Recent Posts - DAFNE Online

Jan 19, 2016

HelenP 218 posts

Topic: General Discussion / Is it worth attending a DAFNE course

Hi,
I would say if you can do a DAFNE course then you ought to as it brings you back to first principles. Although I am confused about the 89. What unit is this in? We are using mmol/L (here) and I have some knowledge of mg/dL.

On the grandparent level I have found that the tighter I keep the BGs the better I feel and the more I can do with the kids so I encourage you to do what you can to achieve good HbA1cs. About the finger pricks...I find that if my hands are dry the finger pricks hurt more so I use a non perfumed basic sorbolene hand cream, routinely, as if you do a test immediately after putting on the cream you do not get a clean drop.. I think the massage to rub in the cream also helps.

Good luck. Helen

Jan 19, 2016

annis54 6 posts

Topic: General Discussion / Is it worth attending a DAFNE course

I'm being urged to attend a DAFNE course to help lower my HB1AC figure which was 89 last time. Trouble is I live in the country and driving to the course is a problem. There was one at Minehead hospital (nearest) last February but I had a bug then so I couldn't have gone even if I had signed up. It was also at half term so awkward with the grandchildren.
Does anyone know if the course is on in Minehead every year? I might be able to get a lift.
Also if I don't do the course I'll just get nagged until I do.
And I'd love to have a blood glucose monitor that just fits over your finger so no jabbing which is painful. A bit like an oxygen monitor. Is there one to buy in the UK?

Jan 16, 2016

lbouchier 2 posts

Topic: Carbohydrate Counting / Carb counting whey protein

Hi,
I've been going to the gym for some time and always used to take some whey protein isolate after my sessions which were mainly resistance based. I used to take the protein & a banana. The protein has the following carbs:
1.8g per serving or 5.8 per 100g
I would take 2 servings and banana. I was counting this(incorrectly I believe) as 1.8g x2 =3.6g + 2CP for banana = 5.6 CP. As I was just after exercise I used to take 4 units of novo rapid and this always worked out well, no hypo or high readings.
Now I believe my above calculation for the CPs in the protein was incorrect. I've also changed to taking some protein pre workout. The total amount of carbs in grams I have pre and during workout is 7.2 grams. I calculated this as 0.72CP. Having a reading of 8.0 pre workout this morning I consumed this without any novo rapid as I didn't want a hypo during the session. Afterwards my reading was 17.3.

What did I get wrong?!? My maths? Or is this because all the carbs were all liquid based and therefore took effect quicker?

I'd appreciate any advice.

Thanks, L.

Jan 16, 2016

Simon 578 posts

Topic: General Discussion / Can DAFNE consider changing from the use of CPâ€™s to g of carbohydrate?

I'll close this now as the discussion deadline has passed - see the comments from Sally below:

Thank you to all who have taken time to add your valuable comments, the next DAFNE Executive board meeting is on 25th January, I will share your comments and views with the rest of the group and let them know that though we have had a small response the majority seem to be in favour of sticking with CPs, I will also feed this back to the educator network meetings which will be taking place over the next couple of months.

Thanks again for your input
Sally

Jan 15, 2016

Brumfoodie 10 posts

Topic: Carbohydrate Counting / Maths Test

At least we have the 100g values listed. USA imports have portion size values -then say how many portions are in the pack. I'm good at maths but even I find that impossible. I was reduced to weighing out jellybeans to reach 19g weight as that would contain 20g carbs when a 40g serving contained 38g carbohydrate. (16 beans if you're interested ).Not something to attempt during a hypo.......and really slow to eat.

Jan 15, 2016

Brumfoodie 10 posts

Topic: Carbohydrate Counting / Eating in Japan - any tips?

The carb content of food in Japan turned out to be pretty simple to estimate. Rice served with a meal was typically 3tablespoons worth -3CP- and noodles were similarly constant in quantity. Portions were small but there was a wider variety of different items in a meal so I got plenty of practice in totalling tiny numbers. I added 0.5 CP to the total of each meal to allow for the sugar included in sauces and pickles served with rice. It seemed to work. Only problem? Eating a fried egg served on a flat plate using chopsticks - but thats another story... Very Happy

Jan 15, 2016

michaelj 45 posts

Topic: General Discussion / Best worldwide travel insurance for type 1 diabetics

Try Diabetes Uk. I did a 5 week self drive tour of New Zealand in Jan 2014 and found them very reasonable with three levels of cover. No problems with existing ailments and easy to obtain. Have also used Saga and although they are considered to be expensive have found them sometimes cheaper than other sites as they are used to dealing with older people where infirmaties are quite common, so quite happy to cover pre-existing conditions

Jan 12, 2016

Alan 49 284 posts

Topic: General Discussion / Can DAFNE consider changing from the use of CPâ€™s to g of carbohydrate?

In view of all the comments above, is this still on the cards?

Jan 11, 2016

Stew B 125 posts

Topic: General Discussion / Best worldwide travel insurance for type 1 diabetics

Has anyone out there had to make a diabetes-related claim on their travel insurance? For example, replacing lost or stolen medication or equipment. For me it's the company's response to a claim that would make it recommendable.

Jan 11, 2016

GR8 5 posts

Topic: General Discussion / Best worldwide travel insurance for type 1 diabetics

Hi

I am a type 1 diabetic who has done DAFNE, has no complications and am about to renew my annual worldwide travel insurance.

I currently have insurance through INSUREANDGO and to be honest have no problems with them but just wanted to know if anyone else has any other companies they would recommend

Thanks

Jan 11, 2016

marke 686 posts

Topic: General Discussion / A plea for Structured education

From the DAFNE UK website a speech given by a DAFNE graduate at a Diabetes UK meeting. A sadly familiar story of diabetes, you can read it here

Jan 11, 2016

michaelj 45 posts

Topic: Carbohydrate Counting / natural foods for hypos

Glucose Juice from Boots or Amazon are my choice as they are in small, easy to carry bottles, and are very effective in dealing with hypo's. I think they are basically water with glucose and fruit flavouring. Each bottle is valued at 1.5 portions carbohydrate.

Jan 10, 2016

Garry 328 posts

Topic: General Discussion / Can DAFNE consider changing from the use of CPâ€™s to g of carbohydrate?

I Ilike to work using the KISS principle...Keep It Simple (because I'm) Stupid.
Present system is easy to understand and although over the dafneonline years there have been contributors who have occasionally needed help with understanding ratios, I think that their numbers have been relatively small and this change would likely make their dose calculations more difficult.
Prefer to stay as is. Thanks
Regards
Garry

Jan 9, 2016

ptw 2 posts

Topic: General Discussion / Can DAFNE consider changing from the use of CPâ€™s to g of carbohydrate?

If the educators are having difficulties, then they may be in the wrong job.

Jan 8, 2016

mitzy 94 1 post

Topic: Carbohydrate Counting / natural foods for hypos

I am being investigated for food intolerance which may be compounding my glucose control This approach involves a very restricted diet for a few weeks. Sugar is one of the things not allowed, I was wondering if anyone had advice on treating a hypo naturally??? My usual choice is orange juice or jellies unfortunately citrus fruits are also not recommended. Thanks

Jan 7, 2016

franklin123 5 posts

Topic: Questions for HCPs / Accidently given double dose of tresiba

Thanks for your reply Jay Bee. I know the problems will occur during the night so will need to be vigilant until bedtime.

Jan 7, 2016

JayBee 587 posts

Topic: General Discussion / Online

Are you using Android or iPhone?

If Android, I know that you will first need to set it up in the Settings that the app uses your log in details for DAFNE Online (Go into Settings and see Username and Password at the top). Then, go into the diary Entries bit and you may see a menu option at the bottom of the view? From there, you can pick from a few things, including Download Entries and Upload Entries. If you are signed in on the app correctly, select Upload Entries to upload them to the website. If you want to view entries from the DAFNE Online site on your phone app, select Download instead to add them to your app Entries.

You can also set the app to automatically upload your entries on the go if you like under the Settings section. Keeping my diary entries online is very helpful for when my phone has let me down.

Hope this helps. It is possibly the same for iPhone but I don't know for sure.

Jan 7, 2016

JayBee 587 posts

Topic: Questions for HCPs / Accidently given double dose of tresiba

You will probably find your QA insulin will respond stronger than usual when you take your usual meal ratios or correctional doses. You may also find that you slowly drop as the day goes by, so monitoring your BGs every hour or two should be about right for preventing a hypo; maybe more often depending on how aggressive the drop is. See how you go?

I've done stuff like this before but it was with Levemir. Easily done and thank gawd the dose runs out eventually. Take care, and stay safe.

Jan 7, 2016

franklin123 5 posts

Topic: Questions for HCPs / Accidently given double dose of tresiba

Hi

I am pretty certainn I have given 2 doses of tresiba. Thought I hadn't had my 18 unit dose so gave it again. It was only after I'd done it that I felt I had actually given my dose earlier.
Please can u advise.
Many thanks.

Jan 7, 2016

Bob Hinge 1 post

Topic: General Discussion / Online

I expect this has been asked before but I can't find it. I am new to smartphone but not to dafne. I downloaded the 'Dafne online' app which is storing my results on the phone. Have now logged on to this site; how do I get the results on my phone online?

Jan 6, 2016

Yelekreb 11 posts

Topic: General Discussion / RESIDUAL INSULIN GENAREATION?

Thanks for that, I've been diagnosed just over 13 months (aged 47!) as a T1, guess I still have residual function, thats is probably preserved by insulin jabs. I have a (very modest) dawn phenomena impact, but as you say most T1s have higher ratios in the morning - guess I'm just obtuse!

T1 Diabetes is endlessly fascinating and challenging at the same time. DAFNE was a great help, however good BS control is both an art and a science I find!

Jan 6, 2016

Garry 328 posts

Topic: General Discussion / RESIDUAL INSULIN GENAREATION?

alanG
You may have significant natural insulin production remaining at this time. Have you been diagnosed as Type 1 long?

Yelekreb
We are all different. Our physiologies are all very different.
Personally, I need to use ratios of 2:1 at breakfast, 2.5:1 at lunch and back to 2:1 at dinner. If I ever eat more than 10 CPs at dinner I need 2.2:1.
In the morning, many type 1s need higher ratios than during the day as their insulin uptake is hindered by Adrenaline and other hormones released naturally into the bloodstream used to wake us up, thus
you could think of it as Adrenaline causes insulin resistance. It's hard to understand. You'll get a handle on it with experience. I've got over 36 years...and still haven't cracked it! Embarassed

Regards
Garry

Jan 6, 2016

Garry 328 posts

Topic: DAFNE Online Mobile / HBA1c recording etc

I have a windows phone and no app available unfortunately. Hence, I can't check what I'm suggesting for your phone, but I have always typed in and used the comments field within My Blood Glucose Diary to record the type of info you wish to store.
Regards
Garry

Jan 6, 2016

ptw 2 posts

Topic: General Discussion / Update for Lindsey and Debbie...

These are my last 10 day's records. I can post others between 21st November and today if required. Average BG level for last 7 days is 6.0. For the last 14 days it is 6.1. For the last 30 days it is 6.5 and for the last 90 dyas it is 6.7.

ptw

Jan 5, 2016

Yelekreb 11 posts

Topic: DAFNE Online Mobile / HBA1c recording etc

Is there a way of recording HBA1c & other info in the app? Eg blood pressure, weight etc.

Would all help!

Jan 19, 2016 HelenP 218 posts	Topic: General Discussion / Is it worth attending a DAFNE course Hi, I would say if you can do a DAFNE course then you ought to as it brings you back to first principles. Although I am confused about the 89. What unit is this in? We are using mmol/L (here) and I have some knowledge of mg/dL. On the grandparent level I have found that the tighter I keep the BGs the better I feel and the more I can do with the kids so I encourage you to do what you can to achieve good HbA1cs. About the finger pricks...I find that if my hands are dry the finger pricks hurt more so I use a non perfumed basic sorbolene hand cream, routinely, as if you do a test immediately after putting on the cream you do not get a clean drop.. I think the massage to rub in the cream also helps. Good luck. Helen

Jan 19, 2016 annis54 6 posts	Topic: General Discussion / Is it worth attending a DAFNE course I'm being urged to attend a DAFNE course to help lower my HB1AC figure which was 89 last time. Trouble is I live in the country and driving to the course is a problem. There was one at Minehead hospital (nearest) last February but I had a bug then so I couldn't have gone even if I had signed up. It was also at half term so awkward with the grandchildren. Does anyone know if the course is on in Minehead every year? I might be able to get a lift. Also if I don't do the course I'll just get nagged until I do. And I'd love to have a blood glucose monitor that just fits over your finger so no jabbing which is painful. A bit like an oxygen monitor. Is there one to buy in the UK?

Jan 16, 2016 lbouchier 2 posts	Topic: Carbohydrate Counting / Carb counting whey protein Hi, I've been going to the gym for some time and always used to take some whey protein isolate after my sessions which were mainly resistance based. I used to take the protein & a banana. The protein has the following carbs: 1.8g per serving or 5.8 per 100g I would take 2 servings and banana. I was counting this(incorrectly I believe) as 1.8g x2 =3.6g + 2CP for banana = 5.6 CP. As I was just after exercise I used to take 4 units of novo rapid and this always worked out well, no hypo or high readings. Now I believe my above calculation for the CPs in the protein was incorrect. I've also changed to taking some protein pre workout. The total amount of carbs in grams I have pre and during workout is 7.2 grams. I calculated this as 0.72CP. Having a reading of 8.0 pre workout this morning I consumed this without any novo rapid as I didn't want a hypo during the session. Afterwards my reading was 17.3. What did I get wrong?!? My maths? Or is this because all the carbs were all liquid based and therefore took effect quicker? I'd appreciate any advice. Thanks, L.

Jan 16, 2016 Simon 578 posts	Topic: General Discussion / Can DAFNE consider changing from the use of CPâ€™s to g of carbohydrate? I'll close this now as the discussion deadline has passed - see the comments from Sally below: Thank you to all who have taken time to add your valuable comments, the next DAFNE Executive board meeting is on 25th January, I will share your comments and views with the rest of the group and let them know that though we have had a small response the majority seem to be in favour of sticking with CPs, I will also feed this back to the educator network meetings which will be taking place over the next couple of months. Thanks again for your input Sally

Jan 15, 2016 Brumfoodie 10 posts	Topic: Carbohydrate Counting / Maths Test At least we have the 100g values listed. USA imports have portion size values -then say how many portions are in the pack. I'm good at maths but even I find that impossible. I was reduced to weighing out jellybeans to reach 19g weight as that would contain 20g carbs when a 40g serving contained 38g carbohydrate. (16 beans if you're interested ).Not something to attempt during a hypo.......and really slow to eat.

Jan 15, 2016 Brumfoodie 10 posts	Topic: Carbohydrate Counting / Eating in Japan - any tips? The carb content of food in Japan turned out to be pretty simple to estimate. Rice served with a meal was typically 3tablespoons worth -3CP- and noodles were similarly constant in quantity. Portions were small but there was a wider variety of different items in a meal so I got plenty of practice in totalling tiny numbers. I added 0.5 CP to the total of each meal to allow for the sugar included in sauces and pickles served with rice. It seemed to work. Only problem? Eating a fried egg served on a flat plate using chopsticks - but thats another story...

Jan 15, 2016 michaelj 45 posts	Topic: General Discussion / Best worldwide travel insurance for type 1 diabetics Try Diabetes Uk. I did a 5 week self drive tour of New Zealand in Jan 2014 and found them very reasonable with three levels of cover. No problems with existing ailments and easy to obtain. Have also used Saga and although they are considered to be expensive have found them sometimes cheaper than other sites as they are used to dealing with older people where infirmaties are quite common, so quite happy to cover pre-existing conditions

Jan 12, 2016 Alan 49 284 posts	Topic: General Discussion / Can DAFNE consider changing from the use of CPâ€™s to g of carbohydrate? In view of all the comments above, is this still on the cards?

Jan 11, 2016 Stew B 125 posts	Topic: General Discussion / Best worldwide travel insurance for type 1 diabetics Has anyone out there had to make a diabetes-related claim on their travel insurance? For example, replacing lost or stolen medication or equipment. For me it's the company's response to a claim that would make it recommendable.

Jan 11, 2016 GR8 5 posts	Topic: General Discussion / Best worldwide travel insurance for type 1 diabetics Hi I am a type 1 diabetic who has done DAFNE, has no complications and am about to renew my annual worldwide travel insurance. I currently have insurance through INSUREANDGO and to be honest have no problems with them but just wanted to know if anyone else has any other companies they would recommend Thanks

Jan 11, 2016 marke 686 posts	Topic: General Discussion / A plea for Structured education From the DAFNE UK website a speech given by a DAFNE graduate at a Diabetes UK meeting. A sadly familiar story of diabetes, you can read it here

Jan 11, 2016 michaelj 45 posts	Topic: Carbohydrate Counting / natural foods for hypos Glucose Juice from Boots or Amazon are my choice as they are in small, easy to carry bottles, and are very effective in dealing with hypo's. I think they are basically water with glucose and fruit flavouring. Each bottle is valued at 1.5 portions carbohydrate.

Jan 10, 2016 Garry 328 posts	Topic: General Discussion / Can DAFNE consider changing from the use of CPâ€™s to g of carbohydrate? I Ilike to work using the KISS principle...Keep It Simple (because I'm) Stupid. Present system is easy to understand and although over the dafneonline years there have been contributors who have occasionally needed help with understanding ratios, I think that their numbers have been relatively small and this change would likely make their dose calculations more difficult. Prefer to stay as is. Thanks Regards Garry

Jan 9, 2016 ptw 2 posts	Topic: General Discussion / Can DAFNE consider changing from the use of CPâ€™s to g of carbohydrate? If the educators are having difficulties, then they may be in the wrong job.

Jan 8, 2016 mitzy 94 1 post	Topic: Carbohydrate Counting / natural foods for hypos I am being investigated for food intolerance which may be compounding my glucose control This approach involves a very restricted diet for a few weeks. Sugar is one of the things not allowed, I was wondering if anyone had advice on treating a hypo naturally??? My usual choice is orange juice or jellies unfortunately citrus fruits are also not recommended. Thanks

Jan 7, 2016 franklin123 5 posts	Topic: Questions for HCPs / Accidently given double dose of tresiba Thanks for your reply Jay Bee. I know the problems will occur during the night so will need to be vigilant until bedtime.

Jan 7, 2016 JayBee 587 posts	Topic: General Discussion / Online Are you using Android or iPhone? If Android, I know that you will first need to set it up in the Settings that the app uses your log in details for DAFNE Online (Go into Settings and see Username and Password at the top). Then, go into the diary Entries bit and you may see a menu option at the bottom of the view? From there, you can pick from a few things, including Download Entries and Upload Entries. If you are signed in on the app correctly, select Upload Entries to upload them to the website. If you want to view entries from the DAFNE Online site on your phone app, select Download instead to add them to your app Entries. You can also set the app to automatically upload your entries on the go if you like under the Settings section. Keeping my diary entries online is very helpful for when my phone has let me down. Hope this helps. It is possibly the same for iPhone but I don't know for sure.

Jan 7, 2016 JayBee 587 posts	Topic: Questions for HCPs / Accidently given double dose of tresiba You will probably find your QA insulin will respond stronger than usual when you take your usual meal ratios or correctional doses. You may also find that you slowly drop as the day goes by, so monitoring your BGs every hour or two should be about right for preventing a hypo; maybe more often depending on how aggressive the drop is. See how you go? I've done stuff like this before but it was with Levemir. Easily done and thank gawd the dose runs out eventually. Take care, and stay safe.

Jan 7, 2016 franklin123 5 posts	Topic: Questions for HCPs / Accidently given double dose of tresiba Hi I am pretty certainn I have given 2 doses of tresiba. Thought I hadn't had my 18 unit dose so gave it again. It was only after I'd done it that I felt I had actually given my dose earlier. Please can u advise. Many thanks.

Jan 7, 2016 Bob Hinge 1 post	Topic: General Discussion / Online I expect this has been asked before but I can't find it. I am new to smartphone but not to dafne. I downloaded the 'Dafne online' app which is storing my results on the phone. Have now logged on to this site; how do I get the results on my phone online?

Jan 6, 2016 Yelekreb 11 posts	Topic: General Discussion / RESIDUAL INSULIN GENAREATION? Thanks for that, I've been diagnosed just over 13 months (aged 47!) as a T1, guess I still have residual function, thats is probably preserved by insulin jabs. I have a (very modest) dawn phenomena impact, but as you say most T1s have higher ratios in the morning - guess I'm just obtuse! T1 Diabetes is endlessly fascinating and challenging at the same time. DAFNE was a great help, however good BS control is both an art and a science I find!

Jan 6, 2016 Garry 328 posts	Topic: General Discussion / RESIDUAL INSULIN GENAREATION? alanG You may have significant natural insulin production remaining at this time. Have you been diagnosed as Type 1 long? Yelekreb We are all different. Our physiologies are all very different. Personally, I need to use ratios of 2:1 at breakfast, 2.5:1 at lunch and back to 2:1 at dinner. If I ever eat more than 10 CPs at dinner I need 2.2:1. In the morning, many type 1s need higher ratios than during the day as their insulin uptake is hindered by Adrenaline and other hormones released naturally into the bloodstream used to wake us up, thus you could think of it as Adrenaline causes insulin resistance. It's hard to understand. You'll get a handle on it with experience. I've got over 36 years...and still haven't cracked it! Regards Garry

Jan 6, 2016 Garry 328 posts	Topic: DAFNE Online Mobile / HBA1c recording etc I have a windows phone and no app available unfortunately. Hence, I can't check what I'm suggesting for your phone, but I have always typed in and used the comments field within My Blood Glucose Diary to record the type of info you wish to store. Regards Garry

Jan 6, 2016 ptw 2 posts	Topic: General Discussion / Update for Lindsey and Debbie... These are my last 10 day's records. I can post others between 21st November and today if required. Average BG level for last 7 days is 6.0. For the last 14 days it is 6.1. For the last 30 days it is 6.5 and for the last 90 dyas it is 6.7. ptw

Jan 5, 2016 Yelekreb 11 posts	Topic: DAFNE Online Mobile / HBA1c recording etc Is there a way of recording HBA1c & other info in the app? Eg blood pressure, weight etc. Would all help!