Recent Posts - DAFNE Online

Dec 31, 2011

alp147 4 posts

Topic: Questions for HCPs / In need of help

I used to test at 3am for about 6 months and my sugars where stable around 7 - 9 but then i tested at 4 or 5 am and they where low, so i dropped my lantus from 35 and slowly brought it down to 17!!!! and this worked perfectly for about 2 weeks then all went wrong again :/ started with highs and no hypo so started to bring the lantus back up again

Dec 31, 2011

ChristineBat... 23 posts

Topic: Questions for HCPs / In need of help

Hi ALP, you sound similar to me, after giving birth things went mad. I also have the same HbA1c as you, 8.3%. Preganancy control was easy compared to now! It may be that you are suffering from the dawn phenonemom and a change of BI insulin may help? Testing at 3am is better than 1.30, if you are within target then and wake up high, it probably means you're liver is dumping sugar in preperation for waking up (the dawn phenonemom. I changed from Humulin I to Levemir and it had combated this problem. Due a Hba1c soon and hope it's a bit lower. You may want to read a recent message I sent regarding my control. x

Hi Emma, for many years I felt in control of my diabetes and everything I did worked and made sense. After a beautifully controlled pregnancy things became extremely erratic and for 7 years I battled and lived every day frustrated blaming myself for terrible results. My consultant suggested I do the dafne course but I wasn't convinced it would have been beneficial as I'd been 'counting carbs and adjusting insulin' since the age of 10! However, the course has changed my life and I now don't beat myself up any more. It has taken ages to let go, but I finally feel at peace with my diabetes Emma. I haven't put results on here for a while due to the Christmas period (over eating and correcting)! However, things are calmer and my monthly is over so I'm logging them again. I hope by viewing my diary you feel you are not alone. You will begin to see good results, then after a while it stops working. I eat a pretty regular amount of cps per meal, just cos I can't be bothered to rock the boat! But when I let go I let go big time!
I rarely adjust my ratios, 3:1 at breakfast, 1.5:1 for lunch and 1:1 at dinner time. Correctors work differently at each meal, ranging from 1 unit lowering my bg from 2-6 mmol! One thing I do alter more than anything over the course of a month is my BI. Leading up to my period I can have an extra 6 units per day. I think you'll be able to see my diary from mid October. Happy new year Emma. x

Dec 31, 2011

ChristineBat... 23 posts

Topic: General Discussion / Christmas Day Insulin

I kind of let go on Christmas day, what with the odd chocolate, sherry, and a variety of other nibbles I did what DAFNE would not aprove of and had a couple of units of QA every hour/two hours...without testing.....by chance all worked out, had a huge amount of QA during the day, didn't record anything as I was so out of routine! Hey, DAFNE peers, once a year I have to just let go and forget!

Dec 31, 2011

alp147 4 posts

Topic: Questions for HCPs / In need of help

Over the past 2 years (post giving birth) i have had high blood sugar readings in the morning. I did the dafne course in derby and moved to peterborough and was told they do no to dafne here. After my last appointment at the hospital i was told not to worry that my hba1c was creeping up now at 8.2, i left the clinic and cried as i now feel that even the drs have given up on me. I test every night at 1.30am, most reading are high however some are low. So presuming i am hypoing before 1.30am i reduced my fast acting which i have with a snack to 0.5:1, this resulted in a real high.

I am at my wits end, nobody seems to know what is going on, my sugars are all over the place during the day despite careful carb counting and not adjusting my insulin

I am also on 1g dailt metformin m/r which i was put on to combat this rise overnight (this doesnt seem to make much difference)

Can anyone please, please, please give me some advice

Dec 30, 2011

Peter 109 posts

Topic: General Discussion / DAFNE Follow-on Training

One of the subjects that the DAFNE User Action Group (DUAG) is investigating is the type of follow-on training being offered to graduates, and whether it meets your needs. Were you offered any meetings or training after the DAFNE course itself? Whilst there is a standard DAFNE course which is offered initially, there seems to be less consistency in what help is offered after that.

We have set-up a short survey (10 questions), and would ask those of you who have completed a DAFNE course to spare a few minutes to tell us about your experiences and what would help you.

Any comments that can't be accommodated in the survey itself can, of course, be added to this thread.

The survey can be found here: DAFNE Follow-on Training Survey

Thanks for your time, and have a happy New Year.

Dec 30, 2011

ruthhutchinson 39 posts

Topic: Carbohydrate Counting / Toblerone

http://caloriecount.about.com/calories-toblerone-i80383

16.8 in 28g of chocolate

Dec 30, 2011

mum2westiesGill 502 posts

Topic: Carbohydrate Counting / Toblerone

Does anybody know how many grams of carbs there are in one triangle of the large / chunky 400g toblerone?

Gill

Dec 28, 2011

Garry 328 posts

Topic: General Discussion / Christmas Day Insulin

The 14:20 was supposed to represent the Xmas pud.......but like Marke I think I made a similar underestimate Embarassed

Best Wishes to all

Garry

Dec 27, 2011

john day 54 posts

Topic: General Discussion / Christmas Day Insulin

Greetings all .... just been inputting the readings for last week, with not brilliant results! Xmas day was not too bad but control def slipped on Boxing day: nothing under 10.8. I blame the between meal goodies and mince pies !

Dec 26, 2011

marke 681 posts

Topic: General Discussion / Christmas Day Insulin

hey, I'm not the only one !! I blame the xmas pudding, I know I should resist it but just cannot. Despite injecting more than I thought I needed I still ended up at 18.7 in the evening. Its good to know I'm not the only one who still gets it wrong at times like these.

Dec 26, 2011

theresaz 13 posts

Topic: General Discussion / Christmas Day Insulin

I was doing Ok in the morning but woke up today with a 24. Oh dear. Normality now being resumed.

Dec 26, 2011

meltow 78 posts

Topic: General Discussion / Christmas Day Insulin

Beat you.....13.5 post dinner.
Still not enough Sad

Dec 26, 2011

Neil Brown 28 posts

Topic: General Discussion / Christmas Day Insulin

thought I'd got it right.....4.9 pre dinner.......23.1 post dinner !!! Confused

Dec 24, 2011

HelenP 218 posts

Topic: General Discussion / Still not working!!

Hey Emma, and Christine...
Exactly. My diabetes was all over the shop until i did Dafne and began playing with the doses/times etc. Like you I then worked (with the endo) on fractional ratios, changing insulins, times of shots and tweaking the doses. This bought me better control but it was still not great. I am now on a pump and guess what still tweaking more than most in similar positions. I regard it as a moveable feast but it is interesting to go back and compare doses (I keep very detailed records). I have found the TDD remains within a band of about +/- 15% but the time of day I need what dose (basals) varies depending on things like how much sleep I get, what time I go to bed, the weather etc. and there seems to be a delay of a day or so (just to complicate things further!). I still prefer the pump but it took a long time to "learn" its parameters and to work out rules to the tweaking. Still learning, still tweaking! I am a long way from "set and forget" and this routine requires more attention to detail than I imagined. I tried the Dafne principle of eating what I liked/when I liked but found that only added more variables so have put myself back onto a fairly consistent diet.

The pump may not be the answer you expect.

Keep at it. Helen

Dec 24, 2011

snufflebabe 1 post

Topic: Carbohydrate Counting / Carbs how much?

whiskysmum said:
novorapidboi26 said:
Round up, anything above the 5g and I would round up...............

Thanks & i'm sure i just spoke to yourself somewhere else, lol

Gill

Check BG round up or down as needed 5g of carbs either way wont really make much difference.

Dec 24, 2011

mum2westiesGill 502 posts

Topic: Carbohydrate Counting / Carbs how much?

novorapidboi26 said:
Round up, anything above the 5g and I would round up...............

Thanks & i'm sure i just spoke to yourself somewhere else, lol Laughing

Gill

Dec 24, 2011

novorapidboi26 1,819 posts

Topic: Carbohydrate Counting / Carbs how much?

Round up, anything above the 5g and I would round up...............

Dec 24, 2011

novorapidboi26 1,819 posts

Topic: General Discussion / Still not working!!

ChristineBattista said:
( I'm sure he said that in a thread)!!!!

I believe I did........ Laughing

Dec 24, 2011

novorapidboi26 1,819 posts

Topic: General Discussion / Christmas Day Insulin

probably not as much as I should.............

Dec 24, 2011

Simon 578 posts

Topic: General Discussion / Merry Christmas....

Ah, you got in there first novorapidboi, I just logged on to write our Xmas post Very Happy

So I'd like to first wish you all a very Merry Christmas and all the best for the festive season and beyond. I hope Santa brings you all you want!

Secondly, I'd like to thank you all for the many positive contributions on the site; the whole reason we created DAFNE Online was to provide an extended support network for DAFNE Graduates, and after browsing the topics of the past 12 months, I can see a lot of DAFNE Graduates from around the world helping one another out.

Finally, don't feel limited by your diabetes; we all know the festive season brings the opportunity to over-indulge (I fully intend to Very Happy

) and the tools and rules given to us by DAFNE allow us to adjust insulin based on what we are eating and drinking. If you need reminders of how to adjust insulin dosage, carbohydrate portons, sick day rules or anything else in the DAFNE handbook, remember it is all available on the site, via the links on the right hand side of the page.

Merry Christmas to you all.

Simon x

Dec 24, 2011

mum2westiesGill 502 posts

Topic: Carbohydrate Counting / Carbs how much?

Hi,

If carbs add up to eg 20g or 50g then i know on a 1: 1 ratio you would take 2u or 5u of insulin but if it was 28g or 56g how much would that be then?

Gill Very Happy

Dec 24, 2011

mum2westiesGill 502 posts

Topic: General Discussion / Christmas Day Insulin

Anybody have an idea on how much insulin your going to have tomorrow - christmas day?

Gill Very Happy

Dec 24, 2011

mum2westiesGill 502 posts

Topic: General Discussion / Merry Christmas....

Merry Christmas back to you novorapidboi26
& also to you Ahmentep

Also wishing everybody on the forum

A very Merry Christmas
& a peaceful 2012
xxx
Very Happy

Gill

Dec 24, 2011

ChristineBat... 23 posts

Topic: General Discussion / Still not working!!

Hi Emma, I have been diabetic since the age of 10, for 33 years now. I too also have a lack of consistency, and what works well one week doesn't the following week. I used to base any changes to my insulin doses on the 'history' in my BG diaries hoping that what worked once would work again, and got very frustrated when it didn't. And I'm not talking about weeks old history.....I'm talking about 4/5 days previous. I now 'tweak' my insulin on a weekly basis without looking further back than 4 days of results, and take each day as it comes. I have had to 'let go' of what worked one week may work again.....I blame a lot of this on female hormones too, however there are no patterns in my BG results leading up/during and post my monthly. I'm in very good control and just 'follow' my BG results around tweaking gently, and it works for me. I have learnt to not get disheartened by the lack of consistency, frustrating as it may be. Thankfully I have no complications. I'm on a split dose of levemir (on waking at around 7-8am and a dose at 10pm before bed) and use Novorapid as my QA...and like Novorapidboi I could bathe in the nectar!!( I'm sure he said that in a thread)!!!! I've tried many different insulins over the years and this is the best! Good luck. Christine.

Dec 31, 2011 alp147 4 posts	Topic: Questions for HCPs / In need of help I used to test at 3am for about 6 months and my sugars where stable around 7 - 9 but then i tested at 4 or 5 am and they where low, so i dropped my lantus from 35 and slowly brought it down to 17!!!! and this worked perfectly for about 2 weeks then all went wrong again :/ started with highs and no hypo so started to bring the lantus back up again

Dec 31, 2011 ChristineBat... 23 posts	Topic: Questions for HCPs / In need of help Hi ALP, you sound similar to me, after giving birth things went mad. I also have the same HbA1c as you, 8.3%. Preganancy control was easy compared to now! It may be that you are suffering from the dawn phenonemom and a change of BI insulin may help? Testing at 3am is better than 1.30, if you are within target then and wake up high, it probably means you're liver is dumping sugar in preperation for waking up (the dawn phenonemom. I changed from Humulin I to Levemir and it had combated this problem. Due a Hba1c soon and hope it's a bit lower. You may want to read a recent message I sent regarding my control. x Hi Emma, for many years I felt in control of my diabetes and everything I did worked and made sense. After a beautifully controlled pregnancy things became extremely erratic and for 7 years I battled and lived every day frustrated blaming myself for terrible results. My consultant suggested I do the dafne course but I wasn't convinced it would have been beneficial as I'd been 'counting carbs and adjusting insulin' since the age of 10! However, the course has changed my life and I now don't beat myself up any more. It has taken ages to let go, but I finally feel at peace with my diabetes Emma. I haven't put results on here for a while due to the Christmas period (over eating and correcting)! However, things are calmer and my monthly is over so I'm logging them again. I hope by viewing my diary you feel you are not alone. You will begin to see good results, then after a while it stops working. I eat a pretty regular amount of cps per meal, just cos I can't be bothered to rock the boat! But when I let go I let go big time! I rarely adjust my ratios, 3:1 at breakfast, 1.5:1 for lunch and 1:1 at dinner time. Correctors work differently at each meal, ranging from 1 unit lowering my bg from 2-6 mmol! One thing I do alter more than anything over the course of a month is my BI. Leading up to my period I can have an extra 6 units per day. I think you'll be able to see my diary from mid October. Happy new year Emma. x

Dec 31, 2011 ChristineBat... 23 posts	Topic: General Discussion / Christmas Day Insulin I kind of let go on Christmas day, what with the odd chocolate, sherry, and a variety of other nibbles I did what DAFNE would not aprove of and had a couple of units of QA every hour/two hours...without testing.....by chance all worked out, had a huge amount of QA during the day, didn't record anything as I was so out of routine! Hey, DAFNE peers, once a year I have to just let go and forget!

Dec 31, 2011 alp147 4 posts	Topic: Questions for HCPs / In need of help Over the past 2 years (post giving birth) i have had high blood sugar readings in the morning. I did the dafne course in derby and moved to peterborough and was told they do no to dafne here. After my last appointment at the hospital i was told not to worry that my hba1c was creeping up now at 8.2, i left the clinic and cried as i now feel that even the drs have given up on me. I test every night at 1.30am, most reading are high however some are low. So presuming i am hypoing before 1.30am i reduced my fast acting which i have with a snack to 0.5:1, this resulted in a real high. I am at my wits end, nobody seems to know what is going on, my sugars are all over the place during the day despite careful carb counting and not adjusting my insulin I am also on 1g dailt metformin m/r which i was put on to combat this rise overnight (this doesnt seem to make much difference) Can anyone please, please, please give me some advice

Dec 30, 2011 Peter 109 posts	Topic: General Discussion / DAFNE Follow-on Training One of the subjects that the DAFNE User Action Group (DUAG) is investigating is the type of follow-on training being offered to graduates, and whether it meets your needs. Were you offered any meetings or training after the DAFNE course itself? Whilst there is a standard DAFNE course which is offered initially, there seems to be less consistency in what help is offered after that. We have set-up a short survey (10 questions), and would ask those of you who have completed a DAFNE course to spare a few minutes to tell us about your experiences and what would help you. Any comments that can't be accommodated in the survey itself can, of course, be added to this thread. The survey can be found here: DAFNE Follow-on Training Survey Thanks for your time, and have a happy New Year.

Dec 30, 2011 ruthhutchinson 39 posts	Topic: Carbohydrate Counting / Toblerone http://caloriecount.about.com/calories-toblerone-i80383 16.8 in 28g of chocolate

Dec 30, 2011 mum2westiesGill 502 posts	Topic: Carbohydrate Counting / Toblerone Does anybody know how many grams of carbs there are in one triangle of the large / chunky 400g toblerone? Gill

Dec 28, 2011 Garry 328 posts	Topic: General Discussion / Christmas Day Insulin The 14:20 was supposed to represent the Xmas pud.......but like Marke I think I made a similar underestimate Best Wishes to all Garry

Dec 27, 2011 john day 54 posts	Topic: General Discussion / Christmas Day Insulin Greetings all .... just been inputting the readings for last week, with not brilliant results! Xmas day was not too bad but control def slipped on Boxing day: nothing under 10.8. I blame the between meal goodies and mince pies !

Dec 26, 2011 marke 681 posts	Topic: General Discussion / Christmas Day Insulin hey, I'm not the only one !! I blame the xmas pudding, I know I should resist it but just cannot. Despite injecting more than I thought I needed I still ended up at 18.7 in the evening. Its good to know I'm not the only one who still gets it wrong at times like these.

Dec 26, 2011 theresaz 13 posts	Topic: General Discussion / Christmas Day Insulin I was doing Ok in the morning but woke up today with a 24. Oh dear. Normality now being resumed.

Dec 26, 2011 meltow 78 posts	Topic: General Discussion / Christmas Day Insulin Beat you.....13.5 post dinner. Still not enough

Dec 26, 2011 Neil Brown 28 posts	Topic: General Discussion / Christmas Day Insulin thought I'd got it right.....4.9 pre dinner.......23.1 post dinner !!!

Dec 24, 2011 HelenP 218 posts	Topic: General Discussion / Still not working!! Hey Emma, and Christine... Exactly. My diabetes was all over the shop until i did Dafne and began playing with the doses/times etc. Like you I then worked (with the endo) on fractional ratios, changing insulins, times of shots and tweaking the doses. This bought me better control but it was still not great. I am now on a pump and guess what still tweaking more than most in similar positions. I regard it as a moveable feast but it is interesting to go back and compare doses (I keep very detailed records). I have found the TDD remains within a band of about +/- 15% but the time of day I need what dose (basals) varies depending on things like how much sleep I get, what time I go to bed, the weather etc. and there seems to be a delay of a day or so (just to complicate things further!). I still prefer the pump but it took a long time to "learn" its parameters and to work out rules to the tweaking. Still learning, still tweaking! I am a long way from "set and forget" and this routine requires more attention to detail than I imagined. I tried the Dafne principle of eating what I liked/when I liked but found that only added more variables so have put myself back onto a fairly consistent diet. The pump may not be the answer you expect. Keep at it. Helen

Dec 24, 2011 snufflebabe 1 post	Topic: Carbohydrate Counting / Carbs how much? whiskysmum said: novorapidboi26 said: Round up, anything above the 5g and I would round up............... Thanks & i'm sure i just spoke to yourself somewhere else, lol Gill Check BG round up or down as needed 5g of carbs either way wont really make much difference.

Dec 24, 2011 mum2westiesGill 502 posts	Topic: Carbohydrate Counting / Carbs how much? novorapidboi26 said: Round up, anything above the 5g and I would round up............... Thanks & i'm sure i just spoke to yourself somewhere else, lol Gill

Dec 24, 2011 novorapidboi26 1,819 posts	Topic: Carbohydrate Counting / Carbs how much? Round up, anything above the 5g and I would round up...............

Dec 24, 2011 novorapidboi26 1,819 posts	Topic: General Discussion / Still not working!! ChristineBattista said: ( I'm sure he said that in a thread)!!!! I believe I did........

Dec 24, 2011 novorapidboi26 1,819 posts	Topic: General Discussion / Christmas Day Insulin probably not as much as I should.............

Dec 24, 2011 Simon 578 posts	Topic: General Discussion / Merry Christmas.... Ah, you got in there first novorapidboi, I just logged on to write our Xmas post So I'd like to first wish you all a very Merry Christmas and all the best for the festive season and beyond. I hope Santa brings you all you want! Secondly, I'd like to thank you all for the many positive contributions on the site; the whole reason we created DAFNE Online was to provide an extended support network for DAFNE Graduates, and after browsing the topics of the past 12 months, I can see a lot of DAFNE Graduates from around the world helping one another out. Finally, don't feel limited by your diabetes; we all know the festive season brings the opportunity to over-indulge (I fully intend to ) and the tools and rules given to us by DAFNE allow us to adjust insulin based on what we are eating and drinking. If you need reminders of how to adjust insulin dosage, carbohydrate portons, sick day rules or anything else in the DAFNE handbook, remember it is all available on the site, via the links on the right hand side of the page. Merry Christmas to you all. Simon x

Dec 24, 2011 mum2westiesGill 502 posts	Topic: Carbohydrate Counting / Carbs how much? Hi, If carbs add up to eg 20g or 50g then i know on a 1: 1 ratio you would take 2u or 5u of insulin but if it was 28g or 56g how much would that be then? Gill

Dec 24, 2011 mum2westiesGill 502 posts	Topic: General Discussion / Christmas Day Insulin Anybody have an idea on how much insulin your going to have tomorrow - christmas day? Gill

Dec 24, 2011 mum2westiesGill 502 posts	Topic: General Discussion / Merry Christmas.... Merry Christmas back to you novorapidboi26 & also to you Ahmentep Also wishing everybody on the forum A very Merry Christmas & a peaceful 2012 xxx Gill

Dec 24, 2011 ChristineBat... 23 posts	Topic: General Discussion / Still not working!! Hi Emma, I have been diabetic since the age of 10, for 33 years now. I too also have a lack of consistency, and what works well one week doesn't the following week. I used to base any changes to my insulin doses on the 'history' in my BG diaries hoping that what worked once would work again, and got very frustrated when it didn't. And I'm not talking about weeks old history.....I'm talking about 4/5 days previous. I now 'tweak' my insulin on a weekly basis without looking further back than 4 days of results, and take each day as it comes. I have had to 'let go' of what worked one week may work again.....I blame a lot of this on female hormones too, however there are no patterns in my BG results leading up/during and post my monthly. I'm in very good control and just 'follow' my BG results around tweaking gently, and it works for me. I have learnt to not get disheartened by the lack of consistency, frustrating as it may be. Thankfully I have no complications. I'm on a split dose of levemir (on waking at around 7-8am and a dose at 10pm before bed) and use Novorapid as my QA...and like Novorapidboi I could bathe in the nectar!!( I'm sure he said that in a thread)!!!! I've tried many different insulins over the years and this is the best! Good luck. Christine.