Recent Posts - DAFNE Online

Feb 10, 2020

Neil_Johnson 7 posts

Topic: Site Development / Site Development

Hi Torana, thanks very much for your reply. Yes, i am surprised there is a lack of activity. It was presented to us during the course as being a place that we can come to share problems etc. I have joined Freestyle Libre groups on Facebook but the comments on there are mostly by people who haven't completed the DAFNE course, so they are unenlightened! I was also surprised that there isn't a DAFNE group on facebook, maybe having that could promote this site and forum more and reconnect graduates who have lost contact since the course?

Feb 10, 2020

torana 53 posts

Topic: Site Development / Site Development

Hi Neil,
I am very impressed by your enthusiasm and suggestions to make the DAFNE website more user friendly for everyone. We have had recently a number of new users interested in improving our site. Yes it is very sad the huge amount of ex DAFNE graduates who never comeback to our site and just disappear into the abyss. Suggestions to improve our site need to be taken seriously to minimise the loss of first timers who never reappear.
It would also be a wonderful opportunity at the start of the new year to invite all members to make positive comments and suggestions on how to improve the forum pages. Why not make this our major goal/outcome for 2020 with a major heading.? Another suggestion may be to improve the italics to modernise the site.

It has been stated beforehand that there is no relationship between DAFNE central, that is the DAFNE courses provided in hospitals, and the forum pages voluntarily run by yourselves. In fact, I find this surprising and implausible due to the fact the DAFNE logo is used by both entities yet there appears to be a lack of communication, funding etc between the two organisations. This is a terrible shame for the forum with the thousands of past users and past participants listed on your website yet the apparent lack of communication, coordination, contact or funding between DAFNE central and this forum. Something must be done to improve this site for the benefit of all members.

Feb 9, 2020

Neil_Johnson 7 posts

Topic: Site Development / Site Development

Hi Simon, the forum doesn't seem to be very active at the moment. Hopefully people can start to share their problems/achievements etc on here.

I think the main website could do with more graphics/photos.

Feb 9, 2020

Neil_Johnson 7 posts

Topic: General Discussion / Eating round of toast before bed

If you are eating the toast to help avoid the lows in bed then i definitely wouldn't take any QA insulin.

Feb 9, 2020

Neil_Johnson 7 posts

Topic: General Discussion / Eating round of toast before bed

Hi Chris, I've only just completed the DAFNE course. I wouldn't take any QA for less than 1.5 CP. What night time BI do you take?

Feb 6, 2020

Chris1954 2 posts

Topic: General Discussion / Eating round of toast before bed

Thank you Michaelj.

Feb 3, 2020

michaelj 45 posts

Topic: General Discussion / Eating round of toast before bed

I have similar problems to you ref blood sugars at night. If I go to bed with a BG of less than 9 I stand a good chance of being low during the night with the resulting high during the next day. Personally I always have a supper which may be a weetabix or a couple of digestive biscuits. I would try a digestive 0.9 carbs or a slice of toast and see how you go. Personally I woudn't bother with 1 unit bolus as I don't think it would make a lot of difference. You may record a higher morning reading but at least it would help to avoid hypo's at night.

Feb 2, 2020

malvb 1 post

Topic: DAFNE Online Mobile / Dafne app on android

Any news on the DAFNE app for Android users, please?

Jan 28, 2020

Chris1954 2 posts

Topic: General Discussion / Eating round of toast before bed

Hi all, I have been using the FreeStyle Libra for about 3 weeks. I can see from the chart that although I can go to bed with sugars over 8 I am sometimes having night time lows which do not always wake me up. I usually do not have a snack before bed and maybe I need too as by bedtime my Bolus is through and my BI takes over. I have tried reducing my evening BI by 1 unit but was then highish in the morning. My question is if I had a round of whole meal toast (10g) before bed would I need to give 1 unit of insulin for it? Thank you in advance.

Jan 2, 2020

Warwick 434 posts

Topic: Questions ? / High BG levels

It is interesting that your correction factor seems to be perfect for correcting the morning readings and getting within the target range for lunchtime, but your evening corrections don't seem to have the same effect as in the morning

What time do you take the steroids? Just thinking that that may affect your correctional ratio depending on the time of day that it is taken. Of course, ideally, you'd like to avoid the need to take correctional doses several times every day, so it is likely that your basal insulin needs to be increased. The book "Think Like a Pancreas" mentions that some T1Ds need to increase their basal dosage by up to 25% when switching to Levemir. I'm not suggesting that you do that immediately, but using DAFNE principles, perhaps look at increasing your basal insulin by 10% for 3 days, and increasing it further if warranted.

All the best with it.

Dec 31, 2019

marke 655 posts

Topic: Site Development / E-Petitioln

Hi, temporarily changed until a formal update. We use a system called Ruby-on-Rails which is sort of a content management system but not exactly that. It will disappear in a formal update.

Dec 31, 2019

torana 53 posts

Topic: Site Development / E-Petitioln

Hi Whitaker,
I am very impressed by your enthusiasm and suggestions to make the DAFNE website more user friendly for everyone.
I believe many DAFNE users relate to your comments regarding outdated threads needing to be fixed up to make a relevant website. It’s great Marke’s comments to fix up the web pages in the new year. It would also be a wonderful opportunity at the start of the new year to invite all members to make positive comments and suggestions on how to improve the forum pages.
Firstly, you mention the problem with threads. I would like to again restate the amount of spam on this site that has been on the forum pages. This spam destroys forum communication and also leaves confusing deleted threads left on the page.
Secondly, the DAFNE front page should state unequivocally that there is no relationship between DAFNE central, that is the DAFNE that provides courses in hospitals, and the forum pages voluntarily run by Marke. In fact, I find this surprising and confusing due to the fact the DAFNE logo is used by both entities yet there appears to be a lack of communication, funding etc between the two organisations. This forum is a mirror to DAFNE run in the hospital, with thousands of users and past participants listed on your website yet it is baffling the apparent lack of communication, coordination, contact or funding between DAFNE central and this forum that seemingly runs on an oily rag.
Hoping everyone has a safe and healthy new year, 2020

Dec 29, 2019

Whitaker 4 posts

Topic: Site Development / E-Petitioln

Thanks Marke, that's all I was asking for. Having been in IT for 40+ years, I'm well aware of the problems, and if nobody points thingd out then they might never get fixed. Timely and relevant information is so important for websites, so Ilook forward to the revised page. If you have a content management system then it should be a simple change, but even in HTML it should be a dead simple text edit. Thanks for responding and Happy New Year. Very Happy

Dec 29, 2019

marke 655 posts

Topic: Site Development / E-Petitioln

Hi, sorry yes we DO intend to fix it, the problem is when you manage the site you miss the obvious things :-( We need to update the front page soon anyway so I will ensure it does get fixed then !!

Dec 29, 2019

marke 655 posts

Topic: Questions ? / High BG levels

Hi, Would just like to echo torana's comments. I too was on Prednisolone for some time and it screwed my BG completely. It also caused my first ambulance call, that was when I came off them and no one told me to watch out for sharp drops in BG !! so watch out for that when you come off them. I found it hard to control my BG's when in Steroids because food would have a bigger more random effect on me i.e the size of portions would push up my BG's a lot more and I found it harder to get them back down. I agree you should be getting MORE help. I am surprised you are not getting it to be honest as I have found London hospitals have more resources and are able to do more with their patients. I think you should try speaking to them and see what help they can provide. MAaybe they could prescribe an abbott Libre sensor kit to help you monitor and manage your BG's more thoroughly when on Steroids. That is of course if YOU want to do that, we can only offer opinions its up to you what you do about it. I appreciate that not everyone likes hospitals or dealing with HCP's :-)

Dec 24, 2019

torana 53 posts

Topic: Questions ? / High BG levels

Hi Holly, I empathise with your situation and the bg’s are certainly high. I have Crohn’s and diabetes so have been on prednisone a few times with insulin. It can be very difficult to manage by yourself so the nurse/doctor must take on some of the responsibility for the changes in your bg’s. One consultation certainly isn’t enough! I would ring the hospital straight away and explain these massive changes after being told to switch insulins. Also I would be concerned about your KETONES.. have you checked it? If not or you don’t have the strips it would be worthwhile to go to the doctors/hospital and explain what’s happening after the changes in medication and such high bg’s. Insulin diabetes is hard enough to manage without being thrown into the lions den and taking prednisone steroids. Please get help straight away so you can relax and enjoy the festive season.

Dec 19, 2019

Holly_hols 1 post

Topic: Questions ? / High BG levels

2 weeks ago I did the DAFNE course and during the course I had changed from tresiba to levermir basal insulin, during the course my blood glucose were good levels and never went above 14. However since then as my diary shows, my BG have been high and I'm not sure what to do!
I am on prednisolone steroids and have been for 9months, I know this is affecting my BG but I had my bloods stable during the course with the diabetic nurses help.
Not sure if it's my body adjusting to the Levemir now or what but no matter what I try my blood glucose keeps running high and I would like some help if anyone could please.

Dec 9, 2019

EdwardR 5 posts

Topic: Site Development / E-Petitioln

Looks like a molehill out of a molehill to me.. and you could just fix the page

Dec 5, 2019

sjohno 37 posts

Topic: Site Development / E-Petitioln

Whitaker

I think you are making a mountain out of a molehill. 🤷‍♀️

Feb 10, 2020 Neil_Johnson 7 posts	Topic: Site Development / Site Development Hi Torana, thanks very much for your reply. Yes, i am surprised there is a lack of activity. It was presented to us during the course as being a place that we can come to share problems etc. I have joined Freestyle Libre groups on Facebook but the comments on there are mostly by people who haven't completed the DAFNE course, so they are unenlightened! I was also surprised that there isn't a DAFNE group on facebook, maybe having that could promote this site and forum more and reconnect graduates who have lost contact since the course?

Feb 10, 2020 torana 53 posts	Topic: Site Development / Site Development Hi Neil, I am very impressed by your enthusiasm and suggestions to make the DAFNE website more user friendly for everyone. We have had recently a number of new users interested in improving our site. Yes it is very sad the huge amount of ex DAFNE graduates who never comeback to our site and just disappear into the abyss. Suggestions to improve our site need to be taken seriously to minimise the loss of first timers who never reappear. It would also be a wonderful opportunity at the start of the new year to invite all members to make positive comments and suggestions on how to improve the forum pages. Why not make this our major goal/outcome for 2020 with a major heading.? Another suggestion may be to improve the italics to modernise the site. It has been stated beforehand that there is no relationship between DAFNE central, that is the DAFNE courses provided in hospitals, and the forum pages voluntarily run by yourselves. In fact, I find this surprising and implausible due to the fact the DAFNE logo is used by both entities yet there appears to be a lack of communication, funding etc between the two organisations. This is a terrible shame for the forum with the thousands of past users and past participants listed on your website yet the apparent lack of communication, coordination, contact or funding between DAFNE central and this forum. Something must be done to improve this site for the benefit of all members.

Feb 9, 2020 Neil_Johnson 7 posts	Topic: Site Development / Site Development Hi Simon, the forum doesn't seem to be very active at the moment. Hopefully people can start to share their problems/achievements etc on here. I think the main website could do with more graphics/photos.

Feb 9, 2020 Neil_Johnson 7 posts	Topic: General Discussion / Eating round of toast before bed If you are eating the toast to help avoid the lows in bed then i definitely wouldn't take any QA insulin.

Feb 9, 2020 Neil_Johnson 7 posts	Topic: General Discussion / Eating round of toast before bed Hi Chris, I've only just completed the DAFNE course. I wouldn't take any QA for less than 1.5 CP. What night time BI do you take?

Feb 6, 2020 Chris1954 2 posts	Topic: General Discussion / Eating round of toast before bed Thank you Michaelj.

Feb 3, 2020 michaelj 45 posts	Topic: General Discussion / Eating round of toast before bed I have similar problems to you ref blood sugars at night. If I go to bed with a BG of less than 9 I stand a good chance of being low during the night with the resulting high during the next day. Personally I always have a supper which may be a weetabix or a couple of digestive biscuits. I would try a digestive 0.9 carbs or a slice of toast and see how you go. Personally I woudn't bother with 1 unit bolus as I don't think it would make a lot of difference. You may record a higher morning reading but at least it would help to avoid hypo's at night.

Feb 2, 2020 malvb 1 post	Topic: DAFNE Online Mobile / Dafne app on android Any news on the DAFNE app for Android users, please?

Jan 28, 2020 Chris1954 2 posts	Topic: General Discussion / Eating round of toast before bed Hi all, I have been using the FreeStyle Libra for about 3 weeks. I can see from the chart that although I can go to bed with sugars over 8 I am sometimes having night time lows which do not always wake me up. I usually do not have a snack before bed and maybe I need too as by bedtime my Bolus is through and my BI takes over. I have tried reducing my evening BI by 1 unit but was then highish in the morning. My question is if I had a round of whole meal toast (10g) before bed would I need to give 1 unit of insulin for it? Thank you in advance.

Jan 2, 2020 Warwick 434 posts	Topic: Questions ? / High BG levels It is interesting that your correction factor seems to be perfect for correcting the morning readings and getting within the target range for lunchtime, but your evening corrections don't seem to have the same effect as in the morning What time do you take the steroids? Just thinking that that may affect your correctional ratio depending on the time of day that it is taken. Of course, ideally, you'd like to avoid the need to take correctional doses several times every day, so it is likely that your basal insulin needs to be increased. The book "Think Like a Pancreas" mentions that some T1Ds need to increase their basal dosage by up to 25% when switching to Levemir. I'm not suggesting that you do that immediately, but using DAFNE principles, perhaps look at increasing your basal insulin by 10% for 3 days, and increasing it further if warranted. All the best with it.

Dec 31, 2019 marke 655 posts	Topic: Site Development / E-Petitioln Hi, temporarily changed until a formal update. We use a system called Ruby-on-Rails which is sort of a content management system but not exactly that. It will disappear in a formal update.

Dec 31, 2019 torana 53 posts	Topic: Site Development / E-Petitioln Hi Whitaker, I am very impressed by your enthusiasm and suggestions to make the DAFNE website more user friendly for everyone. I believe many DAFNE users relate to your comments regarding outdated threads needing to be fixed up to make a relevant website. It’s great Marke’s comments to fix up the web pages in the new year. It would also be a wonderful opportunity at the start of the new year to invite all members to make positive comments and suggestions on how to improve the forum pages. Firstly, you mention the problem with threads. I would like to again restate the amount of spam on this site that has been on the forum pages. This spam destroys forum communication and also leaves confusing deleted threads left on the page. Secondly, the DAFNE front page should state unequivocally that there is no relationship between DAFNE central, that is the DAFNE that provides courses in hospitals, and the forum pages voluntarily run by Marke. In fact, I find this surprising and confusing due to the fact the DAFNE logo is used by both entities yet there appears to be a lack of communication, funding etc between the two organisations. This forum is a mirror to DAFNE run in the hospital, with thousands of users and past participants listed on your website yet it is baffling the apparent lack of communication, coordination, contact or funding between DAFNE central and this forum that seemingly runs on an oily rag. Hoping everyone has a safe and healthy new year, 2020

Dec 29, 2019 Whitaker 4 posts	Topic: Site Development / E-Petitioln Thanks Marke, that's all I was asking for. Having been in IT for 40+ years, I'm well aware of the problems, and if nobody points thingd out then they might never get fixed. Timely and relevant information is so important for websites, so Ilook forward to the revised page. If you have a content management system then it should be a simple change, but even in HTML it should be a dead simple text edit. Thanks for responding and Happy New Year.

Dec 29, 2019 marke 655 posts	Topic: Site Development / E-Petitioln Hi, sorry yes we DO intend to fix it, the problem is when you manage the site you miss the obvious things :-( We need to update the front page soon anyway so I will ensure it does get fixed then !!

Dec 29, 2019 marke 655 posts	Topic: Questions ? / High BG levels Hi, Would just like to echo torana's comments. I too was on Prednisolone for some time and it screwed my BG completely. It also caused my first ambulance call, that was when I came off them and no one told me to watch out for sharp drops in BG !! so watch out for that when you come off them. I found it hard to control my BG's when in Steroids because food would have a bigger more random effect on me i.e the size of portions would push up my BG's a lot more and I found it harder to get them back down. I agree you should be getting MORE help. I am surprised you are not getting it to be honest as I have found London hospitals have more resources and are able to do more with their patients. I think you should try speaking to them and see what help they can provide. MAaybe they could prescribe an abbott Libre sensor kit to help you monitor and manage your BG's more thoroughly when on Steroids. That is of course if YOU want to do that, we can only offer opinions its up to you what you do about it. I appreciate that not everyone likes hospitals or dealing with HCP's :-)

Dec 24, 2019 torana 53 posts	Topic: Questions ? / High BG levels Hi Holly, I empathise with your situation and the bg’s are certainly high. I have Crohn’s and diabetes so have been on prednisone a few times with insulin. It can be very difficult to manage by yourself so the nurse/doctor must take on some of the responsibility for the changes in your bg’s. One consultation certainly isn’t enough! I would ring the hospital straight away and explain these massive changes after being told to switch insulins. Also I would be concerned about your KETONES.. have you checked it? If not or you don’t have the strips it would be worthwhile to go to the doctors/hospital and explain what’s happening after the changes in medication and such high bg’s. Insulin diabetes is hard enough to manage without being thrown into the lions den and taking prednisone steroids. Please get help straight away so you can relax and enjoy the festive season.

Dec 19, 2019 Holly_hols 1 post	Topic: Questions ? / High BG levels 2 weeks ago I did the DAFNE course and during the course I had changed from tresiba to levermir basal insulin, during the course my blood glucose were good levels and never went above 14. However since then as my diary shows, my BG have been high and I'm not sure what to do! I am on prednisolone steroids and have been for 9months, I know this is affecting my BG but I had my bloods stable during the course with the diabetic nurses help. Not sure if it's my body adjusting to the Levemir now or what but no matter what I try my blood glucose keeps running high and I would like some help if anyone could please.

Dec 9, 2019 EdwardR 5 posts	Topic: Site Development / E-Petitioln Looks like a molehill out of a molehill to me.. and you could just fix the page

Dec 5, 2019 sjohno 37 posts	Topic: Site Development / E-Petitioln Whitaker I think you are making a mountain out of a molehill. 🤷‍♀️