Is it normal!

9 posts, 6 contributors

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Phil Maskell DAFNE Graduate
Nottingham University Hospitals NHS Trust
194 posts

Hi,

I have been diabetic since '87, so a while, did DAFNE in 2005, so been at this for some time now.

Is it normal to get waves of being annoyed/ fed up/ depressed with it all?

Last night I had a perfect BG 6.5 before driving home. 7 before dinner, 24.9 before walking the dog in the evening! What and why! I am a bit OCD when I'm in the mood about controlling things (other times I let it slide, don't write any BG down,HbA1c suffers!) and then I get crap like that, I corrected and went massively hypo, needed 140 carbs to keep a reasonable BG before bed!

Just ranting as feel naff after massive hypo last night!

Phil

Louise1988 DAFNE Graduate
South West Essex PCT
69 posts

Hi Phil, It's perfectly normal to go through bouts of being annoyed and fed up with the fact that you have diabetes. I bet you'll find it difficult finding someone who doesn't ever feel annoyed with the diabetes. Do you have much contact with your diabetes team? It could be a case of different ratios or something.

I'm a peer support volunteer for Diabetes UK so feel free to email me [email protected] if you want to chat about what you're having trouble with. Hope today is a better day for you!

Phil Maskell DAFNE Graduate
Nottingham University Hospitals NHS Trust
194 posts

Louise,

I think ratios are fine, hindsight and all I think I missed judged carbs in dinner, then over corrected, nothing new there really. Just fed up with having to deal with this rubbish and ranting.

Thanks,

Phil

alturn DAFNE Graduate
NHS Grampian
78 posts

Phil - you are not alone, I feel like that a lot of the time, even when readings are relatively good, and I've got all my readings from 2005 in a spreadsheet (is that a sign of OCD tendancies?) and still can't always make sense or decide what to adjust.

As for the 24.9, is it possible it was a bad reading? Not always easy to think logically when high, but might have been worth waiting a few minutes and re-testing.

I never correct by more than 4 units or even fewer (but never been near 24) - prefer to try and bring levels down over several injections to avoid over-corrections.

Hope this helps,
alturn

JayBee DAFNE Graduate
James Paget University Hospitals NHS Foundation Trust
587 posts

Totally normal. Smile

diabetics are twice as likely to suffer from conditions such as depression so when it gets too much, talking about it can help. I think a lot of diabetics do also have some trouble asking for help (myself included) but DAFNE has encouraged me to speak up as well as feel more in control than I ever did before DAFNE.

I'm glad you have spoken up. You are not alone with your frustrations. We have to do the hard job of replacing a bodily function that is automatic for everyone else. It gets me and my hubby down too.

Glad you have some grasp on what happens when you get unusual results. Well done for keeping at it despite frustrations.

HelenP DAFNE Graduate
Queensland Diabetes Centre, Brisbane, QLD
218 posts

Hi Phil, I have had diabetes for 37 years and I hate it. I am sitting here dying for a cup of coffee but have to wait until I have a fasting blood test!

I rail against it all the time but I also have periods where it does just tick over. You are certainly not alone. I do think personality plays a part. I am told my "adjustment"...my god I hate that word...is typically adolescent!

Helen


Louise1988 DAFNE Graduate
South West Essex PCT
69 posts

It's really amazing, how many people go through the same feelings. I speak for myself here, but so many times when I've felt down, I've felt like I'm alone in the world and that no one could possibly understand how I'm feeling. Apparently that's not true! Us diabetics have to stick together! Very Happy

youone DAFNE Graduate
Hull University Teaching Hospitals NHS Trust
102 posts

hi
When you say you had 7 at dinner then 24 before walking the dog , was this 4 hrs after your QA if yes then more than likely you missed counted carbs or had a high starch meal.
if it was less than 4 hrs it would mean you still have IOB hence when you took more QA you hypo later.
the 4 hour period is important most hypos happen when you correct before this period is finished
I'm on the omnipod2 now surprising how much this is shown my the device.
as for moods and feeling low, yes its the 1 thing the nurse or doctor can't help you with, I'm always surprised that we aren't given support for this, since this in my opinion is the biggest issue for controlling your hba1c, when your feeling fine its easy but when your down its really hard, especially when other non diabetics (type1) just don't understand.
Did you know it was Diabetic awareness month, I believe the 14th is diabetic day.
where extraordinary and unique people as Louise said we have to stick together Very Happy

Phil Maskell DAFNE Graduate
Nottingham University Hospitals NHS Trust
194 posts

Thanks everyone for the replies