Recent Posts - DAFNE Online

Dec 17, 2015

Felix Glenn 26 posts

Topic: General Discussion / DAFNE Principles

Thanks!
Some questions:
Does "Graduate" means someone who has attended DAFNE?
Will the Dietician or Diabetic Specialist Nurse who delivered DAFNE be able to give me access to another area of this site (with a code)?
Cheers!
Felix

Dec 17, 2015

Felix Glenn 26 posts

Topic: General Discussion / DAFNE Resfresher

Many thanks - I'll quiz the HCPs next.
Cheers!

Dec 17, 2015

novorapidboi26 1,816 posts

Topic: General Discussion / Basal check

I quite surprised that you are unaware how to carry out a basal test considering your on a pump, and have been for nearly 4 years........

how did that happen...?

I ask because I personally had to have done DAFNE first and prove that despite a very specific dosing regime using DAFNE didn't work.....

Have a look at this:

Beyond The Basals

This will take you through the process for pumpers like yourself, its asks you to look at your BG levels inside a 5 hour window and then adjust basal rates if and when needed, usually if the levels exceed 1.7mmol in either direction....

Dec 17, 2015

novorapidboi26 1,816 posts

Topic: General Discussion / DAFNE Resfresher

Just seen your previous posts and this one elsewhere.........

If you have attended the DAFNE course you should be able to get the code form the HCPs that will let you unlock the full features of the site, specifically the course handbook........

Dec 17, 2015

novorapidboi26 1,816 posts

Topic: General Discussion / DAFNE and Insulin Pumps.

Felix Glenn said:
I just did a DAFNE refresher (Lewisham Hospital, London) and learned a couple of interesting things:
1) Type 1s who continuously record BG/CP info have a lower HbA1c than those who don't
2) There is no such thing as a 24hr BI insulin which remains active for 24hrs, hence the prevalence of Type 1s being advised to move to splitting BI dose.

Please tell me your thoughts?

Both things have had an enormous impact on the way I'm managing my condition, starting with The DAFNE online App.

F

I agree about the BI/basal doses, even if it did manage to last the 24 hours, a constant, non changing dose is not matching the output of the liver.....

so even a split dose isn't as accurate as it could be, but its better than one, and gives much more flexibility between the AM/PM portions of the day...

Dec 17, 2015

novorapidboi26 1,816 posts

Topic: General Discussion / DAFNE Principles

If your a graduate you can access them here, just take a screenshot.....

your profile suggest your not a graduate and so it would be frowned upon giving portions of the course handbook away without you attending and being trained by the educators....

Very Happy

Dec 17, 2015

novorapidboi26 1,816 posts

Topic: General Discussion / Can DAFNE consider changing from the use of CPâ€™s to g of carbohydrate?

As a pumper I actually still struggle with setting ratios to grams:unit and actually like the CPs or unit:grams, with the grams fixed.....

Ultimately I can manage OK, its just trying to remember that for more insulin, you need to reduce the gram value.....

Dec 17, 2015

Hightower 8 posts

Topic: General Discussion / Can DAFNE consider changing from the use of CPâ€™s to g of carbohydrate?

Personally I find the whole CP thing pointless. I would rather the 1 unit to 10g etc. You have to count the carbs first so not sure what the point of then converting them to CP's is. LOVE DAFNE Very Happy

Dec 16, 2015

SimonC 78 posts

Topic: General Discussion / Cyborg Times (new BG meter)

With regards to cost - I have just placed my first order for my reader and 2 sensors - the total - with the VAT relief taken off and the delivery added on was Â£138 - looking at the bill, the sensors on their own was Â£96.58 - for 2, so each one is Â£48.29.

I don't know if the price will change on re ordering, but this fits in with what stephenbrowne has said.

Dec 16, 2015

stephenbrowne 37 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Hi Alan and Phil,
I note than the combined Freestyle starter kit of a reader plus 2 sensors is currently unavailable at Â£160 but it is possible to order a reader (scanner) for Â£58 and a pack of 2 sensors which will last for a total of 28 days for Â£56. One can apply for VAT exemption with type 1 diabetes. I find that the monthly price including postage with VAT exemption works out at about Â£102 .Despite the price I have found it such a help that it has been worth it for me..
I have sometimes found wild discrepancy between the sensor readings e.g persistent readings suggesting hypos when I have felt fine and finger prick test results have been well within normal range. This has sometimes occurred towards the end of a 2 week session on a sensor and occasionally inthe first 12 hours of a new sensor. Usually there is a good correlation between the interstitial tissue sugar level and capillary blood sugar. Sometimes the sensor readings have been exactly the same, sometimes up to 1 mmol/l above or below the finger prick reading. The discrepancies may be more after vigorous exercise. Of course, there is a 10-15 minute delay between stabilisation of tssue a blood sugar levels and this has an effect. If the reader gives a peculiar unexpected result I generally check a finger prick result..My priciple with any medical measurement or device is "If the result does not fit with how you feel or is unexpected , be suspicious and sceptical and seek alternative confirmation!"

Dec 16, 2015

Alan 49 280 posts

Topic: General Discussion / Cyborg Times (new BG meter)

I'm obviously tempted by these Libre kits - how much do they cost initially and then how much do the sensors cost?

Dec 16, 2015

Phil Maskell 194 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Anyone else found this?

I hope this is just the current sensor, but its reading 3.8, I don't feel hypo so did BG test, 5.5, never had it this far out before. I would possibly scrap this sensor, but its a) got 7 days left (Â£25) b) my new ones haven't arrived yet.

Just wondering, been using it for over a year now, is it a problem with the siting of the sensor, skin hardening or something?

If it is this far out for the next 7 days I am going to complain to Abbott, bit worried as I like the Libre, naughty but I have come to rely on it over BG tests alot, if its not accurate I don't know that I can trust it any more.

Phil

Dec 15, 2015

Phil Maskell 194 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Simon,

Hope you find it useful, it was quite sad when I first ordered how excited I was to get a BG meter! When you put a new sensor on for the maths to be able to average out a reading you can't get anything for 60 mins, this seems like a lifetime Very Happy

I have found that some sensors are more accurate than others, annoyingly the one I'm wearing now is about 2 mmol lower, so reckons I'm hypo when I'm 4 or 5. But other sensors have been spot on to 0.1 mmol. I suppose it also depends how accurate my Accu-Chek Mobile is as this was dif from OneTouch.

Its the over night trends that has helped my HbA1c (was going hypo and liver kicking out sugar so spiking), since getting Libre HbA1c gone from 7.9 ish to 6.6 (sorry, still work in old money) and gone low carb now so hoping for sub 6 next time.

Hope you get it before Xmas, nice pressie, all the party food will be good fun watching the graph bounce around Very Happy

Phil

Dec 14, 2015

Felix Glenn 26 posts

Topic: General Discussion / DAFNE Principles

Hi,
Does anyone know where I can get online pictures of the DAFNE principles as used on the training course?
I'm particularly interested in "the stepwise approach".
Cheers!
Felix

Dec 14, 2015

SimonC 78 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Simon, you will love having trend info, I have found it not to be 100% accurate, often about 1 mmol lower than blood, but like you said this makes no dif to me, its the is going up or down, should I eat or inject type info.

I have in the past had supply issues and been a few weeks without sensors, felt lost without it now.

It must be saving the NHS a fortune as I only test about 3 times a day now instead of 10+

Cheers Phil - looking forward to the trends - esp over night.

Dec 14, 2015

michaelj 45 posts

Topic: General Discussion / Can DAFNE consider changing from the use of CPâ€™s to g of carbohydrate?

I wonder if any of these clever people suggesting this are actually diabetic, and having to work out ratios on a daily basis. Leave it alone

Dec 14, 2015

Phil Maskell 194 posts

Topic: General Discussion / Cyborg Times (new BG meter)

SimonC said:
Ok - I have made it up the waiting list - after 6 months - which to be fair was what people in here said it would be, and have received my email saying I can order.

I will be ordering - as I like the idea of being able to see trends - as they happen, and be told whether my sugar levels are going up or down - as this makes a difference to the action taken and a single snap shot in time can't tell you this.

So - any more tips and advice, from those that are using I should be aware of. I'm not hugely active - apart from walking my dogs, but I do have to go through airport security every day, has anyone had any issues with this yet.

Simon, you will love having trend info, I have found it not to be 100% accurate, often about 1 mmol lower than blood, but like you said this makes no dif to me, its the is going up or down, should I eat or inject type info.

I have in the past had supply issues and been a few weeks without sensors, felt lost without it now.

It must be saving the NHS a fortune as I only test about 3 times a day now instead of 10+

Dec 13, 2015

Felix Glenn 26 posts

Topic: General Discussion / DAFNE Resfresher

Hi Folks,
I just did a DAFNE refresher (Lewisham Hospital, London) and learned a couple of interesting things:
1) Type 1s who continuously record BG/CP info have a lower HbA1c than those who don't
2) There is no such thing as a 24hr BI insulin which remains active for 24hrs, hence the prevalence of Type 1s being advised to move to splitting BI dose.

Please tell me your thoughts?

Both things have had a very positive impact on the way I'm managing my condition, starting with The DAFNE online App.

F

Dec 13, 2015

Felix Glenn 26 posts

Topic: General Discussion / DAFNE and Insulin Pumps.

I just did a DAFNE refresher (Lewisham Hospital, London) and learned a couple of interesting things:
1) Type 1s who continuously record BG/CP info have a lower HbA1c than those who don't
2) There is no such thing as a 24hr BI insulin which remains active for 24hrs, hence the prevalence of Type 1s being advised to move to splitting BI dose.

Please tell me your thoughts?

Both things have had an enormous impact on the way I'm managing my condition, starting with The DAFNE online App.

F

Dec 13, 2015

Felix Glenn 26 posts

Topic: General Discussion / Meet up with some fellow type 1's

Hi,
Please let me know if you are meeting up again in the near future.
DAFNE has been a wonderful education for me and I have to say that it is the experiences and advice of other type 1 diabetics that has been the single biggest factor in my learning how to manage this condition.
Felix Cool

Dec 11, 2015

Nuri 1 post

Topic: General Discussion / Can DAFNE consider changing from the use of CPâ€™s to g of carbohydrate?

Have just joined Dafne and am slightly surprised to read above that "some bolus advisors cannot work in carbohydrate portions" and "the grammes approach would make it easier for some educators".
The changes that advisors/educators would like reads as very confusing and I do agree that it could, for some diabetics, lead to more risk of error with insulin requirements and the consequences therein.
I'd prefer things to stay as they are.

Dec 11, 2015

Stew B 123 posts

Topic: General Discussion / Can DAFNE consider changing from the use of CPâ€™s to g of carbohydrate?

It's not broken, please don't fix it!

Dec 10, 2015

SimonC 78 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Ok - I have made it up the waiting list - after 6 months - which to be fair was what people in here said it would be, and have received my email saying I can order.

I will be ordering - as I like the idea of being able to see trends - as they happen, and be told whether my sugar levels are going up or down - as this makes a difference to the action taken and a single snap shot in time can't tell you this.

So - any more tips and advice, from those that are using I should be aware of. I'm not hugely active - apart from walking my dogs, but I do have to go through airport security every day, has anyone had any issues with this yet.

Dec 17, 2015 Felix Glenn 26 posts	Topic: General Discussion / DAFNE Principles Thanks! Some questions: Does "Graduate" means someone who has attended DAFNE? Will the Dietician or Diabetic Specialist Nurse who delivered DAFNE be able to give me access to another area of this site (with a code)? Cheers! Felix

Dec 17, 2015 Felix Glenn 26 posts	Topic: General Discussion / DAFNE Resfresher Many thanks - I'll quiz the HCPs next. Cheers!

Dec 17, 2015 novorapidboi26 1,816 posts	Topic: General Discussion / Basal check I quite surprised that you are unaware how to carry out a basal test considering your on a pump, and have been for nearly 4 years........ how did that happen...? I ask because I personally had to have done DAFNE first and prove that despite a very specific dosing regime using DAFNE didn't work..... Have a look at this: Beyond The Basals This will take you through the process for pumpers like yourself, its asks you to look at your BG levels inside a 5 hour window and then adjust basal rates if and when needed, usually if the levels exceed 1.7mmol in either direction....

Dec 17, 2015 novorapidboi26 1,816 posts	Topic: General Discussion / DAFNE Resfresher Just seen your previous posts and this one elsewhere......... If you have attended the DAFNE course you should be able to get the code form the HCPs that will let you unlock the full features of the site, specifically the course handbook........

Dec 17, 2015 novorapidboi26 1,816 posts	Topic: General Discussion / DAFNE and Insulin Pumps. Felix Glenn said: I just did a DAFNE refresher (Lewisham Hospital, London) and learned a couple of interesting things: 1) Type 1s who continuously record BG/CP info have a lower HbA1c than those who don't 2) There is no such thing as a 24hr BI insulin which remains active for 24hrs, hence the prevalence of Type 1s being advised to move to splitting BI dose. Please tell me your thoughts? Both things have had an enormous impact on the way I'm managing my condition, starting with The DAFNE online App. F I agree about the BI/basal doses, even if it did manage to last the 24 hours, a constant, non changing dose is not matching the output of the liver..... so even a split dose isn't as accurate as it could be, but its better than one, and gives much more flexibility between the AM/PM portions of the day...

Dec 17, 2015 novorapidboi26 1,816 posts	Topic: General Discussion / DAFNE Principles If your a graduate you can access them here, just take a screenshot..... your profile suggest your not a graduate and so it would be frowned upon giving portions of the course handbook away without you attending and being trained by the educators....

Dec 17, 2015 novorapidboi26 1,816 posts	Topic: General Discussion / Can DAFNE consider changing from the use of CPâ€™s to g of carbohydrate? As a pumper I actually still struggle with setting ratios to grams:unit and actually like the CPs or unit:grams, with the grams fixed..... Ultimately I can manage OK, its just trying to remember that for more insulin, you need to reduce the gram value.....

Dec 17, 2015 Hightower 8 posts	Topic: General Discussion / Can DAFNE consider changing from the use of CPâ€™s to g of carbohydrate? Personally I find the whole CP thing pointless. I would rather the 1 unit to 10g etc. You have to count the carbs first so not sure what the point of then converting them to CP's is. LOVE DAFNE

Dec 16, 2015 SimonC 78 posts	Topic: General Discussion / Cyborg Times (new BG meter) With regards to cost - I have just placed my first order for my reader and 2 sensors - the total - with the VAT relief taken off and the delivery added on was Â£138 - looking at the bill, the sensors on their own was Â£96.58 - for 2, so each one is Â£48.29. I don't know if the price will change on re ordering, but this fits in with what stephenbrowne has said.

Dec 16, 2015 stephenbrowne 37 posts	Topic: General Discussion / Cyborg Times (new BG meter) Hi Alan and Phil, I note than the combined Freestyle starter kit of a reader plus 2 sensors is currently unavailable at Â£160 but it is possible to order a reader (scanner) for Â£58 and a pack of 2 sensors which will last for a total of 28 days for Â£56. One can apply for VAT exemption with type 1 diabetes. I find that the monthly price including postage with VAT exemption works out at about Â£102 .Despite the price I have found it such a help that it has been worth it for me.. I have sometimes found wild discrepancy between the sensor readings e.g persistent readings suggesting hypos when I have felt fine and finger prick test results have been well within normal range. This has sometimes occurred towards the end of a 2 week session on a sensor and occasionally inthe first 12 hours of a new sensor. Usually there is a good correlation between the interstitial tissue sugar level and capillary blood sugar. Sometimes the sensor readings have been exactly the same, sometimes up to 1 mmol/l above or below the finger prick reading. The discrepancies may be more after vigorous exercise. Of course, there is a 10-15 minute delay between stabilisation of tssue a blood sugar levels and this has an effect. If the reader gives a peculiar unexpected result I generally check a finger prick result..My priciple with any medical measurement or device is "If the result does not fit with how you feel or is unexpected , be suspicious and sceptical and seek alternative confirmation!"

Dec 16, 2015 Alan 49 280 posts	Topic: General Discussion / Cyborg Times (new BG meter) I'm obviously tempted by these Libre kits - how much do they cost initially and then how much do the sensors cost?

Dec 16, 2015 Phil Maskell 194 posts	Topic: General Discussion / Cyborg Times (new BG meter) Anyone else found this? I hope this is just the current sensor, but its reading 3.8, I don't feel hypo so did BG test, 5.5, never had it this far out before. I would possibly scrap this sensor, but its a) got 7 days left (Â£25) b) my new ones haven't arrived yet. Just wondering, been using it for over a year now, is it a problem with the siting of the sensor, skin hardening or something? If it is this far out for the next 7 days I am going to complain to Abbott, bit worried as I like the Libre, naughty but I have come to rely on it over BG tests alot, if its not accurate I don't know that I can trust it any more. Phil

Dec 15, 2015 Phil Maskell 194 posts	Topic: General Discussion / Cyborg Times (new BG meter) Simon, Hope you find it useful, it was quite sad when I first ordered how excited I was to get a BG meter! When you put a new sensor on for the maths to be able to average out a reading you can't get anything for 60 mins, this seems like a lifetime I have found that some sensors are more accurate than others, annoyingly the one I'm wearing now is about 2 mmol lower, so reckons I'm hypo when I'm 4 or 5. But other sensors have been spot on to 0.1 mmol. I suppose it also depends how accurate my Accu-Chek Mobile is as this was dif from OneTouch. Its the over night trends that has helped my HbA1c (was going hypo and liver kicking out sugar so spiking), since getting Libre HbA1c gone from 7.9 ish to 6.6 (sorry, still work in old money) and gone low carb now so hoping for sub 6 next time. Hope you get it before Xmas, nice pressie, all the party food will be good fun watching the graph bounce around Phil

Dec 14, 2015 Felix Glenn 26 posts	Topic: General Discussion / DAFNE Principles Hi, Does anyone know where I can get online pictures of the DAFNE principles as used on the training course? I'm particularly interested in "the stepwise approach". Cheers! Felix

Dec 14, 2015 SimonC 78 posts	Topic: General Discussion / Cyborg Times (new BG meter) Simon, you will love having trend info, I have found it not to be 100% accurate, often about 1 mmol lower than blood, but like you said this makes no dif to me, its the is going up or down, should I eat or inject type info. I have in the past had supply issues and been a few weeks without sensors, felt lost without it now. It must be saving the NHS a fortune as I only test about 3 times a day now instead of 10+ Cheers Phil - looking forward to the trends - esp over night.

Dec 14, 2015 michaelj 45 posts	Topic: General Discussion / Can DAFNE consider changing from the use of CPâ€™s to g of carbohydrate? I wonder if any of these clever people suggesting this are actually diabetic, and having to work out ratios on a daily basis. Leave it alone

Dec 14, 2015 Phil Maskell 194 posts	Topic: General Discussion / Cyborg Times (new BG meter) SimonC said: Ok - I have made it up the waiting list - after 6 months - which to be fair was what people in here said it would be, and have received my email saying I can order. I will be ordering - as I like the idea of being able to see trends - as they happen, and be told whether my sugar levels are going up or down - as this makes a difference to the action taken and a single snap shot in time can't tell you this. So - any more tips and advice, from those that are using I should be aware of. I'm not hugely active - apart from walking my dogs, but I do have to go through airport security every day, has anyone had any issues with this yet. Simon, you will love having trend info, I have found it not to be 100% accurate, often about 1 mmol lower than blood, but like you said this makes no dif to me, its the is going up or down, should I eat or inject type info. I have in the past had supply issues and been a few weeks without sensors, felt lost without it now. It must be saving the NHS a fortune as I only test about 3 times a day now instead of 10+

Dec 13, 2015 Felix Glenn 26 posts	Topic: General Discussion / DAFNE Resfresher Hi Folks, I just did a DAFNE refresher (Lewisham Hospital, London) and learned a couple of interesting things: 1) Type 1s who continuously record BG/CP info have a lower HbA1c than those who don't 2) There is no such thing as a 24hr BI insulin which remains active for 24hrs, hence the prevalence of Type 1s being advised to move to splitting BI dose. Please tell me your thoughts? Both things have had a very positive impact on the way I'm managing my condition, starting with The DAFNE online App. F

Dec 13, 2015 Felix Glenn 26 posts	Topic: General Discussion / DAFNE and Insulin Pumps. I just did a DAFNE refresher (Lewisham Hospital, London) and learned a couple of interesting things: 1) Type 1s who continuously record BG/CP info have a lower HbA1c than those who don't 2) There is no such thing as a 24hr BI insulin which remains active for 24hrs, hence the prevalence of Type 1s being advised to move to splitting BI dose. Please tell me your thoughts? Both things have had an enormous impact on the way I'm managing my condition, starting with The DAFNE online App. F

Dec 13, 2015 Felix Glenn 26 posts	Topic: General Discussion / Meet up with some fellow type 1's Hi, Please let me know if you are meeting up again in the near future. DAFNE has been a wonderful education for me and I have to say that it is the experiences and advice of other type 1 diabetics that has been the single biggest factor in my learning how to manage this condition. Felix

Dec 11, 2015 Nuri 1 post	Topic: General Discussion / Can DAFNE consider changing from the use of CPâ€™s to g of carbohydrate? Have just joined Dafne and am slightly surprised to read above that "some bolus advisors cannot work in carbohydrate portions" and "the grammes approach would make it easier for some educators". The changes that advisors/educators would like reads as very confusing and I do agree that it could, for some diabetics, lead to more risk of error with insulin requirements and the consequences therein. I'd prefer things to stay as they are.

Dec 11, 2015 Stew B 123 posts	Topic: General Discussion / Can DAFNE consider changing from the use of CPâ€™s to g of carbohydrate? It's not broken, please don't fix it!

Dec 10, 2015 SimonC 78 posts	Topic: General Discussion / Cyborg Times (new BG meter) Ok - I have made it up the waiting list - after 6 months - which to be fair was what people in here said it would be, and have received my email saying I can order. I will be ordering - as I like the idea of being able to see trends - as they happen, and be told whether my sugar levels are going up or down - as this makes a difference to the action taken and a single snap shot in time can't tell you this. So - any more tips and advice, from those that are using I should be aware of. I'm not hugely active - apart from walking my dogs, but I do have to go through airport security every day, has anyone had any issues with this yet.