enabled

marke said:
sorry not sure I understand your question/request. You mean you want to be able to print just the graph and not the rest of the page that surrounds it ? Could you do this before ? I'm afraid that Simon usually takes care of this part of the site and I have never tried to print the graphs before....

Yes thats what I want to do - I used to be able to select a graph - with the dates I want, usually 1 graph was since i started Dafne, then the rest would be on monthly basis - 1 graph per month, and i could easily select the graph and print it out with the dates - it is far easier to show trends by using the graphs. I have loads of paper that I used to take to the GP with all the diary print outs, with graphs, now I can't print out the graphs - and it is a tad annoying

May 22, 2013

Vickyp 137 posts

Topic: General Discussion / Carbs - Rounding Up/Down & BG levels

Definately! If previous QA is out system and target higher end would round up. but if at lower end would round down...am insulin sensitive so a little too much can send me hypo! Also need to consider corrections if BGs high

May 22, 2013

Simon Heller 46 posts

Topic: Questions for HCPs / Help! Pregnant and type one

Hi Aphriel. You are getting great advice from everyone although they are all correct in the need to try and get you blood glucose as tight as possible as quickly as possible. However getting pregnant with an HbA1c of around 7.4% is really pretty good and should reassure you. The problem is that pregnancy makes insulin less effective (insulin resistance) due to the hormones being produced but as Anele46 points out the amount of insulin resistance and hence the adjustment in ratios and background insulin varies hugely. Also people are often much more susceptible to hypos in the first third or so of pregnancy for reasons which are aren't altogether clear. I am also not clear why they want you to reduce your background and I would contact them early if this doesn't work. The team in Cambridge have lots of experience of pumps in pregnancy and this may well be your best bet if your morning glucose doesn't come under control as the pump allows you to reduce your background rate in the early part of the night (when risks of hypos are greater) and then automatically increase the rate in the early hours to prevent your glucose from being too high when you wake up. Simon

May 22, 2013

mum2westiesGill 502 posts

Topic: General Discussion / Carbs - Rounding Up/Down & BG levels

As well as "rounding up" or "rounding down" carbs do you also consider your BG levels ie low end of target (but not hypo!) & higher end of target?

Thanks in advance for any replies Smile

May 22, 2013

grumpydunn 11 posts

Topic: Site Development / Javascript must be enabled

Thanks mark, its works for me also

regards
Grumps

May 22, 2013

Garry 328 posts

Topic: Site Development / Javascript must be enabled

Thank you marke. Back to normal for me too.

Have not tried to print the graphs before but have just tried Ctrl/PrintScreen with a paste it into Word..and that works fine so may be a fix for now if you need this facility.

Regards
Garry

May 22, 2013

TeeDog 2 posts

Topic: Site Development / Javascript must be enabled

Yay... All working for me also. On Android tablet. Thanks all involved. Very Happy

May 22, 2013

Warwick 423 posts

Topic: Site Development / Javascript must be enabled

All good for me now.

Thanks,
Warwick.

May 21, 2013

JayBee 587 posts

Topic: General Discussion / BG Diary / Carbs as CP's Entry

3.5 CP for 35g
4.8 CP for 48g

1 CP is 10g generally.
Hope this answers your query.

May 21, 2013

marke 681 posts

Topic: Site Development / Javascript must be enabled

sorry not sure I understand your question/request. You mean you want to be able to print just the graph and not the rest of the page that surrounds it ? Could you do this before ? I'm afraid that Simon usually takes care of this part of the site and I have never tried to print the graphs before....

May 21, 2013

mum2westiesGill 502 posts

Topic: General Discussion / BG Diary / Carbs as CP's Entry

If something was 35g cho how would I write this as cp's into the BG diary on here?

If something was 48g cho how would I write this as cp's into the BG diary on here?

May 21, 2013

SimonC 78 posts

Topic: Site Development / Javascript must be enabled

marke said:
All, I think I have fixed it !! Let me know if the graphs are STILL not working for you. The graphs do NOT use flash, unless Simon tells me otherwise, they are ALL Java based. This is because Simon is an Apple-Fanboy and would never dirty his hands with something like flash

Marke

For me I can see the graph on my lap top, but can't print out the graph, which I like to do for a) the whole time I have been using the diary, and b) month by month as it is far easier to see trends using the graphs - and when I am showing or explaining the my GP - a visual representation of all the data is far easier for them to take in.

I know you are busy and have done a fantastic job keeping the site going, but I would love this feature to make a come back at some point Very Happy

May 21, 2013

grumpydunn 11 posts

Topic: General Discussion / Hello I am new on here

JWo said:
Welcome Grumps.

Thank you for your welcome.

May 21, 2013

grumpydunn 11 posts

Topic: General Discussion / Hello I am new on here

novorapidboi26 said:
Welcome from me Alan.......

I think you may be the first type 2 DAFNE graduate on the forum.....

So is your Facebook page open to all diabetics?

Wow I've never come first at anything.
Yes open to all diabetics and their carers "Special Diabetic Friends" just click on request membership.

May 25, 2013 marke 681 posts	Topic: General Discussion / NHS Medication Changes: Are you affected? Alan, the freestyle optium strips are about Â£15 for 50. Now I'm not a mathematician but even I can work out that's not Â£2 per strip, I'm surprised you are getting this attitude from you GP I suspect its not CCG policy. I am working with the CCG's in East Kent and its definitely NOT the policy there. There is still a PALS in your area their email is [email protected]. Contact them, tell them what your GP told you and ask if its policy, they should be able to resolve the issue.

May 24, 2013 Garry 328 posts	Topic: General Discussion / NHS Medication Changes: Are you affected? Alan...Need to explain to her that urine test strips give an indication of what was happening 6 to 8 hours ago....not now. My consultant 35 years ago agreed that at the time...the same physical rules applied as long ago, when he used to issue them then...as then - there were no other home sampling methods available. Times have changed. It is 2013. Yes they are Â£2 a pot because nobody uses them. They are useless to put your current situation right. Current sample strip at Â£2 a sample...well that's fine seeing as I have used about 4 boxes of 10 strips in the last 4 years...and one of those boxes of 10 ran out of date! We all need have the attitude to face out our GP over this kind of tosh. Say that until you sort out my needs....I'm not moving out of your surgery. We must be prepared to challenge a GP and say that GPs must give back some of the additional fees that they get from the Department of Health, for you as a diabetic, in the prescription needs that you have personally. Regards Garry

May 24, 2013 Vickyp 137 posts	Topic: General Discussion / NHS Medication Changes: Are you affected? I was given the freestyle optium on my DAFNE course in February, and the only issue I had was for the first 4 weeks GP gave me one box of glucose strips at a time so was at surgery every week...it's now changed and get 4 boxes at a time and was originally given 2boxes of ketone strips...which I haven't needed to use but they are on my repeat! Can't believe your GP refusing them Alan!

May 24, 2013 Nettie 7 posts	Topic: General Discussion / New Graduate in DAFNE nitaparmar said: Hi all, I attended DAFNE last month. It was nice to be around other people who are in the same situation as me. I was diagnosed three years ago so this is all new to me... Just wanted to say hey I have just finished a course. What a revelation!!

May 24, 2013 Alan 49 284 posts	Topic: General Discussion / NHS Medication Changes: Are you affected? I was given an Optium Xceed meter for blood-testing ketones on my DAFNE course. When I asked my GP to add the test-strips to my prescription request form, she said that the strips were Â£2 each and were too expensive. She would only give me the urine test strips - which she said were Â£2 per pot.

May 24, 2013 Garry 328 posts	Topic: General Discussion / NHS Medication Changes: Are you affected? Very sensible your DAFNE team as the Freestyle Optium has ability to do Ketones, by prescription available, ketone specific test strips. Regards Garry

May 23, 2013 Angela C 1 post	Topic: General Discussion / NHS Medication Changes: Are you affected? Hi i was stripped of my one touch meter about 2 years ago and given a care sens one , ive since been on the dafne course and now been changed to the freestyle optium , as they said the care sens is only suitable for type 2 diabetics. Not sure my local surgery is going to like this but we shall see.

May 23, 2013 JayBee 587 posts	Topic: General Discussion / Carbs - Rounding Up/Down & BG levels Yup. I bare my BGs in mind everytime, since 0.5QA can drop me by 3BG. I aim for 6BG since it sits nicely in the middle of the 4-8 ideal range.

May 23, 2013 novorapidboi26 1,819 posts	Topic: General Discussion / Carbs - Rounding Up/Down & BG levels I always just used the target 5.5 for all my bg readings.....if I was 4.0 or above though I would just dose up as normal....... my pump us nor programmed with a target of 6.5, so if I am below this, the pump will take units of my mealtime dose..

May 23, 2013 JayBee 587 posts	Topic: General Discussion / NHS Medication Changes: Are you affected? Thought I'd just update on my new machine. It stopped working properly yesterday and I've been issued a new one with minimum hassle today. I'm a bit appalled though - none of my old machines have ever packed up within a year of use like this iCare Advanced machine. :/

May 22, 2013 SimonC 78 posts	Topic: Site Development / Javascript must be enabled marke said: sorry not sure I understand your question/request. You mean you want to be able to print just the graph and not the rest of the page that surrounds it ? Could you do this before ? I'm afraid that Simon usually takes care of this part of the site and I have never tried to print the graphs before.... Yes thats what I want to do - I used to be able to select a graph - with the dates I want, usually 1 graph was since i started Dafne, then the rest would be on monthly basis - 1 graph per month, and i could easily select the graph and print it out with the dates - it is far easier to show trends by using the graphs. I have loads of paper that I used to take to the GP with all the diary print outs, with graphs, now I can't print out the graphs - and it is a tad annoying

May 22, 2013 Vickyp 137 posts	Topic: General Discussion / Carbs - Rounding Up/Down & BG levels Definately! If previous QA is out system and target higher end would round up. but if at lower end would round down...am insulin sensitive so a little too much can send me hypo! Also need to consider corrections if BGs high

May 22, 2013 Simon Heller 46 posts	Topic: Questions for HCPs / Help! Pregnant and type one Hi Aphriel. You are getting great advice from everyone although they are all correct in the need to try and get you blood glucose as tight as possible as quickly as possible. However getting pregnant with an HbA1c of around 7.4% is really pretty good and should reassure you. The problem is that pregnancy makes insulin less effective (insulin resistance) due to the hormones being produced but as Anele46 points out the amount of insulin resistance and hence the adjustment in ratios and background insulin varies hugely. Also people are often much more susceptible to hypos in the first third or so of pregnancy for reasons which are aren't altogether clear. I am also not clear why they want you to reduce your background and I would contact them early if this doesn't work. The team in Cambridge have lots of experience of pumps in pregnancy and this may well be your best bet if your morning glucose doesn't come under control as the pump allows you to reduce your background rate in the early part of the night (when risks of hypos are greater) and then automatically increase the rate in the early hours to prevent your glucose from being too high when you wake up. Simon

May 22, 2013 mum2westiesGill 502 posts	Topic: General Discussion / Carbs - Rounding Up/Down & BG levels As well as "rounding up" or "rounding down" carbs do you also consider your BG levels ie low end of target (but not hypo!) & higher end of target? Thanks in advance for any replies

May 22, 2013 grumpydunn 11 posts	Topic: Site Development / Javascript must be enabled Thanks mark, its works for me also regards Grumps

May 22, 2013 Garry 328 posts	Topic: Site Development / Javascript must be enabled Thank you marke. Back to normal for me too. Have not tried to print the graphs before but have just tried Ctrl/PrintScreen with a paste it into Word..and that works fine so may be a fix for now if you need this facility. Regards Garry

May 22, 2013 TeeDog 2 posts	Topic: Site Development / Javascript must be enabled Yay... All working for me also. On Android tablet. Thanks all involved.

May 22, 2013 Warwick 423 posts	Topic: Site Development / Javascript must be enabled All good for me now. Thanks, Warwick.

May 21, 2013 JayBee 587 posts	Topic: General Discussion / BG Diary / Carbs as CP's Entry 3.5 CP for 35g 4.8 CP for 48g 1 CP is 10g generally. Hope this answers your query.

May 21, 2013 marke 681 posts	Topic: Site Development / Javascript must be enabled sorry not sure I understand your question/request. You mean you want to be able to print just the graph and not the rest of the page that surrounds it ? Could you do this before ? I'm afraid that Simon usually takes care of this part of the site and I have never tried to print the graphs before....

May 21, 2013 mum2westiesGill 502 posts	Topic: General Discussion / BG Diary / Carbs as CP's Entry If something was 35g cho how would I write this as cp's into the BG diary on here? If something was 48g cho how would I write this as cp's into the BG diary on here?

May 21, 2013 SimonC 78 posts	Topic: Site Development / Javascript must be enabled marke said: All, I think I have fixed it !! Let me know if the graphs are STILL not working for you. The graphs do NOT use flash, unless Simon tells me otherwise, they are ALL Java based. This is because Simon is an Apple-Fanboy and would never dirty his hands with something like flash Marke For me I can see the graph on my lap top, but can't print out the graph, which I like to do for a) the whole time I have been using the diary, and b) month by month as it is far easier to see trends using the graphs - and when I am showing or explaining the my GP - a visual representation of all the data is far easier for them to take in. I know you are busy and have done a fantastic job keeping the site going, but I would love this feature to make a come back at some point

May 21, 2013 grumpydunn 11 posts	Topic: General Discussion / Hello I am new on here JWo said: Welcome Grumps. Thank you for your welcome.

May 21, 2013 grumpydunn 11 posts	Topic: General Discussion / Hello I am new on here novorapidboi26 said: Welcome from me Alan....... I think you may be the first type 2 DAFNE graduate on the forum..... So is your Facebook page open to all diabetics? Wow I've never come first at anything. Yes open to all diabetics and their carers "Special Diabetic Friends" just click on request membership.