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Aug 6, 2010
claireadams 12 posts

Topic: General Discussion / Diabetes.............

Hi Nat,
Really nice to hear that someone has healthy kids, it is a bit scary when youre pregnant hey? (i got diabetes during pregnancy, but was very controlled and gave birth to a healthy boy) ... 3 years later and my hba1c is terrible! was 16% then 13% now 10% ..but im sure its higher then 10 now ... my consultant would be happy if i tried to conceive at 8% but i just cant seem to get it down... hopefully now ive been on dafne it will really help. Can i ask what your hba1c was when you conceived? A girl in my dafne class said hers was 10% and her baby was fine and then she got better control throughout her pregnancy. Although, ive been told conception and the first 8 weeks is the most important for good control. The more desperate i become the more i 'rebel' against the diabetes and give up. On the dafne course they said the risk of a child getting diabetes with a type 1 mother is 1 in 50-100, but for a father with type 1 the risk of the baby getting it is 1 in 20! so at least this is a positive (well for us anyway)
 
Aug 6, 2010
Mark2 23 posts

Topic: General Discussion / Initial thoughts...........

I think something different - I think you should consider upping your ratio for lunchtime to 1:1.5. You seem to be getting a rise in sugars after lunch to a greater or lesser extent each day. To go from 1:3 all the way down to 1:1 seems to be a big leap.
 
Aug 6, 2010
PNThompson 57 posts

Topic: Carbohydrate Counting / Simple Form to assist Meal CP Calculation

John / Simon,

This spreadsheet was generally designed to be of help when there is a need to correct due to high or low Blood Sugars.

Initially I designed this on an Apple Mac computer, but due to some use for people without mac I adjusted the spreadsheet to work on Windows Excel as well.

Basically you set the ideal range for the test, and the calculation is made if the BG reading is outside the ideal range.

As suggested the spreadsheet can be changed the adjust labels for the fields, but I wanted to keep the labels small to avoid filling too much of the screen, especially as netbook screens are quite small.

I did think of whether to use the carb contents based on per piece, but decided against it as I found it difficult to judge the amount of rice or pasta, but everybody is different, and I think the spreadsheet could be changed to use both, though the easier option would be to use the carb content per piece and just input 100g for each piece. I will have a look into changing this.

The only issue I can see is that the calculation based on per 100g does not always equal the same as what the label advises for the portion. i.e. Cadbury Caramel Chocolate bar = 62.8g per 100g (6.28CPs).
The bar I tested weighed in at 50g, therefore the calculation would equal 3.18CPs, but the bar indicates 2.95CPs per bar. Now the question is what is correct? The difference is small, but if you consider several items of food combined may not equal the same when it is calculated, so I opted for the option based on the weight rather than the 'per piece' option.

If this could be set up as something for everybody I feel the food list would need to be blank, and allow anybody to add the foods they prefer.

Simon, if you are interested in looking at the spreadsheet, send me a message with your email address and I can send it to you to see if you think something could be developed to accompany this or use parts of it in something else.

Regards
Paul

 
Aug 6, 2010
Nat 30 posts

Topic: General Discussion / Initial thoughts...........

Yes your results do look good. You might have to play around with how much you split it by and for what food but glad it seemed to work.

I have made an appointment for next week to meet up with my Dafne administrator as just can't seem to find the solution to the whole process.
 
Aug 6, 2010
Athena 52 posts

Topic: General Discussion / Exhaustion

Thanks Marke. I just thought that diabetes makes you tired as I have always been very tired with it and I assumed that all the mucking around with regimes was making me feel worse for the moment. i am sure it will improve and was just looking for tips for what other people had tried.
However, hte hospital has already given me an appointment and I think they thought that becaseu my BI was nearly sorted that that would be me now better. I should e-mail again and see if i can go back to them.

Thanks for your view MArke and to all the o thers too.
Makes me feel less isolated.
 
Aug 6, 2010
Simon 578 posts

Topic: Carbohydrate Counting / Simple Form to assist Meal CP Calculation

Hi All,

Is there anything in these spreadsheets that would be of benefit to the DAFNE Online diary? Always keen to improve....

Simon
 
Aug 6, 2010
novorapidboi26 1,819 posts

Topic: General Discussion / Initial thoughts...........

You should be able to see further results added above.....

As you casn see, today, the 6th, my lunch was 15..

I decided to split it and see what happens, so I tooke 8 units prior to eating and 7 units 45 minutes after the first injection.......

The result are so far positive............
 
Aug 6, 2010
john day 54 posts

Topic: Carbohydrate Counting / Simple Form to assist Meal CP Calculation

Hello Paul.. had a chance now to look at your spreadsheet and think I am (just about!) clear on the operation.

It does a great job and, as a side benefit, the personal setup causes a close look at ones’s current regime assumptions! It is the next stage of the basic spreadsheet I set up to calculate (Regular) Meal CPs but with no attempt to assess Insulin rqmts. Your calc is more sophisticated technically and looks good too!

You did ask for comments(!), so here are mine, from the setup phase:

For additional user clarity:
Put ‘Name Range’ at top of Range names (b1)
Replace ‘Ideal’ with ‘Mid-range’ (e1)
Replace ‘Meal’ with ‘Meal Range Name’ (a15)
Append ‘before Meal’ after BG Reading (a16)
Append ‘Units required’ after ‘Adjustment’ (a17) Also we tended to use ‘Correction’ rather than ‘Adjust,ment’
Replace ‘Meal’ with ‘Meal Name’ (g7)
Replace ‘CP Count’ with ‘Meal CP calculated from list below’ (g15)
Append ‘(if required)’ to ‘Manual Adjustment’ (g16)
Append ‘Required’ to Insulin Injection’ (g17)

On the system side I would suggest:

Could the predefined-choice entries be made scrollable as per Dafne Online?

The Food names be structured (basicitem) (subtype) Brand eg ‘Chicken peri peri birdseye’
I realize this is a user thing but changing would start everybody off in the right direction and also makes identification more rapid and comparisons can be made more easily.

I found only about 50% items in my list had a weight unit of measure so would be good if you could enable system to also work from entry of quantity of other UOMs such as as you have already included in your list. (or have I missed something?).

The list ideally needs to be easily A5 printable for pre meal reference. . I have this, manually maintained, and use it every day as portion sizes are pretty standard.

It would also be good if you could add a feature which, when a meal CP has been calculated, would enable that meal or course, named by the user to be added to a Meal/course List maintained on a second worksheet page. This list again to be printable on A5 for pre meal reference.

That’s about it I think .. hope all is clear . I can send you my CP list if you wish but it is very simple but seems to have topped out at around 130 items.

Keep up the good work!

Cheers, John
 
Aug 6, 2010
novorapidboi26 1,819 posts

Topic: General Discussion / Initial thoughts...........

This is the ret of the results showing my dawn phenomonon..........

I think I might try and up my lunchtime ratio to 1.5:1. If this does send me low at dinner then I might need to consider splitting the dose.

I will consult with my nurses about how much and when........

Any more comments are very welcome.....
 
Aug 5, 2010
novorapidboi26 1,819 posts

Topic: General Discussion / Initial thoughts...........

I corrected at lunch as I only gave myself 2 CPS.......I am going to enquire about this splitting carry on..

Cheers for bringing it up........
 
Aug 5, 2010
Karl 83 posts

Topic: General Discussion / Initial thoughts...........

I have never heard of splitting either. I also thought you don't do a correction after a hypo - but this would have made your readings worse :-(
 
Aug 5, 2010
Nat 30 posts

Topic: General Discussion / Diabetes.............

Hi, I have been diabetic for 19 years. I was diagnosed when I was 19 right in the middle of that growing up stage. I went through my down times but I came out of it the other side stayed with my partner who was great never saw it for anything other than a good diet and jab a few times a day. We got married and I went to all my doctors appointments to find out about the chances of getting pregnant etc and without knowing I had already conceived. I stuck to my diet as closely as possible and at 35 weeks gave birth to a lovely baby girl. For four years I controlled my diabetes ready to have another baby but nothing happened, I gave up basically and what happened number 2 came along and a healthy baby girl again. A year after her birth and after caring for my mum who had been diagnosed with cancer and I was drinking nightly became pregnant again and this time a healthy baby boy! Although in the ideal world by HBA1C could have been better but with good ish control and help and support it all worked out well and they are now 13, 9, 7 and no diabetes yet!!!
 
Aug 5, 2010
claireadams 12 posts

Topic: General Discussion / Diabetes.............

Everyone has a fair point and i wouldnt rule out anyones opinion. I only got diagnosed 4 years ago, but my brother has had type 1 for about 24 years ... so i did grow up with it... and yes i agree it doesnt have to 'rule' your life, but it does stop you from doing some of the things you want to do, just like other conditions/diseases/illnesses. My brother was desperate to be a stunt man.. wasnt allowed... then join the royal marines...wasnt allowed... be a scuba diving instructor ... wasnt allowed (but he fought for this through PADI for a year and became one). Children with diabetes do have to adapt to it, they cant always do the same things as other children. Just like as adults we have to adapt to it and i suppose it is how you deal with it that is important. Although it is not 'stopping' me from getting pregnant, i would never risk conceiving until my Hba1c is what it should be, therefore having diabetes and waiting to be able to conceive is a HUGE inconvenience. Diabetes doesnt have to be as negative as i generally think it is, but at the moment when all i want in the world is baby, it doesnt feel easy or convenient!
Hopefully, now ive done dafne and found this site i can get advice and opinions from other diabetics, not just health professionals.
 
Aug 5, 2010
Nat 30 posts

Topic: General Discussion / Initial thoughts...........

I do start to know that I am over about 12 these days but unfortunately getting use to the feeling as not managing to stay in target either hypo or high most days. I hardly eat anything a bowl of cereal for breakfast usually the same for lunch and I might not have any tea and just a slice of bread before bed.

We were told that over about 12u insulin doesn't work so well so to split the does over about a 30 minute time period or basically some before you eat and some when you finish. I just don't know where to go now with it all!
 
Aug 5, 2010
novorapidboi26 1,819 posts

Topic: General Discussion / Initial thoughts...........

I am only testing out of curiosity......I don't tend to fell unwell at 14 and 15......

For lunch I had two rolls.....a bag of crisps.....dairylea dunkers.....iced gems....cereal bar and an apple.....so quite a lot......I am a big strong boy......

Never heard that rule of splitting above 12 units.......
 
Aug 5, 2010
Nat 30 posts

Topic: General Discussion / Initial thoughts...........

I was of the understanding after doing Dafne that you should spit your insulin dose at that sort of level i.e. over about 12. I have found that when I eat croissants, I have to have my insulin about 10/15 after eating them as my sugars peak too long after I have eaten and my insulin peaks first. What did you have for lunch to make that high? Why are you testing after meals, are you just curious or are you feeling unwell?
 
Aug 5, 2010
novorapidboi26 1,819 posts

Topic: General Discussion / Initial thoughts...........

For the last few days this has been the trend....although at dinner I was just above target yesterday........

So I fear upping my ratio may give me a hypo for dinner.....

I will get back with my results later.......

Keep u posted......
 
Aug 5, 2010
Angie 3 posts

Topic: General Discussion / Initial thoughts...........

I don't think splitting your lunchtime injection would help in this case, as you would be getting less insulin up front, and so you'd be even higher at the 2- and 3-hour tests. It seems as though what you actually need is *more* insulin up front, but if you're normally back in range by dinner, then that's probably going to send you hypo.

Is this a trend? Do you normally spike this high after your lunch and then come back down?
 
Aug 5, 2010
novorapidboi26 1,819 posts

Topic: General Discussion / Initial thoughts...........

If you can see my results, what do you think I should do with my lunchtime injection?

I will probably be on target for dinner but its the in between times that I cant get my head round.

Should I split my injection at lunch to take advantage of the overlapping peaks?
 
Aug 5, 2010
Clare77 2 posts

Topic: Site Development / DAFNE Online iPhone application - help with content/design needed

Hi
I think option 1 is best, it would be really good to try out the app even before the carb list is on it. I have opened the PDF version of the carb list in my free ibook app so its really easy to get access to it using my iphone as it is now automatically stored in there.
Looking forward to the app release!
 
Aug 4, 2010
toni 9 posts

Topic: General Discussion / Loss of Hypo warning signs

judith
the advice given is to raise your bg levels to that above the norm then after a few weeks start bringing them back down to the lower readings of DAFNE targets, it should bring back your warning signs.
I tried and it didnt work for me i can go to 1.9 and still not feel anything and generally start fitting then!!
Good luck and keep us posted
 
Aug 4, 2010
Alan 49 284 posts

Topic: General Discussion / Diabetes.............

I think that life is full of inconveniences: some mornings I find it inconvenient to have to get up; sometimes I find it inconvenient to go shopping or mowing the lawn or putting petrol in the car or shaving. Likewise, I sometimes find it inconvenient to test my BG before a meal or before I drive; to remember to take some glucose tablets with me before I go out; to have to calculate the CPs in a meal; to try not to be conspicuous when I inject at the table in a restaurant. As I said, life is full of inconveniences - be they medical or non-medical, but we deal with them.

Alan
 
Aug 4, 2010
Simon 578 posts

Topic: Site Development / DAFNE Online iPhone application - help with content/design needed

Hi all - I've copied this from another topic on the Carb Counting forum, but thought it was relevant to this one too...

Well the DAFNE Online iPhone app is ready - however we've hit a small problem. The DAFNE Central team aren't keen on releasing the carb list in 'app' form without users paying for it. We're campaigning for it to be a free app, and whether we will be allowed to distribute the carbs list in an app for free will be decided at a DAFNE Executive meeting on 30th September.

As we don't want to keep you waiting for another 2 months or more - I'd like to get your opinion on the best course of action.

As it stands we could release the app, which allows you to enter and view your DAFNE Diary entries, as well as uploading these entries to your DAFNE Online account so that you can view them in graphical form and share with other users. You can also specify your own targets within the app, and BG results are colour coded according to those targets. Although the carbs list is implemented, we would have to lock it out and simply provide a link to the online carbs list we have here, until the DAFNE Executive make their decision.

Option two - we can wait until after september 30th for a decision from the DAFNE Executive as to whether the carbs list can be in a free version of the app. If the answer is no, we will create two versions of the app - one a paid for version containing the carbs list on your iPhone, the other without the carbs list, but for free.

Apologies for the complication - it is out of our hands at the moment, however your opinions on the above options would be gratefully received.

Answers on a postcard please (or just reply to this topic ;) )
 
Aug 4, 2010
LauraH 6 posts

Topic: Carbohydrate Counting / Iphone Apps

Hi Simon,

It would be really useful if we could have an app sooner rather than later, with or without the carb list. If, come Septmeber, you can include the carb list in the free app that would be terrific, but if not at least the free app will already be up and running.

Greatly appreciate all your hard work in this, I can't wait to have an app on my iPhone to record my DAFNE diary :-D

Laura.
 
Aug 4, 2010
Karl 83 posts

Topic: Carbohydrate Counting / Iphone Apps

Could you release now and if they allow you later, do it as an update - if they don't you could submit it as a different version - a lite version (free) full version (pay)