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Jan 11, 2014
mum2westiesGill
502 posts
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Topic: General Discussion / My Blood Glucose Diary - problems Maybe I'll start keeping a paper copy also incase of online problems.Diary seems to be working today but still doesn't open up as quick as the other Dafne tools also when doing either multiple entries & updating entries it's very slow. |
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Jan 10, 2014
Vickyp
137 posts
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Topic: Questions for HCPs / Cholestrol As my levels were so high I was referred to a lipids consultant, and it was him that said no statins etc until I decide my family is complete, regardless of how long that may be!! I was with the consultant for a year before he discharged me and now my diabetes consultant monitors it..he agrees no statins so they happy for me to tick along with slightly higher levels as I have brought them down probably as far as I can on diet only.I would go back to your GP and explain about thinking of starting family and the risk of statin use...remember GPs won't know all the information, hence the need for specialists! |
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Jan 10, 2014
Jade_ellen
2 posts
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Topic: Questions for HCPs / Cholestrol Thanks so much for replying and giving me that information it is very useful to me and now i understand a bit more as my gp did not really explain anything to me just told me i am on them for the rest of my life and thats it. I was just worried as i am only 21 years old and thought i was way too young to go on them but for some reason in the last 5 months my ldl has risen from a perfect 1.3 to 3.2 which is why they put me on them. And i was expecting the gp to say they would give me some time to lower it myself but i did not get that chance and yes I am hoping to start my own family with my boyfriend. I read that the statins are not to be taken when you are trying or pregnant |
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Jan 10, 2014
Vickyp
137 posts
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Topic: General Discussion / My Blood Glucose Diary - problems I always write mine down, even tho am on pump! |
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Jan 10, 2014
Vickyp
137 posts
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Thanks youone, hopefully they will figure out what's going on! |
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Jan 10, 2014
youone
102 posts
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Topic: Carbohydrate Counting / reliable metre readings
Hi vickyp glad to see your having them tests, hope there help with them dips, Vickyp is right I'm on the Pod 2 slightly smaller and some improvements over the 1st generation omnipod, your description of the new thinking of BG testing sounds interesting , just hope there can make the carrier more robust and less dependent on the conditions around it. |
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Jan 10, 2014
Vickyp
137 posts
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My GP happily prescribes the ketone strips...never had an issue in almost 12 months of having the optium meter! |
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Jan 10, 2014
Vickyp
137 posts
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The omnipod has relatively recently been updated...with the new smaller pod! |
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Jan 10, 2014
novorapidboi26
1,819 posts
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Topic: Carbohydrate Counting / reliable metre readings I think there have been some attempts at non invasive blood glucose measurement.I think currently the blood meters use light/laser at the moment, its passes through the sample and then the light that returns is measured/analysed, and its that which gives the result. I think that's how they do it... And I think recently they have been experimenting with similar technology where you shine light of longer wavelengths through your finger and that will give a reading, so I think we may be on the right track. I still believe that an insulin pump is a pretty simple device though, in comparison to blood meters. Its just a tiny motor hooked up to a microchip which is programmed. Have there been different models of omnipod, like a 2nd generation etc, upgrades, if not, they may have scope to refine any technology it currently uses like the built in meter.... 
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Jan 10, 2014
IanDarcy
1 post
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Optium do testers which test blood glucose but at a cost of about £20 for 10 test strips GPs are not usually keen to prescribe the strips |
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Jan 10, 2014
youone
102 posts
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Topic: Carbohydrate Counting / reliable metre readings
the omnipod has a built in meter, which works along side the PDM, yes your correct the success of the pump is down to how the user uses it, I've adapted very quickly and use all the omnipod options to control my condition over a very varying day. with good results. the question I asked was the pump technology out of sync with present BG testing, since the omnipod can survive and work to a very accurate level in a very demanding real world. I understand what many say about dirty hands and other elements that send readings out of spec, I don't want to argue over points that I Recognize people on here know and have a better understanding. The omnipod has given me freedom to do things that I couldn't do before so it 's put me in situations where although the pod can handle it with ease the meter or the present way of testing for your BG is out of sync ( ie its off putting), so where you gained freedom to do things with the pump your held back with the present setup for BG testing. I like you re test if I aren't happy with a reading I said that in the original question, in this case I used a 2nd meter which gave a different reading by far, I re tested on the omnipod with a similar result, both the omnipod PDM and the strips where replaced in a space of days. I found both companies very understanding and helpful, I may be asking for to much but unless we ask things don't happen or change, its time in my opinion the a better method was used to test BG levels In a very demanding world we type 1's are always put under stress to cope with normal day life, I expect many of us have seen the expression on Dafne students when the nurse askes them to test 4 to 6 times a day. you know its a body blow to them, the 1 thing that can help you control your condition is the most off putting, hence weather its faulty strips or dirty hands a better friendly way of testing is needed. |
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Jan 10, 2014
Vickyp
137 posts
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insulin sensitivity, and the fact am trying for a family and they prefer pregnant/preconceptive females to be on the pump! |
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Jan 10, 2014
novorapidboi26
1,819 posts
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Topic: Carbohydrate Counting / reliable metre readings So the pump is down to your insulin sensitivity........?I thought that maybe you could have given yourself a few units of long acting insulin for the day, but I could see how that would be unsuitable..... You really are very special eh...? (I vaguely remember your story now..).... 
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Jan 10, 2014
Vickyp
137 posts
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I also went straight on insulin die to cholesterol and triglyceride levels (18 and 39 respectively at diagnosis!!) |
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Jan 10, 2014
Vickyp
137 posts
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Topic: Carbohydrate Counting / reliable metre readings im sure I explained it somewhere. I am on the pump as need insulin in such small amounts and am insulin sensitive. On MDI I was having major hypos (1.7 etc) and that was with tiny ratios and a half-unit pen. I now average 4 units of insulin a day! They think I may produce small amount of insulin over night but as they day wears on I need more and more insulin from the pump!Endo also mentioned glygogen/glucagon and possibly also reactive hypoglycaemia...I am weird! But also one of the best controlled he has..HBA1c currently at 42 ( was 54 last year!) They class it as secondary diabetes, post-parandial diabetes has also been mentioned but then my BGs should go up in the mornings not down!! |
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Jan 10, 2014
novorapidboi26
1,819 posts
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Topic: Carbohydrate Counting / reliable metre readings So you cant be a normal type 1, you must be MODY maybe, still producing your own insulin...?And if so, why the pump...... I realize you may have explained this before on here, but I cant remember if you have.... |
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Jan 10, 2014
Vickyp
137 posts
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Topic: Carbohydrate Counting / reliable metre readings Novorapidboi....I am heading into hospital next week for tests as I have no basal from midnight until 5pm and still dip! I dip everyday between 10am and 11am, and usually between 4pm and 5pm regardless of what have had for breakfast or lunch. I do bolus at lunch, with another recent increase of ratio to 60g:1U, which has helped a bit, but take no bolus at anytime before midday!!!I have to temp basal the pump of off for 17hours a day. My endo cant explain either, hence the tests...possibly to do with the chronic pancreatitis?! |
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Jan 10, 2014
novorapidboi26
1,819 posts
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Topic: Carbohydrate Counting / reliable metre readings so your eating carbs with no bolus yet your still dropping.......?that would suggest basal issues.....no? you could maybe try temp basals to avoid the carbs.....
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Jan 10, 2014
Vickyp
137 posts
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Topic: Carbohydrate Counting / reliable metre readings I have random dips but can almost guarantee one whilst driving! Especially if I am driving in the morning or mid afternoon...last summer I dropped from 10.8 ( had breakfast with no bolus!) to 3.4 within 1.5hrs of driving!If on long journeys I always stop BEFORE the 2 hour limit, generally around 1.5hrs and generally always eat before driving if going to be driving for more than and hour! Doesn't always work as at Christmas had 2cps as was 4.4, got upto 5.5 before driving, assuming I would rise further having had 2 cps but just 45 minutes later was at 4.0! |
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Jan 10, 2014
novorapidboi26
1,819 posts
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Topic: General Discussion / My Blood Glucose Diary - problems good reason to keep paper copies...........I swear by it, or at least I did before pumping...........I rarely write it down now unless I am homing in on an issue..... |
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Jan 10, 2014
novorapidboi26
1,819 posts
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Topic: Carbohydrate Counting / reliable metre readings Is the cp before driving just precautionary.........?Has there been times when you have dipped because you didn't take on a carb? |
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Jan 10, 2014
Vickyp
137 posts
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Topic: Questions for HCPs / Cholestrol Hi Jade-Ellen...well done on reducing cholesterol. I have got mine from 18!!!! to 5.6 through diet and insulin (they think the high levels were due to undiagnosed rare diabetes). As I am of child bearing age (and planning to have a family) they wont put me on statins to reduce it further, similar issue with Triglycerides (39 down to 3.1) which is still high but again wont give me treatment.I hope you are not in the same boat (planning a family) as the statins are detrimental to a foetus! Vicky x |
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Jan 10, 2014
Vickyp
137 posts
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Topic: Carbohydrate Counting / reliable metre readings I am on the Omnipod and if I get a rouge reading - where I know its not right ( I roughly know when I dip below 4.5 and am over 10) I retest with an other strip...I only use my other meter for ketone testing - was always told to only use one meter due to the result being unreliable.I know that all strips should work correctly but NOTHING ever works 100% correctly 100% of the time! Also me being me at 5.5 before driving I would still have atleast 1 CP...as I could be on a dip and don't want that to happen whilst driving anyway. |
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Jan 10, 2014
johngriffin
1 post
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Topic: General Discussion / My Blood Glucose Diary - problems Worked briefly for me this morning, I swear this is Murphy's Law because I had my 6 week "post" Dafne review yesterday and I was hoping to export the diary as a PDF and print it
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Jan 10, 2014
mum2westiesGill
502 posts
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Topic: General Discussion / My Blood Glucose Diary - problems Getting this message again today:We're sorry, but something went wrong. We've been notified about this issue and we'll take a look at it shortly |