Recent Posts - DAFNE Online

Apr 28, 2022

Annette Bell 72 posts

Topic: General Discussion / Freestyle Libre

Hi lucy1gus2. I had the same problem with at least 4 of the sensors failing, sometimes within a couple of days. If you email the company with all details of the failed sensors they are happy and quite quick to replace them. I have found that, since placing the sensor further back on my arm so less likely to lie on it while asleep, I haven’t had any failures. Don’t know if this is just a coincidence! The hospital specialist advised me to set my low BG alarm to below 3.5 as I was having several, and this also helps me to be less reliant on the alarms and more on how I’m feeling. The sensors lag behind what is actually happening so it may be you were low but your body has already compensated. I hope this helps. Persevere! I was frustrated with mine at first and close to giving up, but now am quite happy with it once I’ve got used to its quirks!

Apr 27, 2022

lucy1gus2 13 posts

Topic: General Discussion / Freestyle Libre

I have had a Libre 2 for a couple of months now after trying to get one for several years hoping that it would help me get better control. I went for using the low alarm as I was always going hypo with no warning. Previously I would have 1 or 2 hypos a week now its 1 or 2 a day supposedly as the libre was giving readings below 3.9 but on checking with my meter it was always around 5 or 6. Frustrating.
Today I had a message on the Libre that the sensor was faulty and needed replacing ( after 1 weeks usage ) Fortunately I had one in reserve. So the fingers appreciate the Libre but I'm not so sure I do

Apr 23, 2022

Lisapyro 1 post

Topic: General Discussion / Flash Monitoring

I got mine just over a month ago after years of asking when I told them I didn't care about what happened with my Diabetes two weeks later I was on the online course and now have my monitor. ( I have had three really bad years and so the Diabetes kind of took the back seat, hopefully though the sensor is helping me get back on track )

Apr 20, 2022

marke 681 posts

Topic: General Discussion / Flash Monitoring

Hi,
Not wishing to disappoint you but its not strictly true. The device they show is a FreeStyle Libre and in theory this has been available to UK Diabetics for a few years on our Health Service. However its roll-out has been patchy at best. We have a saying in the UK called 'the post-code lottery' (post-codes identify your address ) and it really applies to this. The funding for it comes from the local health care bodies and some are a lot more willing than others to let people have them.

I think they would be a great benefit to many people and I am lucky enough to have my Dexcom G6 CGM funded by my hospital but thats only because I am under a London hopsital for my pump and when I told them I was self-funding the CGM they decided to pay for it. If I had tried the same thing where I actually live , more in the countryside, I would have had zero chance of getting it funded.

Still hopefully all these devices will get cheaper, more will come onto the market to increase the competion meaning a lot more people will be able to get them. They don't replace finger pricking but thats a whole other discussion :-)

Apr 1, 2022

Warwick 423 posts

Topic: General Discussion / Advice Diabetes and Cancer

Sorry, no experience but all the best for it. All I can suggest is that you record your BGLs throughout each round of chemo, and hopefully after the first few rounds you will have an idea of what to expect in later rounds.

Apr 1, 2022

Warwick 423 posts

Topic: General Discussion / Flash Monitoring

For those of you in England, this is interesting news:

https://www.theguardian.com/society/2022/mar/31/people-with-type-1-diabetes-in-england-to-be-given-skin-sensor-to-monitor-blood-sugar

Hope that New Zealand follows this lead :-)

Mar 28, 2022

michaelj 45 posts

Topic: General Discussion / Advice Diabetes and Cancer

Have been diagnosed with cancer of the Oesophagus and am due to start chemotheraphy soon. Oncologist tells me this will play havoc with my blood sugars and wondered if anyone has experince of this, and any advice on the best way to deal with it.

Apr 28, 2022 Annette Bell 72 posts	Topic: General Discussion / Freestyle Libre Hi lucy1gus2. I had the same problem with at least 4 of the sensors failing, sometimes within a couple of days. If you email the company with all details of the failed sensors they are happy and quite quick to replace them. I have found that, since placing the sensor further back on my arm so less likely to lie on it while asleep, I haven’t had any failures. Don’t know if this is just a coincidence! The hospital specialist advised me to set my low BG alarm to below 3.5 as I was having several, and this also helps me to be less reliant on the alarms and more on how I’m feeling. The sensors lag behind what is actually happening so it may be you were low but your body has already compensated. I hope this helps. Persevere! I was frustrated with mine at first and close to giving up, but now am quite happy with it once I’ve got used to its quirks!

Apr 27, 2022 lucy1gus2 13 posts	Topic: General Discussion / Freestyle Libre I have had a Libre 2 for a couple of months now after trying to get one for several years hoping that it would help me get better control. I went for using the low alarm as I was always going hypo with no warning. Previously I would have 1 or 2 hypos a week now its 1 or 2 a day supposedly as the libre was giving readings below 3.9 but on checking with my meter it was always around 5 or 6. Frustrating. Today I had a message on the Libre that the sensor was faulty and needed replacing ( after 1 weeks usage ) Fortunately I had one in reserve. So the fingers appreciate the Libre but I'm not so sure I do

Apr 23, 2022 Lisapyro 1 post	Topic: General Discussion / Flash Monitoring I got mine just over a month ago after years of asking when I told them I didn't care about what happened with my Diabetes two weeks later I was on the online course and now have my monitor. ( I have had three really bad years and so the Diabetes kind of took the back seat, hopefully though the sensor is helping me get back on track )

Apr 20, 2022 marke 681 posts	Topic: General Discussion / Flash Monitoring Hi, Not wishing to disappoint you but its not strictly true. The device they show is a FreeStyle Libre and in theory this has been available to UK Diabetics for a few years on our Health Service. However its roll-out has been patchy at best. We have a saying in the UK called 'the post-code lottery' (post-codes identify your address ) and it really applies to this. The funding for it comes from the local health care bodies and some are a lot more willing than others to let people have them. I think they would be a great benefit to many people and I am lucky enough to have my Dexcom G6 CGM funded by my hospital but thats only because I am under a London hopsital for my pump and when I told them I was self-funding the CGM they decided to pay for it. If I had tried the same thing where I actually live , more in the countryside, I would have had zero chance of getting it funded. Still hopefully all these devices will get cheaper, more will come onto the market to increase the competion meaning a lot more people will be able to get them. They don't replace finger pricking but thats a whole other discussion :-)

Apr 1, 2022 Warwick 423 posts	Topic: General Discussion / Advice Diabetes and Cancer Sorry, no experience but all the best for it. All I can suggest is that you record your BGLs throughout each round of chemo, and hopefully after the first few rounds you will have an idea of what to expect in later rounds.

Apr 1, 2022 Warwick 423 posts	Topic: General Discussion / Flash Monitoring For those of you in England, this is interesting news: https://www.theguardian.com/society/2022/mar/31/people-with-type-1-diabetes-in-england-to-be-given-skin-sensor-to-monitor-blood-sugar Hope that New Zealand follows this lead :-)

Mar 28, 2022 michaelj 45 posts	Topic: General Discussion / Advice Diabetes and Cancer Have been diagnosed with cancer of the Oesophagus and am due to start chemotheraphy soon. Oncologist tells me this will play havoc with my blood sugars and wondered if anyone has experince of this, and any advice on the best way to deal with it.