Recent Posts - DAFNE Online

Sep 29, 2010

Richard 2 posts

Topic: General Discussion / Giving Blood

I do find this a little strange as to why we cannot give blood. Is our blood any different then?

Sep 29, 2010

Karl 83 posts

Topic: Site Development / DAFNE Online iPhone application - help with content/design needed

Auto populate gets my vote - they if you have adjusted - you don't have to remember to change the default - one other bug not sure if it was there before or a new one - if you press the + for a new diary entry then the cancel it still does an entry

Sep 29, 2010

Simon 574 posts

Topic: Site Development / DAFNE Online iPhone application - help with content/design needed

A question for you guys - how do you want the app to populate the BI value? There's a couple of ways that I can think of:

1. Add a field to each of the entry types in the target page, allowing you to specify the default BI for that time of day
2. The app can automatically look up your last used BI for that entry type and populate the field with that

Any thoughts on the above options?

Sep 29, 2010

Simon 574 posts

Topic: Carbohydrate Counting / Iphone Apps

The app has now been updated to fix the issues you mentioned Brien, and is available on the app store

Sep 29, 2010

Simon 574 posts

Topic: Site Development / DAFNE Online iPhone application - help with content/design needed

The latest version of the app (1.1.1) is now on the app store, fixing some of the above bugs. This new version:

Added the ability to specify when you go to bed, so that bedtime entries will appear in the correct diary day.
Also fixed the following two bugs:
Users couldn't view the last entries in the list of diary entry types
The app would crash if the user tried to delete the first row in the diary view (link to summary).

Let us know if you find any problems with it. Also if you do like the app, please remember to rate it on the app store!

Simon

Sep 28, 2010

niamh 3 posts

Topic: General Discussion / Split background insulin

hi, I just wanted to add that I had the same problem when I was on Lantus. The hospital advised me to have lunch and then eat no cps for the next 5 hours(if your on novorapid) and then check your sugars. Check them an hour later still without eating any cps to check what's happening when your QA has ran out and if they've risen you need to split your longacting insulin as it's not being effective at controlling your fasting sugars. I had to do that twice just to confirm that it was definately running out in the evening. I just wanted to suggest it so you'll be able to show it to your dafne team at your checkup.

Sep 28, 2010

HelenP 218 posts

Topic: Questions ? / wound healing

Thanks Simon,

In spite of my best efforts the BGs are not as good as they have been and I am currently having multiple (up to 8-10) injections a day (the pump you have when you don't have a pump). I have largely kept myself out of trouble (a few hypos in the early mornings) but living this way is no fun. The higher readings are also having an effect on my confidence to manage the diabetes. The reason I am doing the multiple injections (and multiple tests) is that there simply is no pattern to base increases on. I have also modified my eating in that I do not eat anything that I do not have a carb label to dictate the insulin.

The pit/sinus is not infected. So I am really only dealing with the lack of healing (I think).

Thanks for the encouragement. I will keep you all posted.
Helen

Sep 28, 2010

Simon Heller 46 posts

Topic: Questions ? / wound healing

Hi Helen
I am no surgeon but Marke is right. Longstanding diabetes doesn't affect healing unless your blood glucose control is uneven with lots of high glucose values. The cells which fight infection (and those leading to healing and the formation of scar tissue), unsurprisingly work most effectively at a glucose of 5-8 mmol/l. I guess a poor blood supply might also increase the chances of infection but not in the site you mention. If you had impaired kidney function from diabetes that might also add to susceptibility but I guess that isn't an issue there. the low grade infection could be adding to your insulin requirements as well as a bit of emotional stress but as you say insulin doses should fall as things resolve, indeed, this might be the first sign that the infection is improving. I think you are doing all the right things. ATB Simon

Sep 28, 2010

Luggerz 10 posts

Topic: Carbohydrate Counting / Iphone Apps

I've got the Carbs and Cals app and the Dafne app. Just started to load results into the Dafne App and when I try to load results for yesterday it crashes.

Marc

Sep 27, 2010

marke 655 posts

Topic: Questions ? / wound healing

Helen, i would say your altered insulin requirement is almost certainly do to what you are going through. The stress both emotionally and physically is bound to be having an effect. Its good to hear you GP is supportive but it would be good to hear a Diabetes Consultants take on all of this. There are a lot of factors involved here and its an area where someone with a deep understanding of Diabetes and the effects of things like surgery etc could provide valuable input. They could also probably give you an idea how long the effects on your insulin requirements might last. Perhaps your DAFNE Educator can help with some information ?
I can only wish you well with your recovery and ask that you keep us posted on your progress.

Sep 27, 2010

marke 655 posts

Topic: Site Development / DAFNE Online iPhone application - help with content/design needed

now come on Karl, your just being silly now. I rate Simons abilties but more than angry birds ? Its just not possible to use anything more than
that unless of course you have completed ALL the levels ;^)

Sep 27, 2010

SimonC 78 posts

Topic: Carbohydrate Counting / Iphone Apps

I bought the book about 4 months ago - and used it a load when on holiday - eating out a lot, it was very useful.

Sep 27, 2010

marke 655 posts

Topic: Carbohydrate Counting / Iphone Apps

there is, if you want to spend Â£4.99 for something you will be able to get free in the near future (without the pictures of course) feel free too.
Personally I think Â£4.99 for an iphone app is more than a little excessive.

Sep 27, 2010

Becki 1 post

Topic: Carbohydrate Counting / Iphone Apps

Hi, there's an app called carbs and cals it's based on a book of the same name, the app is Â£4.99 and I highly recommend it......if u r not sure have a nose at the actual book in whs or waterstones

Sep 27, 2010

Karl 83 posts

Topic: Site Development / DAFNE Online iPhone application - help with content/design needed

Have to congratulate you on this app - by far the most used app on my phone (even more than angry birds :-)) - the keypad entry changed it totally for me. Not using my written diary anymore.

Sep 27, 2010

Jennifer Iden 11 posts

Topic: Site Development / DAFNE Online iPhone application - help with content/design needed

Upgrade to the the iPhone ap makes recording so much simpler, thanks! Although like Karl, I have found that if I change my insulun intake the ratio doesn't update unless I delete the entry and submit a second time...

Sep 27, 2010

Steven 18 posts

Topic: Site Development / Online BG Diaries

Having said that, the second page of readings were accepted without complaint! :-/

Sep 27, 2010

Steven 18 posts

Topic: Site Development / Online BG Diaries

Hi Simon,

I don't seem to be able to leave the date field blank in the diary any more - has something broken?!!?

Thanks
Steven

Sep 27, 2010

Dr Jez McCole 11 posts

Topic: Site Development / DAFNE Online iPhone application - help with content/design needed

Developments and updates really making the app quicker and easier to use thanks Simon. The recalculation of the ratio would be a good tweak.
The summary stats are really nice. Any chance of average by entry type, such as average before lunch, average before tea etc? Thanks. I'm DAFNE'ing again!!
Jez

Sep 26, 2010

Simon 574 posts

Topic: Carbohydrate Counting / Iphone Apps

Hi Brien, thanks for letting me know about that - it's already been raised by other users, so I've submitted a fix to the Apple store, should be appearing on shelves in the next couple of days.

Sep 26, 2010

Peter 103 posts

Topic: Questions ? / High bgl in the morning.

Paula,
I would suggest that your evening dose of Levemir is beginning to run out before your morning dose becomes effective, especially when the eveing does is taken between 20:00 and 21:00 (as in most days above) but the morning dose varies between 08:00 and 12:00. That combined with the dawn effect is causing yo to have insufficient insulin available in the early morning. You say that you've increased the evening Levemir, but that resulkts in low sugars, but don't explain when. The one example shown has a low(ish) reading at 12:30 which could be more to do with the correction at 09:30 than too much Levemir.
I know that I found it much easier to achivee more consistent control if I kept the timing of my morning dose of Levemir consistent on weekdays and weekends. It is a bit of a pain having to set the alarm to get up early on Saturday and Sunday just to have an injection, but the resuklts have made it worthwhile, and going back to sleep afterwards is not too difficult.
If it were me, I'd stick with the increased Levelmir does in the evening, and find a consistent time to inject in the morning to see if that helps. NB. That would be nearer 08:00 than 12:00 as, for me, it's effects do reduce after 12 hours.
Good luck.

Sep 26, 2010

HelenP 218 posts

Topic: Questions ? / wound healing

Thanks, Marke,
I don't see anyone at the hospital but I do have a private endocrinologist. When the surgery was scheduled I was between endocrinologists (the old one...I had had him for thirty two years, retired!) I have seen the new one since the surgery and he (Dafne supporter) was happy to leave "the pit" to the surgeon. I understand that the absolute last resort is a surgical repair but according to the surgeon (saw him a week ago and am scheduled to see him in another 3 weeks) says we are a long way from that. He said that what the GP was doing was what he would do!

I really like my GP. He is a bit rattled by Dafne and my propensity to fiddle with doses but other than that he asks appropriate questions and seems happy to leave it to me and the endocrinologist. The GP has not suggested I go back to the endocrinologist for advice over the "pit". (Do you detect my absolute frustration?)

My need for insulin seems to vary quite a bit. Two weeks after surgery (eating as usual) my TDD was 85-88 currently it is over 105! I have about 10CPs a day. I was relieved and confident. I trust it will drop back to somewhere around 90 in the not too distant future.

The GP is supportive of the Dafne protocols and I suspect he has done his homework since taking me on. Currently I am attending his surgery twice a week and under his supervision/direction it (the pit) is being attended to by a nurse. I can't do it at home...not enough hands. His assessment is that it is not getting any better but it is also not getting worse. It is not infected. Any advice I get from here I will discuss with the GP.

Emotionally this is throwing me. The surgery was for cancer (no radiation/no chemotherapy) and the diagnosis was followed a week later by the surgery. It is probably more complicated than just "the pit". This situation is also probably not helping my BGs.

I have just reread this and it looks a bit like a dog's breakfast but I hope it is all there.

Thanks for the psychotherapy!

Helen

Sep 26, 2010

oilly 2 posts

Topic: Carbohydrate Counting / porridge

I have porridge oats every morning for breakfast, my counting and dose works well for me, 40 grams of dried oats is 3 CPs, throw in a handful of raisins (25g to be precise) and that's another 1.5 CPs, add half an apple and half a nectarine another 1 CP, a dollop of natural yogurt another 1/2 CP, a teaspoon honey, 1/2 Cp and your milk another 1/2 CP, total value='s 7CPS and yummy

Sep 29, 2010 Richard 2 posts	Topic: General Discussion / Giving Blood I do find this a little strange as to why we cannot give blood. Is our blood any different then?

Sep 29, 2010 Karl 83 posts	Topic: Site Development / DAFNE Online iPhone application - help with content/design needed Auto populate gets my vote - they if you have adjusted - you don't have to remember to change the default - one other bug not sure if it was there before or a new one - if you press the + for a new diary entry then the cancel it still does an entry

Sep 29, 2010 Simon 574 posts	Topic: Site Development / DAFNE Online iPhone application - help with content/design needed A question for you guys - how do you want the app to populate the BI value? There's a couple of ways that I can think of: 1. Add a field to each of the entry types in the target page, allowing you to specify the default BI for that time of day 2. The app can automatically look up your last used BI for that entry type and populate the field with that Any thoughts on the above options?

Sep 29, 2010 Simon 574 posts	Topic: Carbohydrate Counting / Iphone Apps The app has now been updated to fix the issues you mentioned Brien, and is available on the app store

Sep 29, 2010 Simon 574 posts	Topic: Site Development / DAFNE Online iPhone application - help with content/design needed The latest version of the app (1.1.1) is now on the app store, fixing some of the above bugs. This new version: Added the ability to specify when you go to bed, so that bedtime entries will appear in the correct diary day. Also fixed the following two bugs: Users couldn't view the last entries in the list of diary entry types The app would crash if the user tried to delete the first row in the diary view (link to summary). Let us know if you find any problems with it. Also if you do like the app, please remember to rate it on the app store! Simon

Sep 28, 2010 niamh 3 posts	Topic: General Discussion / Split background insulin hi, I just wanted to add that I had the same problem when I was on Lantus. The hospital advised me to have lunch and then eat no cps for the next 5 hours(if your on novorapid) and then check your sugars. Check them an hour later still without eating any cps to check what's happening when your QA has ran out and if they've risen you need to split your longacting insulin as it's not being effective at controlling your fasting sugars. I had to do that twice just to confirm that it was definately running out in the evening. I just wanted to suggest it so you'll be able to show it to your dafne team at your checkup.

Sep 28, 2010 HelenP 218 posts	Topic: Questions ? / wound healing Thanks Simon, In spite of my best efforts the BGs are not as good as they have been and I am currently having multiple (up to 8-10) injections a day (the pump you have when you don't have a pump). I have largely kept myself out of trouble (a few hypos in the early mornings) but living this way is no fun. The higher readings are also having an effect on my confidence to manage the diabetes. The reason I am doing the multiple injections (and multiple tests) is that there simply is no pattern to base increases on. I have also modified my eating in that I do not eat anything that I do not have a carb label to dictate the insulin. The pit/sinus is not infected. So I am really only dealing with the lack of healing (I think). Thanks for the encouragement. I will keep you all posted. Helen

Sep 28, 2010 Simon Heller 46 posts	Topic: Questions ? / wound healing Hi Helen I am no surgeon but Marke is right. Longstanding diabetes doesn't affect healing unless your blood glucose control is uneven with lots of high glucose values. The cells which fight infection (and those leading to healing and the formation of scar tissue), unsurprisingly work most effectively at a glucose of 5-8 mmol/l. I guess a poor blood supply might also increase the chances of infection but not in the site you mention. If you had impaired kidney function from diabetes that might also add to susceptibility but I guess that isn't an issue there. the low grade infection could be adding to your insulin requirements as well as a bit of emotional stress but as you say insulin doses should fall as things resolve, indeed, this might be the first sign that the infection is improving. I think you are doing all the right things. ATB Simon

Sep 28, 2010 Luggerz 10 posts	Topic: Carbohydrate Counting / Iphone Apps I've got the Carbs and Cals app and the Dafne app. Just started to load results into the Dafne App and when I try to load results for yesterday it crashes. Marc

Sep 27, 2010 marke 655 posts	Topic: Questions ? / wound healing Helen, i would say your altered insulin requirement is almost certainly do to what you are going through. The stress both emotionally and physically is bound to be having an effect. Its good to hear you GP is supportive but it would be good to hear a Diabetes Consultants take on all of this. There are a lot of factors involved here and its an area where someone with a deep understanding of Diabetes and the effects of things like surgery etc could provide valuable input. They could also probably give you an idea how long the effects on your insulin requirements might last. Perhaps your DAFNE Educator can help with some information ? I can only wish you well with your recovery and ask that you keep us posted on your progress.

Sep 27, 2010 marke 655 posts	Topic: Site Development / DAFNE Online iPhone application - help with content/design needed now come on Karl, your just being silly now. I rate Simons abilties but more than angry birds ? Its just not possible to use anything more than that unless of course you have completed ALL the levels ;^)

Sep 27, 2010 SimonC 78 posts	Topic: Carbohydrate Counting / Iphone Apps I bought the book about 4 months ago - and used it a load when on holiday - eating out a lot, it was very useful.

Sep 27, 2010 marke 655 posts	Topic: Carbohydrate Counting / Iphone Apps there is, if you want to spend Â£4.99 for something you will be able to get free in the near future (without the pictures of course) feel free too. Personally I think Â£4.99 for an iphone app is more than a little excessive.

Sep 27, 2010 Becki 1 post	Topic: Carbohydrate Counting / Iphone Apps Hi, there's an app called carbs and cals it's based on a book of the same name, the app is Â£4.99 and I highly recommend it......if u r not sure have a nose at the actual book in whs or waterstones

Sep 27, 2010 Karl 83 posts	Topic: Site Development / DAFNE Online iPhone application - help with content/design needed Have to congratulate you on this app - by far the most used app on my phone (even more than angry birds :-)) - the keypad entry changed it totally for me. Not using my written diary anymore.

Sep 27, 2010 Jennifer Iden 11 posts	Topic: Site Development / DAFNE Online iPhone application - help with content/design needed Upgrade to the the iPhone ap makes recording so much simpler, thanks! Although like Karl, I have found that if I change my insulun intake the ratio doesn't update unless I delete the entry and submit a second time...

Sep 27, 2010 Steven 18 posts	Topic: Site Development / Online BG Diaries Having said that, the second page of readings were accepted without complaint! :-/

Sep 27, 2010 Steven 18 posts	Topic: Site Development / Online BG Diaries Hi Simon, I don't seem to be able to leave the date field blank in the diary any more - has something broken?!!? Thanks Steven

Sep 27, 2010 Dr Jez McCole 11 posts	Topic: Site Development / DAFNE Online iPhone application - help with content/design needed Developments and updates really making the app quicker and easier to use thanks Simon. The recalculation of the ratio would be a good tweak. The summary stats are really nice. Any chance of average by entry type, such as average before lunch, average before tea etc? Thanks. I'm DAFNE'ing again!! Jez

Sep 26, 2010 Simon 574 posts	Topic: Carbohydrate Counting / Iphone Apps Hi Brien, thanks for letting me know about that - it's already been raised by other users, so I've submitted a fix to the Apple store, should be appearing on shelves in the next couple of days.

Sep 26, 2010 Peter 103 posts	Topic: Questions ? / High bgl in the morning. Paula, I would suggest that your evening dose of Levemir is beginning to run out before your morning dose becomes effective, especially when the eveing does is taken between 20:00 and 21:00 (as in most days above) but the morning dose varies between 08:00 and 12:00. That combined with the dawn effect is causing yo to have insufficient insulin available in the early morning. You say that you've increased the evening Levemir, but that resulkts in low sugars, but don't explain when. The one example shown has a low(ish) reading at 12:30 which could be more to do with the correction at 09:30 than too much Levemir. I know that I found it much easier to achivee more consistent control if I kept the timing of my morning dose of Levemir consistent on weekdays and weekends. It is a bit of a pain having to set the alarm to get up early on Saturday and Sunday just to have an injection, but the resuklts have made it worthwhile, and going back to sleep afterwards is not too difficult. If it were me, I'd stick with the increased Levelmir does in the evening, and find a consistent time to inject in the morning to see if that helps. NB. That would be nearer 08:00 than 12:00 as, for me, it's effects do reduce after 12 hours. Good luck.

Sep 26, 2010 HelenP 218 posts	Topic: Questions ? / wound healing Thanks, Marke, I don't see anyone at the hospital but I do have a private endocrinologist. When the surgery was scheduled I was between endocrinologists (the old one...I had had him for thirty two years, retired!) I have seen the new one since the surgery and he (Dafne supporter) was happy to leave "the pit" to the surgeon. I understand that the absolute last resort is a surgical repair but according to the surgeon (saw him a week ago and am scheduled to see him in another 3 weeks) says we are a long way from that. He said that what the GP was doing was what he would do! I really like my GP. He is a bit rattled by Dafne and my propensity to fiddle with doses but other than that he asks appropriate questions and seems happy to leave it to me and the endocrinologist. The GP has not suggested I go back to the endocrinologist for advice over the "pit". (Do you detect my absolute frustration?) My need for insulin seems to vary quite a bit. Two weeks after surgery (eating as usual) my TDD was 85-88 currently it is over 105! I have about 10CPs a day. I was relieved and confident. I trust it will drop back to somewhere around 90 in the not too distant future. The GP is supportive of the Dafne protocols and I suspect he has done his homework since taking me on. Currently I am attending his surgery twice a week and under his supervision/direction it (the pit) is being attended to by a nurse. I can't do it at home...not enough hands. His assessment is that it is not getting any better but it is also not getting worse. It is not infected. Any advice I get from here I will discuss with the GP. Emotionally this is throwing me. The surgery was for cancer (no radiation/no chemotherapy) and the diagnosis was followed a week later by the surgery. It is probably more complicated than just "the pit". This situation is also probably not helping my BGs. I have just reread this and it looks a bit like a dog's breakfast but I hope it is all there. Thanks for the psychotherapy! Helen

Sep 26, 2010 oilly 2 posts	Topic: Carbohydrate Counting / porridge I have porridge oats every morning for breakfast, my counting and dose works well for me, 40 grams of dried oats is 3 CPs, throw in a handful of raisins (25g to be precise) and that's another 1.5 CPs, add half an apple and half a nectarine another 1 CP, a dollop of natural yogurt another 1/2 CP, a teaspoon honey, 1/2 Cp and your milk another 1/2 CP, total value='s 7CPS and yummy