Recent Posts - DAFNE Online

Nov 10, 2015

Agall 1 post

Topic: General Discussion / Dosage auto-calculation in apps

Hi

Thanks for a wonderful App. Its so so disappointing that it has lost its main functionality, that of helping to calculate QA insulin etc.

Like most Type 1s (had it for 35 years) this was a most valuable function that saved time on peoples busy schedules, as we all know with this weird and wonderful disease ANYTHING that can help our daily routines is a bonus.

Is there anything we can do to put pressure on to get this function back into the App?

This in my view is draconian! we are living in 2015!

Thanks

AG

Nov 9, 2015

Simon 578 posts

Topic: Site Development / Formatting url BBcode is broken

I've just tested above and it seems to be working OK - can you try and use it in a post on this thread and I'll see where the code is messing up. Note you have to add in the the http:// on the URL.

Nov 9, 2015

Simon 578 posts

Topic: Site Development / Formatting url BBcode is broken

http://www.dafne.uk.com

DAFNE UK

Nov 6, 2015

JayBee 587 posts

Topic: Site Development / Formatting url BBcode is broken

When trying to use the url BBtag to add links to a post, it's rendered useless because the url BBcode puts the www.dafneonline.co.uk address bit to sit at the front of the link address when the post is up. It is just where it directs to; it does not change the displayed url if no custom text is added.

Just a heads up in case site devs weren't aware it was broken.

Thanks! Smile

Nov 4, 2015

grumpydunn 11 posts

Topic: DAFNE Online Mobile / DAFNE Excel Spreedsheat

send me your email address and I will email it to you

Nov 4, 2015

Tom Tait 1 post

Topic: DAFNE Online Mobile / DAFNE Excel Spreedsheat

Hi All,
I had a editable DAFNE chart in Microsoft excel has anyone got a copy they could email
me as I have misplaced it,

Regards

Tommy
Jervis Bay Australia

Nov 1, 2015

Alan 49 284 posts

Topic: General Discussion / Fewer injections

This device allows you to insert a port into your injection site and then inject into that port without injecting into your skin. Each port lasts 3 days and they cost Â£72 for a box of 10. It could be helpful if you have an issue with 5 injections a day, I suppose.

www.medtronic-diabetes.co.uk/minimed-products/i-port-advance?utm_source=Desang&utm_medium=Advert&utm_campaign=i-Port Advance Desang

I think the above link works if you Copy and Paste it.

Nov 1, 2015

DavidBlackman 6 posts

Topic: General Discussion / Dosage auto-calculation in apps

Applications in general. I take it from the posts that a number of people highly value the DAFNEonline app so I assume that a lot of type 1s use a variety of these apps to help them manage their diabetes. I have just read through the NICE, and Australian equivalent, health care professionals guidelines for treating type 1s and there is NO mention anywhere of the benefits of these apps. On that basis my assumption is that many type 1s are well ahead of the HCPs in understanding the benefits of this tool.

Any thoughts anyone?

David, Australia.

Oct 30, 2015

Type1Bri 11 posts

Topic: General Discussion / Meet up with some fellow type 1's

Hi

We are meeting on the 28th November at 12.30pm in The Crown and two chairman pub in Dean Street London
Would be great to see you there Nita

Oct 30, 2015

Nita 7 posts

Topic: General Discussion / Meet up with some fellow type 1's

Hi
I would love to meet up, where are you planning to meet up. I work in London in Aldwych, if it is office space/meeting room I can help you out. Please contact me on 07852805950. Regards Nita

Oct 29, 2015

Type1Bri 11 posts

Topic: General Discussion / Meet up with some fellow type 1's

Hi All

I am a member on the forum at diabetes.co.uk
We are planning a meet up in Central London on Saturday 28th November
If anybody fancies going please message me or join up to the forums on diabetes.co.uk and look out for the thread there
We have met up 3 times this year and each time it has been great to meet others in the same boat so to speak

Oct 29, 2015

Jack Butel 6 posts

Topic: General Discussion / Insulin Holdalls

jalacy, thanks for that something that I had not considered. will let you know how I get on.

Oct 29, 2015

jalacy 2 posts

Topic: General Discussion / Insulin Holdalls

I recommend the pencil case in STAPLES. It is the the perfect size opens up fully and has a little inside pocket for needles etc. It is mall enough to be fairly unobtrusive and light. I find the kit bags tend to be over the top and heavy. Good Luck!

Oct 28, 2015

Garry 328 posts

Topic: Questions for HCPs / Red spot on leg

Bit late to reply I'll admit. Is it around an injection site? Have you been bitten? Hope it has cleared up now and you are back to normal.
Regards
Garry

Oct 26, 2015

Claire007 4 posts

Topic: General Discussion / Newly graduated!

Thank you for your replies, I'm definitely interested in the libra, but I understand there's a bit of a waiting list! I may as well express an interest now I guess and start saving my pennies!
I'm doing ok thanks Sarah, still a little nervous if I have to give a correction as I'm very sensitive at the moment due to the honeymoon so always err on the side of caution!
Good to know I can have access to the data in the long term, cheers.

Oct 26, 2015

Claire007 4 posts

Topic: General Discussion / Dosage auto-calculation in apps

I shall aim to spread the word where I can! I'll mention the data that can be gleaned at the dafne follow up in a few weeks. Thanks for your reply.

Oct 25, 2015

Sarahjhobson 1 post

Topic: General Discussion / Newly graduated!

Hi claire. Hope ur getting on ok x

Oct 25, 2015

marke 686 posts

Topic: General Discussion / Newly graduated!

Hi, just replied to the course stuff on your other posting, but with regards to entries there is currently no expiration and they will be available as long as the site is. Although we have a large number of readings stored on the site, storage space is cheap and we have no reason to delete anything.If we ever got to the stage where we needed to delete anything we would give advanced warning and explain how to export the data from the site so you can keep copies of any data that is removed.
Posting levels on the site do go up and down depending on what is happening in the world of Diabetes. The release of the Freestyle Libre caused a fair bit of discussion and the sooner other similar meters appear the better. Nothing against the Libre its just getting the sensors that is a challenge. If you are interested in technology and Diabetes this is the must have device Smile

Oct 25, 2015

marke 686 posts

Topic: General Discussion / Dosage auto-calculation in apps

Hi Claire, sorry but its not worth complaining since the MHRA are a licensing authority. This basically means they are a non-elected public body that really don't care either way if you are upset that the feature has been removed. Their sole focus is patient safety and in their view because the 'dose calculation' relates to insulin that is a potentially lethal drug it has to be licensed,
The issue with licensing is continued funding, not just getting the initial license, I think ultimately we need to work with a drugs company to do this. This is also the case for the next DAFNE 'Project' and so our home is it might be included in that and get funded that way. We fully appreciate how annoying it is for people it is annoying to us too !
I agree with your comments about the app and the course, however its taken 3 or 4 years to even get the site and the app mentioned in the course so expanding the coverage of it will take a while, Perhaps the previously mentioned 'project' might change this as 'online' accessibility and support is a bigger feature of it. However since it has not started yet we may have to wait a while. Simon and I have been promoting the app to the DAFNE medical people at the last 2 annual conferences and did a presentation of it at Addenbrookes ( cambridge) at their open day so we promote it where we can.

Oct 24, 2015

Nat-Sav 15 posts

Topic: General Discussion / restaurants

(It's under DAFNE Tools - Carb Counter - Carb Links.)

Oct 24, 2015

Claire007 4 posts

Topic: General Discussion / Dosage auto-calculation in apps

Well that's a shame! I only graduated yesterday so came straight on here then downloaded the App. I noticed the reviews complaining about the removal of this feature and had been trying to find out why as I presumed it was a licencing issue.
That aside, OMG the graphs! I luffs em! So useful to be able to see patterns. A calculator option would have been so useful, I'm not so good at maths and my ratio is likely to change to 3/4 of a unit to 1CP. ( newly diagnosed & honeymooning) To be honest, it fries my brain thinking about it.

I guess the key thing is,
Is it worth complaining to the MHRA along the lines of 'look how frigging complicated our lives are as it is, it's essentially a calculator, please let dafne on line re install it'
OR,
Will a complaint fall on deaf ears as there's no way round it other than to get the license? Therefore we need to try and raise cash/source funding?
Hmmmm,
I notice Simon is also a graduate of STH Smile

it would have been good if they'd shown some screen shots of the kind of data you can get from the App to encourage more graduates to use it.

Oct 24, 2015

alturn 78 posts

Topic: General Discussion / Newly graduated!

Welcome to the club Very Happy

My DSN's also did my course, which made a big difference to my control, and confidence to manage BG. Think it's excellent you got on the course so soon after diagnosis.
Usage of the forum varies, it does seem to be on a less active phase recently. But you can still use the forums to search for help, often someone has hit a similar issue.
Good luck.

Oct 24, 2015

Claire007 4 posts

Topic: General Discussion / Newly graduated!

Hello! I've just completed my DAFNE course and joined up. Thoroughly enjoyed the course, even though the DAFNE course leader is my DSN, I still learnt a lot. I've only been diagnosed 6 months, was carb counting from day one but found it Invaluable.
I love the on line diary & App! All the different graphs are so useful, I have been looking for something like this since diagnosis to no avail so huge thanks. I'm surprised that as part of the course, they don't actually show you this site and the data you can get from it, or at least some screen shots with personal details removed, I guess from the 7 on the course though, probably only me and one other person will want to use an on line version. How long do entires remain accessible?
The forum does seem rather quiet! Is that because nobody needs much support once they're applying the principals!? Laughing

Nov 10, 2015 Agall 1 post	Topic: General Discussion / Dosage auto-calculation in apps Hi Thanks for a wonderful App. Its so so disappointing that it has lost its main functionality, that of helping to calculate QA insulin etc. Like most Type 1s (had it for 35 years) this was a most valuable function that saved time on peoples busy schedules, as we all know with this weird and wonderful disease ANYTHING that can help our daily routines is a bonus. Is there anything we can do to put pressure on to get this function back into the App? This in my view is draconian! we are living in 2015! Thanks AG

Nov 9, 2015 Simon 578 posts	Topic: Site Development / Formatting url BBcode is broken I've just tested above and it seems to be working OK - can you try and use it in a post on this thread and I'll see where the code is messing up. Note you have to add in the the http:// on the URL.

Nov 9, 2015 Simon 578 posts	Topic: Site Development / Formatting url BBcode is broken http://www.dafne.uk.com DAFNE UK

Nov 6, 2015 JayBee 587 posts	Topic: Site Development / Formatting url BBcode is broken When trying to use the url BBtag to add links to a post, it's rendered useless because the url BBcode puts the www.dafneonline.co.uk address bit to sit at the front of the link address when the post is up. It is just where it directs to; it does not change the displayed url if no custom text is added. Just a heads up in case site devs weren't aware it was broken. Thanks!

Nov 4, 2015 grumpydunn 11 posts	Topic: DAFNE Online Mobile / DAFNE Excel Spreedsheat send me your email address and I will email it to you

Nov 4, 2015 Tom Tait 1 post	Topic: DAFNE Online Mobile / DAFNE Excel Spreedsheat Hi All, I had a editable DAFNE chart in Microsoft excel has anyone got a copy they could email me as I have misplaced it, Regards Tommy Jervis Bay Australia

Nov 1, 2015 Alan 49 284 posts	Topic: General Discussion / Fewer injections This device allows you to insert a port into your injection site and then inject into that port without injecting into your skin. Each port lasts 3 days and they cost Â£72 for a box of 10. It could be helpful if you have an issue with 5 injections a day, I suppose. www.medtronic-diabetes.co.uk/minimed-products/i-port-advance?utm_source=Desang&utm_medium=Advert&utm_campaign=i-Port Advance Desang I think the above link works if you Copy and Paste it.

Nov 1, 2015 DavidBlackman 6 posts	Topic: General Discussion / Dosage auto-calculation in apps Applications in general. I take it from the posts that a number of people highly value the DAFNEonline app so I assume that a lot of type 1s use a variety of these apps to help them manage their diabetes. I have just read through the NICE, and Australian equivalent, health care professionals guidelines for treating type 1s and there is NO mention anywhere of the benefits of these apps. On that basis my assumption is that many type 1s are well ahead of the HCPs in understanding the benefits of this tool. Any thoughts anyone? David, Australia.

Oct 30, 2015 Type1Bri 11 posts	Topic: General Discussion / Meet up with some fellow type 1's Hi We are meeting on the 28th November at 12.30pm in The Crown and two chairman pub in Dean Street London Would be great to see you there Nita

Oct 30, 2015 Nita 7 posts	Topic: General Discussion / Meet up with some fellow type 1's Hi I would love to meet up, where are you planning to meet up. I work in London in Aldwych, if it is office space/meeting room I can help you out. Please contact me on 07852805950. Regards Nita

Oct 29, 2015 Type1Bri 11 posts	Topic: General Discussion / Meet up with some fellow type 1's Hi All I am a member on the forum at diabetes.co.uk We are planning a meet up in Central London on Saturday 28th November If anybody fancies going please message me or join up to the forums on diabetes.co.uk and look out for the thread there We have met up 3 times this year and each time it has been great to meet others in the same boat so to speak

Oct 29, 2015 Jack Butel 6 posts	Topic: General Discussion / Insulin Holdalls jalacy, thanks for that something that I had not considered. will let you know how I get on.

Oct 29, 2015 jalacy 2 posts	Topic: General Discussion / Insulin Holdalls I recommend the pencil case in STAPLES. It is the the perfect size opens up fully and has a little inside pocket for needles etc. It is mall enough to be fairly unobtrusive and light. I find the kit bags tend to be over the top and heavy. Good Luck!

Oct 28, 2015 Garry 328 posts	Topic: Questions for HCPs / Red spot on leg Bit late to reply I'll admit. Is it around an injection site? Have you been bitten? Hope it has cleared up now and you are back to normal. Regards Garry

Oct 26, 2015 Claire007 4 posts	Topic: General Discussion / Newly graduated! Thank you for your replies, I'm definitely interested in the libra, but I understand there's a bit of a waiting list! I may as well express an interest now I guess and start saving my pennies! I'm doing ok thanks Sarah, still a little nervous if I have to give a correction as I'm very sensitive at the moment due to the honeymoon so always err on the side of caution! Good to know I can have access to the data in the long term, cheers.

Oct 26, 2015 Claire007 4 posts	Topic: General Discussion / Dosage auto-calculation in apps I shall aim to spread the word where I can! I'll mention the data that can be gleaned at the dafne follow up in a few weeks. Thanks for your reply.

Oct 25, 2015 Sarahjhobson 1 post	Topic: General Discussion / Newly graduated! Hi claire. Hope ur getting on ok x

Oct 25, 2015 marke 686 posts	Topic: General Discussion / Newly graduated! Hi, just replied to the course stuff on your other posting, but with regards to entries there is currently no expiration and they will be available as long as the site is. Although we have a large number of readings stored on the site, storage space is cheap and we have no reason to delete anything.If we ever got to the stage where we needed to delete anything we would give advanced warning and explain how to export the data from the site so you can keep copies of any data that is removed. Posting levels on the site do go up and down depending on what is happening in the world of Diabetes. The release of the Freestyle Libre caused a fair bit of discussion and the sooner other similar meters appear the better. Nothing against the Libre its just getting the sensors that is a challenge. If you are interested in technology and Diabetes this is the must have device

Oct 25, 2015 marke 686 posts	Topic: General Discussion / Dosage auto-calculation in apps Hi Claire, sorry but its not worth complaining since the MHRA are a licensing authority. This basically means they are a non-elected public body that really don't care either way if you are upset that the feature has been removed. Their sole focus is patient safety and in their view because the 'dose calculation' relates to insulin that is a potentially lethal drug it has to be licensed, The issue with licensing is continued funding, not just getting the initial license, I think ultimately we need to work with a drugs company to do this. This is also the case for the next DAFNE 'Project' and so our home is it might be included in that and get funded that way. We fully appreciate how annoying it is for people it is annoying to us too ! I agree with your comments about the app and the course, however its taken 3 or 4 years to even get the site and the app mentioned in the course so expanding the coverage of it will take a while, Perhaps the previously mentioned 'project' might change this as 'online' accessibility and support is a bigger feature of it. However since it has not started yet we may have to wait a while. Simon and I have been promoting the app to the DAFNE medical people at the last 2 annual conferences and did a presentation of it at Addenbrookes ( cambridge) at their open day so we promote it where we can.

Oct 24, 2015 Nat-Sav 15 posts	Topic: General Discussion / restaurants There's a handy list of restaurants/cafÃ©s etc. at http://dafneonline.co.uk/csites. (It's under DAFNE Tools - Carb Counter - Carb Links.)

Oct 24, 2015 Claire007 4 posts	Topic: General Discussion / Dosage auto-calculation in apps Well that's a shame! I only graduated yesterday so came straight on here then downloaded the App. I noticed the reviews complaining about the removal of this feature and had been trying to find out why as I presumed it was a licencing issue. That aside, OMG the graphs! I luffs em! So useful to be able to see patterns. A calculator option would have been so useful, I'm not so good at maths and my ratio is likely to change to 3/4 of a unit to 1CP. ( newly diagnosed & honeymooning) To be honest, it fries my brain thinking about it. I guess the key thing is, Is it worth complaining to the MHRA along the lines of 'look how frigging complicated our lives are as it is, it's essentially a calculator, please let dafne on line re install it' OR, Will a complaint fall on deaf ears as there's no way round it other than to get the license? Therefore we need to try and raise cash/source funding? Hmmmm, I notice Simon is also a graduate of STH it would have been good if they'd shown some screen shots of the kind of data you can get from the App to encourage more graduates to use it.

Oct 24, 2015 alturn 78 posts	Topic: General Discussion / Newly graduated! Welcome to the club My DSN's also did my course, which made a big difference to my control, and confidence to manage BG. Think it's excellent you got on the course so soon after diagnosis. Usage of the forum varies, it does seem to be on a less active phase recently. But you can still use the forums to search for help, often someone has hit a similar issue. Good luck.

Oct 24, 2015 Claire007 4 posts	Topic: General Discussion / Newly graduated! Hello! I've just completed my DAFNE course and joined up. Thoroughly enjoyed the course, even though the DAFNE course leader is my DSN, I still learnt a lot. I've only been diagnosed 6 months, was carb counting from day one but found it Invaluable. I love the on line diary & App! All the different graphs are so useful, I have been looking for something like this since diagnosis to no avail so huge thanks. I'm surprised that as part of the course, they don't actually show you this site and the data you can get from it, or at least some screen shots with personal details removed, I guess from the 7 on the course though, probably only me and one other person will want to use an on line version. How long do entires remain accessible? The forum does seem rather quiet! Is that because nobody needs much support once they're applying the principals!?