Recent Posts - DAFNE Online

Sep 8, 2015

HelenP 218 posts

Hi Leigh,

This may not be what you are looking for, but, I have been on Metformin since 12/12/14. It has not been a happy relationship. I started on 1 x 500mg and this seemed to have no effect on my insulin demand. To address the insulin resistance this was raised to 1000mg/day and after a couple of weeks my insulin demand had gone down about 5%. Buoyed by this the Metformin was increased to 1500mg/day. My belly did not like it but I persisted with the 1500mg. My insulin demand further dropped (after some time) to a total of about 8-10%. Then about a month ago faced with visitors I decided I could not live happily with the discomfort (and bowel problems) and I reduced the Metformin to 500mg/day (original dose). It has taken about 3 weeks for my insulin demand to climb back to close to my original demand but the belly issues have resolved. I see my endocrinologist at the end of September and am thinking I will go off the Metformin as I do not believe the reduction in insulin is worth it. (8u/day!)

Bottom line is I did not experience instant results so maybe you ought to keep great records and when your DSN comes back dazzle them with the data.

Hang in there. Helen

Sep 7, 2015

Garry 328 posts

Topic: Site Development / Diary changes

Thanks Simon. Much more user friendly.
Regards
Garry

Sep 7, 2015

Alan 49 284 posts

Topic: Site Development / Diary changes

Looks alright to me - thanks Simon,

Sep 7, 2015

Nat-Sav 15 posts

Topic: Carbohydrate Counting / Restaurants - Nutritional Information

Rafa said:
Hi, the link above doesn't seem to be working for me. Any chance you could direct me to how I can find it on the uclh website please?

Hi there, the link still works fine for me. But to get to it from the UCLH homepage you click on Our Services - Children and young people's endocrinology - Diabetes - Understanding Nutrition (under the heading "Wellbeing") - Restaurants and food outlets with carbohydrate counted menus. Hope you can find it.

(P.S. Rather than putting the link on the Carb Links part of DAFNE, I decided to go through the list and put in each restaurant/outlet individually.)

Sep 7, 2015

Rafa 99 posts

Topic: Carbohydrate Counting / Restaurants - Nutritional Information

Hi, the link above doesn't seem to be working for me. Any chance you could direct me to how I can find it on the uclh website please?

Sep 7, 2015

Leigh40 2 posts

Topic: Questions for HCPs / Help!

I have recently changed to Levemir and am taking huge does with very little/no effect - 36 in the morning and 38 in the evening. I am taking maximum ratio doses and correct, does are not having any effect either. I have just been given metformin in the last few days to try and combat insulin resistance but so far no changes have occurred.

My DSN has just gone on holiday but has said that another thing that we could think about is going back to DAFNE basics with my insulin doses and reducing these down to see if that actually has an effect on your BGLs as your BGLs are still raised despite increasing doses. I'm not sure why this is a suggestion as surely that would just push my bs up even higher? I'd be grateful for any explanation you can give.

I'm totally frustrated !

Thanks

Leigh

Sep 7, 2015

DavidBlackman 6 posts

Topic: Carbohydrate Counting / CP free lunch

The advice on my course is to have some sort of carbs with each meal and dose accordingly, and may I remind that high fibre carbs are good for your bowels.

Sep 7, 2015

DavidBlackman 6 posts

Topic: Carbohydrate Counting / Corn on the cob

Because Corn on the Cob is fairly high in fibre I reduce my dose from my standard ratio. I think I add 1 or 2 units then see what it looks like 2 hours after eating, also depends on what was eaten with the corn.

Sep 7, 2015

DavidBlackman 6 posts

Topic: Carbohydrate Counting / Low GI bread

Hi Joan29
Low GI does not necessarily mean low carbs so you need to check. Low GI usually means a more complex type of carbs that take longer to digest sometimes because of a higher fibre content. Without looking at packet, eg if eating out, my standard is bread is 40% carbs by weight, therefore if you can weight the bread then times 40% to give you the carb content you will be pretty close. Carbs are carbs whichever way you look at it.
Cheers
David

Sep 7, 2015

Simon 578 posts

Topic: Site Development / Diary changes

I've made an update to the create multiple form, to hopefully improve the layout.

The time issue is also fixed - let me know if it works for you!

Sep 6, 2015

alturn 78 posts

Topic: Site Development / Diary changes

Doesn't look like it's just you. If I remember, I input two entries today using multiple section and they also show as an hour early, others are Ok, didn't check the times till read Stew B's post.

As a work round, add an hour to the input time Idea

Sep 6, 2015

Susanf 29 posts

Topic: General Discussion / Infection?

Hi Rich,

Best to check it out as not all infections (chest infection/sinus infection) raise my BS. Everyone responds differently to infection. Good Luck ðŸ€

Sep 6, 2015

Stew B 125 posts

Topic: Site Development / Diary changes

Hi, I've just noticed that when I enter the times of injections (using the 24 hr notation) for multiple entries, they end up showing in the diary as I hour earlier than I entered (e.g. I entered 2219 for my bedtime entry this evening, but it showed in the diary as 2119) I can correct entries individually using the edit function for single entries, but this is a real problem as I tend to enter several days at a time. Is it just me, or is there a glitch somewhere?

Sep 6, 2015

Jude 4 posts

Topic: General Discussion / Freestyle Libre

Having been travelling for the past year and missing a lot of news, I only found out about the Freestyle Libre a couple of weeks ago. I tried to buy one but they are not available except to existing customers, and the waiting list seems to be over 6 months now. I would (almost) kill for one of these, as my control is a nightmare. Is anyone else in the queue for one?
Crying or Very sad

Sep 5, 2015

derekh1965 95 posts

Topic: General Discussion / Problems with my diary

Hi Simon,
Thanks for your reply but it has sorted itself out now.
Regards
Derek

Sep 5, 2015

Annette Bell 72 posts

Topic: General Discussion / Apple watch

Hi. Is the app going to be available for the Apple watch eventually?

Sep 5, 2015

Simon 578 posts

Topic: Site Development / Diary changes

Ok thanks for your comments I'll get it fixed.

Sep 5, 2015

Simon 578 posts

Topic: General Discussion / Problems with my diary

Hi Derek,

Sorry about this we're just ironing out some issues with an upgrade to the site software - are you saying that the diary above displays OK, but when you look at it through the tools menu then it's incorrect?

If possible could you send a screenshot to [email protected]

Thanks,

Simon

Sep 4, 2015

derekh1965 95 posts

Topic: General Discussion / Problems with my diary

what!! when \I share my diary it shows everything normal, yet when I go to my blood glucose diary it is blank exceppt for the top part where you choose the date range and on the right hand side showing the colored icons.

Disn't realise I should have read the diary help. If this is the changes theold style was far easier to use.

Regards
Derek

Sep 4, 2015

derekh1965 95 posts

Topic: General Discussion / Problems with my diary

Hi,

Since the site updtate this is how my diary looks, with no fields to fill in etc. Tried Firefox and IE and both the same.

Regards Derek

Sep 4, 2015

Garry 328 posts

Topic: Site Development / Diary changes

Not very friendly on a PC for first time users as drop downs would have to be used for sites as Alan said. Long term users know the order of the site fields but it would help if the text could be seen in the field. Have a look yourself Simon and see what you think.
Regards
Garry

Sep 4, 2015

Alan 49 284 posts

Topic: Site Development / Diary changes

Simon
I use a bog-standard PC to enter my readings - no real problems, but the CP box could be lengthened slightly to accommodate (say) 0+2.5. The Site boxes only show the first 3 letters (not a real problem), but the Type box only shows the first letter - so with B, your not sure if you've got Before Lunch or before Dinner. Perhaps the Date and Time boxes could be shortened.

Alan

Sep 3, 2015

Simon 578 posts

Topic: General Discussion / Dosage auto-calculation in apps

Hi Bejt1,

Although the dosage calculation was useful I agree, to say that DAFNEOnline is of little use now is a bit unfair, we still have the Diary, Charts, Carb counter, Handbook and Forums which have proved useful to a lot of people over the past 7 years.

Secondly, Mark and I run this site and apps in our spare time, we both have jobs, families, lives etc. we devote a significant chunk of that time to develop and support the site with little incentive save to support our fellow DAFNE graduates. Taking on the MHRA would take up a significant further amount of time and I'd rather focus on making the site run smoothly. If you or anyone else would like to start a campaign or take on the MHRA then I for one would be happy to support you with the technical expertise and DAFNE Online knowledge required. You can contact me directly via site message or [email protected] and we can figure out how to get it started.

Simon

Sep 3, 2015

marke 686 posts

Topic: General Discussion / Dosage auto-calculation in apps

hi betj1, when you are prepared to post in an adult manner and discuss the issue sensibly then get back to us and we will explain who the MHRA are and why its an issue. If you wish to continue with insults and accusations then I will leave you to it,

Sep 3, 2015

Simon 578 posts

Topic: Site Development / Diary changes

Hi Alan,

We've updated the site to make it work better on multiple devices, is it causing you a problem?

Thanks,

Simon

Sep 8, 2015 HelenP 218 posts	Topic: Questions for HCPs / Help! Hi Leigh, This may not be what you are looking for, but, I have been on Metformin since 12/12/14. It has not been a happy relationship. I started on 1 x 500mg and this seemed to have no effect on my insulin demand. To address the insulin resistance this was raised to 1000mg/day and after a couple of weeks my insulin demand had gone down about 5%. Buoyed by this the Metformin was increased to 1500mg/day. My belly did not like it but I persisted with the 1500mg. My insulin demand further dropped (after some time) to a total of about 8-10%. Then about a month ago faced with visitors I decided I could not live happily with the discomfort (and bowel problems) and I reduced the Metformin to 500mg/day (original dose). It has taken about 3 weeks for my insulin demand to climb back to close to my original demand but the belly issues have resolved. I see my endocrinologist at the end of September and am thinking I will go off the Metformin as I do not believe the reduction in insulin is worth it. (8u/day!) Bottom line is I did not experience instant results so maybe you ought to keep great records and when your DSN comes back dazzle them with the data. Hang in there. Helen

Sep 7, 2015 Garry 328 posts	Topic: Site Development / Diary changes Thanks Simon. Much more user friendly. Regards Garry

Sep 7, 2015 Alan 49 284 posts	Topic: Site Development / Diary changes Looks alright to me - thanks Simon,

Sep 7, 2015 Nat-Sav 15 posts	Topic: Carbohydrate Counting / Restaurants - Nutritional Information Rafa said: Hi, the link above doesn't seem to be working for me. Any chance you could direct me to how I can find it on the uclh website please? Hi there, the link still works fine for me. But to get to it from the UCLH homepage you click on Our Services - Children and young people's endocrinology - Diabetes - Understanding Nutrition (under the heading "Wellbeing") - Restaurants and food outlets with carbohydrate counted menus. Hope you can find it. (P.S. Rather than putting the link on the Carb Links part of DAFNE, I decided to go through the list and put in each restaurant/outlet individually.)

Sep 7, 2015 Rafa 99 posts	Topic: Carbohydrate Counting / Restaurants - Nutritional Information Hi, the link above doesn't seem to be working for me. Any chance you could direct me to how I can find it on the uclh website please?

Sep 7, 2015 Leigh40 2 posts	Topic: Questions for HCPs / Help! I have recently changed to Levemir and am taking huge does with very little/no effect - 36 in the morning and 38 in the evening. I am taking maximum ratio doses and correct, does are not having any effect either. I have just been given metformin in the last few days to try and combat insulin resistance but so far no changes have occurred. My DSN has just gone on holiday but has said that another thing that we could think about is going back to DAFNE basics with my insulin doses and reducing these down to see if that actually has an effect on your BGLs as your BGLs are still raised despite increasing doses. I'm not sure why this is a suggestion as surely that would just push my bs up even higher? I'd be grateful for any explanation you can give. I'm totally frustrated ! Thanks Leigh

Sep 7, 2015 DavidBlackman 6 posts	Topic: Carbohydrate Counting / CP free lunch The advice on my course is to have some sort of carbs with each meal and dose accordingly, and may I remind that high fibre carbs are good for your bowels.

Sep 7, 2015 DavidBlackman 6 posts	Topic: Carbohydrate Counting / Corn on the cob Because Corn on the Cob is fairly high in fibre I reduce my dose from my standard ratio. I think I add 1 or 2 units then see what it looks like 2 hours after eating, also depends on what was eaten with the corn.

Sep 7, 2015 DavidBlackman 6 posts	Topic: Carbohydrate Counting / Low GI bread Hi Joan29 Low GI does not necessarily mean low carbs so you need to check. Low GI usually means a more complex type of carbs that take longer to digest sometimes because of a higher fibre content. Without looking at packet, eg if eating out, my standard is bread is 40% carbs by weight, therefore if you can weight the bread then times 40% to give you the carb content you will be pretty close. Carbs are carbs whichever way you look at it. Cheers David

Sep 7, 2015 Simon 578 posts	Topic: Site Development / Diary changes I've made an update to the create multiple form, to hopefully improve the layout. The time issue is also fixed - let me know if it works for you!

Sep 6, 2015 alturn 78 posts	Topic: Site Development / Diary changes Doesn't look like it's just you. If I remember, I input two entries today using multiple section and they also show as an hour early, others are Ok, didn't check the times till read Stew B's post. As a work round, add an hour to the input time

Sep 6, 2015 Susanf 29 posts	Topic: General Discussion / Infection? Hi Rich, Best to check it out as not all infections (chest infection/sinus infection) raise my BS. Everyone responds differently to infection. Good Luck ðŸ€

Sep 6, 2015 Stew B 125 posts	Topic: Site Development / Diary changes Hi, I've just noticed that when I enter the times of injections (using the 24 hr notation) for multiple entries, they end up showing in the diary as I hour earlier than I entered (e.g. I entered 2219 for my bedtime entry this evening, but it showed in the diary as 2119) I can correct entries individually using the edit function for single entries, but this is a real problem as I tend to enter several days at a time. Is it just me, or is there a glitch somewhere?

Sep 6, 2015 Jude 4 posts	Topic: General Discussion / Freestyle Libre Having been travelling for the past year and missing a lot of news, I only found out about the Freestyle Libre a couple of weeks ago. I tried to buy one but they are not available except to existing customers, and the waiting list seems to be over 6 months now. I would (almost) kill for one of these, as my control is a nightmare. Is anyone else in the queue for one?

Sep 5, 2015 derekh1965 95 posts	Topic: General Discussion / Problems with my diary Hi Simon, Thanks for your reply but it has sorted itself out now. Regards Derek

Sep 5, 2015 Annette Bell 72 posts	Topic: General Discussion / Apple watch Hi. Is the app going to be available for the Apple watch eventually?

Sep 5, 2015 Simon 578 posts	Topic: Site Development / Diary changes Ok thanks for your comments I'll get it fixed.

Sep 5, 2015 Simon 578 posts	Topic: General Discussion / Problems with my diary Hi Derek, Sorry about this we're just ironing out some issues with an upgrade to the site software - are you saying that the diary above displays OK, but when you look at it through the tools menu then it's incorrect? If possible could you send a screenshot to [email protected] Thanks, Simon

Sep 4, 2015 derekh1965 95 posts	Topic: General Discussion / Problems with my diary what!! when \I share my diary it shows everything normal, yet when I go to my blood glucose diary it is blank exceppt for the top part where you choose the date range and on the right hand side showing the colored icons. Disn't realise I should have read the diary help. If this is the changes theold style was far easier to use. Regards Derek

Sep 4, 2015 derekh1965 95 posts	Topic: General Discussion / Problems with my diary Hi, Since the site updtate this is how my diary looks, with no fields to fill in etc. Tried Firefox and IE and both the same. Regards Derek

Sep 4, 2015 Garry 328 posts	Topic: Site Development / Diary changes Not very friendly on a PC for first time users as drop downs would have to be used for sites as Alan said. Long term users know the order of the site fields but it would help if the text could be seen in the field. Have a look yourself Simon and see what you think. Regards Garry

Sep 4, 2015 Alan 49 284 posts	Topic: Site Development / Diary changes Simon I use a bog-standard PC to enter my readings - no real problems, but the CP box could be lengthened slightly to accommodate (say) 0+2.5. The Site boxes only show the first 3 letters (not a real problem), but the Type box only shows the first letter - so with B, your not sure if you've got Before Lunch or before Dinner. Perhaps the Date and Time boxes could be shortened. Alan

Sep 3, 2015 Simon 578 posts	Topic: General Discussion / Dosage auto-calculation in apps Hi Bejt1, Although the dosage calculation was useful I agree, to say that DAFNEOnline is of little use now is a bit unfair, we still have the Diary, Charts, Carb counter, Handbook and Forums which have proved useful to a lot of people over the past 7 years. Secondly, Mark and I run this site and apps in our spare time, we both have jobs, families, lives etc. we devote a significant chunk of that time to develop and support the site with little incentive save to support our fellow DAFNE graduates. Taking on the MHRA would take up a significant further amount of time and I'd rather focus on making the site run smoothly. If you or anyone else would like to start a campaign or take on the MHRA then I for one would be happy to support you with the technical expertise and DAFNE Online knowledge required. You can contact me directly via site message or [email protected] and we can figure out how to get it started. Simon

Sep 3, 2015 marke 686 posts	Topic: General Discussion / Dosage auto-calculation in apps hi betj1, when you are prepared to post in an adult manner and discuss the issue sensibly then get back to us and we will explain who the MHRA are and why its an issue. If you wish to continue with insults and accusations then I will leave you to it,

Sep 3, 2015 Simon 578 posts	Topic: Site Development / Diary changes Hi Alan, We've updated the site to make it work better on multiple devices, is it causing you a problem? Thanks, Simon