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Aug 3, 2010
toni 9 posts

Topic: General Discussion / Denial

Hi Claire
I can sympathise with you.
I have been type 1 since i was 5 and didnt have a clue about it so kinda drifted along with what the doctors said!
BUT when i hit my teens i rebelled and wais in a serious state of denial, right up til i hit my early 20s having had 2 kids by this time too!
You do get over the "why me" bit and it will get easier!
My son is going through exactly the same thing as you are now he is 12 and has been diabetic since he was 5.
I have yet to go through it with my younger daughter who was diagnosed at 20 months shes 8 now!
Good luck and remember we are all her for moral support and help and to scream at if need be!
 
Aug 3, 2010
toni 9 posts

Topic: General Discussion / Diabetes.............

i have to agree with Novorapidboi life is what you make it, so dont let the diabetes rule you you have to rule it.
I have had diabetes for 30 years now and have two kids with it too, and at the moment im trying to teach my son ( who starts 4 injection regime thursday) that diabetes wont stop him from achieving what he wants to do only he will stop himself!
 
Aug 3, 2010
Athena 52 posts

Topic: General Discussion / Exhaustion

Hi All,

thanks for getting back to me. Sorry for not being quick to reply but I do this at work during lunch hours and I have had to take time off due to the DAFNE. I have been in touch with my hospital and have seen them and they have been fantastic. I have been unlucky as I have had about 5 viruses since my course in March so that hasn't helped. I think I do have BI sorted, but because I keep getting ill it is difficult to tell. I have come down with shingles jsut now despite taking time off which is really annoying.
I used to chain drink coffee to keep me going with my diabetes. I had to go down to part-time working eventually because I couldn't sleep at nights due to night time hypos. I drink it during the day to keep going.
however, although it is effective with sleepless nights, it doesn't seem to have the same effect with high blood sugars. I find it strange that I can sleep really well at nights now, yet am more tired than before when I wasn't sleeping! As ofr my diet, it is ussually very good, but since DAFNE I have not been eating as too sick and also too tired to get up to make meals. I have however, been eating since taking the time off. That was one of the reasons for doing this so that I could put what energy I had into eating instead of gong to work. Feel a bit better but now back at work and am deteriorating again although still eating ok. I can't evercise with my diabetes. I did for the first 3 years of it, but a swim on a Saturday morning meant staying the rest of the day in bed to recover and I started hating ecxercise when before I loved it! I was also into hill-walking etc. but it became too dangerous as I would only be able to walk for a few hundred metres and then ahve to sit down for a rest so that had to to many years ago! We have not really ahd a heatwave up here and in any case I have not been out in the sun as I want to stay in bed. Think it is just due to high bg which I am not used to at all.
Correction dose do work but they t ake 4 and a half hours which is really long. My hypos are much worse now too. They are in the 1's now since doing DAFNE probably because of the increased BI- don't know, but maybe that is a factor although you are supposed to feel fine with highs and lows. HAving said that, when you look at the examples in the work book, they bg's are great. Non -one has gone up into the 20's or even the mid-teens whereas my BG's shot up terribly doing DAFNE . I think thisi is probably not supposed to happen at all and your sugars should only have gone up a little bit like to 10 ish as per the examples in the book. tha tis probably the problem. I did go to the chemist's to ask for something for exhaustion, but there is nothing. She did suggest that I may have knocked off iron stores or B vitamin stores by being high for a few months. She says that this can happen to diabetics, and could be the cause of it. However, thsi involves going to my own GP, then gettinga nother appt for a blood tes and I am too tired just now for this. Hopefully the eating again will help this anyway.

Hope you are all doing okay and thanks again for your thoughts and suggestions.
It makes me feel less isolated about all this.

Helen
 
Aug 3, 2010
Garry 328 posts

Topic: General Discussion / Illness and resistance

Don't worry.
Just follow the rules and things will come back to normal as soon as your infection fades.
Only tricky bit of course is getting it right when on the return to normal insulin uptake when your resistance reduces.
Regards Garry
 
Aug 3, 2010
Ffi010 8 posts

Topic: General Discussion / Illness and resistance

Hi,
I have been ill for a few days now with tonsilitus and flu like symptoms.
I knew that I was ill as soon as my bg's would not come down below 12! So I began on the sick day rules and increased my QA by 10 and then 20% of TDD and they still havent reduced bellow 11.

Even though I am now on antibiotics and feeling better, my bg's are still high (over 13) and I have done an experiment where my BG was 19, I ingected 5QA and ate nothing. After 4 hours I had only come down to 16.6

I think that my body is resisting, but how long should this last as I am getting more and more concerned.

THank you

 
Aug 3, 2010
novorapidboi26 1,819 posts

Topic: General Discussion / Dawn Phenomenon

I experience DP too, but I would never use the basal background to combat it.

This is beacuase its only a short term increase of resistance to insulin in the morning.

I found out I was having DP when my BG went up with no food be consumed from 6am to 10am.

I still wake up with double figures........
 
Aug 3, 2010
novorapidboi26 1,819 posts

Topic: General Discussion / Diabetes.............

We will need to change that opinion claire.....

It can be managed with ease if you let it...
 
Aug 3, 2010
novorapidboi26 1,819 posts

Topic: General Discussion / Denial

Hey claire.........

My situation is similar in some ways.

I was diagnosed 11 years ago when I was fifteen but I was climatised to diabetes as my younger brother was diagnosed when he was 2 years old.

The denial should pass, and I would of thought more quickly than four years. It took me a month to actually go into denial then a few months to come out of it. I am no shrink but the best way I would think to combat it is to throw yourself into a good routine of testing so to look forward to the next result. For me thats what DAFNE has done, its made me want to know my BG so that I can see it working.

DAFNE is to enable you to have flexibility in what you eat, so being a chocoholis is OK as long as you are covering with insulin, but remember to much of these things is bad for anyone.

As for the smoking, I am a smoker too, not heavily but smoke none the less. That just adds to the risks we already have, but it shouldnt get you down.

Just concentrate on what you learned on DAFNE and work with your diabetic specialist team.

Your HbA1c is coming down, that is a good accomplishment, and people should be telling you that.

If you have any questions about results or anything really I am on here everyday.

You should also come over to:

www.diabetessupport.co.uk.

It is a forum for diabetics, type 1, type 2, type 1.5, gestational and parents/carers, were all there and the support is really good if you struggle from time to time and the wealth of knowledge is second to none..

Chin up.....

Hope to hear from you soon....
 
Aug 3, 2010
Possum 7 posts

Topic: General Discussion / Correction between meals?

Yes I agree with novorapid26.... don't inject between meals.... your body & the previous 'meal' insulin is still working.... you should try to keep BGL testing to meal times only because you will get confussed otherwise. You then have the oportunity to add a 'correction' with that meal 'injection' & all should be well till the next meal.
Of course we sometimes snack so, depending on the CPs you will have to make a decision "..how far away is my next meal?" and use the DAFNE principles to either cover or wait... cheers
 
Aug 3, 2010
Possum 7 posts

Topic: General Discussion / Denial

Hello, I am 57 years old & diagnosed Type 1 - Insulin dependant Nov 2008... I was in denial & a litle frightened of taking too much Novo Rapid at night to correct thinking I was not going to wake up... suprisingly, I'm still here!.... fortunately, I am using a 'demi' pen that allows me to take half units so, I can' er' on the side of caution to try out taking just that little bit more. I now find that after adhering to the DAFNE principles (CPs to ratio) my targets are around 6 or 7 BGL through the day & breakfast is usually 5 or 6. So, it can be done... good luck
 
Aug 2, 2010
claireadams 12 posts

Topic: General Discussion / Denial

Hi,

Ive had diabetes for 4 years and just recently done the dafne course, which i found fantastic....but... im only just coming to terms with my diabetes, im not actually sure what is happening to me but i think im coming out of denial! I think the course has finally made me realise that i have to accept this way of life and im really really struggling to cope with having diabetes. Especially since im a chocoholic and smoke on and off Sad I love exercise and try my best to eat healthily. But my Hba1c 9months ago was 16%, then 3 months ago was 13% and now is just over 10% ...since i came off the dafne course i seem to of lost the plot and been eating bad things and my bg is so high again. My brother has type 1 diabetes and has had since we were children, so i have lived with it my whole life but im finding it so hard to accept.

Has anyone else gone through this? Will this phase ever end?

Thanks, Claire (27yrs)
 
Aug 2, 2010
claireadams 12 posts

Topic: General Discussion / Diabetes.............

i dont know what id personally class it as, but if you break disease down its a 'dis-ease' ...and diabetes is certainly that to me!!
 
Aug 2, 2010
MarkB 2 posts

Topic: General Discussion / Dawn Phenomenon

I suspect I may be having DP issues having just had an insight into the problem whilst on holiday. For the past fortnight or so I have been having lie-ins (as much as the children will allow) this means getting up at about 09:00 rather than the usual 07:00ish. My pre-breakfast BS have been between 12 and 19 mmol/l over this period, this morning following my return to work and early mornings my pre-breakfast BS was 4.5. I have had other examples where I have got up early (06:00) tested my blood (7 mmol/l) driven straight to work (approx 50 mins) then retested before having breakfast and got a score of 17. My conclusion from all of this is that the background just doesn't do the job in the morning, it seems that I need to get some QA on board to counteract the DP. Prior to DAFNE I was overusing the BI insulin which probably masked this effect. Does this ring true for anyone else or the HCP's ??
 
Aug 2, 2010
Garry 328 posts

Topic: General Discussion / Loss of Hypo warning signs

Best discuss with your HCP.
Have been through this scenario twice before, last time about five years ago - well before my DAFNE - when my diabetologist of the time recommended a six month plan to readjust my body to more normal BGs - as my HBA1c by his reckoning was too good!
Hence it is very likely to be a long term process with HCP support.
As mentioned you may need change your diary target range and accept the knock-on effect on your next HBA1c - but well worth doing to get some secure hypo warning signs back.

With support I would go for it.

Regards
Garry

 
Aug 2, 2010
novorapidboi26 1,819 posts

Topic: General Discussion / Loss of Hypo warning signs

Scary stuff judith.....

I myself have not felt hypo at around that mark, but it was only a one off, or not just one, but very rarely.

Increasing the targets is the best way forward in my opinion.

Theoretically if your hitting the DAFNE targets stated in the handbook you should be fine, theoretically.

What readings are you getting at each time of the day?

Have a look at the handbook for the target ranges, or within the diary section on here, you can actually edit the targets from the dafne default...
 
Aug 2, 2010
Judith23 7 posts

Topic: General Discussion / Loss of Hypo warning signs

I have now lost all my hypo warning signs and am feeling a bit anxious!! I did a test at bedtime last night to discover my horror that my BG was 3.2 – I had no idea! I think this has been coming over the past couple of weeks, as I have tended to be much lower when discovering I am hypo. It’s a few years now since I did my Daphne course, but I recall that they gave advice to some people on my course at that time about them increasing their target BG for a time to prevent hypos and allow them to get their sensations back. Can anyone please give me advice on this?

Much appreciated.

Judith
 
Jul 30, 2010
SJB37 1 post

Topic: General Discussion / DAFNE and Employers

Hi there, been a graduate myself for over a year. In answer to your question, my employer has over 4000 employees and at first I was asked to take sick leave. When discussed further I found that I was actually entitled to attend the course under the DDA (Disability Act). Therefore did not cost me annual leave or my very good sickness record. Diabetics are covered under the disability act.
Regards
Sarah
 
Jul 29, 2010
AlexLawson 2 posts

Topic: DAFNE Online Mobile / Mobile Feature Requests

Hi Simon,
I have an Iphone 4, I looked about and found a great app called DiabetesDiary which is really useful. An app with a diary along with a carb list would be really handy.

Thanks,

Alex
 
Jul 29, 2010
novorapidboi26 1,819 posts

Topic: Questions for HCPs / Stress & Hyperglycemia

You still need 36 though!!
 
Jul 29, 2010
novorapidboi26 1,819 posts

Topic: General Discussion / Correction between meals?

Correct.........(as in right, dont correct with insulin)

Dafne principals would not have you correct between meals.........why......because you still have insulin and glucose from your previous meal working away inside you.

I tried for a discussion on here about readings between meals and how to get them down, but its all to do with glycaemic indexes and how fast or slow glusose is absorbed into your blood.

The only way to combat highs between times I believe is a pump.

Anyway, dont correct, if you have one off highs and lows you cant act as there is no pattern....
 
Jul 29, 2010
Jo Penn 24 posts

Topic: Questions for HCPs / Stress & Hyperglycemia

12u left in cartridge... :-(
 
Jul 28, 2010
ekuser 3 posts

Topic: General Discussion / What do you carry your diabetes stuff in?

When I went on holiday to Florida last year I purchased a FRIO Insulin Travel Wallet which cost approx £13 it kept my insulin cool in the heat. Worth every penny.
 
Jul 28, 2010
ekuser 3 posts

Topic: General Discussion / What do you carry your diabetes stuff in?

I purchased a medium sized tool box and use that at home to store all my diabetes equipment in and keep it at the bottom of my wardrobe. I keep my bg monitor and pens etc in the cases they came in inside my bag.