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Sep 27, 2022
novorapidboi26
1,819 posts
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Topic: General Discussion / Dexcom One system. It would seem you are unlucky as pretty much every other samsung model is listed as compatible.......the A11, the A21... |
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Sep 26, 2022
John H
20 posts
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Topic: General Discussion / Dexcom One system. Hello fellow Dafne folks.Just to bring some clarity to the Dexcom One system on NHS Prescription. I was really pleased to learn that my Diabetes Specialist managed to achieve funding for me to use the above system. He also provided a traditional prescription together with a letter posted to me. I had time to make various checks to how it may differ from the Freestyle CGM that I have been using for a few months, the results were not too encouraging. The prescription was fulfilled and got the flash looking box home. No instructions at all included regading it's use or fitting. Downloaded the app from Google Play on my Samsung A22 5g mobile phone which runs Android 11 ! To discover the app won't work on my phone. So the situation requires further interventions which will incur further costs either to me or the NHS. It troubles me that much older phones with much outdated Android operating systems are more likely to work with such a new system ! So back to the Libre System for now for me ! This information is for guidance only, and to also offer up how unfortunate my current luck is ! |
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Sep 17, 2022
John H
20 posts
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Topic: General Discussion / Libre sensors - problems
Hi, Just to add that I have not had any negative issues using the system, but simply enquiring. I now have the Libre system working for me with good results. What I may be able to help with would be to suggest that the fitting of a new sensor may be improved by using a different site to fit the new sensor, and to also advise to get help fitting it. My Son fitted my last one, he did apply more pressure than I woud have done personally, but as usual it went straight in, and worked great ! Maybe a consideration for the original poster to have in their journey with the system. I have been fortunate to be funded for NHS Prescriptions for the Dexcom system, so will be in a position to give a user based comparison of both systems. I hope my suggestion may go some way to assist the OP. |
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Sep 14, 2022
marke
681 posts
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Hi, Sorry I am as guilty as everyone else of not posting enough on the forums. You should not have to report it to the NHS as reporting it to Abbott should be enough. They have a legal responsibility to investigate all issues reported by customers/patients and this will be audited periodically by the Medicines & Healthcare products Regulatory Agency (MHRA). If you keep having issues with sensor 'implanting' then Abbott should investigate this and try to advise you on how to avoid this. If they don't I would encourage you to take to something like Twitter with those on the DUK forums as companies like this REALLY don't like bad publicity. They make all their profits from repeat users , so if they user base is not happy then its not good for them. As Sally says we are Dexcom users and I get my Dexcom via NHS funding. I prefer the Dexcom to the Libre but its all personal preference. I do know that Dexcom take issues seriously. The one time I have an issue with the sensor separating from the adhesive plaster that holds it in place, the got me to send pictures and return the sensor so they could investigate it fully. |
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Sep 9, 2022
Sally Mac
27 posts
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Topic: General Discussion / Libre sensors - problems Hi @flash, thanks for your response. You're right in that this isn't necessarily the most active of forums; there are so many other forums related to Type 1 Diabetes, including the Diabetes UK one; there is almost too many on the market to review and post on. I am not using the Libre myself, but I am conscious that a lot of people are having problems with them, hence my original post.Perhaps it is time to start raising your concerns about the reliability of the Libre to your Health Authority or consultant / and or DSN.I think the more people who are having issues show their discontent, the easier it will be for them to action the responses. It is a hard one, really as I have had issues with the Dexcom Sensors often failing, I speak to Dexcom about it and yes I get replacement sensors, but I didn't contact my DSN as the issue is fixed. Of course, what I should have done in retrospect was to let them know so they could keep track. |
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Sep 8, 2022
flash
2 posts
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It seems nothing much happening here so I decided to check out other diabetes forums. I joined the Diabetes U K forum and started this same discussion there. It is in the section to do with ‘Pumping and Technology, entitled ‘Problems with Libre 2 sensors. Within a couple of days I had some very interesting and far ranging (politically) comments. They have made me realise I am not alone regarding faulty sensors which has made me feel a lot better. Also I now understand the mechanism a lot better. Plus I got one or two useful tips. So, if you want to shed a bit more light on this problem, check out the Diabetes U K website and join the forum. I may be taking this problem a bit further (via what they call the yellow card process; something I knew nothing about) to ensure NHS get the feedback. The only people getting this information, it seems from the discussions, is Abbott, the manufacturer. They are happy to replace sensors FOC but the question is are the NHS aware of all these faults given the size and cost of the purchasing contract with Abbott. Anyway thank you to those people responding to my post. |
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Aug 23, 2022
novorapidboi26
1,819 posts
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Topic: Carbohydrate Counting / Dawn Phenomenon
Never had a choice, but have had 3 pumps so far......2 Medtronic Veo's and now the Medtronic 780g.... Its a great pump and its looking hopeful about getting the guardian sensor with it soon as well......so almost fully automated once set up..... |
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Aug 23, 2022
novorapidboi26
1,819 posts
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Topic: Carbohydrate Counting / A new fan of sweet things, any advice I basically eat anything I want, thanks to DAFNE.......that doesnt mean I nail it everytime though but I dont beat myself up over not having perfect numbers some of the time......enjoying life is more important for the most part.....I use my fitness pal for all my carb counting needs, a manual search or scan of a barcode and you have the carbs right there in front of you......web based and apps available... |
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Aug 23, 2022
novorapidboi26
1,819 posts
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Topic: General Discussion / Using Sensors in hot weather? I played a round of golf in the very hot weather a couple of weeks ago and it was missing by the time I finished so must have came straight off.I noticed it itching quite a bit so suspected it might, purely down to the sweat.... I started using waterproof patches befoe that day though as I have been finding the adhesive strength of the libre 2 less than the 1 lately, but didnt have it on that day... |
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Aug 14, 2022
John H
20 posts
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Topic: General Discussion / Freestyle Libre Hello Folks, Just a brief update on the original post that I made.The systems perform as individuallly as the people they are fitted to in terms of suitability. I was able to make the appointment with the DSN at clinic locally, I remained unsure of the system, but it was offered after a short conversation, all was fitted up and the handset was linked to the sensor living on my arm. Had a few questions which were answered by a really knowledgeable nurse who was confident that it will work for me just fine. Within the hour all data was being exchanges and history was being made in the log table. I do have conserns regarding the sensor staying in place due to my work and exercise it involves, but have a skin coloured sweat band type of item to protect the sensor, and I am really well impressed with how this seems to be working for me. The view is that I am likely to be put forward for the Dexcom system due to the siting of the sensor being not ideal for me, but for now it is working really well for me. I also hope that the folks that are going forward with flash/cgm testing get to meet a proper decent DSN who knows their stuff - mine was superb ! Thanks for reading this and the encouragement I was given from this group. |
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Aug 12, 2022
Sally Mac
27 posts
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Topic: General Discussion / Libre sensors - problems Thanks for your query @flash; sorry to hear you have been having so many problems with the Libre. I can't help myself I'm afraid as like @MarkE, I use the Dexcom G6 Sensor.I did see, though that there are several other people on other posts having Libre issues, namely @AnnetteBell @Warwick @Lucy1gus2, @JohnH, @RachelClement, @novorapidboi26. I'm hoping that you'll hear something from some of these good folk. |
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Aug 12, 2022
flash
2 posts
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Topic: General Discussion / Libre sensors - problems Hi everyone. My first time on this forum. I have been using Freestyle Libre system for at least a couple of years since we were first able to justify getting them on prescription. Unfortunately I often have sensors fail when I am changing them. When the needle is punched into my arm it bends through a right angle. I have pictures but can't see here how to post them here sadly. Unfortunately you don't know they are bent until an hour later which is the time period you have to wait before the reader will read the new sensor. So, it is a real pain. I have even had one sensor fall to bits internally (unbeknown to me) and I ended up punching nothing into my arm, again only discovered an hour later. This week I experienced something new. The sensor did work for a couple of days and then failed but I don't know why.I have always complained to the manufacturer and they will happily replace them but you never get any feedback on how big this problem is and what we can do about it. It's just a call centre at the end of the day. So, as long as I have got sufficient stock I don't bother complaining now. My concern was whether I am doing something wrong but I am very careful wwith site selection and the process of changing sensors in line with instructions. My friend who has type 1 and is a libree user has had no problems until a week ago when he had a failure. Any of you out there have this problem. Any suggestions, help etc???? |
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Aug 12, 2022
Sally Mac
27 posts
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Topic: General Discussion / Libre sensors - problems Hi All, it seems as if a number of people are having problems using the Libre sensors at the moment. We have had a few emails sent via the admin email box which is fine except nobody else can see your question or the answers.I'm sorry for those who are having problems using this device, would you be willing to share your stories so others can learn from your experiences? Perhaps somebody has the answers? I look forward to seeing new posts about this soon. Have a great day all. |
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Aug 9, 2022
Sally Mac
27 posts
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Topic: Carbohydrate Counting / A new fan of sweet things, any advice Hi all, for as many years as I can remember I have been a lover of savoury foods, but never sweet foods. For some reason the tables are turning and the thought of having something sweet like an ice cream or cake is so appealing. Perhaps this hot weather has got to me, who knows? If you're a lover of magnum ice creams as an example, do you go with it and indulge or stay well clear?As long as I follow the DAFNE route and count the carbs I should be ok, she says guessing ... any help gratefully received, thanks. |
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Aug 5, 2022
Sally Mac
27 posts
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Topic: General Discussion / Using Sensors in hot weather? Hi, thanks marke, I had heard of that company but never explored them past their front page, but will do now based on your recommendation.Ah yes, the G7, I'm looking forward to that one coming as well. That will be a test of my patience I suspect somehow. I'll take a look at the over patches available, thanks. |
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Aug 5, 2022
Sally Mac
27 posts
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Out of interest, do you have a sweet tooth? I do not thankfully, but Ive discovered something recently that just hits the spot. I know that advertising on this forum isnt strictly allowed, but take a look at bulk.com. They create a number of protein foods for athletes of which I am not, but they have some great sounding and tasting snack bars that are high in protein but low in carbs. Recommend them. |
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Aug 5, 2022
Sally Mac
27 posts
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Topic: Carbohydrate Counting / Dawn Phenomenon Hi@novorapidboi26, I did I have to admit have a bit of an "I can manage on pens quite adequately thanks" when my second pump broke in 8 months of use. Of course how foolish was I? I wouldn't be without it now. As you say it is the last thing to try and for the majority, it works wonders which is all anyone would want.Out of interest, which pump did you pick or were you given only one choice? |
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Aug 5, 2022
novorapidboi26
1,819 posts
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Topic: Carbohydrate Counting / Low carbing / fasting?
No, but I acknowedge that a low carb diet works wonders but I just love the carbs......fortunately DAFNE helps with that but its never perfect.... |
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Aug 5, 2022
novorapidboi26
1,819 posts
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Topic: Carbohydrate Counting / Dawn Phenomenon
No, not at all.....I love it..... Its just that thats the main reason a pump was considered for me, it was the last thing to try....... I know some people go on pumps for no obvious reason but for me, in Scotland, in 2013, I had to have a good one... 
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Aug 5, 2022
Sally Mac
27 posts
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Topic: General Discussion / Freestyle Libre Hi @marke, I didn't realise that it was all about where you lived. I am still shocked to still keep hearing these stories. I would agree about the details of the trends, that's where the sensors come into their own. The good news is that tech is developing at such a rate for Type 1's, I am sure there will be a difference soon, i.e.., in our lifetimes. It can feel like a full-time job sometimes, but I can see that I'm lucky in that I have access to the sensors, a pump and a great hospital, DSN and consultant. I would hate to think how I would manage otherwise. |
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Aug 4, 2022
marke
681 posts
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Topic: General Discussion / Freestyle Libre I also get the Dexcom via NHS funding. Sadly its the old story of post code lottery. I stayed under Guy's hospital in London when I was put on a pump. They have far more resources than my local hospital and they were happy to fund me, my local hospital won't fund Libre's let alone the Dexcom. Hopefully this will change in the coming years when they see the benefits of Diabetics having CGM's and the long term money it will save the NHS.With regards to the accuracy, even with blood tests the rules state 'Under the new standard, meters will need to meet the accuracy guidelines 95% of the time: Within ± 0.83 mmol/L of laboratory results at concentrations of under 5.6 mmol/L. Within ± 15% of laboratory results at concentrations of 5.6 mmol/L or more' . A Libre or Dexcom measures inter-cell fluid sugar so at best it will be slightly less accurate than BG tests. Sorry but any test like this is never 100% accurate, its a best estimate. The advantage of Libre/Dexcom is the trends it shows i.e a warning you are heading low. Currently you can't use them as your only means of dosing insulin. One day that will change, but who knows how soon |
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Aug 4, 2022
marke
681 posts
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Topic: General Discussion / Using Sensors in hot weather? At the risk of advertising a business, I was using patches from www.diabeticsupply.co.uk . These are patches that go over the sensor and provide a bigger sticky part. They work pretty well for me when I put the sensor on my arm. I'm using a Dexcom G6 and tend now to put it on my stomach. I'm waiting for the Dexcom G7 which will be smaller and lower profile. I'm hoping I can put that on my arm without knocking it all the time ! When I had a Libre I lost several sensors that way
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Jul 28, 2022
Sally Mac
27 posts
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Topic: Carbohydrate Counting / Dawn Phenomenon Hi, it sounds like you were disappointed to now be on a pump. I hope that's not the case. |
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Jul 28, 2022
Sally Mac
27 posts
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Topic: Carbohydrate Counting / Low carbing / fasting? Hi, I think like you I am missing meals, but not intentionally. It sounds like you are missing your meals due to work stuff, I am missing mine as its just too darned hot to eat which actually works well. When I do eat though, I do try to keep it as low carb as possible. I have found though that I need a good dose of carbs (30-40g) so I can sleep hypo free throughout the night. Seems to work ok at the mo. I like the low carb approach generally, less carbs, less insulin. However like you say you have to be careful of the protein content. Just when I thought I had it sussed, nearly !! |