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Oct 15, 2015
Muncle
9 posts
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Topic: General Discussion / Diagnosed just over a year ago Hi Paul, Welcome to the forum It is a lot to try and get your head around but it does get easier especially after you have done the DAFNE course which I'm assuming you'll be invited to one in the near future and it will give you hope but above all it'll give you control  I've been diagnosed 3 years now and the first year was a bit weird as I had the honeymoon period for a while where my numbers were perfect and I thought "This is easy" then all of a sudden my numbers were all over the place and at that point I realised how difficult it was going to be  Now I'm 3 years into diagnoses I realise that my numbers may not be perfect for the whole day but I have the ability to adjust so if I wake up on a 9 or 10 I don't get down about it as there is nothing I can do about my numbers when I'm asleep so I just correct and try to keep my numbers good right up to bed time  Just remember you're not alone out there and you have a forum full of people to ask questions and discuss things PS As soon as you get the opportunity to go on the DAFNE course then do it, it will seriously change your life and your outlook! Cheers Mick |
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Oct 14, 2015
Phil Maskell
194 posts
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Topic: General Discussion / Low Carb Yet another low carb question, I haven't lost my hypo signals (yet), I know when I'm running low, don't get them until about 3.5 now, if I'm exercising I need to eat, nothing I can about it (just can't keep going), but often since low carbing if I give it a bit of time before eating my body kicks in and I go up or I will have some nuts or cheese rather than sugar.Is it wise to leave it like this (I eat if I'm driving or something, but at my desk I'll have a few nuts)? If I do have sugar I'm on an up / down rollercoaster for most of the day then! I feel so much better running lower like this, but now I have the concern of loosing my hypo signals, they are already not happening til I'm lower! Is there an easy answer? Can't win, its a battle everyday! |
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Oct 13, 2015
Paul Keenan
3 posts
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Hello my name is Paul. I was diagnosed in September 2014. I have been struggling to get my head around this illness and I suppose I'm looking to chat with people who have had similar experiences/ |
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Oct 12, 2015
Warwick
423 posts
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Topic: General Discussion / Low Carb Congratulations Phil. That is excellent. And well done on the HbA1c. Awesome number. There is nothing wrong with a safety net of gels. Whatever works best for you. I carry jelly beans with me. I'd use gels but I find them too sticky and sweet and inconvenient with the packaging to deal with afterwards. They do work fast though :-) Keep it up. Sounds like you are doing great. |
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Oct 12, 2015
michaelj
45 posts
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Topic: Carbohydrate Counting / Fruit juice V fruit my old Dafne carbohydrate portion book gives a value of 1glas 160ml = 1.5 portions cho for fruit juice. I have a bottle each week from my milkman and always apply this value to it. Seems to work ok. |
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Oct 12, 2015
Phil Maskell
194 posts
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Topic: General Discussion / Low Carb Hi all,I think I am finally about there, 100+ miles on the bike yesterday, scrambled eggs in butter before hand, pub lunch, Sausage in onion gravy, with chips (I had about 5 or 6 to mop up gravy). Pockets full of gels, but didn't need one. HbA1c down from 12 (old skool) 2 years ago to 6.8 Still too nervous to go out for any distance without a pocket full of gels though, what do other low carbers have if they do go hypo? Are there any other low carbers that are exercise nuts like me? Phil |
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Oct 9, 2015
Yelekreb
11 posts
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Here' an ariticle with a summary from a lawyers perspective: http://www.whitecase.com/publications/article/mobile-health-apps-are-they-regulated-medical-device |
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Oct 9, 2015
Davey54
8 posts
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Topic: General Discussion / DAFNE and Insulin Pumps. Hi To Everyone,I did DAFNE about 7yrs ago and for the past 5yrs I've been using a Insulin Pump with very few problems and quite good results. However, I've now been invited to attend a new DAFNE course especially for pump users. My problem is, the itineraries for the old and new DAFNE courses look the same, and I'm not sure I want waste time attending if I'm not going to learn anything new. They've also made it very clear that this course has a waiting list, and, it costs a £1,000 a patient. I'd like to know, has anyone heard of this NEW DAFNE COURSE FOR PUMP USERS and if so, is it worthwhile attending or just a waste of time? Sorry for rambling before I got to the question. Davey54 |
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Oct 9, 2015
lucy1gus2
13 posts
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Topic: Questions for HCPs / Polyols When using XYLITOL in baking what carbohydrate value should you allow for?. Nowhere does it say what percentage is absorbed. |
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Oct 8, 2015
Warwick
423 posts
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Topic: Carbohydrate Counting / Fruit juice V fruit I think that the main problem from a juicer is that it is very easy to drink the juice from say 8 apples, while the odds of you wanting to eat an entire 8 apples in one sitting is extremely low. Therefore, you are more likely to have a large amount of carb in one sitting than you are from their un-juiced form.I don't think that juiced fruits are higher in CPs than un-juiced ones - it would defy physics for carbs to be added just by using a juicer, but the sugar in them will be more quickly absorbed than from eating fruit in an un-juiced form, so you are likely to see a steeper rise in BGs than you would otherwise. |
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Oct 6, 2015
AMcD
38 posts
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Agreed. In fact I often have my insulin in the car for a few hours before I get home to the fridge and never had a problem. As far as I know the effectiveness of the insulin drops off gradually rather than suddenly once outside the recommended time limits on being out of the fridge. I must do further research..... hope all is well. Andy |
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Oct 6, 2015
Alan 49
284 posts
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Topic: Questions for HCPs / Insulin out of the fridge I spoke with the pharmacist today and she told me that if they dispense the prescription in advance of collection, then the insulin is packaged separately and put back in the fridge. If the prescription is for home-delivery, they wait unril the delivery-driver is there then dispense it with the tablets in one bag and it arrives within 45 minutes.That seems OK to me. |
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Oct 6, 2015
keith bohanna
5 posts
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Topic: Questions for HCPs / Morning Bloods climb steadily Thanks Lucy.The overview since 7am is started with 8.5, ate 2 carbohydrate exchanges, took 27 units of quick acting insulin across 4 injections and 15 minutes ago came in at 9.7. That should be enough insulin to kill me! |
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Oct 6, 2015
lucytaylor_
2 posts
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Topic: Questions for HCPs / Morning Bloods climb steadily My problem seems like it is exactly the same as yours. I was thinking of emailing my specialist nurse who took my DAFNE course this afternoon.It may be the case that i need to increase to a 3:1 ratio as well, but seeing as I have gone from a 1.5 to 2.5 ratio and nothing has really changed I am not too sure if it will help. If she replies with anything useful then I will let you know! |
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Oct 6, 2015
keith bohanna
5 posts
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Topic: Questions for HCPs / Morning Bloods climb steadily Thanks Lucy and Gerry. Time for me to start logging properly.It is kicking in again (the steady climb of morning sugars) and my ratio is 3:1 so I'm at the top of the normal ratio range. I took 6:1 this morning with an 8.5 blood sugar reading and eating measured amount of porridge (very low GI) and it still climbed to 14.1 Took 9 Homolog, went for 45 minute stroll and it dropped to 13.3 only. The maths just doesn't make any sense |
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Oct 6, 2015
lucytaylor_
2 posts
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Topic: Questions for HCPs / Morning Bloods climb steadily i have exactly the same problem for the past 2 weeks as well. For example this morning i woke up at 7 and did not eat anything. i got to work at about 9 and did another test and i was 10...i injected for my breakfast and 1 additional unit to bring myself down and i did another test at 11am and i am 13.8!! i dont understand why this is happening and why all of a sudden it has changed.when i left dafne i was on a 1.5 units to 1CP ratio, but i also decreased my background lantus from 24 units to 20 as this was too high, so thought maybe this would explain the higher readings after breakfast. I increased my ratio to 1CP:2.5units this morning and still this has not helped. keith- what is your CP to unit ratio? have you thought about increasing this? p.s i have attached my blood glucose diary for the last 10 days, but i sometimes forget to make a note, so not sure this will be very helpful... |
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Oct 5, 2015
Simon
578 posts
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Thanks Richard, it's good to hear a bit of positivity after all the negative reviews/comments we have had. I'm glad it's managed to help you maintain better control of your diabetes. |
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Oct 5, 2015
Jrichards92
1 post
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Topic: General Discussion / Freestyle Libre I have one, When it works its amazing. I have been able to find the patterns in my glucose patterns which would not be picked up in 4-5 times a day finger prick testing.However I have been plagued with unreliable sensors and I have had it since April this year and I am on my 3rd reader. |
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Oct 5, 2015
Jude
4 posts
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Topic: General Discussion / Freestyle Libre Still not heard anything. Still watching them on Ebay and wondering if it is worth paying some opportunist...just to help get my bloods on track! Here's hoping a rival company come up with a better one soon, to give Abbott a kick up the bum!
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Oct 5, 2015
HypoHeb
1 post
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Topic: General Discussion / Freestyle Libre HiI have been waiting for Abbot to inform me when they have more stock of the Libre glucose monitor. I went on a waiting list in April and I still haven't heard anything. Does anyone have any up to date information regarding purchasing one in the UK please? I ordered my Freestyle Libre on Tuesday this week and wondered if there are any other users on here?? Hopefully chat soon |
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Oct 5, 2015
Susanf
29 posts
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Topic: Carbohydrate Counting / Fruit juice V fruit It really depends on the juicer you use. If you use the likes of the Nutribullet which juices the whole fruit then the CP should be the same. If the machine leaves a pulp behind after juicing then you are left with just a sugary drink. |
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Oct 5, 2015
richardlogan
1 post
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Topic: General Discussion / Dosage auto-calculation in apps Hi Simon & Marke,As someone who has had diabetes for over 30 years and has literally just completed the DAFNE program, I wanted to say thanks! The DAFNE program has totally changed my approach to managing my diabetes and your app has helped make it something that I think I might actually be able to maintain. No doubt the dose calculation element of the app would have been extremely useful, but as I never knew it existed (until I read this thread) I can't say I miss it. Not saying I wouldn't want it added back in, but just really wanted to let you both know that what you do is very much appreciated! Keep it up, you're doing something really worthwhile!!! Many thanks, Richard |
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Oct 4, 2015
Peter
109 posts
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Topic: General Discussion / Dosage auto-calculation in apps
Hi Rich, I raised the situation with the DAFNE team at the Executive Meeting this week. The chairman was aware of the situation following the correspondence that Simon refers to above. The approach is to contact the pharmaceutical companies who sponsor some of the DAFNE activities (e.g. Abbott) to see if they would be willing to help resolve the situation. I'll keep you posted when I hear any more, but doubt that this is likely to give a quick resolution. Having said that, and as Simon has said before, the more complaints that are received, the more likely it will be that a sponsor would be willing to support a way forward. So for anyone who is impacted by the change, and hasn't posted to this thread yet, please do so making it clear that your complaint is not aimed at the site administrators who are powerless in this. Alternatively please e-mail me through the site and I will forward all correspondence to the DAFNE Executive. Thanks. Peter |