Recent Posts - DAFNE Online

Dec 8, 2011

derekh1965 95 posts

Topic: General Discussion / Interesting, maybe?

Hi

Found this while browsing, maybe of some interest to you all.
Article in the new york times about a vaccine that may be able to cure type 1 diabetes.

http://thorns2roses.wordpress.com/2011/06/24/los-angeles-times-research-shows-promise-in-reversing-type-1-diabetes/

Dec 8, 2011

novorapidboi26 1,819 posts

Topic: General Discussion / My Diabetic Review

Congrats from me too....................

You should only be having 15-20g of quick acting sugar, so depending on brand of jelly baby that can vary, but 4-6 may be a little too much, but you need to test after treating your self to see if it is too much, it may be just right for you...........you never know..........

Even now as a seasoned DAFNE graduate I can find it very hard to resist over treating, in fact, last night was one of those times...........I was 4.6 before dinner, and I injected 10 minutes before eating, soon after I finished I went LOW, and had a chocolate biscuit, a cornetto and some other ice lolly, just because I could and it was all Christmasy............

Do you agree with the change in BI?

I suppose it is a logical step to take initially to bring your levels up slightly, then fine tune your ratios again.................

Let us know how you get on............. Wink

Dec 7, 2011

marke 686 posts

Topic: General Discussion / My Diabetic Review

so whats the difference between quickly the absorbed sugar in jelly babies and the quickly absorbed sugar in dextrose ? Not a lot.
On what grounds has she advised you to drop you BI from 34u to 30u, I would only ever reduce it by 2u at a time and only with good reason i.e I had tried a carb-free meal
and my BG was dropping because of too much BI.
Congrats regarding your HBA1c, you must be doing something right Laughing

What are you defining as 'lo' by the way ?

Dec 7, 2011

mum2westiesGill 502 posts

Topic: General Discussion / My Diabetic Review

My Diabetic Review

Hi,

If it's ok i'd like to let you know how i went on with my diabetic review today 07/12/11. I had a phone call last week off my Dsn saying about my great HbA1c result which was 6.8%.

My bs results are all over the place.
My Dsn would like to see me again in about 10 days time because

1. she was rather concerned about me having a lot of lo's & also the fact of all the jelly babies (i have 4 -6 for each hypo), she wants me to have instead either dextrose gel or tablets

2. she has said to me to lower my BI from 34u to 30u

i've booked my appointment for next Thursday 15/12/11

Gill Smile

Dec 6, 2011

novorapidboi26 1,819 posts

Topic: General Discussion / Smoothies

Significantly less......................?

I would check your ratios............

Dec 5, 2011

AK 16 posts

Topic: General Discussion / Smoothies

It tells you on the carton (not sure if the bottle does too). Been drinking these every morning for years and I'd say use the nutritional info as a guide, check your BG and work out how much QA you need. I find I need less than the carton would advise.

Dec 5, 2011

marke 686 posts

Topic: Questions for HCPs / Ten days on after stopping my Levemir

Hi Fiona, no problem it was an 'interesting' post. It makes sense now ! well almost, they obviously left behind some islets if you can still produce insulin and I would guess you will quite happily keep producing insulin. Its a shame they cannot give you an islet implant since I would guess you have more chance of the transplanted cells keeping working.
Anyway you are welcome to general Diabetes advice but you are quite a unique case Smile

Dec 5, 2011

FionaC 2 posts

Topic: Questions for HCPs / Ten days on after stopping my Levemir

That's fine, Mark.
I thought the forum could only be read by HCPs, and intended that one of my educators would pick it up.
Otherwise I'd've tried to be clearer... I have 'iatrogenic' or medically-induced diabetes (which acts almost exactly like T1), after surgery that removed nearly all of my pancreas. There is no honeymoon period, just drastically reduced insulin production.
Anyway, I have now shared my diary with one of my educators,, and will cease to sow confusion here...
Best regards.

Dec 5, 2011

marke 686 posts

Topic: Questions for HCPs / Ten days on after stopping my Levemir

Hi, sorry but I have removed your phone number from your original post. I'm not being awkward but these forums can be read by anyone ( although you need to be registered to post messages to them) and its for your own safety. Its never a good idea to post personal information to public websites and we don't want to be responsible
for you being phoned by untrustworthy people.
I'm a bit puzzled as to why you were put on a DAFNE course if you are still producing a substantial amount of insulin ? How were you diagnosed as having Type 1 ?
as novarapidboi says its a lot easier for most of us since if we don't inject insulin ( including BI) or blood glucose shoots straight up. Have they tried metformin or other
T2 type drugs with you. I'm just curious, I'm not sure we can provide any useful information you really need to talk to a consultant who may be able to help with your
issue. We are generally just graduates with additional input by Health Care Professionals, however to give good advice we would need your medical history which is
why your consultant would be a better bet.
I'm sure people on this site are more than happy to help if they can though, so feel free to ask questions Laughing

Dec 5, 2011

novorapidboi26 1,819 posts

Topic: Questions for HCPs / Ten days on after stopping my Levemir

Hey, would just like to say welcome to the forum..................

You say your still producing insulin that you described as substantial. Are you only recently diagnosed?

Trying to manage diabetes when you insulin production is still present and/or unpredictable must be really hard, impossible even.........

Dec 5, 2011

novorapidboi26 1,819 posts

Topic: General Discussion / Smoothies

I would search online, I suppose it will depend on the flavour and what fruit is in it...................

But I would imagine there would not be much difference, I would guess there are about 20-30g in a small 250ml bottle.................

Dec 5, 2011

sphillips 24 posts

Topic: General Discussion / Carbs & Cals Books?

Hi Glad to hear the carbs and cals book is working well for people there are some differences between this and the DAFNE cp book. I think my colleagues have found that the chapati in the DAFNE cp guide is more accurate than the carbs and cals book, its still worth weighing things occasionally to keep your eye in, but this is a great visual tool and really good to have as an app if you're into the technology.

Dec 5, 2011

FionaC 2 posts

Topic: Questions for HCPs / Ten days on after stopping my Levemir

Hi,
We decided to stop my Levemir, at the end of DAFNE, on the grounds that I seemed to be making a fair bit of insulin, and in particular, to be regulating overnight. We assumed I might have to increase my QA somewhat to compensate.
Generally, I'm running a but higher than previously, but have had a couple of hypos that suggest that increasing my QA is a bit tricky.
I'd really appreciate a chat about these results if possible.
Things to think about:
(1) I'm generally a bit higher in the mornings now. Previously I was usually between 6 and 7, but have been in the high sevens or over 8 regularly.
(2) On Sun 27 I had a hypo, corrected it with dextrose and frusli bar. Four hours later my BG was 16.5 (measured twice and not corrected). We ate Indian food (!) and I had 7CPs and took 5 units, which was quite a conservative ratio. Two and three hours later again it was 4.2 and 10.6 respectively. So, a bit all over the place.
(3) Identical meals and dosages are producing quite varying results. E.g. Brekky and insulin on three days was the same (Mon 28, Wed 30 and Sun 4). One day it dropped my lunchtime BG by 2mmol/l, another day it raised it by more than two, another day raised it by 1. Similarly, three afternoons I've eaten a mince pie, taken 2.5 units for 3.5 CPs, and had: a decrease of 1, and twice had an increase of 2.
(4) it's obviously very tricky that my dose are so small. Half a unit either way makes for quite a big difference in ratios (which, incidentally, the DAFNE software rounds up or down quite crudely at these quantities).
(5) On Sat 3 I had a mildly alarming hypo that came on quite fast. I'd taken a half unit correction with a late breakfast. my record with corrective doses isn't good, and I'm now quite nervous about correcting.
Sorry to go on. I'd really appreciate a chat.

Dec 5, 2011

sphillips 24 posts

Topic: Questions for HCPs / Can anyone hive advice please

wrijoanne said:

I have been on Dafne after 20 years type 1 for approximate 1 month can anyone advise me on my readings please thankyou

Hi, Have you ruled out all variables e.g. checked equipment is working properly, make sure insulin has not got to hot or cold, make sure your CP estimation is accurate, check injection sites for lumps, have you been ill? I think the carb free meal was a really good thing to try and on that day your results were good, its hard to see a pattern so my advice would be to consider the above variables before making any changes, continue to monitor and try occasional carb free meals and if you're still stuck make an appointment to see on of the DAFNE educators at your centre.

Dec 5, 2011

Alan 49 284 posts

Topic: General Discussion / Smoothies

I think I might like an Innocent Smoothie with my breakfast. Does anyone know the carb content of these?

Dec 4, 2011

theresaz 13 posts

Topic: DAFNE Online Mobile / Can you download to a Blackberry

Lovely. Thank you that's very useful.

Dec 4, 2011

novorapidboi26 1,819 posts

Topic: DAFNE Online Mobile / Can you download to a Blackberry

signing up with google and the android market would be no use to you if you don't have a device running the android operating system, like a phone or tablet..............

so it means you wont be able to run the DAFNE app if you have a Blackberry, however you can still visit the website on your phone. It will be displayed as the mobile version, probably with an option to view the real site too.........

Dec 3, 2011

Jenny 27 posts

Topic: General Discussion / Carbs & Cals Books?

If you get the iPhone app you can pick each food from your meal and it totals it up for you as you go. You can then save it for future reference.

I still use books to check values after 4 years of dafne. Otherwise I doubt my calculations if blood sugars go wrong later. Only just got the carbs and cals one though.

Dec 3, 2011

Jenny 27 posts

Topic: General Discussion / insulin pump

Think I'd get out of bed and find it trailing behind me if it wasn't attached!

Blood sugars showing improvement but not sorted yet. The highs seem to have moved to different times of the day. Am sure will get there though.

Dec 3, 2011

Devinesign 6 posts

Topic: Carbohydrate Counting / Tefal Actifry

Jenny said:
Could you weigh them based on jacket potato? Maybe you will have to have a few guesses and then write it in your carb book in the notes section.

I will be guestimating in future with my next guess going on the lines of 25g of cooked chips equating to 1 CP rather than the quoted 30g of chips and see how that goes and if still not right, then I will notch it back again to 20g.

Dec 3, 2011

Devinesign 6 posts

Topic: Carbohydrate Counting / Tefal Actifry

SueA said:
I have a similar problem with jacket potatoes, I like to microwave them first then finish them off in the oven, so when I remember I weigh the potato before cooking. Potato raw is 1.5cp per 100g, I dont't think any carbohydrate is lost in cooking. This is a little more tricky when cooking for a family, however. I have been considering buying a tefal actifry how do the chips taste?

They are great as soon as they come out of the fryer but once they begin to cool they go dry like oven chips. I would say that unless you have chips regularly I would stick to the normal deep fry. Smile

Dec 3, 2011

theresaz 13 posts

Topic: DAFNE Online Mobile / Can you download to a Blackberry

Whoops it's Android Market no Android World.

Dec 8, 2011 derekh1965 95 posts	Topic: General Discussion / Interesting, maybe? Hi Found this while browsing, maybe of some interest to you all. Article in the new york times about a vaccine that may be able to cure type 1 diabetes. http://thorns2roses.wordpress.com/2011/06/24/los-angeles-times-research-shows-promise-in-reversing-type-1-diabetes/

Dec 8, 2011 novorapidboi26 1,819 posts	Topic: General Discussion / My Diabetic Review Congrats from me too.................... You should only be having 15-20g of quick acting sugar, so depending on brand of jelly baby that can vary, but 4-6 may be a little too much, but you need to test after treating your self to see if it is too much, it may be just right for you...........you never know.......... Even now as a seasoned DAFNE graduate I can find it very hard to resist over treating, in fact, last night was one of those times...........I was 4.6 before dinner, and I injected 10 minutes before eating, soon after I finished I went LOW, and had a chocolate biscuit, a cornetto and some other ice lolly, just because I could and it was all Christmasy............ Do you agree with the change in BI? I suppose it is a logical step to take initially to bring your levels up slightly, then fine tune your ratios again................. Let us know how you get on.............

Dec 7, 2011 marke 686 posts	Topic: General Discussion / My Diabetic Review so whats the difference between quickly the absorbed sugar in jelly babies and the quickly absorbed sugar in dextrose ? Not a lot. On what grounds has she advised you to drop you BI from 34u to 30u, I would only ever reduce it by 2u at a time and only with good reason i.e I had tried a carb-free meal and my BG was dropping because of too much BI. Congrats regarding your HBA1c, you must be doing something right What are you defining as 'lo' by the way ?

Dec 7, 2011 mum2westiesGill 502 posts	Topic: General Discussion / My Diabetic Review My Diabetic Review Hi, If it's ok i'd like to let you know how i went on with my diabetic review today 07/12/11. I had a phone call last week off my Dsn saying about my great HbA1c result which was 6.8%. My bs results are all over the place. My Dsn would like to see me again in about 10 days time because 1. she was rather concerned about me having a lot of lo's & also the fact of all the jelly babies (i have 4 -6 for each hypo), she wants me to have instead either dextrose gel or tablets 2. she has said to me to lower my BI from 34u to 30u i've booked my appointment for next Thursday 15/12/11 Gill

Dec 6, 2011 novorapidboi26 1,819 posts	Topic: General Discussion / Smoothies Significantly less......................? I would check your ratios............

Dec 5, 2011 AK 16 posts	Topic: General Discussion / Smoothies It tells you on the carton (not sure if the bottle does too). Been drinking these every morning for years and I'd say use the nutritional info as a guide, check your BG and work out how much QA you need. I find I need less than the carton would advise.

Dec 5, 2011 marke 686 posts	Topic: Questions for HCPs / Ten days on after stopping my Levemir Hi Fiona, no problem it was an 'interesting' post. It makes sense now ! well almost, they obviously left behind some islets if you can still produce insulin and I would guess you will quite happily keep producing insulin. Its a shame they cannot give you an islet implant since I would guess you have more chance of the transplanted cells keeping working. Anyway you are welcome to general Diabetes advice but you are quite a unique case

Dec 5, 2011 FionaC 2 posts	Topic: Questions for HCPs / Ten days on after stopping my Levemir That's fine, Mark. I thought the forum could only be read by HCPs, and intended that one of my educators would pick it up. Otherwise I'd've tried to be clearer... I have 'iatrogenic' or medically-induced diabetes (which acts almost exactly like T1), after surgery that removed nearly all of my pancreas. There is no honeymoon period, just drastically reduced insulin production. Anyway, I have now shared my diary with one of my educators,, and will cease to sow confusion here... Best regards.

Dec 5, 2011 marke 686 posts	Topic: Questions for HCPs / Ten days on after stopping my Levemir Hi, sorry but I have removed your phone number from your original post. I'm not being awkward but these forums can be read by anyone ( although you need to be registered to post messages to them) and its for your own safety. Its never a good idea to post personal information to public websites and we don't want to be responsible for you being phoned by untrustworthy people. I'm a bit puzzled as to why you were put on a DAFNE course if you are still producing a substantial amount of insulin ? How were you diagnosed as having Type 1 ? as novarapidboi says its a lot easier for most of us since if we don't inject insulin ( including BI) or blood glucose shoots straight up. Have they tried metformin or other T2 type drugs with you. I'm just curious, I'm not sure we can provide any useful information you really need to talk to a consultant who may be able to help with your issue. We are generally just graduates with additional input by Health Care Professionals, however to give good advice we would need your medical history which is why your consultant would be a better bet. I'm sure people on this site are more than happy to help if they can though, so feel free to ask questions

Dec 5, 2011 novorapidboi26 1,819 posts	Topic: Questions for HCPs / Ten days on after stopping my Levemir Hey, would just like to say welcome to the forum.................. You say your still producing insulin that you described as substantial. Are you only recently diagnosed? Trying to manage diabetes when you insulin production is still present and/or unpredictable must be really hard, impossible even.........

Dec 5, 2011 novorapidboi26 1,819 posts	Topic: General Discussion / Smoothies I would search online, I suppose it will depend on the flavour and what fruit is in it................... But I would imagine there would not be much difference, I would guess there are about 20-30g in a small 250ml bottle.................

Dec 5, 2011 sphillips 24 posts	Topic: General Discussion / Carbs & Cals Books? Hi Glad to hear the carbs and cals book is working well for people there are some differences between this and the DAFNE cp book. I think my colleagues have found that the chapati in the DAFNE cp guide is more accurate than the carbs and cals book, its still worth weighing things occasionally to keep your eye in, but this is a great visual tool and really good to have as an app if you're into the technology.

Dec 5, 2011 FionaC 2 posts	Topic: Questions for HCPs / Ten days on after stopping my Levemir Hi, We decided to stop my Levemir, at the end of DAFNE, on the grounds that I seemed to be making a fair bit of insulin, and in particular, to be regulating overnight. We assumed I might have to increase my QA somewhat to compensate. Generally, I'm running a but higher than previously, but have had a couple of hypos that suggest that increasing my QA is a bit tricky. I'd really appreciate a chat about these results if possible. Things to think about: (1) I'm generally a bit higher in the mornings now. Previously I was usually between 6 and 7, but have been in the high sevens or over 8 regularly. (2) On Sun 27 I had a hypo, corrected it with dextrose and frusli bar. Four hours later my BG was 16.5 (measured twice and not corrected). We ate Indian food (!) and I had 7CPs and took 5 units, which was quite a conservative ratio. Two and three hours later again it was 4.2 and 10.6 respectively. So, a bit all over the place. (3) Identical meals and dosages are producing quite varying results. E.g. Brekky and insulin on three days was the same (Mon 28, Wed 30 and Sun 4). One day it dropped my lunchtime BG by 2mmol/l, another day it raised it by more than two, another day raised it by 1. Similarly, three afternoons I've eaten a mince pie, taken 2.5 units for 3.5 CPs, and had: a decrease of 1, and twice had an increase of 2. (4) it's obviously very tricky that my dose are so small. Half a unit either way makes for quite a big difference in ratios (which, incidentally, the DAFNE software rounds up or down quite crudely at these quantities). (5) On Sat 3 I had a mildly alarming hypo that came on quite fast. I'd taken a half unit correction with a late breakfast. my record with corrective doses isn't good, and I'm now quite nervous about correcting. Sorry to go on. I'd really appreciate a chat.

Dec 5, 2011 sphillips 24 posts	Topic: Questions for HCPs / Can anyone hive advice please wrijoanne said: I have been on Dafne after 20 years type 1 for approximate 1 month can anyone advise me on my readings please thankyou Hi, Have you ruled out all variables e.g. checked equipment is working properly, make sure insulin has not got to hot or cold, make sure your CP estimation is accurate, check injection sites for lumps, have you been ill? I think the carb free meal was a really good thing to try and on that day your results were good, its hard to see a pattern so my advice would be to consider the above variables before making any changes, continue to monitor and try occasional carb free meals and if you're still stuck make an appointment to see on of the DAFNE educators at your centre.

Dec 5, 2011 Alan 49 284 posts	Topic: General Discussion / Smoothies I think I might like an Innocent Smoothie with my breakfast. Does anyone know the carb content of these?

Dec 4, 2011 theresaz 13 posts	Topic: DAFNE Online Mobile / Can you download to a Blackberry Lovely. Thank you that's very useful.

Dec 4, 2011 novorapidboi26 1,819 posts	Topic: DAFNE Online Mobile / Can you download to a Blackberry signing up with google and the android market would be no use to you if you don't have a device running the android operating system, like a phone or tablet.............. so it means you wont be able to run the DAFNE app if you have a Blackberry, however you can still visit the website on your phone. It will be displayed as the mobile version, probably with an option to view the real site too.........

Dec 3, 2011 Jenny 27 posts	Topic: General Discussion / Carbs & Cals Books? If you get the iPhone app you can pick each food from your meal and it totals it up for you as you go. You can then save it for future reference. I still use books to check values after 4 years of dafne. Otherwise I doubt my calculations if blood sugars go wrong later. Only just got the carbs and cals one though.

Dec 3, 2011 Jenny 27 posts	Topic: General Discussion / insulin pump Think I'd get out of bed and find it trailing behind me if it wasn't attached! Blood sugars showing improvement but not sorted yet. The highs seem to have moved to different times of the day. Am sure will get there though.

Dec 3, 2011 Devinesign 6 posts	Topic: Carbohydrate Counting / Tefal Actifry Jenny said: Could you weigh them based on jacket potato? Maybe you will have to have a few guesses and then write it in your carb book in the notes section. I will be guestimating in future with my next guess going on the lines of 25g of cooked chips equating to 1 CP rather than the quoted 30g of chips and see how that goes and if still not right, then I will notch it back again to 20g.

Dec 3, 2011 Devinesign 6 posts	Topic: Carbohydrate Counting / Tefal Actifry SueA said: I have a similar problem with jacket potatoes, I like to microwave them first then finish them off in the oven, so when I remember I weigh the potato before cooking. Potato raw is 1.5cp per 100g, I dont't think any carbohydrate is lost in cooking. This is a little more tricky when cooking for a family, however. I have been considering buying a tefal actifry how do the chips taste? They are great as soon as they come out of the fryer but once they begin to cool they go dry like oven chips. I would say that unless you have chips regularly I would stick to the normal deep fry.

Dec 3, 2011 theresaz 13 posts	Topic: DAFNE Online Mobile / Can you download to a Blackberry Whoops it's Android Market no Android World.