Recent Posts - DAFNE Online

Feb 28, 2012

novorapidboi26 1,819 posts

Topic: General Discussion / Insulin pumps in Scotland

How do you get on the waiting list..............?

I would imagine you would need to be backed by a consultant or nurse............are you?

Feb 28, 2012

Carbtastic 8 posts

Topic: General Discussion / New Needles

i have changed to 4mm needles too and think they are great. Also, you can inject into your upper arms with them which you are not meant to do with anything above 4mm. This is much more convenient sometimes i find.

Feb 28, 2012

thebatoutofhull 60 posts

Topic: General Discussion / Benefit of after midnight diary settings.

Any blood test result after midnight goes on to the chart for the next day.

I have just discovered a setting that allows you to change the time your diary day ends. So no more split charts!

This is brilliant for me!

1/ go to your diary.
2/ scroll to the bottom then click "click here to edit your diary settings" this is in blue.
3/ A heading of "blood glucose diary settings" will come up.
4/ Look for "diary day ends at"
5/ Use the input box to add your new time.

I can use this as well when I am abroad and have to allow for the time difference.
There are other settings here which you can change as well.

If you know this already then you're my granny and here are the eggs.

Feb 28, 2012

Carbtastic 8 posts

Topic: General Discussion / Insulin pumps in Scotland

I think Nicola Sturgeon closed the waiting lists a few years ago which i was mad about (even though i don think i want a pump) but it seems now they are open again? I cant see them becoming available any time soon though Sad

Feb 28, 2012

gills29 5 posts

Topic: General Discussion / Insulin pumps in Scotland

It was in the news last night - http://www.diabetes.org.uk/About_us/News_Landing_Page/Scottish-Government-announces-insulin-pump-investment/

They are planning on providing them to children first but will make more available to adults over time. The east of Scotland (well anywhere not in the Greater Glasgow area!) seems to have more pumps available (prior to this announcement). There are only 21 pumps, all allocated to children - which is great for them, not so much for us over 18. Hopefully this announcement will make them adjust their estimated figures for the next few years! - http://www.scotland.gov.uk/Publications/2010/08/17095311/10

Either way I feel a round of letter writing coming on, if only to get them to open the waiting list so I can get on it!

Feb 28, 2012

novorapidboi26 1,819 posts

Topic: General Discussion / Insulin pumps in Scotland

They are available in Scotland, its just its very hard to secure funding, a fact that our Consultants know too well and are therefore reluctant to put anyone forward for one....................there are many in Scotland with one though........

And its a postcode lottery...............I know of an individual in Dundee that got one without any trouble, was offered one really, without having to prove anything, and then there are some in my PCT who have considered writing to politicians and the like.......

If they are finally making the process easier and consistent that's great news, where did you read/hear about this change............?

Feb 28, 2012

gills29 5 posts

Topic: General Discussion / Insulin pumps in Scotland

The news today that, over the next couple of years, pumps may become available to adult diabetics in Scotland was one that brought me great joy. However, how can I even dream of getting one of these life changing devices if the waiting lists are closed, and have been for some time?

Feb 27, 2012

novorapidboi26 1,819 posts

Topic: General Discussion / No DAFNE specialist nurse

My first observation is your lows in the afternoon, this seems to be happening because you are eating at about 10-11, injecting for it, then having lunch a few hours later, but you have corrected at the lunch time, when you shouldn't have, also your carb amounts are quite big also, which makes it harder to control..................the less carbs, the easier it is........

Its hard to spot a specific problem but I would be tempted, if I was you, to test the daytime BI dose with some carb free meals. Just to see if that dose can help get the numbers down before you start on your insulin/carb ratios........

your overnight BI dose seems OK, but again, testing is the best way to find out..........

Feb 27, 2012

ChrisS 12 posts

Topic: General Discussion / No DAFNE specialist nurse

Well the diabetes Centre have written to a diabetes Nutritionist they have who knows DAFNE and are awaiting response. In the meantime I'm still struggling so I've booked a GP appt to get me referred to Maidstone.
I've put my last weeks figures down. I'm on Novorapid and Levemir. As you can see I'm struggling.

Feb 27, 2012

barneybubbles 7 posts

Topic: General Discussion / Exercise classes and type1?

thebatoutofhull said:
Barneybubbles; how do you adjust for the gym? What are your results like? I have a gym about 1/2 hour away but now the weather is brightening up I will spend a lot of time hopefully working outside. I'm a little apprehensive about changing my routine.

Hi batoutofhull

I adjust by 1 or 2 units at lunchtime as i usually go to the gym about 1 1/2 hours after lunch. But it depends on the lunchtime reading. if in double figurs i will take insulin according to the amount of carbs in my lunch meal, if my reading is under 10 then i will adjust down one or two units of insulin Smile

Feb 27, 2012

novorapidboi26 1,819 posts

Topic: General Discussion / First time posting

Hi and welcome to the forum..............

Its hard to pin point any specific problems as there isn't much information to go on however I have made some observations.

You seem to be waking up high most mornings, this must be exhausting. This can be down to the dawn phenomenon, not enough background insulin, or not enough quick acting insulin. On a few nights though you had your evening meal about 19:00 or 20:00, tested before bed, the level of which was not far off the next morning, you would assume your BI dose is correct then but your QA from dinner has not finished working yet, so I think your 18 BI at night should increase a few units.....

So just follow the normal drill, carb free, 3am tests, no QA including corrections, until you wake up the same level as you went to bed on......

The first thing I always look for in someones diary is there background dose overnight, as if there are no signs it is doing the job then trying to adjust doses in other areas is pointless.........

How long have been graduated........?

Feb 26, 2012

meltow 78 posts

Topic: General Discussion / Exercise classes and type1?

I usually gym & swim about 3x/week, and tend to go straight after lunch. This is a regime I have been doing for about 4 years, and certainly started gymming before doing Dafne. I won't say I'm hooked, but feel great on the drive home [mission accomplished!] and sleep well too!
Despite cutting my QA to half for my lunch carbs, when I returned home post-gym/swim I was often testing at hypo level. Over the last few months I haven't been bothering taking any QA with lunch if I am going to the gym. My testing post-gym/swim have been slightly better, and just occasionally have been into double figures. But these tend to be more of a one off. I just want to minimise the times I'm testing in the hypo range, and my body not giving me the hypo signals. Confused

I suppose it all depends on how hard you exercise, and working out what works for your own body. We are all different!

Feb 26, 2012

NeilMacGowan17 1 post

Topic: General Discussion / First time posting

where am I going wrong? Embarassed

Feb 26, 2012

thebatoutofhull 60 posts

Topic: General Discussion / Exercise classes and type1?

Barneybubbles; how do you adjust for the gym? What are your results like? I have a gym about 1/2 hour away but now the weather is brightening up I will spend a lot of time hopefully working outside. I'm a little apprehensive about changing my routine.

Feb 26, 2012

barneybubbles 7 posts

Topic: General Discussion / Exercise classes and type1?

thebatoutofhull said:
Hi. I am wondering what type of exercise you all do? I don't have a specific exercise regime, do you and what is it? and how do you find it? I could do to lose a few (quite a few) pounds +. I don't know if this is related but was put on Lantus a year ago from Insulatard and gained 2 1/2 stone. Bloods no better or worse than before. Thanks.

I go to the gym three times a week and test myself before and after exercise. I also went to weight watchers and lost a stone within three months. the two combined ie exercise and diet seem to work, but no slacking is allowed! Very Happy

Feb 26, 2012

barneybubbles 7 posts

Topic: General Discussion / Exercise classes and type1?

thebatoutofhull said:
Hi. I am wondering what type of exercise you all do? I don't have a specific exercise regime, do you and what is it? and how do you find it? I could do to lose a few (quite a few) pounds +. I don't know if this is related but was put on Lantus a year ago from Insulatard and gained 2 1/2 stone. Bloods no better or worse than before. Thanks.

I go to the gym three times a week and test myself before and after exercise. I also went to weight watchers and lost a stone within three months. the two combined ie exercise and diet seem to work, but no slacking is allowed!

Feb 26, 2012

Kirsten H 1 post

Topic: General Discussion / One Year On

ang78 said:
Its been almost one year since I did DAFNE, my hba1c was 12!! Since then I've had an 8.6 then 6.9 and now its 6.6!!!

I was wondering if there is a 'one year on reunion' or something similar? I would love to get together with everyone and share stories and results.

Wow thats amazing well done, my hba1c not particularly high but have had a lot of highs and lows recently, hoping they settle down over next few months and that by next year which will be a year on for me I will feel as positive as you.

Feb 24, 2012

Joanne L 7 posts

Topic: General Discussion / Pain after injecting

Thanks everyone for your advice!! Much appreciated!!

Feb 23, 2012

Garry 328 posts

Topic: General Discussion / Feet treatment

No cost!!! That sounds even better. Will request from my GP.
Thanks for the advice Ahmentep.
Regards
Garry

Feb 23, 2012

Ahmentep 99 posts

Topic: General Discussion / Feet treatment

I use Doublebase cream for this. It is prescribed by my GP and is, without doubt, the best I have ever used.

Feb 23, 2012

John H 20 posts

Topic: General Discussion / Pain after injecting

My experience of stinging sensation during and straight after injecting was for 2 main reasons (NOT suggesting this will be the case for everybody!)......
Lantus was notorious for this anyway, but doing a more shallow injection would make things worse, in my opinion 4mm needles would make this a regular experience, and maybe 6mm ones would suit your situation far better. On my Dafne course, we were encouraged to use 4mm needles, this we tried, but I have reverted back to 6mm. Hope this may help.

Feb 22, 2012

HelenP 218 posts

Topic: General Discussion / Spare diabetes kit

I agree with Marke.

Recently as part of a promotion I was sent a very fancy NEW meter (Verio One Touch). The instructions were more complex than the old Optium Exceeds (aways keep a spare) I was using and I simply put in in a drawer. As a followup to the promotion I received a phone call to gauge my thoughts on the new meter. I was honest and told them I was a bit daunted by the instructions and thought I would simply stick with my old meters especially as I had two (both going strong). They sent me simplified instructions, more strips etc and assured me that when I had tried it all I had to do was ring up and they would send me a second free of charge! RRP is $AUD60.

Feb 22, 2012

marke 686 posts

Topic: General Discussion / Spare diabetes kit

All, If you check with the maker of your current meter they will be more than happy to provide you with another one for free. Not long ago I left my stuff behind at a meeting. I called the manufacturers helpline listed on their website and they sent me two meters delivered the next working day. Its in their interest to keep you using their meter. The money is made on the test strips. Its the same reason a mobile phone comapny will give you a free phone if you sign a monthly contract. Its all about the potential money they make. The test strips cost much much more than the meter....

Feb 28, 2012 novorapidboi26 1,819 posts	Topic: General Discussion / Insulin pumps in Scotland How do you get on the waiting list..............? I would imagine you would need to be backed by a consultant or nurse............are you?

Feb 28, 2012 Carbtastic 8 posts	Topic: General Discussion / New Needles i have changed to 4mm needles too and think they are great. Also, you can inject into your upper arms with them which you are not meant to do with anything above 4mm. This is much more convenient sometimes i find.

Feb 28, 2012 thebatoutofhull 60 posts	Topic: General Discussion / Benefit of after midnight diary settings. Any blood test result after midnight goes on to the chart for the next day. I have just discovered a setting that allows you to change the time your diary day ends. So no more split charts! This is brilliant for me! 1/ go to your diary. 2/ scroll to the bottom then click "click here to edit your diary settings" this is in blue. 3/ A heading of "blood glucose diary settings" will come up. 4/ Look for "diary day ends at" 5/ Use the input box to add your new time. I can use this as well when I am abroad and have to allow for the time difference. There are other settings here which you can change as well. If you know this already then you're my granny and here are the eggs.

Feb 28, 2012 Carbtastic 8 posts	Topic: General Discussion / Insulin pumps in Scotland I think Nicola Sturgeon closed the waiting lists a few years ago which i was mad about (even though i don think i want a pump) but it seems now they are open again? I cant see them becoming available any time soon though

Feb 28, 2012 gills29 5 posts	Topic: General Discussion / Insulin pumps in Scotland It was in the news last night - http://www.diabetes.org.uk/About_us/News_Landing_Page/Scottish-Government-announces-insulin-pump-investment/ They are planning on providing them to children first but will make more available to adults over time. The east of Scotland (well anywhere not in the Greater Glasgow area!) seems to have more pumps available (prior to this announcement). There are only 21 pumps, all allocated to children - which is great for them, not so much for us over 18. Hopefully this announcement will make them adjust their estimated figures for the next few years! - http://www.scotland.gov.uk/Publications/2010/08/17095311/10 Either way I feel a round of letter writing coming on, if only to get them to open the waiting list so I can get on it!

Feb 28, 2012 novorapidboi26 1,819 posts	Topic: General Discussion / Insulin pumps in Scotland They are available in Scotland, its just its very hard to secure funding, a fact that our Consultants know too well and are therefore reluctant to put anyone forward for one....................there are many in Scotland with one though........ And its a postcode lottery...............I know of an individual in Dundee that got one without any trouble, was offered one really, without having to prove anything, and then there are some in my PCT who have considered writing to politicians and the like....... If they are finally making the process easier and consistent that's great news, where did you read/hear about this change............?

Feb 28, 2012 gills29 5 posts	Topic: General Discussion / Insulin pumps in Scotland The news today that, over the next couple of years, pumps may become available to adult diabetics in Scotland was one that brought me great joy. However, how can I even dream of getting one of these life changing devices if the waiting lists are closed, and have been for some time?

Feb 27, 2012 novorapidboi26 1,819 posts	Topic: General Discussion / No DAFNE specialist nurse My first observation is your lows in the afternoon, this seems to be happening because you are eating at about 10-11, injecting for it, then having lunch a few hours later, but you have corrected at the lunch time, when you shouldn't have, also your carb amounts are quite big also, which makes it harder to control..................the less carbs, the easier it is........ Its hard to spot a specific problem but I would be tempted, if I was you, to test the daytime BI dose with some carb free meals. Just to see if that dose can help get the numbers down before you start on your insulin/carb ratios........ your overnight BI dose seems OK, but again, testing is the best way to find out..........

Feb 27, 2012 ChrisS 12 posts	Topic: General Discussion / No DAFNE specialist nurse Well the diabetes Centre have written to a diabetes Nutritionist they have who knows DAFNE and are awaiting response. In the meantime I'm still struggling so I've booked a GP appt to get me referred to Maidstone. I've put my last weeks figures down. I'm on Novorapid and Levemir. As you can see I'm struggling.

Feb 27, 2012 barneybubbles 7 posts	Topic: General Discussion / Exercise classes and type1? thebatoutofhull said: Barneybubbles; how do you adjust for the gym? What are your results like? I have a gym about 1/2 hour away but now the weather is brightening up I will spend a lot of time hopefully working outside. I'm a little apprehensive about changing my routine. Hi batoutofhull I adjust by 1 or 2 units at lunchtime as i usually go to the gym about 1 1/2 hours after lunch. But it depends on the lunchtime reading. if in double figurs i will take insulin according to the amount of carbs in my lunch meal, if my reading is under 10 then i will adjust down one or two units of insulin

Feb 27, 2012 novorapidboi26 1,819 posts	Topic: General Discussion / First time posting Hi and welcome to the forum.............. Its hard to pin point any specific problems as there isn't much information to go on however I have made some observations. You seem to be waking up high most mornings, this must be exhausting. This can be down to the dawn phenomenon, not enough background insulin, or not enough quick acting insulin. On a few nights though you had your evening meal about 19:00 or 20:00, tested before bed, the level of which was not far off the next morning, you would assume your BI dose is correct then but your QA from dinner has not finished working yet, so I think your 18 BI at night should increase a few units..... So just follow the normal drill, carb free, 3am tests, no QA including corrections, until you wake up the same level as you went to bed on...... The first thing I always look for in someones diary is there background dose overnight, as if there are no signs it is doing the job then trying to adjust doses in other areas is pointless......... How long have been graduated........?

Feb 26, 2012 meltow 78 posts	Topic: General Discussion / Exercise classes and type1? I usually gym & swim about 3x/week, and tend to go straight after lunch. This is a regime I have been doing for about 4 years, and certainly started gymming before doing Dafne. I won't say I'm hooked, but feel great on the drive home [mission accomplished!] and sleep well too! Despite cutting my QA to half for my lunch carbs, when I returned home post-gym/swim I was often testing at hypo level. Over the last few months I haven't been bothering taking any QA with lunch if I am going to the gym. My testing post-gym/swim have been slightly better, and just occasionally have been into double figures. But these tend to be more of a one off. I just want to minimise the times I'm testing in the hypo range, and my body not giving me the hypo signals. I suppose it all depends on how hard you exercise, and working out what works for your own body. We are all different!

Feb 26, 2012 NeilMacGowan17 1 post	Topic: General Discussion / First time posting where am I going wrong?

Feb 26, 2012 thebatoutofhull 60 posts	Topic: General Discussion / Exercise classes and type1? Barneybubbles; how do you adjust for the gym? What are your results like? I have a gym about 1/2 hour away but now the weather is brightening up I will spend a lot of time hopefully working outside. I'm a little apprehensive about changing my routine.

Feb 26, 2012 barneybubbles 7 posts	Topic: General Discussion / Exercise classes and type1? thebatoutofhull said: Hi. I am wondering what type of exercise you all do? I don't have a specific exercise regime, do you and what is it? and how do you find it? I could do to lose a few (quite a few) pounds +. I don't know if this is related but was put on Lantus a year ago from Insulatard and gained 2 1/2 stone. Bloods no better or worse than before. Thanks. I go to the gym three times a week and test myself before and after exercise. I also went to weight watchers and lost a stone within three months. the two combined ie exercise and diet seem to work, but no slacking is allowed!

Feb 26, 2012 barneybubbles 7 posts	Topic: General Discussion / Exercise classes and type1? thebatoutofhull said: Hi. I am wondering what type of exercise you all do? I don't have a specific exercise regime, do you and what is it? and how do you find it? I could do to lose a few (quite a few) pounds +. I don't know if this is related but was put on Lantus a year ago from Insulatard and gained 2 1/2 stone. Bloods no better or worse than before. Thanks. I go to the gym three times a week and test myself before and after exercise. I also went to weight watchers and lost a stone within three months. the two combined ie exercise and diet seem to work, but no slacking is allowed!

Feb 26, 2012 Kirsten H 1 post	Topic: General Discussion / One Year On ang78 said: Its been almost one year since I did DAFNE, my hba1c was 12!! Since then I've had an 8.6 then 6.9 and now its 6.6!!! I was wondering if there is a 'one year on reunion' or something similar? I would love to get together with everyone and share stories and results. Wow thats amazing well done, my hba1c not particularly high but have had a lot of highs and lows recently, hoping they settle down over next few months and that by next year which will be a year on for me I will feel as positive as you.

Feb 24, 2012 Joanne L 7 posts	Topic: General Discussion / Pain after injecting Thanks everyone for your advice!! Much appreciated!!

Feb 23, 2012 Garry 328 posts	Topic: General Discussion / Feet treatment No cost!!! That sounds even better. Will request from my GP. Thanks for the advice Ahmentep. Regards Garry

Feb 23, 2012 Ahmentep 99 posts	Topic: General Discussion / Feet treatment I use Doublebase cream for this. It is prescribed by my GP and is, without doubt, the best I have ever used.

Feb 23, 2012 John H 20 posts	Topic: General Discussion / Pain after injecting My experience of stinging sensation during and straight after injecting was for 2 main reasons (NOT suggesting this will be the case for everybody!)...... Lantus was notorious for this anyway, but doing a more shallow injection would make things worse, in my opinion 4mm needles would make this a regular experience, and maybe 6mm ones would suit your situation far better. On my Dafne course, we were encouraged to use 4mm needles, this we tried, but I have reverted back to 6mm. Hope this may help.

Feb 22, 2012 HelenP 218 posts	Topic: General Discussion / Spare diabetes kit I agree with Marke. Recently as part of a promotion I was sent a very fancy NEW meter (Verio One Touch). The instructions were more complex than the old Optium Exceeds (aways keep a spare) I was using and I simply put in in a drawer. As a followup to the promotion I received a phone call to gauge my thoughts on the new meter. I was honest and told them I was a bit daunted by the instructions and thought I would simply stick with my old meters especially as I had two (both going strong). They sent me simplified instructions, more strips etc and assured me that when I had tried it all I had to do was ring up and they would send me a second free of charge! RRP is $AUD60.

Feb 22, 2012 marke 686 posts	Topic: General Discussion / Spare diabetes kit All, If you check with the maker of your current meter they will be more than happy to provide you with another one for free. Not long ago I left my stuff behind at a meeting. I called the manufacturers helpline listed on their website and they sent me two meters delivered the next working day. Its in their interest to keep you using their meter. The money is made on the test strips. Its the same reason a mobile phone comapny will give you a free phone if you sign a monthly contract. Its all about the potential money they make. The test strips cost much much more than the meter....