Recent Posts - DAFNE Online

Nov 24, 2019

alturn 78 posts

Topic: General Discussion / CT Scan & insulin

I am having a CT scan on Thu 28th at 09:00, which means restricted diet before the scan. I can have clear fluids (apple juice, water) or black tea in the four hours before the scan.

I take Novarapid (QA) before meals and Levemir (BI) am and pm.

As I won't be eating much, I will probably miss the morning QA and take half my BI at breakfast time. After the scan, I'll take the other half of the BI, along with QA and a snack, based on BG. This is based on instructions for another type of scan with more restrictions.

Has anybody any experience of CT scan and how did you manage your insulin?

Thanks,
J

Nov 20, 2019

EdwardR 5 posts

Topic: General Discussion / Bed wetting

outdoorsteve said:
Does anyone experience bed wetting in their sleep due to their diabetes.
I wet the bed during the night and when I went to bed I was 19.1at dinner. My blood glucose has always been erratic and now I feel embarrassed for wetting the bed.

I haven't had bed wetting but when diagnosed I was drinking ~8 liters per day and getting up every 2 hours or so -sounds like you are just not waking up. Is 19 a normal level for you? (what HA1C?)
Your GP can probably help with pads and such but if you are regularly at 19mmol/l that's a problem you CAN fix. If you're willing to share your blood glucose diary I would be happy to try to help.

I'm not medically trained so you take my advice at your own risk and I can only base it on what you tell me but I am good at this sort of problem and I do have the time to look at your numbers more that overworked NHS staff.

Nov 19, 2019

EdwardR 5 posts

Topic: General Discussion / Freestyle libre sensor

You probably know by now but the Freestyle reader and app will not scan it at all once the time is up

I use Libre in conjunction with a miaomiao* and xDrip which does keep taking data for a few more hours if you overshoot and the readings seem to still be good.

You can insert the replacement sensor early and only activate it once the time is up. They used to say the first 12 hours or so of readings were no good so it was worth putting the sensor in early but I think they've fixed that now.

Nov 13, 2019

marke 681 posts

Topic: General Discussion / infusion set issues

hmm, not sure I would agree that it is safe and more hygienic, but hey I have never been one to take medical experts at their word :-) Partly because I have been lucky/unlucky enough to be in rooms and meetings with them where they all disagree with each other. I guess there is no right or wrong answer to a lot of things relating to Diabetes. With regards to new techno gizmo's, the problem is the time it takes to get them to the public due to the need to have tested them endlessly. You can't use a device that is not 200% reliable, we rely on BG readings to manage if we go unconscious or not , so it can't give us the wrong information. There is also the complication that this type of device doesn't necessarily measure the blood directly so are potentially not as accurate. But I would love a device like that regardless. I know what you mean about app that can work out the carbs on a plate. We would ALL like one of those, wouldn't we :-) All these years and I still don't get it right when eating out.....

Nov 12, 2019

HelenP 218 posts

Topic: General Discussion / infusion set issues

Mark, Interesting discussion with the endo...Yes, current practice is to disconnect at the pump, not the infusion set. More hygienic and in many cases easier. No issues so long as it is not out for too long, probably best to suspend but no real problems if you don't. On the future he says they are working on an "apple" type watch that you will simply tap and it will read your BG (no pin pricks) and my wish, an app where you take a photo of your plate of food and it will estimate the number of carbs. The site on my thigh seems to be more reliable...but after switching to the Sensor 3 I have had to adjust a few settings.

Nov 6, 2019

Robert O 2 posts

Topic: General Discussion / Freestyle libre sensor

I've recently been put on a freestyle libre sensor and inquiring the countdown to when I need to change it when the countdown ends does it need to be changed there and then or will it work for a short while afterwards if so how long

Nov 5, 2019

HelenP 218 posts

Topic: General Discussion / infusion set issues

Thanks, as the infusion set is now half way down my thigh it will be interesting to see me reconnect it in a public waiting room. I usually wear pants... I am thinking I may suspend the pump, hand it over, replace and then see what the endo says. It would certainly make life easier. I do not know whether or not the guy suspended his pump. Someone told me they put a sharpie circle around the last site and then watch where you intuitively put the next couple... seems there are areas we favour.

Nov 5, 2019

marke 681 posts

Topic: General Discussion / infusion set issues

hmm no I would never do that , I would say you risk damaging the pump doing that potentially. The pump pushes up against the bottom of the reservoir using a rotating screw mechanism. When you change the reservoir it pushes up to the bottom and senses it and stops pushing. If you remove it and don't suspend the pump it will keep pushing up and when you replace the reservoir its going to apply more pressure than normal to lock the reservoir back in place. I guess it depends on how long its removed. Me I just detach the infusion set like I would when I have a shower and let it leak a bit while its off.
I understand completely the lypo's issue ( or as you call it scar tissue). Problem is I never tend to notice it happening but the DSN does immediately and warns me to rotate sites better Crying or Very sad

Nov 2, 2019

HelenP 218 posts

Topic: General Discussion / infusion set issues

Hi me again...it is the location of the infusion sets. Appears that after a while the sites wear out (even though the endo checked for scar tissue etc) so have now resorted to the outside of my thighs and miraculously have had little (minor) problems with the uptake of the new infusion set. Now a new issue I usually disconnect the pump from the infusion site when I have to hand over the pump for downloading at the doctors. The other day I saw a guy simply disconnect the reservoir from the pump and hand the pump over and then reinserted the reservoir when it was handed back...it would certainly save a bit of processing to get the tubing connected to the infusion set when next I go to the endo! Any comments?

Oct 28, 2019

marke 681 posts

Topic: General Discussion / DAFNE app for android

Hi,
You can ask Simon or me :-) Although I have been trying to re-implement the REST API ( just google it to get a basic idea) in the newer Android network stack as the original app was based on the Apache stack that is now depreciated. As you can see Richard is also helping . If you can work together that would be great. I think the key issue is getting the app to use 'HttpURLConnection' the now preferred method of interfacing with web sites to use the REST API . I think Richard is more focused on the UI of the app.

MarkE

Oct 28, 2019

Amr Gawish 1 post

Topic: General Discussion / DAFNE app for android

Hi @Simon,
I'm currently in the process of creating a revamped version of the Android App, would you mind me asking a few questions about the underlying APIs used?

Sep 27, 2019

richarde500 4 posts

Topic: General Discussion / DAFNE app for android

Yeah, thats no problem. Im gathering you can get my email from my profile?

Sep 27, 2019

Simon 578 posts

Topic: General Discussion / DAFNE app for android

Hey richarde500 - we would love some help as the development with the Android app has stalled. We all do this in our spare time so we mainly focus on the iOS app and the website itself. Should I drop you an email to get things going?

Sep 25, 2019

richarde500 4 posts

Topic: General Discussion / DAFNE app for android

Whilst I was doing the second year of my Foundation Degree in Applied Business Computing [2017/2018] and my BSc (Hons) Business Computing top up degree (2018/19), I learnt about Android Development by using Android Studio. I developed 2 applications for Android throughout these two years from scrach. One of the applications which I developed was started on Level 5 (Foundation Degree - Second Year) and was continued to be developed during Level 6 (BSc (Hons) Business Computing). This application was a kind of Blood Glucose and Insulin Intake diary app. The other app which I developed was for a brass band (which was part of my Computing Project, which was the equivalent of the dissertation). I graduated with a 1st overall and I am now looking for employment.

If you would like some help with development of a new Android version of the DAFNE app, I am willing to help and give it a go. My strengths are front end development - back end development (like integrating databases into a website/application using SQL etc) and I haven't a clue.

If you also want to have a look at the applications which I developed, please dont hesitate to get it touch

Sep 4, 2019

Ali J 1 post

Topic: General Discussion / NovoPen Echo needles

I have been using these pens for the last couple of years and they are brilliant. the only problem I have is bubbles in my insulin. Does this make a difference to the dose? Could it be the needles I use? Would like to know if anyone else has this problem Very Happy

Aug 19, 2019

CBenn33 4 posts

Topic: General Discussion / Focus groups in London and Manchester for pen users

Hi,
I'm type 1 diabetic and work for a market research organisation who are organising focus groups in London and Manchester on behalf of a diabetic charity. There is a £40 thank you payment for taking part.

If you currently inject your insulin or have a child who injects insulin, we would would love to hear your views.

London group is help 6.30pm on the 28th August (nr oxford circus) and Manchester 6.30 on the 29th August (nr Piccadilly). If you are interested in taking part please email: [email protected]

Please forward to other people you may know who may wish to take part, thank you

Aug 14, 2019

Willjparker94 1 post

Topic: General Discussion / DAFNE app for android

Good afternoon,
for android, if you type into google 'DAFNE App APK' you'll be able to download an older version and use it you just won't receive any updates for the app. I'm using it currently and it's perfect.

Smile

Will

Aug 3, 2019

HelenP 218 posts

Topic: General Discussion / infusion set issues

OK me again.
Yesterday was a nightmare.
All good until about 12:30pm (infusion set had been on for 3 days less about 10 hours). Was going to theatre so decided to leave in place until after theatre. Got to 12.6 a 2:00pm theatre...corrected and down to 8.8 at the end of show. Phone call from son, could I please babysit from 6:15pm. Sure, raced home had a salmon and tomato sandwich on lo-cal bread (25g CHO) + correction. After sandwich changed infusion set. Arrived at son's house at 6:15 still under 10...but 4 hours later (and no food) after stacking corrections reached a peak of 18 (theory NO insulin was getting through). Drove home with plans for an injection. At home pump indicated that the BG was going down so decided to leave it. Went to bed. Woke up with pump alarm. Theoretically no insulin on board but BG falling fast (3 arrows) and approaching low. Took a hand full of jelly beans and lay awake waiting for the fall to finish. About an hour later, the fall had finished and still with no insulin on board I went to sleep. More alarm, more approaching low, pump suspended and a low reading of 3.2. It was now about 6+ hours since last insulin correction so decided I would let the pump do its thing. Woke 2 hours later and BG was 6.3.
Medtronic's suggestion change infusion set type...have done that about a month ago. Anyone any ideas? Helen

Jul 27, 2019

Donna M 1 post

Topic: General Discussion / Diabetes essay

What information do you need? I have only been diagnosed just under a year and just completed the dafne course. My daughter bought me a book for Xmas about learning to manage T1 diabetes which was very useful

Jul 22, 2019

michaelj 45 posts

Topic: Carbohydrate Counting / Spinach soup

Most leaf vegetablles have virtually no carbs, so unless you are adding any other ingredients I would think the answer would be pretty much zero. If its shop bought then there should be a nutritional breakdown on the packet somewhere. One clever soul years ago worked out you would need to eat 32 lbs of cabbage to make 1 carb portion, I would think spinach wouold be much the same.

Nov 24, 2019 alturn 78 posts	Topic: General Discussion / CT Scan & insulin I am having a CT scan on Thu 28th at 09:00, which means restricted diet before the scan. I can have clear fluids (apple juice, water) or black tea in the four hours before the scan. I take Novarapid (QA) before meals and Levemir (BI) am and pm. As I won't be eating much, I will probably miss the morning QA and take half my BI at breakfast time. After the scan, I'll take the other half of the BI, along with QA and a snack, based on BG. This is based on instructions for another type of scan with more restrictions. Has anybody any experience of CT scan and how did you manage your insulin? Thanks, J

Nov 20, 2019 EdwardR 5 posts	Topic: General Discussion / Bed wetting outdoorsteve said: Does anyone experience bed wetting in their sleep due to their diabetes. I wet the bed during the night and when I went to bed I was 19.1at dinner. My blood glucose has always been erratic and now I feel embarrassed for wetting the bed. I haven't had bed wetting but when diagnosed I was drinking ~8 liters per day and getting up every 2 hours or so -sounds like you are just not waking up. Is 19 a normal level for you? (what HA1C?) Your GP can probably help with pads and such but if you are regularly at 19mmol/l that's a problem you CAN fix. If you're willing to share your blood glucose diary I would be happy to try to help. I'm not medically trained so you take my advice at your own risk and I can only base it on what you tell me but I am good at this sort of problem and I do have the time to look at your numbers more that overworked NHS staff.

Nov 19, 2019 EdwardR 5 posts	Topic: General Discussion / Freestyle libre sensor You probably know by now but the Freestyle reader and app will not scan it at all once the time is up I use Libre in conjunction with a miaomiao* and xDrip which does keep taking data for a few more hours if you overshoot and the readings seem to still be good. You can insert the replacement sensor early and only activate it once the time is up. They used to say the first 12 hours or so of readings were no good so it was worth putting the sensor in early but I think they've fixed that now.

Nov 13, 2019 marke 681 posts	Topic: General Discussion / infusion set issues hmm, not sure I would agree that it is safe and more hygienic, but hey I have never been one to take medical experts at their word :-) Partly because I have been lucky/unlucky enough to be in rooms and meetings with them where they all disagree with each other. I guess there is no right or wrong answer to a lot of things relating to Diabetes. With regards to new techno gizmo's, the problem is the time it takes to get them to the public due to the need to have tested them endlessly. You can't use a device that is not 200% reliable, we rely on BG readings to manage if we go unconscious or not , so it can't give us the wrong information. There is also the complication that this type of device doesn't necessarily measure the blood directly so are potentially not as accurate. But I would love a device like that regardless. I know what you mean about app that can work out the carbs on a plate. We would ALL like one of those, wouldn't we :-) All these years and I still don't get it right when eating out.....

Nov 12, 2019 HelenP 218 posts	Topic: General Discussion / infusion set issues Mark, Interesting discussion with the endo...Yes, current practice is to disconnect at the pump, not the infusion set. More hygienic and in many cases easier. No issues so long as it is not out for too long, probably best to suspend but no real problems if you don't. On the future he says they are working on an "apple" type watch that you will simply tap and it will read your BG (no pin pricks) and my wish, an app where you take a photo of your plate of food and it will estimate the number of carbs. The site on my thigh seems to be more reliable...but after switching to the Sensor 3 I have had to adjust a few settings.

Nov 6, 2019 Robert O 2 posts	Topic: General Discussion / Freestyle libre sensor I've recently been put on a freestyle libre sensor and inquiring the countdown to when I need to change it when the countdown ends does it need to be changed there and then or will it work for a short while afterwards if so how long

Nov 5, 2019 HelenP 218 posts	Topic: General Discussion / infusion set issues Thanks, as the infusion set is now half way down my thigh it will be interesting to see me reconnect it in a public waiting room. I usually wear pants... I am thinking I may suspend the pump, hand it over, replace and then see what the endo says. It would certainly make life easier. I do not know whether or not the guy suspended his pump. Someone told me they put a sharpie circle around the last site and then watch where you intuitively put the next couple... seems there are areas we favour.

Nov 5, 2019 marke 681 posts	Topic: General Discussion / infusion set issues hmm no I would never do that , I would say you risk damaging the pump doing that potentially. The pump pushes up against the bottom of the reservoir using a rotating screw mechanism. When you change the reservoir it pushes up to the bottom and senses it and stops pushing. If you remove it and don't suspend the pump it will keep pushing up and when you replace the reservoir its going to apply more pressure than normal to lock the reservoir back in place. I guess it depends on how long its removed. Me I just detach the infusion set like I would when I have a shower and let it leak a bit while its off. I understand completely the lypo's issue ( or as you call it scar tissue). Problem is I never tend to notice it happening but the DSN does immediately and warns me to rotate sites better

Nov 2, 2019 HelenP 218 posts	Topic: General Discussion / infusion set issues Hi me again...it is the location of the infusion sets. Appears that after a while the sites wear out (even though the endo checked for scar tissue etc) so have now resorted to the outside of my thighs and miraculously have had little (minor) problems with the uptake of the new infusion set. Now a new issue I usually disconnect the pump from the infusion site when I have to hand over the pump for downloading at the doctors. The other day I saw a guy simply disconnect the reservoir from the pump and hand the pump over and then reinserted the reservoir when it was handed back...it would certainly save a bit of processing to get the tubing connected to the infusion set when next I go to the endo! Any comments?

Oct 28, 2019 marke 681 posts	Topic: General Discussion / DAFNE app for android Hi, You can ask Simon or me :-) Although I have been trying to re-implement the REST API ( just google it to get a basic idea) in the newer Android network stack as the original app was based on the Apache stack that is now depreciated. As you can see Richard is also helping . If you can work together that would be great. I think the key issue is getting the app to use 'HttpURLConnection' the now preferred method of interfacing with web sites to use the REST API . I think Richard is more focused on the UI of the app. MarkE

Oct 28, 2019 Amr Gawish 1 post	Topic: General Discussion / DAFNE app for android Hi @Simon, I'm currently in the process of creating a revamped version of the Android App, would you mind me asking a few questions about the underlying APIs used?

Sep 27, 2019 richarde500 4 posts	Topic: General Discussion / DAFNE app for android Yeah, thats no problem. Im gathering you can get my email from my profile?

Sep 27, 2019 Simon 578 posts	Topic: General Discussion / DAFNE app for android Hey richarde500 - we would love some help as the development with the Android app has stalled. We all do this in our spare time so we mainly focus on the iOS app and the website itself. Should I drop you an email to get things going?

Sep 25, 2019 richarde500 4 posts	Topic: General Discussion / DAFNE app for android Whilst I was doing the second year of my Foundation Degree in Applied Business Computing [2017/2018] and my BSc (Hons) Business Computing top up degree (2018/19), I learnt about Android Development by using Android Studio. I developed 2 applications for Android throughout these two years from scrach. One of the applications which I developed was started on Level 5 (Foundation Degree - Second Year) and was continued to be developed during Level 6 (BSc (Hons) Business Computing). This application was a kind of Blood Glucose and Insulin Intake diary app. The other app which I developed was for a brass band (which was part of my Computing Project, which was the equivalent of the dissertation). I graduated with a 1st overall and I am now looking for employment. If you would like some help with development of a new Android version of the DAFNE app, I am willing to help and give it a go. My strengths are front end development - back end development (like integrating databases into a website/application using SQL etc) and I haven't a clue. If you also want to have a look at the applications which I developed, please dont hesitate to get it touch

Sep 4, 2019 Ali J 1 post	Topic: General Discussion / NovoPen Echo needles I have been using these pens for the last couple of years and they are brilliant. the only problem I have is bubbles in my insulin. Does this make a difference to the dose? Could it be the needles I use? Would like to know if anyone else has this problem

Aug 19, 2019 CBenn33 4 posts	Topic: General Discussion / Focus groups in London and Manchester for pen users Hi, I'm type 1 diabetic and work for a market research organisation who are organising focus groups in London and Manchester on behalf of a diabetic charity. There is a £40 thank you payment for taking part. If you currently inject your insulin or have a child who injects insulin, we would would love to hear your views. London group is help 6.30pm on the 28th August (nr oxford circus) and Manchester 6.30 on the 29th August (nr Piccadilly). If you are interested in taking part please email: [email protected] Please forward to other people you may know who may wish to take part, thank you

Aug 14, 2019 Willjparker94 1 post	Topic: General Discussion / DAFNE app for android Good afternoon, for android, if you type into google 'DAFNE App APK' you'll be able to download an older version and use it you just won't receive any updates for the app. I'm using it currently and it's perfect. Will

Aug 3, 2019 HelenP 218 posts	Topic: General Discussion / infusion set issues OK me again. Yesterday was a nightmare. All good until about 12:30pm (infusion set had been on for 3 days less about 10 hours). Was going to theatre so decided to leave in place until after theatre. Got to 12.6 a 2:00pm theatre...corrected and down to 8.8 at the end of show. Phone call from son, could I please babysit from 6:15pm. Sure, raced home had a salmon and tomato sandwich on lo-cal bread (25g CHO) + correction. After sandwich changed infusion set. Arrived at son's house at 6:15 still under 10...but 4 hours later (and no food) after stacking corrections reached a peak of 18 (theory NO insulin was getting through). Drove home with plans for an injection. At home pump indicated that the BG was going down so decided to leave it. Went to bed. Woke up with pump alarm. Theoretically no insulin on board but BG falling fast (3 arrows) and approaching low. Took a hand full of jelly beans and lay awake waiting for the fall to finish. About an hour later, the fall had finished and still with no insulin on board I went to sleep. More alarm, more approaching low, pump suspended and a low reading of 3.2. It was now about 6+ hours since last insulin correction so decided I would let the pump do its thing. Woke 2 hours later and BG was 6.3. Medtronic's suggestion change infusion set type...have done that about a month ago. Anyone any ideas? Helen

Jul 27, 2019 Donna M 1 post	Topic: General Discussion / Diabetes essay What information do you need? I have only been diagnosed just under a year and just completed the dafne course. My daughter bought me a book for Xmas about learning to manage T1 diabetes which was very useful

Jul 22, 2019 michaelj 45 posts	Topic: Carbohydrate Counting / Spinach soup Most leaf vegetablles have virtually no carbs, so unless you are adding any other ingredients I would think the answer would be pretty much zero. If its shop bought then there should be a nutritional breakdown on the packet somewhere. One clever soul years ago worked out you would need to eat 32 lbs of cabbage to make 1 carb portion, I would think spinach wouold be much the same.