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Apr 2, 2009
digth 19 posts

Topic: Questions for HCPs / Type 2 & DAFNE

Hi

this is a question that we get asked alot via the dafne.uk.com website; and marke's response pretty much covers it, however below is the standard response from the DAFNE Drs and Educators on the DAFNE Executive Group that we use:

The evidence base for DAFNE relates entirely to Type 1 diabetes; we do not know of any evidence that supports the use of intensive insulin therapy in Type 2 diabetes.

Having said that, several of my colleagues have either knowingly or unknowingly included a few Type 2 / Type ? patients on their DAFNE courses. Those knowingly placed on courses have been insulin deficient / sensitive. Some of these patients did appear to do quite well on DAFNE although some reported weight gain, however these are only observational comments.

However my colleagues also reported that it is a very different situation when the patient is insulin resistant these patients have very different needs which disrupted the learning of the other group members with Type 1 diabetes during the DAFNE week. One of my colleagues commented that their service tends to offer 1 to 1 education for such patients where they obtain carb counting skills from a specialist Dietitian DAFNE Educator, with emphasis on portion size reduction, lifestyle choices and weight loss as well as improving glycaemic control.

My colleagues agree that whilst we do not have any evidence to support beneficial outcomes for Type 2 insulin sensitive/ deficient patients following a DAFNE course, individuals should discuss the appropriateness of participating in DAFNE training with their local team. Although it is not a situation where an absolute dictum can be applied but in general the approach of matching insulin to food works best if pure insulin deficiency is the underlying cause of the diabetes although generally the different disorders require different approaches to management.
 
Apr 1, 2009
Damo 7 posts

Topic: General Discussion / More forums ?

Hi Simon
Thanks for implementing that feedback.
I notice that you have also put an average for the last 7/14/30 days up there as well. Think thats a really good idea.
Im really finding this site useful, thanks again!!
D.
 
Mar 30, 2009
Keith Shaw 3 posts

Topic: Site Development / Site attendance

Simon, i am well impressed. I hope everyone finds it as useful as i do. Can't see what else you have in store for the site.

Keith
 
Mar 30, 2009
Simon 578 posts

Topic: Site Development / Site attendance

Update: The 7,14,30 day averages and counts are now shown to the right of the BG Diary View, and the total number of stored entries is shown under the date picker fields near the top of the view.

Your feedback as always is much appreciated.

Simon
 
Mar 30, 2009
Simon 578 posts

Topic: Site Development / Site attendance

Hi Keith,

You raise some great points here:

7,14,30 day averages - Yes i agree that these would be valuable. I'll get started on this and update this post when it's done.
Counts - As above, will update you when this is done.
HbA1c - This will involve adding another module to the site; whilst possible it will take a little longer.
Export functions - These have been requested a few times - again they are a little more complicated than the first two, however they are on the radar and will appear eventually - when they do we'll announce via the forums.

Thanks,

Simon
 
Mar 29, 2009
Keith Shaw 3 posts

Topic: Site Development / Site attendance

Hi Simon, iv'e taken a look at the time stamps and like what i see. I also like the new graphs you have added.

I don't know if the following would a good idea or not but i use an Accu-Chec Compact Plus monitor and it has the ability to display the last 7, 14 & 30 days average test readings along with the total number of tests done over the period (i don't know if other testers do the same or not, i just know my previous testers didn't). I was just woundering if something like this could be added and if it would be usefull to other members. I know it's in noway accurate but the 30 day average seems to give me a ball park figure as to what my HbA1c is running at (may not be the same for everyone). Oh sorry about this but speaking of the HbA1c readings do you have any plans to add the ability to record these on the existing diary (or creating it's own diary & graphs). I know they are not done as often as the daily readings but if everyone else is similar i seem to only remember the last few readings and i, for 1, plan to be using this site for some time to come (solong as my life span permits :-) ). Do you also plan for any kind of export function to be added to the diary, say to csv or xls file?

Sorry if i'm a pain for enquiring on all the above but i too work in IT and do quite a bit of testing on our software.

Regards,

Keith
 
Mar 29, 2009
Carl 5 posts

Topic: Site Development / Online BG Diaries

Like Louisa I too was running out of space in my physical DAFNE diary and was planning on first creating a PDF version so I could print some new sheets when I needed to and then at some later stage, being a web developer myself, creating an online DAFNE diary.

Luckily you chaps have saved me some work and have done a great job!

One feature which would be useful (and I think easy to implement) would be an option to download entered diary data as an Excel spreadsheet, CSV or XML file? This would prove useful for allowing users to create personal backups of their valuable test results as well as allowing them to use Excel's powerful graphing functions to produce any ad-hoc charts they might need?

Anyway, the current online diary gets a big thumbs up from me although to be fair, I've only just started using it.
 
Mar 29, 2009
Carl 5 posts

Topic: DAFNE Online Mobile / Rationale - Please read

I have a Nokia E51 which has web access and a screen resolution of 240x320 and would be happy to trial any mobile version of the website and report my findings.
 
Mar 29, 2009
Simon 578 posts

Topic: General Discussion / More forums ?

Hi Damo,

We've now added trending charts to the online BG diary - these plot BG readings over time as well as your average BG reading at different times of the day. If there are other charts you'd like to see then let us know and we'll get started on them ASAP.

Thanks,

Simon
 
Mar 29, 2009
Simon 578 posts

Topic: Site Development / Online BG Diaries

Update to the online BG diary charts - we now have trending charts available which show your BG Readings over time, as well as your average readings at different times of the day. Find the links to these underneath the display of your BG diary online.

If anyone has feedback/suggestions of other charts/BG Functions then post here and we'll get started on them ASAP.

Thanks,

Simon
 
Mar 29, 2009
Simon 578 posts

Topic: Site Development / Site attendance

Keith - Thanks for your feedback, there's now a time stamp next to each comment in the BG Diary view. Check it out and let me know what you think.

Thanks,

Simon
 
Mar 27, 2009
marke 686 posts

Topic: Site Development / Site attendance

Rebecca,
Goggle analytics is aimed at marketing and advertising not really increasing ranking which works a different way. Also we are not trying to get top of google, the site is primarily for DAFNE graduates NOT general web users. A high ranking will let graduates find us but their course organisers should be telling them anyway (hopefully).

Keith,
No plans to add links to the evil empires I don't think ;-) My personal view is social network sites are just a marketing tool to part people with personal information, but then I work in IT and have to fight the spam generated by them everyday :-( Anyway this is a site for DAFNE Graduates, if people want to communicate with each other great but its down to them how to do it, we don't need to endorse or advertise these sites which are already popular enough. We do take on board comments for site improvements and will try time permitting to implement suggestions.
 
Mar 27, 2009
Keith Shaw 3 posts

Topic: Site Development / Site attendance

Hi,
Joined the site a couple of days ago, after attending the 1 year Dafne review in Sheffield, and think it's great. I do have 1 question. In the BG diary, is there no way to add the time against the comments so you can see which of that days entries they relate to. Apart from that site looks GOOD.

Oh sorry 1 other thing, are you intending to add any links to social network sites such as facebook, twitter or MSN to mention a few?

Simon, thanks for the web site. I can see it only getting better and better as more people sign up.

Regards

Keith
 
Mar 25, 2009
Simon 578 posts

Topic: DAFNE Online Mobile / Mobile Feature Requests

Hi,

We've had requests from a number of users for support for the site on their mobile devices - which I think would be a great thing to have. One thing I'd like to know is which exact features you'd like to access on your mobile - the Diary, CP List, Forums? - What's most important for you? Please post below.

Also, see mark's 'Sticky' topic in this forum to specify which device you use so we include it in our plans for development.

Thanks,

Simon
 
Mar 25, 2009
Stew B 125 posts

Topic: DAFNE Online Mobile / Rationale - Please read

OK... I have an HTC S620 with Windows Mobile. I get the phone as part of my broadband deal, and can't say that I'm exactly a whizz when it comes to getting the best out of it, but I'd like to give it a try!
 
Mar 23, 2009
marke 686 posts

Topic: DAFNE Online Mobile / Rationale - Please read

We have received a requests for versions of DAFNE Tools that could be used on a mobile phone running a web browser. Many mobile phones these days are capable of doing this since they all have internet connectivity built in and are being used more and more for 'mobile' applications.

The problem is each type of phone has its own web browser which tends to be something produced by the phone maker and not a standard web browser like Internet Explorer, Firefox, Chrome, Opera or Safari. If we are going to produce a mobile version of the site then we are going to need people to help us test it on their mobiles. We don't have the resources to be able to test on a number of mobile devices ourselves. Thats where you all come in.

If you are interested in a mobile version of the site, please respond to this topic. Please also indicate if you are prepared to test the beta versions as we produce them. If you are prepared to help test the site on your phone then in your post tell us the make and model of your phone.

For example , I have a HTC TYTN II ( o2 call it an XDA stellar, T-Mobile call it MDA Vario III) that runs windows mobile 6. Simon I believe has an iphone, so we have two potential platforms covered but there are lots and lots of others. So all you nokia, sony ericsson etc people get posting.
 
Mar 23, 2009
Damo 7 posts

Topic: General Discussion / More forums ?

Have you ever had one of those constant monitoring systems fitted which plots your levels 24/7?
It plots a line graph and allows you to program in when you ate, done exercise etc. As you have nearly all of this information (and its easy to put comments in as well) you could show a similar line graph plotting points over time.
These could then be used to plot trends which would be really helpful in spotting what dosage you should be adjusting. i.e if you are always high before lunch it points at adjusting your breakfast levels.
It would also be a "reward" as such to try and get some consistent data in to the graph that you could actually help with adjustments.
Because Im not a great testing fan, maybe its just that I would like to be able to do more with the data when i do enter it....!
Thanks, D
 
Mar 22, 2009
Simon 578 posts

Topic: General Discussion / More forums ?

Hi Damo,

The 'Site Development' forum is the one for putting on requests for new features and suchlike, but it's OK to post here too Smile

What would you like to see from the graphical representations on the BG diary? These should be fairly easy to put in, but we need to know what data you'd like plotted - can you provide more information on this?

Thanks,

Simon
 
Mar 22, 2009
Damo 7 posts

Topic: General Discussion / More forums ?

Hi
I was trying to leave a recommendation but it appears the other forum is locked for this. Perhaps you should have one for general feedback / suggestions (or have i missed it)?
I was going to recommend a few more graphical representations to show historical readings of the data. The graph idea is great but i think there is so much more to draw from this.
The site is really helping me to record things which I never used to do, but to keep up my motivation I would like to see the results that I could manipulate a little more. Line graphs, historical charts, trends etc.
Good luck...!
 
Mar 20, 2009
Damo 7 posts

Topic: General Discussion / Introductions

Hi Im Damian
I am from Penzance originally but now living in London i was introduced to the DAFNE course last March in Chelsea & Westminster.
I would like to say how motivational the staff were, and how much Alison and Miranda devote their time and efforts to DAFNE. Its apparent it is not just a job, and that firstly encouraged me on to the course and secondly made me feel comfortable and confident dealing with the change.
I found out i had diabetes at 15, and that means next year will be 20 years. I was the first patient my doctor diagnosed, and I will never forget the look on his face when I entered his room at the end of surgery saying I had a drink problem. One way to explain the symptoms of dehydration!

A few hospital hypos and one episode of keytoaci.... whatever its called after and DAFNE came along to rescue me.
I am one that has found DAFNE not so much of a lifestyle change (as I have always tended to do what i wanted to do), but more of a liberation. I was able to exercise and loose weight, which before was thwarted with hypos dealt with by chocolate indulgence, or standing in front of the fridge until I felt better. DAFNE does mean more of a choice and control - I think the slogan should be "feel normal again".
I would recommend DAFNE to anyone who is in need of understanding why there is a need to test. It certainly helps to understand what to do with the results which before were meaningless.

Thanks for setting up this group, I had tried myself to do a social network for members on our course and we did manage meeting up a few times, but this chart and graph analysis as well as the forums is exactly what I need to keep me motivated and to better manage my diabetes.
Damian.W
 
Mar 19, 2009
patdarby 1 post

Topic: Questions for HCPs / Dieting

Now I have managed to keep my blood sugar under control does anyone have a diet sheet I can use? I need to lose at least 1/2 a stone. Thanks
 
Mar 18, 2009
Amy 2 posts

Topic: General Discussion / Introductions

Hi

I'm Amy, I did DAFNE in April 2007 in Norwich. I was diagnosed as type 1 in 2004 at the age of 21. I was studying in America when I became ill and lost a lot of weight but it wasn't until I returned to the UK that I got myself to the doctors and was diagnosed, just in time for my final year of uni!

Pre DAFNE I think I rebelled a bit against being diabetic, very determined that I wasn't going to let it affect me to such an extent that I nearly ignored it at times. Since DAFNE I have had far better control of my diabetes and I'm so pleased I had the oportunity to do the course. I also took up running after DAFNE and completed my first half marathon last year, currently training for a 10k in 3 1/2 weeks time.
 
Mar 17, 2009
Simon 578 posts

Topic: Site Development / On line carb counter

Hi Mike,

This has been sorted out now and the Carb Counter now shows 20 entries per page.

Thanks for the feedback,

Simon
 
Mar 17, 2009
marke 686 posts

Topic: Site Development / On line carb counter

yes we could, I will take a look at changing it.
 
Mar 17, 2009
marke 686 posts

Topic: Carbohydrate Counting / Useful link for looking up CPs

Well I agree it would be nice to be able to access via a mobile. We maybe need to look at have a cut-down version to display on mobiles, its possible just a question of the time to do it. What kind of phone are you trying to view it on ? There are so many types and phone browsers.

The download to phone version is a bit more tricky. It would need to be java based which is a different development system to the web site. Again if time permits we would love to do something like this, but at the moment its not something I think we have the resources to do. We will let people know if we are working on something like this, so we can ensure it is what is needed.