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Jan 22, 2016
Sh3ri3 3 posts

Topic: General Discussion / A plea for Structured education

Sad but true, I learned more in one week than I have in my 24years with the condition. I hope sooner rather than later this is a standard thing for all newly diagnosed diabetics and existing diabetics get the chance to attend.
 
Jan 22, 2016
Sh3ri3 3 posts

Topic: General Discussion / Is it worth attending a DAFNE course

Hi,

I agree with everything Matthew said. I wish I had been offered the course earlier. I have been almost 24yrs with diabetes and only after this wk (graduated today) do I feel I have an understanding and control of the condition.

In the grand scheme of things, 1week is nothing when living with diabetes day to day. The group environment and experience shared I think would make so much difference than the handbook alone.

Hope that helps Smile

Sherie
 
Jan 22, 2016
Popey81 5 posts

Topic: General Discussion / Is it worth attending a DAFNE course

I have just completed the DAFNE course this afternoon. Monday morning i was quite sceptical about why i needed a week of education but after the first morning i could see why. DAFNE and its principals are great. Yeah its been my first week but i already feel that the control i have on my BG levels are 100 times better than the last year and im using a 3rd of the insulin (scared me at first but the prrof is in my diary).
It is a big ask i know to travel 9 miles there and back each day and take a week out of your time but its so worth it i promise you.
In some ways you could teach yourself out of a text book but the hands on support and attention you get off the nurses for the week is amazing. They learn off of you aswell as everyone is different. Also the other diabetics on the course you meet all have different stories and experiences to share and you learn from them also and vice versa.
So answer to you question is YES the course if worth going on. Happiest and the most confident i have felt with my diabetes in a long time.

Matthew
 
Jan 21, 2016
AMcD 38 posts

Topic: General Discussion / Is it worth attending a DAFNE course

Humalog reaches its peak of action between 1 and 1 and a half hours after injection , others such as novorapid peak after about 15mins. The insulin needs to act on the ingested carbohydrate. If injecting too late in the process you are not getting the best efficiency from the insulin which is why you have been asked to inject before your meals and would also result in higher BG levels....

It's great that you don't eat ready meals and in dafne you will learn about carbohydrate content on breads rices pastas potatoes etc that I'm sure must make up part of your meals. You will also find your carb to insulin ratio which may vary from one part of the day to the next.

You should feel positive that you have the opportunity to improve your lot even if the logistics are difficult for you.

I must say that the dafne course is fantastic and well worth attending. ... keep up the good work. Let us know how you get on..... Andy
 
Jan 21, 2016
annis54 6 posts

Topic: General Discussion / Is it worth attending a DAFNE course

OK so 89 is way too high. This may have been caused by my not injecting the Humalog until after my lunch or supper. The nurse was horrified when I told her I did this and said that I must have the injection before I started eating and not after. Trouble is you don't always know what you are going to eat. Her reply was well from now on you have to know and that's that. Perhaps the figure will be lower but I'll have to see.
I always use a fresh lancet for every blood glucose test. I always use a fresh needle for each injection.
I do feel bullied to attend the DAFNE course and it would be easier for me to have a text book about it but so far no text book has turned up. The course lasts for 5 full days and the nearest place is at Minehead hospital but it only happens once a year or so. There are other places but they are a lot further away. I would have to drive there and since I had DKA driving has been a bit more difficult. I don't have anyone to take me for 5 consecutive days all the way to Taunton for instance. This is where the people organising the courses have not realised that a text book miight be better for people who live in the middle of nowhere. Plus how is one expected to remember everything?
I don't eat ready made food so the bit about reading what it says on the box for a ready made meal will be irrelevant. It would have helped to have been told in the first place that you have to inject the Humalog before you eat not afterwards. Maybe I didn't remember that bit since I'd only been diagnosed with type 1 diabetes after I got DKA and I couldn't see at all well. There were lots of leaflets but these just vanished because I couldn't read them.
Anyway I suppose I'll have to do the course because otherwise I'll only be nagged until I do. Minehead is 9 miles away and they do this course in February (I think) so not much fun getting there first thing in the morning.
I'm going to see when they are doing it.
Does anyone know about the bg monitor that isn't invasive? Some Israelites are doing one for type 2 diabetics someone said.
Meanwhile thanks for the replies; they were helpful.
 
Jan 20, 2016
AMcD 38 posts

Topic: General Discussion / Is it worth attending a DAFNE course

Also do you change the finger pick needle often. . That helps a lot... Andy
 
Jan 20, 2016
AMcD 38 posts

Topic: General Discussion / Is it worth attending a DAFNE course

The target hba1c level is somewhere between 48 and 53 depending on lifestyle and circumstances. .. some feel that 48 is too tight.... however at 89 your levels are not in target range... In my opinion you really should attend the dafne course...... it will help you feel better in the short term and will provide long term health benefits. .. Andy
 
Jan 20, 2016
Garry 328 posts

Topic: General Discussion / Is it worth attending a DAFNE course

89 is a mmol/mol reading HelenP.
Regards
Garry
 
Jan 19, 2016
HelenP 218 posts

Topic: General Discussion / Is it worth attending a DAFNE course

Hi,
I would say if you can do a DAFNE course then you ought to as it brings you back to first principles. Although I am confused about the 89. What unit is this in? We are using mmol/L (here) and I have some knowledge of mg/dL.

On the grandparent level I have found that the tighter I keep the BGs the better I feel and the more I can do with the kids so I encourage you to do what you can to achieve good HbA1cs. About the finger pricks...I find that if my hands are dry the finger pricks hurt more so I use a non perfumed basic sorbolene hand cream, routinely, as if you do a test immediately after putting on the cream you do not get a clean drop.. I think the massage to rub in the cream also helps.

Good luck. Helen
 
Jan 19, 2016
annis54 6 posts

Topic: General Discussion / Is it worth attending a DAFNE course

I'm being urged to attend a DAFNE course to help lower my HB1AC figure which was 89 last time. Trouble is I live in the country and driving to the course is a problem. There was one at Minehead hospital (nearest) last February but I had a bug then so I couldn't have gone even if I had signed up. It was also at half term so awkward with the grandchildren.
Does anyone know if the course is on in Minehead every year? I might be able to get a lift.
Also if I don't do the course I'll just get nagged until I do.
And I'd love to have a blood glucose monitor that just fits over your finger so no jabbing which is painful. A bit like an oxygen monitor. Is there one to buy in the UK?
 
Jan 16, 2016
lbouchier 2 posts

Topic: Carbohydrate Counting / Carb counting whey protein

Hi,
I've been going to the gym for some time and always used to take some whey protein isolate after my sessions which were mainly resistance based. I used to take the protein & a banana. The protein has the following carbs:
1.8g per serving or 5.8 per 100g
I would take 2 servings and banana. I was counting this(incorrectly I believe) as 1.8g x2 =3.6g + 2CP for banana = 5.6 CP. As I was just after exercise I used to take 4 units of novo rapid and this always worked out well, no hypo or high readings.
Now I believe my above calculation for the CPs in the protein was incorrect. I've also changed to taking some protein pre workout. The total amount of carbs in grams I have pre and during workout is 7.2 grams. I calculated this as 0.72CP. Having a reading of 8.0 pre workout this morning I consumed this without any novo rapid as I didn't want a hypo during the session. Afterwards my reading was 17.3.

What did I get wrong?!? My maths? Or is this because all the carbs were all liquid based and therefore took effect quicker?

I'd appreciate any advice.

Thanks, L.
 
Jan 16, 2016
Simon 578 posts

Topic: General Discussion / Can DAFNE consider changing from the use of CP’s to g of carbohydrate?

I'll close this now as the discussion deadline has passed - see the comments from Sally below:

Thank you to all who have taken time to add your valuable comments, the next DAFNE Executive board meeting is on 25th January, I will share your comments and views with the rest of the group and let them know that though we have had a small response the majority seem to be in favour of sticking with CPs, I will also feed this back to the educator network meetings which will be taking place over the next couple of months.

Thanks again for your input
Sally
 
Jan 15, 2016
Brumfoodie 10 posts

Topic: Carbohydrate Counting / Maths Test

At least we have the 100g values listed. USA imports have portion size values -then say how many portions are in the pack. I'm good at maths but even I find that impossible. I was reduced to weighing out jellybeans to reach 19g weight as that would contain 20g carbs when a 40g serving contained 38g carbohydrate. (16 beans if you're interested ).Not something to attempt during a hypo.......and really slow to eat.
 
Jan 15, 2016
Brumfoodie 10 posts

Topic: Carbohydrate Counting / Eating in Japan - any tips?

The carb content of food in Japan turned out to be pretty simple to estimate. Rice served with a meal was typically 3tablespoons worth -3CP- and noodles were similarly constant in quantity. Portions were small but there was a wider variety of different items in a meal so I got plenty of practice in totalling tiny numbers. I added 0.5 CP to the total of each meal to allow for the sugar included in sauces and pickles served with rice. It seemed to work. Only problem? Eating a fried egg served on a flat plate using chopsticks - but thats another story... Very Happy
 
Jan 15, 2016
michaelj 45 posts

Topic: General Discussion / Best worldwide travel insurance for type 1 diabetics

Try Diabetes Uk. I did a 5 week self drive tour of New Zealand in Jan 2014 and found them very reasonable with three levels of cover. No problems with existing ailments and easy to obtain. Have also used Saga and although they are considered to be expensive have found them sometimes cheaper than other sites as they are used to dealing with older people where infirmaties are quite common, so quite happy to cover pre-existing conditions
 
Jan 12, 2016
Alan 49 284 posts

Topic: General Discussion / Can DAFNE consider changing from the use of CP’s to g of carbohydrate?

In view of all the comments above, is this still on the cards?
 
Jan 11, 2016
Stew B 125 posts

Topic: General Discussion / Best worldwide travel insurance for type 1 diabetics

Has anyone out there had to make a diabetes-related claim on their travel insurance? For example, replacing lost or stolen medication or equipment. For me it's the company's response to a claim that would make it recommendable.
 
Jan 11, 2016
GR8 5 posts

Topic: General Discussion / Best worldwide travel insurance for type 1 diabetics

Hi

I am a type 1 diabetic who has done DAFNE, has no complications and am about to renew my annual worldwide travel insurance.

I currently have insurance through INSUREANDGO and to be honest have no problems with them but just wanted to know if anyone else has any other companies they would recommend

Thanks
 
Jan 11, 2016
marke 681 posts

Topic: General Discussion / A plea for Structured education

From the DAFNE UK website a speech given by a DAFNE graduate at a Diabetes UK meeting. A sadly familiar story of diabetes, you can read it here
 
Jan 11, 2016
michaelj 45 posts

Topic: Carbohydrate Counting / natural foods for hypos

Glucose Juice from Boots or Amazon are my choice as they are in small, easy to carry bottles, and are very effective in dealing with hypo's. I think they are basically water with glucose and fruit flavouring. Each bottle is valued at 1.5 portions carbohydrate.
 
Jan 10, 2016
Garry 328 posts

Topic: General Discussion / Can DAFNE consider changing from the use of CP’s to g of carbohydrate?

I Ilike to work using the KISS principle...Keep It Simple (because I'm) Stupid.
Present system is easy to understand and although over the dafneonline years there have been contributors who have occasionally needed help with understanding ratios, I think that their numbers have been relatively small and this change would likely make their dose calculations more difficult.
Prefer to stay as is. Thanks
Regards
Garry
 
Jan 9, 2016
ptw 2 posts

Topic: General Discussion / Can DAFNE consider changing from the use of CP’s to g of carbohydrate?

If the educators are having difficulties, then they may be in the wrong job.
 
Jan 8, 2016
mitzy 94 1 post

Topic: Carbohydrate Counting / natural foods for hypos

I am being investigated for food intolerance which may be compounding my glucose control This approach involves a very restricted diet for a few weeks. Sugar is one of the things not allowed, I was wondering if anyone had advice on treating a hypo naturally??? My usual choice is orange juice or jellies unfortunately citrus fruits are also not recommended. Thanks
 
Jan 7, 2016
franklin123 5 posts

Topic: Questions for HCPs / Accidently given double dose of tresiba

Thanks for your reply Jay Bee. I know the problems will occur during the night so will need to be vigilant until bedtime.
 
Jan 7, 2016
JayBee 587 posts

Topic: General Discussion / Online

Are you using Android or iPhone?

If Android, I know that you will first need to set it up in the Settings that the app uses your log in details for DAFNE Online (Go into Settings and see Username and Password at the top). Then, go into the diary Entries bit and you may see a menu option at the bottom of the view? From there, you can pick from a few things, including Download Entries and Upload Entries. If you are signed in on the app correctly, select Upload Entries to upload them to the website. If you want to view entries from the DAFNE Online site on your phone app, select Download instead to add them to your app Entries.

You can also set the app to automatically upload your entries on the go if you like under the Settings section. Keeping my diary entries online is very helpful for when my phone has let me down.

Hope this helps. It is possibly the same for iPhone but I don't know for sure.