Recent Posts - DAFNE Online

Jul 16, 2019

marke 681 posts

Topic: Site Development / DAFNE Online App Missing From Android App Store

The point of it being on the front page was we do plan to re-do it and get it on there again. Unfortunately we do it in a spare time and although I have the source code for the original app it no longer works with Android which is part of the reason it disappeared from the App Store. Hopefully I will soon get time to learn how to update it to the new standard approach for android apps, I can then get it re-published. I will of course let everyone know once it is re-released.

Jul 13, 2019

BryonyE 2 posts

Topic: Site Development / DAFNE Online App Missing From Android App Store

Thanks for fixing this Simon - really appreciate it!

Jul 12, 2019

JayBee 587 posts

Topic: Site Development / Deleting entire BG diary option request

Thank you.

Jul 12, 2019

Simon 578 posts

Topic: Site Development / Deleting entire BG diary option request

Thanks for the confirmation - I have deleted all of your entries.

Jul 12, 2019

JayBee 587 posts

Topic: Site Development / Deleting entire BG diary option request

Yes, I would like my BG diary deleted please.

I've taken a backup already too so I will be okay if I need to refer to the entries again. Thanks for allowing users to create backup files and do a bulk backup.

Jul 12, 2019

JayBee 587 posts

Topic: Site Development / DAFNE Online App Missing From Android App Store

What's the point of the Android store link on the homepage if the app isn't on the store anymore?

Jul 12, 2019

Simon 578 posts

Topic: Site Development / Deleting entire BG diary option request

Hi JayBee,

We will delete the entries for you - just one last confirmation, I know you posted about the Android app not uploading, this should be fixed now if you still want to use it. If not and you still want them deleted just reply confirming that and I'll do it for you.

Simon

Jul 12, 2019

JayBee 587 posts

Topic: Site Development / Deleting entire BG diary option request

Yes, it is a lot of hassle. You're still ticking one entry at a time. As I said, I have years of entries to remove.

Personal data reasons mostly. Plus done with waiting for the Android app to be sorted out.

I want to keep my account since I still practice DAFNE, but my diary I want wiped please.

Jul 11, 2019

Simon 578 posts

Topic: Site Development / Deleting entire BG diary option request

Hi Jaybee,

If you're looking at your diary on the site there's a tick box next to the time on each entry for you to select them individually and then click the option at the bottom to bulk delete them. If that's too much hassle then let us know and we can do it for you at our end.

Out of interest why do you want to delete them? Are you moving away from the site?

Thanks,

Simon

Jul 10, 2019

JayBee 587 posts

Topic: Site Development / Deleting entire BG diary option request

Hi DAFNE Online Staff,

I was wanting to delete my entire BG diary, but you have it only set up so that individual entries can be deleted at the moment. I have years' worth of entries I want to delete.

Could you delete my BG diary for me, or add an option where someone can select all and delete all selected entries themselves?

Thanks in advance.

Jul 7, 2019

Martin Brown 2 posts

Topic: Carbohydrate Counting / Spinach soup

How many carbs are there in a typical bowl of spinach soup Question

Jul 4, 2019

Simon 578 posts

Topic: Site Development / DAFNE Online App Missing From Android App Store

Hi,

Unfortunately the person who maintained the Android version of the app is no longer able to develop it so there won't be any new versions unless we get a willing volunteer to help out with that.

We made a change to the site yesterday which meant that the URLs to DAFNE Online were no longer valid in the Android app - I have just reversed these so you should now be able to upload from the DAFNE Android App.

Thanks,

Simon

Jul 3, 2019

BryonyE 2 posts

Topic: Site Development / DAFNE Online App Missing From Android App Store

Yes, I'm interested to know about this too - it's been showing as 'app failed' and my diary entries haven't synced here since yesterday afternoon. Is there a fix on the way please? I've only had to use the online function once to email my diabetes nurse but it was really helpful! At least it's still saving locally on my phone - for now...

Jul 2, 2019

JayBee 587 posts

Topic: General Discussion / Bed wetting

Hope the GP was able to help you out. Sad

Jul 2, 2019

JayBee 587 posts

Topic: Site Development / DAFNE Online App Missing From Android App Store

Does anyone know if or when the Android version of the DAFNE Online App will return?
I still have it installed but it will no longer allow me to use the services this site provides through the app (such as diary uploading).
I'm guessing this has happened because of Google removing it from the app store since there's nothing here about it being removed intentionally... Confused

Jul 2, 2019

Simon 578 posts

Topic: Site Development / LibreLink + DAFNE App

Hi Alex,

I'm not a Libre user myself - rather have a Dexcom. Does Librelink save BG entries to Apple Health? I'm assuming you'd like your libre entries to appear in the DAFNE Online app so you can upload them here?

If it does save to Apple Health then we can look at implementing something which would read from the Health app.

Simon

Jun 30, 2019

Alex E 1 post

Topic: Site Development / LibreLink + DAFNE App

Is there any way to get the data from the DAFNE app to show in LibreLink - rather than entering all the data in both apps.... ?

Jun 28, 2019

outdoorsteve 5 posts

Topic: General Discussion / Bed wetting

Hi sjohno, I had a hypo before dinner and couldn't do a correction according to the DAFNE guidelines.
My glucose levels are always erratic either too high or low. I am at the DAFNE catch up on tuesday .
I've booked in to see my GP this morning also.
Thank you for your reply.
Regards
outdoorsteve

Jun 28, 2019

sjohno 37 posts

Topic: General Discussion / Bed wetting

outdoorsteve said:
Does anyone experience bed wetting in their sleep due to their diabetes.
I wet the bed during the night and when I went to bed I was 19.1at dinner. My blood glucose has always been erratic and now I feel embarrassed for wetting the bed.

Hi outdoorsteve

Generally how is your diabetes control?
Were you 19.1 at dinner time or bed time? Did you correct the 19.1 at either times?

I would respectfully suggest that you make an appointment with your Doctor and have a chat.

regards
sjohno

Jun 28, 2019

outdoorsteve 5 posts

Topic: General Discussion / Bed wetting

Does anyone experience bed wetting in their sleep due to their diabetes.
I wet the bed during the night and when I went to bed I was 19.1at dinner. My blood glucose has always been erratic and now I feel embarrassed for wetting the bed.

Jun 27, 2019

HelenP 218 posts

Topic: General Discussion / infusion set issues

Thanks, Marke. That is what I understand also, but it is very frustrating and to his credit the endocrinologist registers that for me it is a problem and probably accounts for at least some of my HbA1c (hovers around 7.0). We have tried flooding the site with a breakfast dose (to clear it) but I then get into trouble as the actual dose getting through is difficult to assess. I have also tried injecting for a breakfast dose. I have been a diabetic for over 40 years so there have been a lot of injections before the pump as well. Helen

Jun 27, 2019

marke 681 posts

Topic: General Discussion / infusion set issues

sorry to disappoint you , but I have used the quick set for about 3 years ( my pump is due for replacement at the end of the year and they change them in the UK every 3 years) and I tend to get an increase in BG when I change the set. Not as big a rise as you but definitely a non-normal rise. This I believe is what you would expect to happen. This is because when you insert it, it drip feeds insulin into you. This insulin needs to pass through tissue to reach the blood and become effective. With injections you put a relatively large dose in all at once and it does the same thing, but because the pump only puts small amounts in, there is less of an 'absorption' area so it takes a while to create a 'flow' from the set to the blood. In an ideal world you wouldn't change the sets and the flow would always be there. Sadly this is not possible as people who inject manually know, the area of injection hardens and if you use the same sites for injection they become less effective, the same is true of pumps. One day they will probably work a way around this if stem cell research doesn't make it all redundant, we can only hope Very Happy

Jun 25, 2019

marke 681 posts

Topic: Site Development / Spammers

Hi Torana, You seem to have a fundamental misunderstanding about the site. It is NOT run by the DAFNE Programme but independently by two people i.e Simon and myself. This latest mass attack of SPAM occurred when we were both on holiday and so we could do little about it. I am now back and have removed all of the SPAM from the forums.
The difficulty is how do we stop it. It is not automated as they have to register an account by making a number of selections. We could insist on an email verification when signing up but this has a number of issues. I won't bore you with them as they are very technical but its hard to block people on that basis. I have thought about blocking normal 'users' that don't have a centre code but we don't want to bar any diabetics with a real need for help or advice. My only hope is a more intelligent blocking mechanism but that will take time to design and implement. Believe me it is as annoying for us as it is you. However unless somebody finds a big pot of money somewhere and given its the NHS and home users not very likely we are just going to have to live with it until they get bored.

Jun 20, 2019

HelenP 218 posts

Topic: General Discussion / infusion set issues

Hi, I have been on a pump now for about 10 years (on my 4th or 5th pump). When I was initially put on a pump the Diabetic Educator put me onto a manual insertion infusion set as I was not needle phobic. I accepted this and have continued to use this or latterly the Medtronic equivalent. Searching the Medtronic site I came across advice that the infusion set I am using (Silhouette paradigm) is designed for young, lean or athletic frame. I am not young, athletic nor lean...

I experience a rise in BG immediately after the change of sets.. Advice to date has been deal with evening meal (6:00pm) and then after about an hour change the infusion set and do not eat anything until morning. If you wake (which I often do) correct then and hopefully it will be almost back in range for breakfast. So before meal it can be around 7, deal with dinner and it can be 9 after an hour or so. Change the set and then at midnight it can be 16...if it is over 15 I usually inject as I need to have it come down, but sometimes the system clears itself and the pump can suspend before I wake. Is the fact that it is unreliable for about 12 hours out of 72 good enough? Similarly if I let the infusion set go for the full three days BG often starts to slowly rise. This I believe is because the site is healing over.
On my own volition I have now changed to the recommended infusion set for the non young, non lean, non athletic and experienced some (little) success but it is probably too early to tell. Any advice? I am now using the Mini-med quick set (manually inserted).
Helen

Jun 19, 2019

novorapidboi26 1,819 posts

Topic: General Discussion / Dismal Hba1c levels

My qualifications is that I've spent many years on a mixed insulin and failed and spent many years using DAFNE and succeeded....now pumping...

I didn't mean to come across aggressive or anything...I just believe that if you understand your own control you can pin point what exactly is causing the issues..

Getting it right during the actual course is not likely.....unless you had been already doing something similar before hand....as you came from a mixed regime that hadn't happened....

Now a mixed insulin is suitable for some...but if you want the flexibility of being able to eat what you want when you want....drink alcohol, excercise...all while maintaining good control with a decent HbA1c....DAFNE is the first step to that goal....

The basics principles stayed the same but my approach and tactics all changes to suit my needs....this needs to happen for you to....

You talk about insulins being responsible....but there are different ones to try that are still basal/bolus....the only difference from your previous stuff is that it's been seperated....to allow you to adjust them independently of each other....it's simple maths and logic...

What was your best HB on the mix and what did you eat?

Are you on a split dose of basal and if so are the doses correct...?

Jul 16, 2019 marke 681 posts	Topic: Site Development / DAFNE Online App Missing From Android App Store The point of it being on the front page was we do plan to re-do it and get it on there again. Unfortunately we do it in a spare time and although I have the source code for the original app it no longer works with Android which is part of the reason it disappeared from the App Store. Hopefully I will soon get time to learn how to update it to the new standard approach for android apps, I can then get it re-published. I will of course let everyone know once it is re-released.

Jul 13, 2019 BryonyE 2 posts	Topic: Site Development / DAFNE Online App Missing From Android App Store Thanks for fixing this Simon - really appreciate it!

Jul 12, 2019 JayBee 587 posts	Topic: Site Development / Deleting entire BG diary option request Thank you.

Jul 12, 2019 Simon 578 posts	Topic: Site Development / Deleting entire BG diary option request Thanks for the confirmation - I have deleted all of your entries.

Jul 12, 2019 JayBee 587 posts	Topic: Site Development / Deleting entire BG diary option request Yes, I would like my BG diary deleted please. I've taken a backup already too so I will be okay if I need to refer to the entries again. Thanks for allowing users to create backup files and do a bulk backup.

Jul 12, 2019 JayBee 587 posts	Topic: Site Development / DAFNE Online App Missing From Android App Store What's the point of the Android store link on the homepage if the app isn't on the store anymore?

Jul 12, 2019 Simon 578 posts	Topic: Site Development / Deleting entire BG diary option request Hi JayBee, We will delete the entries for you - just one last confirmation, I know you posted about the Android app not uploading, this should be fixed now if you still want to use it. If not and you still want them deleted just reply confirming that and I'll do it for you. Simon

Jul 12, 2019 JayBee 587 posts	Topic: Site Development / Deleting entire BG diary option request Yes, it is a lot of hassle. You're still ticking one entry at a time. As I said, I have years of entries to remove. Personal data reasons mostly. Plus done with waiting for the Android app to be sorted out. I want to keep my account since I still practice DAFNE, but my diary I want wiped please.

Jul 11, 2019 Simon 578 posts	Topic: Site Development / Deleting entire BG diary option request Hi Jaybee, If you're looking at your diary on the site there's a tick box next to the time on each entry for you to select them individually and then click the option at the bottom to bulk delete them. If that's too much hassle then let us know and we can do it for you at our end. Out of interest why do you want to delete them? Are you moving away from the site? Thanks, Simon

Jul 10, 2019 JayBee 587 posts	Topic: Site Development / Deleting entire BG diary option request Hi DAFNE Online Staff, I was wanting to delete my entire BG diary, but you have it only set up so that individual entries can be deleted at the moment. I have years' worth of entries I want to delete. Could you delete my BG diary for me, or add an option where someone can select all and delete all selected entries themselves? Thanks in advance.

Jul 7, 2019 Martin Brown 2 posts	Topic: Carbohydrate Counting / Spinach soup How many carbs are there in a typical bowl of spinach soup

Jul 4, 2019 Simon 578 posts	Topic: Site Development / DAFNE Online App Missing From Android App Store Hi, Unfortunately the person who maintained the Android version of the app is no longer able to develop it so there won't be any new versions unless we get a willing volunteer to help out with that. We made a change to the site yesterday which meant that the URLs to DAFNE Online were no longer valid in the Android app - I have just reversed these so you should now be able to upload from the DAFNE Android App. Thanks, Simon

Jul 3, 2019 BryonyE 2 posts	Topic: Site Development / DAFNE Online App Missing From Android App Store Yes, I'm interested to know about this too - it's been showing as 'app failed' and my diary entries haven't synced here since yesterday afternoon. Is there a fix on the way please? I've only had to use the online function once to email my diabetes nurse but it was really helpful! At least it's still saving locally on my phone - for now...

Jul 2, 2019 JayBee 587 posts	Topic: General Discussion / Bed wetting Hope the GP was able to help you out.

Jul 2, 2019 JayBee 587 posts	Topic: Site Development / DAFNE Online App Missing From Android App Store Does anyone know if or when the Android version of the DAFNE Online App will return? I still have it installed but it will no longer allow me to use the services this site provides through the app (such as diary uploading). I'm guessing this has happened because of Google removing it from the app store since there's nothing here about it being removed intentionally...

Jul 2, 2019 Simon 578 posts	Topic: Site Development / LibreLink + DAFNE App Hi Alex, I'm not a Libre user myself - rather have a Dexcom. Does Librelink save BG entries to Apple Health? I'm assuming you'd like your libre entries to appear in the DAFNE Online app so you can upload them here? If it does save to Apple Health then we can look at implementing something which would read from the Health app. Simon

Jun 30, 2019 Alex E 1 post	Topic: Site Development / LibreLink + DAFNE App Is there any way to get the data from the DAFNE app to show in LibreLink - rather than entering all the data in both apps.... ?

Jun 28, 2019 outdoorsteve 5 posts	Topic: General Discussion / Bed wetting Hi sjohno, I had a hypo before dinner and couldn't do a correction according to the DAFNE guidelines. My glucose levels are always erratic either too high or low. I am at the DAFNE catch up on tuesday . I've booked in to see my GP this morning also. Thank you for your reply. Regards outdoorsteve

Jun 28, 2019 sjohno 37 posts	Topic: General Discussion / Bed wetting outdoorsteve said: Does anyone experience bed wetting in their sleep due to their diabetes. I wet the bed during the night and when I went to bed I was 19.1at dinner. My blood glucose has always been erratic and now I feel embarrassed for wetting the bed. Hi outdoorsteve Generally how is your diabetes control? Were you 19.1 at dinner time or bed time? Did you correct the 19.1 at either times? I would respectfully suggest that you make an appointment with your Doctor and have a chat. regards sjohno

Jun 28, 2019 outdoorsteve 5 posts	Topic: General Discussion / Bed wetting Does anyone experience bed wetting in their sleep due to their diabetes. I wet the bed during the night and when I went to bed I was 19.1at dinner. My blood glucose has always been erratic and now I feel embarrassed for wetting the bed.

Jun 27, 2019 HelenP 218 posts	Topic: General Discussion / infusion set issues Thanks, Marke. That is what I understand also, but it is very frustrating and to his credit the endocrinologist registers that for me it is a problem and probably accounts for at least some of my HbA1c (hovers around 7.0). We have tried flooding the site with a breakfast dose (to clear it) but I then get into trouble as the actual dose getting through is difficult to assess. I have also tried injecting for a breakfast dose. I have been a diabetic for over 40 years so there have been a lot of injections before the pump as well. Helen

Jun 27, 2019 marke 681 posts	Topic: General Discussion / infusion set issues sorry to disappoint you , but I have used the quick set for about 3 years ( my pump is due for replacement at the end of the year and they change them in the UK every 3 years) and I tend to get an increase in BG when I change the set. Not as big a rise as you but definitely a non-normal rise. This I believe is what you would expect to happen. This is because when you insert it, it drip feeds insulin into you. This insulin needs to pass through tissue to reach the blood and become effective. With injections you put a relatively large dose in all at once and it does the same thing, but because the pump only puts small amounts in, there is less of an 'absorption' area so it takes a while to create a 'flow' from the set to the blood. In an ideal world you wouldn't change the sets and the flow would always be there. Sadly this is not possible as people who inject manually know, the area of injection hardens and if you use the same sites for injection they become less effective, the same is true of pumps. One day they will probably work a way around this if stem cell research doesn't make it all redundant, we can only hope

Jun 25, 2019 marke 681 posts	Topic: Site Development / Spammers Hi Torana, You seem to have a fundamental misunderstanding about the site. It is NOT run by the DAFNE Programme but independently by two people i.e Simon and myself. This latest mass attack of SPAM occurred when we were both on holiday and so we could do little about it. I am now back and have removed all of the SPAM from the forums. The difficulty is how do we stop it. It is not automated as they have to register an account by making a number of selections. We could insist on an email verification when signing up but this has a number of issues. I won't bore you with them as they are very technical but its hard to block people on that basis. I have thought about blocking normal 'users' that don't have a centre code but we don't want to bar any diabetics with a real need for help or advice. My only hope is a more intelligent blocking mechanism but that will take time to design and implement. Believe me it is as annoying for us as it is you. However unless somebody finds a big pot of money somewhere and given its the NHS and home users not very likely we are just going to have to live with it until they get bored.

Jun 20, 2019 HelenP 218 posts	Topic: General Discussion / infusion set issues Hi, I have been on a pump now for about 10 years (on my 4th or 5th pump). When I was initially put on a pump the Diabetic Educator put me onto a manual insertion infusion set as I was not needle phobic. I accepted this and have continued to use this or latterly the Medtronic equivalent. Searching the Medtronic site I came across advice that the infusion set I am using (Silhouette paradigm) is designed for young, lean or athletic frame. I am not young, athletic nor lean... I experience a rise in BG immediately after the change of sets.. Advice to date has been deal with evening meal (6:00pm) and then after about an hour change the infusion set and do not eat anything until morning. If you wake (which I often do) correct then and hopefully it will be almost back in range for breakfast. So before meal it can be around 7, deal with dinner and it can be 9 after an hour or so. Change the set and then at midnight it can be 16...if it is over 15 I usually inject as I need to have it come down, but sometimes the system clears itself and the pump can suspend before I wake. Is the fact that it is unreliable for about 12 hours out of 72 good enough? Similarly if I let the infusion set go for the full three days BG often starts to slowly rise. This I believe is because the site is healing over. On my own volition I have now changed to the recommended infusion set for the non young, non lean, non athletic and experienced some (little) success but it is probably too early to tell. Any advice? I am now using the Mini-med quick set (manually inserted). Helen

Jun 19, 2019 novorapidboi26 1,819 posts	Topic: General Discussion / Dismal Hba1c levels My qualifications is that I've spent many years on a mixed insulin and failed and spent many years using DAFNE and succeeded....now pumping... I didn't mean to come across aggressive or anything...I just believe that if you understand your own control you can pin point what exactly is causing the issues.. Getting it right during the actual course is not likely.....unless you had been already doing something similar before hand....as you came from a mixed regime that hadn't happened.... Now a mixed insulin is suitable for some...but if you want the flexibility of being able to eat what you want when you want....drink alcohol, excercise...all while maintaining good control with a decent HbA1c....DAFNE is the first step to that goal.... The basics principles stayed the same but my approach and tactics all changes to suit my needs....this needs to happen for you to.... You talk about insulins being responsible....but there are different ones to try that are still basal/bolus....the only difference from your previous stuff is that it's been seperated....to allow you to adjust them independently of each other....it's simple maths and logic... What was your best HB on the mix and what did you eat? Are you on a split dose of basal and if so are the doses correct...?