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Sep 16, 2010
Mark2 23 posts

Topic: General Discussion / Mystery!!!!!!!!!!!!!!

Interesting novorapidboi. The main worry in that small sample is the readings you are getting in mornings - very high. Going to bed with 3.5 and waking up with 17.3. This is very unusual. It is vaguely possible that you are going LOW overnight, and you liver is releasing sugar to cover for this low. Its such a huge rise that you are seeing. Pretty dangerous I have to say. Try setting an alarm overnight and testing at 3 or 4 in the morning might help you to decipher what is going on.

As for the inconsistency over lunch - it could be a variety of things affecting this. Alcohol - excersise for example. The huge rise in the morning and its subsequent recovery will affect things also.
 
Sep 16, 2010
novorapidboi26 1,818 posts

Topic: General Discussion / Insulin Pumps

I have no direct experience with a pump but I believe it would be good for you seeing as you are so sensitive to insulin...........

The doses that can be delivered are minute........and hopefully as you adjust to getting the dose right you will see a rise in avergae sugar levels ,which might make you feel rough but will give you back your hypo awareness.......

To me is sounds like your only option to really get a hold of it........

I am a member of www.diabetessupport.co.uk....

They have a pumping section in thier forum where many a pumper is there to give advice and support, a few are using the medtronic, hope to see you there..........
 
Sep 16, 2010
Davejg 6 posts

Topic: General Discussion / Insulin Pumps

I have been diabetic for 38 years and have just been offered a pump but am really unsure about it.
I am very sensitive to insulin and 1 unit can make a huge difference. Have lost all warning signs of hypos and have been as low as 1.2 still standing but somewhat confused ,below 2 is a regular occurence and as I live on my own could be quite dangerous. I dont know why but my insulin /cp ratio changes from day to day. I work hard at trying to keep control but seem to be fighting a losing battle my HB is 8 at the moment and has rarely been much higher than that but this is only because of large swings in my blood sugars. I was told to run my blood sugars higher but this will end with nasty complications .
I have searched for information on the internet but seems very sketchy and mainly american based.
I have been told i would be getting a medtronic pump but cant find anything that usefull on the internet.
I am a bit of a techno phope have trouble with a mobile phone so god knows how i woold get on with something that is basically going to keep me alive .
Really want to know if they really are a lot better for maintaining a good and stable blood glucose.
At the moment I am just a little scared and very depressed
 
Sep 16, 2010
novorapidboi26 1,818 posts

Topic: General Discussion / I want an insulin pump

Congratulations jenny.........

The stories I have heard have been all positive........takes a while to get doses bang on but once your there you will never go back.......

I am still injecting, but depending on the next 6 months reading I think I may be enquiring....

Keep us updated............
 
Sep 16, 2010
Jennypenny 34 posts

Topic: General Discussion / I want an insulin pump

I now know that i have funding for my pump , i go and get it on the 28th of september , a little bit anxious now its getting nearer but hopefully i will see big changes . Fingers crossed .....
 
Sep 15, 2010
novorapidboi26 1,818 posts

Topic: General Discussion / Mystery!!!!!!!!!!!!!!

Dont you just love the unpredictability of diabetes....

Focusing on the post lunch readings at about 14:00.

I have the same thing for lunch everyday.......
 
Sep 14, 2010
novorapidboi26 1,818 posts

Topic: General Discussion / Introductions

Welcome maria...........thats unfortunate you couldnt get the full benefits of the course and it may be unlikely you could get any special attention from your health care proffesionals if the course is in high demand.........

Remember the course handbook is on the website, so you can read through it and ask questions as they arise on the forum, as well as graduates there are HCPs here who can give you there professional opinion. Not seen alot on here lately but that will be down to how busy they are rolling out DAFNE and attending clinics........

Glad to have you on board........feel free to ask lots of questions.........
 
Sep 14, 2010
Heather B 20 posts

Topic: Questions ? / Alternative injection sites

Hello, Its maybe a bit late to reply to this post now but I've had the same issues as you with regards to painful injection sites as I too am really thin and it is really difficult for me to find enough fat to inject comfortably in to (I also use the 6mm needles). At my DAFNE course recently a nurse had a look at my injection sites (which were all marked with purple bruises) and suggested that my injection technique could be improved to make the injections less painful. She thought that I might be injecting with too much force for such a thin area. I have since been practicing by resting the needle on my skin and then very gently but quickly sliding the needle into my skin, it still stings slightly for a few seconds afterwards but I am definitely bruising much less often and the sting doesn't last nearly as long as it did before. Perhaps you could try being more gentle with your injections too and see if it then less painful, we really don't need any force at all on thin areas as there is no real resistance there. I hope it gets easier.
 
Sep 14, 2010
maria51 22 posts

Topic: General Discussion / Introductions

Hey All, my name's Maria from Melbourne Australia. I've had Type 1 for 14 months & finished Dafne in August but can't say I "graduated" as I missed alot of what was being said because of 50% hearing loss (listening to too many live bands) but the stuff I did hear, is actually working to some extent ! Need to go back & do another stint at Dafne (with a hearing aid) as I still don't know enough to keep my BGLs stable for my satisfaction.
I just have to say that this forum, & reading how you guys give support to one another, is truly amazing ! Being partly deaf isolates me from people, but being deaf & dealing with diabetes was too much to handle as I knew no one else who had it, until I was connected to this site. WOW, now I can "listen" & learn more from all of you. I'm not isolated anymore ! ! Cheers Smile
 
Sep 14, 2010
Widster 23 posts

Topic: General Discussion / Introductions

Hi Heather,

Just to let you know that i am currently 39 years old and i was diagnosed when i was 33 too. I also went on the DAFNE course a year after diagnosis. It works well for me although my HbA1c has gone up recently as i have become a bit lazy although now trying to get it back on track. Good luck with it all. You are not alone!

Cheers,
Paul
 
Sep 14, 2010
novorapidboi26 1,818 posts

Topic: General Discussion / loosing the plot!

Cant really add to whats been said, but ask that you fire up the results again with the full diary completed......

I say that assuming you have actually eaten over the weekend, but you might not have.......

I suspect a problem with your basal (detemir) dose.......I think the dose and timing of this should be experimented on with the help of your team if you need it..........
 
Sep 14, 2010
novorapidboi26 1,818 posts

Topic: General Discussion / Introductions

Warm welcome Heather................

welcome to the club of unexplicable highs and lows....

I suppose dafne at least gives you an explanation 99% of the time......
 
Sep 14, 2010
Stew B 123 posts

Topic: General Discussion / loosing the plot!

Hi tsavage!

Is this an accurate reflection of your diary, or have you just selected some entries for this post? We talk a lot about DAFNE principles, one of which is to test every time you inject / eat (with the possible exception of the occasional snack). Without complete and accurate entries we can't identify the patterns on which we should be basing our insulin doses (how can we know whether a pattern exists if we don't have all the information?). My DAFNE team really emphasised the need to record any scrap of information because of its potential to help our understanding of how our bodies are reacting to all of the different factors which can potentially affect BG levels.

So... if this is an accurate reflection of your lifestyle (this seems unlikely, and I'm trying to avoid making a crass comment about student lifestyles - sorry) and you didn't eat or inject during the day on Saturday then clearly there are some issues there which might help to explain what's going on.

However, it seems much more likely that you either haven't tested, haven't recorded, or haven't included in this selection, all of the other food/insulin related episodes over this period. For example, you were 13.8 at 00.43 on Sunday, took a correction and were 4.8 at breakfast - not a bad result really. However, you don't indicate whether or what you ate at breakfast and/or whether you injected. You don't record lunch on Sunday (maybe you didn't have any?), but the lack of information about breakfast (and possibly lunch if you had any) makes it impossible to know what might have contributed to the your hypo at 13.50.

Sorry, this is turning into a bit of a lecture (no pun intended). I just want to emphasise that the beauty of DAFNE is in its logic - but you need all of the information you can get in order to apply the principles. I know that my DAFNE team would tell me to make a concerted effort to record everything for a few days to try to fully understand what's going on.

Good luck!

Stew
 
Sep 13, 2010
HelenP 218 posts

Topic: General Discussion / loosing the plot!

Hi tsavage,

When my BG's take off with a mind of their own I find it useful to go right back to first principles for a couple of days to a week. It is a bit boring but eating the same quantity of carbs (in effect the same meals) and doing similar amounts of activity and more tests usually gives me enough data to start fiddling with doses again. My diabetes seems to have periods where things run fairly smoothly and then for no reason (that I am aware of) they are off!. My TDD can vary over these periods by upto 15%. Good luck (especially with the hypo awareness).
Helen
 
Sep 13, 2010
tsavage1990 11 posts

Topic: General Discussion / loosing the plot!

ah damn, i did forget my BI - its 20 units detemir every night at half 9.

and ive been diabetic for about 17 years so i hope im not honeymooning.

the half carb point was a small sweet i knew the value of as i didnt feel safe going to bed at 5 due to frequent debillitating hypos in the nights in the past. my nurse knows of my hypounawreness, which is which i was put on dafne to give me (hopefully) more regularity
 
Sep 13, 2010
Simon 574 posts

Topic: General Discussion / loosing the plot!

Hi tsavage - first of all I've moved this topic to the General forum, as you'll get more exposure there.

Secondly, if you take a look at the forums there is a lot of mention of the 'Dawn Phenomenon', which you may be experiencing on 11/09 where your blood sugars are massively high. What was the 0.5CP at 01:55? Did you take any background insulin then as well? You don't seem to be recording when you take that - it may be that you need to up your dose of that if you are high in the morning.

Thirdly - the no symptoms of a hypo before 1.8 mmol/l is a bit of a worry - you should really speak to your DAFNE Educators/Specialist Nurses to help you get back your warning signs as they should be appearing before 1.8 mmol/l

Fourthly - you don't mention how long you have been diabetic - is it possible that you are still honeymooning? It's a lot more difficult to predict BG trends if you are in the honeymoon phase.

Sorry I can't give you a more definite answer - others may be able to based on their own experiences, however there are so many variables with diabetes - for me it just tends to be trial and error.

Simon
 
Sep 13, 2010
Heather B 20 posts

Topic: General Discussion / Introductions

Hello,

I am a recent DAFNE graduate who completed the course on the first anniversary of my diagnosis. I was diagnosed last year with type 1 at the ripe old age of 33 which appears to be pretty unusual. I was really shocked at my diagnosis and i suppose, a year on, I still am a bit! The DAFNE course was great for me as I didn't know any other diabetics before meeting the rest of my group and I'm now finding reading the posts on this forum really interesting to hear how others are coping and hearing that I'm not alone (and reassuring to read that others get some mad blood glucose readings for seemingly no reason too!) It's really good to not feel so alone.
 
Sep 13, 2010
tsavage1990 11 posts

Topic: General Discussion / loosing the plot!

i have totally lost the plot with my sugar atm, it seems to be ignoring what i do and rising and falling of its own accord. going back to uni in a month and could really do with getting it back under control
 
Sep 12, 2010
ThunderBolt 28 posts

Topic: Questions ? / Rising morning BG knowing the 'Dawn' Phenomenon is not present

Not wanting tut the cat amongst the proverbial pigeons, but I'm often -  OK always - up til stupid o'clock and up again quite early. At my DAFNE course they said the dawn effect still comes around the same time regardless. From some of my results this does seem to make sense.

I'd been doing my long acting twice a day, once at 2-4pm and again at 4-5pm. I set an alarm on my phone recently to do them at 1.30am and 1.30pm. I'm still spotting or at least trying to spot patterns and changes from the previous set up. If anything my overall sugars are up throughout the day. 

Before I did DAFNE I was on a 26u and 12u. They dropped me to 6 & 6 but it seems to be climbing again. I've had some really bad morning hypos and worry about having more if I up the late one. My mam and dad worry even more than me. Heheh!

Forgive mentor droning on but the point I wanted to get to is that I was thinking whether or not taking 3 pops of slow acting a day might have a better smoother effect. Has anyone tried this? If so how did you get on?

Cheers folks!
 
Sep 12, 2010
ThunderBolt 28 posts

Topic: Site Development / DAFNE Online iPhone application - help with content/design needed

No problem at all Simon. I'm always getting asked for tech support from family and rarely know the answer. It makes a pleasant change.   Besides I don't sleep much. Heheh. 

As for the start & end business the time setting is more than sufficient. The button idea was just a spur of the moment thought and I don't have any programming knowledge so I had no idea of what's hard and what's even harder. 

I'm beginning to see a few patterns emerging now thanks to the app and logging. I just need to suss how to act on them now. 
 
Sep 12, 2010
Simon 574 posts

Topic: Site Development / DAFNE Online iPhone application - help with content/design needed

Thunderbolt - thanks for your technical support, we can't monitor the site 24/7 so keep up the good work Smile

"Further to the start/end day idea, would it be better to have a button - if that's the right word - to start or end a days entry?"

This would be quite difficult to implement, based on my knowledge of how the data is stored in the iPhone, however as an interim I can put in the option to set the 'Start/End of day' setting so you can specify that for all entries. I'll investigate to see if there is a more long-term solution as you have suggested above.
 
Sep 11, 2010
marke 655 posts

Topic: Questions ? / dawn phenomenon... how to stop the rise?

Hi Stacy, thanks for the length reply ! I have scoured our forums and can't find this advice anywhere. I'm not suggesting you are wrong but... are you sure it was this site and not one of the other diabetes forums. I was just keen to ensure ANY advice like this has a disclaimer with it that says you should ALWAYS check with your DAFNE/Diabetes support team before doing something like this. We are keen for graduates to help and advise each other but this advice needs to be backed up by medical staff. We don't want people making themselves ill from advice on this site.
I accept no one knows for sure how long carbs last and it IS different in everyone, but it would be a very low GI food that lasted 24 hours ! Or I have come accross people with issues with bowel issues that cause food to be absorbed more slowly. Anyway thats an aside !
It does sound that its more likely that your closer monitoring along with the reduced dose of levimir compared to the Lantus are both factors. As I said before if its 'dawn' it should happen all the time and not only occasionally. If your 48 fast has got your BI correct then its a bit more tricky. In other forum posts its been suggested that QA is the way to tackle 'dawn' although this is difficult without a pump since you are asleep !
 
Sep 11, 2010
gasmark 2 posts

Topic: Site Development / DAFNE Online iPhone application - help with content/design needed

Thanks thunderbolt now sorted
Mark
 
Sep 11, 2010
ThunderBolt 28 posts

Topic: Site Development / DAFNE Online iPhone application - help with content/design needed

You'll have to be sure your account details are entered as well (Username and password). This is so you don't have to log in and manually upload. If you're connected to the interwobble everything goes through automatically.
You do this in the settings section as well!