Recent Posts - DAFNE Online

May 8, 2013

Garry 328 posts

Topic: General Discussion / New Graduate in DAFNE

Welcome KarenMacInty Smile

Don't worry. We will all try to support by sharing our personal DAFNE experience gained with you.
Just use the box below this Post Reply field to enter your DAFNE online diary date range that you wish to share.
Regards
Garry

May 8, 2013

JamesW 24 posts

Topic: General Discussion / CareSens meters

Apologies for re-animating this thread but as the initial post received zero responses at the time and the question is still valid (for me, anyway) I thought I would throw caution to the wind and bump it up the list. It is the only returned entry when searching for CareSens too.

My GP has tentatively asked me if I would be happy with switching to a CareSens meter (model not stated at this point, the question was scrawled on the bottom of my repeat prescription). I believe it is all to do with the cost of the strips however if the functionality is on a par with my current meter (OneTouch Ultra2) then I can't really see an issue. Has anyone else moved to, or has had experience of, a CareSens BG meter?

May 8, 2013

lmanyimo 4 posts

Topic: Questions for HCPs / Cornmeal

Is there anyone who eat food prepared by cornmeal I am finding it very hard to count cp's in this type of food Please help

May 8, 2013

lmanyimo 4 posts

Topic: General Discussion / Freestyle glucose strips

My name is Lois Manyimo I live at 43 Neptune walk in Erith post code DA8 1NT I am so desperate for the Freestyle glucose sticks I just finished dafne course and I wasn't testing my levels as I am doing now and I am having problems getting them from my GP I would be so grateful if you can offload those sticks to me I thank so much. Lois

May 8, 2013

lmanyimo 4 posts

Topic: General Discussion / Freestyle glucose strips

My name is Lois Manyimo I live at 43 Neptune walk in Erith post code DA8 1NT I am so desperate for the Freestyle glucose sticks I just finished dafne course and I wasn't testing my levels as I am doing now and I am having problems getting them from my GP I would be so grateful if you can offload those sticks to me I thank so much. Lois

May 8, 2013

Anthony Murray 9 posts

Topic: Questions for HCPs / "Bed time" testing time & BG hit and miss

Cheers Warwick,

For the moment my levels seem to have settled down a bit and I don't want to do anything to mess that up. If things change then I'll start splitting, I was the exact same when I first split my lantus with highs and lows, I originally split it 50:50 and gradually adjusted it to something like 30:70.

May 8, 2013

SA2010 69 posts

Topic: General Discussion / Exercise

Thank you Edward and Thank you Warwick

In answer to your points: My cycling and exercise is never planned and so cannot really address by QA bolus changes, I know that whilst the weather is good I would try to cycle to local shops or local park. My cycling is not intense. Leisurely and other cyclists do pass me !

But I seem to be very sensitive to little activity and also very touchy with minute adjustments to lantus dose.

I have not cycled for a while because I had a number of operations over the last three years - the last of which in June to fix an incisional hernia caused by the other ops. I got the bike out a week or so ago as the weather turned round.

I am adding a few more days to the BG diary with this post to show my failed attempts to deal with it. Because the impact was delayed I decided reducing Lantus was the answer but then had very high BG level I have not had before as you can see for the entry on the 6th May. It followed a hypo but surely a rebound would not go that high - 17.1. I repeated the test and got 14.9. It shows the accuracy of the meters ! Today I went back to the previous level of Lantus as 1u reduction seemed to make such a difference - I suppose with my low BI dose (3+6 reduced to 2+6, a 1u is significant percentage).

Today no cycling and no other activity and BG level back to normal levels. I do not know how to tackle this. Very sensitive to insulin - maybe without a pancreas my diabetes behaves different from others - or is just very touchy and sensitive to insulin levels? Exercise impact could be because I am not fit. I used to go the gym before the operations in 2010.

May 7, 2013

Warwick 428 posts

Topic: Questions for HCPs / "Bed time" testing time & BG hit and miss

Hello Anthony,

Talk to your diabetes/DAFNE educator about how to split you BI - it needs to be done very gradually. If they don't know, then aks this forum as there are people here who have done it and can tell you how to do it. I did it without asking how and experienced more highs and hypos than normal so am not the best person to ask :-)

Warwick.

May 7, 2013

Warwick 428 posts

Topic: General Discussion / Exercise

Hey SA2010,

Yeah, delayed hypos can be funny. Are you just getting back into cycling or have you been doing it regularly for a while and only just seeing delayed hypos?

May 7, 2013

Sam 64 posts

Topic: General Discussion / Freestyle glucose strips

Hi folks. I've got 3 boxes of freestyle blood glucose strips that come in a tub of 50. My GP prescribed the wrong ones and they don't work in my optimum meter. If anyone wants these please send me a pm and your address and I'll forward them on. They will go in bin otherwise.

Sam

May 7, 2013

novorapidboi26 1,819 posts

Topic: General Discussion / Basal changes on pump

I will try to do a full basal test once a month.........sometimes I dont though.......

I think with the delivery of the basal being so accurate it means we are a lot more sensitive when there is a change in the livers output.......

Sometime this can be dealt with with bolus doses..........

What changes have you observed when doing your basal testing.....?

Is there much requirement for more or less........how much do you need to adjust it by?

In general though, your basal needs will change from time to time, everyone just hopes that the big changes come less often......

May 7, 2013

novorapidboi26 1,819 posts

Topic: General Discussion / New Graduate in DAFNE

Welcome Karen..........

Please feel free to post your readings and ask for advice......

We will all try our best to advise you...... Wink

May 7, 2013

Simon 578 posts

Topic: Site Development / DAFNE Online iPhone application - help with content/design needed

Hi Catherine,

When you say login page do you mean the Settings page? If you enter your details correctly on here, then turn Diary Upload to 'On', when you save a diary entry it will upload it to the diary on this site. From the Diary tab on the app you can also download entries from the site to your app diary.

Thanks,

Simon

May 7, 2013

bazz1027 2 posts

Topic: DAFNE Online Mobile / iBGStar

Hi Guys
I see the iBGStar meter is back on the market (was it ever off?)

OK the question is "Does anyone know if the results from this meter can be directly picked up by the DAFNE App on the iPhone?????

Cheers

Stephen

May 6, 2013

KarenMacInty... 1 post

Topic: General Discussion / New Graduate in DAFNE

I'm a three day old DAFNE Graduate - and though I may as well start as you mean to go on by posting something on here. My ratios are all to cock already...I'll input them tomorrow and post In the hope of finding help!?

May 6, 2013

Anthony Murray 9 posts

Topic: Questions for HCPs / "Bed time" testing time & BG hit and miss

Cheers Warwick, sorry for the late reply. I think I will split my lantus, I'm still hit and miss at the moment. BUT I'm only really hit and miss on foods where I can't get a very accurate carb count. On Saturday night for instance I was 13.6, I had a beef chow mein with noodles and a few chips for dinner. I got the carb details from the "diabetics bible" the Carbs and Cals book, I think I even did a +1 as the chow mein and chips weren't full numbers. But of course not every restaurant makes food the exact same way.

And some other time last week, can't remember which day. I had McCain Chips (can't remember how many either) the bloody nutritional info on the back of the bag made things damn complicated: 100g frozen had 21g carbs, 100g oven baked had 28.5g carbs, 100g grilled had 26.6g carbs, I deep fried them, I either counted the chips as 25g per 100 or I just divided the weight by 38. Of course I was high that night.

I did a carb free dinner yesterday and again nothing appears to be wrong with my lantus: 17:03 - 8.6BG 21:54 - 5.4BG, I know I should do it for 2 more days but for reasons I'd rather not go into I'm not going to do it.

May 6, 2013

catherinesouth 4 posts

Topic: Site Development / DAFNE Online iPhone application - help with content/design needed

Hi

I don't get an error message. When I enter name and password it just takes me back to the login screen.

I have managed to get into my diary and update it, but it's getting onto the actual Dafne website that I cannot get access to. Can only get access from a PC.

Thanks

May 6, 2013

JayBee 587 posts

Topic: Site Development / Date/Timestamp of posts

Additionally, it would be good to be able to remove diary entries from a post completely too. Once they're there, you can't do much apart from edit the dates down to a day to "take them off".

May 6, 2013

kid127 25 posts

Topic: General Discussion / Basal changes on pump

Hi everybody

I've been on an accu-check combo pump for 2 and a half years but recently i find that i have to adjust my basal rates every other week to stop myself either being high all the time or low all the time

I make very small adjustments, usually up or down 0.01 every hour for 24 hours = 0.24 units and this seems to work for a week then it will change again

Does anyone else have to make adjustments to basal rates as regularly as this? I saw a doctor about this recently who suggested changing sites but this doesnt seem to have made things any better

If these regular adjustments are normal then i can just carry on but it seems to be a constant battle to get my basal dose correct

Thanks

Lee

May 5, 2013

edwards002 2 posts

Topic: General Discussion / Exercise

No lack of data! Well done!
I have not had time to analyse rigorously, so plse excuse me.
As a Type 1 diabetic of 45 years, exercise has always been a tad of a mystery. I was given an excellent suggestion on a very recent visit to my dafne centre: reduce QA bolus insulin dosage by between 30-50% if anticipating exercise.
I used to race a bike when much younger and I was staggered at how much sugar can be burnt during bike riding: 125g glucose supplement in a single shot in 20K (12.5 miles in old money) at around 36Kph (23 mph). So your fitness level, the weight of your bike, your speed and the weather conditions will all impact these kinds of numbers dramatically.
On top of this so will your general mental condition.
What do I mean?
Well, are you stressed by exams or do you find you find your levels of anxiety changing?
I have found that stress associated with activities I do not want to do (like going out or shopping (!) depress my blood sugar equally strongly just as if I were exercising.
So what am I trying to get at?
First, you will have the answers so look closely at your data and add stress factors and extra exercise-related info.
Second, my experience is derived from pump use and not MDI so please treat my observations with caution as I have not altered my basal rates during my most recent experiences.
I have only dealt with reduction of my bolus doses associated with meals.
Third, I have found that a 30% reduction is necessary for "normal" exercise like walking into town and/or mowing the lawn!
This recent change has made a dramatic effect on my perceived levels of anxiety and the numbers of hypos I have with the associated problems of hyperglycemic rebound and then later correction doses. A real see-saw and not helpful to anyone who is trying to gain control of their life.
I suspect that I will need to decrease my bolus insulin dosages by 50% if I take my bike out and seriously exercise. I would then still expect to require 60-90g of fairly fast acting carbohydrate per hour to be able to sustain my exercise level.

I hope this is helpful.

May 4, 2013

Stew B 125 posts

Topic: General Discussion / Freestyle InsuLinx Meter

I've had problems when trying to change to new / different meters, where the new meter reads higher than my trusty One Touch Ultra. I agree that most of the time variation isn't a problem, and being within one or two units is OK. My problem is the confusion when I get early hypo symptoms, do a test and find the meter is giving me a reading of 4.5 - 5.5+. It's difficult when your body says one thing and your meter another! (Also, presumably a potential problem for trying to keep to the new driving "rules"?).

Stew

May 4, 2013

SA2010 69 posts

Topic: Site Development / Date/Timestamp of posts

Hi

At the moment the date and timestamp of a post and how long ago it was posted is based on the original entry of the post.

I am thinking that perhaps it would be more appropriate to switch to the latest date/time the post has been edited rather than the original time.

Please could you think about this. As example in General Discussion I have just updated the diary and the post text for a post I put 15 hours ago. It is still showing with that date/time even though it has information that is more recent.

May 8, 2013 Garry 328 posts	Topic: General Discussion / New Graduate in DAFNE Welcome KarenMacInty Don't worry. We will all try to support by sharing our personal DAFNE experience gained with you. Just use the box below this Post Reply field to enter your DAFNE online diary date range that you wish to share. Regards Garry

May 8, 2013 JamesW 24 posts	Topic: General Discussion / CareSens meters Apologies for re-animating this thread but as the initial post received zero responses at the time and the question is still valid (for me, anyway) I thought I would throw caution to the wind and bump it up the list. It is the only returned entry when searching for CareSens too. My GP has tentatively asked me if I would be happy with switching to a CareSens meter (model not stated at this point, the question was scrawled on the bottom of my repeat prescription). I believe it is all to do with the cost of the strips however if the functionality is on a par with my current meter (OneTouch Ultra2) then I can't really see an issue. Has anyone else moved to, or has had experience of, a CareSens BG meter?

May 8, 2013 lmanyimo 4 posts	Topic: Questions for HCPs / Cornmeal Is there anyone who eat food prepared by cornmeal I am finding it very hard to count cp's in this type of food Please help

May 8, 2013 lmanyimo 4 posts	Topic: General Discussion / Freestyle glucose strips My name is Lois Manyimo I live at 43 Neptune walk in Erith post code DA8 1NT I am so desperate for the Freestyle glucose sticks I just finished dafne course and I wasn't testing my levels as I am doing now and I am having problems getting them from my GP I would be so grateful if you can offload those sticks to me I thank so much. Lois

May 8, 2013 lmanyimo 4 posts	Topic: General Discussion / Freestyle glucose strips My name is Lois Manyimo I live at 43 Neptune walk in Erith post code DA8 1NT I am so desperate for the Freestyle glucose sticks I just finished dafne course and I wasn't testing my levels as I am doing now and I am having problems getting them from my GP I would be so grateful if you can offload those sticks to me I thank so much. Lois

May 8, 2013 Anthony Murray 9 posts	Topic: Questions for HCPs / "Bed time" testing time & BG hit and miss Cheers Warwick, For the moment my levels seem to have settled down a bit and I don't want to do anything to mess that up. If things change then I'll start splitting, I was the exact same when I first split my lantus with highs and lows, I originally split it 50:50 and gradually adjusted it to something like 30:70.

May 8, 2013 SA2010 69 posts	Topic: General Discussion / Exercise Thank you Edward and Thank you Warwick In answer to your points: My cycling and exercise is never planned and so cannot really address by QA bolus changes, I know that whilst the weather is good I would try to cycle to local shops or local park. My cycling is not intense. Leisurely and other cyclists do pass me ! But I seem to be very sensitive to little activity and also very touchy with minute adjustments to lantus dose. I have not cycled for a while because I had a number of operations over the last three years - the last of which in June to fix an incisional hernia caused by the other ops. I got the bike out a week or so ago as the weather turned round. I am adding a few more days to the BG diary with this post to show my failed attempts to deal with it. Because the impact was delayed I decided reducing Lantus was the answer but then had very high BG level I have not had before as you can see for the entry on the 6th May. It followed a hypo but surely a rebound would not go that high - 17.1. I repeated the test and got 14.9. It shows the accuracy of the meters ! Today I went back to the previous level of Lantus as 1u reduction seemed to make such a difference - I suppose with my low BI dose (3+6 reduced to 2+6, a 1u is significant percentage). Today no cycling and no other activity and BG level back to normal levels. I do not know how to tackle this. Very sensitive to insulin - maybe without a pancreas my diabetes behaves different from others - or is just very touchy and sensitive to insulin levels? Exercise impact could be because I am not fit. I used to go the gym before the operations in 2010.

May 7, 2013 Warwick 428 posts	Topic: Questions for HCPs / "Bed time" testing time & BG hit and miss Hello Anthony, Talk to your diabetes/DAFNE educator about how to split you BI - it needs to be done very gradually. If they don't know, then aks this forum as there are people here who have done it and can tell you how to do it. I did it without asking how and experienced more highs and hypos than normal so am not the best person to ask :-) Warwick.

May 7, 2013 Warwick 428 posts	Topic: General Discussion / Exercise Hey SA2010, Yeah, delayed hypos can be funny. Are you just getting back into cycling or have you been doing it regularly for a while and only just seeing delayed hypos?

May 7, 2013 Sam 64 posts	Topic: General Discussion / Freestyle glucose strips Hi folks. I've got 3 boxes of freestyle blood glucose strips that come in a tub of 50. My GP prescribed the wrong ones and they don't work in my optimum meter. If anyone wants these please send me a pm and your address and I'll forward them on. They will go in bin otherwise. Sam

May 7, 2013 novorapidboi26 1,819 posts	Topic: General Discussion / Basal changes on pump I will try to do a full basal test once a month.........sometimes I dont though....... I think with the delivery of the basal being so accurate it means we are a lot more sensitive when there is a change in the livers output....... Sometime this can be dealt with with bolus doses.......... What changes have you observed when doing your basal testing.....? Is there much requirement for more or less........how much do you need to adjust it by? In general though, your basal needs will change from time to time, everyone just hopes that the big changes come less often......

May 7, 2013 novorapidboi26 1,819 posts	Topic: General Discussion / New Graduate in DAFNE Welcome Karen.......... Please feel free to post your readings and ask for advice...... We will all try our best to advise you......

May 7, 2013 Simon 578 posts	Topic: Site Development / DAFNE Online iPhone application - help with content/design needed Hi Catherine, When you say login page do you mean the Settings page? If you enter your details correctly on here, then turn Diary Upload to 'On', when you save a diary entry it will upload it to the diary on this site. From the Diary tab on the app you can also download entries from the site to your app diary. Thanks, Simon

May 7, 2013 bazz1027 2 posts	Topic: DAFNE Online Mobile / iBGStar Hi Guys I see the iBGStar meter is back on the market (was it ever off?) OK the question is "Does anyone know if the results from this meter can be directly picked up by the DAFNE App on the iPhone????? Cheers Stephen

May 6, 2013 KarenMacInty... 1 post	Topic: General Discussion / New Graduate in DAFNE I'm a three day old DAFNE Graduate - and though I may as well start as you mean to go on by posting something on here. My ratios are all to cock already...I'll input them tomorrow and post In the hope of finding help!?

May 6, 2013 Anthony Murray 9 posts	Topic: Questions for HCPs / "Bed time" testing time & BG hit and miss Cheers Warwick, sorry for the late reply. I think I will split my lantus, I'm still hit and miss at the moment. BUT I'm only really hit and miss on foods where I can't get a very accurate carb count. On Saturday night for instance I was 13.6, I had a beef chow mein with noodles and a few chips for dinner. I got the carb details from the "diabetics bible" the Carbs and Cals book, I think I even did a +1 as the chow mein and chips weren't full numbers. But of course not every restaurant makes food the exact same way. And some other time last week, can't remember which day. I had McCain Chips (can't remember how many either) the bloody nutritional info on the back of the bag made things damn complicated: 100g frozen had 21g carbs, 100g oven baked had 28.5g carbs, 100g grilled had 26.6g carbs, I deep fried them, I either counted the chips as 25g per 100 or I just divided the weight by 38. Of course I was high that night. I did a carb free dinner yesterday and again nothing appears to be wrong with my lantus: 17:03 - 8.6BG 21:54 - 5.4BG, I know I should do it for 2 more days but for reasons I'd rather not go into I'm not going to do it.

May 6, 2013 catherinesouth 4 posts	Topic: Site Development / DAFNE Online iPhone application - help with content/design needed Hi I don't get an error message. When I enter name and password it just takes me back to the login screen. I have managed to get into my diary and update it, but it's getting onto the actual Dafne website that I cannot get access to. Can only get access from a PC. Thanks

May 6, 2013 JayBee 587 posts	Topic: Site Development / Date/Timestamp of posts Additionally, it would be good to be able to remove diary entries from a post completely too. Once they're there, you can't do much apart from edit the dates down to a day to "take them off".

May 6, 2013 kid127 25 posts	Topic: General Discussion / Basal changes on pump Hi everybody I've been on an accu-check combo pump for 2 and a half years but recently i find that i have to adjust my basal rates every other week to stop myself either being high all the time or low all the time I make very small adjustments, usually up or down 0.01 every hour for 24 hours = 0.24 units and this seems to work for a week then it will change again Does anyone else have to make adjustments to basal rates as regularly as this? I saw a doctor about this recently who suggested changing sites but this doesnt seem to have made things any better If these regular adjustments are normal then i can just carry on but it seems to be a constant battle to get my basal dose correct Thanks Lee

May 5, 2013 edwards002 2 posts	Topic: General Discussion / Exercise No lack of data! Well done! I have not had time to analyse rigorously, so plse excuse me. As a Type 1 diabetic of 45 years, exercise has always been a tad of a mystery. I was given an excellent suggestion on a very recent visit to my dafne centre: reduce QA bolus insulin dosage by between 30-50% if anticipating exercise. I used to race a bike when much younger and I was staggered at how much sugar can be burnt during bike riding: 125g glucose supplement in a single shot in 20K (12.5 miles in old money) at around 36Kph (23 mph). So your fitness level, the weight of your bike, your speed and the weather conditions will all impact these kinds of numbers dramatically. On top of this so will your general mental condition. What do I mean? Well, are you stressed by exams or do you find you find your levels of anxiety changing? I have found that stress associated with activities I do not want to do (like going out or shopping (!) depress my blood sugar equally strongly just as if I were exercising. So what am I trying to get at? First, you will have the answers so look closely at your data and add stress factors and extra exercise-related info. Second, my experience is derived from pump use and not MDI so please treat my observations with caution as I have not altered my basal rates during my most recent experiences. I have only dealt with reduction of my bolus doses associated with meals. Third, I have found that a 30% reduction is necessary for "normal" exercise like walking into town and/or mowing the lawn! This recent change has made a dramatic effect on my perceived levels of anxiety and the numbers of hypos I have with the associated problems of hyperglycemic rebound and then later correction doses. A real see-saw and not helpful to anyone who is trying to gain control of their life. I suspect that I will need to decrease my bolus insulin dosages by 50% if I take my bike out and seriously exercise. I would then still expect to require 60-90g of fairly fast acting carbohydrate per hour to be able to sustain my exercise level. I hope this is helpful.

May 4, 2013 Stew B 125 posts	Topic: General Discussion / Freestyle InsuLinx Meter I've had problems when trying to change to new / different meters, where the new meter reads higher than my trusty One Touch Ultra. I agree that most of the time variation isn't a problem, and being within one or two units is OK. My problem is the confusion when I get early hypo symptoms, do a test and find the meter is giving me a reading of 4.5 - 5.5+. It's difficult when your body says one thing and your meter another! (Also, presumably a potential problem for trying to keep to the new driving "rules"?). Stew

May 4, 2013 SA2010 69 posts	Topic: Site Development / Date/Timestamp of posts Hi At the moment the date and timestamp of a post and how long ago it was posted is based on the original entry of the post. I am thinking that perhaps it would be more appropriate to switch to the latest date/time the post has been edited rather than the original time. Please could you think about this. As example in General Discussion I have just updated the diary and the post text for a post I put 15 hours ago. It is still showing with that date/time even though it has information that is more recent.