Recent Posts - DAFNE Online

Nov 9, 2013

JayBee 582 posts

Topic: General Discussion / Peer Support for People with Diabetes

Very valid points guys, and even from the HCP perspective, they are usually worried about legal side, etc especially when giving out too specific medical advice for an individual publically. It's on our own heads if we do it ourselves (though that's why we have disclaimers). My own health team will only allow me to email them rather than contact through this site for that reason.

The main tweet chats I've tried joining in on are mainly the #ourD and #gbdoc ones - though I did hear that Diabetes UK plan to join in on these so another one maybe around the corner to accompany the Google Plus hangouts. I think the #ourD one tends to be tuesdays and is run by Our Diabetes UK and the #gbdoc is run by group of the same name.

The #gbdoc tweet chats can be followed here, and the #ourD chats here, if you don't have a twitter account. You will need an account to join in still though.

Very interested in the coming DUK Google Plus hangout on the 12th November; it's all about stress!

The next #ourD chat is about World Diabetes Day and the next #gbdoc one is about "preparing your diabetes for christmas".

If anyone has been having trouble getting to the #ourD site, it's because they've been hit with a few DoSS attacks lately. No idea why cyber attacks are wanted to happen to things like this (and charities have been hit too I've noticed).

Nov 9, 2013

youone 102 posts

Topic: General Discussion / Eco Pod program

Just been refused at the post office, very unfriendly people behind the glass window
seems I can't send back the nice box full of recycled pods their dangerous.
anyone else had this issue with royal mail
I'm waiting a reply from Mylife omnipod what to do next
the post office customer service passed me to a dead line very un helpful Confused

Nov 9, 2013

youone 102 posts

Topic: General Discussion / Is it normal!

hi
When you say you had 7 at dinner then 24 before walking the dog , was this 4 hrs after your QA if yes then more than likely you missed counted carbs or had a high starch meal.
if it was less than 4 hrs it would mean you still have IOB hence when you took more QA you hypo later.
the 4 hour period is important most hypos happen when you correct before this period is finished
I'm on the omnipod2 now surprising how much this is shown my the device.
as for moods and feeling low, yes its the 1 thing the nurse or doctor can't help you with, I'm always surprised that we aren't given support for this, since this in my opinion is the biggest issue for controlling your hba1c, when your feeling fine its easy but when your down its really hard, especially when other non diabetics (type1) just don't understand.
Did you know it was Diabetic awareness month, I believe the 14th is diabetic day.
where extraordinary and unique people as Louise said we have to stick together Very Happy

Nov 9, 2013

stephenbrowne 37 posts

Topic: General Discussion / Milking fingers causes low BG readings

I think this is a very difficult subject. The volume of blood I obtain from a lancet stab can vary with ambient temperature. If it is a frosty day my hands are cold and it seems difficult to make any blood come out without some pressure or milking even with the deepest depth lancet setting. Having said that I have occasionally been embarrassed to find that what starts as a very tiny blood sample ends up as a spray which can travel 50cm across a table or splattering a book I have been reading. As others have mentioned, even though the result goes down into decimal places the accuracy is probably at best to the nearest mmol/l . I have been pleased with the Contour test strips system for use with the insulin pump or with the Optium Xceed or Freestyle lite as they seem to use a minute volume of blood and give a reading within 5 seconds.

Nov 9, 2013

mum2westiesGill 502 posts

Topic: General Discussion / 7-day waking average

9.2 - 22:44pm - bedtime
10.7 - 07:29am - fasting

lantus decreases:
Tue 29.10 from 24u to 22u
Sat 02.10 from 22u to 20u
Tue 6.11 from 20u to 18u

Nov 8, 2013

Louise1988 68 posts

Topic: General Discussion / Peer Support for People with Diabetes

That's true, and it's worked great for me, too. Not everyone wants the world knowing their problems, that's all.

Nov 8, 2013

Louise1988 68 posts

Topic: General Discussion / Is it normal!

It's really amazing, how many people go through the same feelings. I speak for myself here, but so many times when I've felt down, I've felt like I'm alone in the world and that no one could possibly understand how I'm feeling. Apparently that's not true! Us diabetics have to stick together! Very Happy

Nov 8, 2013

HelenP 218 posts

Topic: General Discussion / Is it normal!

Hi Phil, I have had diabetes for 37 years and I hate it. I am sitting here dying for a cup of coffee but have to wait until I have a fasting blood test!

I rail against it all the time but I also have periods where it does just tick over. You are certainly not alone. I do think personality plays a part. I am told my "adjustment"...my god I hate that word...is typically adolescent!

Helen

Nov 8, 2013

JayBee 582 posts

Topic: General Discussion / Is it normal!

Totally normal. Smile

diabetics are twice as likely to suffer from conditions such as depression so when it gets too much, talking about it can help. I think a lot of diabetics do also have some trouble asking for help (myself included) but DAFNE has encouraged me to speak up as well as feel more in control than I ever did before DAFNE.

I'm glad you have spoken up. You are not alone with your frustrations. We have to do the hard job of replacing a bodily function that is automatic for everyone else. It gets me and my hubby down too.

Glad you have some grasp on what happens when you get unusual results. Well done for keeping at it despite frustrations.

Nov 8, 2013

Stew B 123 posts

Topic: Carbohydrate Counting / Carbs n cals app

While we're on the subject.. I've had the excellent carbs and cals app on my iPhone for a while. Recently I downloaded an update, and now almost every time I open the app it says that new foods have been added, and it starts an automatic update. This can last some time (especially if it's a 3G or worse, rather than wifi) which means I can't access the app until the update has finished - no good if you're in a restaurant and want to know NOW! Very frustrating - is anyone else having the same problem, and is there any way of holding-off updates until a later, more convenient time?

Nov 8, 2013

alturn 78 posts

Topic: General Discussion / Is it normal!

Phil - you are not alone, I feel like that a lot of the time, even when readings are relatively good, and I've got all my readings from 2005 in a spreadsheet (is that a sign of OCD tendancies?) and still can't always make sense or decide what to adjust.

As for the 24.9, is it possible it was a bad reading? Not always easy to think logically when high, but might have been worth waiting a few minutes and re-testing.

I never correct by more than 4 units or even fewer (but never been near 24) - prefer to try and bring levels down over several injections to avoid over-corrections.

Hope this helps,
alturn

Nov 8, 2013

Alan 49 280 posts

Topic: General Discussion / Milking fingers causes low BG readings

I'm glad to hear that other people 'milk' their fingers as well - thanks for that.

Nov 8, 2013

Alan 49 280 posts

Topic: General Discussion / Peer Support for People with Diabetes

I thought' DAFNE online' was for 'peer support' - you have a problem or a question about your diabetes, you post it in the appropriate Forum and you get lots of useful replies. That's always worked for me.

Nov 8, 2013

novorapidboi26 1,816 posts

Topic: General Discussion / 7-day waking average

Rafa said:
I was 3.1 yesterday morning at 10am so took 1 cp and was then 11.2 at 2pm. I didn't correct at this stage with my lunch and was 8.5 when going out for a run at 615pm and then 20 minutes later i was 6.2. Happy enough with that so had my dinner 6 cps but stupidly gave my qa of 6. Anyway two hours later i was 5.9 and was starving so had some toast of 6cp and don't ask me why but i took the qa with it of 6. As a result i was 2.6 going to bed so took 1 cp and fell asleep. Woke up at 7am and was 2.8. I had four cps and took qa of 2. I just checked now and i am 11.2. Without being stupid i am right in saying i should have taken 6-2 qa for my dinner last night and this wouldn't be happening now?

That's one way to tackle it yeah..........you can also reduce your BI for activities that are quite intense and long in duration, like a run, as you will see the effect of the activity right into the next day as your muscles replenish their stores of energy from the blood stream....

Nov 8, 2013

novorapidboi26 1,816 posts

Topic: General Discussion / 7-day waking average

Louise1988 said:
Before bed last night: 10.7 (didn't correct as qa from dinner was still working)
This morning: 8.2. Had 3cps for breakfast so had 3u and 0.5 correction dose.
4hours later, my bg is 4.9

Does this mean that 0.5u drops my bg by 3?!

Providing your completely certain BI and QA ratios are correct then you could conclude that yes.......would be good to see a different breakfast the next day and see how it goes then too......

Nov 8, 2013

Phil Maskell 194 posts

Topic: General Discussion / 7-day waking average

Louise,

Unless 1:1 ratio at breakfast is wrong or it was less than 3cps or BG too high!

Too many variables and possibilities for any of us to ever get this 100%!

Phil

Nov 8, 2013

Rafa 99 posts

Topic: General Discussion / 7-day waking average

I was 3.1 yesterday morning at 10am so took 1 cp and was then 11.2 at 2pm. I didn't correct at this stage with my lunch and was 8.5 when going out for a run at 615pm and then 20 minutes later i was 6.2. Happy enough with that so had my dinner 6 cps but stupidly gave my qa of 6. Anyway two hours later i was 5.9 and was starving so had some toast of 6cp and don't ask me why but i took the qa with it of 6. As a result i was 2.6 going to bed so took 1 cp and fell asleep. Woke up at 7am and was 2.8. I had four cps and took qa of 2. I just checked now and i am 11.2. Without being stupid i am right in saying i should have taken 6-2 qa for my dinner last night and this wouldn't be happening now?

Nov 8, 2013

Louise1988 68 posts

Topic: General Discussion / 7-day waking average

Before bed last night: 10.7 (didn't correct as qa from dinner was still working)
This morning: 8.2. Had 3cps for breakfast so had 3u and 0.5 correction dose.
4hours later, my bg is 4.9

Does this mean that 0.5u drops my bg by 3?!

Nov 8, 2013

Phil Maskell 194 posts

Topic: General Discussion / Is it normal!

Louise,

I think ratios are fine, hindsight and all I think I missed judged carbs in dinner, then over corrected, nothing new there really. Just fed up with having to deal with this rubbish and ranting.

Thanks,

Phil

Nov 8, 2013

Louise1988 68 posts

Topic: General Discussion / Is it normal!

Hi Phil, It's perfectly normal to go through bouts of being annoyed and fed up with the fact that you have diabetes. I bet you'll find it difficult finding someone who doesn't ever feel annoyed with the diabetes. Do you have much contact with your diabetes team? It could be a case of different ratios or something.

I'm a peer support volunteer for Diabetes UK so feel free to email me [email protected] if you want to chat about what you're having trouble with. Hope today is a better day for you!

Nov 8, 2013

Louise1988 68 posts

Topic: General Discussion / Peer Support for People with Diabetes

Let me know when that Tweetchat is hosted, definitely one I'm interested in!

I noticed you retweeted, thanks!

The whole thing about the peer support scheme that I'm doing, is that no one should feel like they are isolated. I'm amazed every time I post a blog about whatever aspect is 'ruining my life', and I have people telling me they're feeling exactly the same!

Have a good day, everyone. Feel free to email [email protected] if you need to chat.

Nov 8, 2013

JayBee 582 posts

Topic: General Discussion / Peer Support for People with Diabetes

I didn't make the hangout but made the #ourD chat near its finish. Will be interesting to read their post chat blog.

I've put forward a discussion idea though I'm very hesitant to be the host because of my account suspension. They said they're happy to host it on my behalf. It'll be about Diabetes and Loved Ones.

Cool about the site. I saw the tweet about it and retweeted it straightaway. Smile

Will post ideas if I have any. Tips on positive self talk would be a good one. Had to do that a lot recently with my dose adjustments causing highs but sometimes you need to walk through the red to get to the green. It can be very challenging when you feel isolated at the same time (which I often do I will admit).

Hope everyone is coping okay.

Nov 8, 2013

Phil Maskell 194 posts

Topic: General Discussion / Is it normal!

Hi,

I have been diabetic since '87, so a while, did DAFNE in 2005, so been at this for some time now.

Is it normal to get waves of being annoyed/ fed up/ depressed with it all?

Last night I had a perfect BG 6.5 before driving home. 7 before dinner, 24.9 before walking the dog in the evening! What and why! I am a bit OCD when I'm in the mood about controlling things (other times I let it slide, don't write any BG down,HbA1c suffers!) and then I get crap like that, I corrected and went massively hypo, needed 140 carbs to keep a reasonable BG before bed!

Just ranting as feel naff after massive hypo last night!

Phil

Nov 8, 2013

Louise1988 68 posts

Topic: General Discussion / 7-day waking average

Aw, did you have a good night, though? Eating out is always tricky.Hopefully you'll be able to notice something tomorrow morning.

Nov 9, 2013 JayBee 582 posts	Topic: General Discussion / Peer Support for People with Diabetes Very valid points guys, and even from the HCP perspective, they are usually worried about legal side, etc especially when giving out too specific medical advice for an individual publically. It's on our own heads if we do it ourselves (though that's why we have disclaimers). My own health team will only allow me to email them rather than contact through this site for that reason. The main tweet chats I've tried joining in on are mainly the #ourD and #gbdoc ones - though I did hear that Diabetes UK plan to join in on these so another one maybe around the corner to accompany the Google Plus hangouts. I think the #ourD one tends to be tuesdays and is run by Our Diabetes UK and the #gbdoc is run by group of the same name. The #gbdoc tweet chats can be followed here, and the #ourD chats here, if you don't have a twitter account. You will need an account to join in still though. Very interested in the coming DUK Google Plus hangout on the 12th November; it's all about stress! The next #ourD chat is about World Diabetes Day and the next #gbdoc one is about "preparing your diabetes for christmas". If anyone has been having trouble getting to the #ourD site, it's because they've been hit with a few DoSS attacks lately. No idea why cyber attacks are wanted to happen to things like this (and charities have been hit too I've noticed).

Nov 9, 2013 youone 102 posts	Topic: General Discussion / Eco Pod program Just been refused at the post office, very unfriendly people behind the glass window seems I can't send back the nice box full of recycled pods their dangerous. anyone else had this issue with royal mail I'm waiting a reply from Mylife omnipod what to do next the post office customer service passed me to a dead line very un helpful

Nov 9, 2013 youone 102 posts	Topic: General Discussion / Is it normal! hi When you say you had 7 at dinner then 24 before walking the dog , was this 4 hrs after your QA if yes then more than likely you missed counted carbs or had a high starch meal. if it was less than 4 hrs it would mean you still have IOB hence when you took more QA you hypo later. the 4 hour period is important most hypos happen when you correct before this period is finished I'm on the omnipod2 now surprising how much this is shown my the device. as for moods and feeling low, yes its the 1 thing the nurse or doctor can't help you with, I'm always surprised that we aren't given support for this, since this in my opinion is the biggest issue for controlling your hba1c, when your feeling fine its easy but when your down its really hard, especially when other non diabetics (type1) just don't understand. Did you know it was Diabetic awareness month, I believe the 14th is diabetic day. where extraordinary and unique people as Louise said we have to stick together

Nov 9, 2013 stephenbrowne 37 posts	Topic: General Discussion / Milking fingers causes low BG readings I think this is a very difficult subject. The volume of blood I obtain from a lancet stab can vary with ambient temperature. If it is a frosty day my hands are cold and it seems difficult to make any blood come out without some pressure or milking even with the deepest depth lancet setting. Having said that I have occasionally been embarrassed to find that what starts as a very tiny blood sample ends up as a spray which can travel 50cm across a table or splattering a book I have been reading. As others have mentioned, even though the result goes down into decimal places the accuracy is probably at best to the nearest mmol/l . I have been pleased with the Contour test strips system for use with the insulin pump or with the Optium Xceed or Freestyle lite as they seem to use a minute volume of blood and give a reading within 5 seconds.

Nov 9, 2013 mum2westiesGill 502 posts	Topic: General Discussion / 7-day waking average 9.2 - 22:44pm - bedtime 10.7 - 07:29am - fasting lantus decreases: Tue 29.10 from 24u to 22u Sat 02.10 from 22u to 20u Tue 6.11 from 20u to 18u

Nov 8, 2013 Louise1988 68 posts	Topic: General Discussion / Peer Support for People with Diabetes That's true, and it's worked great for me, too. Not everyone wants the world knowing their problems, that's all.

Nov 8, 2013 Louise1988 68 posts	Topic: General Discussion / Is it normal! It's really amazing, how many people go through the same feelings. I speak for myself here, but so many times when I've felt down, I've felt like I'm alone in the world and that no one could possibly understand how I'm feeling. Apparently that's not true! Us diabetics have to stick together!

Nov 8, 2013 HelenP 218 posts	Topic: General Discussion / Is it normal! Hi Phil, I have had diabetes for 37 years and I hate it. I am sitting here dying for a cup of coffee but have to wait until I have a fasting blood test! I rail against it all the time but I also have periods where it does just tick over. You are certainly not alone. I do think personality plays a part. I am told my "adjustment"...my god I hate that word...is typically adolescent! Helen

Nov 8, 2013 JayBee 582 posts	Topic: General Discussion / Is it normal! Totally normal. diabetics are twice as likely to suffer from conditions such as depression so when it gets too much, talking about it can help. I think a lot of diabetics do also have some trouble asking for help (myself included) but DAFNE has encouraged me to speak up as well as feel more in control than I ever did before DAFNE. I'm glad you have spoken up. You are not alone with your frustrations. We have to do the hard job of replacing a bodily function that is automatic for everyone else. It gets me and my hubby down too. Glad you have some grasp on what happens when you get unusual results. Well done for keeping at it despite frustrations.

Nov 8, 2013 Stew B 123 posts	Topic: Carbohydrate Counting / Carbs n cals app While we're on the subject.. I've had the excellent carbs and cals app on my iPhone for a while. Recently I downloaded an update, and now almost every time I open the app it says that new foods have been added, and it starts an automatic update. This can last some time (especially if it's a 3G or worse, rather than wifi) which means I can't access the app until the update has finished - no good if you're in a restaurant and want to know NOW! Very frustrating - is anyone else having the same problem, and is there any way of holding-off updates until a later, more convenient time?

Nov 8, 2013 alturn 78 posts	Topic: General Discussion / Is it normal! Phil - you are not alone, I feel like that a lot of the time, even when readings are relatively good, and I've got all my readings from 2005 in a spreadsheet (is that a sign of OCD tendancies?) and still can't always make sense or decide what to adjust. As for the 24.9, is it possible it was a bad reading? Not always easy to think logically when high, but might have been worth waiting a few minutes and re-testing. I never correct by more than 4 units or even fewer (but never been near 24) - prefer to try and bring levels down over several injections to avoid over-corrections. Hope this helps, alturn

Nov 8, 2013 Alan 49 280 posts	Topic: General Discussion / Milking fingers causes low BG readings I'm glad to hear that other people 'milk' their fingers as well - thanks for that.

Nov 8, 2013 Alan 49 280 posts	Topic: General Discussion / Peer Support for People with Diabetes I thought' DAFNE online' was for 'peer support' - you have a problem or a question about your diabetes, you post it in the appropriate Forum and you get lots of useful replies. That's always worked for me.

Nov 8, 2013 novorapidboi26 1,816 posts	Topic: General Discussion / 7-day waking average Rafa said: I was 3.1 yesterday morning at 10am so took 1 cp and was then 11.2 at 2pm. I didn't correct at this stage with my lunch and was 8.5 when going out for a run at 615pm and then 20 minutes later i was 6.2. Happy enough with that so had my dinner 6 cps but stupidly gave my qa of 6. Anyway two hours later i was 5.9 and was starving so had some toast of 6cp and don't ask me why but i took the qa with it of 6. As a result i was 2.6 going to bed so took 1 cp and fell asleep. Woke up at 7am and was 2.8. I had four cps and took qa of 2. I just checked now and i am 11.2. Without being stupid i am right in saying i should have taken 6-2 qa for my dinner last night and this wouldn't be happening now? That's one way to tackle it yeah..........you can also reduce your BI for activities that are quite intense and long in duration, like a run, as you will see the effect of the activity right into the next day as your muscles replenish their stores of energy from the blood stream....

Nov 8, 2013 novorapidboi26 1,816 posts	Topic: General Discussion / 7-day waking average Louise1988 said: Before bed last night: 10.7 (didn't correct as qa from dinner was still working) This morning: 8.2. Had 3cps for breakfast so had 3u and 0.5 correction dose. 4hours later, my bg is 4.9 Does this mean that 0.5u drops my bg by 3?! Providing your completely certain BI and QA ratios are correct then you could conclude that yes.......would be good to see a different breakfast the next day and see how it goes then too......

Nov 8, 2013 Phil Maskell 194 posts	Topic: General Discussion / 7-day waking average Louise, Unless 1:1 ratio at breakfast is wrong or it was less than 3cps or BG too high! Too many variables and possibilities for any of us to ever get this 100%! Phil

Nov 8, 2013 Rafa 99 posts	Topic: General Discussion / 7-day waking average I was 3.1 yesterday morning at 10am so took 1 cp and was then 11.2 at 2pm. I didn't correct at this stage with my lunch and was 8.5 when going out for a run at 615pm and then 20 minutes later i was 6.2. Happy enough with that so had my dinner 6 cps but stupidly gave my qa of 6. Anyway two hours later i was 5.9 and was starving so had some toast of 6cp and don't ask me why but i took the qa with it of 6. As a result i was 2.6 going to bed so took 1 cp and fell asleep. Woke up at 7am and was 2.8. I had four cps and took qa of 2. I just checked now and i am 11.2. Without being stupid i am right in saying i should have taken 6-2 qa for my dinner last night and this wouldn't be happening now?

Nov 8, 2013 Louise1988 68 posts	Topic: General Discussion / 7-day waking average Before bed last night: 10.7 (didn't correct as qa from dinner was still working) This morning: 8.2. Had 3cps for breakfast so had 3u and 0.5 correction dose. 4hours later, my bg is 4.9 Does this mean that 0.5u drops my bg by 3?!

Nov 8, 2013 Phil Maskell 194 posts	Topic: General Discussion / Is it normal! Louise, I think ratios are fine, hindsight and all I think I missed judged carbs in dinner, then over corrected, nothing new there really. Just fed up with having to deal with this rubbish and ranting. Thanks, Phil

Nov 8, 2013 Louise1988 68 posts	Topic: General Discussion / Is it normal! Hi Phil, It's perfectly normal to go through bouts of being annoyed and fed up with the fact that you have diabetes. I bet you'll find it difficult finding someone who doesn't ever feel annoyed with the diabetes. Do you have much contact with your diabetes team? It could be a case of different ratios or something. I'm a peer support volunteer for Diabetes UK so feel free to email me [email protected] if you want to chat about what you're having trouble with. Hope today is a better day for you!

Nov 8, 2013 Louise1988 68 posts	Topic: General Discussion / Peer Support for People with Diabetes Let me know when that Tweetchat is hosted, definitely one I'm interested in! I noticed you retweeted, thanks! The whole thing about the peer support scheme that I'm doing, is that no one should feel like they are isolated. I'm amazed every time I post a blog about whatever aspect is 'ruining my life', and I have people telling me they're feeling exactly the same! Have a good day, everyone. Feel free to email [email protected] if you need to chat.

Nov 8, 2013 JayBee 582 posts	Topic: General Discussion / Peer Support for People with Diabetes I didn't make the hangout but made the #ourD chat near its finish. Will be interesting to read their post chat blog. I've put forward a discussion idea though I'm very hesitant to be the host because of my account suspension. They said they're happy to host it on my behalf. It'll be about Diabetes and Loved Ones. Cool about the site. I saw the tweet about it and retweeted it straightaway. Will post ideas if I have any. Tips on positive self talk would be a good one. Had to do that a lot recently with my dose adjustments causing highs but sometimes you need to walk through the red to get to the green. It can be very challenging when you feel isolated at the same time (which I often do I will admit). Hope everyone is coping okay.

Nov 8, 2013 Phil Maskell 194 posts	Topic: General Discussion / Is it normal! Hi, I have been diabetic since '87, so a while, did DAFNE in 2005, so been at this for some time now. Is it normal to get waves of being annoyed/ fed up/ depressed with it all? Last night I had a perfect BG 6.5 before driving home. 7 before dinner, 24.9 before walking the dog in the evening! What and why! I am a bit OCD when I'm in the mood about controlling things (other times I let it slide, don't write any BG down,HbA1c suffers!) and then I get crap like that, I corrected and went massively hypo, needed 140 carbs to keep a reasonable BG before bed! Just ranting as feel naff after massive hypo last night! Phil

Nov 8, 2013 Louise1988 68 posts	Topic: General Discussion / 7-day waking average Aw, did you have a good night, though? Eating out is always tricky.Hopefully you'll be able to notice something tomorrow morning.