Recent Posts - DAFNE Online

Nov 4, 2013

Rafa 99 posts

Topic: Questions for HCPs / Think my Novorapid is too slow!

Had a chinese meal last night. I was 10.1 so matched up the carbs with the qa plus the +1 correction. Exactly four hours later my reading was 5.9. Happy out with that and went to bed. Up at 6am and my blood read 16.6, totally frustrated to say the least. Had my breakfast and corrected and fine now. Still myself and chinese food don't seem to like each other any time we meet.

Nov 2, 2013

Krystal H 1 post

Topic: General Discussion / Insulin Cooling Wallet?

I have one as well, really super.. just a little tip- amazon is cheaper for frio wallet rather than frio website itself Very Happy

Nov 2, 2013

John H 21 posts

Topic: General Discussion / Accu-Chek Aviva Expert Meters

Louise you can up load data from your expert only by using AccuCheks box of tricks. These can be bought via accuchek apparently but you would benefit by calling customer services who may send you 1 FOC like they did for me. Dont expect too much from them as they still have my expert meter after it went wrong 18 months ago...... the adaptor for pc is not bluetooth or wired to the expert.. no it is infra red, not too advanced in this day and age me thinks....

Nov 2, 2013

John H 21 posts

Topic: General Discussion / Insulin Pens.

Just to advise anybody with poor eye sight and using NovoPen Demi pens, My Dafne educator has changed my pen for the NovoPen 4. This pen is great well designed and the indicator dial window has a magnified benefit. Works smoothly and measures up perfectly for me. I hope this may be of some help to you out there.

Oct 31, 2013

JayBee 582 posts

Topic: General Discussion / Peer Support for People with Diabetes

Update:

Wow, I've been unsuspended. :/ I was expecting it to take 2 weeks!
Sent my volunteering form! Very Happy

Oct 31, 2013

JayBee 582 posts

Topic: General Discussion / Peer Support for People with Diabetes

Heya Alan. Smile

A "hangout" is the term used by the Google Plus network for video calls. They also have text chat with the hangout so a microphone isn't necessarily a requirement but it can make it a lot easier to join in the discussion. Having a camera installed isn't required, it'll just show your profile avatar instead.

Diabetes UK's next one is 5th November if I remember correctly. I forget the topic... sorry. Sad

(Looked it up; How do you feel about needles and injections is the topic!)

Edit: here's Google's intro page about them: http://www.google.com/+/learnmore/hangouts/

Oct 31, 2013

Alan 49 280 posts

Topic: General Discussion / Peer Support for People with Diabetes

Can someone please tell me what a 'hangout' is?

Oct 31, 2013

JayBee 582 posts

Topic: General Discussion / Peer Support for People with Diabetes

I'll still keep an eye out for the G+ hangouts and get my volunteering form sent off in the meantime. I really don't get what I've done wrong on Twitter, but I will think about what I will now do with the account later today. My hubby wants me to not close it because the interactions have been a good thing for me to do but I do feel torn since I'm not sure what their beef is really.

Edit: http://blog.justunfollow.com/the-rundown-on-why-twitter-accounts-are-suspended/

Appears there is no rhyme or reason to what they consider bad behaviour. This isn't a convincing case for me to bother keeping the account.

Oct 31, 2013

Louise1988 68 posts

Topic: General Discussion / Peer Support for People with Diabetes

That's rubbish Sad

We'll just have to bring the online community over to here (only if they've done DAFNE of course Razz

)

Oct 30, 2013

JayBee 582 posts

Topic: General Discussion / Peer Support for People with Diabetes

Looks like I won't be on twitter much. My account has been suspended twice today on spam grounds for having discussions with the D-community and friends. Feel really unwelcome now. Never had anything like this for my old ex-account and the DAFNEOnline ex-account. Very disappointed. Twitter has changed.

Oct 30, 2013

Googum 15 posts

Topic: General Discussion / 7-day waking average

my bed BG 6.8 MMOL my morning 4.9MMOL

Oct 30, 2013

Louise1988 68 posts

Topic: General Discussion / Peer Support for People with Diabetes

I'm getting a lot of support from the guys at Diabetes UK, so I don't feel like I'm doing this on my own, think I'd have a mental breakdown if I was!

Oct 30, 2013

JayBee 582 posts

Topic: General Discussion / Peer Support for People with Diabetes

I'm @T1Buta . You came up during the G+ hangout saying you were involved with the twitter chat this evening so I'm already following you. Smile

I look forward to helping out again (just advocating on your own isn't the same - I hope this'll be a more balanced and enjoyable experience from what I've done before)!

Oct 30, 2013

Louise1988 68 posts

Topic: General Discussion / Peer Support for People with Diabetes

JayBee, that's really great news! What's your twitter name? I was hosting last night's Twitter chat.

I really love the fact that I can volunteer, even though I work full time, too.

Oct 29, 2013

JayBee 582 posts

Topic: General Discussion / Peer Support for People with Diabetes

Joined in on the hangout and the twitter feed (signed up again especially in fact).
Was nice to be able to hear other diabetics. A very rare occurrence for me.
I am seriously considering volunteering after the chat... so glad it doesn't matter that I'm a full-time worker!

Oct 29, 2013

JayBee 582 posts

Topic: General Discussion / Peer Support for People with Diabetes

I used to do the DAFNE Online twitter feed (the discussion on here is here) before the DAFNE official feed started, and did try to do a Google Plus page but with the restrictions on RSS, it was too time consuming to keep up on a voluntary basis, so I shut it down again. I've had no contact with the FB group since I quit FB before it appeared.

In case any one was having trouble finding it the hangout event is here.

I've heard of a lot of support things in my area, but most of them are for families that have kids with diabetes. Pardon my french, but the options for adult diabetics are pretty crap. I've gone on to Streetlife to try and get an idea if anyone local would be interested in adult diabetic support, but no one replied (got some thumbs up though). Same for on here - nothing materialised (see Norwich meet).

It's pretty sad and I guess I'm kind of jaded after being disappointed so much (I've tried running events for stuff outside diabetes for hobbies too - won't go into that). :/ I do wish you and Diabetes UK all the best with this.

My partner thinks I should really try to join the discussion this evening... see what I get out of it.. is it possible to just sit in and watch if I can make it? That reminds me, I'd best finally get my EyeToy cam set up for doing these hangouts!

Oct 29, 2013

Louise1988 68 posts

Topic: General Discussion / Peer Support for People with Diabetes

It's an interesting experience, G+ hangouts!

On that note, does anyone do anything diabetes-related, other than taking part on here? Facebook? Twitter? Local voluntary groups? Please share what you do, it'd be great to get to know you! Very Happy

Oct 29, 2013

JayBee 582 posts

Topic: General Discussion / Peer Support for People with Diabetes

Cool! I've marked myself as a maybe atm. It'll be my first hangout if I do make it. o_o;;

Have fun to all who do join in either events! Smile

Oct 29, 2013

Louise1988 68 posts

Topic: General Discussion / Peer Support for People with Diabetes

I missed last week's one, JayBee, so I hope to be involved tonight!

Oct 29, 2013

JayBee 582 posts

Topic: General Discussion / Peer Support for People with Diabetes

That is great Louise. Smile

While I think of it, Diabetes UK on Google Plus have been doing regular peer support hangouts. Their next one is this evening at 7pm UK time if I remember correctly - talking about diabetics' thoughts on how the condition is represented in the media (mags, tv, online, etc).

I'd imagine it might get a bit heated ^_^;;

Oct 29, 2013

hypo 18 posts

Topic: General Discussion / 7-day waking average

HI novorapidbo26

No I don't usually feel hypo till BG goes under 4 but I always have a couple of jellybabies if I go under 4.5 and tthat does the trick. I tend to have Highs if I snack between meals but I do like a bar of chocolate.
Regards Jean

Oct 29, 2013

Garry 328 posts

Topic: General Discussion / BG Levels creeping up

Don't worry about your results. They are fine...they are red at the minute, but so what. We are looking for long term control within range. Look to the top right of your diary and on screen you will see BG averages for 7, 14, 30 and 90 days. I find these a big help combined with the content of the Summary View which is hyperlinked at the very top of your diary. Good stuff for you to ponder.
Will take you a long time at somewhat elevated BGs to get your hypo awareness back. It will not happen overnight!
Last time With consultant guidance and review, I reset my body and it took 3 months and albeit that we are all different...I can't imagine that a consultant would want to consider short term HBa1c changes.
Stick with it. Your bloods will still be affected during recovery from illness and may take some time to retrun to normal.
Regards
Garry

Oct 29, 2013

Louise1988 68 posts

Topic: General Discussion / Peer Support for People with Diabetes

I hope we can muster up a strong support network for us people with diabetes Very Happy

I'm not sure if anyone here is on Twitter, but there's a discussion going on tonight, that I'm hosting. The topic of conversation will be blood glucose meters, their functions and reliability. Anyone who wants to join in, or have a nose at what meters people use, and their thoughts on them, follow 'OurDiabetes' . The chat will be taking place 8-9pm. Very Happy

Oct 29, 2013

Louise1988 68 posts

Topic: General Discussion / BG Levels creeping up

Looking for some advice regarding my ratio and insulin regime. For the past 4 months, I have been suffering from constant hypos. This hasn't been helped by my hypo unawareness. Last Monday, I had to fast for 26 hours, due to medical investigations.

I don't know if it's related, but since last Tuesday, the day after my investigations, I've noticed my bg levels have been creeping up. Not stupidly high, but high enough for me to wonder what I need to do to fix things. I was ill for a few days, with a bug, but this ended on Sunday.

I'm on 7 units of Levemir, and then QA Novorapid, which are given with ratios 1:1 for breakfast & lunch, and 1:1.5 for dinner.

At least this means I'll start to feel my hypos (hopefully)! But can anyone give any suggestions to get my levels back within DAFNE guidelines?

Nov 4, 2013 Rafa 99 posts	Topic: Questions for HCPs / Think my Novorapid is too slow! Had a chinese meal last night. I was 10.1 so matched up the carbs with the qa plus the +1 correction. Exactly four hours later my reading was 5.9. Happy out with that and went to bed. Up at 6am and my blood read 16.6, totally frustrated to say the least. Had my breakfast and corrected and fine now. Still myself and chinese food don't seem to like each other any time we meet.

Nov 2, 2013 Krystal H 1 post	Topic: General Discussion / Insulin Cooling Wallet? I have one as well, really super.. just a little tip- amazon is cheaper for frio wallet rather than frio website itself

Nov 2, 2013 John H 21 posts	Topic: General Discussion / Accu-Chek Aviva Expert Meters Louise you can up load data from your expert only by using AccuCheks box of tricks. These can be bought via accuchek apparently but you would benefit by calling customer services who may send you 1 FOC like they did for me. Dont expect too much from them as they still have my expert meter after it went wrong 18 months ago...... the adaptor for pc is not bluetooth or wired to the expert.. no it is infra red, not too advanced in this day and age me thinks....

Nov 2, 2013 John H 21 posts	Topic: General Discussion / Insulin Pens. Just to advise anybody with poor eye sight and using NovoPen Demi pens, My Dafne educator has changed my pen for the NovoPen 4. This pen is great well designed and the indicator dial window has a magnified benefit. Works smoothly and measures up perfectly for me. I hope this may be of some help to you out there.

Oct 31, 2013 JayBee 582 posts	Topic: General Discussion / Peer Support for People with Diabetes Update: Wow, I've been unsuspended. :/ I was expecting it to take 2 weeks! Sent my volunteering form!

Oct 31, 2013 JayBee 582 posts	Topic: General Discussion / Peer Support for People with Diabetes Heya Alan. A "hangout" is the term used by the Google Plus network for video calls. They also have text chat with the hangout so a microphone isn't necessarily a requirement but it can make it a lot easier to join in the discussion. Having a camera installed isn't required, it'll just show your profile avatar instead. Diabetes UK's next one is 5th November if I remember correctly. I forget the topic... sorry. (Looked it up; How do you feel about needles and injections is the topic!) Edit: here's Google's intro page about them: http://www.google.com/+/learnmore/hangouts/

Oct 31, 2013 Alan 49 280 posts	Topic: General Discussion / Peer Support for People with Diabetes Can someone please tell me what a 'hangout' is?

Oct 31, 2013 JayBee 582 posts	Topic: General Discussion / Peer Support for People with Diabetes I'll still keep an eye out for the G+ hangouts and get my volunteering form sent off in the meantime. I really don't get what I've done wrong on Twitter, but I will think about what I will now do with the account later today. My hubby wants me to not close it because the interactions have been a good thing for me to do but I do feel torn since I'm not sure what their beef is really. Edit: http://blog.justunfollow.com/the-rundown-on-why-twitter-accounts-are-suspended/ Appears there is no rhyme or reason to what they consider bad behaviour. This isn't a convincing case for me to bother keeping the account.

Oct 31, 2013 Louise1988 68 posts	Topic: General Discussion / Peer Support for People with Diabetes That's rubbish We'll just have to bring the online community over to here (only if they've done DAFNE of course )

Oct 30, 2013 JayBee 582 posts	Topic: General Discussion / Peer Support for People with Diabetes Looks like I won't be on twitter much. My account has been suspended twice today on spam grounds for having discussions with the D-community and friends. Feel really unwelcome now. Never had anything like this for my old ex-account and the DAFNEOnline ex-account. Very disappointed. Twitter has changed.

Oct 30, 2013 Googum 15 posts	Topic: General Discussion / 7-day waking average my bed BG 6.8 MMOL my morning 4.9MMOL

Oct 30, 2013 Louise1988 68 posts	Topic: General Discussion / Peer Support for People with Diabetes I'm getting a lot of support from the guys at Diabetes UK, so I don't feel like I'm doing this on my own, think I'd have a mental breakdown if I was!

Oct 30, 2013 JayBee 582 posts	Topic: General Discussion / Peer Support for People with Diabetes I'm @T1Buta . You came up during the G+ hangout saying you were involved with the twitter chat this evening so I'm already following you. I look forward to helping out again (just advocating on your own isn't the same - I hope this'll be a more balanced and enjoyable experience from what I've done before)!

Oct 30, 2013 Louise1988 68 posts	Topic: General Discussion / Peer Support for People with Diabetes JayBee, that's really great news! What's your twitter name? I was hosting last night's Twitter chat. I really love the fact that I can volunteer, even though I work full time, too.

Oct 29, 2013 JayBee 582 posts	Topic: General Discussion / Peer Support for People with Diabetes Joined in on the hangout and the twitter feed (signed up again especially in fact). Was nice to be able to hear other diabetics. A very rare occurrence for me. I am seriously considering volunteering after the chat... so glad it doesn't matter that I'm a full-time worker!

Oct 29, 2013 JayBee 582 posts	Topic: General Discussion / Peer Support for People with Diabetes I used to do the DAFNE Online twitter feed (the discussion on here is here) before the DAFNE official feed started, and did try to do a Google Plus page but with the restrictions on RSS, it was too time consuming to keep up on a voluntary basis, so I shut it down again. I've had no contact with the FB group since I quit FB before it appeared. In case any one was having trouble finding it the hangout event is here. I've heard of a lot of support things in my area, but most of them are for families that have kids with diabetes. Pardon my french, but the options for adult diabetics are pretty crap. I've gone on to Streetlife to try and get an idea if anyone local would be interested in adult diabetic support, but no one replied (got some thumbs up though). Same for on here - nothing materialised (see Norwich meet). It's pretty sad and I guess I'm kind of jaded after being disappointed so much (I've tried running events for stuff outside diabetes for hobbies too - won't go into that). :/ I do wish you and Diabetes UK all the best with this. My partner thinks I should really try to join the discussion this evening... see what I get out of it.. is it possible to just sit in and watch if I can make it? That reminds me, I'd best finally get my EyeToy cam set up for doing these hangouts!

Oct 29, 2013 Louise1988 68 posts	Topic: General Discussion / Peer Support for People with Diabetes It's an interesting experience, G+ hangouts! On that note, does anyone do anything diabetes-related, other than taking part on here? Facebook? Twitter? Local voluntary groups? Please share what you do, it'd be great to get to know you!

Oct 29, 2013 JayBee 582 posts	Topic: General Discussion / Peer Support for People with Diabetes Cool! I've marked myself as a maybe atm. It'll be my first hangout if I do make it. o_o;; Have fun to all who do join in either events!

Oct 29, 2013 Louise1988 68 posts	Topic: General Discussion / Peer Support for People with Diabetes I missed last week's one, JayBee, so I hope to be involved tonight!

Oct 29, 2013 JayBee 582 posts	Topic: General Discussion / Peer Support for People with Diabetes That is great Louise. While I think of it, Diabetes UK on Google Plus have been doing regular peer support hangouts. Their next one is this evening at 7pm UK time if I remember correctly - talking about diabetics' thoughts on how the condition is represented in the media (mags, tv, online, etc). I'd imagine it might get a bit heated ^_^;;

Oct 29, 2013 hypo 18 posts	Topic: General Discussion / 7-day waking average HI novorapidbo26 No I don't usually feel hypo till BG goes under 4 but I always have a couple of jellybabies if I go under 4.5 and tthat does the trick. I tend to have Highs if I snack between meals but I do like a bar of chocolate. Regards Jean

Oct 29, 2013 Garry 328 posts	Topic: General Discussion / BG Levels creeping up Don't worry about your results. They are fine...they are red at the minute, but so what. We are looking for long term control within range. Look to the top right of your diary and on screen you will see BG averages for 7, 14, 30 and 90 days. I find these a big help combined with the content of the Summary View which is hyperlinked at the very top of your diary. Good stuff for you to ponder. Will take you a long time at somewhat elevated BGs to get your hypo awareness back. It will not happen overnight! Last time With consultant guidance and review, I reset my body and it took 3 months and albeit that we are all different...I can't imagine that a consultant would want to consider short term HBa1c changes. Stick with it. Your bloods will still be affected during recovery from illness and may take some time to retrun to normal. Regards Garry

Oct 29, 2013 Louise1988 68 posts	Topic: General Discussion / Peer Support for People with Diabetes I hope we can muster up a strong support network for us people with diabetes I'm not sure if anyone here is on Twitter, but there's a discussion going on tonight, that I'm hosting. The topic of conversation will be blood glucose meters, their functions and reliability. Anyone who wants to join in, or have a nose at what meters people use, and their thoughts on them, follow 'OurDiabetes' . The chat will be taking place 8-9pm.

Oct 29, 2013 Louise1988 68 posts	Topic: General Discussion / BG Levels creeping up Looking for some advice regarding my ratio and insulin regime. For the past 4 months, I have been suffering from constant hypos. This hasn't been helped by my hypo unawareness. Last Monday, I had to fast for 26 hours, due to medical investigations. I don't know if it's related, but since last Tuesday, the day after my investigations, I've noticed my bg levels have been creeping up. Not stupidly high, but high enough for me to wonder what I need to do to fix things. I was ill for a few days, with a bug, but this ended on Sunday. I'm on 7 units of Levemir, and then QA Novorapid, which are given with ratios 1:1 for breakfast & lunch, and 1:1.5 for dinner. At least this means I'll start to feel my hypos (hopefully)! But can anyone give any suggestions to get my levels back within DAFNE guidelines?