Recent Posts - DAFNE Online

Dec 1, 2015

Susanf 29 posts

Topic: Questions for HCPs / INSULIN SENSITIVITY

Your HbA1c results show that your overall control is perfect so if you only need a small amount to keep it at that then happy days Very Happy

Not sure why they feel you are in denial - if thats all the insulin it takes there is not a huge amount you can do to change it. Have you heard of LADA (latent autoimmune diabetes in adults)

Dec 1, 2015

alanG 11 posts

Topic: Questions for HCPs / INSULIN SENSITIVITY

Hi Susanf, Thanks for your reply and encouragement. I am actually TYPE1, and it clearly is late in life to get that!!!
When I raise this scenario with the professionals, they accuse me of being in denial. Cool.

Dec 1, 2015

Susanf 29 posts

Topic: Carbohydrate Counting / Nutritional Values on package food

You could also take a pic of it with your phone and then enlarge the picture on your phone :-)

Dec 1, 2015

Susanf 29 posts

Topic: Questions for HCPs / INSULIN SENSITIVITY

Hi AlanG, Great results Very Happy

Are you type 2? My guess is your body is still producing some insulin and that is acting as your background insulin. You are also doing exercise pretty much after each meal which is probably burning up what you are eating. As you are getting such great results I would keep going the way you are :-)

Nov 30, 2015

Stew B 125 posts

Topic: Carbohydrate Counting / Nutritional Values on package food

Hi Mark, my better half got it for me - from EBay I think!

Stew

Nov 30, 2015

alanG 11 posts

Topic: General Discussion / RESIDUAL INSULIN GENAREATION?

I am taking very little insulin. I have 2 units of BG in the am, and 10 units of BG in the evening. I am only taking QA insulin if I have a meal of greater than 5 carb units, and then at a ratio of 0.5 to 1.
I only use the insulin I do use since the health professionals put the fear of god into me. My short-term blood glucose is always in single figures, and never more than 8.0. My long -term level is 42, and has been at that level since I was first tested after diagnosis some 4 years ago.
I now have a detailed example, which is not untypical of my experience.
My morning level was 6.3, and I had a cracker and low fat cottage cheese for breakfast (about 0.5 carbs). I took 2 units of BI. We then walked to the shops, about 2.5 miles, and I could not resist a SUBWAY and coffee (about 4 carb units). I did not take any QA, as experience says I will be ok. We then walked home in 45 mins. (steady). In the afternoon, I had 20 mins. on the exercise bike, and I tested my blood sugar at 4.8. I had a snack oif tortillas to keep me going (1 carb unit)
For our evening meal we had roast duck with roast potatoes and mixed veg., and as a treat we tried my wife's home made Christmas cake, which is soaked in booze, with a lump of Wensleydale cheese. Again. I did not take any QA insulin.
About 8.30pm I had another 20 mins. on the exercise bike, and when I tested after my blood sugar was 5.4.
I find it difficult to believe that 2 units of BG and modest exercise can be responsible for dissipating over 7 units of carb.
Anyone got any thoughts.

Nov 30, 2015

alanG 11 posts

Topic: Questions for HCPs / INSULIN SENSITIVITY

I am taking very little insulin. I have 2 units of BG in the am, and 10 units of BG in the evening. I am only taking QA insulin if I have a meal of greater than 5 carb units, and then at a ratio of 0.5 to 1.
I only use the insulin I do use since the health professionals put the fear of god into me. My short-term blood glucose is always in single figures, and never more than 8.0. My long -term level is 42, and has been at that level since I was first tested after diagnosis some 4 years ago.
I now have a detailed example, which is not untypical of my experience.
My morning level was 6.3, and I had a cracker and low fat cottage cheese for breakfast (about 0.5 carbs). I took 2 units of BI. We then walked to the shops, about 2.5 miles, and I could not resist a SUBWAY and coffee (about 4 carb units). I did not take any QA, as experience says I will be ok. We then walked home in 45 mins. (steady). In the afternoon, I had 20 mins. on the exercise bike, and I tested my blood sugar at 4.8. I had a snack oif tortillas to keep me going (1 carb unit)
For our evening meal we had roast duck with roast potatoes and mixed veg., and as a treat we tried my wife's home made Christmas cake, which is soaked in booze, with a lump of Wensleydale cheese. Again. I did not take any QA insulin.
About 8.30pm I had another 20 mins. on the exercise bike, and when I tested after my blood sugar was 5.4.
I find it difficult to believe that 2 units of BG and modest exercise can be responsible for dissipating over 7 units of carb.
Anyone got any thoughts.

Nov 29, 2015

Mark2 23 posts

Topic: Carbohydrate Counting / Nutritional Values on package food

Where did you buy your credit card size magnifier Stew? Sounds useful .. Razz

Nov 27, 2015

AMcD 38 posts

Topic: Questions for HCPs / concern about effect of hypos

Gus. My hunch is your GP is right.. when having hypos I really can't think straight at all. .. even simple stuff gets complicated. Having hypos is bad all around, they can be utterly exhausting and can be dangerous if driving or similar.. The science is simple... Our brains require glucose to function correctly, when our brains are starved of glucose they don't work as they should... there's a fine balance between good control and going too low to often. My advice is to keep your levels up a bit and avoid the hypos. ... hope things improve for you. Andy

Nov 26, 2015

Paul Keenan 3 posts

Topic: General Discussion / Diagnosed just over a year ago

Susanf said:
Hi Paul,

Welcome to the forum. I have Diabetes for 21 years now and use an insulin pump. Feel free to ask any questions.

K Rgds,

Thanks Susan its reassuring to be able to chat with other diabetics and pick their brain on issues that may arise.
S

Nov 26, 2015

Paul Keenan 3 posts

Topic: General Discussion / Diagnosed just over a year ago

Garry said:
Meant to ask Paul.
Were you advised on your DAFNE course about this forum or was it your own research?
Regards
Garry

Hi Garry I was invited to the DAFNE course in October. I found out about the forum when I registered for DAFNE online. I thought the course really helped and I have just attended my 6 week review. I'm still struggling at night. I seem to be going through the honeymoon period at the moment. Its reassuring to be able to chat with other diabetics. So thanks for the reply to my original message.

Nov 25, 2015

Simon 578 posts

Topic: General Discussion / ESMiD - Evaluating Self-Management in Diabetes

From Martin Fox:

If you have type 1 or type 2 diabetes and are aged 18 or over please help with our research by completing an online survey, taking around 15 minutes. You may then enter a prize draw for 50GBP shopping vouchers.

This study explores how important it is to people that they can manage their diabetes. For more information, and to take part, please go to this link:

https://healthsurvey.shef.ac.uk/esmid

You may withdraw at any time by leaving the survey.

This study has been approved by the National Research Ethics Service. All data is collected anonymously and in strict confidence.

Many thanks for your help.

Nov 24, 2015

marke 686 posts

Topic: General Discussion / I know this is the Express but ....

Hi, Sorry but six people is not a study, they can't make any judgements or state side effects if the study was only 6 people !!
Interesting, yes, a cure, not really......

Nov 24, 2015

Alan 49 284 posts

Topic: General Discussion / I know this is the Express but ....

We live in hope, Phil.

Nov 24, 2015

PAR 2 posts

Topic: Questions for HCPs / concern about effect of hypos

Gus. Good advice from Gary and Jim. The symptoms you describe are symptoms I get when my BG is dropping and I'm what DAFNE calls hypo.
I do some teaching and I always measure my BG before I do, just to make sure I'm not likely to go hypo. I have in the past also been aggresive when hypo.
I also talked to my GP about memory loss who suggested that just becoming older doesn't mean memory loss. Many of my contempories have memory loss that is similar to mine but I do surprise myself sometimes when my brain appears to work better than I have noticed previously.
I've stopped worrying about it now.
If your BG levels swing as much as mine do you may think about discussing the use of a pump if/when you next go to the diabetes clinic.
Best wishes

Paul

Nov 24, 2015

Garry 328 posts

Topic: General Discussion / Diagnosed just over a year ago

Meant to ask Paul.
Were you advised on your DAFNE course about this forum or was it your own research?
Regards
Garry

Nov 24, 2015

Garry 328 posts

Topic: General Discussion / Diagnosed just over a year ago

Welcome to the forum Paul Smile

We are all here to help DAFNE graduates and others, particularly with Type 1 if we are able.
Lots of useful help out here. Ask away.
Regards
Garry

Nov 23, 2015

Garry 328 posts

Topic: Questions for HCPs / concern about effect of hypos

Great advice Jim S.
Gus...you must up you blood testing regime to ensure that at all times you are in normal range.
I tried for many years to keep my BGs low to avoid perceived long term damage, but suffered far too many associated problems.
Stick in the normal 4.5 to 7.5 mmol/l before meals and you will see how over time, things gradually improve.
Best Wishes
Regards
Garry

Nov 23, 2015

AMcD 38 posts

Topic: Questions for HCPs / Pregnancy advice

I changed to a pump in May 2015 after 25 years of pens etc... For what it's worth my HbA1c pre pump start was 53. A recent blood test result showed a reduction in HbA1c to 48 so it certainly has improved the results for me. Good luck with the plans. Andy

Nov 23, 2015

Phil Maskell 194 posts

Topic: General Discussion / I know this is the Express but ....

More on it...

http://www.jdrf.ca/news-and-media/in-the-news/human-study-re-ignites-debate-over-controversial-diabetes-cure/

http://www.faustmanlab.org/docs/clinicalt/BCG%20TRIALS%20FACT%20SHEET.pdf

When can I try it? No side effects!!!

Nov 23, 2015

Phil Maskell 194 posts

Topic: General Discussion / I know this is the Express but ....

http://www.express.co.uk/news/world/585750/Common-jab-cure-Type-1-diabetes

Has anything come of this?

Anyone know anymore?

Nov 22, 2015

Anna2 1 post

Topic: General Discussion / DAFNE and Insulin Pumps.

I. Have just completed Dafne Pumpers course. Brilliant and very worthwhile. Been Type 1 for 52 years on mdi but have been On Pump for only 4 months. I have learnt so much on this course and now need to put it into practice.

Dec 1, 2015 Susanf 29 posts	Topic: Questions for HCPs / INSULIN SENSITIVITY Your HbA1c results show that your overall control is perfect so if you only need a small amount to keep it at that then happy days Not sure why they feel you are in denial - if thats all the insulin it takes there is not a huge amount you can do to change it. Have you heard of LADA (latent autoimmune diabetes in adults)

Dec 1, 2015 alanG 11 posts	Topic: Questions for HCPs / INSULIN SENSITIVITY Hi Susanf, Thanks for your reply and encouragement. I am actually TYPE1, and it clearly is late in life to get that!!! When I raise this scenario with the professionals, they accuse me of being in denial. Cool.

Dec 1, 2015 Susanf 29 posts	Topic: Carbohydrate Counting / Nutritional Values on package food You could also take a pic of it with your phone and then enlarge the picture on your phone :-)

Dec 1, 2015 Susanf 29 posts	Topic: Questions for HCPs / INSULIN SENSITIVITY Hi AlanG, Great results Are you type 2? My guess is your body is still producing some insulin and that is acting as your background insulin. You are also doing exercise pretty much after each meal which is probably burning up what you are eating. As you are getting such great results I would keep going the way you are :-)

Nov 30, 2015 Stew B 125 posts	Topic: Carbohydrate Counting / Nutritional Values on package food Hi Mark, my better half got it for me - from EBay I think! Stew

Nov 30, 2015 alanG 11 posts	Topic: General Discussion / RESIDUAL INSULIN GENAREATION? I am taking very little insulin. I have 2 units of BG in the am, and 10 units of BG in the evening. I am only taking QA insulin if I have a meal of greater than 5 carb units, and then at a ratio of 0.5 to 1. I only use the insulin I do use since the health professionals put the fear of god into me. My short-term blood glucose is always in single figures, and never more than 8.0. My long -term level is 42, and has been at that level since I was first tested after diagnosis some 4 years ago. I now have a detailed example, which is not untypical of my experience. My morning level was 6.3, and I had a cracker and low fat cottage cheese for breakfast (about 0.5 carbs). I took 2 units of BI. We then walked to the shops, about 2.5 miles, and I could not resist a SUBWAY and coffee (about 4 carb units). I did not take any QA, as experience says I will be ok. We then walked home in 45 mins. (steady). In the afternoon, I had 20 mins. on the exercise bike, and I tested my blood sugar at 4.8. I had a snack oif tortillas to keep me going (1 carb unit) For our evening meal we had roast duck with roast potatoes and mixed veg., and as a treat we tried my wife's home made Christmas cake, which is soaked in booze, with a lump of Wensleydale cheese. Again. I did not take any QA insulin. About 8.30pm I had another 20 mins. on the exercise bike, and when I tested after my blood sugar was 5.4. I find it difficult to believe that 2 units of BG and modest exercise can be responsible for dissipating over 7 units of carb. Anyone got any thoughts.

Nov 30, 2015 alanG 11 posts	Topic: Questions for HCPs / INSULIN SENSITIVITY I am taking very little insulin. I have 2 units of BG in the am, and 10 units of BG in the evening. I am only taking QA insulin if I have a meal of greater than 5 carb units, and then at a ratio of 0.5 to 1. I only use the insulin I do use since the health professionals put the fear of god into me. My short-term blood glucose is always in single figures, and never more than 8.0. My long -term level is 42, and has been at that level since I was first tested after diagnosis some 4 years ago. I now have a detailed example, which is not untypical of my experience. My morning level was 6.3, and I had a cracker and low fat cottage cheese for breakfast (about 0.5 carbs). I took 2 units of BI. We then walked to the shops, about 2.5 miles, and I could not resist a SUBWAY and coffee (about 4 carb units). I did not take any QA, as experience says I will be ok. We then walked home in 45 mins. (steady). In the afternoon, I had 20 mins. on the exercise bike, and I tested my blood sugar at 4.8. I had a snack oif tortillas to keep me going (1 carb unit) For our evening meal we had roast duck with roast potatoes and mixed veg., and as a treat we tried my wife's home made Christmas cake, which is soaked in booze, with a lump of Wensleydale cheese. Again. I did not take any QA insulin. About 8.30pm I had another 20 mins. on the exercise bike, and when I tested after my blood sugar was 5.4. I find it difficult to believe that 2 units of BG and modest exercise can be responsible for dissipating over 7 units of carb. Anyone got any thoughts.

Nov 29, 2015 Mark2 23 posts	Topic: Carbohydrate Counting / Nutritional Values on package food Where did you buy your credit card size magnifier Stew? Sounds useful ..

Nov 27, 2015 AMcD 38 posts	Topic: Questions for HCPs / concern about effect of hypos Gus. My hunch is your GP is right.. when having hypos I really can't think straight at all. .. even simple stuff gets complicated. Having hypos is bad all around, they can be utterly exhausting and can be dangerous if driving or similar.. The science is simple... Our brains require glucose to function correctly, when our brains are starved of glucose they don't work as they should... there's a fine balance between good control and going too low to often. My advice is to keep your levels up a bit and avoid the hypos. ... hope things improve for you. Andy

Nov 26, 2015 Paul Keenan 3 posts	Topic: General Discussion / Diagnosed just over a year ago Susanf said: Hi Paul, Welcome to the forum. I have Diabetes for 21 years now and use an insulin pump. Feel free to ask any questions. K Rgds, Thanks Susan its reassuring to be able to chat with other diabetics and pick their brain on issues that may arise. S

Nov 26, 2015 Paul Keenan 3 posts	Topic: General Discussion / Diagnosed just over a year ago Garry said: Meant to ask Paul. Were you advised on your DAFNE course about this forum or was it your own research? Regards Garry Hi Garry I was invited to the DAFNE course in October. I found out about the forum when I registered for DAFNE online. I thought the course really helped and I have just attended my 6 week review. I'm still struggling at night. I seem to be going through the honeymoon period at the moment. Its reassuring to be able to chat with other diabetics. So thanks for the reply to my original message.

Nov 25, 2015 Simon 578 posts	Topic: General Discussion / ESMiD - Evaluating Self-Management in Diabetes From Martin Fox: If you have type 1 or type 2 diabetes and are aged 18 or over please help with our research by completing an online survey, taking around 15 minutes. You may then enter a prize draw for 50GBP shopping vouchers. This study explores how important it is to people that they can manage their diabetes. For more information, and to take part, please go to this link: https://healthsurvey.shef.ac.uk/esmid You may withdraw at any time by leaving the survey. This study has been approved by the National Research Ethics Service. All data is collected anonymously and in strict confidence. Many thanks for your help.

Nov 24, 2015 marke 686 posts	Topic: General Discussion / I know this is the Express but .... Hi, Sorry but six people is not a study, they can't make any judgements or state side effects if the study was only 6 people !! Interesting, yes, a cure, not really......

Nov 24, 2015 Alan 49 284 posts	Topic: General Discussion / I know this is the Express but .... We live in hope, Phil.

Nov 24, 2015 PAR 2 posts	Topic: Questions for HCPs / concern about effect of hypos Gus. Good advice from Gary and Jim. The symptoms you describe are symptoms I get when my BG is dropping and I'm what DAFNE calls hypo. I do some teaching and I always measure my BG before I do, just to make sure I'm not likely to go hypo. I have in the past also been aggresive when hypo. I also talked to my GP about memory loss who suggested that just becoming older doesn't mean memory loss. Many of my contempories have memory loss that is similar to mine but I do surprise myself sometimes when my brain appears to work better than I have noticed previously. I've stopped worrying about it now. If your BG levels swing as much as mine do you may think about discussing the use of a pump if/when you next go to the diabetes clinic. Best wishes Paul

Nov 24, 2015 Garry 328 posts	Topic: General Discussion / Diagnosed just over a year ago Meant to ask Paul. Were you advised on your DAFNE course about this forum or was it your own research? Regards Garry

Nov 24, 2015 Garry 328 posts	Topic: General Discussion / Diagnosed just over a year ago Welcome to the forum Paul We are all here to help DAFNE graduates and others, particularly with Type 1 if we are able. Lots of useful help out here. Ask away. Regards Garry

Nov 23, 2015 Garry 328 posts	Topic: Questions for HCPs / concern about effect of hypos Great advice Jim S. Gus...you must up you blood testing regime to ensure that at all times you are in normal range. I tried for many years to keep my BGs low to avoid perceived long term damage, but suffered far too many associated problems. Stick in the normal 4.5 to 7.5 mmol/l before meals and you will see how over time, things gradually improve. Best Wishes Regards Garry

Nov 23, 2015 AMcD 38 posts	Topic: Questions for HCPs / Pregnancy advice I changed to a pump in May 2015 after 25 years of pens etc... For what it's worth my HbA1c pre pump start was 53. A recent blood test result showed a reduction in HbA1c to 48 so it certainly has improved the results for me. Good luck with the plans. Andy

Nov 23, 2015 Phil Maskell 194 posts	Topic: General Discussion / I know this is the Express but .... More on it... http://www.jdrf.ca/news-and-media/in-the-news/human-study-re-ignites-debate-over-controversial-diabetes-cure/ http://www.faustmanlab.org/docs/clinicalt/BCG%20TRIALS%20FACT%20SHEET.pdf When can I try it? No side effects!!!

Nov 23, 2015 Phil Maskell 194 posts	Topic: General Discussion / I know this is the Express but .... http://www.express.co.uk/news/world/585750/Common-jab-cure-Type-1-diabetes Has anything come of this? Anyone know anymore?

Nov 22, 2015 Anna2 1 post	Topic: General Discussion / DAFNE and Insulin Pumps. I. Have just completed Dafne Pumpers course. Brilliant and very worthwhile. Been Type 1 for 52 years on mdi but have been On Pump for only 4 months. I have learnt so much on this course and now need to put it into practice.