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Mar 4, 2012
Faulty Headl... 18 posts

Topic: Questions for HCPs / Accessibility for Blind/ VIP diabetics

Shocked
I am due to start the DAFNE course tomorrow, WITH MY MUM!!
I was tld that the DAFNE course information isn't availible in any other format other than print. I ws told I couldn't do the course as there was printed material to read, then when I told them I could have it converted into a format that my computer could read I was told there was calculations to do too! Shock horror!! a blind person doing maths?? Well I never!
I mean DUH! I'm blind not stupid!

After a bit of discussion they finally said I could do it but in a one to one course... With my mum!
I'm 29 years old and I was wanting to do this course so I could be a wee bit more independant.

What I wanna know is why a blind or visually impaired diabetic can't do this course in a group setting like any sighted person would? we have the ways and means, technology has come on a bit over the years.

Obviously the printed material was printed from a computer? right? so why couldn't this be sent as a word doc or PDF file to the blind or visually impaired persons computer? easy!

I was told it wasn't availible in these formats, is this true?
 
Mar 3, 2012
Mairead 10 posts

Topic: Carbohydrate Counting / Low Carb Cookbooks

I finished my DAFNE course in early February and have been trying to make changes at home, diet and exercise and so on. I recently bought a couple of low carb cookbooks which I am finding helpful:

'The low-Carb Cookbook' by Elaine Gardner (2011) Published by Southwater
"Lose wight the smart way with 150 healthy, tasty recipes;


'Recippes for Health: Diabetes (2000) Azmina Govindji and Jill Myers, Published by Thorsons "Low-Fat, Low-Sugar, Carbohydrated counted recipes for the management of diabetes." (bought this one on amazon marketplace as it was pub in 2000); and

'The Vegetarian Low-Carb Diet Cookbook' (2011) by Rose Elliot, Publ Piatkus. "The fast no-hunger weightloss cookbook for vegetarians."

My HbA1c has gone from 10.4 to 8.00 since finishing the course and I have lost 2lbs in weight.

I still have bad days because of other conditions, Rheumatoid Arthritis and Osteoarthritis which can upset diabetic control when they flare up, but am managing better than I had initially thought I would.

I am also hoping to lose more weight, I am 10st 10lbs at 5'4" in height, and want to lose the excess 10 lbs. I am hoping this will help not only improve the diabetes further but also to reduce inflammation factors and help my other conditions. I try to exercise by walking more and gentle exercises because my mobility is not great.

Any advice or other cookbook/diet recommendations from others who have been through the same and have to manage other conditions alongside diabetes? - thanks
 
Mar 1, 2012
thebatoutofhull 60 posts

Topic: General Discussion / Guestimating Hba1c

Hi, both these estimating systems are only a guide. They just give me an idea where I am. Hypo'thetically you could have 3 months of test results ranging from 5 to 7 and get the same average as someone with test results which are much more wider ranging.

You could in theory have more glucose in your blood, but also have a lot of hypos and get the same average BG as someone with better control.
 
Feb 29, 2012
mum2westiesGill 502 posts

Topic: General Discussion / Guestimating Hba1c

Also for some reason my DSN said at my last appointment that my average will probably go up??? Confused
 
Feb 29, 2012
novorapidboi26 1,819 posts

Topic: General Discussion / Guestimating Hba1c

I haven't had enough personal experience with it to confidently trust the formula, my average blood sugars just aren't accurate enough........so don't worry too much.....
 
Feb 29, 2012
mum2westiesGill 502 posts

Topic: General Discussion / Guestimating Hba1c

Hi,

Just done my Hba1c. It was 7.37% doing it using thebatoutofhull's way & about 7.4% doing it novorapidboi26's way. I got the 3 months results (last 90 days) from the "my blood glucose diary" on here. When i get my result on the accu-chek site it does give me a message of "Keep up the good work—you're very close to target!" Myself i'm, really annoyed now Evil or Very Mad because my last one in December was 6.8% & i had my DSN phoning me to congratulate me.
 
Feb 29, 2012
thebatoutofhull 60 posts

Topic: General Discussion / Guestimating Hba1c

Maybe i'll use that formulae instead. Thanks.

I never had any problems with my old Dafne team or anyone who was dafne related.
 
Feb 29, 2012
novorapidboi26 1,819 posts

Topic: Questions for HCPs / Ratios and compensating

Some people have higher insulin resistance and therefore need a higher insulin/carb ratio....................

I have known ratios ad high as 4.5, however if you do find you need these amounts it would be best to confirm your BI dose or doses.............if you are on one dose like Lnatus and needing high ratios a split might also help bring the ratios down...........
 
Feb 29, 2012
novorapidboi26 1,819 posts

Topic: General Discussion / Guestimating Hba1c

I use the formula:

HbA1c = Average BG + 2.52 / 1.583

its usually within + or - 0.5%

Its strange though, I have never feared a bollocking from my team, they have always shown concern if its really high, but asI am DAFNE trained, they know I am doing my best and that I can identify the areas that need attention...........
 
Feb 29, 2012
memelr1986 1 post

Topic: Questions for HCPs / Ratios and compensating

hi i have recently finished the dafne course and am getting used to carb counting and ratios was wondering if any one could answer a question for me the guidelines say that a ratio of 1-3:1 ratio for breakfast and 1-2:1 ratio for lunch and dinner i am finding that this ratio does not work for me i need more is it safe to use a higher ratio and how high is ok to go????????
 
Feb 29, 2012
thebatoutofhull 60 posts

Topic: General Discussion / Guestimating Hba1c

I get my Hba1c test once a year. It used to be more when I had access to a DAFNE team.
I now estimate my own just by using an online estimating calculator to give me an idea whether I am going to get chowed at by my GP. With one test a year I miss out on 9 months worth of Hba1c's. (3 tests)
I can end up talking to my GP about a result from nearly a year before.

http://www.soc-bdr.org/rds/authors/unit_tables_conversions_and_genetic_dictionaries/e5184/index_en.html

This is what I do to estimate my hba1c.

step 1/
Work out an average BG for your results.( you can add 3 months results up if you like and divide the result by how many results you counted, or look at your 'mean' graph)

paste the above link into your address bar. It brings up the website for'SOCIETY FOR BIOMEDICAL DIABETES RESEARCH'

step 2/ Use their converter to change your average BG in mmol/l to mg/dl.

step 3/ Use the A1c test calculator from the following link. (it does not accept mmol/l readings only mg/dl)

www.accu-chek.com/us/glucose-monitoring/a1c-calculator.html#

It was not far off last time for me when I compared it too my last actual hba1c.
 
Feb 28, 2012
novorapidboi26 1,819 posts

Topic: General Discussion / No DAFNE specialist nurse

Corrections

An extract from the Handbook, not very clear, and in fact, I did not see that either back in 2010, it was just an observation I had made.........
 
Feb 28, 2012
ChrisS 12 posts

Topic: General Discussion / No DAFNE specialist nurse

Don't apologise, all very helpful. The above 11mmol thing I dont remember from my course so I either forgot or it was added later as I did mine in 2007. Would make sense. I'm one of those people that hates even mild hypos so tends to err on the side of caution.
You're right about night testing, haven't done it for a while. Will try and do it sometime this week.
 
Feb 28, 2012
novorapidboi26 1,819 posts

Topic: General Discussion / No DAFNE specialist nurse

In your particular case you should not of corrected at lunch because you already had insulin working away at this time, at its peak near enough................you only correct if you have no QA insulin active, ie...4-5 hours after last injection............

Resisting snacks is hard, I know from personal experience............I think the most important point for you would be consistency, if you have this snack every day, you can spot patterns and adjust your insulin for it......

When I mentioned carb free I was purely referring to basal insulin testing, it isn't permanent, just sometimes necessary when testing background insulin, but there are many things you can have that are carb free, meats, cheese, salad.........

I would do the same tonight, have your dinner as normal, then nothing till the next morning, set an alarm for 3 am, record your BG at that time.............this will tell you if your going low at night, resulting in the high...........you can repeat this test to confirm..............if all is well overnight you need more BI in the evening........

DAFNE states that 1 unit of insulin drops the blood sugar level by 2-3mmol/l....................but it also states that above 11mmol/l this observation may not apply............this is the case for me.......and in my personal opinion, for everyone else to varying degrees.............so the higher you are the more you need to bring you down.................if I was 18, I would take 13 units to bring me down to 5.5, so 1 unit brings me down 1mmol/l.........

below 10 - 1 unit drops 2.5mmol/l
10-13 - 1 unit drops 2mmol/l
13-17 - 1 unit drops 1.5mmol/l
above 17 - 1 unit drops 1mmol/l

Everyone is different, I worked mine out by assuming 1 unit drops me by 2.5 at all levels, then, provided the carb count is right, recorded how much 1 unit actually dropped me by at certain levels.........

It took time, but was worth it.............I would recommend a similar investigation for yourself............

DAFNE does provide flexibility, but a lesson I have learned over the years is that you need to fine tune those principals for yourself, and sometimes the control you want just cant be achieved without dramatic changes to diet, I have been cutting my daily carb load, reluctantly, but its giving me the results I want............sometimes DAFNE cannot provide all the answers........

Sorry if I rambled on a bit there............... Embarassed


 
Feb 28, 2012
ChrisS 12 posts

Topic: General Discussion / No DAFNE specialist nurse

Why shouldn't I correct at lunchtime if still high? Because its too close to the snack? I must admit I struggle to resist the warm bacon rolls when they come around and I've had an early breakfast, this is something I can cut out. However eating carb free is very difficult whan you work in town and rely on Pret/Eat/Subway etc!
My main concern is when I'm high getting my BG down seems difficult. This morning I woke up with a BG of 18!! I had gone to bed with a BG of 9. So I may have gone low overnight, but I adjusted for it with a +6. At 1pm my BG was still 10.
I feel I've lost control. I know if I went back to fixed meals/times it would be easier, but thats the whole reson I went on DAFNE - to cope with my work/lifestyle.
 
Feb 28, 2012
novorapidboi26 1,819 posts

Topic: General Discussion / Benefit of after midnight diary settings.

Garry said:
Have been controlling this by a little lie to myself...whenever I see 23:55 as a time I know that I was late to bed.
Surprising number of 23:55s over the years Embarassed
Thanks for reminding me about this.
I did discover the diary modification option a while ago but had got used to my existing system and so have not used it.
Regards
Garry



This is how I overcame the problem before discovering it also......... Laughing
 
Feb 28, 2012
Garry 328 posts

Topic: General Discussion / Benefit of after midnight diary settings.

Have been controlling this by a little lie to myself...whenever I see 23:55 as a time I know that I was late to bed.
Surprising number of 23:55s over the years Embarassed
Thanks for reminding me about this.
I did discover the diary modification option a while ago but had got used to my existing system and so have not used it.
Regards
Garry
 
Feb 28, 2012
novorapidboi26 1,819 posts

Topic: General Discussion / New Needles

Carbtastic said:
Also, you can inject into your upper arms with them which you are not meant to do with anything above 4mm. This is much more convenient sometimes i find.



Eh?

I use 8mm needles and regularly use my arms, however I wouldn't describe it as the upper arm, but the subcutaneous tissue above the tricep muscle........is this the area you are referring to......?

And if so, what is the significance of needle depth and this location....?
 
Feb 28, 2012
novorapidboi26 1,819 posts

Topic: General Discussion / Benefit of after midnight diary settings.

I also use this facility, everything up until 1:00am stay on the same page............ Wink
 
Feb 28, 2012
novorapidboi26 1,819 posts

Topic: General Discussion / Insulin pumps in Scotland

How do you get on the waiting list..............?

I would imagine you would need to be backed by a consultant or nurse............are you?
 
Feb 28, 2012
Carbtastic 8 posts

Topic: General Discussion / New Needles

i have changed to 4mm needles too and think they are great. Also, you can inject into your upper arms with them which you are not meant to do with anything above 4mm. This is much more convenient sometimes i find.
 
Feb 28, 2012
thebatoutofhull 60 posts

Topic: General Discussion / Benefit of after midnight diary settings.

Any blood test result after midnight goes on to the chart for the next day.

I have just discovered a setting that allows you to change the time your diary day ends. So no more split charts!

This is brilliant for me!

1/ go to your diary.
2/ scroll to the bottom then click "click here to edit your diary settings" this is in blue.
3/ A heading of "blood glucose diary settings" will come up.
4/ Look for "diary day ends at"
5/ Use the input box to add your new time.

I can use this as well when I am abroad and have to allow for the time difference.
There are other settings here which you can change as well.

If you know this already then you're my granny and here are the eggs.
 
Feb 28, 2012
Carbtastic 8 posts

Topic: General Discussion / Insulin pumps in Scotland

I think Nicola Sturgeon closed the waiting lists a few years ago which i was mad about (even though i don think i want a pump) but it seems now they are open again? I cant see them becoming available any time soon though Sad
 
Feb 28, 2012
gills29 5 posts

Topic: General Discussion / Insulin pumps in Scotland

It was in the news last night - http://www.diabetes.org.uk/About_us/News_Landing_Page/Scottish-Government-announces-insulin-pump-investment/

They are planning on providing them to children first but will make more available to adults over time. The east of Scotland (well anywhere not in the Greater Glasgow area!) seems to have more pumps available (prior to this announcement). There are only 21 pumps, all allocated to children - which is great for them, not so much for us over 18. Hopefully this announcement will make them adjust their estimated figures for the next few years! - http://www.scotland.gov.uk/Publications/2010/08/17095311/10

Either way I feel a round of letter writing coming on, if only to get them to open the waiting list so I can get on it!