Recent Posts - DAFNE Online

Jan 21, 2014

marke 646 posts

Topic: General Discussion / Glucose monitoring contact lenses

novorapidboi26 said:
I think at this early stage the lens can only alert the user to a low glucose level.

As far as glucose level management and monitoring goes its not there yet.......

I would prefer some kind of implant though......

I want a bionic hand like Douglas Renholm, but I guess the IT Crowd is not real Laughing

(to most of you anyway)

Jan 21, 2014

Alan 49 280 posts

Topic: General Discussion / Glucose monitoring contact lenses

Evidently it tests the glucose content of your tears - I would have thought there might be some delay in blood glucose affecting tear glucose - could this be a problem?

Jan 21, 2014

novorapidboi26 1,816 posts

Topic: General Discussion / Tresiba

Your GP should have nothing to do with the actual pump funding, that's your consultants job. Your consultant doesn't need your GPs permission.....

My GP takes nothing to do with my diabetes care....

I realize each place differs.......

The pump will be funded from your local PCT if your consultant says you need it.....

There is obviously a cost for the consumables, the insulin, tubing and reservoirs.......

If its a big problem I would change GPs....

Jan 21, 2014

joza 4 posts

Topic: General Discussion / Tresiba

Unfortunately, it is a problem. My local borough does not offer a pump service. My GP could refer me to a neighbouring borough or even to the Royal London/Barts, but chooses not to. It absolutely has to be a cost thing. The NHS hospital consultant has written on a couple of occasions to the GP. I waited and waited and heard nothing. I went to my GP to see if the hospital letters had been received and was poo-poohed out, told it would not be such a good idea and, therefore, I have given up. Might just as well hit my head against a brick wall. I'm also beginning to realise that yes, the Tresiba's extra long action is possibly causing a problem.

Jan 21, 2014

novorapidboi26 1,816 posts

Topic: General Discussion / Tresiba

As the others have said, a pump would eliminate your sensitivity problems as tiny amounts can be delivered.

Bouts of unplanned activity can also be catered for with temporary basal delivery.....

with your current hypo problems you would be a perfect candidate and should get one funded no problem....

Jan 21, 2014

novorapidboi26 1,816 posts

Topic: General Discussion / Glucose monitoring contact lenses

I think at this early stage the lens can only alert the user to a low glucose level.

As far as glucose level management and monitoring goes its not there yet....... Smile

I would prefer some kind of implant though...... Smile

Jan 21, 2014

mkennerley 6 posts

Topic: Site Development / Ios app not syncing diary

Yes all my entries are now showing in the diary. Very Happy

It also seems to be quite a bit quicker to display them.

Jan 21, 2014

Dave Tyrer 1 post

Topic: General Discussion / Glucose monitoring contact lenses

Sounds interesting, but I bet it will be expensive and with the reputation of companies like Google and yahoo etc I don't want my eyes to be hacked - surely there must be another option.
But seriously, I can't help but think that this must cause some sort of irritation to the eye - I'm quite shortsighted and need a fair correction anyway (-7) already with the complication of vari-focal lenses - I think it will not be possible for google to be in this space. The thought of possible things eventually like HUD etc would appeal, but we're probably a long way off that yet - surely research money would be better spent creating an artificial pancreas.

Jan 20, 2014

Simon 574 posts

Topic: Site Development / Ios app not syncing diary

Can you take a look again? We had some problems with the site glucose diary but it's been fixed now.

Jan 20, 2014

Simon 574 posts

Topic: Site Development / Website BG Diary Access

Just in case you're not monitoring the above topic, we've now fixed the issue, sorry for the inconvenience.

Jan 20, 2014

Simon 574 posts

Topic: General Discussion / Glucose monitoring contact lenses

I saw this today, and thought it was fantastic. I've always wanted to get continuous monitoring but without having something attached to my skin permanently, this is the answer...

Jan 20, 2014

BeccyB 50 posts

Topic: General Discussion / laser eye treatment

I had my first treatment on the 6th Jan this year and then a second a week later - initially I was worried as my opthamologist said it can be up to 15 sessions but thankfully I only needed 2!

It wasn't anywhere near as horrendous as I was conjuring up in my mind before I got there - it's a strange sensation but I wouldn't call it painful, although I was told it can be if you have prolonged treatment. As others have said it's just very peculiar not being able to follow your instinct to shut your eye when there's a bright light shining at it. As others have said, I found it more comfortable to close the other eye.

Afterwards there was some tenderness around my eye socket from the lens used to hold the eye open but only very mild, and no discomfort or anything in my actual eye. I did have a headache later in the day but that may have been caused by me trying to read with dilated pupils rather than the laser!

My opthamologist was wonderful and took plenty of time to explain the procedure beforehand and checked I was ok throughout.

Hope that helps anyone trying to make a decision or dreading their first session x

Jan 20, 2014

Garry 328 posts

Topic: General Discussion / My Blood Glucose Diary - problems

Thanks to you both.
Regards
Garry

Jan 19, 2014

marke 646 posts

Topic: General Discussion / My Blood Glucose Diary - problems

Hi, before I take all the glory I should point out that both Simon and I have been working on the problem and both probably contributed to the solution.

For the technically minded, a brief explanation. The website runs on top of a database, which is basically a place to store information. This was where the cause of the problem lay. The number of diary entries had reached such a level that reading them to display on the site was taking too long. This is partly because everyone's diary entries are stored together. The site knows who you are from your login and only reads your entries from the very long list. What we had to do was speed up the reading of the list. Simon changed the way it was read and I added things called indexes. Just like a book index, a database index helps you to find the information you want quicker. The two things together seem to have got things back to a reasonable speed. This stops the 'something went wrong' error because the web page gets the diary entries back quick enough and doesn't timeout presuming the entries are not coming.

It took a while to fix because it wasn't obvious initially what the problem was and then we needed to test any changes before making them live just in case.
thank you everyone for your patience.

Jan 19, 2014

JayBee 582 posts

Topic: General Discussion / My Blood Glucose Diary - problems

Thanks! ^_^

Jan 19, 2014

Alan 49 280 posts

Topic: General Discussion / My Blood Glucose Diary - problems

WELL DONE MARK!

Jan 19, 2014

mum2westiesGill 502 posts

Topic: General Discussion / My Blood Glucose Diary - problems

Seem to be back to it's normal self again thank you Very Happy

Jan 19, 2014

john m 15 posts

Topic: General Discussion / My Blood Glucose Diary - problems

we seem 2b back 2 normal thanks Very Happy

Jan 18, 2014

Vickyp 135 posts

Topic: General Discussion / Tresiba

When was on injections I too had a 0:5u:1cp ratio, except at breakfast when it was 0.5:1 then minus 0.5! With 5 units if levemir once a day! I am still on tiny ratios, which are lower than these but control is so much better, and I feel so much better and more in control!
The tiniest bit of extra exertion makes my go low, so know exactly where you are coming from. It was during my DAFNE course that they were suggesting a pump, so I spoke to consultant and within 2 months was given the pump, and life is so much better, I wouldn't go back to injections.
I would worry about a long acting basal and how my sugars would suffer from it. I champion the pump!

Jan 18, 2014

NuMo 28 posts

Topic: General Discussion / Tresiba

Hello Joza

Vickyp is right - a pump is an excellent tool to help with insulin sensitivity. I too am insulin sensitive and am on the waiting list for a pump. I find it a nuisance being insulin sensitive, my ratio is 1/2u to 1CP, so a tiny error either way with carb counting has massive effects. I am also physically active (not athletic status I hasten to add), and this makes control even more difficult. My basal is 3u Levemir twice daily. This works for me as I can reduce the dose when I have been particularly active. This is usually the evening dose (as I often exercise in the evening), which I reduce by 1/2u if I feel my BG level and degree of exercise warrants it. This usually prevents a nightime hypo and if I have been over cautious, I correct in the morning. Lantus or such a long acting insulin as Tresiba seems to be would therefore not be appropriate for my situation. Have you spoken to your Dafne team? Mine are very helpful, in fact it was they who first suggested I try a pump. I would have thought a pump for you would be cheaper long term.

I googled Forxiga, and it seems to be a type 2 drug. Why are they giving you that?

I was on various type 2 drugs before they realised I was type 1, and looking back at my figures it is clear they did nothing to control my diabetes. And you are right - the side effects are unpleasant. I am much better and feel much better now I am on insulin - even though my control is poor despite my best efforts.

As one grandmother to another, you owe it to your family to stay well, so please go back to your Dafne team and if they suggest a pump, then stick to your guns and don't be talked out of it.

Jan 18, 2014

mum2westiesGill 502 posts

Topic: General Discussion / 7-day waking average

Good morning all Smile

. 14.1 - 10:53am for me Sad

Jan 18, 2014

Peterdbennett 4 posts

Topic: Questions for HCPs / Endurance training

Warwick,
Thanks a million for the reply some detail really appreciate it. Only started using the diary with dafne past few days so not enough data points yet to make any sense of. See your points and was thinking along the same lines as what you are saying. Dont want to be going in too high just find you never get your ful potential out. Ill try your tips for training and see how we go. Thanks again really appreciate it. 40'C god we would be lucky to hit 4'C here in ireland. Ha ha all the best of luck with your upcoming events.
Peter

Jan 21, 2014 marke 646 posts	Topic: General Discussion / Glucose monitoring contact lenses novorapidboi26 said: I think at this early stage the lens can only alert the user to a low glucose level. As far as glucose level management and monitoring goes its not there yet....... I would prefer some kind of implant though...... I want a bionic hand like Douglas Renholm, but I guess the IT Crowd is not real (to most of you anyway)

Jan 21, 2014 Alan 49 280 posts	Topic: General Discussion / Glucose monitoring contact lenses Evidently it tests the glucose content of your tears - I would have thought there might be some delay in blood glucose affecting tear glucose - could this be a problem?

Jan 21, 2014 novorapidboi26 1,816 posts	Topic: General Discussion / Tresiba Your GP should have nothing to do with the actual pump funding, that's your consultants job. Your consultant doesn't need your GPs permission..... My GP takes nothing to do with my diabetes care.... I realize each place differs....... The pump will be funded from your local PCT if your consultant says you need it..... There is obviously a cost for the consumables, the insulin, tubing and reservoirs....... If its a big problem I would change GPs....

Jan 21, 2014 joza 4 posts	Topic: General Discussion / Tresiba Unfortunately, it is a problem. My local borough does not offer a pump service. My GP could refer me to a neighbouring borough or even to the Royal London/Barts, but chooses not to. It absolutely has to be a cost thing. The NHS hospital consultant has written on a couple of occasions to the GP. I waited and waited and heard nothing. I went to my GP to see if the hospital letters had been received and was poo-poohed out, told it would not be such a good idea and, therefore, I have given up. Might just as well hit my head against a brick wall. I'm also beginning to realise that yes, the Tresiba's extra long action is possibly causing a problem.

Jan 21, 2014 novorapidboi26 1,816 posts	Topic: General Discussion / Tresiba As the others have said, a pump would eliminate your sensitivity problems as tiny amounts can be delivered. Bouts of unplanned activity can also be catered for with temporary basal delivery..... with your current hypo problems you would be a perfect candidate and should get one funded no problem....

Jan 21, 2014 novorapidboi26 1,816 posts	Topic: General Discussion / Glucose monitoring contact lenses I think at this early stage the lens can only alert the user to a low glucose level. As far as glucose level management and monitoring goes its not there yet....... I would prefer some kind of implant though......

Jan 21, 2014 mkennerley 6 posts	Topic: Site Development / Ios app not syncing diary Yes all my entries are now showing in the diary. It also seems to be quite a bit quicker to display them.

Jan 21, 2014 Dave Tyrer 1 post	Topic: General Discussion / Glucose monitoring contact lenses Sounds interesting, but I bet it will be expensive and with the reputation of companies like Google and yahoo etc I don't want my eyes to be hacked - surely there must be another option. But seriously, I can't help but think that this must cause some sort of irritation to the eye - I'm quite shortsighted and need a fair correction anyway (-7) already with the complication of vari-focal lenses - I think it will not be possible for google to be in this space. The thought of possible things eventually like HUD etc would appeal, but we're probably a long way off that yet - surely research money would be better spent creating an artificial pancreas.

Jan 20, 2014 Simon 574 posts	Topic: Site Development / Ios app not syncing diary Can you take a look again? We had some problems with the site glucose diary but it's been fixed now.

Jan 20, 2014 Simon 574 posts	Topic: Site Development / Website BG Diary Access Just in case you're not monitoring the above topic, we've now fixed the issue, sorry for the inconvenience.

Jan 20, 2014 Simon 574 posts	Topic: General Discussion / Glucose monitoring contact lenses I saw this today, and thought it was fantastic. I've always wanted to get continuous monitoring but without having something attached to my skin permanently, this is the answer...

Jan 20, 2014 BeccyB 50 posts	Topic: General Discussion / laser eye treatment I had my first treatment on the 6th Jan this year and then a second a week later - initially I was worried as my opthamologist said it can be up to 15 sessions but thankfully I only needed 2! It wasn't anywhere near as horrendous as I was conjuring up in my mind before I got there - it's a strange sensation but I wouldn't call it painful, although I was told it can be if you have prolonged treatment. As others have said it's just very peculiar not being able to follow your instinct to shut your eye when there's a bright light shining at it. As others have said, I found it more comfortable to close the other eye. Afterwards there was some tenderness around my eye socket from the lens used to hold the eye open but only very mild, and no discomfort or anything in my actual eye. I did have a headache later in the day but that may have been caused by me trying to read with dilated pupils rather than the laser! My opthamologist was wonderful and took plenty of time to explain the procedure beforehand and checked I was ok throughout. Hope that helps anyone trying to make a decision or dreading their first session x

Jan 20, 2014 Garry 328 posts	Topic: General Discussion / My Blood Glucose Diary - problems Thanks to you both. Regards Garry

Jan 19, 2014 marke 646 posts	Topic: General Discussion / My Blood Glucose Diary - problems Hi, before I take all the glory I should point out that both Simon and I have been working on the problem and both probably contributed to the solution. For the technically minded, a brief explanation. The website runs on top of a database, which is basically a place to store information. This was where the cause of the problem lay. The number of diary entries had reached such a level that reading them to display on the site was taking too long. This is partly because everyone's diary entries are stored together. The site knows who you are from your login and only reads your entries from the very long list. What we had to do was speed up the reading of the list. Simon changed the way it was read and I added things called indexes. Just like a book index, a database index helps you to find the information you want quicker. The two things together seem to have got things back to a reasonable speed. This stops the 'something went wrong' error because the web page gets the diary entries back quick enough and doesn't timeout presuming the entries are not coming. It took a while to fix because it wasn't obvious initially what the problem was and then we needed to test any changes before making them live just in case. thank you everyone for your patience.

Jan 19, 2014 JayBee 582 posts	Topic: General Discussion / My Blood Glucose Diary - problems Thanks! ^_^

Jan 19, 2014 Alan 49 280 posts	Topic: General Discussion / My Blood Glucose Diary - problems WELL DONE MARK!

Jan 19, 2014 mum2westiesGill 502 posts	Topic: General Discussion / My Blood Glucose Diary - problems Seem to be back to it's normal self again thank you

Jan 19, 2014 john m 15 posts	Topic: General Discussion / My Blood Glucose Diary - problems we seem 2b back 2 normal thanks

Jan 18, 2014 Vickyp 135 posts	Topic: General Discussion / Tresiba When was on injections I too had a 0:5u:1cp ratio, except at breakfast when it was 0.5:1 then minus 0.5! With 5 units if levemir once a day! I am still on tiny ratios, which are lower than these but control is so much better, and I feel so much better and more in control! The tiniest bit of extra exertion makes my go low, so know exactly where you are coming from. It was during my DAFNE course that they were suggesting a pump, so I spoke to consultant and within 2 months was given the pump, and life is so much better, I wouldn't go back to injections. I would worry about a long acting basal and how my sugars would suffer from it. I champion the pump!

Jan 18, 2014 NuMo 28 posts	Topic: General Discussion / Tresiba Hello Joza Vickyp is right - a pump is an excellent tool to help with insulin sensitivity. I too am insulin sensitive and am on the waiting list for a pump. I find it a nuisance being insulin sensitive, my ratio is 1/2u to 1CP, so a tiny error either way with carb counting has massive effects. I am also physically active (not athletic status I hasten to add), and this makes control even more difficult. My basal is 3u Levemir twice daily. This works for me as I can reduce the dose when I have been particularly active. This is usually the evening dose (as I often exercise in the evening), which I reduce by 1/2u if I feel my BG level and degree of exercise warrants it. This usually prevents a nightime hypo and if I have been over cautious, I correct in the morning. Lantus or such a long acting insulin as Tresiba seems to be would therefore not be appropriate for my situation. Have you spoken to your Dafne team? Mine are very helpful, in fact it was they who first suggested I try a pump. I would have thought a pump for you would be cheaper long term. I googled Forxiga, and it seems to be a type 2 drug. Why are they giving you that? I was on various type 2 drugs before they realised I was type 1, and looking back at my figures it is clear they did nothing to control my diabetes. And you are right - the side effects are unpleasant. I am much better and feel much better now I am on insulin - even though my control is poor despite my best efforts. As one grandmother to another, you owe it to your family to stay well, so please go back to your Dafne team and if they suggest a pump, then stick to your guns and don't be talked out of it.

Jan 18, 2014 mum2westiesGill 502 posts	Topic: General Discussion / 7-day waking average Good morning all . 14.1 - 10:53am for me

Jan 18, 2014 Peterdbennett 4 posts	Topic: Questions for HCPs / Endurance training Warwick, Thanks a million for the reply some detail really appreciate it. Only started using the diary with dafne past few days so not enough data points yet to make any sense of. See your points and was thinking along the same lines as what you are saying. Dont want to be going in too high just find you never get your ful potential out. Ill try your tips for training and see how we go. Thanks again really appreciate it. 40'C god we would be lucky to hit 4'C here in ireland. Ha ha all the best of luck with your upcoming events. Peter