Recent Posts - DAFNE Online

Jan 30, 2016

VHDLMan 2 posts

Topic: General Discussion / Insulin types and doses - Basel/Bolus doses - Novapen 5

Hi All

New to the forum so I hope the following question is OK - Been a T1 for just over a year having had serious necrotic pancreatitis at Xmas 2014.

I am on Innolet Insultard, one jab in the morning and one at night if my BG is high. I have done a lot of reading, the latest on basel/bolus dose
insulin. One thing I suffer with is post meal, BG spikes. I eat the best 'diabetic' meals I can (Shredded wheat, Livlife bread, no mash or chips
or pizza but the odd gingernut) but I still spike from 6.0 to 11.0, typically, and it takes a few hours or a good 2 mile, post meal walk to get it
back down below 7.0. I am committed to 'doing my best' and walk 5 to 7 miles a day, kayak, swim, ride a bike, have lost 7.5 stone in 2015
(I was VERY overweight) and have even purchased a Freestyle Libre to monitor my numbers.

The question: Should I be using a bolas dose 'pen' before meals to combat the spikes or should the Innolet be enough?

I have been reading about Novapen 4 or 5 and NovaRapid cartridges and I have an appointment with my GP next week to discuss getting
one. Thoughts?

Thanks

Jan 30, 2016

Peter 103 posts

Topic: General Discussion / freestyle libra

NB. The new factory seems to have come on stream now, and availability is much better if you want to buy it.

Jan 30, 2016

Popey81 5 posts

Topic: General Discussion / Injections and prescriptions

If you need to inject then you need to inject. Not really sure how they can say your using to many needles. Maybe try having your sachets half hour after a meal that way you could inject for a snack the same time as you inject for a meal?? Save on a few needles that way but not really sure why GPs are moaning about it.
As for testing every time you dont need too. Test the 4 times a day. But for snacks just cover the CP's dont worry about testing.
I try to keep my snacks with meals. Otherwise you will nearly always get a high BG reading. 2.5 hours after any meal i eat shows high BG readings. Then 4-5 hours they are back to normal. Snacking between will keep them high and you will never get a true reading.
GP's dont like spending money so maybe thats why they moaning about to many needles??

Jan 30, 2016

Popey81 5 posts

Topic: Questions for HCPs / 2 Hour rise after a meal and HbA1c results

Thanks all for the replies. Keep doing what im doing until my next HbA1c test Smile

Jan 29, 2016

AMcD 38 posts

Topic: Questions for HCPs / 2 Hour rise after a meal and HbA1c results

Novo Nordisk who manufacturer novorapid fast acting insulin have completed stage 3a clinical trials on a modified version of their fast acting insulin that achieves a faster rate of absorption and than novorapid. .. They applied to the FDA for a NDA (new drug application) in December 15.... They have called it onset 1 for type 1 use... if successful in getting to market this insulin will peak quicker than current fast acting insulin and hopefully make some further improvement on reducing post meal spikes. .. Andy

Jan 29, 2016

derekh1965 99 posts

Topic: General Discussion / Injections and prescriptions

Thought I would add my diary to this post

Jan 29, 2016

derekh1965 99 posts

Topic: General Discussion / Injections and prescriptions

Hi, Hope everyone is well. I wanted to ask about needles and injecting. I am being told by my GP I am ordering too many needles.
I order needles on 19th November and then again on the 30th December as it was close to the weekend, and I got a phone cal from the GP asking me why I needed more needles so soon. I got them, but ordered more on 27th January and never received them. If you are to use a new needle for every injection that is upto 9 injections a day. 2 BI, 4 meals, Breakfast,Lunch,Dinner and supper and 3 - 4 snacks. Snacks are nescafe sachets of latte which have between 10 and 15 g carbs each.
Am I using too many needles.
They also said I was testing too often. I test before I have carbs.
Thanks for reading.
Kind regards
Derek

Jan 29, 2016

HelenP 218 posts

Topic: General Discussion / Pump death?

Hi,

I am wondering if anyone has experienced a "pump death". My health fund (I'm in Australia) has denied a replacement pump as my current pump is "fully functional" even though it is 12 months out of warranty. I am wondering whether pumps have a slow and painful demise or they just stop being fully functional! The pump is working but I can not use the clip as after years of wearing it on my right hip I have somewhat distorted the area where the clip slide in. As a consequence I am carrying it in my pocket (not clipped in) and it does have a tendency to bungee jump especially when exiting the car. I have tried various systems without the clip and have resorted to pinning a child's sock to pyjamas etc but it is far from convenient. Helen

Jan 28, 2016

JohnCook 3 posts

Topic: Questions for HCPs / Johncook

Many thanks Helen. Very helpful. I will also refrain from my evening BI due to very high overdose this morning. Regular monitoring is essential as you say and adjust QA to suit. John

Jan 28, 2016

HelenP 218 posts

Topic: General Discussion / Pump failure.

Hi,

I am in Australia and the system here is that your private health fund buys your pump and then a Diabetic Educator (often in private practice) teaches you how to use it. About 15 months ago I received a letter from my pump manufacturers saying that my pump was now out of warranty (3 years). At Christmas time I asked my endocrinologist to put in an application on my behalf to my health fund for a new pump. I received notification yesterday saying that the replacement pump had been denied as it was "fully functional"!

Has anyone had a pump fail? What were the signs of approaching death? How old was the pump?

Currently the clip is unable to be put back onto the pump so I am carrying it in a pockets where it regularly bungees to the floor/pavement etc and I wear it in a sock pinned to PJs. This is causing damage to the outer skin but all appears to be working...
Helen

Jan 28, 2016

HelenP 218 posts

Topic: Questions for HCPs / Johncook

I did something similar but you will be very careful and do lots of tests and make decisions based on the readings you get. Be vigilant! I ended up running towards the low teens until the danger period was over. Then had to bring it down. I have only done it once I think it makes you less complacent...more careful. Helen.

Jan 28, 2016

Ben in the Stow 3 posts

Topic: General Discussion / mySugr app

Just wondering if anybody else has had experience good or bad with the mySugr logbook app. I've been using it for the last month and have found it pretty helpful, especially the bolus calculator (it's got the certified medical device status going on). Not sure if the HbA1c estimator is gimmick or not yet.
Anyway I'd just love a way to export my data from it to this site. Can you do that with a csv file?

Jan 28, 2016

JohnCook 3 posts

Topic: Questions for HCPs / Johncook

Accidentally dosed 21 units BI instead of 0 at breakfast. Then used reduced QA of 8units instead of 12. Not sure how to proceed for rest of day? Location is Adelaide SA

Jan 27, 2016

Gdorean 3 posts

Topic: General Discussion / Dosage auto-calculation in apps

Hello all, I've just logged onto this site for the first time and am a bit dizzy at how good the iPhone app and info on here are. Brilliant, but obviously not having the calc thing sucks big time.
Nevertheless, finally seeing what's going on here has reinvigorated me. Cheers

Jan 27, 2016

Trish Skidmore 18 posts

Topic: General Discussion / freestyle libra

Thank you

Jan 27, 2016

marke 646 posts

Topic: General Discussion / freestyle libra

yes a number of people, there is a long thread on this forum, about it. search for freestyle libre. Secondly no its not available on the NHS, Abbott the manufacturer are in discussions with the NHS but don't hold your breath :-(

Jan 26, 2016

Brumfoodie 10 posts

Topic: Carbohydrate Counting / Maths Test

novorapidboi26 said:
Use the smartphone app 'MyFitness Pal', a quick scan of the barcode or a manual search and you will find someone has likely done all the legwork for you.......

also handy if you were to add additional items to your meal, the website at least shows the total carb amount for each item combined......yay...

I use Fat Secret for most foods -and it doesn't need the intrusive sign up that"My Fitness Pal " seems to need .Very simple to change serving size : grams, cups ounces....

Jan 26, 2016

Warwick 430 posts

Topic: Questions for HCPs / 2 Hour rise after a meal and HbA1c results

I was given the opportunity to wear a CGM (Continuous Glucose Monitor) for a weekend. Up until then, I thought that my BGs were fine after eating muesli as they were generally similar values before and 4 hours after eating it. However, the CGM showed that they were spiking at 17 within an hour of eating the muesli. I haven't touched it since and I now try and avoid foods that have many carbs in them. My HbA1C has dropped from 6.5 to 5.8 as a result. As novorapidboi26 says, injecting or bolusing 15-20 minutes before eating a high carb meal can reduce the spikes.

Jan 26, 2016

Trish Skidmore 18 posts

Topic: Questions for HCPs / freestyle libra

Hi can you tell me if the Freestyle Libre is available on the NHS free please.

Thank you Trish

Jan 26, 2016

Trish Skidmore 18 posts

Topic: General Discussion / freestyle libra

Hi does anyone use the freestyle Libre and can you get it on the NHS

Jan 26, 2016

novorapidboi26 1,816 posts

Topic: Questions for HCPs / 2 Hour rise after a meal and HbA1c results

I suppose it will be different for everyone but I found that mid meal numbers where keeping my HbA1c up a wee bit..............

I have now went on a pump and its much better..........

make sure to experiment with dose timing.........at starting point of 15 minutes before eating should be considered for Novorapid at least....

Jan 26, 2016

novorapidboi26 1,816 posts

Topic: Carbohydrate Counting / Maths Test

Use the smartphone app 'MyFitness Pal', a quick scan of the barcode or a manual search and you will find someone has likely done all the legwork for you.......

also handy if you were to add additional items to your meal, the website at least shows the total carb amount for each item combined......yay...

Jan 26, 2016

novorapidboi26 1,816 posts

Topic: General Discussion / Is it worth attending a DAFNE course

DAFNE is great and the time spent with others like you is invaluable........

if its and issue to get to the clinic ask for help with transport..........is it far away? can you stay in a hotel? all questions to be asked.....

you can also go through an online course provided by the Bournemouth Diabetes and Endocrine Centre, link below;

BDEC Diabetes Learning Programme

Jan 25, 2016

lbouchier 2 posts

Topic: Carbohydrate Counting / Carb counting whey protein

I tend not to do my cardio in the gym, just weights so you could have a point here alright. A bit if trial and error since and I'm getting closer to where I want to be now.
Thanks Gmac.

Jan 30, 2016 VHDLMan 2 posts	Topic: General Discussion / Insulin types and doses - Basel/Bolus doses - Novapen 5 Hi All New to the forum so I hope the following question is OK - Been a T1 for just over a year having had serious necrotic pancreatitis at Xmas 2014. I am on Innolet Insultard, one jab in the morning and one at night if my BG is high. I have done a lot of reading, the latest on basel/bolus dose insulin. One thing I suffer with is post meal, BG spikes. I eat the best 'diabetic' meals I can (Shredded wheat, Livlife bread, no mash or chips or pizza but the odd gingernut) but I still spike from 6.0 to 11.0, typically, and it takes a few hours or a good 2 mile, post meal walk to get it back down below 7.0. I am committed to 'doing my best' and walk 5 to 7 miles a day, kayak, swim, ride a bike, have lost 7.5 stone in 2015 (I was VERY overweight) and have even purchased a Freestyle Libre to monitor my numbers. The question: Should I be using a bolas dose 'pen' before meals to combat the spikes or should the Innolet be enough? I have been reading about Novapen 4 or 5 and NovaRapid cartridges and I have an appointment with my GP next week to discuss getting one. Thoughts? Thanks

Jan 30, 2016 Peter 103 posts	Topic: General Discussion / freestyle libra NB. The new factory seems to have come on stream now, and availability is much better if you want to buy it.

Jan 30, 2016 Popey81 5 posts	Topic: General Discussion / Injections and prescriptions If you need to inject then you need to inject. Not really sure how they can say your using to many needles. Maybe try having your sachets half hour after a meal that way you could inject for a snack the same time as you inject for a meal?? Save on a few needles that way but not really sure why GPs are moaning about it. As for testing every time you dont need too. Test the 4 times a day. But for snacks just cover the CP's dont worry about testing. I try to keep my snacks with meals. Otherwise you will nearly always get a high BG reading. 2.5 hours after any meal i eat shows high BG readings. Then 4-5 hours they are back to normal. Snacking between will keep them high and you will never get a true reading. GP's dont like spending money so maybe thats why they moaning about to many needles??

Jan 30, 2016 Popey81 5 posts	Topic: Questions for HCPs / 2 Hour rise after a meal and HbA1c results Thanks all for the replies. Keep doing what im doing until my next HbA1c test

Jan 29, 2016 AMcD 38 posts	Topic: Questions for HCPs / 2 Hour rise after a meal and HbA1c results Novo Nordisk who manufacturer novorapid fast acting insulin have completed stage 3a clinical trials on a modified version of their fast acting insulin that achieves a faster rate of absorption and than novorapid. .. They applied to the FDA for a NDA (new drug application) in December 15.... They have called it onset 1 for type 1 use... if successful in getting to market this insulin will peak quicker than current fast acting insulin and hopefully make some further improvement on reducing post meal spikes. .. Andy

Jan 29, 2016 derekh1965 99 posts	Topic: General Discussion / Injections and prescriptions Thought I would add my diary to this post

Jan 29, 2016 derekh1965 99 posts	Topic: General Discussion / Injections and prescriptions Hi, Hope everyone is well. I wanted to ask about needles and injecting. I am being told by my GP I am ordering too many needles. I order needles on 19th November and then again on the 30th December as it was close to the weekend, and I got a phone cal from the GP asking me why I needed more needles so soon. I got them, but ordered more on 27th January and never received them. If you are to use a new needle for every injection that is upto 9 injections a day. 2 BI, 4 meals, Breakfast,Lunch,Dinner and supper and 3 - 4 snacks. Snacks are nescafe sachets of latte which have between 10 and 15 g carbs each. Am I using too many needles. They also said I was testing too often. I test before I have carbs. Thanks for reading. Kind regards Derek

Jan 29, 2016 HelenP 218 posts	Topic: General Discussion / Pump death? Hi, I am wondering if anyone has experienced a "pump death". My health fund (I'm in Australia) has denied a replacement pump as my current pump is "fully functional" even though it is 12 months out of warranty. I am wondering whether pumps have a slow and painful demise or they just stop being fully functional! The pump is working but I can not use the clip as after years of wearing it on my right hip I have somewhat distorted the area where the clip slide in. As a consequence I am carrying it in my pocket (not clipped in) and it does have a tendency to bungee jump especially when exiting the car. I have tried various systems without the clip and have resorted to pinning a child's sock to pyjamas etc but it is far from convenient. Helen

Jan 28, 2016 JohnCook 3 posts	Topic: Questions for HCPs / Johncook Many thanks Helen. Very helpful. I will also refrain from my evening BI due to very high overdose this morning. Regular monitoring is essential as you say and adjust QA to suit. John

Jan 28, 2016 HelenP 218 posts	Topic: General Discussion / Pump failure. Hi, I am in Australia and the system here is that your private health fund buys your pump and then a Diabetic Educator (often in private practice) teaches you how to use it. About 15 months ago I received a letter from my pump manufacturers saying that my pump was now out of warranty (3 years). At Christmas time I asked my endocrinologist to put in an application on my behalf to my health fund for a new pump. I received notification yesterday saying that the replacement pump had been denied as it was "fully functional"! Has anyone had a pump fail? What were the signs of approaching death? How old was the pump? Currently the clip is unable to be put back onto the pump so I am carrying it in a pockets where it regularly bungees to the floor/pavement etc and I wear it in a sock pinned to PJs. This is causing damage to the outer skin but all appears to be working... Helen

Jan 28, 2016 HelenP 218 posts	Topic: Questions for HCPs / Johncook I did something similar but you will be very careful and do lots of tests and make decisions based on the readings you get. Be vigilant! I ended up running towards the low teens until the danger period was over. Then had to bring it down. I have only done it once I think it makes you less complacent...more careful. Helen.

Jan 28, 2016 Ben in the Stow 3 posts	Topic: General Discussion / mySugr app Just wondering if anybody else has had experience good or bad with the mySugr logbook app. I've been using it for the last month and have found it pretty helpful, especially the bolus calculator (it's got the certified medical device status going on). Not sure if the HbA1c estimator is gimmick or not yet. Anyway I'd just love a way to export my data from it to this site. Can you do that with a csv file?

Jan 28, 2016 JohnCook 3 posts	Topic: Questions for HCPs / Johncook Accidentally dosed 21 units BI instead of 0 at breakfast. Then used reduced QA of 8units instead of 12. Not sure how to proceed for rest of day? Location is Adelaide SA

Jan 27, 2016 Gdorean 3 posts	Topic: General Discussion / Dosage auto-calculation in apps Hello all, I've just logged onto this site for the first time and am a bit dizzy at how good the iPhone app and info on here are. Brilliant, but obviously not having the calc thing sucks big time. Nevertheless, finally seeing what's going on here has reinvigorated me. Cheers

Jan 27, 2016 Trish Skidmore 18 posts	Topic: General Discussion / freestyle libra Thank you

Jan 27, 2016 marke 646 posts	Topic: General Discussion / freestyle libra yes a number of people, there is a long thread on this forum, about it. search for freestyle libre. Secondly no its not available on the NHS, Abbott the manufacturer are in discussions with the NHS but don't hold your breath :-(

Jan 26, 2016 Brumfoodie 10 posts	Topic: Carbohydrate Counting / Maths Test novorapidboi26 said: Use the smartphone app 'MyFitness Pal', a quick scan of the barcode or a manual search and you will find someone has likely done all the legwork for you....... also handy if you were to add additional items to your meal, the website at least shows the total carb amount for each item combined......yay... I use Fat Secret for most foods -and it doesn't need the intrusive sign up that"My Fitness Pal " seems to need .Very simple to change serving size : grams, cups ounces....

Jan 26, 2016 Warwick 430 posts	Topic: Questions for HCPs / 2 Hour rise after a meal and HbA1c results I was given the opportunity to wear a CGM (Continuous Glucose Monitor) for a weekend. Up until then, I thought that my BGs were fine after eating muesli as they were generally similar values before and 4 hours after eating it. However, the CGM showed that they were spiking at 17 within an hour of eating the muesli. I haven't touched it since and I now try and avoid foods that have many carbs in them. My HbA1C has dropped from 6.5 to 5.8 as a result. As novorapidboi26 says, injecting or bolusing 15-20 minutes before eating a high carb meal can reduce the spikes.

Jan 26, 2016 Trish Skidmore 18 posts	Topic: Questions for HCPs / freestyle libra Hi can you tell me if the Freestyle Libre is available on the NHS free please. Thank you Trish

Jan 26, 2016 Trish Skidmore 18 posts	Topic: General Discussion / freestyle libra Hi does anyone use the freestyle Libre and can you get it on the NHS

Jan 26, 2016 novorapidboi26 1,816 posts	Topic: Questions for HCPs / 2 Hour rise after a meal and HbA1c results I suppose it will be different for everyone but I found that mid meal numbers where keeping my HbA1c up a wee bit.............. I have now went on a pump and its much better.......... make sure to experiment with dose timing.........at starting point of 15 minutes before eating should be considered for Novorapid at least....

Jan 26, 2016 novorapidboi26 1,816 posts	Topic: Carbohydrate Counting / Maths Test Use the smartphone app 'MyFitness Pal', a quick scan of the barcode or a manual search and you will find someone has likely done all the legwork for you....... also handy if you were to add additional items to your meal, the website at least shows the total carb amount for each item combined......yay...

Jan 26, 2016 novorapidboi26 1,816 posts	Topic: General Discussion / Is it worth attending a DAFNE course DAFNE is great and the time spent with others like you is invaluable........ if its and issue to get to the clinic ask for help with transport..........is it far away? can you stay in a hotel? all questions to be asked..... you can also go through an online course provided by the Bournemouth Diabetes and Endocrine Centre, link below; BDEC Diabetes Learning Programme

Jan 25, 2016 lbouchier 2 posts	Topic: Carbohydrate Counting / Carb counting whey protein I tend not to do my cardio in the gym, just weights so you could have a point here alright. A bit if trial and error since and I'm getting closer to where I want to be now. Thanks Gmac.