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Sep 5, 2011
marke
643 posts
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Topic: General Discussion / DAFNE Myths
Sadly this is true in a lot of centres, mainly due to lack of funding for follow-up sessions. The DAFNE programme management is aware that this is an issue but there is no easy answer. I will raise the point with the DAFNE User Group though as it is an area that i think they ( myself included) should be looking into. I agree a central update mechanism would be a good idea and DAFNEOnline would be more than happy to help with this if we are asked too, however we can only publish the information we are provided by the DAFNE programme. I suspect the answer will be that DAFNEOnline too strongly favours those with Internet access and the interest to sign-up, it is however at least a quick and easy way of getting information to Graduates. It should NOT be used as a replacement for proper DAFNE follow-on meetings however in the abscence of funding anything is better than nothing and it is at least one way of getting information to graduates. |
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Sep 5, 2011
MSW
2 posts
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Topic: General Discussion / Help! Ratios moving around very erratically
Have your exercise levels changed? I find that if I take less exercise over a period of a few days, my ratios go up and conversely, more exercise means lower ratios. Sometimes I find that ratios change without any explanation and it is just a question of adjusting ratios accordingly. |
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Sep 5, 2011
Athena
52 posts
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Topic: General Discussion / DAFNE Myths I agree with Lizzie in that it would be great if we could get updates on what is new. Things have changed with the DAFNE course over time and the educators get together once in a while and receive more updated info. My hospital is good at having DAFNE mornings which are basically a refresher of the course, but we did get told one time of a new thing. think it was the 12 hour split doesn't work for everyone thing. Anyway, it would be great if this new information was available to us all after each meeting. An alert could go out via this site and we could find out what the latest updates are. Otherwise a lot of us are never going to know the new information until a new hand book comes out and we can view it. |
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Sep 5, 2011
Athena
52 posts
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Topic: Questions for HCPs / Menstrual Cycle, BI Hi Swirly girly, thanks for your post. I too am delighted that this is going to be part of future courses. It would be really helpful for people to learn how to cope with this . One girl mentioned it on my course too but nothing was said about it. It is fab that the educators have decided to include it in the next course handbook and in future courses. good luick with your bg's. We all know it is really difficult to track. I have at leaset got one week sorted although stilln ot got definitive doses for the rest of the month. Will have secveral BI's by the time I have tried and tested different ones at different times. take care. |
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Sep 5, 2011
graham burton
14 posts
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Topic: General Discussion / dafne app/carb calculator for Blackberry phones i am looking for an app where i can record the information on to my blackberry like in the dafne diarydoes anyone know of anything. |
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Sep 5, 2011
Chris loughrey
21 posts
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Topic: General Discussion / Help! Ratios moving around very erratically Hi there,Having problems with my midday thru afternoon readings. My ratios just seem to keep going up and nothing is working.3 weeks ago it was around 0.75:1 and I'm now up on 1.25:1 and that isn't working either (even tho yesterday it did)I'm very confident that my carb counts are correct and my BI insulin is also good. any advice would be appreciated, do I just keep moving the ratio up until it's right? Or is it the BI? Seems every time I increase the QA ratio at 12pm it is hit and miss (more miss) so could the levemir dose at 8am be too small, even though its probably only kicking in at 9:30-10am? Frustrated! 
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Sep 5, 2011
Chris loughrey
21 posts
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Topic: Questions for HCPs / Help!! Hi there,Having problems with my midday thru afternoon readings. My ratios just seem to keep going up and nothing is working.3 weeks ago it was around 0.75:1 and I'm now up on 1.25:1 and that isn't working either (even tho yesterday it did)I'm very confident that my carb counts are correct and my BI insulin is also good. any advice would be appreciated, do I just keep moving the ratio up until it's right? |
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Sep 5, 2011
Lizzie
87 posts
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Topic: General Discussion / Can someone please remind me... how to work out if your ratios and BI are correct? My DAFNE course was several years ago and I can't remember and am in a right pickle trying to correct highs and lows (mostly highs).Thanks |
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Sep 5, 2011
Lizzie
87 posts
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Topic: General Discussion / DAFNE Myths Ok so the consensus seems to be that these things are not actually total myths or misconceptions since they differ for each person. If this is the case then I wish medical professionals would teach it that way rather than saying first of all "this is *always* the case" and later on "whoops in fact it is a myth and it *never* happens".It might be helpful if people who had gone through DAFNE maybe 5 years ago or something like that could be automatically recalled. My clinic was OK on arranging updates directly after the course but these seem to have dried up. And even when offered, the number of places available was inadequate, they were snapped up almost immediately and by the time I had organised a day's leave and my manager got back to me approving it, there were no spaces left. And since it was one day only, you could only choose 2 sessions to attend so you did not get a thorough update on everything that had changed. I realise updates and suchlike are the responsibility of the individual clinic however it would be nice if there was some sort of central DAFNE mechanism to keep us updated if our own clinic does not do so. I just feel graduates of DAFNE should be kept updated with the latest knowledge and way of teaching the course. It is all very well going to it but after a few years the knowledge is old and begins to fade and is changed and updated and you are out of touch. |
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Sep 5, 2011
Geofftrez
22 posts
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Topic: DAFNE Online Mobile / Feedback from Android beta testing Suggestions for Simon:1. add data fields in the targets section (for each mealtime/incident) for ratio CP:BG default 1:2.5 QA:BG default 1:2.5. I would have thought that these field together with the QA:CP ratio should cover most of the user population. 2. Ensure that the autocalc result has to be overtyped and defaults to a null value otherwise. 3. Incorporate a standard disclaimer for the autocalc function which is triggered if the autocal setting is chosen with a tick box for the user to acknowledge "autocalc is a suggestion only based on the data values you have inserted in the targets section and is not a medical recommendation. The autocalc may not function correctly for every user and is intended simply as an approximate check sum to compare against your own calculated insulin dose. If you chose to rely on this autocalc function then you do so against our recommendation and at your own risk etc etc" |
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Sep 5, 2011
Simon
574 posts
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Topic: DAFNE Online Mobile / Feedback from Android beta testing
Litigation = getting sued. I'm not normally one for saying no to new feature requests as I want the app/site to be the best they can be. That said, in this age of 'no win no fee' PI claims, and the fact that we are a very small group of people working on this without profit in our spare time, I don't want to set us up as a target of a lawsuit. Having said that, if we could come up with a solution which implemented this function, and protected us from getting sued, I'd get working on it straight away. So if anyone has ideas on how to protect us and add this feature then let me know 
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Sep 5, 2011
Geofftrez
22 posts
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Topic: DAFNE Online Mobile / Feedback from Android beta testing Keith said:I agree that the keyboard layouts are not as good as they could be. Unfortunately Android only allows the app to provide an "input type" hint and its then up to the phone to do its best at offering an "input method editor" that can do the job. This design seems to be to allow alternate input method editors to be installed by users and selected as the preferred one. But the bottom line is that there is no way to add or change individual keys in layouts. There are some work-arounds possible but with various down sides, so for now I've left the app using the standard mechanism. The keyboard layout when you call for the BG data field is perfect - simply a numeric keypad. The keyboard layout when you call for CP, QA and BI data fields is a typical phone alpha numeric keyboard. Since those fields only need numeric data I would suspect its a programming error. |
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Sep 4, 2011
Headspace
9 posts
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Topic: Site Development / New Meter Upload Development NiVZ, I'm happy to be invovled in this. I have an UltraSmart and it would be great to be able to upload my older entries. One question: the drivers you highlighted in your post in Aug 31st are for XP and Win7. I'm running Vista - is there any way that I can be involved?Brian |
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Sep 4, 2011
Headspace
9 posts
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Topic: DAFNE Online Mobile / Feedback from Android beta testing Keith, this is the first time I've been involved in testing any software or application so its been an interesting couple of weeks. I haven't really understood some of the technical aspects of the app, but as a plain old user its been enlightening to see the range of comments that have rallied back and forth.I just wanted to say thanks for developing things so far, and for making the changes that have been suggested. I think this is going to be a worthwhile outcome for all concerned, and I'm grateful for the opportunity to have been a part of it. Brian |
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Sep 4, 2011
Geofftrez
22 posts
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Topic: DAFNE Online Mobile / Feedback from Android beta testing In reply to MarkeSimon Said: On the correction dosage calculation, the DAFNE guidelines state that 1 extra IU will bring down your BG by 2-3 mmol/l, which is quite a large range, and could mean the difference between having a hypo or not. As app developer I didn't want to set myself up as a target for any legal action in case the app was seen to be giving medical advice which then caused somebody to have a hypo. |
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Sep 4, 2011
marke
643 posts
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Topic: DAFNE Online Mobile / Feedback from Android beta testing
Geoff can you elaborate on your comment regarding 'litigation' ? what do you mean by this. |
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Sep 4, 2011
KeithCl
43 posts
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Topic: DAFNE Online Mobile / Feedback from Android beta testing
Using an Android 2.2 emulator, while the initial text of "Comments' is gray, any text entered and the text cursor are rendered in white on top of the very nearly white background so that the text entered is hardly visible. The problem does not occur with Android 2.3.3. There are various postings about styling problems with the AutoCompleteTextView widget that I moved to to provide auto-completion of the comments. I'll look for a work-around to make this work with all target Android versions. |
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Sep 4, 2011
KeithCl
43 posts
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Topic: DAFNE Online Mobile / Feedback from Android beta testing
I agree that the keyboard layouts are not as good as they could be. Unfortunately Android only allows the app to provide an "input type" hint and its then up to the phone to do its best at offering an "input method editor" that can do the job. This design seems to be to allow alternate input method editors to be installed by users and selected as the preferred one. But the bottom line is that there is no way to add or change individual keys in layouts. There are some work-arounds possible but with various down sides, so for now I've left the app using the standard mechanism. As commented before, the auto-calc for Android is the same as for iPhone and I think the way to go is to agree an improved design that is applied in both. But that will not make it into the first release of the Android app. |
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Sep 4, 2011
Geofftrez
22 posts
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Topic: DAFNE Online Mobile / Feedback from Android beta testing Add entry CP now accepts a decimal point but on the Samsung Galaxy the decimal point is on the second page of the number keypad. For the sake of streamlining could you replace the * with the decimal point ie use the same keypad as when entering BG values.I note that autocalc still doesnt function correctly. If you are concerned at litigation why not make it function in a sensible manner but set it so that you have to overtype it or else it defaults as a null value when you save. |
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Sep 3, 2011
swirlygirly
3 posts
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Topic: Questions for HCPs / Menstrual Cycle, BI Hi LadiesThis is like a breath of fresh air for me to read this. I've been Diabetic 16 years and have mentioned this numerous times to my Diabetic team, consultant ,nurses ect and have just got "yes, it happens to some ladies" but no practical help on how I could possibly help my control with these Blood sugar plunges and peaks. I find, like some of you that my insulin needs start to go up 10 days before a period arrives .Three days before and my insulin needs are a third more than usual ,both Basal and bolus to when I do actually start my cycle....Then if I am not quick to drop them back I Hypo all day  I have experimented with this just to prove it is my cycle and have stuck religiously to the same foods day in day out ,with the same level of exercise for a couple of Months (gosh that was boring), to try and limit variables. But my control is so obviously effected by my Monthly cycle, in fact I would go as far as to say it is ruled by my Monthly Cycle  ....So even though the DAFNE course is great. I do still struggle with this issue and it would be good if it was covered for us Ladies who do struggle with this issue.It was not covered on my course ,even when I mentioned it, it was just sort of acknowledged with a "yes" but not discussed , also in a mixed sex group it might be difficult maybe for open discussion. One lady came up to me afterwards and said on the quiet she was the same and only wanted to speak about it with me as she felt awkward in front of the Men.  Maybe she would have felt more comfortable if it had been part of the official agenda and not just brought up by one of the patients...who knows  The DAFNE is great and it has helped me a lot but I thank you ladies for being open and talking about your period and Diabetic control. I understand it is not that way for a lot of ladies but I do know it is for many of us and we do tend to suffer in silence with it. |
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Sep 3, 2011
KeithCl
43 posts
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Topic: DAFNE Online Mobile / Feedback from Android beta testing
John, Not too late - sounds like a problem that needs fixing. It may be hard for me to reproduce though which is the first step to fixing. I'll set up an emulator running Android 2.2 and using the same screen resolution as your HTC Desire and see if I can. Won't be until the week after next though... Keith |
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Sep 3, 2011
John Syer
19 posts
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Topic: DAFNE Online Mobile / Feedback from Android beta testing Hi Keith,I hope I'm not too late (or being too much of a pain) but I have just found another issue Phone: HTC Desire A8181 Android version: 2.2 Beta version: 1.3.r265 BETA Bug #9 (continuing from my previous list) - Comments are not visible when being entered Reproduce: Add a new diary entry and enter text into the comments field. The text being entered does not appear in the text box (but is added to the entry). Further information: This is a problem on my phone when in portrait mode, when holding the phone in landscape I get an expanded text entry box which works fine. I can also view the text breifly in portrait mode if I press on the text box - the text will display in the box then disappear again. Regards, John |
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Sep 3, 2011
KeithCl
43 posts
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Topic: DAFNE Online Mobile / Feedback from Android beta testing The beta testing period is now over and the app will be published on the Android Market around 14 September. (The delay is because I'm away on holiday next week.)Thanks to everyone who provided feedback or just tried it out. As listed above over 10 important fixes have been made as a result, and there are several ideas that should make it into future versions. Thanks again, Keith |
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Sep 2, 2011
Peter
103 posts
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Topic: General Discussion / DAFNE Myths What is the "floor" if it isn't 4? And what is that "treat or eat" thing all about? The treatment for a hypo IS eating.Lizzie, I believe the point that Carolin was trying to get across is that in the early days of DAFNE the instruction was to treat any BG below 4 as a hypo - hence 4's the floor. That advice has now been changed, but the easy to remember phrase has lived on. Hence the attempt to explain the current advice, which says treat as a hypo below 3.5 with rapid acting carbs. In the range 4.5 - 3.6 then the treatment should be with a smaller dose of carbs (1 CP instead of 1.5-2) which should "normal" rather than fast acting. Having said all that, this is yet another area that varies not only from person to person but on other factors. For me a rapidly dropping BG will prompt hypo symptoms above 4.5, and I will treat that with rapid acting carbs to stop the BG dropping below 3.5 maybe half an hour later. This works for me, but may be different for you. These myths were aimed at the Educators, to try to ensure that the latest advice is passed on to people going through the DAFNE course for the first time. For those of us who were trained earlier, and were taught some of what are now considered myths, then I would suggest you should continue what you were doing if it worked for you, but consider changing if it didn't. As ever it has to be a case of trial and error to understand how any advice works for our unique metabolic system. Finally, regarding you last comment "these slides seem confusing without the accompanying explanation", there is not much we can do to give access to the words used with the slides, but if there are one or two points which are still troubling you then post them here, and I will ask Carolin to provide the explanation. |
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Sep 2, 2011
melpessoa
7 posts
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Topic: Questions for HCPs / Do I delay my BI insulin time when I have to do a blood test in the morning?  kkkk ahhh and so do I!!!but I think I made it!!! thank you, mel |