Recent Posts - DAFNE Online

Aug 15, 2010

charlotte77 11 posts

Hi - I am having high blood sugars three or four hours after eating muesli despite being in range beforehand. I know I'm counting the carbs properly so not sure what is going on - does anyone else have this problem?

Aug 14, 2010

Simon 574 posts

Topic: Site Development / Online BG Diaries

Karl - good spot, thanks for that - that's now rectified.

Aug 14, 2010

Karl 83 posts

Topic: Site Development / Online BG Diaries

Hi

The built in target levels for the diary has before driving as 4.5 - I thought it had to be 5 to drive.

Aug 14, 2010

Simon 574 posts

Topic: Site Development / Online BG Diaries

Garry - apologies for the delay in replying to you, I've been concentrating on the iPhone app, but now that is almost done I can revert to improving the diary on the site. You're right that request is a lot of work, but I will definitely take a look at it and see how far I can take it!

Kate - First of all congratulations on your pregnancy! You raise some good points about the colour schemes and I'll certainly make some changes to make them more accessible for people who are colour blind/partially sighted.

Simon

Aug 13, 2010

kategreenstreet 1 post

Topic: Site Development / Online BG Diaries

I've have just started using the diary today and I have to say its very good, very easy to use and I will certainly continue to use is through my pregnancy and beyond. I have only one criticism and that is I am finding it difficult to identify my low BM's as they are highlighted the same colour as the times in blue. Is there a chance that you could change them to a different colour? I haven't read all of the entries on this forum but I wouldn't be surprised if some people are finding it difficult to tell the difference between the red and the green as well due to colour blindness.

The rest is great!

Kate

Aug 13, 2010

Athena 52 posts

Topic: General Discussion / Exhaustion

HI Claire and MArke,

You are right MArke, it would appear that everyone is different. I assumed that everyone was the same as I was and that the healthcare professionals knew that when anyone was high they struggled with going to work and everyday activities. It would appear that maybe they don't know this and we maybe need to tell them.
I didn't realise that you and I are different Claire, but that is something that I have learned from this site.
Wish I knew what makes the difference. I always ran my bg's low before DAFNE as I couldn't cope with a high bg at all. Suppose it is a good thing in a way as it stopped you aaveing sneaky treats or anything as just not worth it. I am aware of people feeling fine running their sugars really high too so yeah, everyone's body responds differently.
Glad you have got your bg's settled Claire and hope that you continue to feel better.
Another two people on my course ended up really ill after a couple of months of the DAFNE high bg's too and I think at leaset one of tehm had no tolerance for high bg's feeling tired at 12 which is when I really start to feel bad too.
thanks to you both.

Aug 13, 2010

Athena 52 posts

Topic: General Discussion / Exhaustion

HI Claire and MArke,

You are right MArke, it would appear that everyone is different. I assumed that everyone was the same as I was and that the healthcare professionals knew that when anyone was high they struggled with going to work and everyday activities. It would appear that maybe they don't know this and we maybe need to tell them.
I didn't realise that you and I are different Claire, but that is something that I have learned from this site.
Wish I knew what makes the difference. I always ran my bg's low before DAFNE as I couldn't cope with a high bg at all. Suppose it is a good thing in a way as it stopped you aaveing sneaky treats or anything as just not worth it. I am aware of people feeling fine running their sugars really high too so yeah, everyone's body responds differently.
Glad you have got your bg's settled Claire and hope that you continue to feel better.
Another two people on my course ended up really ill after a couple of months of the DAFNE high bg's too and I think at leaset one of tehm had no tolerance for high bg's feeling tired at 12 which is when I really start to feel bad too.
thanks to you both.

Aug 12, 2010

Tom G 1 post

Topic: DAFNE Online Mobile / Rationale - Please read

I have a Nokia E 63 and would like to try the mobile version

Aug 12, 2010

Nat 30 posts

Topic: General Discussion / I want an insulin pump

All my fingers are crossed. I have a 20 page document to read before I sign my life away and they said I will have one to one care and more whilst on the trial so hopefully it will go quite smoothly. After 19 years of being on a strict regime and limited food I am looking forward to being a bit normal. I will certainly keep you all posted once I get started which I believe will be in September after my holiday and my terrible trio are back at school and I have time to sit and read and learn!

Aug 12, 2010

novorapidboi26 1,818 posts

Topic: General Discussion / I want an insulin pump

Good luck with the pump...........from stories I have heard once basal doses are sorted it starts to have positive effects.........keep us posted.....

Aug 12, 2010

Jennypenny 34 posts

Topic: General Discussion / I want an insulin pump

Good Luck Nat , when i went to my follow up on tuesday , it was agreed that i could give the pump a go ,now they have to ask for funding and fingers crosses i might be able to get one at the end of september .Let us know how you get on Nat as mine is also to treat hypos and DP

Aug 12, 2010

Frankston Ho... 1 post

Topic: Carbohydrate Counting / Sultanas

Hi, great to read the comments, yes it would be the saltana's, they are grapes, but dehydrated. You will need to incorporate the carb amount of the saltanas in the cake recipe as you do the other carb ingredients.
Nic

Aug 11, 2010

Nat 30 posts

Topic: General Discussion / I want an insulin pump

I have now been granted access to a 6 month pump/sensor trial due to my lack of hypo warnings. I was unsure at first but due to the small amounts that I eat and insulin consumption of QA usually between 8 units a day I found it hard to give myself the right amounts. I will see at the end of the trial whether it is worth continuing but anything will help to get rid of my 3/4/5 hypos a day!

Aug 11, 2010

Labsteward 6 posts

Topic: General Discussion / Carbs and cals book

Amazon have stock at about 9 pounds

Aug 11, 2010

Labsteward 6 posts

Topic: Questions ? / Insulin resistace and Alergy?

Bring back the Bovine! :-}

Aug 11, 2010

marke 655 posts

Topic: Questions ? / Insulin resistace and Alergy?

Albumin is actually protein and is most commonly found in the blood to bind multiple things like hormones, acids etc. Of course protein is found
in lots of other things like egg white which is often used in vaccines. I don't think you can say you are allegic to 'albumin', however I agree people can and are allergic to some of the ingredients used in insulin solutions. As always my reaction is to suggest you speak to you Diabetes
support Team/DAFNE team, they should be able to help confirming that it IS an allegric reaction but more importantly what the alternatives are. No one on here can tell you to change insulins this is something that needs to be done in co-ordination with your Diabetes Team.
I know a lot of people are uneasy contacting their Diabetes team, feeling they are being a nuisance, but it really is the only way to sort out issues like this and it is after all what they are there for.

Aug 11, 2010

marke 655 posts

Topic: General Discussion / Exhaustion

claire, thanks for that. It reminds me of the most important Diabetes maxim of all 'everyone is different'. My assumption was that exhaustion and diabetes are not connected because I have never come across anyone who has experienced it. However this forum has demonstrated at least 2 people HAVE experienced it. This useful to all of us on the site to know it is possible and that we are not alone if we do experience it. Hopefully it is also useful to HCP's since it shows that people do have this problem and that perhaps it is something that needs research.
Thank you both for your input, the drive behind this site is to allow DAFNE Grads to continue to share experiences and benefits of the course for more than just the follow up meetings. We obviously can't do this without user contributions and anything that helps to highlight Diabetic issues will ultimately benefit us all.

Aug 10, 2010

dragonrat 2 posts

Topic: General Discussion / Denial

I was diagnosed eight years ago after a lengthy misdiagnosis by my GP, and I'd say I've only recently come out of denial, if I have at all. I think it's just something you have to come to terms with in your own time. I only did DAFNE a week ago, but it has helped me having a logical framework to work from. I wouldn't say I've 'embraced' diabetes at all, it's more reluctant resignation, but now I'm able to eat what I want (being a total chocoholic) the punishment feeling has lessened. I gave up smoking about three years ago, after many failed attempts, by reading one of Alan Carr's books (not the alleged comic), so can recommend that method.

Leigh

Aug 10, 2010

novorapidboi26 1,818 posts

Topic: General Discussion / I want an insulin pump

I feel the same in some ways about pumps......

But after speaking to users who use them on the diabetes UK forum my opinion has been alterered.......

Som people do need them for there graduall release of insulin as well as the very small doses it can deliver to the over sensitive individuals........

If you have one just for the convenience of not injecting........I disagree......

Aug 10, 2010

David Bagnall 1 post

Topic: General Discussion / I want an insulin pump

I have to say to me the costs are of little concern, the NHS funds plenty of people who have complications through their own fault...smokers, heavy drinkers, drug addicts etc but no one is discussing the cost implications of treating these people so why are people beating themselves over the costs of a relatively cheap insulin pump.

However I have no desire to use a pump and be attached 24/7 to a device that constantly reminds me that I am diabetic...when you roll over in your sleep there it is...when you want to have sex you have to take it off (how romantic)....every time you want to get changed there it is jutting out reminding you.

With injections its over in seconds and you are free to carry on like every other human being out there.

Just my thoughts I think to a certain extent the manufactures / drug companies love expensive complicated systems as it ties in users and they have a customer for life.

Aug 9, 2010

GR156 3 posts

Topic: General Discussion / 4mm needles

Just a quick post to let people know that DB 4mm needles are avliable on prescription... Having just got mine updated...
Trialed them a few months back just after finishing my DAFNE course, so I'm not sure if they help improve my control, but they did it no harm, as for comfort, I used 5mm any way so it was negotiable. Just a case that smaller might be better...........

Aug 9, 2010

Labsteward 6 posts

Topic: Questions ? / Insulin resistace and Alergy?

I believe it has albumin in it and some people are alergic to that

Aug 9, 2010

Nat 30 posts

Topic: General Discussion / I want an insulin pump

Jennypenny
I too was always told that I had brittle diabetes but now they don't seem to use that term anymore. I have been diabetic for nearly 20 years now and am the same as you eat, inject, exercise identical days and with totally different BGs. I too am hoping to go down the pump route (and as you say they are half the size and hopefully less noisy than the original ones). Keep us posted!

Aug 9, 2010

toni 8 posts

Topic: General Discussion / I want an insulin pump

jennypenny,
please keep in touch and let us know how you get on.
and the best of luck

Aug 15, 2010 charlotte77 11 posts	Topic: Carbohydrate Counting / muesli? Hi - I am having high blood sugars three or four hours after eating muesli despite being in range beforehand. I know I'm counting the carbs properly so not sure what is going on - does anyone else have this problem?

Aug 14, 2010 Simon 574 posts	Topic: Site Development / Online BG Diaries Karl - good spot, thanks for that - that's now rectified.

Aug 14, 2010 Karl 83 posts	Topic: Site Development / Online BG Diaries Hi The built in target levels for the diary has before driving as 4.5 - I thought it had to be 5 to drive.

Aug 14, 2010 Simon 574 posts	Topic: Site Development / Online BG Diaries Garry - apologies for the delay in replying to you, I've been concentrating on the iPhone app, but now that is almost done I can revert to improving the diary on the site. You're right that request is a lot of work, but I will definitely take a look at it and see how far I can take it! Kate - First of all congratulations on your pregnancy! You raise some good points about the colour schemes and I'll certainly make some changes to make them more accessible for people who are colour blind/partially sighted. Simon

Aug 13, 2010 kategreenstreet 1 post	Topic: Site Development / Online BG Diaries I've have just started using the diary today and I have to say its very good, very easy to use and I will certainly continue to use is through my pregnancy and beyond. I have only one criticism and that is I am finding it difficult to identify my low BM's as they are highlighted the same colour as the times in blue. Is there a chance that you could change them to a different colour? I haven't read all of the entries on this forum but I wouldn't be surprised if some people are finding it difficult to tell the difference between the red and the green as well due to colour blindness. The rest is great! Kate

Aug 13, 2010 Athena 52 posts	Topic: General Discussion / Exhaustion HI Claire and MArke, You are right MArke, it would appear that everyone is different. I assumed that everyone was the same as I was and that the healthcare professionals knew that when anyone was high they struggled with going to work and everyday activities. It would appear that maybe they don't know this and we maybe need to tell them. I didn't realise that you and I are different Claire, but that is something that I have learned from this site. Wish I knew what makes the difference. I always ran my bg's low before DAFNE as I couldn't cope with a high bg at all. Suppose it is a good thing in a way as it stopped you aaveing sneaky treats or anything as just not worth it. I am aware of people feeling fine running their sugars really high too so yeah, everyone's body responds differently. Glad you have got your bg's settled Claire and hope that you continue to feel better. Another two people on my course ended up really ill after a couple of months of the DAFNE high bg's too and I think at leaset one of tehm had no tolerance for high bg's feeling tired at 12 which is when I really start to feel bad too. thanks to you both.

Aug 13, 2010 Athena 52 posts	Topic: General Discussion / Exhaustion HI Claire and MArke, You are right MArke, it would appear that everyone is different. I assumed that everyone was the same as I was and that the healthcare professionals knew that when anyone was high they struggled with going to work and everyday activities. It would appear that maybe they don't know this and we maybe need to tell them. I didn't realise that you and I are different Claire, but that is something that I have learned from this site. Wish I knew what makes the difference. I always ran my bg's low before DAFNE as I couldn't cope with a high bg at all. Suppose it is a good thing in a way as it stopped you aaveing sneaky treats or anything as just not worth it. I am aware of people feeling fine running their sugars really high too so yeah, everyone's body responds differently. Glad you have got your bg's settled Claire and hope that you continue to feel better. Another two people on my course ended up really ill after a couple of months of the DAFNE high bg's too and I think at leaset one of tehm had no tolerance for high bg's feeling tired at 12 which is when I really start to feel bad too. thanks to you both.

Aug 12, 2010 Tom G 1 post	Topic: DAFNE Online Mobile / Rationale - Please read I have a Nokia E 63 and would like to try the mobile version

Aug 12, 2010 Nat 30 posts	Topic: General Discussion / I want an insulin pump All my fingers are crossed. I have a 20 page document to read before I sign my life away and they said I will have one to one care and more whilst on the trial so hopefully it will go quite smoothly. After 19 years of being on a strict regime and limited food I am looking forward to being a bit normal. I will certainly keep you all posted once I get started which I believe will be in September after my holiday and my terrible trio are back at school and I have time to sit and read and learn!

Aug 12, 2010 novorapidboi26 1,818 posts	Topic: General Discussion / I want an insulin pump Good luck with the pump...........from stories I have heard once basal doses are sorted it starts to have positive effects.........keep us posted.....

Aug 12, 2010 Jennypenny 34 posts	Topic: General Discussion / I want an insulin pump Good Luck Nat , when i went to my follow up on tuesday , it was agreed that i could give the pump a go ,now they have to ask for funding and fingers crosses i might be able to get one at the end of september .Let us know how you get on Nat as mine is also to treat hypos and DP

Aug 12, 2010 Frankston Ho... 1 post	Topic: Carbohydrate Counting / Sultanas Hi, great to read the comments, yes it would be the saltana's, they are grapes, but dehydrated. You will need to incorporate the carb amount of the saltanas in the cake recipe as you do the other carb ingredients. Nic

Aug 11, 2010 Nat 30 posts	Topic: General Discussion / I want an insulin pump I have now been granted access to a 6 month pump/sensor trial due to my lack of hypo warnings. I was unsure at first but due to the small amounts that I eat and insulin consumption of QA usually between 8 units a day I found it hard to give myself the right amounts. I will see at the end of the trial whether it is worth continuing but anything will help to get rid of my 3/4/5 hypos a day!

Aug 11, 2010 Labsteward 6 posts	Topic: General Discussion / Carbs and cals book Amazon have stock at about 9 pounds

Aug 11, 2010 Labsteward 6 posts	Topic: Questions ? / Insulin resistace and Alergy? Bring back the Bovine! :-}

Aug 11, 2010 marke 655 posts	Topic: Questions ? / Insulin resistace and Alergy? Albumin is actually protein and is most commonly found in the blood to bind multiple things like hormones, acids etc. Of course protein is found in lots of other things like egg white which is often used in vaccines. I don't think you can say you are allegic to 'albumin', however I agree people can and are allergic to some of the ingredients used in insulin solutions. As always my reaction is to suggest you speak to you Diabetes support Team/DAFNE team, they should be able to help confirming that it IS an allegric reaction but more importantly what the alternatives are. No one on here can tell you to change insulins this is something that needs to be done in co-ordination with your Diabetes Team. I know a lot of people are uneasy contacting their Diabetes team, feeling they are being a nuisance, but it really is the only way to sort out issues like this and it is after all what they are there for.

Aug 11, 2010 marke 655 posts	Topic: General Discussion / Exhaustion claire, thanks for that. It reminds me of the most important Diabetes maxim of all 'everyone is different'. My assumption was that exhaustion and diabetes are not connected because I have never come across anyone who has experienced it. However this forum has demonstrated at least 2 people HAVE experienced it. This useful to all of us on the site to know it is possible and that we are not alone if we do experience it. Hopefully it is also useful to HCP's since it shows that people do have this problem and that perhaps it is something that needs research. Thank you both for your input, the drive behind this site is to allow DAFNE Grads to continue to share experiences and benefits of the course for more than just the follow up meetings. We obviously can't do this without user contributions and anything that helps to highlight Diabetic issues will ultimately benefit us all.

Aug 10, 2010 dragonrat 2 posts	Topic: General Discussion / Denial I was diagnosed eight years ago after a lengthy misdiagnosis by my GP, and I'd say I've only recently come out of denial, if I have at all. I think it's just something you have to come to terms with in your own time. I only did DAFNE a week ago, but it has helped me having a logical framework to work from. I wouldn't say I've 'embraced' diabetes at all, it's more reluctant resignation, but now I'm able to eat what I want (being a total chocoholic) the punishment feeling has lessened. I gave up smoking about three years ago, after many failed attempts, by reading one of Alan Carr's books (not the alleged comic), so can recommend that method. Leigh

Aug 10, 2010 novorapidboi26 1,818 posts	Topic: General Discussion / I want an insulin pump I feel the same in some ways about pumps...... But after speaking to users who use them on the diabetes UK forum my opinion has been alterered....... Som people do need them for there graduall release of insulin as well as the very small doses it can deliver to the over sensitive individuals........ If you have one just for the convenience of not injecting........I disagree......

Aug 10, 2010 David Bagnall 1 post	Topic: General Discussion / I want an insulin pump I have to say to me the costs are of little concern, the NHS funds plenty of people who have complications through their own fault...smokers, heavy drinkers, drug addicts etc but no one is discussing the cost implications of treating these people so why are people beating themselves over the costs of a relatively cheap insulin pump. However I have no desire to use a pump and be attached 24/7 to a device that constantly reminds me that I am diabetic...when you roll over in your sleep there it is...when you want to have sex you have to take it off (how romantic)....every time you want to get changed there it is jutting out reminding you. With injections its over in seconds and you are free to carry on like every other human being out there. Just my thoughts I think to a certain extent the manufactures / drug companies love expensive complicated systems as it ties in users and they have a customer for life.

Aug 9, 2010 GR156 3 posts	Topic: General Discussion / 4mm needles Just a quick post to let people know that DB 4mm needles are avliable on prescription... Having just got mine updated... Trialed them a few months back just after finishing my DAFNE course, so I'm not sure if they help improve my control, but they did it no harm, as for comfort, I used 5mm any way so it was negotiable. Just a case that smaller might be better...........

Aug 9, 2010 Labsteward 6 posts	Topic: Questions ? / Insulin resistace and Alergy? I believe it has albumin in it and some people are alergic to that

Aug 9, 2010 Nat 30 posts	Topic: General Discussion / I want an insulin pump Jennypenny I too was always told that I had brittle diabetes but now they don't seem to use that term anymore. I have been diabetic for nearly 20 years now and am the same as you eat, inject, exercise identical days and with totally different BGs. I too am hoping to go down the pump route (and as you say they are half the size and hopefully less noisy than the original ones). Keep us posted!

Aug 9, 2010 toni 8 posts	Topic: General Discussion / I want an insulin pump jennypenny, please keep in touch and let us know how you get on. and the best of luck