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Dec 16, 2015
stephenbrowne 37 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Hi Alan and Phil,
I note than the combined Freestyle starter kit of a reader plus 2 sensors is currently unavailable at £160 but it is possible to order a reader (scanner) for £58 and a pack of 2 sensors which will last for a total of 28 days for £56. One can apply for VAT exemption with type 1 diabetes. I find that the monthly price including postage with VAT exemption works out at about £102 .Despite the price I have found it such a help that it has been worth it for me..
I have sometimes found wild discrepancy between the sensor readings e.g persistent readings suggesting hypos when I have felt fine and finger prick test results have been well within normal range. This has sometimes occurred towards the end of a 2 week session on a sensor and occasionally inthe first 12 hours of a new sensor. Usually there is a good correlation between the interstitial tissue sugar level and capillary blood sugar. Sometimes the sensor readings have been exactly the same, sometimes up to 1 mmol/l above or below the finger prick reading. The discrepancies may be more after vigorous exercise. Of course, there is a 10-15 minute delay between stabilisation of tssue a blood sugar levels and this has an effect. If the reader gives a peculiar unexpected result I generally check a finger prick result..My priciple with any medical measurement or device is "If the result does not fit with how you feel or is unexpected , be suspicious and sceptical and seek alternative confirmation!"
 
Dec 16, 2015
Alan 49 284 posts

Topic: General Discussion / Cyborg Times (new BG meter)

I'm obviously tempted by these Libre kits - how much do they cost initially and then how much do the sensors cost?
 
Dec 16, 2015
Phil Maskell 194 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Anyone else found this?

I hope this is just the current sensor, but its reading 3.8, I don't feel hypo so did BG test, 5.5, never had it this far out before. I would possibly scrap this sensor, but its a) got 7 days left (£25) b) my new ones haven't arrived yet.

Just wondering, been using it for over a year now, is it a problem with the siting of the sensor, skin hardening or something?

If it is this far out for the next 7 days I am going to complain to Abbott, bit worried as I like the Libre, naughty but I have come to rely on it over BG tests alot, if its not accurate I don't know that I can trust it any more.

Phil
 
Dec 15, 2015
Phil Maskell 194 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Simon,

Hope you find it useful, it was quite sad when I first ordered how excited I was to get a BG meter! When you put a new sensor on for the maths to be able to average out a reading you can't get anything for 60 mins, this seems like a lifetime Very Happy

I have found that some sensors are more accurate than others, annoyingly the one I'm wearing now is about 2 mmol lower, so reckons I'm hypo when I'm 4 or 5. But other sensors have been spot on to 0.1 mmol. I suppose it also depends how accurate my Accu-Chek Mobile is as this was dif from OneTouch.

Its the over night trends that has helped my HbA1c (was going hypo and liver kicking out sugar so spiking), since getting Libre HbA1c gone from 7.9 ish to 6.6 (sorry, still work in old money) and gone low carb now so hoping for sub 6 next time.

Hope you get it before Xmas, nice pressie, all the party food will be good fun watching the graph bounce around Very Happy

Phil
 
Dec 14, 2015
Felix Glenn 26 posts

Topic: General Discussion / DAFNE Principles

Hi,
Does anyone know where I can get online pictures of the DAFNE principles as used on the training course?
I'm particularly interested in "the stepwise approach".
Cheers!
Felix
 
Dec 14, 2015
SimonC 78 posts

Topic: General Discussion / Cyborg Times (new BG meter)


Simon, you will love having trend info, I have found it not to be 100% accurate, often about 1 mmol lower than blood, but like you said this makes no dif to me, its the is going up or down, should I eat or inject type info.

I have in the past had supply issues and been a few weeks without sensors, felt lost without it now.

It must be saving the NHS a fortune as I only test about 3 times a day now instead of 10+



Cheers Phil - looking forward to the trends - esp over night.
 
Dec 14, 2015
michaelj 45 posts

Topic: General Discussion / Can DAFNE consider changing from the use of CP’s to g of carbohydrate?

I wonder if any of these clever people suggesting this are actually diabetic, and having to work out ratios on a daily basis. Leave it alone
 
Dec 14, 2015
Phil Maskell 194 posts

Topic: General Discussion / Cyborg Times (new BG meter)

SimonC said:
Ok - I have made it up the waiting list - after 6 months - which to be fair was what people in here said it would be, and have received my email saying I can order.

I will be ordering - as I like the idea of being able to see trends - as they happen, and be told whether my sugar levels are going up or down - as this makes a difference to the action taken and a single snap shot in time can't tell you this.

So - any more tips and advice, from those that are using I should be aware of. I'm not hugely active - apart from walking my dogs, but I do have to go through airport security every day, has anyone had any issues with this yet.



Simon, you will love having trend info, I have found it not to be 100% accurate, often about 1 mmol lower than blood, but like you said this makes no dif to me, its the is going up or down, should I eat or inject type info.

I have in the past had supply issues and been a few weeks without sensors, felt lost without it now.

It must be saving the NHS a fortune as I only test about 3 times a day now instead of 10+
 
Dec 13, 2015
Felix Glenn 26 posts

Topic: General Discussion / DAFNE Resfresher

Hi Folks,
I just did a DAFNE refresher (Lewisham Hospital, London) and learned a couple of interesting things:
1) Type 1s who continuously record BG/CP info have a lower HbA1c than those who don't
2) There is no such thing as a 24hr BI insulin which remains active for 24hrs, hence the prevalence of Type 1s being advised to move to splitting BI dose.

Please tell me your thoughts?

Both things have had a very positive impact on the way I'm managing my condition, starting with The DAFNE online App.

F
 
Dec 13, 2015
Felix Glenn 26 posts

Topic: General Discussion / DAFNE and Insulin Pumps.

I just did a DAFNE refresher (Lewisham Hospital, London) and learned a couple of interesting things:
1) Type 1s who continuously record BG/CP info have a lower HbA1c than those who don't
2) There is no such thing as a 24hr BI insulin which remains active for 24hrs, hence the prevalence of Type 1s being advised to move to splitting BI dose.

Please tell me your thoughts?

Both things have had an enormous impact on the way I'm managing my condition, starting with The DAFNE online App.

F
 
Dec 13, 2015
Felix Glenn 26 posts

Topic: General Discussion / Meet up with some fellow type 1's

Hi,
Please let me know if you are meeting up again in the near future.
DAFNE has been a wonderful education for me and I have to say that it is the experiences and advice of other type 1 diabetics that has been the single biggest factor in my learning how to manage this condition.
Felix Cool
 
Dec 11, 2015
Nuri 1 post

Topic: General Discussion / Can DAFNE consider changing from the use of CP’s to g of carbohydrate?

Have just joined Dafne and am slightly surprised to read above that "some bolus advisors cannot work in carbohydrate portions" and "the grammes approach would make it easier for some educators".
The changes that advisors/educators would like reads as very confusing and I do agree that it could, for some diabetics, lead to more risk of error with insulin requirements and the consequences therein.
I'd prefer things to stay as they are.
 
Dec 11, 2015
Stew B 125 posts

Topic: General Discussion / Can DAFNE consider changing from the use of CP’s to g of carbohydrate?

It's not broken, please don't fix it!
 
Dec 10, 2015
SimonC 78 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Ok - I have made it up the waiting list - after 6 months - which to be fair was what people in here said it would be, and have received my email saying I can order.

I will be ordering - as I like the idea of being able to see trends - as they happen, and be told whether my sugar levels are going up or down - as this makes a difference to the action taken and a single snap shot in time can't tell you this.

So - any more tips and advice, from those that are using I should be aware of. I'm not hugely active - apart from walking my dogs, but I do have to go through airport security every day, has anyone had any issues with this yet.
 
Dec 10, 2015
SimonC 78 posts

Topic: General Discussion / Can DAFNE consider changing from the use of CP’s to g of carbohydrate?

My feelings are as above - why change, the maths is much easier saying 1 unit of CP is 10g of CP - can't get much easier than that, and my ratios are straight forward to work out, except I have a 1.5 to 1, but again, that is fairly easy to work out.

The above appears much harder to work out, esp for those of us who are comfortable working the other way round. I personally don't see any benefit at all, and can only see downsides - the maths is harder, the risks associated with the change will lead to loss of control.

I realise many aren't happy unless they are introducing change, but this appears to be change for changes sake, so no doubt it will be introduced and ignore those that disagree, because we will be seen as backward and refusing to adapt.
 
Dec 8, 2015
alturn 78 posts

Topic: General Discussion / Levemir doses

If your BGs are good, then you have a regime that suits you.

I take 11 of BI at 08:15 and 11 at 17:45 whenever possible to try and keep BI level constant. I tried BI at about 23:00 (as 17:45 didn't seem to work very well for a while) and was fine, then reverted again for the same reason, and also less likely to forget BI at 17:45 as take QA at the same time.
 
Dec 8, 2015
sjohno 37 posts

Topic: General Discussion / Can DAFNE consider changing from the use of CP’s to g of carbohydrate?

Oh I agree with Alan my control is great too so I'm happy for it not to change Laughing

My mental arithmetic is not good but I cope very well with 1 unit - 1 CP or 10g CP and the differing ratios 1:1.5, 1:2 etc.
 
Dec 8, 2015
Alan 49 284 posts

Topic: General Discussion / Can DAFNE consider changing from the use of CP’s to g of carbohydrate?

My poor old brain wouldn't be able to cope with these changes, I'm afraid. My control is quite good at the moment using the current method, so I would prefer it not to change.
 
Dec 8, 2015
SlinkySixty54 1 post

Topic: General Discussion / Levemir doses

H, can I join in this discussion too please? I am a DAFNE graduate of 2005 for which I am very grateful to the difference it has made to my lifestyle. I have recently( over 18 - 24 months) lost 5 st and have found that this has made a tremendous difference to the amount of Levemir I now need.

My query is that looking at the postings there is a vast difference in the time people take their doses. I take my morning dose between 7.30 - 9.00 depending on what the day has in store as I have joined the retirement brigade but in the evening I take it as I go to bed which can be from 10.30 - 11.30pm. I notice that some are taking theirs early evening, is there an optimum time? Please can someone offer some advice/ suggestions.
 
Dec 7, 2015
Simon 578 posts

Topic: General Discussion / CP content of alcoholic beverages

Another question from the DAFNE Educator network:

The next update of the CP list is due in 2017 and we are beginning to work on this now. Educators have asked for more information on the CP content of alcoholic drinks to make the CP guide more relevant to currently available alcoholic drinks.

As a DAFNE user do you have any information to share on the CP content of alcoholic drinks that you have gathered from a reputable source?
If so please share the name of the product, brand, volume, CP content and source of the information. We will review responses, and if enough time is available (depending on the number of responses received!), verify for inclusion in the next resources update.

Responses by 15/01/16 please
 
Dec 7, 2015
Simon 578 posts

Topic: General Discussion / Can DAFNE consider changing from the use of CP’s to g of carbohydrate?

This is a question posed by the DAFNE Educator network, please add your responses and thoughts below:

What this would mean would be stopping using CPs but using carbohydrate grammes instead, there are 2 options

1. Using 1 unit to 10g without further conversion to CPs
or
2. Changing the ratios so that they are reversed (as in some pump use) so that 1 unit is fixed and the grammes of carbohydrate vary to one unit of insulin e.g.
0.5 to 1 ratio becomes a ratio of 20g carbs to 1 unit insulin
1.0 to 1 ratio becomes a ratio of 10g carbs to 1 unit insulin
1.5 to 1 ratio becomes a ratio of 7g carbs to 1 unit insulin
2.0 to 1 ratio becomes a ratio of 5g carbs to 1 unit insulin
2.5 to 1 ratio becomes a ratio of 4g carbs to 1 unit insulin
3.0 to 1 ratio becomes a ratio of 3g carbs to 1 unit insulin

The argument against is that variable grammes to 1 unit of insulin makes the calculation of doses much more difficult without a calculator, we are aware of difficulties with working out the maths using the simpler CP approach and are unsure if a more complex approach would benefit graduates or put people off.

The arguments for the variable grammes to 1 unit approach rest with common practice in children’s diabetes services of using grammes to 1 unit as the ratios tend to be smaller e.g. 20g to 1 unit, and common practice in pump use as some bolus advisors cannot work in carbohydrate portions. The use of a grammes approach would make it easier for some educators as it would be in line with approaches used in other areas of work, it may also benefit some users who have previously been taught this approach.


We would like your views as DAFNE users on the approach to dose calculation that you feel would be of most benefit. Responses by 15/01/16 please.
 
Dec 7, 2015
Yelekreb 11 posts

Topic: Carbohydrate Counting / Wahaca

Wahaca's response to request to show carb info:

"I'm afraid that having looked into the options available for calculating our nutritional information, based on the number of dishes we serve and the fact that we cook them from scratch, the variance means that we'd not be able to supply what we would consider reliable and accurate data, so we're not comfortable trying to do so....unfortunately carb and calorie values are not something we are able to document"