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Nov 25, 2013
novorapidboi26 1,819 posts

Topic: General Discussion / will it ever be under control ? doubt it

joe callery said:
no i dont snack a lot but days where i go to the football i do eat more but then am doing a lot more exercise and i was taking a lot of hypo's but that has been greatly reduced it is just frustrating when things dont work out the way you expect them to ?



i can definitely agree with that..........

just record as much information as you can when you are doing things outside your normal routine, this should help you come up with a plan of attack. It will never be perfect though, that's something I have accepted.... Smile
 
Nov 24, 2013
joe callery 4 posts

Topic: General Discussion / will it ever be under control ? doubt it

no i dont snack a lot but days where i go to the football i do eat more but then am doing a lot more exercise and i was taking a lot of hypo's but that has been greatly reduced it is just frustrating when things dont work out the way you expect them to ?

 
Nov 24, 2013
novorapidboi26 1,819 posts

Topic: General Discussion / will it ever be under control ? doubt it

5 hours is a maximum, you should test to see how long it actually does last for you personally.....

when you work that time out, you can then do on board insulin calculations when you want to have food in between main meals............

do you feel you snack a lot...........?
 
Nov 24, 2013
joe callery 4 posts

Topic: General Discussion / will it ever be under control ? doubt it

hi jaybee this is what is getting me so mixed up is a quick acting insulin takes 5 hours to work means you can never really get it under control due to say eating 3 hours after your breakfast you can only cover cps without testing your blood and then constantly adding time on to the next time you can test your blood ?.i normally go to bed about 4 in the morning so breakfast is at 12 and normally dinner is at 7pm but the dafne way is supposed to let you change things and live freely but i have found this not to be the case for me
 
Nov 24, 2013
joe callery 4 posts

Topic: General Discussion / will it ever be under control ? doubt it

yes garry as i was taking a lot of severe hypo's and have lost my warning signs so it was advised to have a higher target to start off with
 
Nov 24, 2013
mum2westiesGill 502 posts

Topic: General Discussion / 7-day waking average

11.5 - 22:27pm - bedtime
- went out for an indian, ate 1 poppadom, prawn bhuna but didn't eat all of this by any means, egg fried rice which was just a nice portion
- BG 9.4 - teatime
- no other carbs eaten after bedtime test
10.7 - 09:10 - fasting

lantus decreases:
Tue 29.10 from 24u to 22u
Sat 02.10 from 22u to 20u
Tue 6.11 from 20u to 18u
Wed 20.11 from 18u to 16u
 
Nov 24, 2013
Garry 328 posts

Topic: General Discussion / will it ever be under control ? doubt it

Have you been asked to up your target range joe from the normal 4.5 to 7.5 or 8.0 by your Health Care Professional team? Thanks.
Regards
Garry
 
Nov 23, 2013
mum2westiesGill 502 posts

Topic: General Discussion / 7-day waking average

8.5 - 22:42pm - bedtime
- rich tea biscuits eaten after bedtime test
11.0 - 07:45am - fasting

lantus decreases:
Tue 29.10 from 24u to 22u
Sat 02.10 from 22u to 20u
Tue 6.11 from 20u to 18u
Wed 20.11 from 18u to 16u
 
Nov 23, 2013
JayBee 587 posts

Topic: General Discussion / will it ever be under control ? doubt it

At initial glance, some of the higher numbers appear to be because your QA doses may still be working (for example, when having dinner around 4.30pm and then testing again at gone 7pm, that's only 3 hours when QA can take up to 5hours). I am not sure why you would take on 7CP for 7.5BG on Sat 16/11... is this hypo fear response?

I do feel for you - it can be very overwhelming when BGs are being so irrational. Sad

Am I correct in understanding that you pass on breakfast? What sort of numbers do you see upon waking despite not eating breakfast?
On that note, have you done any BI testing to see what your BI does working on it's own? It's okay to be high for this if you are unable to get in range for the test. Hopefully your waking BGs will spread some light on this - particularly for the evening BI dose.

Keep working at it, okay? Best wishes.
 
Nov 23, 2013
Googum 15 posts

Topic: General Discussion / Nerve Dysfunction in feet.

I would go back to your GP and ask to see a neurologist who specializes in neuropathy for a option and may be your med regime needs to be changed,
 
Nov 23, 2013
joe callery 4 posts

Topic: General Discussion / will it ever be under control ? doubt it

Rolling Eyes tried everything to get it to my target rate of 10 but finding it very difficult and confusing ?
 
Nov 23, 2013
HelenP 218 posts

Topic: General Discussion / Nerve Dysfunction in feet.

John, I had a period of burning and "pain" in both feet. I felt as if I had a very tight pair of socks on my feet. It was treated with anti convulsants and after a relatively short period of fairly good control it went away. I now have reduced sensation but it is not painful. I also recently had a compound dislocation of my R big toe and was terrified I would lose the toe but absolutely no bother. Healed quickly, no infection and all is well!

Good luck. Helen
 
Nov 22, 2013
John H 20 posts

Topic: General Discussion / Nerve Dysfunction in feet.

Hello folks, not a regular here but, just wondering if anybody recognises the following problems. 45 years old now and T1for 38 years, suffered various diabetes related problems some caused by rebelious nature. After recent eye surgery (very unpleasent) I have managed to bring my poorly controlled diabetes into a more acceptable level. During this time the nerve dysfunction has become more noticeable (skin twisting sensation & burning) in both feet. My medication for this has continued for 12 months (Duloxatine) But I can feel this getting worse. Anybody noticed this happening during control stabilizing processes, any advice or recommendations other than aputation would be greatly received.
Many thanks, John.
 
Nov 22, 2013
stephenbrowne 37 posts

Topic: General Discussion / Diabetic Neuropathy Bowel Problems

Googum said:
Hello Stephen

I had a appointment with my pain neurologist and a gastroenterologist and yes you were bang on the money with use of Normacol granules,The gastro asked how came about getting this information i said i no a good medical man lol Very Happy ,So i will use it in small doses and then increase it and it really should not interact with my other meds to much according to the hospital chemist i talked to yesterday,So once again thank you so much for sharing Stephen



So pleased you got on well at your appointment, Googum. I do hope you get on well with the agreed plan of your medical team . No doubt they will have given some detailed advice. As you mention , it is probably advisable to start with a low dose and gradually increase it to find the best individual dose for your particular needs. It is not ,of course, a "magic cure" and might need some perseverance to find the right dose get a satisfactory response.
All the best,

 
Nov 22, 2013
Rafa 99 posts

Topic: General Discussion / Endurance Exercise and BG

Getting to grips with it more i think touch wood! 30 minutes before a run last night i was 6.8 so took 1.5 cp then i was 11.8 heading out. Ran for 35 minutes and was 6.1 afterwards. Had 6 cps and took 4 qa. Two hours later i was 9.3 and was hungry. I had 6 cps and took 6qa which was a mistake because i was 3.4 an hour and half later. I had 3 cp's and then i was 4.6 going to bed 45 minutes later. Woke up at 6am and was 6.0 and went for a 25 minute run and was 6.8 afterwards. I had 6 cps and took qa of 6 as opposed to 1.5/1. Just checked now and i am 4.9 so had one cp with no qa.
 
Nov 22, 2013
mum2westiesGill 502 posts

Topic: General Discussion / 7-day waking average

13.5 - 22:45pm - bedtime
11.2 - 08:37am - fasting

lantus decreases:
Tue 29.10 from 24u to 22u
Sat 02.10 from 22u to 20u
Tue 6.11 from 20u to 18u
Wed 20.11 from 18u to 16u

novorapidboi26 said:

a test tonight on the 16u without food after would be interesting...........the sandwich and rolos may have pushed you up to 8.5......



Sorry didn't manage it without food Sad
 
Nov 22, 2013
Googum 15 posts

Topic: General Discussion / Diabetic Neuropathy Bowel Problems

Hello Youone

Thanks for the reply,Yes i have always had a high fiber low fat protein diet,My other main problem also are in taking my meds and Opioids to help but are a necessity in my treatments but main cause is the neuropathy so balancing it can be tricky,Am pleased that you found a better procurement with your condition and seems to work well for once again thanks for the reply Very Happy
 
Nov 22, 2013
Googum 15 posts

Topic: General Discussion / Diabetic Neuropathy Bowel Problems

Hello Stephen

I had a appointment with my pain neurologist and a gastroenterologist and yes you were bang on the money with use of Normacol granules,The gastro asked how came about getting this information i said i no a good medical man lol Very Happy ,So i will use it in small doses and then increase it and it really should not interact with my other meds to much according to the hospital chemist i talked to yesterday,So once again thank you so much for sharing Stephen
 
Nov 22, 2013
Googum 15 posts

Topic: General Discussion / Bladder neuropathy

Hello Lisa

Am so sorry about your problems,I suffer with early stage bowl neuropathy and yes get problems with my bladder also from time to time you have my sympathy,There is a UK socitey lisa who can help they also have a helpline also http://www.bladderandbowelfoundation.org/ i hope that helps or you may no of them if not i hope it helps and may be able to put you in touch with a local group.If want PM please do lisa,
 
Nov 22, 2013
Googum 15 posts

Topic: General Discussion / Continuous Blood Glucose Monitor



Hello Diane

I have been on CGM for a week while i was in hospital when i was first DX with diabetes after a heart attack and a MMOL of 60 it was high BG that gave me the heart attack,I was also connected to a huge insulin pump to clean and treat my blood,The DNS use come twice daily to the acute heart ward to read the numbers from the CGM and calibrate the pump for insulin dosage and she explained how the CGM worked and let me look at print out of DATA she use get from the machine it was really interesting this was nearly 4 years ago,

I do no two brits who use CGMs one has been using one for nearly 12 years and would not be parted from it,Sensor can be worn inner or out thigh or on the arms or on the tummy,I also have two friends in the states who use them,First one had her first in 2001 and is on her 4 machine and is very is every experienced with the technology she also been pumping 25 years also,As she said to me its how you use the DATA from machines to improve your overall use of insulin and keeping stable Bg numbers,The other has only been using a CGM for past 18 months and has had diabetes 50 years she is 53 and was originally from UK but moved to the US 35 years ago,Clare suffered from awful dawn phenomenon for nearly 25 years and she is hypo unaware and only until her insurance told her that she needed one as she ended up in coma,She use test in evening her BGs when her hubby use to check her out three times a night,she went into coma her husband was away,She also went on the CGM under protest as she hated the idea of being hooked up to sensor but how she has changed,Her hubby was telling that they now both have decent nights sleep for first times in there marriage and Clare has not suffered with DP because of the alarm system that will wake her up if she starts going low and her hubby does not have worry so he not as stressed,

Am my self hypo unaware but dont get DP to often,But i have looked at getting one and if i did i would go for the G4 from dexcom and it really is nice bit of kit,That is what the two ladies i no use also and i have a work colleague in HK who i work with who uses one,Most people think she is carrying a i phone,It can also carry DATA through a app to your smartphone and laptop with live DATA,My DSN is right about one thing there is a 15 minute delay from readings with your blood,When you finger blood test it downloads the DATA to the CGM that is how you change the sensor https://www.youtube.com/watch?v=KaN_iPP-wq8 Twisted Evil you will have paste it into the browser

Overall cost for the CGM and sensors and its sensors and transmitter where they make there money is around £1100 for starter kit,As my DSN said its rare NHS will fund such a thing as a CGM, I did researched four types of CGM and G4 one i liked but my endo and DSN want me to go onto a pump and again i would have learn how to use it but we will see am happy with MDI at moment.
 
Nov 21, 2013
novorapidboi26 1,819 posts

Topic: General Discussion / Continuous Blood Glucose Monitor

DianeW said:
For a week. . You can buy them though cany you but it seems a bit much to wear one permanently. The whole point is to wear one to discover how you should adjust insulin ismt it.



That is the whole point yes, but some folk do self fund and use them all the time.....its not a common practice.......

they can help pump users finely tune their basals overnight I would think more so than any other time, as normal basal testing can be done. It could also be used to see how certain foods affect the glucose levels.....
 
Nov 21, 2013
Phil Maskell 194 posts

Topic: General Discussion / Continuous Blood Glucose Monitor

This looks good, if it ever happens, they talk of a CGM version too...

http://www.integrity-app.com/

Not being invasive you could wear that (if the sort the size and look out) all the time, would be good for me while cycling, never sure if hypo or tired on long rides!
 
Nov 21, 2013
DianeW 115 posts

Topic: General Discussion / Continuous Blood Glucose Monitor

For a week. . You can buy them though cany you but it seems a bit much to wear one permanently. The whole point is to wear one to discover how you should adjust insulin ismt it.
 
Nov 21, 2013
novorapidboi26 1,819 posts

Topic: General Discussion / 7-day waking average

HC71 said:
Hi I'm a newby only Graduated on the 08/11/13 my reading this morning was 4.6 Surprised



Welcome to the forum, and congratulation on graduating from DAFNE.......... Smile