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15,849 posts found
Aug 27, 2010
Lizzie
87 posts
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Maybe I was a little harsh Simon. I am sure somewhere out there there are doctors who are kind and supportive. But I have not met any and can only speak for my own experiences. Maybe I have been unlucky. I wish I could find a doctor or medical professional who actually cared. I try to be hopeful when I go for appointments but each one just ticks the boxes and gets me out the door again. The last one did not even check my feet or ask to see my diary. He was more interested in pressuring me to have weight loss surgery. This seems to be the favoured solution for my doctors rather than asking about my mental wellbeing and trying to deal with all my many and varied issues involving food, diabetes, and my father's death when I was 18 months old, which have plagued me all my life. Instead of doing what I think is their job and investigating the actual reason why I am struggling with diet and exercise, they would rather I had my stomach removed. Nice, eh? |
Aug 27, 2010
Simon Heller
46 posts
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Topic: General Discussion / The Hospital - Channel 4 Hi Lizzie. I am straying a little from the 'questions for health care professionals' forums in posting on this thread but I think you are being a little hard on medical staff here and hope we have learnt a bit a bit over the years. Those of us who run clinics for young people can see very clearly how tough it is to manage diabetes on top of coping with being a teenager.The difficulty is finding the right approach to let young people know they are supported and doing anything in our power to help them manage their diabetes more successfully. Many just hate having diabetes and it is scary to see people stopping their injections and ending up in hospital with dka or running sugars around 30 for weeks on end. I agree we haven't yet learnt the best way to support them but hopefully in clinic no-one is judgmental just exploring the best way to give the right level and type of support. I couldn't agree more that taking people round the kidney unit or showing horrible pictures is completely crass and wrong. We are currently exploring ways of supporting people with a team of nurses/dietitians who are there for families outside traditional clinic settings. We hope this will offer better support in terms of education (when it is wanted/needed), dealing with family conflict and encouraging even small positive steps for kids to look after their diabetes a bit more effectively. It is challenging however and we will get many things wrong as well as hopefully a few things right. If it got rid of the traditional diabetic clinic which doesn't seem to suit most young people,and replaced it with something more effective, I would be very happy. Simon |
Aug 27, 2010
NiVZ
82 posts
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Topic: Site Development / New Meter Upload Development Spent lunchtime today going over the code I already had to refresh my memory. And also getting my meter working with Windows 7 (need to use the cable driver from the Prolific website as the OneTouch one doesn't work - think Marke mentioned this a while back)Going to start coding a very streamlined easy to use app from scratch with very few options. Just read the data from the meter and submit to website with as few clicks needed as possible. I'm planning to do each part in very small steps, ie 1. get it finding the data cable (COM port) 2. speak to the meter (initialise, get serial no, settings, etc) 3. read data back from meter (just date/time, BG and comment to start with) and display on screen 4. send the data to DAFNE online (either overwriting exisiting values or figuring out the last value and only writing newer ones) 5. get it to read the insulin and carb data (something I've not tried) I plan to release something at each of the steps above which I would be grateful if people could test at each stage. The more testers the better to ensure it's working on everyone's meter. The response has been a bit underwhelming so far, but hopefully more people might be encouraged once theres something to try out. I'm going to keep the user interface very simple (probably just a text box telling you what the program is currently doing) so that it is easy to figure out any problems that arise. I'm hoping to have the first release for step 1 very soon for people to try. Thanks, NiVZ |
Aug 27, 2010
Anil
39 posts
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Topic: Site Development / DAFNE Online iPhone application - help with content/design needed Hi,To overcome this hurdle, couldnt you have a feature where a user can enter all the information themselves. So I can enter the food, portion size and carb count. This would overcome this problem and be a excellent feature to have, you could build your own diary with other foods as well. Definitely would be the best way to go. |
Aug 27, 2010
Garry
328 posts
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Topic: Site Development / Forum improvments Information is available in your DAFNE Course Handbook. The link to an on line version is available on the right side of this web page.Or use this link in your browser if you prefer: - http://www.dafneonline.co.uk/hbook_topics/38 You could perhaps save it as a favourite. Hope this helps. Regards Garry |
Aug 27, 2010
Lizzie
87 posts
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Topic: General Discussion / Alternative remedies I would ask your doctor before trying anything like this. Just because something is 'natural' does not mean it has no adverse effects. |
Aug 27, 2010
Lizzie
87 posts
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Simon, I don't think a 'kick up the backside' is what people need. I went through a bad period that lasted years and I do blame the doctors for that. They put me on MDI without telling me how to adjust my insulin. The emphasis was all on restricting food as if I was still on 2 injections of mixed insulin. My HBA1C must have been through the roof but they never mentioned it, or my obviously faked blood sugar results in my diary. They booted me out at 15 as my working parents could not take me to the clinic and missed some appointments. There was no continuity of care they just dumped me. I got myself referred to adult clinic but it was so miserable with no support I stopped going and did not see a dr for years. Sadly I do not think my experience is unique. Doctors are appalling at dealing with teenagers or diabetics in general. They expect you to be a machine and if you are human and make mistakes they have not a clue how to support you. They neglect to tell you vital information about how to deal with hypos, adjust insulin...the list goes on. They are happy to just see you once a year and leave you to struggle in between appointments. Teenage years are hard enough for people, for diabetics they are even worse. We need support not criticism. In fact, all the scare tactics people used made me worse - they scared me rigid so I could not even think about my diabetes and avoided testing so I did not see the high results. If I was high I did not know what to do about it due to the doctors not telling me, so I did not bother testing. I think that at least for some of these teenagers their fierce bravado might hide terrible fear and the doctors showing them images or telling them about amputations or blind people and how irresponsible they are just makes that worse, makes them more resistant and obstinate, more terrified to face their condition. Not everyone is irresponsible. Doctors are neglecting their duty of care to find out the real reasons why teens do not check their blood sugar or manage their condition. Blaming the teenagers is lazy and despicable in the part of the doctors in my opinion. |
Aug 27, 2010
novorapidboi26
1,819 posts
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Topic: General Discussion / Introductions The good thing is that you now have the tools and knowledge to help her as much as she lets you...........She wont hear it from anyone else so she is quite lucky infact....... Does she test alot? and I assume she is on Multiple Daily Injections? |
Aug 27, 2010
caroline15
45 posts
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Topic: General Discussion / Introductions Thanks for the welcome novo.I asked if she could come on my dafne course with me as it was on in the first week of the summer holidays but apparently you have to be at least 18. She would have hated it anyway but that's her age, she wants to be with her friends not fellow diabetics. I personally loved it! |
Aug 27, 2010
novorapidboi26
1,819 posts
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Topic: Carbohydrate Counting / Iphone Apps Well done to all involved, cant wait to get an iphone/pad................. |
Aug 27, 2010
novorapidboi26
1,819 posts
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Topic: General Discussion / spiking early evening Im with marky boy, in the first instance, all being that you had no extra unnacounted carbs, I would say your basal is running out, or that you may need to up the AM dose if you are on a split basal dose................. |
Aug 27, 2010
novorapidboi26
1,819 posts
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Topic: General Discussion / Introductions Welcome caroline.............I hope your daughter may get the chance to go on a course.............. My worst time with diabetes was between the ages of 15-21............everyone is different though...... |
Aug 26, 2010
caroline15
45 posts
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Topic: General Discussion / Introductions Just realised from Addie's post that I should have introduced myself before.I'm Caroline, diagnosed T1 in December 2003. I did the Dafne course in July 2010. It was great to meet other people with Type 1 who had been diagnosed for a long time (some over 30 years) and see that they had no complications. I don't work as I also have multiple sclerosis which causes great fatigue. Before dafne my hba1c was 8.7 , and I am hoping that this will improve. I have dawn phenomenon which I think has been helped recently by having alcohol before bed! My daughter was also diagnosed T1 (no other diabetes in my family history) in October 2007 when she was 11, her last hba1c was 10.4. She was 14 this month and has never really accepted her diabetes, I am hoping that with maturity will come acceptance. Oh, and I recently bought an Ipod Touch with my birthday money so I could download the dafne online app which I think is great!! Best wishes. Caroline |
Aug 26, 2010
addie
13 posts
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Topic: General Discussion / Introductions Hi allI am Adrian, diagnosed Sept 2004, graduated North Tyne Hostipal DAFNE course June 2006. DAFNE changed my life beyond all recognition. I was really struggling with the whole pre daphne diabetes regime. Suffered from depression and all of crap. Anyways DAFNE revitalised my life. I changed jobs - was an area sales manager for Cadbury Trebor Basset pre DAFNE, flooding the north east with as much chocolate and sugar confectionery as possible had somehow lost its appeal!. I now work as a public health nutrition researcher at Newcastle University developing portion size assessment tools and computer systems for dietary assessment in the public health arena at national surveilence and local intervention levels. I have had good months and bad months with diabetes. HbA1c is always around 8.2 to 8.7 but never broken the less than 8 barrier. Seem to have intermitent dawn phnomeon vistis every wee while. Would dearly love to get further understanding of fitness and physical activty. I have just found this site in the last couple of weeks, I dont think it existed when I graduated. It is excellent. Big thanks for all the good work Simon and Marke appear to have done ( especially the iphone app ) that I think is amazing. All the best Ad |
Aug 26, 2010
addie
13 posts
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Topic: Carbohydrate Counting / Iphone Apps Hi SimonIve had the app for a couple of days now and just wanted to comment on the quality and simplicity of the functions you have created. I cant tell you how delighted I am that the DAFNE interfaces have got 21st century. It is having a very positve effect on my overall control and willingness to keep a full and complete diary. I always found the paper diary quite a barrier to continued entries, especially for snacks and drinks outside of nornal main meals. However having the app in my pocket at time of consumption is brilliant. Keep up the good work |
Aug 26, 2010
Ladybob
4 posts
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Topic: Site Development / Forum improvments Hi, I'm new to all this having just seen Anitab for a yearly catch up group session.After she installed the virtues of Dafne Online I thought I'd start using it. On thing I would like to suggest (if no-one has done so already)...... Can you consider a "Sick Day Rules" section? Perhaps linking it to our personal BG info so that it can calculate the Total Daily Dose based on our last day's BG entries and then serve as a reminder as what to do next. I'm a very sickly person at times! and when I'm not well I tend to get confused and forget whether or not I should count my BI as well as the QA insulins. Then theres the list of percentages to look down. Am I looking down the right one? Just how many times to I have to double and triple check I'm doing it right before I finally get some insulin in me?! I think this would be a great thing for young elderly and middle-aged alike and to help boost our confidence to know we're doing it right at a time when we feel ill and vulnerable. I just thought it could further help to take the guesswork out of things (or in my case, reduce my error rate!) However.... if you already have this on your site.... do let me know where 'cos I can't find it. Ladybob |
Aug 26, 2010
Mark2
23 posts
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Topic: General Discussion / spiking early evening Are you on Lantus or Levemir? - and how many injections a day? It may be that your base insulin is running out in the evenings. Also did you drink anything with meal? |
Aug 26, 2010
chris s
2 posts
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Topic: General Discussion / spiking early evening Type 1 for 12 years - Dafne for 4years. Seem to have developed new problem during early evening. Last night score of 10 before supper - only had 2 small potatoes with meal, plus fruit afterwards. Have regime of 3:1 in evenings of humalog so injected 12. Bed at 11.00pm and score was 19. Had normal basal insulin + 6 extra humalog. This morning score of 10. Have noticed this trend for last few days. Anyone recognise this pattern? |
Aug 25, 2010
Neil26
1 post
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Topic: General Discussion / Android App Hi,will there be a DAFNE Online App for the Android Market now that the iPhone has one? Cheers |
Aug 25, 2010
Mark2
23 posts
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Topic: Carbohydrate Counting / McD's Taught me something I didn't know there. Thanks |
Aug 25, 2010
caroline15
45 posts
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Topic: Carbohydrate Counting / McD's My daughter has a peanut allergy as well as Type 1, it was also useful for allergy information when we used to go. |
Aug 25, 2010
novorapidboi26
1,819 posts
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Topic: Carbohydrate Counting / McD's It is..............so much so that I visit there regularly if i want a burger..........Similar values could be trasfered to other outlets, large fries - 6 units - burger 1/4 pounder - 4 units......... |
Aug 24, 2010
Stew B
125 posts
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Topic: Carbohydrate Counting / McD's Took our youngest to our local McD's this evening, and she discovered that printed on the reverse of the paper thingy that they put on their trays when serving meals is a comprehensive nutrition listing for all their products - including carb info. I knew that they have this info on their website, but this is really useful.. |
Aug 24, 2010
Maura
14 posts
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Topic: General Discussion / Drinking Thanks everyone for the advice!!! |
Aug 23, 2010
Simon
578 posts
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Topic: Carbohydrate Counting / Iphone Apps Hi Brian - thanks, some constructive comments there. I'd be interested to hear other users thoughts on how the data is inputted - happy to go with the majority on the best way to input things. In the next update I'll add something to allow you to map times of day to entry types.Karl - thanks, it was too late to get that change into this version, but will be fixed in the next update. Keep the feedback coming! |