Recent Posts - DAFNE Online

Sep 10, 2015

Nicolejoy 2 posts

Hi there,

I'm after any advice from Type 1's who have been or are currently pregnant. Are there any things you think I should keep in mind or be aware of? I am working really hard to keep my sugars within target and to get my next HBA1C lower. I'm starting now, so if all goes well, my partner and I will be able to start trying early 2016. My HBA1C is currently 58 and I have heard that an HBA!C of 49-52 is ideal. I've had diabetes for 21 years and am on Novorapid and Levemir injections. Although I have put off going on a pump for sometime I would consider it for the benefit of myself through pregnancy and of course a baby.

Also are there relevant books out there published in the UK? I've found a few online but they are either American or aimed at medical professionals.

Any advice would be greatly appreciated!

Sep 10, 2015

Muncle 9 posts

Topic: General Discussion / Helpful info for when you run out of insulin On a Sunday!

Hi BeccyB/Alturn, I agree always going to the same Chemist is best and I always use the same one Wink

I've changed the heading now as this was on a Saturday Night/Sunday Morning and unfortunately my normal Chemist wasn't open so I went for the nearest one which I thought may have the best chance of having my insulin plus I had to do some shopping at Tesco's anyway Laughing

Sep 10, 2015

Phil Maskell 194 posts

Topic: General Discussion / Cyborg Times (new BG meter)

BeccyB, similar my delay was before holiday when I would have liked it the most, at least it swimming less of a worry Very Happy

Sep 9, 2015

Garry 328 posts

Topic: Site Development / Updated Forum Items

Whenever a new entry was made within a forum item, a green flag would appear in the PC list and it helped me to quickly catch up.
Once reviewed the marker disappeared.
It now seems that each time I open up the forums after a disconnect, the flags reappear even though I have reviewed the item.
I realise that I can review by time posted but I did find the previous marking method very helpful.
Would you have a look please Simon/Marke.
Regards
Garry

Sep 9, 2015

Emma79 6 posts

Topic: Questions ? / No QA Insulin with me....

I have forgotten my pen before and not noticed until I got to work.

I have a chemist near by who has helped me out on more than one occasion. They give you a pen at the charge of Â£20. Then when you have a prescription take it to the same chemist who will give you your Â£20 back and remove a pen from the 5 pack you get on prescription.

Sep 9, 2015

alturn 78 posts

Topic: Carbohydrate Counting / Fruit juice V fruit

I got the impression that fruit (unjuiced) was better than juice, due to tendency to drink more juice (so probably contains more CPs), and it lacks fibre in whole fruit which might contribute to feeling sated. But probably still better than commercial juices. But I like unsweetened stewed rhubarb so my tastes may be a bit odd Question

Sep 9, 2015

alturn 78 posts

Topic: General Discussion / Helpful info for when you run out of insulin On a Sunday!

Would it help to carry a copy of your prescription along with all the other stuff when you are away from normal chemist?

Sep 9, 2015

Brumfoodie 10 posts

Topic: Carbohydrate Counting / Eating in Japan - any tips?

I'm off to Japan in a few weeks and have not found many Japanese foods with carb values listed .I know that the standard Japanese rice is low GI and that sushi contains added sugars so I would allow 1CP for each piece. Noodles would be my "safe "option as I think the portions equate to pasta and they are serve with clear soup and vegetables. Is there anyone out there who has any information or links to suitable sites?
Cheers

Sep 9, 2015

Brumfoodie 10 posts

Topic: Carbohydrate Counting / Fruit juice V fruit

I would add up all the carbs in the fruit you are juicing -weigh rather than estimate - and make a note of the total for later reference. Juice everything and measure the weight of the juice. It will be far less than you'd expect. The weight in grammes will be the volume in millilitres .
To work out the CP: Divide total carbs by the weight/volume and multiply by 100.The figure you have is the carbs per 100ml/g. Divide by 10 for CP
Most juices are about 1CP per 100ml but smoothies with bananas and mango will be higher.

Sep 9, 2015

Brumfoodie 10 posts

Topic: Carbohydrate Counting / Corn on the cob

I eat loads of corn on the cob straight off the plants at this time of year. They are so sweet tasting that it is counterintuitive to ignore their theoretical carb content but that's what I do .I've not noticed a rise in BG later - but will monitor this and post any observations.

Sep 9, 2015

BeccyB 50 posts

Topic: General Discussion / Helpful info for when you run out of insulin On a Sunday!

I always use the same pharmacy so the staff know me and will trust me to get a prescription to them in the next day or so if I need supplies in an emergency. It's handy if the pharmacist knows you're diabetic if you go for over the counter remedies too as he'll point out anything I need to be aware of. I think it's well worth the trip to the local chemist rather than using the supermarket pharmacy (although obviously Ashby Tesco's were fab!)

Sep 9, 2015

BeccyB 50 posts

Topic: General Discussion / Cyborg Times (new BG meter)

yep, my last delivery was delayed and so I ended up going to Tenerife without a sensor - exactly the time it would've been most useful!!

They really need to get this sorted

Sep 8, 2015

marke 655 posts

Topic: General Discussion / Apple watch

if you provide one for us to test on Very Happy

Sep 8, 2015

Alan 49 280 posts

Topic: General Discussion / Diabetic jokes

The new meter called Libre Freestyle
Beats most other meters by a mile
But Abbott hadn't planned
For the enormous demand
So if you want one you'll wait quite a while.

Sep 8, 2015

Alan 49 280 posts

Topic: General Discussion / Freestyle Libre

Jude - have a look at the topic called 'Cyborg Times (New BG meter)'.

Sep 8, 2015

derekh1965 99 posts

Topic: Site Development / Problems with Mozilla Firefox

hi alturn,

thanks for your reply, the daffe site works fine in IE but I'm not a fan of IE. It is just annoying, but never mind not to worry.

Regards
Derek

Sep 8, 2015

Muncle 9 posts

Topic: General Discussion / Helpful info for when you run out of insulin On a Sunday!

Hi all,

Just thought I'd share my experience after running out of Levemir late on a Saturday Night Rolling Eyes

I had 1 cartridge of Levemir in the fridge and a small amount in my pen on Saturday night and then just before bed as always I do my test followed by BI and any corrections required..... Got my Levemir pen and wound it to what should have been 6 units but only went to 4, never mind I'll get my last one out of the fridge and warmed it up and then put on the side ready to swap it over, removed old cartridge and put down then went to pick up the new cartrdige but in my sleepy state managed to knock it on the floor where it spectacularly exploded DOH! Anyway my wife went into panic mode bless her and rang the walk in center who informed her to ring 111, after speaking to someone for some time she was told someone would ring back within 2 hours (It's now Tuesday and still not received a call) anyway I put my old cartridge in and injected the 4 units instead of 6 and suggested we both go to bed to which my good lady said she wanted to stay up....

Woke up the following morning did my test (which was a little higher than normal) and did some searching to see if anyone else had run out of Levemir or another BI and couldn't find anything apart from people who had run out of QA insulin and the advice ranged from going to A&E or a walk in center or to a chemist so I thought I'd search for the nearest one that was open which turned out to be Ashby Tesco's Shocked

All I can say is that the staff at the Chemist in Ashby Tesco's were absolutely fantastic, they assured me they would sort me out and kept checking that I was ok.... 20 mins later (after doing some shopping) they gave me a spare cartrdige of Levemir (Be warned though it is at the discretion of the Pharmacist as to whether they charge you or not, on this occasion I didn't get charged) Razz

The main thing to remember is don't panic, I know how frightening it can be to know you are out of Insulin when you think there is no chance of getting any but it's good to know the options Wink

Sep 8, 2015

alturn 78 posts

Topic: Site Development / Problems with Mozilla Firefox

I also use Firefox and DAFNE has been Ok ... but it sounds like a similar problem I've had with Argos site recently (other sites like BBC were fine), but Argos was Ok today when tried. My Firefox was updated recently, and was wondering if that was related. I don't remember having this problem before. My sister gets it frequently, she thinks it's related to their router/connection/ISP - very difficult to tell.

Could you try another browser?

Sorry can't help any further.

Sep 8, 2015

derekh1965 99 posts

Topic: Site Development / Problems with Mozilla Firefox

Hi,
I have been having problems with Firefox. When adding a diary entry I get a message informing me the connection was reset and a buttton to try again. In the past it would load the page when I try again but now it just shows the message connection was reset.again. Don't know if it's anything in Firefoxs settins.
Can anyone help.

Regards
Derek

Sep 8, 2015

HelenP 218 posts

Topic: Questions ? / Help!

Hi Leigh,

This may not be what you are looking for, but, I have been on Metformin since 12/12/14. It has not been a happy relationship. I started on 1 x 500mg and this seemed to have no effect on my insulin demand. To address the insulin resistance this was raised to 1000mg/day and after a couple of weeks my insulin demand had gone down about 5%. Buoyed by this the Metformin was increased to 1500mg/day. My belly did not like it but I persisted with the 1500mg. My insulin demand further dropped (after some time) to a total of about 8-10%. Then about a month ago faced with visitors I decided I could not live happily with the discomfort (and bowel problems) and I reduced the Metformin to 500mg/day (original dose). It has taken about 3 weeks for my insulin demand to climb back to close to my original demand but the belly issues have resolved. I see my endocrinologist at the end of September and am thinking I will go off the Metformin as I do not believe the reduction in insulin is worth it. (8u/day!)

Bottom line is I did not experience instant results so maybe you ought to keep great records and when your DSN comes back dazzle them with the data.

Hang in there. Helen

Sep 7, 2015

Garry 328 posts

Topic: Site Development / Diary changes

Thanks Simon. Much more user friendly.
Regards
Garry

Sep 7, 2015

Alan 49 280 posts

Topic: Site Development / Diary changes

Looks alright to me - thanks Simon,

Sep 7, 2015

Nat-Sav 14 posts

Topic: Carbohydrate Counting / Restaurants - Nutritional Information

Rafa said:
Hi, the link above doesn't seem to be working for me. Any chance you could direct me to how I can find it on the uclh website please?

Hi there, the link still works fine for me. But to get to it from the UCLH homepage you click on Our Services - Children and young people's endocrinology - Diabetes - Understanding Nutrition (under the heading "Wellbeing") - Restaurants and food outlets with carbohydrate counted menus. Hope you can find it.

(P.S. Rather than putting the link on the Carb Links part of DAFNE, I decided to go through the list and put in each restaurant/outlet individually.)

Sep 7, 2015

Rafa 99 posts

Topic: Carbohydrate Counting / Restaurants - Nutritional Information

Hi, the link above doesn't seem to be working for me. Any chance you could direct me to how I can find it on the uclh website please?

Sep 7, 2015

Leigh40 2 posts

Topic: Questions ? / Help!

I have recently changed to Levemir and am taking huge does with very little/no effect - 36 in the morning and 38 in the evening. I am taking maximum ratio doses and correct, does are not having any effect either. I have just been given metformin in the last few days to try and combat insulin resistance but so far no changes have occurred.

My DSN has just gone on holiday but has said that another thing that we could think about is going back to DAFNE basics with my insulin doses and reducing these down to see if that actually has an effect on your BGLs as your BGLs are still raised despite increasing doses. I'm not sure why this is a suggestion as surely that would just push my bs up even higher? I'd be grateful for any explanation you can give.

I'm totally frustrated !

Thanks

Leigh

Sep 10, 2015 Nicolejoy 2 posts	Topic: Questions ? / Pregnancy advice Hi there, I'm after any advice from Type 1's who have been or are currently pregnant. Are there any things you think I should keep in mind or be aware of? I am working really hard to keep my sugars within target and to get my next HBA1C lower. I'm starting now, so if all goes well, my partner and I will be able to start trying early 2016. My HBA1C is currently 58 and I have heard that an HBA!C of 49-52 is ideal. I've had diabetes for 21 years and am on Novorapid and Levemir injections. Although I have put off going on a pump for sometime I would consider it for the benefit of myself through pregnancy and of course a baby. Also are there relevant books out there published in the UK? I've found a few online but they are either American or aimed at medical professionals. Any advice would be greatly appreciated!

Sep 10, 2015 Muncle 9 posts	Topic: General Discussion / Helpful info for when you run out of insulin On a Sunday! Hi BeccyB/Alturn, I agree always going to the same Chemist is best and I always use the same one I've changed the heading now as this was on a Saturday Night/Sunday Morning and unfortunately my normal Chemist wasn't open so I went for the nearest one which I thought may have the best chance of having my insulin plus I had to do some shopping at Tesco's anyway

Sep 10, 2015 Phil Maskell 194 posts	Topic: General Discussion / Cyborg Times (new BG meter) BeccyB, similar my delay was before holiday when I would have liked it the most, at least it swimming less of a worry

Sep 9, 2015 Garry 328 posts	Topic: Site Development / Updated Forum Items Whenever a new entry was made within a forum item, a green flag would appear in the PC list and it helped me to quickly catch up. Once reviewed the marker disappeared. It now seems that each time I open up the forums after a disconnect, the flags reappear even though I have reviewed the item. I realise that I can review by time posted but I did find the previous marking method very helpful. Would you have a look please Simon/Marke. Regards Garry

Sep 9, 2015 Emma79 6 posts	Topic: Questions ? / No QA Insulin with me.... I have forgotten my pen before and not noticed until I got to work. I have a chemist near by who has helped me out on more than one occasion. They give you a pen at the charge of Â£20. Then when you have a prescription take it to the same chemist who will give you your Â£20 back and remove a pen from the 5 pack you get on prescription.

Sep 9, 2015 alturn 78 posts	Topic: Carbohydrate Counting / Fruit juice V fruit I got the impression that fruit (unjuiced) was better than juice, due to tendency to drink more juice (so probably contains more CPs), and it lacks fibre in whole fruit which might contribute to feeling sated. But probably still better than commercial juices. But I like unsweetened stewed rhubarb so my tastes may be a bit odd

Sep 9, 2015 alturn 78 posts	Topic: General Discussion / Helpful info for when you run out of insulin On a Sunday! Would it help to carry a copy of your prescription along with all the other stuff when you are away from normal chemist?

Sep 9, 2015 Brumfoodie 10 posts	Topic: Carbohydrate Counting / Eating in Japan - any tips? I'm off to Japan in a few weeks and have not found many Japanese foods with carb values listed .I know that the standard Japanese rice is low GI and that sushi contains added sugars so I would allow 1CP for each piece. Noodles would be my "safe "option as I think the portions equate to pasta and they are serve with clear soup and vegetables. Is there anyone out there who has any information or links to suitable sites? Cheers

Sep 9, 2015 Brumfoodie 10 posts	Topic: Carbohydrate Counting / Fruit juice V fruit I would add up all the carbs in the fruit you are juicing -weigh rather than estimate - and make a note of the total for later reference. Juice everything and measure the weight of the juice. It will be far less than you'd expect. The weight in grammes will be the volume in millilitres . To work out the CP: Divide total carbs by the weight/volume and multiply by 100.The figure you have is the carbs per 100ml/g. Divide by 10 for CP Most juices are about 1CP per 100ml but smoothies with bananas and mango will be higher.

Sep 9, 2015 Brumfoodie 10 posts	Topic: Carbohydrate Counting / Corn on the cob I eat loads of corn on the cob straight off the plants at this time of year. They are so sweet tasting that it is counterintuitive to ignore their theoretical carb content but that's what I do .I've not noticed a rise in BG later - but will monitor this and post any observations.

Sep 9, 2015 BeccyB 50 posts	Topic: General Discussion / Helpful info for when you run out of insulin On a Sunday! I always use the same pharmacy so the staff know me and will trust me to get a prescription to them in the next day or so if I need supplies in an emergency. It's handy if the pharmacist knows you're diabetic if you go for over the counter remedies too as he'll point out anything I need to be aware of. I think it's well worth the trip to the local chemist rather than using the supermarket pharmacy (although obviously Ashby Tesco's were fab!)

Sep 9, 2015 BeccyB 50 posts	Topic: General Discussion / Cyborg Times (new BG meter) yep, my last delivery was delayed and so I ended up going to Tenerife without a sensor - exactly the time it would've been most useful!! They really need to get this sorted

Sep 8, 2015 marke 655 posts	Topic: General Discussion / Apple watch if you provide one for us to test on

Sep 8, 2015 Alan 49 280 posts	Topic: General Discussion / Diabetic jokes The new meter called Libre Freestyle Beats most other meters by a mile But Abbott hadn't planned For the enormous demand So if you want one you'll wait quite a while.

Sep 8, 2015 Alan 49 280 posts	Topic: General Discussion / Freestyle Libre Jude - have a look at the topic called 'Cyborg Times (New BG meter)'.

Sep 8, 2015 derekh1965 99 posts	Topic: Site Development / Problems with Mozilla Firefox hi alturn, thanks for your reply, the daffe site works fine in IE but I'm not a fan of IE. It is just annoying, but never mind not to worry. Regards Derek

Sep 8, 2015 Muncle 9 posts	Topic: General Discussion / Helpful info for when you run out of insulin On a Sunday! Hi all, Just thought I'd share my experience after running out of Levemir late on a Saturday Night I had 1 cartridge of Levemir in the fridge and a small amount in my pen on Saturday night and then just before bed as always I do my test followed by BI and any corrections required..... Got my Levemir pen and wound it to what should have been 6 units but only went to 4, never mind I'll get my last one out of the fridge and warmed it up and then put on the side ready to swap it over, removed old cartridge and put down then went to pick up the new cartrdige but in my sleepy state managed to knock it on the floor where it spectacularly exploded DOH! Anyway my wife went into panic mode bless her and rang the walk in center who informed her to ring 111, after speaking to someone for some time she was told someone would ring back within 2 hours (It's now Tuesday and still not received a call) anyway I put my old cartridge in and injected the 4 units instead of 6 and suggested we both go to bed to which my good lady said she wanted to stay up.... Woke up the following morning did my test (which was a little higher than normal) and did some searching to see if anyone else had run out of Levemir or another BI and couldn't find anything apart from people who had run out of QA insulin and the advice ranged from going to A&E or a walk in center or to a chemist so I thought I'd search for the nearest one that was open which turned out to be Ashby Tesco's All I can say is that the staff at the Chemist in Ashby Tesco's were absolutely fantastic, they assured me they would sort me out and kept checking that I was ok.... 20 mins later (after doing some shopping) they gave me a spare cartrdige of Levemir (Be warned though it is at the discretion of the Pharmacist as to whether they charge you or not, on this occasion I didn't get charged) The main thing to remember is don't panic, I know how frightening it can be to know you are out of Insulin when you think there is no chance of getting any but it's good to know the options

Sep 8, 2015 alturn 78 posts	Topic: Site Development / Problems with Mozilla Firefox I also use Firefox and DAFNE has been Ok ... but it sounds like a similar problem I've had with Argos site recently (other sites like BBC were fine), but Argos was Ok today when tried. My Firefox was updated recently, and was wondering if that was related. I don't remember having this problem before. My sister gets it frequently, she thinks it's related to their router/connection/ISP - very difficult to tell. Could you try another browser? Sorry can't help any further.

Sep 8, 2015 derekh1965 99 posts	Topic: Site Development / Problems with Mozilla Firefox Hi, I have been having problems with Firefox. When adding a diary entry I get a message informing me the connection was reset and a buttton to try again. In the past it would load the page when I try again but now it just shows the message connection was reset.again. Don't know if it's anything in Firefoxs settins. Can anyone help. Regards Derek

Sep 8, 2015 HelenP 218 posts	Topic: Questions ? / Help! Hi Leigh, This may not be what you are looking for, but, I have been on Metformin since 12/12/14. It has not been a happy relationship. I started on 1 x 500mg and this seemed to have no effect on my insulin demand. To address the insulin resistance this was raised to 1000mg/day and after a couple of weeks my insulin demand had gone down about 5%. Buoyed by this the Metformin was increased to 1500mg/day. My belly did not like it but I persisted with the 1500mg. My insulin demand further dropped (after some time) to a total of about 8-10%. Then about a month ago faced with visitors I decided I could not live happily with the discomfort (and bowel problems) and I reduced the Metformin to 500mg/day (original dose). It has taken about 3 weeks for my insulin demand to climb back to close to my original demand but the belly issues have resolved. I see my endocrinologist at the end of September and am thinking I will go off the Metformin as I do not believe the reduction in insulin is worth it. (8u/day!) Bottom line is I did not experience instant results so maybe you ought to keep great records and when your DSN comes back dazzle them with the data. Hang in there. Helen

Sep 7, 2015 Garry 328 posts	Topic: Site Development / Diary changes Thanks Simon. Much more user friendly. Regards Garry

Sep 7, 2015 Alan 49 280 posts	Topic: Site Development / Diary changes Looks alright to me - thanks Simon,

Sep 7, 2015 Nat-Sav 14 posts	Topic: Carbohydrate Counting / Restaurants - Nutritional Information Rafa said: Hi, the link above doesn't seem to be working for me. Any chance you could direct me to how I can find it on the uclh website please? Hi there, the link still works fine for me. But to get to it from the UCLH homepage you click on Our Services - Children and young people's endocrinology - Diabetes - Understanding Nutrition (under the heading "Wellbeing") - Restaurants and food outlets with carbohydrate counted menus. Hope you can find it. (P.S. Rather than putting the link on the Carb Links part of DAFNE, I decided to go through the list and put in each restaurant/outlet individually.)

Sep 7, 2015 Rafa 99 posts	Topic: Carbohydrate Counting / Restaurants - Nutritional Information Hi, the link above doesn't seem to be working for me. Any chance you could direct me to how I can find it on the uclh website please?

Sep 7, 2015 Leigh40 2 posts	Topic: Questions ? / Help! I have recently changed to Levemir and am taking huge does with very little/no effect - 36 in the morning and 38 in the evening. I am taking maximum ratio doses and correct, does are not having any effect either. I have just been given metformin in the last few days to try and combat insulin resistance but so far no changes have occurred. My DSN has just gone on holiday but has said that another thing that we could think about is going back to DAFNE basics with my insulin doses and reducing these down to see if that actually has an effect on your BGLs as your BGLs are still raised despite increasing doses. I'm not sure why this is a suggestion as surely that would just push my bs up even higher? I'd be grateful for any explanation you can give. I'm totally frustrated ! Thanks Leigh