Recent Posts - DAFNE Online

Sep 13, 2011

Athena 52 posts

Topic: Questions for HCPs / Menstrual Cycle, BI

Sorry to hear about your migraines also Pinky. Let us know how you get on with the mini pill. I asked for the pill but was refused so don't now know if it would have helped. The week I have sorte dis that of menstruation. It is the same without fail each month and I just turn my BI dose right downto what I know it will be, totally ignoring the step wise approach which is of course totally un DAFNE, but otherwise it is a week of hypos. I got fed up with it. rest of the month is a mess constantly too high which is totally exhausting. just have to crawl to work then go straight to bed when I get home and stay there.
i think monitoring your own pattern is the key, but unfortunatly it takes months to see it.

good luck girls

Sep 13, 2011

Geofftrez 22 posts

Topic: DAFNE Online Mobile / Feedback from Android beta testing

KeithC1 said: Those fields also need to support the + and - characters so that adjustments can be entered. So while for the BG field I can use android:inputType="numberDecimal" which yields the neat numeric keypad, for the CP, QA and BI fields I have to use android:inputType="numberDecimal|numberSigned|text" to ensure that the + and - characters can be entered which typically yields the messy phone-style keyboard layout.

CP, QA and BI can never have negative values. I thought any CP add list was a later adjustment using the input method function. Any QA adjustment is mental arithmatic or part of the autocalc function. On that basis I would use the number keypad - it is quite irritating having to page on to find the decimal point.

Sep 13, 2011

KeithCl 43 posts

Topic: DAFNE Online Mobile / Feedback from Android beta testing

novorapidboi26 said:
Hey, can I be emailed again with the link for the latest release............

Cheers..........

If paid work doesn't get in the way, the app will be made publicly available on the Android Market this week so I hope you can wait for that. This initial release will be the 1.3.r.265 BETA version plus a fix for the white text on a white background. Improvements to the auto-calc can be added in a future version when what is required is clear.

Sep 13, 2011

KeithCl 43 posts

Topic: DAFNE Online Mobile / Feedback from Android beta testing

Geofftrez said:

The keyboard layout when you call for the BG data field is perfect - simply a numeric keypad. The keyboard layout when you call for CP, QA and BI data fields is a typical phone alpha numeric keyboard. Since those fields only need numeric data I would suspect its a programming error.

Those fields also need to support the + and - characters so that adjustments can be entered. So while for the BG field I can use android:inputType="numberDecimal" which yields the neat numeric keypad, for the CP, QA and BI fields I have to use android:inputType="numberDecimal|numberSigned|text" to ensure that the + and - characters can be entered which typically yields the messy phone-style keyboard layout.

Sep 12, 2011

novorapidboi26 1,819 posts

Topic: General Discussion / Do I adjust BI or QA first?

The only way to be sure your not having overnight hypos is to test, every hour would be good, although a pain.......

My own personal theory is that dawn phenomenon starts a couple of hours, roughly, before you get up, so your body clock will be used to determine when this is............so for me, its starts about 4:00-4:30 as I get up at 6:30, so testing at 3am is the best time for me if I wanted to prove dawn phenomenon was taking place, as theoretically my BG would be fine at 3am, but then at 4:30am it would go up......this is proof, you should try a similar time to confirm........

you need to give your dose changes a few days, if you cant find a happy medium with the QA dose, then a small tweak of the BI should be considered.........

When were you told to drop your ratio to 0.5:1?

When you refer to being steady, what do you mean................your on target one day and not the next?

Its just that getting your BG steady between meals is possible, but not easy, going up then back down is normal, its getting that spike to be as small as possible that the tricky part..........

Sep 11, 2011

kay70mea 6 posts

Topic: General Discussion / Do I adjust BI or QA first?

Hi Novorapidboi26,
I have upped the tea time ratio from 1:1 to one and a half to one and it steady one day and not the next although my working day doesn't change, and I have done the testing over night and it's steady so I gather the background one is ok and I was asked by my dsn to lower my quick acting to half to one ratio but I think thast it's not quite enough, and yes I have heard of the early morning phenomonon through this web site but I was always told that I was having night time hypos NOT a chance because I don't feel groggy in the morning's, so any other suggestions would be gratefully received.

Sep 11, 2011

novorapidboi26 1,819 posts

Topic: General Discussion / Do I adjust BI or QA first?

If you eliminate the 2 most obvious variables, which are;

1. Your Evening Meal ratio
2. Your Supper ratio

Then you can go on with the background testing................so upping your dose and testing through the night............

It sounds as though you may have some dawn phenomenon.........are you aware of this?

When is supper? Are you always higher before this? That may suggest a dose is out, either dinner QA or BI, or both!!!

Sep 10, 2011

kay70mea 6 posts

Topic: General Discussion / Do I adjust BI or QA first?

Hi,
Need a little help from anyone,I am taking Levemir for background insulin and NovoRapid for quick acting,I'm on a 2:1 ratio QA and then1:1 for lunch,tea and supper and then the Levemir twice a day 14 at breakfast and 16 at supper time, the problem I'm having is at supper time when it doesn't settle and the levels are high at breakfast time, tested during the night they are ok but by 8 a.m. they are on 13mmols and higher, before supper they run on 9mmols but then higher in the morning any suggestions?

Sep 10, 2011

John Syer 19 posts

Topic: DAFNE Online Mobile / Feedback from Android beta testing

Simon said:
Geoff: thinking about it you're right, there is a standard 1.5 CP suggested for a hypo which we probably dont need to adjust manually, so its just the BG:QA ratio which is needed.

I may be missing something, but isn't it QA:CP ratio. Why do you need the BG:QA ratio? My personal experience is that BG:QA is unpredictable, depending on too many factors to make it a useful metric, (weather, temperature. stress levels, exercise, tiredness). I also find that BG:QA relationship changes depending on the value of BG, so it is non-linear.

Regards, John

Sep 9, 2011

Simon 578 posts

Topic: DAFNE Online Mobile / Feedback from Android beta testing

Geoff: thinking about it you're right, there is a standard 1.5 CP suggested for a hypo which we probably dont need to adjust manually, so its just the BG:QA ratio which is needed.

Novorapidboi: check your inbox!

Sep 9, 2011

novorapidboi26 1,819 posts

Topic: DAFNE Online Mobile / Feedback from Android beta testing

Hey, can I be emailed again with the link for the latest release............

Cheers.......... Wink

Sep 9, 2011

Geofftrez 22 posts

Topic: DAFNE Online Mobile / Feedback from Android beta testing

Simon said:
I like the idea Geoff, and think it's the right way to go. I thought taking 1 CP was meant to raise your BG by 2-3, so your CP:BG ratio is needed?

Yes but you also have the QA:CP ratio which is used in the DAFNE calculations. CP:BG would I believe only be useful if you wanted to calculate a small corrective carbohydrate dose because you were close to having a hypo and you were not at a mealtime. We would normally have 1CP and do any correction at the next meatime. On this basis the CP:BG ratio isn't really needed. So sayiing as a DAFNE graduate I am a bit of a novice so hope someone will correct me if necessary.

If you were actually having a hypo there would be no correction at the next meal.

Sep 8, 2011

Simon 578 posts

Topic: DAFNE Online Mobile / Feedback from Android beta testing

I like the idea Geoff, and think it's the right way to go. I thought taking 1 CP was meant to raise your BG by 2-3, so your CP:BG ratio is needed?

Sep 8, 2011

Simon 578 posts

Topic: General Discussion / Facebook

Yes - https://www.facebook.com/group.php?gid=7325986398

Sep 8, 2011

Pinky 4 posts

Topic: Questions for HCPs / Menstrual Cycle, BI

swirlygirly said:
Hi Pinky
Sorry to hear about the migraines that can't be fun along with everything else, I hope you get some joy with the mini pill. I was offered this a while back but really did not want to go down that route at the time but I may have to reconsider as my symptoms Diabetes and otherwise seem to be getting worse as time goes by.
I would be really interested in how you get on and would like to stay in touch , PM me if you would rather ,or on this thread . whichever is fine with me.
I am on Lantus and had to change my injection to mornings a long time ago because of nighttime Hypo's ,it did help a bit but like you when you need to really increase the doses you get that backlog ,build up and I still get them a lot at certain times of the month. It is far more hormone related than dose/insulin related with me...and I bet your self and a good few others.
Thanks for the reply and do stay in touch, and yes you can feel very frustrated and alone with it all, big hug!!

Swirlygirly,
I will indeed yet you know how i get on. Build up week next week so will monitor the BG on the new insulin doses and let you know. Mood swing changes may take a while longer to monitor, but will keep you posted. Thank you for the hug. Have you considered changing from Lantus? No nightime hypos gets my vote. I also feel less fuggy during the day.
Pinky.

Sep 8, 2011

swirlygirly 3 posts

Topic: Questions for HCPs / Menstrual Cycle, BI

Hi Pinky
Sorry to hear about the migraines that can't be fun along with everything else, I hope you get some joy with the mini pill. I was offered this a while back but really did not want to go down that route at the time but I may have to reconsider as my symptoms Diabetes and otherwise seem to be getting worse as time goes by.
I would be really interested in how you get on and would like to stay in touch , PM me if you would rather ,or on this thread . whichever is fine with me.
I am on Lantus and had to change my injection to mornings a long time ago because of nighttime Hypo's ,it did help a bit but like you when you need to really increase the doses you get that backlog ,build up and I still get them a lot at certain times of the month. It is far more hormone related than dose/insulin related with me...and I bet your self and a good few others.
Thanks for the reply and do stay in touch, and yes you can feel very frustrated and alone with it all, big hug!!

Sep 7, 2011

Peter 109 posts

Topic: General Discussion / EU Directive - Million Drivers face losing their licence.

Couple more links which may be of interest. The DVLA document which has prompted all the comments can be found at http://www.dft.gov.uk/dvla/~/media/pdf/consultations/Proposals to amend Driving Licence Standards.ashx. NB. It's a PDF document.

The original EU guidance is here: http://ec.europa.eu/transport/road_safety/behavior/doc/diabetes_and_driving_in_europe_final_1_en.pdf

Sep 7, 2011

Pinky 4 posts

Topic: Questions for HCPs / Menstrual Cycle, BI

Hi Swirlygirly,
Your prementruation BG are a lot like mine. Some months; before Dafne, I would correct every couple of hours and increase my cp.qa ratios from 1:1 to 1:3 and still run at about 16. Then the week during I would require very little of anything. My PMT is also really bad and I too feel life is one big struggle, then I feel like me again. I did see my doctor this week and she has suggested the mini pill which is just progesterone. This is due to migraines, rather than because of your suggested link, but it does seem a logical idea to me. I will let you know if taking it has the desired effect on those pesky BG's and mood swings.
I am now on levemir not lantus and I no longer have night time hypos. This was a bigger problem during the week of my period as I could have up to three a night on really bad weeks. This was probably due to the three day lag effect of lantus and all the increase in dose I had taken to combat high BG. I now take only 3 units of levemir at night, 20 in the morning. I have not as yet had a period since the change in insulin, but the diabetic nurse said I may need to reduce the night time levemir further for that week.
Hope you feel better soon. So good to chat with people going through the smae sort of thing. Can be really lonely.
Pinky

swirlygirly said:
Hi Anthea
May I ask which week you have sorted? I find the week during and just after menstruation the easiest. The week running up besides the REALLY bad PMT I find a struggle.
I exercised this morning usually a locked down insulin to food ratio for me and I end my workout with a Glucose of 4.5, well today usual food usual dose but my Glucose went up instead of down and at the point in my routine where I check and would be at around 10 I was at 22.4...so I had an adjustment which I would normally never dare do during exercise if it was not the week before my period and I only gotmthem down to 17.3......It is like I am insulin sensitive for the majority of the time but the week before a period I lose all sensitivity and I would even go as far as saying I have quiet sever insulin resistance.
Do you ,or anyone else for that matter know if this would be due to Estrogen dominance?????? I'm not that up on Cycle hormones.I do wonder if this is the case that progesterone supplemented would help to stabilise things for us????
I do know I need to see my GP about this because I have got to the stage where I feel Quiet poorly and run down the week before and my moods are terrible...then it's like I'm a new person when my period starts . It really is not just effecting my Diabetes it has a negative effect on mu life overall really.
Thanks Anthea for bringing this up and thanks the DAFNE people for taking this on board.
SG xx

Sep 7, 2011

Peter 109 posts

Topic: General Discussion / EU Directive - Million Drivers face losing their licence.

DianeH said:
Re the petition, can anyone help?

Diane

Seems to be one here: http://epetitions.direct.gov.uk/petitions/14125

Only 782 signatures so far....so get signing! The wording with it says:

Diabetes and driving

Responsible department: Department for Transport

We wish the government to urgently re-examine the EU directive which leads to drivers with diabetes being stripped of their licences if they suffer two hypos in a year, even whilst asleep in bed. We ask them to consider the large number of safe and careful drivers with diabetes who, whilst suffering occasional hypos in their sleep, afford no risk in their waking hours on the roads. These drivers will lose their independence and even their work as a result of implementation of this directive.

Sep 7, 2011

Peter 109 posts

Topic: General Discussion / DAFNE Myths

Lizzie said:
It might be helpful if people who had gone through DAFNE maybe 5 years ago or something like that could be automatically recalled. My clinic was OK on arranging updates directly after the course but these seem to have dried up. And even when offered, the number of places available was inadequate, they were snapped up almost immediately and by the time I had organised a day's leave and my manager got back to me approving it, there were no spaces left. And since it was one day only, you could only choose 2 sessions to attend so you did not get a thorough update on everything that had changed. I realise updates and suchlike are the responsibility of the individual clinic however it would be nice if there was some sort of central DAFNE mechanism to keep us updated if our own clinic does not do so. I just feel graduates of DAFNE should be kept updated with the latest knowledge and way of teaching the course. It is all very well going to it but after a few years the knowledge is old and begins to fade and is changed and updated and you are out of touch.

It's very interesting that you make these comments about follow-on training. It so happens that one of the items that the DUAG team are working on at the moment are questionnaires to get input from Graduates and Educators on what is currently offered, and what is wanted. I finished the draft of the graduate version last weekend, and expect to be publishing a link to it on dafneonline shortly to get input from the users here. That will at least give us some feedback to go to DAFNE Central on what the users want.

Sep 7, 2011

DianeH 7 posts

Topic: General Discussion / EU Directive - Million Drivers face losing their licence.

I heard the report on "You and Yours" on Radio 4 today. I was appalled. I am still struggling to get within targets and most of the time I am too high. That means very few hypos and no unpredictable ones. Just as well, by the sound of it. Where I live public transport is almost non-existent: I would not be able to get to work (or do it) without a car, I would not get to most of my medical appointments and I would effectively be stuck in my village or restricted to cycling distance - not very far as I am in my late 50's. Worst of all, I am a folk dance musician. I would lose this and all of my musical activities as there is nothing locally. I am swinging between panic and despair. I was told by Diabetes UK (I got straight on the phone) that there is an online petition that someone has started. Does anyone know how to find it? What can we do? Looking at things like the health bill currently going through parliament I have no faith in the government using common sense or even mild thought. I thought the knee-jerk ban on minibus-driving regardless of one's driving history was bad enough.

Re the petition, can anyone help?

Thanks

Diane

Sep 7, 2011

dragonrat 2 posts

Topic: General Discussion / Facebook

Is there a Facebook page or group for DAFNE? I've found the Twitter page, but a Facebook account gives more scope.

Sep 13, 2011 Athena 52 posts	Topic: Questions for HCPs / Menstrual Cycle, BI Sorry to hear about your migraines also Pinky. Let us know how you get on with the mini pill. I asked for the pill but was refused so don't now know if it would have helped. The week I have sorte dis that of menstruation. It is the same without fail each month and I just turn my BI dose right downto what I know it will be, totally ignoring the step wise approach which is of course totally un DAFNE, but otherwise it is a week of hypos. I got fed up with it. rest of the month is a mess constantly too high which is totally exhausting. just have to crawl to work then go straight to bed when I get home and stay there. i think monitoring your own pattern is the key, but unfortunatly it takes months to see it. good luck girls

Sep 13, 2011 Geofftrez 22 posts	Topic: DAFNE Online Mobile / Feedback from Android beta testing KeithC1 said: Those fields also need to support the + and - characters so that adjustments can be entered. So while for the BG field I can use android:inputType="numberDecimal" which yields the neat numeric keypad, for the CP, QA and BI fields I have to use android:inputType="numberDecimal\|numberSigned\|text" to ensure that the + and - characters can be entered which typically yields the messy phone-style keyboard layout. CP, QA and BI can never have negative values. I thought any CP add list was a later adjustment using the input method function. Any QA adjustment is mental arithmatic or part of the autocalc function. On that basis I would use the number keypad - it is quite irritating having to page on to find the decimal point.

Sep 13, 2011 KeithCl 43 posts	Topic: DAFNE Online Mobile / Feedback from Android beta testing novorapidboi26 said: Hey, can I be emailed again with the link for the latest release............ Cheers.......... If paid work doesn't get in the way, the app will be made publicly available on the Android Market this week so I hope you can wait for that. This initial release will be the 1.3.r.265 BETA version plus a fix for the white text on a white background. Improvements to the auto-calc can be added in a future version when what is required is clear.

Sep 13, 2011 KeithCl 43 posts	Topic: DAFNE Online Mobile / Feedback from Android beta testing Geofftrez said: The keyboard layout when you call for the BG data field is perfect - simply a numeric keypad. The keyboard layout when you call for CP, QA and BI data fields is a typical phone alpha numeric keyboard. Since those fields only need numeric data I would suspect its a programming error. Those fields also need to support the + and - characters so that adjustments can be entered. So while for the BG field I can use android:inputType="numberDecimal" which yields the neat numeric keypad, for the CP, QA and BI fields I have to use android:inputType="numberDecimal\|numberSigned\|text" to ensure that the + and - characters can be entered which typically yields the messy phone-style keyboard layout.

Sep 12, 2011 novorapidboi26 1,819 posts	Topic: General Discussion / Do I adjust BI or QA first? The only way to be sure your not having overnight hypos is to test, every hour would be good, although a pain....... My own personal theory is that dawn phenomenon starts a couple of hours, roughly, before you get up, so your body clock will be used to determine when this is............so for me, its starts about 4:00-4:30 as I get up at 6:30, so testing at 3am is the best time for me if I wanted to prove dawn phenomenon was taking place, as theoretically my BG would be fine at 3am, but then at 4:30am it would go up......this is proof, you should try a similar time to confirm........ you need to give your dose changes a few days, if you cant find a happy medium with the QA dose, then a small tweak of the BI should be considered......... When were you told to drop your ratio to 0.5:1? When you refer to being steady, what do you mean................your on target one day and not the next? Its just that getting your BG steady between meals is possible, but not easy, going up then back down is normal, its getting that spike to be as small as possible that the tricky part..........

Sep 11, 2011 kay70mea 6 posts	Topic: General Discussion / Do I adjust BI or QA first? Hi Novorapidboi26, I have upped the tea time ratio from 1:1 to one and a half to one and it steady one day and not the next although my working day doesn't change, and I have done the testing over night and it's steady so I gather the background one is ok and I was asked by my dsn to lower my quick acting to half to one ratio but I think thast it's not quite enough, and yes I have heard of the early morning phenomonon through this web site but I was always told that I was having night time hypos NOT a chance because I don't feel groggy in the morning's, so any other suggestions would be gratefully received.

Sep 11, 2011 novorapidboi26 1,819 posts	Topic: General Discussion / Do I adjust BI or QA first? If you eliminate the 2 most obvious variables, which are; 1. Your Evening Meal ratio 2. Your Supper ratio Then you can go on with the background testing................so upping your dose and testing through the night............ It sounds as though you may have some dawn phenomenon.........are you aware of this? When is supper? Are you always higher before this? That may suggest a dose is out, either dinner QA or BI, or both!!!

Sep 10, 2011 kay70mea 6 posts	Topic: General Discussion / Do I adjust BI or QA first? Hi, Need a little help from anyone,I am taking Levemir for background insulin and NovoRapid for quick acting,I'm on a 2:1 ratio QA and then1:1 for lunch,tea and supper and then the Levemir twice a day 14 at breakfast and 16 at supper time, the problem I'm having is at supper time when it doesn't settle and the levels are high at breakfast time, tested during the night they are ok but by 8 a.m. they are on 13mmols and higher, before supper they run on 9mmols but then higher in the morning any suggestions?

Sep 10, 2011 John Syer 19 posts	Topic: DAFNE Online Mobile / Feedback from Android beta testing Simon said: Geoff: thinking about it you're right, there is a standard 1.5 CP suggested for a hypo which we probably dont need to adjust manually, so its just the BG:QA ratio which is needed. I may be missing something, but isn't it QA:CP ratio. Why do you need the BG:QA ratio? My personal experience is that BG:QA is unpredictable, depending on too many factors to make it a useful metric, (weather, temperature. stress levels, exercise, tiredness). I also find that BG:QA relationship changes depending on the value of BG, so it is non-linear. Regards, John

Sep 9, 2011 Simon 578 posts	Topic: DAFNE Online Mobile / Feedback from Android beta testing Geoff: thinking about it you're right, there is a standard 1.5 CP suggested for a hypo which we probably dont need to adjust manually, so its just the BG:QA ratio which is needed. Novorapidboi: check your inbox!

Sep 9, 2011 novorapidboi26 1,819 posts	Topic: DAFNE Online Mobile / Feedback from Android beta testing Hey, can I be emailed again with the link for the latest release............ Cheers..........

Sep 9, 2011 Geofftrez 22 posts	Topic: DAFNE Online Mobile / Feedback from Android beta testing Simon said: I like the idea Geoff, and think it's the right way to go. I thought taking 1 CP was meant to raise your BG by 2-3, so your CP:BG ratio is needed? Yes but you also have the QA:CP ratio which is used in the DAFNE calculations. CP:BG would I believe only be useful if you wanted to calculate a small corrective carbohydrate dose because you were close to having a hypo and you were not at a mealtime. We would normally have 1CP and do any correction at the next meatime. On this basis the CP:BG ratio isn't really needed. So sayiing as a DAFNE graduate I am a bit of a novice so hope someone will correct me if necessary. If you were actually having a hypo there would be no correction at the next meal.

Sep 8, 2011 Simon 578 posts	Topic: DAFNE Online Mobile / Feedback from Android beta testing I like the idea Geoff, and think it's the right way to go. I thought taking 1 CP was meant to raise your BG by 2-3, so your CP:BG ratio is needed?

Sep 8, 2011 Simon 578 posts	Topic: General Discussion / Facebook Yes - https://www.facebook.com/group.php?gid=7325986398

Sep 8, 2011 Pinky 4 posts	Topic: Questions for HCPs / Menstrual Cycle, BI swirlygirly said: Hi Pinky Sorry to hear about the migraines that can't be fun along with everything else, I hope you get some joy with the mini pill. I was offered this a while back but really did not want to go down that route at the time but I may have to reconsider as my symptoms Diabetes and otherwise seem to be getting worse as time goes by. I would be really interested in how you get on and would like to stay in touch , PM me if you would rather ,or on this thread . whichever is fine with me. I am on Lantus and had to change my injection to mornings a long time ago because of nighttime Hypo's ,it did help a bit but like you when you need to really increase the doses you get that backlog ,build up and I still get them a lot at certain times of the month. It is far more hormone related than dose/insulin related with me...and I bet your self and a good few others. Thanks for the reply and do stay in touch, and yes you can feel very frustrated and alone with it all, big hug!! Swirlygirly, I will indeed yet you know how i get on. Build up week next week so will monitor the BG on the new insulin doses and let you know. Mood swing changes may take a while longer to monitor, but will keep you posted. Thank you for the hug. Have you considered changing from Lantus? No nightime hypos gets my vote. I also feel less fuggy during the day. Pinky.

Sep 8, 2011 swirlygirly 3 posts	Topic: Questions for HCPs / Menstrual Cycle, BI Hi Pinky Sorry to hear about the migraines that can't be fun along with everything else, I hope you get some joy with the mini pill. I was offered this a while back but really did not want to go down that route at the time but I may have to reconsider as my symptoms Diabetes and otherwise seem to be getting worse as time goes by. I would be really interested in how you get on and would like to stay in touch , PM me if you would rather ,or on this thread . whichever is fine with me. I am on Lantus and had to change my injection to mornings a long time ago because of nighttime Hypo's ,it did help a bit but like you when you need to really increase the doses you get that backlog ,build up and I still get them a lot at certain times of the month. It is far more hormone related than dose/insulin related with me...and I bet your self and a good few others. Thanks for the reply and do stay in touch, and yes you can feel very frustrated and alone with it all, big hug!!

Sep 7, 2011 Peter 109 posts	Topic: General Discussion / EU Directive - Million Drivers face losing their licence. Couple more links which may be of interest. The DVLA document which has prompted all the comments can be found at http://www.dft.gov.uk/dvla/~/media/pdf/consultations/Proposals to amend Driving Licence Standards.ashx. NB. It's a PDF document. The original EU guidance is here: http://ec.europa.eu/transport/road_safety/behavior/doc/diabetes_and_driving_in_europe_final_1_en.pdf

Sep 7, 2011 Pinky 4 posts	Topic: Questions for HCPs / Menstrual Cycle, BI Hi Swirlygirly, Your prementruation BG are a lot like mine. Some months; before Dafne, I would correct every couple of hours and increase my cp.qa ratios from 1:1 to 1:3 and still run at about 16. Then the week during I would require very little of anything. My PMT is also really bad and I too feel life is one big struggle, then I feel like me again. I did see my doctor this week and she has suggested the mini pill which is just progesterone. This is due to migraines, rather than because of your suggested link, but it does seem a logical idea to me. I will let you know if taking it has the desired effect on those pesky BG's and mood swings. I am now on levemir not lantus and I no longer have night time hypos. This was a bigger problem during the week of my period as I could have up to three a night on really bad weeks. This was probably due to the three day lag effect of lantus and all the increase in dose I had taken to combat high BG. I now take only 3 units of levemir at night, 20 in the morning. I have not as yet had a period since the change in insulin, but the diabetic nurse said I may need to reduce the night time levemir further for that week. Hope you feel better soon. So good to chat with people going through the smae sort of thing. Can be really lonely. Pinky swirlygirly said: Hi Anthea May I ask which week you have sorted? I find the week during and just after menstruation the easiest. The week running up besides the REALLY bad PMT I find a struggle. I exercised this morning usually a locked down insulin to food ratio for me and I end my workout with a Glucose of 4.5, well today usual food usual dose but my Glucose went up instead of down and at the point in my routine where I check and would be at around 10 I was at 22.4...so I had an adjustment which I would normally never dare do during exercise if it was not the week before my period and I only gotmthem down to 17.3......It is like I am insulin sensitive for the majority of the time but the week before a period I lose all sensitivity and I would even go as far as saying I have quiet sever insulin resistance. Do you ,or anyone else for that matter know if this would be due to Estrogen dominance?????? I'm not that up on Cycle hormones.I do wonder if this is the case that progesterone supplemented would help to stabilise things for us???? I do know I need to see my GP about this because I have got to the stage where I feel Quiet poorly and run down the week before and my moods are terrible...then it's like I'm a new person when my period starts . It really is not just effecting my Diabetes it has a negative effect on mu life overall really. Thanks Anthea for bringing this up and thanks the DAFNE people for taking this on board. SG xx

Sep 7, 2011 Peter 109 posts	Topic: General Discussion / EU Directive - Million Drivers face losing their licence. DianeH said: Re the petition, can anyone help? Diane Seems to be one here: http://epetitions.direct.gov.uk/petitions/14125 Only 782 signatures so far....so get signing! The wording with it says: Diabetes and driving Responsible department: Department for Transport We wish the government to urgently re-examine the EU directive which leads to drivers with diabetes being stripped of their licences if they suffer two hypos in a year, even whilst asleep in bed. We ask them to consider the large number of safe and careful drivers with diabetes who, whilst suffering occasional hypos in their sleep, afford no risk in their waking hours on the roads. These drivers will lose their independence and even their work as a result of implementation of this directive.

Sep 7, 2011 Peter 109 posts	Topic: General Discussion / DAFNE Myths Lizzie said: It might be helpful if people who had gone through DAFNE maybe 5 years ago or something like that could be automatically recalled. My clinic was OK on arranging updates directly after the course but these seem to have dried up. And even when offered, the number of places available was inadequate, they were snapped up almost immediately and by the time I had organised a day's leave and my manager got back to me approving it, there were no spaces left. And since it was one day only, you could only choose 2 sessions to attend so you did not get a thorough update on everything that had changed. I realise updates and suchlike are the responsibility of the individual clinic however it would be nice if there was some sort of central DAFNE mechanism to keep us updated if our own clinic does not do so. I just feel graduates of DAFNE should be kept updated with the latest knowledge and way of teaching the course. It is all very well going to it but after a few years the knowledge is old and begins to fade and is changed and updated and you are out of touch. It's very interesting that you make these comments about follow-on training. It so happens that one of the items that the DUAG team are working on at the moment are questionnaires to get input from Graduates and Educators on what is currently offered, and what is wanted. I finished the draft of the graduate version last weekend, and expect to be publishing a link to it on dafneonline shortly to get input from the users here. That will at least give us some feedback to go to DAFNE Central on what the users want.

Sep 7, 2011 DianeH 7 posts	Topic: General Discussion / EU Directive - Million Drivers face losing their licence. I heard the report on "You and Yours" on Radio 4 today. I was appalled. I am still struggling to get within targets and most of the time I am too high. That means very few hypos and no unpredictable ones. Just as well, by the sound of it. Where I live public transport is almost non-existent: I would not be able to get to work (or do it) without a car, I would not get to most of my medical appointments and I would effectively be stuck in my village or restricted to cycling distance - not very far as I am in my late 50's. Worst of all, I am a folk dance musician. I would lose this and all of my musical activities as there is nothing locally. I am swinging between panic and despair. I was told by Diabetes UK (I got straight on the phone) that there is an online petition that someone has started. Does anyone know how to find it? What can we do? Looking at things like the health bill currently going through parliament I have no faith in the government using common sense or even mild thought. I thought the knee-jerk ban on minibus-driving regardless of one's driving history was bad enough. Re the petition, can anyone help? Thanks Diane

Sep 7, 2011 dragonrat 2 posts	Topic: General Discussion / Facebook Is there a Facebook page or group for DAFNE? I've found the Twitter page, but a Facebook account gives more scope.