Recent Posts - DAFNE Online

May 1, 2019

jh0 16 posts

Topic: General Discussion / Dosage auto-calculation in apps

@John

People must realise that controlling their condition is very much a hands-on exercise, be it via DAFNE or otherwise. I can't exactly say that I'm proponent of such a device that spits out some values to deal with the condition willy nilly. Does the app take into consideration past glucose readings to suggest the next reading? It doubt it. It's not that smart. It's imperative that patients maintain their diaries of CP and BG readings and that they adjust the treatment of their condition on the fly, adaptively, using common sense. The App will never be that smart to do this automatically. Instead you have to plug in fixed values of CP ratios at different times of the day into the App etc.

Second if patients choose to remain illiterate then that's their problem. The App isn't helping here at all.
Now I can fully understand why the App isn't condoned by the medical institution.

Now, although the App can be extended in so many ways and made smarter, it could never reach the point of managing one's condition autonomously.

In one of my previous posts I have submitted a template of a DAFNE diary in the form of a spreadsheet which has the purpose of representing the maintenance of one's condition in a more lucid and transparent manner. It's an adaptation of the DAFNE diary. Patients would be well advised to use a diary of this kind instead, and work on their condition in a more hands-on manner using some common sense along the way.

NB. If anyone is looking for engineering advice on improving the App (considerably) then we can discuss it further.

May 1, 2019

John Syer 19 posts

Topic: General Discussion / Dosage auto-calculation in apps

jh0 said:
Could someone explain what the auto-calculation feature is?
I might be able to guess what it is, but it's imperative that you the patient maintain the oversight of managing your condition rather than some device throwing figures at you. I mean calculating CPs (adding up) along with determining the required insulin dosages (multiplication) isn't particularly difficult to do yourself.

Hi jh0,

This topic was started 3.5 years ago, so I'm not sure why you are adding to it now (unless it is to be inflammatory), but I'll jump in (rightly or wrongly) and "humor" you.

As you point out, the auto-calculation feature was simply doing the multiplication of CP by the ratio to get the QA value.
"... determining the required insulin dosages (multiplication) isn't particularly difficult to do yourself."
Hmmm, not so easy when I'm low (or high), or add the complication of having a different ratio for each meal. The auto-calculation feature provided some convenience and ease, coupled with checking that the good old mental maths and App agreed for some piece of mind.

Also, just to point out that the oversight has always been with the patient, this app has never interfaced with a pump - and the App is only as good as the data you give it. The patient CP estimation, or in your words "... calculating CPs (adding up) ...", is a far greater source of difficulty for most DAFNE practitioners that I know than performing simple multiplication. Who would have though that addition was harder than multiplication?

Regards, John

Apr 30, 2019

jh0 16 posts

Topic: General Discussion / Dosage auto-calculation in apps

Could someone explain what the auto-calculation feature is?
I might be able to guess what it is, but it's imperative that you the patient maintain the oversight of managing your condition rather than some device throwing figures at you. I mean calculating CPs (adding up) along with determining the required insulin dosages (multiplication) isn't particularly difficult to do yourself.

Apr 30, 2019

jh0 16 posts

Topic: General Discussion / DAFNE app for android

What are the functionalities of these Apps? What do these Apps actually do?
It's manages your diary and lists the CP quantities for portions of foods? What else?

Apr 28, 2019

sjohno 37 posts

Topic: General Discussion / Dismal Hba1c levels

torana said:
Hi sjohno
Your results are remarkable over such a long period of time and must have been a huge effort. Even more, it is both alarming and of utmost concern that your results are statistically better than 92% of Type1 diabetics in Britain!
You may have individualised your “normal eating” and routines over time but I wish you had been at my DAFNE course for advice that works!
Guidance for gaining long term low Hba1c results by what I deem “experts” like yourself would be of great benefit to the 92% of us out of range.

Hi torana

The DAFNE concepts suit my body, thinking, discipline and I like to think that I've streamlined it to suit my everyday life BUT it's not been easy Laughing

i.e. in November 2018 I broke my ankle, had to sit on my derriere for 6 weeks!! The battle was trying to sort out the BI and NovoRapid which took nearly 14 days to sort out and settle down Rolling Eyes

Apr 27, 2019

torana 53 posts

Topic: General Discussion / Dismal Hba1c levels

Hi sjohno
Your results are remarkable over such a long period of time and must have been a huge effort. Even more, it is both alarming and of utmost concern that your results are statistically better than 92% of Type1 diabetics in Britain!
You may have individualised your “normal eating” and routines over time but I wish you had been at my DAFNE course for advice that works!
Guidance for gaining long term low Hba1c results by what I deem “experts” like yourself would be of great benefit to the 92% of us out of range.

Apr 25, 2019

Hoddo 2 posts

Topic: DAFNE Online Mobile / Dafne app on android

Thanks for your reply Simon. Guess I'll have to be patient

Apr 25, 2019

Simon 578 posts

Topic: DAFNE Online Mobile / Incorrect data affecting downloading, esp middle data?

Hi Ivan, sorry I only just got round to responding to this - is your graduate still having issues? If so can you get them to email us at [email protected]

Apr 25, 2019

Simon 578 posts

Topic: DAFNE Online Mobile / Dafne app on android

Hi, unfortunately there isn't currently one available on the Google Play store - the previous version was developed by a volunteer (as it the rest of the site by MarkE and myself) who wasn't able to maintain it anymore. Mark is looking at developing a new version but he needs to teach himself Android development, as well as manage the site and his day job. I have experience with IOS and that's why that app is regularly updated. If anyone wants to help us out with Android app development we would be grateful for the support!

Apr 25, 2019

Simon 578 posts

Topic: General Discussion / DAFNE app for android

Hi, unfortunately there isn't currently one available on the Google Play store - the previous version was developed by a volunteer (as it the rest of the site by MarkE and myself) who wasn't able to maintain it anymore. Mark is looking at developing a new version but he needs to teach himself Android development, as well as manage the site and his day job. I have experience with IOS and that's why that app is regularly updated. If anyone wants to help us out with Android app development we would be grateful for the support!

Apr 25, 2019

Hoddo 2 posts

Topic: DAFNE Online Mobile / Dafne app on android

If the DAFNE app is unavailable for Android users can anyone recommend an equivalent Android app
Thanks

Apr 24, 2019

jh0 16 posts

Topic: General Discussion / Dismal Hba1c levels

There is no such thing as "true BG" readings. Perhaps you mean idle BG readings during fasting and running on background insulin alone.

If you are concerned about the overlap of carbs and insulin in the system from eating regularly then let me explain. By eating regularly this is not to say that you're munching constantly (like in snacking), but rather you are eating at least every two to three hours or so and eating less. I draw a distinction between this and eating heartily every 6 or more hours (the typical traditional meal times of b/fast, lunch and dinner).

Apr 24, 2019

sjohno 37 posts

Topic: General Discussion / Dismal Hba1c levels

I've been a T1 Diabetic for 40 years and became DAFNE educated in 2009. I'm on good old NovoRapid and Levemir.

Since completing DAFNE I have achieved a good level of Hba1c levels i.e. in April 2017 6.5, October 2017 6.3, Jun 2018 6.8 (this was due to being put on a TRUE Result BG meter) September 2018 6.3 (back on my Aviva after DAFNE writing a letter to my GP Practice). My next HBa1C will be in June 2019. Since 2010 I have regularly achieved between 6.3 and 6.5, my lowest was 5.9 in 2015.

I'm on good old insulin injected with a NovoPen, the Levemir is also in pen form.

Any food whether it be Simply, Essentials naturals, organics, home cooked, processed, vegan, low carb, low fat, low sugar etc etc foods will all contain some form of carbohydrate. Eating more often can result in more injections taken, not having true BG readings and not letting the insulin work in time for the pre food you've eaten.

I do try to eat healthily and attend 7 gym classes a week.

I think it all boils down to every T1 is different, how you get to learn your body and the curveballs it throws at you, how you wish to control, maintain and and look after everything. Very Happy

Apr 23, 2019

jh0 16 posts

Topic: General Discussion / Dismal Hba1c levels

Just one or two basic rules to your diet can go a long way to healthy eating.
1. Eliminate processed foods (the crap in plastic packaging). Focus on naturals, organics, home cooked meals. Don't buy "Simply" or "Essentials" brands from supermarkets - they are a false economy (not to mention very unhealthy albeit low in carbs too) Embarassed

2. Reduce the size of the meals but eat more often Cool

3. Try and avoid having dinner Very Happy

4. Eat (healthy) only when planning to do some exertion such as stepping out of the house, going to work or going out etc. The rest of the time you don't really need to eat. Shocked

Apr 23, 2019

novorapidboi26 1,819 posts

Topic: Questions for HCPs / Tresiba change

Its hard to say for you personally....

with any insulin change however you should be doing a full sweep of the dose adjusting till its correct.....

you wont get the flexibility of two injections as you will with one, but I assume you know that.....

Apr 23, 2019

novorapidboi26 1,819 posts

Topic: General Discussion / Dismal Hba1c levels

I personally believe to achieve in range, consistent Hb levels you need to possess a pump, libre or CGM and pro actively choose your meals wisely......

if not, then numbers can creep up.......

I personally know what I need to do to achieve good numbers, but thats what makes it hard.....the temptations and distractions of life...

Apr 23, 2019

novorapidboi26 1,819 posts

Topic: General Discussion / DAFNE app for android

Dont think there is an android version, or not anymore at least.....I remember having it though....

Apr 23, 2019

novorapidboi26 1,819 posts

Topic: General Discussion / Background insulin

Your background wont behave like the quick acting will and so no, it will not, or should not, effect your levels after carbs, provided its the correct dose that is....

You should always take your background insulin at the same times every day, as its required to hold you steady, in the absence of carbs/quick acting over the whole 24 hours...

Apr 22, 2019

Tanisha Johns 1 post

Topic: General Discussion / Effects of stress on blood glucose levels

I will give you a decent blessing to turn into a researcher and begin to think all the more successfully, similar to a star. Use https://tonusjournal.com/weight-loss-questions/get-rid-skin-after-weight-loss/ rather than some moronic drugs. It causes me actually. What's more, I think an expectation that it will be useful to you as well. Don't hesitate to send me a message.

Apr 17, 2019

Gdorean 3 posts

Topic: Questions for HCPs / Tresiba change

I've just switched from two Lantus injections per day to one of Tresiba. My question is this: I've been getting a lot of high blood sugars during the day and feeling rundown. When on Lantus, I took 16 at night and 12 in the morning. I am taking 22 units of Tresiba, as it was advised. Should I eventually be taking the same amount (2 Cool

of Tresiba, which I take in the morning?

Many thanks

Apr 16, 2019

torana 53 posts

Topic: Site Development / We're sorry, but something went wrong. We've been notified about this issue and we'll take a look at it shortly.

Hi Simon
Previously, I just went into the website through a bookmark and the error message appeared. I deleted the bookmark thinking that it would help and then started to type “DAFNE online” to bring up the forum page. The error message has still appeared. Basically, I have done nothing out of the usual or different in bringing up the forum page over the years being a member. It is the first such error I have ever received whilst searching any subject matter on the web.

Apr 16, 2019

Simon 578 posts

Topic: Site Development / We're sorry, but something went wrong. We've been notified about this issue and we'll take a look at it shortly.

Hi torana,

Sorry to hear that you've had that error - it shouldn't happen and it is correct in that something has gone wrong - could you let us know what you were doing on the site just before it was triggered?

Thanks,

Simon

Apr 16, 2019

NottsKnots 10 posts

Topic: Site Development / We're sorry, but something went wrong. We've been notified about this issue and we'll take a look at it shortly.

I did see it today when I retruned to a page that I had previously visited whilst logged on. I then logged back on and havent seen it since. Not sure about this site, but quite often that kind on message appears after a site update if your device hasnt got the latest updates (operating system or browser); the site updates tend to fix security flaws, and unless your device is up to date, you tend to get log-in related errors like that. Cant be sure thats your problem, but worth checking Smile

Apr 16, 2019

torana 53 posts

Topic: Site Development / We're sorry, but something went wrong. We've been notified about this issue and we'll take a look at it shortly.

Hi everyone,
Just recently I have had repeatedly a notice after logging onto the DAFNE website stating
“We're sorry, but something went wrong.
We've been notified about this issue and we'll take a look at it shortly.”

It is quite inconvenient after just logging onto the site and I was wondering if anyone else is receiving these messages.

Apr 14, 2019

Diaqueen 1 post

Topic: General Discussion / Background insulin

I have had a snack with cp of 6.5. I was wondering whether I need to take my usual 12 background insulin or reduce it.

May 1, 2019 jh0 16 posts	Topic: General Discussion / Dosage auto-calculation in apps @John People must realise that controlling their condition is very much a hands-on exercise, be it via DAFNE or otherwise. I can't exactly say that I'm proponent of such a device that spits out some values to deal with the condition willy nilly. Does the app take into consideration past glucose readings to suggest the next reading? It doubt it. It's not that smart. It's imperative that patients maintain their diaries of CP and BG readings and that they adjust the treatment of their condition on the fly, adaptively, using common sense. The App will never be that smart to do this automatically. Instead you have to plug in fixed values of CP ratios at different times of the day into the App etc. Second if patients choose to remain illiterate then that's their problem. The App isn't helping here at all. Now I can fully understand why the App isn't condoned by the medical institution. Now, although the App can be extended in so many ways and made smarter, it could never reach the point of managing one's condition autonomously. In one of my previous posts I have submitted a template of a DAFNE diary in the form of a spreadsheet which has the purpose of representing the maintenance of one's condition in a more lucid and transparent manner. It's an adaptation of the DAFNE diary. Patients would be well advised to use a diary of this kind instead, and work on their condition in a more hands-on manner using some common sense along the way. NB. If anyone is looking for engineering advice on improving the App (considerably) then we can discuss it further.

May 1, 2019 John Syer 19 posts	Topic: General Discussion / Dosage auto-calculation in apps jh0 said: Could someone explain what the auto-calculation feature is? I might be able to guess what it is, but it's imperative that you the patient maintain the oversight of managing your condition rather than some device throwing figures at you. I mean calculating CPs (adding up) along with determining the required insulin dosages (multiplication) isn't particularly difficult to do yourself. Hi jh0, This topic was started 3.5 years ago, so I'm not sure why you are adding to it now (unless it is to be inflammatory), but I'll jump in (rightly or wrongly) and "humor" you. As you point out, the auto-calculation feature was simply doing the multiplication of CP by the ratio to get the QA value. "... determining the required insulin dosages (multiplication) isn't particularly difficult to do yourself." Hmmm, not so easy when I'm low (or high), or add the complication of having a different ratio for each meal. The auto-calculation feature provided some convenience and ease, coupled with checking that the good old mental maths and App agreed for some piece of mind. Also, just to point out that the oversight has always been with the patient, this app has never interfaced with a pump - and the App is only as good as the data you give it. The patient CP estimation, or in your words "... calculating CPs (adding up) ...", is a far greater source of difficulty for most DAFNE practitioners that I know than performing simple multiplication. Who would have though that addition was harder than multiplication? Regards, John

Apr 30, 2019 jh0 16 posts	Topic: General Discussion / Dosage auto-calculation in apps Could someone explain what the auto-calculation feature is? I might be able to guess what it is, but it's imperative that you the patient maintain the oversight of managing your condition rather than some device throwing figures at you. I mean calculating CPs (adding up) along with determining the required insulin dosages (multiplication) isn't particularly difficult to do yourself.

Apr 30, 2019 jh0 16 posts	Topic: General Discussion / DAFNE app for android What are the functionalities of these Apps? What do these Apps actually do? It's manages your diary and lists the CP quantities for portions of foods? What else?

Apr 28, 2019 sjohno 37 posts	Topic: General Discussion / Dismal Hba1c levels torana said: Hi sjohno Your results are remarkable over such a long period of time and must have been a huge effort. Even more, it is both alarming and of utmost concern that your results are statistically better than 92% of Type1 diabetics in Britain! You may have individualised your “normal eating” and routines over time but I wish you had been at my DAFNE course for advice that works! Guidance for gaining long term low Hba1c results by what I deem “experts” like yourself would be of great benefit to the 92% of us out of range. Hi torana The DAFNE concepts suit my body, thinking, discipline and I like to think that I've streamlined it to suit my everyday life BUT it's not been easy i.e. in November 2018 I broke my ankle, had to sit on my derriere for 6 weeks!! The battle was trying to sort out the BI and NovoRapid which took nearly 14 days to sort out and settle down

Apr 27, 2019 torana 53 posts	Topic: General Discussion / Dismal Hba1c levels Hi sjohno Your results are remarkable over such a long period of time and must have been a huge effort. Even more, it is both alarming and of utmost concern that your results are statistically better than 92% of Type1 diabetics in Britain! You may have individualised your “normal eating” and routines over time but I wish you had been at my DAFNE course for advice that works! Guidance for gaining long term low Hba1c results by what I deem “experts” like yourself would be of great benefit to the 92% of us out of range.

Apr 25, 2019 Hoddo 2 posts	Topic: DAFNE Online Mobile / Dafne app on android Thanks for your reply Simon. Guess I'll have to be patient

Apr 25, 2019 Simon 578 posts	Topic: DAFNE Online Mobile / Incorrect data affecting downloading, esp middle data? Hi Ivan, sorry I only just got round to responding to this - is your graduate still having issues? If so can you get them to email us at [email protected]

Apr 25, 2019 Simon 578 posts	Topic: DAFNE Online Mobile / Dafne app on android Hi, unfortunately there isn't currently one available on the Google Play store - the previous version was developed by a volunteer (as it the rest of the site by MarkE and myself) who wasn't able to maintain it anymore. Mark is looking at developing a new version but he needs to teach himself Android development, as well as manage the site and his day job. I have experience with IOS and that's why that app is regularly updated. If anyone wants to help us out with Android app development we would be grateful for the support!

Apr 25, 2019 Simon 578 posts	Topic: General Discussion / DAFNE app for android Hi, unfortunately there isn't currently one available on the Google Play store - the previous version was developed by a volunteer (as it the rest of the site by MarkE and myself) who wasn't able to maintain it anymore. Mark is looking at developing a new version but he needs to teach himself Android development, as well as manage the site and his day job. I have experience with IOS and that's why that app is regularly updated. If anyone wants to help us out with Android app development we would be grateful for the support!

Apr 25, 2019 Hoddo 2 posts	Topic: DAFNE Online Mobile / Dafne app on android If the DAFNE app is unavailable for Android users can anyone recommend an equivalent Android app Thanks

Apr 24, 2019 jh0 16 posts	Topic: General Discussion / Dismal Hba1c levels There is no such thing as "true BG" readings. Perhaps you mean idle BG readings during fasting and running on background insulin alone. If you are concerned about the overlap of carbs and insulin in the system from eating regularly then let me explain. By eating regularly this is not to say that you're munching constantly (like in snacking), but rather you are eating at least every two to three hours or so and eating less. I draw a distinction between this and eating heartily every 6 or more hours (the typical traditional meal times of b/fast, lunch and dinner).

Apr 24, 2019 sjohno 37 posts	Topic: General Discussion / Dismal Hba1c levels I've been a T1 Diabetic for 40 years and became DAFNE educated in 2009. I'm on good old NovoRapid and Levemir. Since completing DAFNE I have achieved a good level of Hba1c levels i.e. in April 2017 6.5, October 2017 6.3, Jun 2018 6.8 (this was due to being put on a TRUE Result BG meter) September 2018 6.3 (back on my Aviva after DAFNE writing a letter to my GP Practice). My next HBa1C will be in June 2019. Since 2010 I have regularly achieved between 6.3 and 6.5, my lowest was 5.9 in 2015. I'm on good old insulin injected with a NovoPen, the Levemir is also in pen form. Any food whether it be Simply, Essentials naturals, organics, home cooked, processed, vegan, low carb, low fat, low sugar etc etc foods will all contain some form of carbohydrate. Eating more often can result in more injections taken, not having true BG readings and not letting the insulin work in time for the pre food you've eaten. I do try to eat healthily and attend 7 gym classes a week. I think it all boils down to every T1 is different, how you get to learn your body and the curveballs it throws at you, how you wish to control, maintain and and look after everything.

Apr 23, 2019 jh0 16 posts	Topic: General Discussion / Dismal Hba1c levels Just one or two basic rules to your diet can go a long way to healthy eating. 1. Eliminate processed foods (the crap in plastic packaging). Focus on naturals, organics, home cooked meals. Don't buy "Simply" or "Essentials" brands from supermarkets - they are a false economy (not to mention very unhealthy albeit low in carbs too) 2. Reduce the size of the meals but eat more often 3. Try and avoid having dinner 4. Eat (healthy) only when planning to do some exertion such as stepping out of the house, going to work or going out etc. The rest of the time you don't really need to eat.

Apr 23, 2019 novorapidboi26 1,819 posts	Topic: Questions for HCPs / Tresiba change Its hard to say for you personally.... with any insulin change however you should be doing a full sweep of the dose adjusting till its correct..... you wont get the flexibility of two injections as you will with one, but I assume you know that.....

Apr 23, 2019 novorapidboi26 1,819 posts	Topic: General Discussion / Dismal Hba1c levels I personally believe to achieve in range, consistent Hb levels you need to possess a pump, libre or CGM and pro actively choose your meals wisely...... if not, then numbers can creep up....... I personally know what I need to do to achieve good numbers, but thats what makes it hard.....the temptations and distractions of life...

Apr 23, 2019 novorapidboi26 1,819 posts	Topic: General Discussion / DAFNE app for android Dont think there is an android version, or not anymore at least.....I remember having it though....

Apr 23, 2019 novorapidboi26 1,819 posts	Topic: General Discussion / Background insulin Your background wont behave like the quick acting will and so no, it will not, or should not, effect your levels after carbs, provided its the correct dose that is.... You should always take your background insulin at the same times every day, as its required to hold you steady, in the absence of carbs/quick acting over the whole 24 hours...

Apr 22, 2019 Tanisha Johns 1 post	Topic: General Discussion / Effects of stress on blood glucose levels I will give you a decent blessing to turn into a researcher and begin to think all the more successfully, similar to a star. Use https://tonusjournal.com/weight-loss-questions/get-rid-skin-after-weight-loss/ rather than some moronic drugs. It causes me actually. What's more, I think an expectation that it will be useful to you as well. Don't hesitate to send me a message.

Apr 17, 2019 Gdorean 3 posts	Topic: Questions for HCPs / Tresiba change I've just switched from two Lantus injections per day to one of Tresiba. My question is this: I've been getting a lot of high blood sugars during the day and feeling rundown. When on Lantus, I took 16 at night and 12 in the morning. I am taking 22 units of Tresiba, as it was advised. Should I eventually be taking the same amount (2 of Tresiba, which I take in the morning? Many thanks

Apr 16, 2019 torana 53 posts	Topic: Site Development / We're sorry, but something went wrong. We've been notified about this issue and we'll take a look at it shortly. Hi Simon Previously, I just went into the website through a bookmark and the error message appeared. I deleted the bookmark thinking that it would help and then started to type “DAFNE online” to bring up the forum page. The error message has still appeared. Basically, I have done nothing out of the usual or different in bringing up the forum page over the years being a member. It is the first such error I have ever received whilst searching any subject matter on the web.

Apr 16, 2019 Simon 578 posts	Topic: Site Development / We're sorry, but something went wrong. We've been notified about this issue and we'll take a look at it shortly. Hi torana, Sorry to hear that you've had that error - it shouldn't happen and it is correct in that something has gone wrong - could you let us know what you were doing on the site just before it was triggered? Thanks, Simon

Apr 16, 2019 NottsKnots 10 posts	Topic: Site Development / We're sorry, but something went wrong. We've been notified about this issue and we'll take a look at it shortly. I did see it today when I retruned to a page that I had previously visited whilst logged on. I then logged back on and havent seen it since. Not sure about this site, but quite often that kind on message appears after a site update if your device hasnt got the latest updates (operating system or browser); the site updates tend to fix security flaws, and unless your device is up to date, you tend to get log-in related errors like that. Cant be sure thats your problem, but worth checking

Apr 16, 2019 torana 53 posts	Topic: Site Development / We're sorry, but something went wrong. We've been notified about this issue and we'll take a look at it shortly. Hi everyone, Just recently I have had repeatedly a notice after logging onto the DAFNE website stating “We're sorry, but something went wrong. We've been notified about this issue and we'll take a look at it shortly.” It is quite inconvenient after just logging onto the site and I was wondering if anyone else is receiving these messages.

Apr 14, 2019 Diaqueen 1 post	Topic: General Discussion / Background insulin I have had a snack with cp of 6.5. I was wondering whether I need to take my usual 12 background insulin or reduce it.