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Jan 18, 2014
NuMo 28 posts

Topic: General Discussion / Tresiba

Hello Joza

Vickyp is right - a pump is an excellent tool to help with insulin sensitivity. I too am insulin sensitive and am on the waiting list for a pump. I find it a nuisance being insulin sensitive, my ratio is 1/2u to 1CP, so a tiny error either way with carb counting has massive effects. I am also physically active (not athletic status I hasten to add), and this makes control even more difficult. My basal is 3u Levemir twice daily. This works for me as I can reduce the dose when I have been particularly active. This is usually the evening dose (as I often exercise in the evening), which I reduce by 1/2u if I feel my BG level and degree of exercise warrants it. This usually prevents a nightime hypo and if I have been over cautious, I correct in the morning. Lantus or such a long acting insulin as Tresiba seems to be would therefore not be appropriate for my situation. Have you spoken to your Dafne team? Mine are very helpful, in fact it was they who first suggested I try a pump. I would have thought a pump for you would be cheaper long term.

I googled Forxiga, and it seems to be a type 2 drug. Why are they giving you that?

I was on various type 2 drugs before they realised I was type 1, and looking back at my figures it is clear they did nothing to control my diabetes. And you are right - the side effects are unpleasant. I am much better and feel much better now I am on insulin - even though my control is poor despite my best efforts.

As one grandmother to another, you owe it to your family to stay well, so please go back to your Dafne team and if they suggest a pump, then stick to your guns and don't be talked out of it.
 
Jan 18, 2014
mum2westiesGill 502 posts

Topic: General Discussion / 7-day waking average

Good morning all Smile . 14.1 - 10:53am for me Sad
 
Jan 18, 2014
Peterdbennett 4 posts

Topic: Questions for HCPs / Endurance training

Warwick,
Thanks a million for the reply some detail really appreciate it. Only started using the diary with dafne past few days so not enough data points yet to make any sense of. See your points and was thinking along the same lines as what you are saying. Dont want to be going in too high just find you never get your ful potential out. Ill try your tips for training and see how we go. Thanks again really appreciate it. 40'C god we would be lucky to hit 4'C here in ireland. Ha ha all the best of luck with your upcoming events.
Peter
 
Jan 18, 2014
Warwick 425 posts

Topic: Questions for HCPs / Endurance training

Hi Peter,

It is a bit hard to tell from this without seeing your diary for your training. Does it happen every time? Are you able to share your diary with this thread?

For a sprint tri as you have described, I would worry more about lows than highs. The reason being that a sprint tri tends to be over pretty quickly (usually less than 2 hours), so any high can be corrected afterwards with QA. Lows, especially in the water are not desirable, so better to risk going a bit high than a bit low. Playing around with your BI (especially lowering it a little the night before a big training session) may also give you better control as you can then use QA to control the short-term nature of the event.

Have you had any issues in the past from going high - e.g. ketoacidosis? If not, then I don't think you need to worry about high BGs too much for training sessions of less than 2 hours.

I have the Diabetes Handbook and keep meaning to read it, but I do recommend ( a lot actually on this forum :-) ), this book here which will help you experiment to determine what works best for you:

http://www.amazon.com/Your-Diabetes-Science-Experiment-diabetes/dp/148106200X/ref=sr_1_1?ie=UTF8&qid=1390035270&sr=8-1&keywords=your+diabetes+science+experiment

For myself, I lower my BI the night before, and try and control the event more through QA if required. I tend to start a tri with BGs of around 13 having just taken in a load of sports drink. I carry a small packet of jelly beans in my swim cap in case I sense a hypo during the swim leg. Usually I exit the water with BGs between 5-6, and then take on about 4 x 750 ml bottles of sports drink on the bike. I then plan to start the run with BGs around 9-10 and take on regular sports drink.

(I should point out that this is for half ironman events - 2 km swim, 90 km bike and 21 km run, so it would differ a bit for a sprint tri like yours.) For a sprint tri, I'd still start with BGs of about 13 because I really don't want to hypo in the water, but I'd expect to need quite a bit less carb on the bike and run legs, and I'd be aiming for BGs of around 8-10 in both T1 and T2.

Keep your QA for transition in case you need it, but you shouldn't need to carry it on you while you are cycling and running.

I have a half ironman in a couple of weeks which I am very nervous about. The last four days here in Melbourne have had temperatures in excess of 40 degrees and I have no idea what a half ironman in such temperatures is going to do for my BGs. Some thing you just can't really find out in training :-)

All the best for it. Triathlons are awesome.

Warwick.
 
Jan 18, 2014
Peterdbennett 4 posts

Topic: Questions for HCPs / Endurance training

Hey looking for a bit of help please with endurance training. Looking at competing in a triathlon later in the year. 750m swim, 5k run 20k bike. At the moment having no probs if I train for individual events i.e. going for a run or a swim but when i start combining for brick sessions i.e swim followed by a run I’m starting to see my bg doing some fairly funky stuff. Seeing them start to drop off after run to only rise high post swim with no additional carbs. Bought the Diabetics athletes handbook just waiting on it to arrive but in the meantime would anyone be able to offer some advice.
thanks
Peter
 
Jan 17, 2014
Vickyp 137 posts

Topic: General Discussion / Tresiba

Definite thumbs up to pump for insulin sensitivity...one of the main reasons I was put on pump and am loads better!
 
Jan 17, 2014
joza 4 posts

Topic: General Discussion / Tresiba

Thank you for your reply and thoughts.

I am 64 and have been struggling with this for 19 years. Hypos are the problem, usually at night and mostly I am aware of them or catch them just before they happen. I have obviously had Lantus and Levemir subsequently splitting the Levemir twice daily. It seems that I am "sensitive" to insulin. My family were convinced that I was still making insulin and that this was the cause. If I do anything out of the ordinary i.e, grandmotherly duties or simply chasing around the supermarket/housework I would drop low. My NHS doctor wrote to my GP about a pump. She talked me out of it (again I think it was a cost issue).

Last year my husband met someone who suggested a Consultant in London who had helped him and that I should try. The consultant arranged a C. Peptide blood test which proved that I am most definitely Type 1 with zilch insulin of my own. He prescribed Tresiba BUT he wanted me to use 2 different tablets (morning only) using insulin as usual for the other 2 meals. I am ashamed to say I do have the tablets but am afraid to take them as one of them is quite new with some rubbish side effects (so the internet says). The main problem pill is called Forxiga (Dapagliflozin). So, the only change I made was to switch to Tresiba. ...........that's the story.
 
Jan 17, 2014
novorapidboi26 1,819 posts

Topic: General Discussion / Tresiba

An ultra long basal insulin, up to 40 hours, that's impressive..........

I would suspect as you its down to cost and getting things approved through the normal channels of the NHS.........might just be a matter a time...

why were you at a private consultation about your diabetes.....?

Unless you want to pay for it yourself I see no reason....
 
Jan 17, 2014
joza 4 posts

Topic: General Discussion / Tresiba

Is anyone using this new insulin yet? Both my GP and hospital doctor will not supply it. My feeling is that this is due to cost. As it has been passed by NICE surely it is safe. I have obtained Tresiba from a private consultation with an Endocrinologist.
 
Jan 17, 2014
JayBee 587 posts

Topic: General Discussion / My Blood Glucose Diary - problems

marke said:
Hi, We have made some progress and hopefully will be able to test some fixes over the weekend. We obviously need to be careful, its one thing it being slow its another to kill it completely Embarassed



Oh yes of course! I will grab a backup in case of the worst case scenario.

Best of luck! Sad
 
Jan 17, 2014
marke 686 posts

Topic: General Discussion / My Blood Glucose Diary - problems

Hi, We have made some progress and hopefully will be able to test some fixes over the weekend. We obviously need to be careful, its one thing it being slow its another to kill it completely Embarassed
 
Jan 17, 2014
JayBee 587 posts

Topic: General Discussion / Glucose monitoring contact lenses

As much as I loathe wearing contact lenses, this is still pretty awesome news. Smile
 
Jan 17, 2014
JayBee 587 posts

Topic: General Discussion / My Blood Glucose Diary - problems

marke said:
Hi, Yes we have not resolved the issues at the moment. We are still trying to work out what the problem is, it works fine in our test setup but not on the live site for some reason. I WILL post on this thread as soon as there are any developments.



Cool. I just started another thread about it. I will check here. Smile
 
Jan 17, 2014
JayBee 587 posts

Topic: Site Development / Website BG Diary Access

Ah, thank ya kindly whiskymum Smile
 
Jan 17, 2014
mum2westiesGill 502 posts

Topic: Site Development / Website BG Diary Access

http://www.dafneonline.co.uk/forums/1/topics/2359

 
Jan 17, 2014
JayBee 587 posts

Topic: Site Development / Website BG Diary Access

Hi y'all,

I was wondering if anyone else was seeing this message when they try to view their BG diary on the website (I'm currently doing so through Firefox version 26.0) :

"We're sorry, but something went wrong.
We've been notified about this issue and we'll take a look at it shortly."

I cannot do anything like send my diary entries through the Android phone app to anyone (and most of my HCPs have trouble looking at my Android phone's DAFNE app on screen despite it's large size) so having the option to copy/paste from here is quite vital. I think BG diary entries are still uploading okay on a related note since I've managed to gain access on rare occassions.

I will keep trying in case it does decide to show the page.
Thanks in advance. I hope the site is doing alright. Sad

Edit: Still bit hit and miss, but I've managed to get my entries for my appointment today. Is anyone else having the same trouble?
 
Jan 17, 2014
novorapidboi26 1,819 posts

Topic: General Discussion / Glucose monitoring contact lenses

excellent....... Laughing
 
Jan 17, 2014
JamesW 24 posts

Topic: General Discussion / Glucose monitoring contact lenses

Google are developing contact lenses that can monitor blood glucose levels.....

http://www.theregister.co.uk/2014/01/17/google_contact_lens/
 
Jan 16, 2014
stephenbrowne 37 posts

Topic: General Discussion / Snacks

Interesting to read of others' experiences. I agree that for hypos I need rapidly acting carbohydrate and I always carry a small bottle of classical Lucozade with me and about 4 small bottles in the car. The only problem with carrying this everywhere is it is rather heavy! A convenient alternative is Glucojuice which comes in a 60ml bottle = 15 g CHO ( 1.5 CHO portions).
If I am exercising such as walking or mowing the lawn I find that Sainsbury's Fruit Jellys work fairly fast and are relatively palatable, more so than jelly babies and each is = 10g CHO ( 1 CHO portion). Glucotabs can be helpful as they come is a robust plastic tube, each tablet being = 4g CHO so one would need about 3-4 at a time. I used to use Dextrosol tablets but found the packet gets tatty and if I have not used them recenltly they go very hard and almost impossible to dissolve in the mouth quickly. I have found chewing glucose tablets and trying to keep them in the mouth for as long as possible is helpful for a quick response as the glucose is absorbed through the buccal mucosa ( the liniing of the mouth without waiting to go through the stomach. I know some people use snacks like Mars bars etc but these never seem to work quickly enough for me and my blood sugar continues to go down after taking a Mars bar ( or rather part of one) and the goes terribly high . I tend to avoid snacks except if I am walking and my blood sugar is on the way down though not hypoglycaemic. I may then have a biscuit or even a chocolat. My weight is generally stable in the normal range but I am anxious not to gain weight as this would increase my insulin requirement and and may lead to a vicious cycle of weight gain and escalating dosage.
 
Jan 16, 2014
novorapidboi26 1,819 posts

Topic: General Discussion / My Recent BGs - comments wanted please

Just from your description of your change to your Lantus dose...........

You seem to be just looking at the pre bed and fasting levels when considering a change, now this is good, its the best place to start, but what about your background needs during the day.

Every time you increase or decrease your Lantus in order to hold steady overnight you will be effecting your daytime blood sugars.

Thats why a split would be good, as you could adjust the background for the day and night separately, and so if there was an issue with dose you can focus on fixing it without disturbing the problem free portion of the day...

Levemir is a shorter acting background with less of a peak, probably better suited to most who are splitting. Th effects of any change you make to Levemir can also be seen the next day. Lantus can be split and work but any dose change needs time to settle in before you see results.......
 
Jan 16, 2014
mum2westiesGill 502 posts

Topic: General Discussion / My Recent BGs - comments wanted please

novorapidboi26 said:
I think you need to split your background insulin dose..........

Any chance on a move to Levemir....?



Thanks for taking a look.

Why would you suggest maybe doing a split BI?

I've never asked about the possibility of going on Levemir - bit scared really about a change in insulin. I've been on lantus for a very long time now since ?
 
Jan 16, 2014
novorapidboi26 1,819 posts

Topic: General Discussion / My Recent BGs - comments wanted please

I think you need to split your background insulin dose..........

Any chance on a move to Levemir....?
 
Jan 15, 2014
mkennerley 6 posts

Topic: Site Development / Ios app not syncing diary

OK, but I can't see them on the website either?
So is it attempting to upload them but timing out?
 
Jan 15, 2014
marke 686 posts

Topic: Site Development / Ios app not syncing diary

Hi, looking at the logs you ARE updating diary entries on the site and I can see loads of entries created in the last few days. I suspect the issue is you app is uploading lots of entries and we seem to have a performance issue with the site at the moment. The app is probably not getting a response quick enough and thinks it has lost connection when its just slow. Hopefully we will soon work out what the performance issue is.
 
Jan 15, 2014
SeaBee 1 post

Topic: Questions for HCPs / rice and pasta

The 100gr of the raw rice is 8.5CP and when it is cooked it will turn into 310gr of cooked rice because of the water it has absorbed during the cooking. The cooked 300gr is also 8.5CP, which is 2.8CP for every 100gr of cooked rice.

100 grams of cooked rice (3CP) is a much smaller amount of rice - roughly a third of example 1 - so the raw weight of 100gr of cooked rice would be about 35 grams (3CP). The same CP raw or cooked - but vastly different weights.

Also prefer to go by the raw weight and cook my rice separately because rice absorbs the water slowly during the cooking process, so if you don't cook the rice to its fullest absorption the cooked weight of 100gr of raw rice can vary from 200gr to 300gr which obviously makes a big difference to the final QA calculation.