Recent Posts - DAFNE Online

Feb 12, 2016

novorapidboi26 1,819 posts

Topic: Questions for HCPs / ratio calculator

ratio calcualtor?

never heard of it, are you looking for something to calculate your dose by simply adding a carb value..?

Feb 12, 2016

novorapidboi26 1,819 posts

Topic: General Discussion / Pump death?

what pump are you on?

is the clip removable?

i ask because my medtronic veo has a belt clip but it comes off, and it breaks at least once every 6 - 9 months.....they happily send a new one, but you could buy one too......

is our situation different...?

Feb 12, 2016

Kordula B 6 posts

Topic: Questions for HCPs / ratio calculator

please where can I find the ratio calculator sheet - thought it was in the hand book but isn't?

Feb 10, 2016

Geoff55 2 posts

Topic: General Discussion / Newby and not sure if I'm getting it right

Thanks
Not really feeling ill
It's a dental thing
Had a spot on day to day though
Just makes it more confusing

Feb 10, 2016

lucy1gus2 13 posts

Topic: Questions for HCPs / Travel to Sri Lanka

Am on a night flight with no doubt a late evening meal and arriving at destination at lunchtime.Time difference is about 5 hours and flight time is 10 hours.
What adjustments do I need to make? Normally Lantus am & pm and quick acting for mealtimes.
I am leaning towards no Lantus at night but what about morning ? Do I run high until I reach destination and back to normal ?
Any assistance appreciated
Thanks

Feb 10, 2016

Phil Maskell 194 posts

Topic: General Discussion / Newby and not sure if I'm getting it right

If you're ill and needing Antibiotics I would expect erratic BG, illness mess me up, normally run high with infection, but then over compensate and hypo.

Hope after the Antibiotics things level out.

Phil

Feb 10, 2016

Geoff55 2 posts

Topic: General Discussion / Newby and not sure if I'm getting it right

I'll be honest struggled at times with the course and since been having erratic levels
Been on Antibiotics twice could this be the reason?
Diagnosed December 2014 LADA
Course attended January 2016 Rolling Eyes

Feb 9, 2016

Victoria Kee... 1 post

Topic: General Discussion / Glucose results

My diary during DAFNE course Very Happy

Pleased with my results during DAFNE. Starting to pay off, glucose dropping into target.

Feb 8, 2016

Peter 109 posts

Topic: Questions for HCPs / freestyle libra

Trish, The other possibility is to ask the DSN at your next appointment whether they have any which can be borrowed. Some DAFNE centres are now offering this.That would at least give you some visibility of your 24x7 data and help you decide if you wanted to invest in one.

Feb 8, 2016

john day 54 posts

Topic: Questions for HCPs / Bendroflumethiazide effect

I have just been put on one 2.5 g tablet per day, taken at breakfast, of this diuretic and advised that one of the effects could be increased BG levels. These have indeed seemed to increase especially at bedtime and morning so that I am thinking of allocating a notional CP value to the tab to better adjust novorapid at meal time or maybe levemir twice a day.

Anybody else got any experience/quantitative info as a guide. My best guess at present is 2 CP per tab but why does effect appear in the evening after morning tab?

Feb 7, 2016

marke 686 posts

Topic: General Discussion / DAFNE Course Handbook

Hi,
Good question, who knows. The blunt answer is we have been asking for over 2 years for updated versions and despite repeated promises we have not received them. I suggest you all email [email protected] and ask them when they are going to release updated versions to DAFNEOnline.

Feb 7, 2016

omnision 1 post

Topic: General Discussion / DAFNE Course Handbook

I have recently completed a DAFNE course and notice that the online version of the Course Handbook is very out of date. Can we expect the online version to be updated in the near future?

Feb 5, 2016

Cduffy 2 posts

Topic: General Discussion / Newly pregnant - hypos

Hi Lynn,
Hope you are well.
I wondered if you could have one of the nurses take a look at my reading. I'm not sure whether to reduce my ratio or background.
I a, 7 weeks pregnant and having daily hypos after breakfast and lunch.

Thanks,

Feb 3, 2016

derekh1965 95 posts

Topic: General Discussion / Injections and prescriptions

Hi
Thanks for all your replies. Further to my not receiving a prescription I ordered Icontacted my GP through askmygp and explained the amounmt of daily injections I use and why. i received a phone call from my GP to tell me that due to my eplanation she was going to order me my needls and add extra.
Received my needles yesterday, 5 boxes!!
They should last a while.
Derek

Feb 3, 2016

Phil Maskell 194 posts

Topic: Questions for HCPs / freestyle libra

I'm not an HCP, but I can answer that, No. Abbott are trying to get it, but don't hold your breath Sad

That aside I do pay for it and find it really useful.

EDIT: NHS need to way up the cost of long term issues, my HbA1c has gone from 8ish to 5.9 since using it.

Feb 3, 2016

torana 53 posts

Topic: General Discussion / Injections and prescriptions

I really believed when reading about diabetics scrounging for needles for their next shot was a story for last century. In Australia, it was realised after many years the inequities of diabetics having to pay for needles and sharps bins whilst others in the community would be handed out these items for free. In fact, many diabetics were known to frequent clinics where needles and disposal containers were handed out to others with medical requirements such as HIV or methadone. What a sad state of affairs and Diabetes Australia fought a hard battle to give diabetics needles and strips under a national scheme at little or no cost. It is a basic right for diabetics to have needles and not have to beg to a doctor for extra supplies!

Feb 3, 2016

RichFreed 51 posts

Topic: General Discussion / Pump failure.

What a shame Helen.

I have had nothing but a stellar experience with Medtronic. PA hospital organised everything for me & an appointment was made for the switch to pump. The Medtronic rep was there for the initial instruction and setup (they would not make any suggestions for actual ratios or basal rates - they are not qualified for that). But I was prepared with my DAFNE ratios which I converted to grams per unit which I dropped straight into the pump and they were just about perfect. Basal took less than a week to tune.

I get just shy of 3 days out mine, my BASAL alone is set at about 80 units per day at the moment.

FYI Medtronic downloads are wireless.

Feb 2, 2016

HelenP 218 posts

Topic: General Discussion / Pump failure.

Thanks, Rich,

I have an Animas pump...long story but could not get Medtronic to respond when I initially went on a pump and thought that if that was indicative of their service, I would go with Animas who had been most attentive when I first broached the pump topic...

Regret the decision as the CDE they recommended did not program my pump properly and I had difficulties getting started. Subsequent CDEs then denied all responsibility for helping me as they had not done the initial "pump start".

I plan to swap to Medtronic ASAP as I use between 70-80 units most days and the cartridge needs changing every second day!!

As I wear the pump on my waist line at the back on my R side i have slowly narrowed the slot for the clip. I have clips but can not slide them onto the pump. The last time it was a battle to put it in but then when it came time to download the data could not get it off.
Thanks for the info re expected life span.

Helen

Feb 2, 2016

RichFreed 51 posts

Topic: General Discussion / Pump failure.

Your Private health will have a policy on replacement pumps. I'm with HCF and the last time I was notified of pump policy it was - every 5 years a replacement was covered & anything earlier was a co-payment pro-rata'd.

When I first got my Medtronic pump I was sure the inference was get a new one after 3 years. Later I was notified of the HCF policy (probably part of the letter they send send reminding you there is a 30day money back period if you find the Pump is not for you). When the 3 years was up I rang medtronic for advice, they stated that there was absolutely no reason why the pump would not last 5 years+. I am currently in my 4th year like you.

As for clip - You didn't state what pump you have. You should be able to buy them as an accessory from the pump supplier. I would be lucky to get 5 months out of the plastic ones from Medtronic the actual ratchet mechanism is plastic and simply wears out (usually a crack forms on the little actuator arm, eventually breaking off or the whole thing destroys itself if you get sufficiently hooked up on something.LOL). I splurged on the leather one & it has lasted nearly 3 years so far with no signs at all that its going to fail - Im pretty sure the clip mechanism is all metal.

Here's the link to the medtronic clips incase thats the pump you have.
http://shop.medtronic-diabetes.com.au/index.php?option=com_virtuemart&page=shop.browse&category_id=1&Itemid=116

Feb 2, 2016

Peter 109 posts

Topic: General Discussion / Injections and prescriptions

I'd suggest your first option is booking an appointment with your GP and use it to show your diary as above to demonstrate the number of needles you're using. Once you've explained the situation then hopefully the GP will be more responsive to your needs.

If that fails then try and get support from the DSN and/or consultant at your DAFNE centre.

Third (and last option) would be to either change GP or consider switching you snacks to lower CPs which don't require extra QA. Anything up to 1CP falls into that category.

Feb 12, 2016 novorapidboi26 1,819 posts	Topic: Questions for HCPs / ratio calculator ratio calcualtor? never heard of it, are you looking for something to calculate your dose by simply adding a carb value..?

Feb 12, 2016 novorapidboi26 1,819 posts	Topic: General Discussion / Pump death? what pump are you on? is the clip removable? i ask because my medtronic veo has a belt clip but it comes off, and it breaks at least once every 6 - 9 months.....they happily send a new one, but you could buy one too...... is our situation different...?

Feb 12, 2016 Kordula B 6 posts	Topic: Questions for HCPs / ratio calculator please where can I find the ratio calculator sheet - thought it was in the hand book but isn't?

Feb 10, 2016 Geoff55 2 posts	Topic: General Discussion / Newby and not sure if I'm getting it right Thanks Not really feeling ill It's a dental thing Had a spot on day to day though Just makes it more confusing

Feb 10, 2016 lucy1gus2 13 posts	Topic: Questions for HCPs / Travel to Sri Lanka Am on a night flight with no doubt a late evening meal and arriving at destination at lunchtime.Time difference is about 5 hours and flight time is 10 hours. What adjustments do I need to make? Normally Lantus am & pm and quick acting for mealtimes. I am leaning towards no Lantus at night but what about morning ? Do I run high until I reach destination and back to normal ? Any assistance appreciated Thanks

Feb 10, 2016 Phil Maskell 194 posts	Topic: General Discussion / Newby and not sure if I'm getting it right If you're ill and needing Antibiotics I would expect erratic BG, illness mess me up, normally run high with infection, but then over compensate and hypo. Hope after the Antibiotics things level out. Phil

Feb 10, 2016 Geoff55 2 posts	Topic: General Discussion / Newby and not sure if I'm getting it right I'll be honest struggled at times with the course and since been having erratic levels Been on Antibiotics twice could this be the reason? Diagnosed December 2014 LADA Course attended January 2016

Feb 9, 2016 Victoria Kee... 1 post	Topic: General Discussion / Glucose results My diary during DAFNE course Pleased with my results during DAFNE. Starting to pay off, glucose dropping into target.

Feb 8, 2016 Peter 109 posts	Topic: Questions for HCPs / freestyle libra Trish, The other possibility is to ask the DSN at your next appointment whether they have any which can be borrowed. Some DAFNE centres are now offering this.That would at least give you some visibility of your 24x7 data and help you decide if you wanted to invest in one.

Feb 8, 2016 john day 54 posts	Topic: Questions for HCPs / Bendroflumethiazide effect I have just been put on one 2.5 g tablet per day, taken at breakfast, of this diuretic and advised that one of the effects could be increased BG levels. These have indeed seemed to increase especially at bedtime and morning so that I am thinking of allocating a notional CP value to the tab to better adjust novorapid at meal time or maybe levemir twice a day. Anybody else got any experience/quantitative info as a guide. My best guess at present is 2 CP per tab but why does effect appear in the evening after morning tab?

Feb 7, 2016 marke 686 posts	Topic: General Discussion / DAFNE Course Handbook Hi, Good question, who knows. The blunt answer is we have been asking for over 2 years for updated versions and despite repeated promises we have not received them. I suggest you all email [email protected] and ask them when they are going to release updated versions to DAFNEOnline.

Feb 7, 2016 omnision 1 post	Topic: General Discussion / DAFNE Course Handbook I have recently completed a DAFNE course and notice that the online version of the Course Handbook is very out of date. Can we expect the online version to be updated in the near future?

Feb 5, 2016 Cduffy 2 posts	Topic: General Discussion / Newly pregnant - hypos Hi Lynn, Hope you are well. I wondered if you could have one of the nurses take a look at my reading. I'm not sure whether to reduce my ratio or background. I a, 7 weeks pregnant and having daily hypos after breakfast and lunch. Thanks,

Feb 3, 2016 derekh1965 95 posts	Topic: General Discussion / Injections and prescriptions Hi Thanks for all your replies. Further to my not receiving a prescription I ordered Icontacted my GP through askmygp and explained the amounmt of daily injections I use and why. i received a phone call from my GP to tell me that due to my eplanation she was going to order me my needls and add extra. Received my needles yesterday, 5 boxes!! They should last a while. Derek

Feb 3, 2016 Phil Maskell 194 posts	Topic: Questions for HCPs / freestyle libra I'm not an HCP, but I can answer that, No. Abbott are trying to get it, but don't hold your breath That aside I do pay for it and find it really useful. EDIT: NHS need to way up the cost of long term issues, my HbA1c has gone from 8ish to 5.9 since using it.

Feb 3, 2016 torana 53 posts	Topic: General Discussion / Injections and prescriptions I really believed when reading about diabetics scrounging for needles for their next shot was a story for last century. In Australia, it was realised after many years the inequities of diabetics having to pay for needles and sharps bins whilst others in the community would be handed out these items for free. In fact, many diabetics were known to frequent clinics where needles and disposal containers were handed out to others with medical requirements such as HIV or methadone. What a sad state of affairs and Diabetes Australia fought a hard battle to give diabetics needles and strips under a national scheme at little or no cost. It is a basic right for diabetics to have needles and not have to beg to a doctor for extra supplies!

Feb 3, 2016 RichFreed 51 posts	Topic: General Discussion / Pump failure. What a shame Helen. I have had nothing but a stellar experience with Medtronic. PA hospital organised everything for me & an appointment was made for the switch to pump. The Medtronic rep was there for the initial instruction and setup (they would not make any suggestions for actual ratios or basal rates - they are not qualified for that). But I was prepared with my DAFNE ratios which I converted to grams per unit which I dropped straight into the pump and they were just about perfect. Basal took less than a week to tune. I get just shy of 3 days out mine, my BASAL alone is set at about 80 units per day at the moment. FYI Medtronic downloads are wireless.

Feb 2, 2016 HelenP 218 posts	Topic: General Discussion / Pump failure. Thanks, Rich, I have an Animas pump...long story but could not get Medtronic to respond when I initially went on a pump and thought that if that was indicative of their service, I would go with Animas who had been most attentive when I first broached the pump topic... Regret the decision as the CDE they recommended did not program my pump properly and I had difficulties getting started. Subsequent CDEs then denied all responsibility for helping me as they had not done the initial "pump start". I plan to swap to Medtronic ASAP as I use between 70-80 units most days and the cartridge needs changing every second day!! As I wear the pump on my waist line at the back on my R side i have slowly narrowed the slot for the clip. I have clips but can not slide them onto the pump. The last time it was a battle to put it in but then when it came time to download the data could not get it off. Thanks for the info re expected life span. Helen

Feb 2, 2016 RichFreed 51 posts	Topic: General Discussion / Pump failure. Your Private health will have a policy on replacement pumps. I'm with HCF and the last time I was notified of pump policy it was - every 5 years a replacement was covered & anything earlier was a co-payment pro-rata'd. When I first got my Medtronic pump I was sure the inference was get a new one after 3 years. Later I was notified of the HCF policy (probably part of the letter they send send reminding you there is a 30day money back period if you find the Pump is not for you). When the 3 years was up I rang medtronic for advice, they stated that there was absolutely no reason why the pump would not last 5 years+. I am currently in my 4th year like you. As for clip - You didn't state what pump you have. You should be able to buy them as an accessory from the pump supplier. I would be lucky to get 5 months out of the plastic ones from Medtronic the actual ratchet mechanism is plastic and simply wears out (usually a crack forms on the little actuator arm, eventually breaking off or the whole thing destroys itself if you get sufficiently hooked up on something.LOL). I splurged on the leather one & it has lasted nearly 3 years so far with no signs at all that its going to fail - Im pretty sure the clip mechanism is all metal. Here's the link to the medtronic clips incase thats the pump you have. http://shop.medtronic-diabetes.com.au/index.php?option=com_virtuemart&page=shop.browse&category_id=1&Itemid=116

Feb 2, 2016 Peter 109 posts	Topic: General Discussion / Injections and prescriptions I'd suggest your first option is booking an appointment with your GP and use it to show your diary as above to demonstrate the number of needles you're using. Once you've explained the situation then hopefully the GP will be more responsive to your needs. If that fails then try and get support from the DSN and/or consultant at your DAFNE centre. Third (and last option) would be to either change GP or consider switching you snacks to lower CPs which don't require extra QA. Anything up to 1CP falls into that category.