Recent Posts - DAFNE Online

Nov 22, 2013

Googum 15 posts

Topic: General Discussion / Diabetic Neuropathy Bowel Problems

Hello Stephen

I had a appointment with my pain neurologist and a gastroenterologist and yes you were bang on the money with use of Normacol granules,The gastro asked how came about getting this information i said i no a good medical man lol Very Happy

,So i will use it in small doses and then increase it and it really should not interact with my other meds to much according to the hospital chemist i talked to yesterday,So once again thank you so much for sharing Stephen

Nov 22, 2013

Googum 15 posts

Topic: General Discussion / Bladder neuropathy

Hello Lisa

Am so sorry about your problems,I suffer with early stage bowl neuropathy and yes get problems with my bladder also from time to time you have my sympathy,There is a UK socitey lisa who can help they also have a helpline also http://www.bladderandbowelfoundation.org/ i hope that helps or you may no of them if not i hope it helps and may be able to put you in touch with a local group.If want PM please do lisa,

Nov 22, 2013

Googum 15 posts

Topic: General Discussion / Continuous Blood Glucose Monitor

Hello Diane

I have been on CGM for a week while i was in hospital when i was first DX with diabetes after a heart attack and a MMOL of 60 it was high BG that gave me the heart attack,I was also connected to a huge insulin pump to clean and treat my blood,The DNS use come twice daily to the acute heart ward to read the numbers from the CGM and calibrate the pump for insulin dosage and she explained how the CGM worked and let me look at print out of DATA she use get from the machine it was really interesting this was nearly 4 years ago,

I do no two brits who use CGMs one has been using one for nearly 12 years and would not be parted from it,Sensor can be worn inner or out thigh or on the arms or on the tummy,I also have two friends in the states who use them,First one had her first in 2001 and is on her 4 machine and is very is every experienced with the technology she also been pumping 25 years also,As she said to me its how you use the DATA from machines to improve your overall use of insulin and keeping stable Bg numbers,The other has only been using a CGM for past 18 months and has had diabetes 50 years she is 53 and was originally from UK but moved to the US 35 years ago,Clare suffered from awful dawn phenomenon for nearly 25 years and she is hypo unaware and only until her insurance told her that she needed one as she ended up in coma,She use test in evening her BGs when her hubby use to check her out three times a night,she went into coma her husband was away,She also went on the CGM under protest as she hated the idea of being hooked up to sensor but how she has changed,Her hubby was telling that they now both have decent nights sleep for first times in there marriage and Clare has not suffered with DP because of the alarm system that will wake her up if she starts going low and her hubby does not have worry so he not as stressed,

Am my self hypo unaware but dont get DP to often,But i have looked at getting one and if i did i would go for the G4 from dexcom and it really is nice bit of kit,That is what the two ladies i no use also and i have a work colleague in HK who i work with who uses one,Most people think she is carrying a i phone,It can also carry DATA through a app to your smartphone and laptop with live DATA,My DSN is right about one thing there is a 15 minute delay from readings with your blood,When you finger blood test it downloads the DATA to the CGM that is how you change the sensor https://www.youtube.com/watch?v=KaN_iPP-wq8 Twisted Evil

you will have paste it into the browser

Overall cost for the CGM and sensors and its sensors and transmitter where they make there money is around Â£1100 for starter kit,As my DSN said its rare NHS will fund such a thing as a CGM, I did researched four types of CGM and G4 one i liked but my endo and DSN want me to go onto a pump and again i would have learn how to use it but we will see am happy with MDI at moment.

Nov 21, 2013

novorapidboi26 1,819 posts

Topic: General Discussion / Continuous Blood Glucose Monitor

DianeW said:
For a week. . You can buy them though cany you but it seems a bit much to wear one permanently. The whole point is to wear one to discover how you should adjust insulin ismt it.

That is the whole point yes, but some folk do self fund and use them all the time.....its not a common practice.......

they can help pump users finely tune their basals overnight I would think more so than any other time, as normal basal testing can be done. It could also be used to see how certain foods affect the glucose levels.....

Nov 21, 2013

Phil Maskell 194 posts

Topic: General Discussion / Continuous Blood Glucose Monitor

This looks good, if it ever happens, they talk of a CGM version too...

http://www.integrity-app.com/

Not being invasive you could wear that (if the sort the size and look out) all the time, would be good for me while cycling, never sure if hypo or tired on long rides!

Nov 21, 2013

DianeW 115 posts

Topic: General Discussion / Continuous Blood Glucose Monitor

For a week. . You can buy them though cany you but it seems a bit much to wear one permanently. The whole point is to wear one to discover how you should adjust insulin ismt it.

Nov 21, 2013

novorapidboi26 1,819 posts

Topic: General Discussion / 7-day waking average

HC71 said:
Hi I'm a newby only Graduated on the 08/11/13 my reading this morning was 4.6

Welcome to the forum, and congratulation on graduating from DAFNE.......... Smile

Nov 21, 2013

HC71 1 post

Topic: General Discussion / 7-day waking average

Hi I'm a newby only Graduated on the 08/11/13 my reading this morning was 4.6 Surprised

Nov 21, 2013

novorapidboi26 1,819 posts

Topic: General Discussion / 7-day waking average

Its a pain when you need change the background dose, but also good that you need less insulin.....

a test tonight on the 16u without food after would be interesting...........the sandwich and rolos may have pushed you up to 8.5......

Nov 21, 2013

novorapidboi26 1,819 posts

Topic: General Discussion / Continuous Blood Glucose Monitor

How long will you be using it............?

This is me assuming its a short term thing as funding one permanently is rarely heard of....... Wink

Nov 21, 2013

DianeW 115 posts

Topic: General Discussion / Continuous Blood Glucose Monitor

Yes I am going to get one in January. I've looked on the internet for info on it and watched videos on YouTube of how it works, how it is fitted etc so feel ok about it. I'm sure it will be an eye opener as to how my blood sugar is reacting. It is measured every 5 mins or something and you can get graphs and all sorts of lovely technical stuff! Something to look forward to!

Nov 21, 2013

mum2westiesGill 502 posts

Topic: General Discussion / 7-day waking average

Wed 20.11
11.7 - 22:42pm - bedtime
3.3 - 10:17am - fasting - then after 5 (25g cho) jelly babies 4.1 @ 10:33am

Thu 21.11
5.8 - 22:22pm - bedtime
- reduced lantus (because of all the fasting lows) by 2u so from 18u to 16u
- had corned beef sandwich 2 slices of bread for supper, eaten after bedtime test was done, but......
found a packet of rolos so also had 2 of these
8.5 - 08:38am - fasting

lantus decreases:
Tue 29.10 from 24u to 22u
Sat 02.10 from 22u to 20u
Tue 6.11 from 20u to 18u
Wed 20.11 from 18u to 16u

Nov 21, 2013

novorapidboi26 1,819 posts

Topic: General Discussion / Continuous Blood Glucose Monitor

Not had one personally or seen one in person, but I believe the sensor is similar to a pump cannula in size and in fitting.

the sensor sits at a similar depth to the cannula and measures the glucose levels from the interstitial fluid as opposed to the blood.

So I think if you were to compare your BG and CGM readings there would be a alight delay on the CGM, so its good for spotting patterns and I suppose with a little tweaking could be used all the time as a method of monitoring glucose levels.

Are you going to be getting one....?

Nov 21, 2013

Louise1988 69 posts

Topic: General Discussion / Bladder neuropathy

Hi Lisa. Has this been confirmed as a result of your diabetes?

Nov 21, 2013

Lisaraby 15 posts

Topic: General Discussion / Bladder neuropathy

I'm guessing nobody else has got this problem but thanks anyway Crying or Very sad

Nov 20, 2013

JMoran1983 2 posts

Topic: Carbohydrate Counting / Eating out - help

Hi Pauline, you may have estimated the CPs correctly but the effects of the fat (butter and cream) and protein from the fish may have caused the food to digest more slowly giving a delayed peak in blood glucose. If you ever see James Martin make mashed potato, you'll see it's equal parts potato and butter!

Were you back in target 4-5 hours later? It's important that you don't react to high readings 2 hours post meal as the insulin would have still been working.

It is always going to be an estimation when eating out and it's always better to underestimate if you're out and about and correct at the next meal if necessary.

Nov 20, 2013

NuMo 28 posts

Topic: Carbohydrate Counting / Eating out - help

Hi Pauline

We eat out regularly, and I still haven't got it right yet. The only listings for eating out are for the big chains such as McDonald's or Wetherspoon's which are not places I go to. As Novorapidboi says it is a guessing game which is made more complicated by the fact that some chefs will add sugar to "improve" the flavour. I once chose what I thought would be a nil dish only to find it unusually sweet and yes, experienced a massive spike afterwards. All I can suggest is give it your best guess and err on the upward side. Be prepared for a spike and deal accordingly. Don't beat yourself up if you get it wrong, after all you're outside your control zone. Make a note of where you were, what you chose and what value you gave it. Then add how close your estimation was so you know for another time. When you find yourself coming close, which you will, allow yourself a sense of achievement. Smile

Nov 20, 2013

DianeW 115 posts

Topic: General Discussion / Continuous Blood Glucose Monitor

Anyone had one of these fitted? If so, how is it fitted, how big is it, where on the body is it fitted? Thanks for any info.

Nov 19, 2013

Nat-Sav 15 posts

Topic: General Discussion / Coeliac Disease

Louise1988 said:
I've been tested for coeliac twice, both came back negative but I am still suspicious. I was first tested for coeliac 6mths before being diagnosed with diabetes.

Thanks Louise. Why are you still suspicious? Did your doctor also suspect coeliac disease?

Nov 19, 2013

mum2westiesGill 502 posts

Topic: General Discussion / 7-day waking average

Sat 16.11
8.6 - 22:15pm - bedtime
9.8 - 07:30am - fasting

Sun 17.11
12.8 - 22:36pm - bedtime
5.2 - 11:06am - fasting

Mon 18.11
14.3 - 22:25pm - bedtime
5.4 - 11:06am - fasting

feeling really stressed at the moment

Tue 19.11
10.2 - 22:31pm - bedtime
7.2 - 08:50am - fasting

lantus decreases:
Tue 29.10 from 24u to 22u
Sat 02.10 from 22u to 20u
Tue 6.11 from 20u to 18u

Nov 18, 2013

Matt Hewitt 8 posts

Topic: Carbohydrate Counting / Tim Tam Cheesecake

Thanks

Nov 18, 2013

novorapidboi26 1,819 posts

Topic: Carbohydrate Counting / Tim Tam Cheesecake

I used the myfitnespal website, and use the app daily,,,,,,,,,,

this is what I got......some of the items brands may not match up to yours but it will be pretty close.......

Time Tam Cheesecake:

Calories: 5892

Carbs: 509

Fat: 381

Protein: 68

Sodium: 5415

Sugar: 427

All those numbers are in grams......... Very Happy

Nov 18, 2013

novorapidboi26 1,819 posts

Topic: Carbohydrate Counting / Eating out - help

what was your BG before your meal?

7 units may just of been good enough for the potato, there must of been other ingredients in there what was in the soup?

its all a guessing game when out anyway, the more you do it, the better you become.......

Nov 18, 2013

novorapidboi26 1,819 posts

Topic: General Discussion / hypo on sundays

Phils got it in one.........lol...........

I would think it may be down to the different eating habits and/or activity levels.............alcohol maybe..........

Nov 22, 2013 Googum 15 posts	Topic: General Discussion / Diabetic Neuropathy Bowel Problems Hello Stephen I had a appointment with my pain neurologist and a gastroenterologist and yes you were bang on the money with use of Normacol granules,The gastro asked how came about getting this information i said i no a good medical man lol ,So i will use it in small doses and then increase it and it really should not interact with my other meds to much according to the hospital chemist i talked to yesterday,So once again thank you so much for sharing Stephen

Nov 22, 2013 Googum 15 posts	Topic: General Discussion / Bladder neuropathy Hello Lisa Am so sorry about your problems,I suffer with early stage bowl neuropathy and yes get problems with my bladder also from time to time you have my sympathy,There is a UK socitey lisa who can help they also have a helpline also http://www.bladderandbowelfoundation.org/ i hope that helps or you may no of them if not i hope it helps and may be able to put you in touch with a local group.If want PM please do lisa,

Nov 22, 2013 Googum 15 posts	Topic: General Discussion / Continuous Blood Glucose Monitor Hello Diane I have been on CGM for a week while i was in hospital when i was first DX with diabetes after a heart attack and a MMOL of 60 it was high BG that gave me the heart attack,I was also connected to a huge insulin pump to clean and treat my blood,The DNS use come twice daily to the acute heart ward to read the numbers from the CGM and calibrate the pump for insulin dosage and she explained how the CGM worked and let me look at print out of DATA she use get from the machine it was really interesting this was nearly 4 years ago, I do no two brits who use CGMs one has been using one for nearly 12 years and would not be parted from it,Sensor can be worn inner or out thigh or on the arms or on the tummy,I also have two friends in the states who use them,First one had her first in 2001 and is on her 4 machine and is very is every experienced with the technology she also been pumping 25 years also,As she said to me its how you use the DATA from machines to improve your overall use of insulin and keeping stable Bg numbers,The other has only been using a CGM for past 18 months and has had diabetes 50 years she is 53 and was originally from UK but moved to the US 35 years ago,Clare suffered from awful dawn phenomenon for nearly 25 years and she is hypo unaware and only until her insurance told her that she needed one as she ended up in coma,She use test in evening her BGs when her hubby use to check her out three times a night,she went into coma her husband was away,She also went on the CGM under protest as she hated the idea of being hooked up to sensor but how she has changed,Her hubby was telling that they now both have decent nights sleep for first times in there marriage and Clare has not suffered with DP because of the alarm system that will wake her up if she starts going low and her hubby does not have worry so he not as stressed, Am my self hypo unaware but dont get DP to often,But i have looked at getting one and if i did i would go for the G4 from dexcom and it really is nice bit of kit,That is what the two ladies i no use also and i have a work colleague in HK who i work with who uses one,Most people think she is carrying a i phone,It can also carry DATA through a app to your smartphone and laptop with live DATA,My DSN is right about one thing there is a 15 minute delay from readings with your blood,When you finger blood test it downloads the DATA to the CGM that is how you change the sensor https://www.youtube.com/watch?v=KaN_iPP-wq8 you will have paste it into the browser Overall cost for the CGM and sensors and its sensors and transmitter where they make there money is around Â£1100 for starter kit,As my DSN said its rare NHS will fund such a thing as a CGM, I did researched four types of CGM and G4 one i liked but my endo and DSN want me to go onto a pump and again i would have learn how to use it but we will see am happy with MDI at moment.

Nov 21, 2013 novorapidboi26 1,819 posts	Topic: General Discussion / Continuous Blood Glucose Monitor DianeW said: For a week. . You can buy them though cany you but it seems a bit much to wear one permanently. The whole point is to wear one to discover how you should adjust insulin ismt it. That is the whole point yes, but some folk do self fund and use them all the time.....its not a common practice....... they can help pump users finely tune their basals overnight I would think more so than any other time, as normal basal testing can be done. It could also be used to see how certain foods affect the glucose levels.....

Nov 21, 2013 Phil Maskell 194 posts	Topic: General Discussion / Continuous Blood Glucose Monitor This looks good, if it ever happens, they talk of a CGM version too... http://www.integrity-app.com/ Not being invasive you could wear that (if the sort the size and look out) all the time, would be good for me while cycling, never sure if hypo or tired on long rides!

Nov 21, 2013 DianeW 115 posts	Topic: General Discussion / Continuous Blood Glucose Monitor For a week. . You can buy them though cany you but it seems a bit much to wear one permanently. The whole point is to wear one to discover how you should adjust insulin ismt it.

Nov 21, 2013 novorapidboi26 1,819 posts	Topic: General Discussion / 7-day waking average HC71 said: Hi I'm a newby only Graduated on the 08/11/13 my reading this morning was 4.6 Welcome to the forum, and congratulation on graduating from DAFNE..........

Nov 21, 2013 HC71 1 post	Topic: General Discussion / 7-day waking average Hi I'm a newby only Graduated on the 08/11/13 my reading this morning was 4.6

Nov 21, 2013 novorapidboi26 1,819 posts	Topic: General Discussion / 7-day waking average Its a pain when you need change the background dose, but also good that you need less insulin..... a test tonight on the 16u without food after would be interesting...........the sandwich and rolos may have pushed you up to 8.5......

Nov 21, 2013 novorapidboi26 1,819 posts	Topic: General Discussion / Continuous Blood Glucose Monitor How long will you be using it............? This is me assuming its a short term thing as funding one permanently is rarely heard of.......

Nov 21, 2013 DianeW 115 posts	Topic: General Discussion / Continuous Blood Glucose Monitor Yes I am going to get one in January. I've looked on the internet for info on it and watched videos on YouTube of how it works, how it is fitted etc so feel ok about it. I'm sure it will be an eye opener as to how my blood sugar is reacting. It is measured every 5 mins or something and you can get graphs and all sorts of lovely technical stuff! Something to look forward to!

Nov 21, 2013 mum2westiesGill 502 posts	Topic: General Discussion / 7-day waking average Wed 20.11 11.7 - 22:42pm - bedtime 3.3 - 10:17am - fasting - then after 5 (25g cho) jelly babies 4.1 @ 10:33am Thu 21.11 5.8 - 22:22pm - bedtime - reduced lantus (because of all the fasting lows) by 2u so from 18u to 16u - had corned beef sandwich 2 slices of bread for supper, eaten after bedtime test was done, but...... found a packet of rolos so also had 2 of these 8.5 - 08:38am - fasting lantus decreases: Tue 29.10 from 24u to 22u Sat 02.10 from 22u to 20u Tue 6.11 from 20u to 18u Wed 20.11 from 18u to 16u

Nov 21, 2013 novorapidboi26 1,819 posts	Topic: General Discussion / Continuous Blood Glucose Monitor Not had one personally or seen one in person, but I believe the sensor is similar to a pump cannula in size and in fitting. the sensor sits at a similar depth to the cannula and measures the glucose levels from the interstitial fluid as opposed to the blood. So I think if you were to compare your BG and CGM readings there would be a alight delay on the CGM, so its good for spotting patterns and I suppose with a little tweaking could be used all the time as a method of monitoring glucose levels. Are you going to be getting one....?

Nov 21, 2013 Louise1988 69 posts	Topic: General Discussion / Bladder neuropathy Hi Lisa. Has this been confirmed as a result of your diabetes?

Nov 21, 2013 Lisaraby 15 posts	Topic: General Discussion / Bladder neuropathy I'm guessing nobody else has got this problem but thanks anyway

Nov 20, 2013 JMoran1983 2 posts	Topic: Carbohydrate Counting / Eating out - help Hi Pauline, you may have estimated the CPs correctly but the effects of the fat (butter and cream) and protein from the fish may have caused the food to digest more slowly giving a delayed peak in blood glucose. If you ever see James Martin make mashed potato, you'll see it's equal parts potato and butter! Were you back in target 4-5 hours later? It's important that you don't react to high readings 2 hours post meal as the insulin would have still been working. It is always going to be an estimation when eating out and it's always better to underestimate if you're out and about and correct at the next meal if necessary.

Nov 20, 2013 NuMo 28 posts	Topic: Carbohydrate Counting / Eating out - help Hi Pauline We eat out regularly, and I still haven't got it right yet. The only listings for eating out are for the big chains such as McDonald's or Wetherspoon's which are not places I go to. As Novorapidboi says it is a guessing game which is made more complicated by the fact that some chefs will add sugar to "improve" the flavour. I once chose what I thought would be a nil dish only to find it unusually sweet and yes, experienced a massive spike afterwards. All I can suggest is give it your best guess and err on the upward side. Be prepared for a spike and deal accordingly. Don't beat yourself up if you get it wrong, after all you're outside your control zone. Make a note of where you were, what you chose and what value you gave it. Then add how close your estimation was so you know for another time. When you find yourself coming close, which you will, allow yourself a sense of achievement.

Nov 20, 2013 DianeW 115 posts	Topic: General Discussion / Continuous Blood Glucose Monitor Anyone had one of these fitted? If so, how is it fitted, how big is it, where on the body is it fitted? Thanks for any info.

Nov 19, 2013 Nat-Sav 15 posts	Topic: General Discussion / Coeliac Disease Louise1988 said: I've been tested for coeliac twice, both came back negative but I am still suspicious. I was first tested for coeliac 6mths before being diagnosed with diabetes. Thanks Louise. Why are you still suspicious? Did your doctor also suspect coeliac disease?

Nov 19, 2013 mum2westiesGill 502 posts	Topic: General Discussion / 7-day waking average Sat 16.11 8.6 - 22:15pm - bedtime 9.8 - 07:30am - fasting Sun 17.11 12.8 - 22:36pm - bedtime 5.2 - 11:06am - fasting Mon 18.11 14.3 - 22:25pm - bedtime 5.4 - 11:06am - fasting feeling really stressed at the moment Tue 19.11 10.2 - 22:31pm - bedtime 7.2 - 08:50am - fasting lantus decreases: Tue 29.10 from 24u to 22u Sat 02.10 from 22u to 20u Tue 6.11 from 20u to 18u

Nov 18, 2013 Matt Hewitt 8 posts	Topic: Carbohydrate Counting / Tim Tam Cheesecake Thanks

Nov 18, 2013 novorapidboi26 1,819 posts	Topic: Carbohydrate Counting / Tim Tam Cheesecake I used the myfitnespal website, and use the app daily,,,,,,,,,, this is what I got......some of the items brands may not match up to yours but it will be pretty close....... Time Tam Cheesecake: Calories: 5892 Carbs: 509 Fat: 381 Protein: 68 Sodium: 5415 Sugar: 427 All those numbers are in grams.........

Nov 18, 2013 novorapidboi26 1,819 posts	Topic: Carbohydrate Counting / Eating out - help what was your BG before your meal? 7 units may just of been good enough for the potato, there must of been other ingredients in there what was in the soup? its all a guessing game when out anyway, the more you do it, the better you become.......

Nov 18, 2013 novorapidboi26 1,819 posts	Topic: General Discussion / hypo on sundays Phils got it in one.........lol........... I would think it may be down to the different eating habits and/or activity levels.............alcohol maybe..........