Recent Posts - DAFNE Online

Jul 18, 2022

Sally Mac 27 posts

Topic: General Discussion / Flash Monitoring

HI @lisapryro - how is it going with your new sensor? Do you feel more of an expert now? I do hope that wearing a sensor made a difference for you.

Jul 18, 2022

Sally Mac 27 posts

Topic: General Discussion / Baking

DEA said:
Just finished my DAFNE online course so it's my first time on here. I've found that if you look online for recipes they often give you the carbs per portion. Appreciate it's too late for you now but I've just looked up Victoria sandwich and found the BBC good foods website tells you the Cals and carbs of their Victoria sponge. Plus lots of cookbooks now give the nutritional value of recipes. Sorry I wasn't around to answer sooner. Hope yours was tasty. 🙂

A good idea. I don't think I would be bothered to work it out manually, life is too short! I hope the cake was good.

Jul 18, 2022

Sally Mac 27 posts

Topic: General Discussion / Using Sensors in hot weather?

Hi all, is anyone else having a challenge using a sensor in this very hot weather. I have heard from others on other forums that as soon as they put a new sensor on, it comes unstuck.

Are you having the same problems and if so, how do you ensure it stays on?

Jul 18, 2022

Sally Mac 27 posts

Topic: General Discussion / Challenge of hot weather and following DAFNE

Hi all, we are all having this very hot weather at the moment, how do you manage the whole "eating" thing during this very hot weather to the DAFNE guidelines?

For me when it's hot I really do not want to eat, but try my best to follow the advice given, even though a lot of the things I am consuming don't have many carbs in them at all. Never a good idea for someone who lives with Type 1. What are you eating on these hot days?

Jul 11, 2022

John H 20 posts

Topic: General Discussion / Freestyle Libre

I get it, but I also understand that I also inject frequently, so the view for me is that I will continue to do both for some time to come, there seems to be no better or accurate way to go.
I do understand the replies and pleased for the input from fellow DAFNE experienced folks. Many thanks, John

Jul 11, 2022

Annette Bell 72 posts

Topic: General Discussion / Freestyle Libre

I have found that the readings aren’t far off actual BG except for high readings. I find the low alarms very useful as I was losing my sensitivity to hypos. Also my fingers are not sore anymore! I can play my cello without pain now. As for being active, I noticed that Nikita, one of the Strictly Come Dancing professionals, has a Libre sensor. You can’t get much more active than that! Very Happy

Jul 11, 2022

lucy1gus2 13 posts

Topic: General Discussion / Freestyle Libre

John H said:
Hi Folks.
I have been trying to access the Libre sytem for some time, there have been delays after delay with the induction and assisting me in starting the use of the gadget. I have opted to go for a 1-1 with the local iabetes centre altough this in itself is likely to take even longer. However, from what I have seen on these posts there seems to be question over the accuracy alongside the reliability. I have battled on with glucose testing for donkeys years and this seems to offer consistent accuracy and reliability, so the question is - "Are these worth the effort" as it maybe a level of trust on a device against the accuracy of glucose testing.

Hi John
It is worth getting as it does reduce the number of finger pricks. I made the mistake of setting the alarms for low readings and went from one or two per week with finger pricking to 3 or 4 alarms a day.Which meant a finger prick which showed that the Libre was consistently 2 or 3 units below. My fingers are now back to normal which meant a lot to me.

Jul 11, 2022

John H 20 posts

Topic: General Discussion / Freestyle Libre

Warwick said:
Unfortunately I think it depends on the individual as to how accurate it is.

I have found the Libre 2 is usually a few points of a blood glucose reading most of the time although there was the occasional time when it was 2 or 3 mmol/L difference but whether the Libre 2 was inaccurate it or the BG meter, I don't know.

Others in this forum seem to have had greater inaccuracies though.

I believe that the technology may be useful to some, but for me, I need to rely on measurements that have a good accuracy, and I suspect I will bin the idea of using this product based on its performance, accuracy overall and where the item is sited due to the type of work that I do having looked deeper into all of this. Will be fine for office type of person, but not for me. Thanks for your reply.

Jul 11, 2022

Warwick 423 posts

Topic: General Discussion / Freestyle Libre

Unfortunately I think it depends on the individual as to how accurate it is.

I have found the Libre 2 is usually a few points of a blood glucose reading most of the time although there was the occasional time when it was 2 or 3 mmol/L difference but whether the Libre 2 was inaccurate it or the BG meter, I don't know.

Others in this forum seem to have had greater inaccuracies though.

Jul 11, 2022

John H 20 posts

Topic: General Discussion / Freestyle Libre

Hi Folks.
I have been trying to access the Libre sytem for some time, there have been delays after delay with the induction and assisting me in starting the use of the gadget. I have opted to go for a 1-1 with the local iabetes centre altough this in itself is likely to take even longer. However, from what I have seen on these posts there seems to be question over the accuracy alongside the reliability. I have battled on with glucose testing for donkeys years and this seems to offer consistent accuracy and reliability, so the question is - "Are these worth the effort" as it maybe a level of trust on a device against the accuracy of glucose testing.

May 6, 2022

Simon 578 posts

Topic: General Discussion / Improving access to DAFNE in Scotland

The ALLIANCE’s Diabetes Lived Experience Network are performing a survey for those that have lived experience of diabetes (and that will include the experience of structured education) in Scotland; which they will feedback to the Scottish Government. The ALLIANCE and DAFNE Central need the help of Graduates from Scotland in filling out a short survey on their experience of DAFNE, with the aim of improving access to DAFNE in Scotland. You can find out more information from their flyer here.

Apr 28, 2022

lucy1gus2 13 posts

Topic: General Discussion / Freestyle Libre

Hi Annette. Thanks for that I will try and get a replacement and will also set a lower alarm setting. Just had a Libre alarm of 2.5 but finger prick meter of 6.7

Jul 18, 2022 Sally Mac 27 posts	Topic: General Discussion / Flash Monitoring HI @lisapryro - how is it going with your new sensor? Do you feel more of an expert now? I do hope that wearing a sensor made a difference for you.

Jul 18, 2022 Sally Mac 27 posts	Topic: General Discussion / Baking DEA said: Just finished my DAFNE online course so it's my first time on here. I've found that if you look online for recipes they often give you the carbs per portion. Appreciate it's too late for you now but I've just looked up Victoria sandwich and found the BBC good foods website tells you the Cals and carbs of their Victoria sponge. Plus lots of cookbooks now give the nutritional value of recipes. Sorry I wasn't around to answer sooner. Hope yours was tasty. 🙂 A good idea. I don't think I would be bothered to work it out manually, life is too short! I hope the cake was good.

Jul 18, 2022 Sally Mac 27 posts	Topic: General Discussion / Using Sensors in hot weather? Hi all, is anyone else having a challenge using a sensor in this very hot weather. I have heard from others on other forums that as soon as they put a new sensor on, it comes unstuck. Are you having the same problems and if so, how do you ensure it stays on?

Jul 18, 2022 Sally Mac 27 posts	Topic: General Discussion / Challenge of hot weather and following DAFNE Hi all, we are all having this very hot weather at the moment, how do you manage the whole "eating" thing during this very hot weather to the DAFNE guidelines? For me when it's hot I really do not want to eat, but try my best to follow the advice given, even though a lot of the things I am consuming don't have many carbs in them at all. Never a good idea for someone who lives with Type 1. What are you eating on these hot days?

Jul 11, 2022 John H 20 posts	Topic: General Discussion / Freestyle Libre I get it, but I also understand that I also inject frequently, so the view for me is that I will continue to do both for some time to come, there seems to be no better or accurate way to go. I do understand the replies and pleased for the input from fellow DAFNE experienced folks. Many thanks, John

Jul 11, 2022 Annette Bell 72 posts	Topic: General Discussion / Freestyle Libre I have found that the readings aren’t far off actual BG except for high readings. I find the low alarms very useful as I was losing my sensitivity to hypos. Also my fingers are not sore anymore! I can play my cello without pain now. As for being active, I noticed that Nikita, one of the Strictly Come Dancing professionals, has a Libre sensor. You can’t get much more active than that!

Jul 11, 2022 lucy1gus2 13 posts	Topic: General Discussion / Freestyle Libre John H said: Hi Folks. I have been trying to access the Libre sytem for some time, there have been delays after delay with the induction and assisting me in starting the use of the gadget. I have opted to go for a 1-1 with the local iabetes centre altough this in itself is likely to take even longer. However, from what I have seen on these posts there seems to be question over the accuracy alongside the reliability. I have battled on with glucose testing for donkeys years and this seems to offer consistent accuracy and reliability, so the question is - "Are these worth the effort" as it maybe a level of trust on a device against the accuracy of glucose testing. Hi John It is worth getting as it does reduce the number of finger pricks. I made the mistake of setting the alarms for low readings and went from one or two per week with finger pricking to 3 or 4 alarms a day.Which meant a finger prick which showed that the Libre was consistently 2 or 3 units below. My fingers are now back to normal which meant a lot to me.

Jul 11, 2022 John H 20 posts	Topic: General Discussion / Freestyle Libre Warwick said: Unfortunately I think it depends on the individual as to how accurate it is. I have found the Libre 2 is usually a few points of a blood glucose reading most of the time although there was the occasional time when it was 2 or 3 mmol/L difference but whether the Libre 2 was inaccurate it or the BG meter, I don't know. Others in this forum seem to have had greater inaccuracies though. I believe that the technology may be useful to some, but for me, I need to rely on measurements that have a good accuracy, and I suspect I will bin the idea of using this product based on its performance, accuracy overall and where the item is sited due to the type of work that I do having looked deeper into all of this. Will be fine for office type of person, but not for me. Thanks for your reply.

Jul 11, 2022 Warwick 423 posts	Topic: General Discussion / Freestyle Libre Unfortunately I think it depends on the individual as to how accurate it is. I have found the Libre 2 is usually a few points of a blood glucose reading most of the time although there was the occasional time when it was 2 or 3 mmol/L difference but whether the Libre 2 was inaccurate it or the BG meter, I don't know. Others in this forum seem to have had greater inaccuracies though.

Jul 11, 2022 John H 20 posts	Topic: General Discussion / Freestyle Libre Hi Folks. I have been trying to access the Libre sytem for some time, there have been delays after delay with the induction and assisting me in starting the use of the gadget. I have opted to go for a 1-1 with the local iabetes centre altough this in itself is likely to take even longer. However, from what I have seen on these posts there seems to be question over the accuracy alongside the reliability. I have battled on with glucose testing for donkeys years and this seems to offer consistent accuracy and reliability, so the question is - "Are these worth the effort" as it maybe a level of trust on a device against the accuracy of glucose testing.

May 6, 2022 Simon 578 posts	Topic: General Discussion / Improving access to DAFNE in Scotland The ALLIANCE’s Diabetes Lived Experience Network are performing a survey for those that have lived experience of diabetes (and that will include the experience of structured education) in Scotland; which they will feedback to the Scottish Government. The ALLIANCE and DAFNE Central need the help of Graduates from Scotland in filling out a short survey on their experience of DAFNE, with the aim of improving access to DAFNE in Scotland. You can find out more information from their flyer here.

Apr 28, 2022 lucy1gus2 13 posts	Topic: General Discussion / Freestyle Libre Hi Annette. Thanks for that I will try and get a replacement and will also set a lower alarm setting. Just had a Libre alarm of 2.5 but finger prick meter of 6.7