Recent Posts - DAFNE Online

Aug 27, 2015

Ellen 10 posts

Topic: General Discussion / High blood sugars

Hi

I've checked for ketones and haven't had any even when I've been 18 or over. They have been over 10 for days now hopefully the nurses will get back to me soon and thank you.

Ellen

Aug 27, 2015

alturn 78 posts

Topic: General Discussion / High blood sugars

Could you picked up an infection of some sort? May be worth checking for ketones if "high" (I would use the DAFNE definition for this, but I think of anything over 10 as high, don't know what you regard as high).

If "high" it can be more difficult to get BGs down so correction ratios and BI may need to changed.

Hope this helps.
J

Aug 27, 2015

Ellen 10 posts

Topic: General Discussion / High blood sugars

Hello

For the past 4/5 days I've had high blood sugars, have managed to get them down to 8 and then th went straight back up again, I have rang the diabetic nurses but still waiting on a phone call back and just wondered if any of you could help. I have changed all my insulin cartridges and I went to a festival at he weekend so thought it might be that they had gone off but I'm still having problems. I have upped my novorapid doses with all meals by 30% and will try upping my levimir tonight but the problem is none of my correction doses are working for some reason has any one else experienced this?

Thanks
Ellen

Aug 26, 2015

Annette Bell 72 posts

Topic: General Discussion / Dosage auto-calculation in apps

I have sent this e-mail to the address you provided. Probably won't make any difference, but I wanted to make my feelings, and opinion, known!:

I am a DAFNE graduate and have been using this app ever since completeing the DAFNE course in 2008. I was appalled when I realised that the latest update has removed the auto calculation of QA insulin from the app.The auto calculation of QA insulin is an invaluable component of this app as I have variable insulin doses depending on time of day. It also reminds me to reduce my dosage if my BG is low, especially before driving, as a low BG when driving is extremely dangerous for myself, and other road users! I think it is very short sighted of you to insist that this part of the app be removed as it will make diabetic control for DAFNE graduates more difficult and, therefore, could, in the long term, end up costing the NHS more money in hospital admissions. Obviously, we donâ€™t rely entirely on this calculation, and use it at our discretion, but it is a useful guide in moments of uncertainty, e.g when going hypoglycaemic! It is not a â€œmedical deviceâ€ as it does not have to be followed strictly. It is, as I say, just a very useful guide, which can be ignored if required. There are obviously no diabetics in the team which made this decision. Maybe you should talk to some, especially DAFNE graduates!
I have spoken to my diabetes nurse and she thinks this is a ludicrous decision too. She doesnâ€™t see how this can be classed as a medical device either.

I sincerely hope you will rethink & reverse this decision.

Annette Bell (Mrs)

Aug 26, 2015

Stew B 125 posts

Topic: General Discussion / Dafne diary and melt down

Hi

I've posted before to say that you can get "official" DAFNE diaries via the DAFNE website: http://www.dafne.uk.com/dafneshop-64.html . 75p each.

Really good service too.

Stew

Aug 25, 2015

Paul Patterson 7 posts

Topic: General Discussion / Dosage auto-calculation in apps

Apparently there is another app called RapidCalc. It's only on iOS, is a paid app $10, it doesn't link with the DAFNE app. However, it's been based on the smart features of an insulin pump so it's possibly more reliable than other insulin bolus calculators.

Aug 25, 2015

dolly girl 1 post

Topic: General Discussion / Dosage auto-calculation in apps

Hi Everyone, Yes I'm very disappointed regarding the removal of the auto calculation as this is an invaluable tool! Noboby at the hospital was aware of this removal either! Rolling Eyes

Aug 25, 2015

Paul Patterson 7 posts

Topic: General Discussion / Dosage auto-calculation in apps

bummer as it was a very useful tool after completing the DAFNE NZ course, I noticed my control lis bit all over the show after the update, the calc helped me keep in touch with my CP calculations.

Aug 25, 2015

alturn 78 posts

Topic: General Discussion / Dafne diary and melt down

You might get diaries from your meter supplier.

Aug 25, 2015

dunkers7 24 posts

Topic: General Discussion / Dafne diary and melt down

Hi Martine,

Sounds like it's sorted now but may also be worth having a look at the diarys from diabetes.co.uk for the future. Not quite as good for space as the DAFNE ones but if you have access to a printer you could print off a few sheets quickly:

http://www.diabetes.co.uk/downloads/blood-glucose-monitoring-diary/weekly-diary-with-doses.pdf

Aug 24, 2015

Frazer 16 posts

Topic: General Discussion / Cyborg Times (new BG meter)

Yes - ordered last Monday and they say will be delivered end of next week.

Aug 24, 2015

Politikaal 6 posts

Topic: General Discussion / Dosage auto-calculation in apps

This really blows, it takes away a lot of functionality from the App. I agree with all the above comments and can imagine the developers frustrations. Maintain the rage guys and hopefully you can get the required certification, or get around it with a "suggested" dose or some watertight disclaimer when you first install.

Aug 22, 2015

AMcD 38 posts

Topic: General Discussion / Infection?

An infection will raise BG for sure. I could need about 3 times as much insulin as normal with an infection. Hasn't happened to often thankfully. If your BG are raised keep an eye on ketones...

Aug 22, 2015

martine77 2 posts

Topic: General Discussion / Dafne diary and melt down

Hi it's ok my diary came in the post today. I do use dafne online but prefer to write in diary.

Aug 22, 2015

sjohno 37 posts

Topic: General Discussion / Dafne diary and melt down

So I don't mean to be rude but you rang your local DAFNE centre for a DAFNE BG Monitoring Diary? Are you able to pick it up from them?

You can make your own if you have Excel or you can use the DAFNE site 'My Blood Glucose Diary.

Failing that go to

http://www.dafne.uk.com/375.html

where you can order DAFNE BG Monitoring Diaries in bulk. You do have to pay for these though.

Hope the above helps.

Aug 22, 2015

martine77 2 posts

Topic: General Discussion / Dafne diary and melt down

Hi I have had a bit of a melt down this week as been stressed with schools going back. I don't have a diary but phoned and left a message a week past Friday yo ask if one could be sent out but no response. I've skipped meals, tested blood on occasion but took insulin when eating. I'm hoping that's me back on track as don't want to feel rubbish anymore. Could someone please send me a diary out.
Thanks martine

Aug 21, 2015

RichMills 2 posts

Topic: General Discussion / Infection?

Hello all,

New to the site as just completed DAFNE which I found informing, just a quick question I've been having a pain in my lower abdomen/groin area, I am unsure if this is an "inside" infection or a muscle injury perhaps? Sorry it's a bit vague! However would this show on my blood glucose results if it was an infection of some kind?

Thanks for any advice
Rich

Aug 20, 2015

AMcD 38 posts

Topic: General Discussion / Repeat urine requests

If your worried about it you should ask the reason why you are having to give repeat samples. I am 26 years in at this stage - repeat tests for urine samples have not come up for me before. As far as I know the standard urine tests at a diabetes clinic include for glucose, ketones and protien. Kidneys filter your blood and the waste product is urine. Urine should be free of protein. Glucose and ketones are more accurately checked using a glucose or ketone monitor. It seems most likely to me that it could be a protein query??

You could ask the question under the hcp section ......?

Hope all is ok. Andrew

Aug 20, 2015

AMcD 38 posts

Topic: General Discussion / Repeat urine requests

If your worried about it you should ask the reason why you are having to give repeat samples. I am 26 years in at this stage - repeat tests for urine samples have not come up for me before. As far as I know the standard urine tests at a diabetes clinic include for glucose, ketones and protien. Kidneys filter your blood and the waste product is urine. Urine should be free of protein. Glucose and ketones are more accurately checked using a glucose or ketone monitor. It seems most likely to me that it could be a protein query??

You could ask the question under the hcp section ......?

Hope all is ok. Andrew

Aug 20, 2015

AMcD 38 posts

Topic: General Discussion / Repeat urine requests

If your worried about it you should ask the reason why you are having to give repeat samples. I am 26 years in at this stage - repeat tests for urine samples have not come up for me before. As far as I know the standard urine tests at a diabetes clinic include for glucose, ketones and protien. Kidneys filter your blood and the waste product is urine. Urine should be free of protein. Glucose and ketones are more accurately checked using a glucose or ketone monitor. It seems most likely to me that it could be a protein query??

You could ask the question under the hcp section ......?

Hope all is ok. Andrew

Aug 20, 2015

Leigh40 2 posts

Topic: General Discussion / Repeat urine requests

Does anyone get repeat requests for urine samples - after my March review I was asked to supply a sample three times - whatever they measure was reducing each time. Just had my August bloods/urine taken and I need to provide another sample next week. I'm freaking out a bit. Does this happen to anyone else ?

Aug 20, 2015

Simon 578 posts

Topic: DAFNE Online Mobile / iPhone 6

Hi Annette, I'm afraid we were forced to by the government - more information can be found here http://www.dafneonline.co.uk/forums/1/topics/2769

Aug 27, 2015 Ellen 10 posts	Topic: General Discussion / High blood sugars Hi I've checked for ketones and haven't had any even when I've been 18 or over. They have been over 10 for days now hopefully the nurses will get back to me soon and thank you. Ellen

Aug 27, 2015 alturn 78 posts	Topic: General Discussion / High blood sugars Could you picked up an infection of some sort? May be worth checking for ketones if "high" (I would use the DAFNE definition for this, but I think of anything over 10 as high, don't know what you regard as high). If "high" it can be more difficult to get BGs down so correction ratios and BI may need to changed. Hope this helps. J

Aug 27, 2015 Ellen 10 posts	Topic: General Discussion / High blood sugars Hello For the past 4/5 days I've had high blood sugars, have managed to get them down to 8 and then th went straight back up again, I have rang the diabetic nurses but still waiting on a phone call back and just wondered if any of you could help. I have changed all my insulin cartridges and I went to a festival at he weekend so thought it might be that they had gone off but I'm still having problems. I have upped my novorapid doses with all meals by 30% and will try upping my levimir tonight but the problem is none of my correction doses are working for some reason has any one else experienced this? Thanks Ellen

Aug 26, 2015 Annette Bell 72 posts	Topic: General Discussion / Dosage auto-calculation in apps I have sent this e-mail to the address you provided. Probably won't make any difference, but I wanted to make my feelings, and opinion, known!: I am a DAFNE graduate and have been using this app ever since completeing the DAFNE course in 2008. I was appalled when I realised that the latest update has removed the auto calculation of QA insulin from the app.The auto calculation of QA insulin is an invaluable component of this app as I have variable insulin doses depending on time of day. It also reminds me to reduce my dosage if my BG is low, especially before driving, as a low BG when driving is extremely dangerous for myself, and other road users! I think it is very short sighted of you to insist that this part of the app be removed as it will make diabetic control for DAFNE graduates more difficult and, therefore, could, in the long term, end up costing the NHS more money in hospital admissions. Obviously, we donâ€™t rely entirely on this calculation, and use it at our discretion, but it is a useful guide in moments of uncertainty, e.g when going hypoglycaemic! It is not a â€œmedical deviceâ€ as it does not have to be followed strictly. It is, as I say, just a very useful guide, which can be ignored if required. There are obviously no diabetics in the team which made this decision. Maybe you should talk to some, especially DAFNE graduates! I have spoken to my diabetes nurse and she thinks this is a ludicrous decision too. She doesnâ€™t see how this can be classed as a medical device either. I sincerely hope you will rethink & reverse this decision. Annette Bell (Mrs)

Aug 26, 2015 Stew B 125 posts	Topic: General Discussion / Dafne diary and melt down Hi I've posted before to say that you can get "official" DAFNE diaries via the DAFNE website: http://www.dafne.uk.com/dafneshop-64.html . 75p each. Really good service too. Stew

Aug 25, 2015 Paul Patterson 7 posts	Topic: General Discussion / Dosage auto-calculation in apps Apparently there is another app called RapidCalc. It's only on iOS, is a paid app $10, it doesn't link with the DAFNE app. However, it's been based on the smart features of an insulin pump so it's possibly more reliable than other insulin bolus calculators.

Aug 25, 2015 dolly girl 1 post	Topic: General Discussion / Dosage auto-calculation in apps Hi Everyone, Yes I'm very disappointed regarding the removal of the auto calculation as this is an invaluable tool! Noboby at the hospital was aware of this removal either!

Aug 25, 2015 Paul Patterson 7 posts	Topic: General Discussion / Dosage auto-calculation in apps bummer as it was a very useful tool after completing the DAFNE NZ course, I noticed my control lis bit all over the show after the update, the calc helped me keep in touch with my CP calculations.

Aug 25, 2015 alturn 78 posts	Topic: General Discussion / Dafne diary and melt down You might get diaries from your meter supplier.

Aug 25, 2015 dunkers7 24 posts	Topic: General Discussion / Dafne diary and melt down Hi Martine, Sounds like it's sorted now but may also be worth having a look at the diarys from diabetes.co.uk for the future. Not quite as good for space as the DAFNE ones but if you have access to a printer you could print off a few sheets quickly: http://www.diabetes.co.uk/downloads/blood-glucose-monitoring-diary/weekly-diary-with-doses.pdf

Aug 24, 2015 Frazer 16 posts	Topic: General Discussion / Cyborg Times (new BG meter) Yes - ordered last Monday and they say will be delivered end of next week.

Aug 24, 2015 Politikaal 6 posts	Topic: General Discussion / Dosage auto-calculation in apps This really blows, it takes away a lot of functionality from the App. I agree with all the above comments and can imagine the developers frustrations. Maintain the rage guys and hopefully you can get the required certification, or get around it with a "suggested" dose or some watertight disclaimer when you first install.

Aug 22, 2015 AMcD 38 posts	Topic: General Discussion / Infection? An infection will raise BG for sure. I could need about 3 times as much insulin as normal with an infection. Hasn't happened to often thankfully. If your BG are raised keep an eye on ketones...

Aug 22, 2015 martine77 2 posts	Topic: General Discussion / Dafne diary and melt down Hi it's ok my diary came in the post today. I do use dafne online but prefer to write in diary.

Aug 22, 2015 sjohno 37 posts	Topic: General Discussion / Dafne diary and melt down So I don't mean to be rude but you rang your local DAFNE centre for a DAFNE BG Monitoring Diary? Are you able to pick it up from them? You can make your own if you have Excel or you can use the DAFNE site 'My Blood Glucose Diary. Failing that go to http://www.dafne.uk.com/375.html where you can order DAFNE BG Monitoring Diaries in bulk. You do have to pay for these though. Hope the above helps.

Aug 22, 2015 martine77 2 posts	Topic: General Discussion / Dafne diary and melt down Hi I have had a bit of a melt down this week as been stressed with schools going back. I don't have a diary but phoned and left a message a week past Friday yo ask if one could be sent out but no response. I've skipped meals, tested blood on occasion but took insulin when eating. I'm hoping that's me back on track as don't want to feel rubbish anymore. Could someone please send me a diary out. Thanks martine

Aug 21, 2015 RichMills 2 posts	Topic: General Discussion / Infection? Hello all, New to the site as just completed DAFNE which I found informing, just a quick question I've been having a pain in my lower abdomen/groin area, I am unsure if this is an "inside" infection or a muscle injury perhaps? Sorry it's a bit vague! However would this show on my blood glucose results if it was an infection of some kind? Thanks for any advice Rich

Aug 20, 2015 AMcD 38 posts	Topic: General Discussion / Repeat urine requests If your worried about it you should ask the reason why you are having to give repeat samples. I am 26 years in at this stage - repeat tests for urine samples have not come up for me before. As far as I know the standard urine tests at a diabetes clinic include for glucose, ketones and protien. Kidneys filter your blood and the waste product is urine. Urine should be free of protein. Glucose and ketones are more accurately checked using a glucose or ketone monitor. It seems most likely to me that it could be a protein query?? You could ask the question under the hcp section ......? Hope all is ok. Andrew

Aug 20, 2015 AMcD 38 posts	Topic: General Discussion / Repeat urine requests If your worried about it you should ask the reason why you are having to give repeat samples. I am 26 years in at this stage - repeat tests for urine samples have not come up for me before. As far as I know the standard urine tests at a diabetes clinic include for glucose, ketones and protien. Kidneys filter your blood and the waste product is urine. Urine should be free of protein. Glucose and ketones are more accurately checked using a glucose or ketone monitor. It seems most likely to me that it could be a protein query?? You could ask the question under the hcp section ......? Hope all is ok. Andrew

Aug 20, 2015 AMcD 38 posts	Topic: General Discussion / Repeat urine requests If your worried about it you should ask the reason why you are having to give repeat samples. I am 26 years in at this stage - repeat tests for urine samples have not come up for me before. As far as I know the standard urine tests at a diabetes clinic include for glucose, ketones and protien. Kidneys filter your blood and the waste product is urine. Urine should be free of protein. Glucose and ketones are more accurately checked using a glucose or ketone monitor. It seems most likely to me that it could be a protein query?? You could ask the question under the hcp section ......? Hope all is ok. Andrew

Aug 20, 2015 Leigh40 2 posts	Topic: General Discussion / Repeat urine requests Does anyone get repeat requests for urine samples - after my March review I was asked to supply a sample three times - whatever they measure was reducing each time. Just had my August bloods/urine taken and I need to provide another sample next week. I'm freaking out a bit. Does this happen to anyone else ?

Aug 20, 2015 Simon 578 posts	Topic: DAFNE Online Mobile / iPhone 6 Hi Annette, I'm afraid we were forced to by the government - more information can be found here http://www.dafneonline.co.uk/forums/1/topics/2769