Loss of Hypo warning signs

18 posts, 11 contributors

Search the DAFNE Online Forums

 
Judith23 DAFNE Graduate
North Cumbria Integrated Care NHS Foundation Trust
7 posts

I have now lost all my hypo warning signs and am feeling a bit anxious!! I did a test at bedtime last night to discover my horror that my BG was 3.2 – I had no idea! I think this has been coming over the past couple of weeks, as I have tended to be much lower when discovering I am hypo. It’s a few years now since I did my Daphne course, but I recall that they gave advice to some people on my course at that time about them increasing their target BG for a time to prevent hypos and allow them to get their sensations back. Can anyone please give me advice on this?

Much appreciated.

Judith

novorapidboi26 DAFNE Graduate
NHS Lanarkshire
1,819 posts

Scary stuff judith.....

I myself have not felt hypo at around that mark, but it was only a one off, or not just one, but very rarely.

Increasing the targets is the best way forward in my opinion.

Theoretically if your hitting the DAFNE targets stated in the handbook you should be fine, theoretically.

What readings are you getting at each time of the day?

Have a look at the handbook for the target ranges, or within the diary section on here, you can actually edit the targets from the dafne default...

Garry DAFNE Graduate
North Lincolnshire and Goole NHS Foundation Trust
328 posts

Best discuss with your HCP.
Have been through this scenario twice before, last time about five years ago - well before my DAFNE - when my diabetologist of the time recommended a six month plan to readjust my body to more normal BGs - as my HBA1c by his reckoning was too good!
Hence it is very likely to be a long term process with HCP support.
As mentioned you may need change your diary target range and accept the knock-on effect on your next HBA1c - but well worth doing to get some secure hypo warning signs back.

With support I would go for it.

Regards
Garry

Judith23 DAFNE Graduate
North Cumbria Integrated Care NHS Foundation Trust
7 posts

Thanks for the advice and support. I managed to get hold of my HCP yesterday and she gave me some good advice to get warning signs back. Run my levels to the top of dafne targets for the next few weeks and then if they still haven't returned run them slightly higher. I have got to keep an eye on my night-time sugars though and make sure I'm not going hypo then as that could ruin all my hard work.

So far so good - will let you know how I get on. Feeling more confident about it all now - and know I can get everything back to normal, and rid myself of that scary 'lack of' sensation - and hopefully relax and enjoy my holiday a bit more when I jet off on Saturday!

toni DAFNE Graduate
South East Kent PCT
9 posts

judith
the advice given is to raise your bg levels to that above the norm then after a few weeks start bringing them back down to the lower readings of DAFNE targets, it should bring back your warning signs.
I tried and it didnt work for me i can go to 1.9 and still not feel anything and generally start fitting then!!
Good luck and keep us posted

Jennypenny DAFNE Graduate
Lewisham & Greenwich NHS Trust
34 posts

Sorry Judith like Toni , i have not had return of hypo signs if anything i have also lost the signs that my family would pick up on eg , paleness , talking gobbydigook, staring etc The other day my blood sugar was 2.1 on a random blood test and my husband said ' You didnt even appear hypo to us 'Which causes some concern as i too fit if blood goes under 2

meltow DAFNE Graduate
Harrogate and District NHS Foundation Trust
78 posts

I had a BG of 1.8 this week, and nothing felt or showing. Yikes! Never fitted yet, and fingers crossed it isn't about to start.

I live alone which is a little disconcerting, but if I tend to go low, most of these are in the night and, it never fails to wake me up. Very heavy sweats, and it may take me a while to be compus mentus and focus on what is happening. But I have always managed to take +ve action, and these BGs are usually around 2.5 to 2.9.

I do have a good friend and she is brilliant at picking up the signs - usually 'cos I start talking gibberish, my mind is definitely wandering and I can't formulate a good response to a question! Then she notices the sweats starting........

PNThompson DAFNE Graduate
North East London NHS Foundation Trust (Havering and Redbridge)
57 posts

Since doing DAFNE (April '09), I have managed to improve my hypo awareness, though still not 100%.
I too live on my own, and it can be a bit of a concern for my parents especially, and they will ring to check i'm still ok.
I nearly passed out a week or so ago, but just managed to catch it, though remember really struggling to focus my vision on trying to sort some food out. Couldn't focus on getting the coca cola or lucozade to recover.

When I do sense a hypo, and I feel it's quite bad it isn't that low (3.0-3.4), and often I feel fine even when the BG is below 3.0 or 2.0

Overall my hypo awareness isn't good enough, but not sure if anybody could guarantee that they are aware of all their hypos.

Kathryn76
Northern Care Alliance NHS Foundation Trust – North East Sector Hospitals
2 posts

I have lost all my awareness of hypos and I have been like this for about 6 months now. I am still unable to work as I have a job in a warehouse and it was unsafe for me to continue working being up and down ladders etc.. I have also had to surrender my driving licence and I have no idea when I will get it back, especially with the way things are going and I still have no awareness back I want to know will I ever get any awareness back as I do really want to get my licence back.

I have had diabetes for 25 years and always been well controlled but just had a very bad 12 months which has resulted in these problems.

To be honest I am very very worried about what is happening and I really thought that it be resolved after a couple of months, I just perhaps need some advice from someone that may have been through this

Thanks

novorapidboi26 DAFNE Graduate
NHS Lanarkshire
1,819 posts

I take it running your blood sugar higher has not helped...............in situations like this there could be other underlying problems that will be contributing to you lack of awareness and struggle to regain the symptoms.............

What has your care team suggested.........

Do you have lots of hypos, or just seldomly.........