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15,718 posts found
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Sep 8, 2011
Simon
574 posts
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Topic: General Discussion / Facebook Yes - https://www.facebook.com/group.php?gid=7325986398 |
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Sep 8, 2011
Pinky
4 posts
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Topic: Questions for HCPs / Menstrual Cycle, BI
Swirlygirly, I will indeed yet you know how i get on. Build up week next week so will monitor the BG on the new insulin doses and let you know. Mood swing changes may take a while longer to monitor, but will keep you posted. Thank you for the hug. Have you considered changing from Lantus? No nightime hypos gets my vote. I also feel less fuggy during the day. Pinky. |
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Sep 8, 2011
swirlygirly
3 posts
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Topic: Questions for HCPs / Menstrual Cycle, BI Hi PinkySorry to hear about the migraines that can't be fun along with everything else, I hope you get some joy with the mini pill. I was offered this a while back but really did not want to go down that route at the time but I may have to reconsider as my symptoms Diabetes and otherwise seem to be getting worse as time goes by. I would be really interested in how you get on and would like to stay in touch , PM me if you would rather ,or on this thread . whichever is fine with me. I am on Lantus and had to change my injection to mornings a long time ago because of nighttime Hypo's ,it did help a bit but like you when you need to really increase the doses you get that backlog ,build up and I still get them a lot at certain times of the month. It is far more hormone related than dose/insulin related with me...and I bet your self and a good few others. Thanks for the reply and do stay in touch, and yes you can feel very frustrated and alone with it all, big hug!! |
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Sep 7, 2011
Peter
103 posts
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Topic: General Discussion / EU Directive - Million Drivers face losing their licence. Couple more links which may be of interest. The DVLA document which has prompted all the comments can be found at http://www.dft.gov.uk/dvla/~/media/pdf/consultations/Proposals to amend Driving Licence Standards.ashx. NB. It's a PDF document.The original EU guidance is here: http://ec.europa.eu/transport/road_safety/behavior/doc/diabetes_and_driving_in_europe_final_1_en.pdf |
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Sep 7, 2011
Pinky
4 posts
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Topic: Questions for HCPs / Menstrual Cycle, BI Hi Swirlygirly,Your prementruation BG are a lot like mine. Some months; before Dafne, I would correct every couple of hours and increase my cp.qa ratios from 1:1 to 1:3 and still run at about 16. Then the week during I would require very little of anything. My PMT is also really bad and I too feel life is one big struggle, then I feel like me again. I did see my doctor this week and she has suggested the mini pill which is just progesterone. This is due to migraines, rather than because of your suggested link, but it does seem a logical idea to me. I will let you know if taking it has the desired effect on those pesky BG's and mood swings. I am now on levemir not lantus and I no longer have night time hypos. This was a bigger problem during the week of my period as I could have up to three a night on really bad weeks. This was probably due to the three day lag effect of lantus and all the increase in dose I had taken to combat high BG. I now take only 3 units of levemir at night, 20 in the morning. I have not as yet had a period since the change in insulin, but the diabetic nurse said I may need to reduce the night time levemir further for that week. Hope you feel better soon. So good to chat with people going through the smae sort of thing. Can be really lonely. Pinky
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Sep 7, 2011
Peter
103 posts
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Topic: General Discussion / EU Directive - Million Drivers face losing their licence.
Seems to be one here: http://epetitions.direct.gov.uk/petitions/14125 Only 782 signatures so far....so get signing! The wording with it says:
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Sep 7, 2011
Peter
103 posts
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Topic: General Discussion / DAFNE Myths
It's very interesting that you make these comments about follow-on training. It so happens that one of the items that the DUAG team are working on at the moment are questionnaires to get input from Graduates and Educators on what is currently offered, and what is wanted. I finished the draft of the graduate version last weekend, and expect to be publishing a link to it on dafneonline shortly to get input from the users here. That will at least give us some feedback to go to DAFNE Central on what the users want. |
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Sep 7, 2011
DianeH
7 posts
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Topic: General Discussion / EU Directive - Million Drivers face losing their licence.   I heard the report on "You and Yours" on Radio 4 today. I was appalled. I am still struggling to get within targets and most of the time I am too high. That means very few hypos and no unpredictable ones. Just as well, by the sound of it. Where I live public transport is almost non-existent: I would not be able to get to work (or do it) without a car, I would not get to most of my medical appointments and I would effectively be stuck in my village or restricted to cycling distance - not very far as I am in my late 50's. Worst of all, I am a folk dance musician. I would lose this and all of my musical activities as there is nothing locally. I am swinging between panic and despair. I was told by Diabetes UK (I got straight on the phone) that there is an online petition that someone has started. Does anyone know how to find it? What can we do? Looking at things like the health bill currently going through parliament I have no faith in the government using common sense or even mild thought. I thought the knee-jerk ban on minibus-driving regardless of one's driving history was bad enough.Re the petition, can anyone help? Thanks Diane |
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Sep 7, 2011
dragonrat
2 posts
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Topic: General Discussion / Facebook Is there a Facebook page or group for DAFNE? I've found the Twitter page, but a Facebook account gives more scope. |
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Sep 6, 2011
MSW
2 posts
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Topic: General Discussion / Help! Ratios moving around very erratically I agree with what novorapidboi26 has said. I have also found that my ratios change over time for no apparent reason. As far as I can tell there is no harm in this as long as you adjust your insulin doses accordingly. Good luck with this. |
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Sep 6, 2011
swirlygirly
3 posts
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Topic: Questions for HCPs / Menstrual Cycle, BI Hi AntheaMay I ask which week you have sorted? I find the week during and just after menstruation the easiest. The week running up besides the REALLY bad PMT I find a struggle. I exercised this morning usually a locked down insulin to food ratio for me and I end my workout with a Glucose of 4.5, well today usual food usual dose but my Glucose went up instead of down and at the point in my routine where I check and would be at around 10 I was at 22.4...so I had an adjustment which I would normally never dare do during exercise if it was not the week before my period and I only gotmthem down to 17.3......It is like I am insulin sensitive for the majority of the time but the week before a period I lose all sensitivity and I would even go as far as saying I have quiet sever insulin resistance. Do you ,or anyone else for that matter know if this would be due to Estrogen dominance?????? I'm not that up on Cycle hormones.I do wonder if this is the case that progesterone supplemented would help to stabilise things for us???? I do know I need to see my GP about this because I have got to the stage where I feel Quiet poorly and run down the week before and my moods are terrible...then it's like I'm a new person when my period starts . It really is not just effecting my Diabetes it has a negative effect on mu life overall really. Thanks Anthea for bringing this up and thanks the DAFNE people for taking this on board. SG xx |
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Sep 6, 2011
Chris loughrey
21 posts
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Topic: General Discussion / Help! Ratios moving around very erratically
Thanks for the advice, funny how after 10 years there's always more to learn! I think I mostly need to beat the idea that "more insulin=bad", you get into a cycle of thinking toy should take as little as possible but there isn't really any logic behind it, I need as much as I need. And I figured my ratios were low anyway, with any luck having a pump ( when I reach the top of the list!) will be a big help too. Thanks again for your thoughts, it's been a great help. |
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Sep 6, 2011
Chris loughrey
21 posts
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Topic: General Discussion / Help! Ratios moving around very erratically
Thanks for the advice, funny how after 10 years there's always more to learn! I think I mostly need to beat the idea that "more insulin=bad", you get into a cycle of thinking toy should take as little as possible but there isn't really any logic behind it, I need as much as I need. And I figured my ratios were low anyway, with any luck having a pump ( when I reach the top of the list!) will be a big help too. Thanks again for your thoughts, it's been a great help. |
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Sep 6, 2011
novorapidboi26
1,816 posts
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Topic: General Discussion / Help! Ratios moving around very erratically Is it possible with no obvious reasons, hell yeah, that's diabetes at it s best............As you are very active I would imagine that your insulin requirements would remain on the low side..........your ratios previously in my opinion were on the very low side, any lower and you would of needed a pump...........so although it may be discouraging to realize you need more, its still is not that much..........I am not very active, I do moderate exercise twice a week, but my morning ratio is still 3:1............  ..........This could just be a phase, or a sign of illness................as ling as you keep active and remember to make sure your getting a consistent pattern of results before making changes all will be well....... If it is the BI that's good, as the livers output of glucose is not effected by activity levels as far as I am aware, so the liver might just be producing more glucose, making you think you need more units for each carb portion......... good luck and keep us posted............. |
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Sep 6, 2011
Chris loughrey
21 posts
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Topic: General Discussion / Help! Ratios moving around very erratically I've been diagnosed 10 years.first time I've had such a fast change in ratios though.I was using maximum of 1.25:1 previously and now I'm just heading upwards at all times of the day!I'm testing BI today but I'm fairly sure it's the ratio needing to go 1.5:1 or more. Just having trouble with the idea of more & more QA being needed. I'm very active and exercise 4-5 days per week without fail(I'm a fitness trainer and sports coach) that's why I'm having trouble understanding the rapid decrease in sensitivities. If anything it should be the opposite. A week or 2 ago I was using 4-5 units at lunch (0.75:1) and now that's seemed to double, is that possible with no obvious reason? |
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Sep 6, 2011
novorapidboi26
1,816 posts
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Topic: General Discussion / dafne app/carb calculator for Blackberry phones I believe there are some apps on there for this purpose, a quick search for diabetes may give you some results...............good luck............ |
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Sep 6, 2011
novorapidboi26
1,816 posts
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Topic: General Discussion / Help! Ratios moving around very erratically The background could be out, only way to check is with carb free meals, or missing a meal, which can much more difficult........But it could be the ratios..............sometimes you just start to need more, to help keep the ratios down being active helps a it decreases insulin sensitivity......... How long have you been diagnosed..........? |
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Sep 6, 2011
Lizzie
87 posts
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Thanks Marke. I am on a single dose of Lantus which I take before bed. |
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Sep 5, 2011
Geofftrez
22 posts
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Topic: DAFNE Online Mobile / Feedback from Android beta testing On reflection I'm unsure that my first suggestion is correct. The QA:BG ratio is used for corrections. The CP:QA ratio is a measure of insulin resistance. I don't think CP:BG is actually needed. |
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Sep 5, 2011
marke
643 posts
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Topic: DAFNE Online Mobile / Feedback from Android beta testing I agree with Geoff, although I do understand the concept of litigation I hadn't realised that Simon had mentioned it himself. I believe the answer is to add a big disclaimer to the app, making it clear that it does NOT provide medical advice and is used at the users risk. We are not medic's and the app cannot and should not makeclaims or give the impression that it does provide medical information. |
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Sep 5, 2011
marke
643 posts
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Topic: General Discussion / Can someone please remind me... Well the first step is to work on your BI as this is the key to the rest of it. You don't say if you are on a single dose or split dose, the principle is the same for both however the way to check is slightly different. The theory is if you don't eat and just use BI your BG should stay roughly the same. So of you inject before bed and test then don't eat again until morning your BI should be pretty much the same. If you are on a split dose and inject BI in the morning and skip lunch again your BI should be roughly the same before dinner. Of course its not always as simple as this but that is the basic principle.If your BI is right and stable then your QA should only be needed to work on the food you eat. Therefore you should be able to inject the QA to match your CP's, if this doesn't have the effect expected then you increase the ratio of QA to CP's. However you need to base this decision on more than one meal, it needs to be done over a period of days to remove one-offs. Also remember that ratio's may vary at different times of day e.g a lot of people need a higher ratio in the morning to the mid-day or dinner ratio. Hope that all makes sense, it is in the online handbook somewhere, I probably should know having just converted it to the online version 
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