Recent Posts - DAFNE Online

Jul 26, 2022

novorapidboi26 1,819 posts

I would weigh the whole cake and then weight the portion I want to eat, that would allow a calculation to take place.....

Jul 26, 2022

novorapidboi26 1,819 posts

Topic: General Discussion / Using Sensors in hot weather?

Not normally to be honest but recently my Libre has came off within 12 hours of initial application, which is strange as normally my sensors can stay on for 4 weeks..... Very Happy

I got waterproof patches to go over the sensor which has helped.....

I do think though that the real reason is becaue I have applied the sensor on to an area that hasn't been properly cleaned. The marks the Libre leaves are difficult to remove....

Jul 26, 2022

novorapidboi26 1,819 posts

Topic: General Discussion / Challenge of hot weather and following DAFNE

Sally Mac said:
Hi all, we are all having this very hot weather at the moment, how do you manage the whole "eating" thing during this very hot weather to the DAFNE guidelines?

For me when it's hot I really do not want to eat, but try my best to follow the advice given, even though a lot of the things I am consuming don't have many carbs in them at all. Never a good idea for someone who lives with Type 1. What are you eating on these hot days?

Definitely esating less carbs, more salads etc......

Fortunately DAFNE is set up to allow you to either have carbs or not......without any significant effect to glucose levels.....

Although the heat does tend to change the insulin resistance and so basal may need to go up or down....

Jul 26, 2022

novorapidboi26 1,819 posts

Topic: General Discussion / Freestyle Libre

Sally Mac said:
Hi All, I am amazed to hear of the inaccuracies that the Libre sensor is giving some people. I have not used it myself as I use a Dexcom G6 which is 100% accurate every time. Have you tried using another sensor @lucy1gus2?

How often do you need to calibrate the dexcom?

Jul 25, 2022

Sally Mac 27 posts

Topic: General Discussion / Freestyle Libre

Hi Annette, oh gosh. That's weird as I get my Dexcom paid by the NHS along with my pump. I didn't realise that about Freestyle Libre. That would of course explain why there are so many people using it. You learn something every day with Diabetes it seems! Smile

Jul 25, 2022

Annette Bell 72 posts

Topic: General Discussion / Freestyle Libre

Unfortunately the NHS will only prescribe the Freestyle Libre. Dexcom is too expensive!

Jul 25, 2022

Sally Mac 27 posts

Topic: General Discussion / Freestyle Libre

Hi All, I am amazed to hear of the inaccuracies that the Libre sensor is giving some people. I have not used it myself as I use a Dexcom G6 which is 100% accurate every time. Have you tried using another sensor @lucy1gus2?

Jul 23, 2022

Annette Bell 72 posts

Topic: General Discussion / Freestyle Libre

With driving you are still required to do a finger prick test. I always try to make sure this is above 7 before I drive so it’s got somewhere to go if it starts to drop. I agree, if you get a low reading but don’t “feel” low then you should double check. Mine is usually not far off.

Jul 23, 2022

RachelClement 1 post

Topic: General Discussion / Freestyle Libre

I have been using Libre 2 for around 18 months, I find the additional information it gives you both useful and worrying. Diabetes has taken over my life where for the past 25 years using a glucose meter I had a good HbA1C but my diabetes did not rule my life.

I recently discovered the Libre readings at the lower end can be very different to BM (which is gold standard). Unfortunately no consistent pattern and often occurs in situations before I have taken corrective action, so not due to delay on Libre. In the past I have corrected unnecessarily resulting in a high glucose reading. As a result I am now checking any low or high reading on the meter! High readings generally match as do normal range, but low glucose readings can be as much as 3 different ie the difference between normal range and a hypo!!
How do we stand for driving? Would the law say we were hypo? It’s a worry and I am quickly loosing faith in the system.

Jul 20, 2022

Sally Mac 27 posts

Topic: General Discussion / Course Handbook

There are still lots of requests coming through for access to the course handbook. As @Warwich posted earlier if you look at the right-hand side of your screen you should see the course handbook. If not, we may need to verify that you have attended a DAFNE course either personal or online. Keep us posted if we can help. Best wishes, Sally from the DAFNE Online Admin team - [email protected]

Jul 20, 2022

Sally Mac 27 posts

Topic: Carbohydrate Counting / Low carbing / fasting?

Hi all, is anyone following the low-carb routine and/or fasting at the same time? I would be interested in hearing from you if you are trying either or both, what things have you learnt? I've learnt that whilst I previously enjoyed eggs with toast for breakfast, I'm waiting to have my breakfast later. This is particularly good in this hot weather but having something more low carb like natural yoghurt and a bit of fruit.

Keep me posted, thanks, Sally

Jul 19, 2022

Sally Mac 27 posts

Topic: General Discussion / Dexcom G6 and Tandem Control IQ - error messages?

Hi all, I use both of the above technology, is there anyone else on this forum who does as well? I only ask as I have recently had two Tandem Control IQ pumps that have had the same malfunction code, and then died.

Has anyone had the same issue? Id be keen to know? Thanks.

Jul 19, 2022

Sally Mac 27 posts

Topic: General Discussion / Challenge of hot weather and following DAFNE

Sally Mac said:
Hi all, we are all having this very hot weather at the moment, how do you manage the whole "eating" thing during this very hot weather to the DAFNE guidelines?

For me when it's hot I really do not want to eat, but try my best to follow the advice given, even though a lot of the things I am consuming don't have many carbs in them at all. Never a good idea for someone who lives with Type 1. What are you eating on these hot days?

Its interesting that a few people have viewed this post but not commented, I wonder why? Are you willing to share your updates?

Jul 18, 2022

Sally Mac 27 posts

Topic: Site Development / Any chance of a "like" button

Hi, is there any chance of having a "like" button for the forum like Facebook, Instagram and Linked in work? It's not a top priority but would be nice to have, it may encourage more traffic to the forums plus a good way of seeing who is active on the site.

Jul 18, 2022

Sally Mac 27 posts

Topic: General Discussion / Using Sensors in hot weather?

michaelj said:
Have just this minute had to change my Libra 2 sensor and have found that a thorough cleansing with Antiseptic wipes to get rid of any sweat or moisture and then dry with tissues seems to work. Hasn't fallen off yet, but hope | haven't spoken too soon.

A good tip, thanks MichaelJ, now where did I put those antiseptic wipes, they are there somewhere in my stores I know! Fingers crossed it works for us both.

Jul 18, 2022

michaelj 45 posts

Topic: General Discussion / Using Sensors in hot weather?

Have just this minute had to change my Libra 2 sensor and have found that a thorough cleansing with Antiseptic wipes to get rid of any sweat or moisture and then dry with tissues seems to work. Hasn't fallen off yet, but hope | haven't spoken too soon.

Jul 18, 2022

Sally Mac 27 posts

Topic: General Discussion / Course Handbook

HI @lustar82, Im hoping you had success in the end and can now see the DAFNE Handbook online? My hardback manual is falling apart unfortunately, so its great to be able to access the online version.

Jul 18, 2022

Sally Mac 27 posts

Topic: General Discussion / Flash Monitoring

HI @lisapryro - how is it going with your new sensor? Do you feel more of an expert now? I do hope that wearing a sensor made a difference for you.

Jul 18, 2022

Sally Mac 27 posts

Topic: General Discussion / Baking

DEA said:
Just finished my DAFNE online course so it's my first time on here. I've found that if you look online for recipes they often give you the carbs per portion. Appreciate it's too late for you now but I've just looked up Victoria sandwich and found the BBC good foods website tells you the Cals and carbs of their Victoria sponge. Plus lots of cookbooks now give the nutritional value of recipes. Sorry I wasn't around to answer sooner. Hope yours was tasty. 🙂

A good idea. I don't think I would be bothered to work it out manually, life is too short! I hope the cake was good.

Jul 18, 2022

Sally Mac 27 posts

Topic: General Discussion / Using Sensors in hot weather?

Hi all, is anyone else having a challenge using a sensor in this very hot weather. I have heard from others on other forums that as soon as they put a new sensor on, it comes unstuck.

Are you having the same problems and if so, how do you ensure it stays on?

Jul 18, 2022

Sally Mac 27 posts

Topic: General Discussion / Challenge of hot weather and following DAFNE

Hi all, we are all having this very hot weather at the moment, how do you manage the whole "eating" thing during this very hot weather to the DAFNE guidelines?

For me when it's hot I really do not want to eat, but try my best to follow the advice given, even though a lot of the things I am consuming don't have many carbs in them at all. Never a good idea for someone who lives with Type 1. What are you eating on these hot days?

Jul 11, 2022

John H 20 posts

Topic: General Discussion / Freestyle Libre

I get it, but I also understand that I also inject frequently, so the view for me is that I will continue to do both for some time to come, there seems to be no better or accurate way to go.
I do understand the replies and pleased for the input from fellow DAFNE experienced folks. Many thanks, John

Jul 11, 2022

Annette Bell 72 posts

Topic: General Discussion / Freestyle Libre

I have found that the readings aren’t far off actual BG except for high readings. I find the low alarms very useful as I was losing my sensitivity to hypos. Also my fingers are not sore anymore! I can play my cello without pain now. As for being active, I noticed that Nikita, one of the Strictly Come Dancing professionals, has a Libre sensor. You can’t get much more active than that! Very Happy

Jul 11, 2022

lucy1gus2 13 posts

Topic: General Discussion / Freestyle Libre

John H said:
Hi Folks.
I have been trying to access the Libre sytem for some time, there have been delays after delay with the induction and assisting me in starting the use of the gadget. I have opted to go for a 1-1 with the local iabetes centre altough this in itself is likely to take even longer. However, from what I have seen on these posts there seems to be question over the accuracy alongside the reliability. I have battled on with glucose testing for donkeys years and this seems to offer consistent accuracy and reliability, so the question is - "Are these worth the effort" as it maybe a level of trust on a device against the accuracy of glucose testing.

Hi John
It is worth getting as it does reduce the number of finger pricks. I made the mistake of setting the alarms for low readings and went from one or two per week with finger pricking to 3 or 4 alarms a day.Which meant a finger prick which showed that the Libre was consistently 2 or 3 units below. My fingers are now back to normal which meant a lot to me.

Jul 11, 2022

John H 20 posts

Topic: General Discussion / Freestyle Libre

Warwick said:
Unfortunately I think it depends on the individual as to how accurate it is.

I have found the Libre 2 is usually a few points of a blood glucose reading most of the time although there was the occasional time when it was 2 or 3 mmol/L difference but whether the Libre 2 was inaccurate it or the BG meter, I don't know.

Others in this forum seem to have had greater inaccuracies though.

I believe that the technology may be useful to some, but for me, I need to rely on measurements that have a good accuracy, and I suspect I will bin the idea of using this product based on its performance, accuracy overall and where the item is sited due to the type of work that I do having looked deeper into all of this. Will be fine for office type of person, but not for me. Thanks for your reply.

Jul 26, 2022 novorapidboi26 1,819 posts	Topic: General Discussion / Baking I would weigh the whole cake and then weight the portion I want to eat, that would allow a calculation to take place.....

Jul 26, 2022 novorapidboi26 1,819 posts	Topic: General Discussion / Using Sensors in hot weather? Not normally to be honest but recently my Libre has came off within 12 hours of initial application, which is strange as normally my sensors can stay on for 4 weeks..... I got waterproof patches to go over the sensor which has helped..... I do think though that the real reason is becaue I have applied the sensor on to an area that hasn't been properly cleaned. The marks the Libre leaves are difficult to remove....

Jul 26, 2022 novorapidboi26 1,819 posts	Topic: General Discussion / Challenge of hot weather and following DAFNE Sally Mac said: Hi all, we are all having this very hot weather at the moment, how do you manage the whole "eating" thing during this very hot weather to the DAFNE guidelines? For me when it's hot I really do not want to eat, but try my best to follow the advice given, even though a lot of the things I am consuming don't have many carbs in them at all. Never a good idea for someone who lives with Type 1. What are you eating on these hot days? Definitely esating less carbs, more salads etc...... Fortunately DAFNE is set up to allow you to either have carbs or not......without any significant effect to glucose levels..... Although the heat does tend to change the insulin resistance and so basal may need to go up or down....

Jul 26, 2022 novorapidboi26 1,819 posts	Topic: General Discussion / Freestyle Libre Sally Mac said: Hi All, I am amazed to hear of the inaccuracies that the Libre sensor is giving some people. I have not used it myself as I use a Dexcom G6 which is 100% accurate every time. Have you tried using another sensor @lucy1gus2? How often do you need to calibrate the dexcom?

Jul 25, 2022 Sally Mac 27 posts	Topic: General Discussion / Freestyle Libre Hi Annette, oh gosh. That's weird as I get my Dexcom paid by the NHS along with my pump. I didn't realise that about Freestyle Libre. That would of course explain why there are so many people using it. You learn something every day with Diabetes it seems!

Jul 25, 2022 Annette Bell 72 posts	Topic: General Discussion / Freestyle Libre Unfortunately the NHS will only prescribe the Freestyle Libre. Dexcom is too expensive!

Jul 25, 2022 Sally Mac 27 posts	Topic: General Discussion / Freestyle Libre Hi All, I am amazed to hear of the inaccuracies that the Libre sensor is giving some people. I have not used it myself as I use a Dexcom G6 which is 100% accurate every time. Have you tried using another sensor @lucy1gus2?

Jul 23, 2022 Annette Bell 72 posts	Topic: General Discussion / Freestyle Libre With driving you are still required to do a finger prick test. I always try to make sure this is above 7 before I drive so it’s got somewhere to go if it starts to drop. I agree, if you get a low reading but don’t “feel” low then you should double check. Mine is usually not far off.

Jul 23, 2022 RachelClement 1 post	Topic: General Discussion / Freestyle Libre I have been using Libre 2 for around 18 months, I find the additional information it gives you both useful and worrying. Diabetes has taken over my life where for the past 25 years using a glucose meter I had a good HbA1C but my diabetes did not rule my life. I recently discovered the Libre readings at the lower end can be very different to BM (which is gold standard). Unfortunately no consistent pattern and often occurs in situations before I have taken corrective action, so not due to delay on Libre. In the past I have corrected unnecessarily resulting in a high glucose reading. As a result I am now checking any low or high reading on the meter! High readings generally match as do normal range, but low glucose readings can be as much as 3 different ie the difference between normal range and a hypo!! How do we stand for driving? Would the law say we were hypo? It’s a worry and I am quickly loosing faith in the system.

Jul 20, 2022 Sally Mac 27 posts	Topic: General Discussion / Course Handbook There are still lots of requests coming through for access to the course handbook. As @Warwich posted earlier if you look at the right-hand side of your screen you should see the course handbook. If not, we may need to verify that you have attended a DAFNE course either personal or online. Keep us posted if we can help. Best wishes, Sally from the DAFNE Online Admin team - [email protected]

Jul 20, 2022 Sally Mac 27 posts	Topic: Carbohydrate Counting / Low carbing / fasting? Hi all, is anyone following the low-carb routine and/or fasting at the same time? I would be interested in hearing from you if you are trying either or both, what things have you learnt? I've learnt that whilst I previously enjoyed eggs with toast for breakfast, I'm waiting to have my breakfast later. This is particularly good in this hot weather but having something more low carb like natural yoghurt and a bit of fruit. Keep me posted, thanks, Sally

Jul 19, 2022 Sally Mac 27 posts	Topic: General Discussion / Dexcom G6 and Tandem Control IQ - error messages? Hi all, I use both of the above technology, is there anyone else on this forum who does as well? I only ask as I have recently had two Tandem Control IQ pumps that have had the same malfunction code, and then died. Has anyone had the same issue? Id be keen to know? Thanks.

Jul 19, 2022 Sally Mac 27 posts	Topic: General Discussion / Challenge of hot weather and following DAFNE Sally Mac said: Hi all, we are all having this very hot weather at the moment, how do you manage the whole "eating" thing during this very hot weather to the DAFNE guidelines? For me when it's hot I really do not want to eat, but try my best to follow the advice given, even though a lot of the things I am consuming don't have many carbs in them at all. Never a good idea for someone who lives with Type 1. What are you eating on these hot days? Its interesting that a few people have viewed this post but not commented, I wonder why? Are you willing to share your updates?

Jul 18, 2022 Sally Mac 27 posts	Topic: Site Development / Any chance of a "like" button Hi, is there any chance of having a "like" button for the forum like Facebook, Instagram and Linked in work? It's not a top priority but would be nice to have, it may encourage more traffic to the forums plus a good way of seeing who is active on the site.

Jul 18, 2022 Sally Mac 27 posts	Topic: General Discussion / Using Sensors in hot weather? michaelj said: Have just this minute had to change my Libra 2 sensor and have found that a thorough cleansing with Antiseptic wipes to get rid of any sweat or moisture and then dry with tissues seems to work. Hasn't fallen off yet, but hope \| haven't spoken too soon. A good tip, thanks MichaelJ, now where did I put those antiseptic wipes, they are there somewhere in my stores I know! Fingers crossed it works for us both.

Jul 18, 2022 michaelj 45 posts	Topic: General Discussion / Using Sensors in hot weather? Have just this minute had to change my Libra 2 sensor and have found that a thorough cleansing with Antiseptic wipes to get rid of any sweat or moisture and then dry with tissues seems to work. Hasn't fallen off yet, but hope \| haven't spoken too soon.

Jul 18, 2022 Sally Mac 27 posts	Topic: General Discussion / Course Handbook HI @lustar82, Im hoping you had success in the end and can now see the DAFNE Handbook online? My hardback manual is falling apart unfortunately, so its great to be able to access the online version.

Jul 18, 2022 Sally Mac 27 posts	Topic: General Discussion / Flash Monitoring HI @lisapryro - how is it going with your new sensor? Do you feel more of an expert now? I do hope that wearing a sensor made a difference for you.

Jul 18, 2022 Sally Mac 27 posts	Topic: General Discussion / Baking DEA said: Just finished my DAFNE online course so it's my first time on here. I've found that if you look online for recipes they often give you the carbs per portion. Appreciate it's too late for you now but I've just looked up Victoria sandwich and found the BBC good foods website tells you the Cals and carbs of their Victoria sponge. Plus lots of cookbooks now give the nutritional value of recipes. Sorry I wasn't around to answer sooner. Hope yours was tasty. 🙂 A good idea. I don't think I would be bothered to work it out manually, life is too short! I hope the cake was good.

Jul 18, 2022 Sally Mac 27 posts	Topic: General Discussion / Using Sensors in hot weather? Hi all, is anyone else having a challenge using a sensor in this very hot weather. I have heard from others on other forums that as soon as they put a new sensor on, it comes unstuck. Are you having the same problems and if so, how do you ensure it stays on?

Jul 18, 2022 Sally Mac 27 posts	Topic: General Discussion / Challenge of hot weather and following DAFNE Hi all, we are all having this very hot weather at the moment, how do you manage the whole "eating" thing during this very hot weather to the DAFNE guidelines? For me when it's hot I really do not want to eat, but try my best to follow the advice given, even though a lot of the things I am consuming don't have many carbs in them at all. Never a good idea for someone who lives with Type 1. What are you eating on these hot days?

Jul 11, 2022 John H 20 posts	Topic: General Discussion / Freestyle Libre I get it, but I also understand that I also inject frequently, so the view for me is that I will continue to do both for some time to come, there seems to be no better or accurate way to go. I do understand the replies and pleased for the input from fellow DAFNE experienced folks. Many thanks, John

Jul 11, 2022 Annette Bell 72 posts	Topic: General Discussion / Freestyle Libre I have found that the readings aren’t far off actual BG except for high readings. I find the low alarms very useful as I was losing my sensitivity to hypos. Also my fingers are not sore anymore! I can play my cello without pain now. As for being active, I noticed that Nikita, one of the Strictly Come Dancing professionals, has a Libre sensor. You can’t get much more active than that!

Jul 11, 2022 lucy1gus2 13 posts	Topic: General Discussion / Freestyle Libre John H said: Hi Folks. I have been trying to access the Libre sytem for some time, there have been delays after delay with the induction and assisting me in starting the use of the gadget. I have opted to go for a 1-1 with the local iabetes centre altough this in itself is likely to take even longer. However, from what I have seen on these posts there seems to be question over the accuracy alongside the reliability. I have battled on with glucose testing for donkeys years and this seems to offer consistent accuracy and reliability, so the question is - "Are these worth the effort" as it maybe a level of trust on a device against the accuracy of glucose testing. Hi John It is worth getting as it does reduce the number of finger pricks. I made the mistake of setting the alarms for low readings and went from one or two per week with finger pricking to 3 or 4 alarms a day.Which meant a finger prick which showed that the Libre was consistently 2 or 3 units below. My fingers are now back to normal which meant a lot to me.

Jul 11, 2022 John H 20 posts	Topic: General Discussion / Freestyle Libre Warwick said: Unfortunately I think it depends on the individual as to how accurate it is. I have found the Libre 2 is usually a few points of a blood glucose reading most of the time although there was the occasional time when it was 2 or 3 mmol/L difference but whether the Libre 2 was inaccurate it or the BG meter, I don't know. Others in this forum seem to have had greater inaccuracies though. I believe that the technology may be useful to some, but for me, I need to rely on measurements that have a good accuracy, and I suspect I will bin the idea of using this product based on its performance, accuracy overall and where the item is sited due to the type of work that I do having looked deeper into all of this. Will be fine for office type of person, but not for me. Thanks for your reply.