Recent Posts

Search the DAFNE Online Forums

15,871 posts found

Sep 13, 2010
tsavage1990 11 posts

Topic: General Discussion / loosing the plot!

ah damn, i did forget my BI - its 20 units detemir every night at half 9.

and ive been diabetic for about 17 years so i hope im not honeymooning.

the half carb point was a small sweet i knew the value of as i didnt feel safe going to bed at 5 due to frequent debillitating hypos in the nights in the past. my nurse knows of my hypounawreness, which is which i was put on dafne to give me (hopefully) more regularity
 
Sep 13, 2010
Simon 578 posts

Topic: General Discussion / loosing the plot!

Hi tsavage - first of all I've moved this topic to the General forum, as you'll get more exposure there.

Secondly, if you take a look at the forums there is a lot of mention of the 'Dawn Phenomenon', which you may be experiencing on 11/09 where your blood sugars are massively high. What was the 0.5CP at 01:55? Did you take any background insulin then as well? You don't seem to be recording when you take that - it may be that you need to up your dose of that if you are high in the morning.

Thirdly - the no symptoms of a hypo before 1.8 mmol/l is a bit of a worry - you should really speak to your DAFNE Educators/Specialist Nurses to help you get back your warning signs as they should be appearing before 1.8 mmol/l

Fourthly - you don't mention how long you have been diabetic - is it possible that you are still honeymooning? It's a lot more difficult to predict BG trends if you are in the honeymoon phase.

Sorry I can't give you a more definite answer - others may be able to based on their own experiences, however there are so many variables with diabetes - for me it just tends to be trial and error.

Simon
 
Sep 13, 2010
Heather B 20 posts

Topic: General Discussion / Introductions

Hello,

I am a recent DAFNE graduate who completed the course on the first anniversary of my diagnosis. I was diagnosed last year with type 1 at the ripe old age of 33 which appears to be pretty unusual. I was really shocked at my diagnosis and i suppose, a year on, I still am a bit! The DAFNE course was great for me as I didn't know any other diabetics before meeting the rest of my group and I'm now finding reading the posts on this forum really interesting to hear how others are coping and hearing that I'm not alone (and reassuring to read that others get some mad blood glucose readings for seemingly no reason too!) It's really good to not feel so alone.
 
Sep 13, 2010
tsavage1990 11 posts

Topic: General Discussion / loosing the plot!

i have totally lost the plot with my sugar atm, it seems to be ignoring what i do and rising and falling of its own accord. going back to uni in a month and could really do with getting it back under control
 
Sep 12, 2010
ThunderBolt 28 posts

Topic: Questions for HCPs / Rising morning BG knowing the 'Dawn' Phenomenon is not present

Not wanting tut the cat amongst the proverbial pigeons, but I'm often -  OK always - up til stupid o'clock and up again quite early. At my DAFNE course they said the dawn effect still comes around the same time regardless. From some of my results this does seem to make sense.

I'd been doing my long acting twice a day, once at 2-4pm and again at 4-5pm. I set an alarm on my phone recently to do them at 1.30am and 1.30pm. I'm still spotting or at least trying to spot patterns and changes from the previous set up. If anything my overall sugars are up throughout the day. 

Before I did DAFNE I was on a 26u and 12u. They dropped me to 6 & 6 but it seems to be climbing again. I've had some really bad morning hypos and worry about having more if I up the late one. My mam and dad worry even more than me. Heheh!

Forgive mentor droning on but the point I wanted to get to is that I was thinking whether or not taking 3 pops of slow acting a day might have a better smoother effect. Has anyone tried this? If so how did you get on?

Cheers folks!
 
Sep 12, 2010
ThunderBolt 28 posts

Topic: Site Development / DAFNE Online iPhone application - help with content/design needed

No problem at all Simon. I'm always getting asked for tech support from family and rarely know the answer. It makes a pleasant change.   Besides I don't sleep much. Heheh. 

As for the start & end business the time setting is more than sufficient. The button idea was just a spur of the moment thought and I don't have any programming knowledge so I had no idea of what's hard and what's even harder. 

I'm beginning to see a few patterns emerging now thanks to the app and logging. I just need to suss how to act on them now. 
 
Sep 12, 2010
Simon 578 posts

Topic: Site Development / DAFNE Online iPhone application - help with content/design needed

Thunderbolt - thanks for your technical support, we can't monitor the site 24/7 so keep up the good work Smile

"Further to the start/end day idea, would it be better to have a button - if that's the right word - to start or end a days entry?"

This would be quite difficult to implement, based on my knowledge of how the data is stored in the iPhone, however as an interim I can put in the option to set the 'Start/End of day' setting so you can specify that for all entries. I'll investigate to see if there is a more long-term solution as you have suggested above.
 
Sep 11, 2010
marke 686 posts

Topic: Questions for HCPs / dawn phenomenon... how to stop the rise?

Hi Stacy, thanks for the length reply ! I have scoured our forums and can't find this advice anywhere. I'm not suggesting you are wrong but... are you sure it was this site and not one of the other diabetes forums. I was just keen to ensure ANY advice like this has a disclaimer with it that says you should ALWAYS check with your DAFNE/Diabetes support team before doing something like this. We are keen for graduates to help and advise each other but this advice needs to be backed up by medical staff. We don't want people making themselves ill from advice on this site.
I accept no one knows for sure how long carbs last and it IS different in everyone, but it would be a very low GI food that lasted 24 hours ! Or I have come accross people with issues with bowel issues that cause food to be absorbed more slowly. Anyway thats an aside !
It does sound that its more likely that your closer monitoring along with the reduced dose of levimir compared to the Lantus are both factors. As I said before if its 'dawn' it should happen all the time and not only occasionally. If your 48 fast has got your BI correct then its a bit more tricky. In other forum posts its been suggested that QA is the way to tackle 'dawn' although this is difficult without a pump since you are asleep !
 
Sep 11, 2010
gasmark 2 posts

Topic: Site Development / DAFNE Online iPhone application - help with content/design needed

Thanks thunderbolt now sorted
Mark
 
Sep 11, 2010
ThunderBolt 28 posts

Topic: Site Development / DAFNE Online iPhone application - help with content/design needed

You'll have to be sure your account details are entered as well (Username and password). This is so you don't have to log in and manually upload. If you're connected to the interwobble everything goes through automatically.
You do this in the settings section as well!
 
Sep 11, 2010
ThunderBolt 28 posts

Topic: Site Development / DAFNE Online iPhone application - help with content/design needed

Hey up Mark...

If you tap the settings button at the bottom right it will show some options. In that list you'll see "upload results" just tap the on off button at the side to highlight ON and Bob's yer uncle.

Graphs are available on the sight once your results are uploaded, but having them within the app itself would be a nice bonus.

All the best fella.
 
Sep 11, 2010
gasmark 2 posts

Topic: Site Development / DAFNE Online iPhone application - help with content/design needed

Hi I've just recently started using the iPhone app
Great idea but all I can do is input readings
Then I don't know where they go?
How do you view the multiple readings?
How do you sync it with the online diary?
And any chance of incorporating graphs
Mark
Graduate 2009
 
Sep 11, 2010
stacyedgington 5 posts

Topic: Questions for HCPs / dawn phenomenon... how to stop the rise?

well it was suggested to me on here, and I did check with my doctor and they said it is an option, I just had to monitor myself very closely and I did snack on greens just no carbs and nothing with additives in so I could be as basically fasting as possible. I thought it was odd but my doctors said that there shouldnt be an issue if im not injecting QA. The thing is nobody knows exactly how long carbs have an affect on people, and it could change from person to person, thats apparently why they say 2 days, so your system is completely clear.
AAAanywhos, I do not know, I have had diabetes for... a long time, but this whole watching it thing is quite new to me, and im learning from everyone so maybe my docs were idiots, but I didnt find it too hard as I dont eat big meals anyway, so yay! haha.

Yeah I found it very strange about the fact that everyone on my course knew I was suffering from really low BG levels as I woke with the Lantus but to be honest it wasn't daily, it was happening twice a week on average, and the rest of the time i wasnt really checking my BG levels on waking up... during the DAFNE week I was, and I found that every morning it was significantly higher (around 20-24) then my evening BG levels... with no real explanation as my 2am bg levels were around the same (6-Cool as my bedtime levels. However, pre dafne my lantus dose had been 42, and on the thursday before the dafne nurses dropped me to 30, and during the dafne week to 25, which could explain why it happened so suddenly that the high levels occured, cause it was being masked by a massive dose of lantus previously that wasnt allowing the BG levels to rise?.

I am on split dose levemir yes... I think looking at my bg levels it was the obvious thing to do really and I am happy doing that extra injection for the freedom I get with it compared to Lantus. Its soooo difficult all the DAFNE stuff, such a steep learning curve hey!
 
Sep 10, 2010
marke 686 posts

Topic: Questions for HCPs / dawn phenomenon... how to stop the rise?

stacy, 'told on here to do it' ? when and by whom, it doesnt sound like very sound advice to me and I would never try it without checking with my DAFNE Educator/Diabetes Team first. I don't agree that carbs you eat can have an effect in excess of 24 hours, thats a very strange idea. I can see the benefit of a carb free meal to check BI but not 2 days of it.
I'm not sure that you can prove your its your BI or dawn apart from maybe testing at 3am, at this time your BG is usually at its lowest and
should not go lower if your BI is correct, however as always there are always exceptions. Generally dawn would kick in around 5am but again not guaranteed. This would normally push up your BG, due to hormones bouncing around getting you read to get up and start the day.
Still if you have already done the 2 day fast then at least it would give you an fairly good idea how your BI is working and as novoboi says
not sure we would have the dedication to do that ! Hopefully it was worth it.
Its also strange that you didn't get it with Lantus, since its apparently not something that comes and goes but rather something that happens consistently all the time. However Lantus is supposed to have a longer profile than levimir, so that 'might' explain. Are you on a split dose of levemir ? Since in many people including me it doesn't last 24 hours and needs splitting into 2 doses to make it 'last' the full 24 hours.
 
Sep 10, 2010
novorapidboi26 1,819 posts

Topic: Questions for HCPs / dawn phenomenon... how to stop the rise?

I dont know if i could do that...........if you take your single dose at night or if your split you can see if it works if you rise the same as you went to bed with................have you tried that............I suppose it might be hard to establish if it works if your suffering from dawn phenomonon...........oh its a hard life..................
 
Sep 10, 2010
stacyedgington 5 posts

Topic: Questions for HCPs / dawn phenomenon... how to stop the rise?

id been told on here to do it, apparently you dont eat for 2 days, and therefore dont do any of your fast acting insulin... just your BI. then you can see whether the bi is working, cause if it is you shouldnt see a rise or fall in your bg all day. they say do it for 2 days cause obviously on the first day things can still be influencing your bg's from the previous day, but by the second it should all be down to the bi. Then you can see that it definately isn't your background insulin being too low causing the rise from bed time bg levels to morning bg levels. x
 
Sep 10, 2010
ThunderBolt 28 posts

Topic: Site Development / DAFNE Online iPhone application - help with content/design needed

Sorry folks. Me again. You'll probably be getting sick of me by now but I've just had a thought and as I'll more than likely forget it it's best I post now. 

Further to the start/end day idea, would it be better to have a button - if that's the right word - to start or end a days entry? The reason I say this is that you may well get up or go to bed at different times. Especially if you work shifts for example. 
 
Sep 10, 2010
ThunderBolt 28 posts

Topic: Site Development / DAFNE Online iPhone application - help with content/design needed

Thanks for the encouragement regarding the ratios. 

BI reminders sound a great idea. Especially when you're making alterations as I for one have reverted back to a dose from a day or 2 before when I've forgot about the alteration I made. I know I know. I'm a berk. Heheh!

Thanks to you both as well for the positive feedback on the start day times. I feel like a computer programmer without the hard work or knowledge.  

Nice one Simon. Thanks again... Again!
 
Sep 10, 2010
novorapidboi26 1,819 posts

Topic: Questions for HCPs / dawn phenomenon... how to stop the rise?

2 day fast, how does that work?
 
Sep 10, 2010
stacyedgington 5 posts

Topic: Questions for HCPs / dawn phenomenon... how to stop the rise?

and well done novo!!! I just read your morning bg... awesome!!!
 
Sep 10, 2010
stacyedgington 5 posts

Topic: Questions for HCPs / dawn phenomenon... how to stop the rise?

Thank you novo...
Pre DAFNE I was on Lantus, and the exact opposite was happening... I would be waking up with lows of around 1.5, its so odd!

I've been trying everything you suggested... a pre bedtime snack with quick acting didnt make any difference, but I did do a 2 day fast and the high morning glucose levels didn't happen. So I'm wondering if it is something to do with my fast acting not being right. I am going to try eating a carb free dinner for a few days and see if that makes any difference. Im also gonna have to try and stop sleeping through my alarm at 2am and check my bg to see if it is rising or not then. They had said on the DAFNE course that I was a prime candidate for a pump as I exercise a lot and cant manage my insulin around it very well, so maybe that is an option. Anyways. Thank you so much for the advice, your a star!

Martina... I haven't ever been woken with a high, but that sounds awful! I would reccomend you taking the advice novo gave me and play around a bit with seeing what the cause is. The 2 day fast I had was hard, but it has cleared a lot up for me so i would deffo reccomend that. xx
 
Sep 10, 2010
Simon 578 posts

Topic: Site Development / DAFNE Online iPhone application - help with content/design needed

Hi both,

I usually go to bed quite late so can identify with this too. I've just submitted the latest update to the app store for approval so this won't be in that version, however should hit the next one. If I'm right - you're after a setting the say when the 'day' starts and ends - so in the settings part you could enter a time, then the diary would be grouped by periods of that time?

On the BI remembering - yep good idea, I'll put it on the list for the next version too.

Simon
 
Sep 10, 2010
novorapidboi26 1,819 posts

Topic: Questions for HCPs / dawn phenomenon... how to stop the rise?

Thats quite strange to get a high at 2am, and even stranger to be woken by it, must of been really high....

I think you should up your evening dose of background, assuming your on a split dose......if not on split I would consider it so your getting the most out of the background when you need it in the small hours...

This morning I woke up with a 9.2 which is good for me......I was 13.2 before bed, so I took 2 units of novo and actually dropped by background 4 units (i had previously increased it to try and tackle dawn).......

I am hoping I can achieve a smiliar result again.....I feel so much better this morning.........