Recent Posts - DAFNE Online

Aug 3, 2010

Possum 7 posts

Hello, I am 57 years old & diagnosed Type 1 - Insulin dependant Nov 2008... I was in denial & a litle frightened of taking too much Novo Rapid at night to correct thinking I was not going to wake up... suprisingly, I'm still here!.... fortunately, I am using a 'demi' pen that allows me to take half units so, I can' er' on the side of caution to try out taking just that little bit more. I now find that after adhering to the DAFNE principles (CPs to ratio) my targets are around 6 or 7 BGL through the day & breakfast is usually 5 or 6. So, it can be done... good luck

Aug 2, 2010

claireadams 12 posts

Topic: General Discussion / Denial

Hi,

Ive had diabetes for 4 years and just recently done the dafne course, which i found fantastic....but... im only just coming to terms with my diabetes, im not actually sure what is happening to me but i think im coming out of denial! I think the course has finally made me realise that i have to accept this way of life and im really really struggling to cope with having diabetes. Especially since im a chocoholic and smoke on and off Sad

I love exercise and try my best to eat healthily. But my Hba1c 9months ago was 16%, then 3 months ago was 13% and now is just over 10% ...since i came off the dafne course i seem to of lost the plot and been eating bad things and my bg is so high again. My brother has type 1 diabetes and has had since we were children, so i have lived with it my whole life but im finding it so hard to accept.

Has anyone else gone through this? Will this phase ever end?

Thanks, Claire (27yrs)

Aug 2, 2010

claireadams 12 posts

Topic: General Discussion / Diabetes.............

i dont know what id personally class it as, but if you break disease down its a 'dis-ease' ...and diabetes is certainly that to me!!

Aug 2, 2010

MarkB 2 posts

Topic: General Discussion / Dawn Phenomenon

I suspect I may be having DP issues having just had an insight into the problem whilst on holiday. For the past fortnight or so I have been having lie-ins (as much as the children will allow) this means getting up at about 09:00 rather than the usual 07:00ish. My pre-breakfast BS have been between 12 and 19 mmol/l over this period, this morning following my return to work and early mornings my pre-breakfast BS was 4.5. I have had other examples where I have got up early (06:00) tested my blood (7 mmol/l) driven straight to work (approx 50 mins) then retested before having breakfast and got a score of 17. My conclusion from all of this is that the background just doesn't do the job in the morning, it seems that I need to get some QA on board to counteract the DP. Prior to DAFNE I was overusing the BI insulin which probably masked this effect. Does this ring true for anyone else or the HCP's ??

Aug 2, 2010

Garry 328 posts

Topic: General Discussion / Loss of Hypo warning signs

Best discuss with your HCP.
Have been through this scenario twice before, last time about five years ago - well before my DAFNE - when my diabetologist of the time recommended a six month plan to readjust my body to more normal BGs - as my HBA1c by his reckoning was too good!
Hence it is very likely to be a long term process with HCP support.
As mentioned you may need change your diary target range and accept the knock-on effect on your next HBA1c - but well worth doing to get some secure hypo warning signs back.

With support I would go for it.

Regards
Garry

Aug 2, 2010

novorapidboi26 1,819 posts

Topic: General Discussion / Loss of Hypo warning signs

Scary stuff judith.....

I myself have not felt hypo at around that mark, but it was only a one off, or not just one, but very rarely.

Increasing the targets is the best way forward in my opinion.

Theoretically if your hitting the DAFNE targets stated in the handbook you should be fine, theoretically.

What readings are you getting at each time of the day?

Have a look at the handbook for the target ranges, or within the diary section on here, you can actually edit the targets from the dafne default...

Aug 2, 2010

Judith23 7 posts

Topic: General Discussion / Loss of Hypo warning signs

I have now lost all my hypo warning signs and am feeling a bit anxious!! I did a test at bedtime last night to discover my horror that my BG was 3.2 â€“ I had no idea! I think this has been coming over the past couple of weeks, as I have tended to be much lower when discovering I am hypo. Itâ€™s a few years now since I did my Daphne course, but I recall that they gave advice to some people on my course at that time about them increasing their target BG for a time to prevent hypos and allow them to get their sensations back. Can anyone please give me advice on this?

Much appreciated.

Judith

Jul 30, 2010

SJB37 1 post

Topic: General Discussion / DAFNE and Employers

Hi there, been a graduate myself for over a year. In answer to your question, my employer has over 4000 employees and at first I was asked to take sick leave. When discussed further I found that I was actually entitled to attend the course under the DDA (Disability Act). Therefore did not cost me annual leave or my very good sickness record. Diabetics are covered under the disability act.
Regards
Sarah

Jul 29, 2010

AlexLawson 2 posts

Topic: DAFNE Online Mobile / Mobile Feature Requests

Hi Simon,
I have an Iphone 4, I looked about and found a great app called DiabetesDiary which is really useful. An app with a diary along with a carb list would be really handy.

Thanks,

Alex

Jul 29, 2010

novorapidboi26 1,819 posts

Topic: Questions for HCPs / Stress & Hyperglycemia

You still need 36 though!!

Jul 29, 2010

novorapidboi26 1,819 posts

Topic: General Discussion / Correction between meals?

Correct.........(as in right, dont correct with insulin)

Dafne principals would not have you correct between meals.........why......because you still have insulin and glucose from your previous meal working away inside you.

I tried for a discussion on here about readings between meals and how to get them down, but its all to do with glycaemic indexes and how fast or slow glusose is absorbed into your blood.

The only way to combat highs between times I believe is a pump.

Anyway, dont correct, if you have one off highs and lows you cant act as there is no pattern....

Jul 29, 2010

Jo Penn 24 posts

Topic: Questions for HCPs / Stress & Hyperglycemia

12u left in cartridge... :-(

Jul 28, 2010

ekuser 3 posts

Topic: General Discussion / What do you carry your diabetes stuff in?

When I went on holiday to Florida last year I purchased a FRIO Insulin Travel Wallet which cost approx Â£13 it kept my insulin cool in the heat. Worth every penny.

Jul 28, 2010

ekuser 3 posts

Topic: General Discussion / What do you carry your diabetes stuff in?

I purchased a medium sized tool box and use that at home to store all my diabetes equipment in and keep it at the bottom of my wardrobe. I keep my bg monitor and pens etc in the cases they came in inside my bag.

Jul 28, 2010

ekuser 3 posts

Topic: General Discussion / Carbs and cals book

I managed to obtain a copy from an ebay seller. I searched for the book and found a seller selling slight "seconds" (per seller: have minor cosmetic marks or slightly damaged ie small printing smears to the jacket, tiny dinks to the spine, or very slight page mis-alignment) for only Â£6.99 free p &p! Might be worth a look :-)

Jul 28, 2010

meltow 78 posts

Topic: General Discussion / Correction between meals?

I tend not to use a correction dose between meals, but will make the correction at the next meal time. For me this tends to work better, because I am never certain when my fast acting insulin has actually stopped working. I feel if I were to take a correction dose between meals, I might just be adding insulin to insulin, which could result in too much, and I ain't keen on hypos! I haven't had your experience where my BG has gone up rather than down.
I always test BG before bed, and will take a correction dose if needed. Bed is usually about 4 or 5 hours after my last dose of fast acting insulin, so I am fairly confident the active period of my teatime jab will have been and gone!

Jul 28, 2010

PNThompson 57 posts

Topic: General Discussion / Correction between meals?

I usually test between meals, when I have changed my ratio or the BI to ensure that I don't run too high.
I was quite high mid morning but came back to range by lunchtime. Don't think you should correct, but if you eat something then obviously you will have to inject, but wouldn't suggest correcting then either until you work out some form of pattern to decide whether or not you need to.

Jul 28, 2010

Ffi010 8 posts

Topic: General Discussion / Correction between meals?

Hi,
I realise I shouldn't correct inbetween meals but sometimes (out of curiosity mainly) I will test my BG inbetween meals.
If it is around 13 I dont correct, but I have done it before and it has shot up to 19! and then my next BG will have fallen by my next meal, even though a little higher than target, but I was wondering if I should be correcting this inbetween meals?
it only occasionally happens with no real reason why.
I am now getting a little paronoid/worried. can anyone help?
thank you

Jul 28, 2010

novorapidboi26 1,819 posts

Topic: Questions for HCPs / Stress & Hyperglycemia

Hey, sorry to hear about your dad, must be hard an you.

Something needs to change to get those readings down.

I would probably start with my BI insulin, easier if on levemir to notice a change.

I would do that because I would not want to change any ration of QA if I thought they might settle back down again.

If that causes problems, then you will have to adjust your QA ratios starting from your morning reading. It looks like your best time of the day is dinner.

Also on the Monday 26 you took 12 BI units, this is a mistake?

It must be hard to focus on yourself when your family needs all your support.

Try the BI, then the QA, thats my opinion...

The floor is open............

Jul 27, 2010

Jo Penn 24 posts

Topic: General Discussion / How good is dafne

For me - this has been a life saver... feel fantastic losing about 2kg a fortnight too..
reduction in QA ; hopefully reduction in HBA1c

Jul 27, 2010

Jo Penn 24 posts

Topic: Questions for HCPs / Stress & Hyperglycemia

I am having problems controlling my sugars due to stress with a family situation (dad been recently dxd with cancer) and am feeling rather :-S about this at the moment...

Any tips?

Jul 27, 2010

weffer25 1 post

Topic: General Discussion / DAFNE and Employers

I am a nurse and I worked Friday, Saturday, Sunday nightshifts so that I could attend the course during the week. It was exhausting but because the roster had been done by the time I knew I was attending the course, all I could do was change my shifts to this.

Jul 27, 2010

novorapidboi26 1,819 posts

Topic: Questions for HCPs / Insulin resistace and Alergy?

I had similar, all be it smaller symptoms when on Levemir, and someone in my dafne classroom would not go on it either as she was allergic to it......

Its quite common I think, for Levemir anyway, there must be something in it.....

If its a pain, you will just need to change insulin...

I think the lumps might be a reaction to the insulin as opposed to actual static insulin, and I dont think your QA will be affected as you wont be injecting on those sites wth a bad reaction.??

Aug 3, 2010 Possum 7 posts	Topic: General Discussion / Denial Hello, I am 57 years old & diagnosed Type 1 - Insulin dependant Nov 2008... I was in denial & a litle frightened of taking too much Novo Rapid at night to correct thinking I was not going to wake up... suprisingly, I'm still here!.... fortunately, I am using a 'demi' pen that allows me to take half units so, I can' er' on the side of caution to try out taking just that little bit more. I now find that after adhering to the DAFNE principles (CPs to ratio) my targets are around 6 or 7 BGL through the day & breakfast is usually 5 or 6. So, it can be done... good luck

Aug 2, 2010 claireadams 12 posts	Topic: General Discussion / Denial Hi, Ive had diabetes for 4 years and just recently done the dafne course, which i found fantastic....but... im only just coming to terms with my diabetes, im not actually sure what is happening to me but i think im coming out of denial! I think the course has finally made me realise that i have to accept this way of life and im really really struggling to cope with having diabetes. Especially since im a chocoholic and smoke on and off I love exercise and try my best to eat healthily. But my Hba1c 9months ago was 16%, then 3 months ago was 13% and now is just over 10% ...since i came off the dafne course i seem to of lost the plot and been eating bad things and my bg is so high again. My brother has type 1 diabetes and has had since we were children, so i have lived with it my whole life but im finding it so hard to accept. Has anyone else gone through this? Will this phase ever end? Thanks, Claire (27yrs)

Aug 2, 2010 claireadams 12 posts	Topic: General Discussion / Diabetes............. i dont know what id personally class it as, but if you break disease down its a 'dis-ease' ...and diabetes is certainly that to me!!

Aug 2, 2010 MarkB 2 posts	Topic: General Discussion / Dawn Phenomenon I suspect I may be having DP issues having just had an insight into the problem whilst on holiday. For the past fortnight or so I have been having lie-ins (as much as the children will allow) this means getting up at about 09:00 rather than the usual 07:00ish. My pre-breakfast BS have been between 12 and 19 mmol/l over this period, this morning following my return to work and early mornings my pre-breakfast BS was 4.5. I have had other examples where I have got up early (06:00) tested my blood (7 mmol/l) driven straight to work (approx 50 mins) then retested before having breakfast and got a score of 17. My conclusion from all of this is that the background just doesn't do the job in the morning, it seems that I need to get some QA on board to counteract the DP. Prior to DAFNE I was overusing the BI insulin which probably masked this effect. Does this ring true for anyone else or the HCP's ??

Aug 2, 2010 Garry 328 posts	Topic: General Discussion / Loss of Hypo warning signs Best discuss with your HCP. Have been through this scenario twice before, last time about five years ago - well before my DAFNE - when my diabetologist of the time recommended a six month plan to readjust my body to more normal BGs - as my HBA1c by his reckoning was too good! Hence it is very likely to be a long term process with HCP support. As mentioned you may need change your diary target range and accept the knock-on effect on your next HBA1c - but well worth doing to get some secure hypo warning signs back. With support I would go for it. Regards Garry

Aug 2, 2010 novorapidboi26 1,819 posts	Topic: General Discussion / Loss of Hypo warning signs Scary stuff judith..... I myself have not felt hypo at around that mark, but it was only a one off, or not just one, but very rarely. Increasing the targets is the best way forward in my opinion. Theoretically if your hitting the DAFNE targets stated in the handbook you should be fine, theoretically. What readings are you getting at each time of the day? Have a look at the handbook for the target ranges, or within the diary section on here, you can actually edit the targets from the dafne default...

Aug 2, 2010 Judith23 7 posts	Topic: General Discussion / Loss of Hypo warning signs I have now lost all my hypo warning signs and am feeling a bit anxious!! I did a test at bedtime last night to discover my horror that my BG was 3.2 â€“ I had no idea! I think this has been coming over the past couple of weeks, as I have tended to be much lower when discovering I am hypo. Itâ€™s a few years now since I did my Daphne course, but I recall that they gave advice to some people on my course at that time about them increasing their target BG for a time to prevent hypos and allow them to get their sensations back. Can anyone please give me advice on this? Much appreciated. Judith

Jul 30, 2010 SJB37 1 post	Topic: General Discussion / DAFNE and Employers Hi there, been a graduate myself for over a year. In answer to your question, my employer has over 4000 employees and at first I was asked to take sick leave. When discussed further I found that I was actually entitled to attend the course under the DDA (Disability Act). Therefore did not cost me annual leave or my very good sickness record. Diabetics are covered under the disability act. Regards Sarah

Jul 29, 2010 AlexLawson 2 posts	Topic: DAFNE Online Mobile / Mobile Feature Requests Hi Simon, I have an Iphone 4, I looked about and found a great app called DiabetesDiary which is really useful. An app with a diary along with a carb list would be really handy. Thanks, Alex

Jul 29, 2010 novorapidboi26 1,819 posts	Topic: Questions for HCPs / Stress & Hyperglycemia You still need 36 though!!

Jul 29, 2010 novorapidboi26 1,819 posts	Topic: General Discussion / Correction between meals? Correct.........(as in right, dont correct with insulin) Dafne principals would not have you correct between meals.........why......because you still have insulin and glucose from your previous meal working away inside you. I tried for a discussion on here about readings between meals and how to get them down, but its all to do with glycaemic indexes and how fast or slow glusose is absorbed into your blood. The only way to combat highs between times I believe is a pump. Anyway, dont correct, if you have one off highs and lows you cant act as there is no pattern....

Jul 29, 2010 Jo Penn 24 posts	Topic: Questions for HCPs / Stress & Hyperglycemia 12u left in cartridge... :-(

Jul 28, 2010 ekuser 3 posts	Topic: General Discussion / What do you carry your diabetes stuff in? When I went on holiday to Florida last year I purchased a FRIO Insulin Travel Wallet which cost approx Â£13 it kept my insulin cool in the heat. Worth every penny.

Jul 28, 2010 ekuser 3 posts	Topic: General Discussion / What do you carry your diabetes stuff in? I purchased a medium sized tool box and use that at home to store all my diabetes equipment in and keep it at the bottom of my wardrobe. I keep my bg monitor and pens etc in the cases they came in inside my bag.

Jul 28, 2010 ekuser 3 posts	Topic: General Discussion / Carbs and cals book I managed to obtain a copy from an ebay seller. I searched for the book and found a seller selling slight "seconds" (per seller: have minor cosmetic marks or slightly damaged ie small printing smears to the jacket, tiny dinks to the spine, or very slight page mis-alignment) for only Â£6.99 free p &p! Might be worth a look :-)

Jul 28, 2010 meltow 78 posts	Topic: General Discussion / Correction between meals? I tend not to use a correction dose between meals, but will make the correction at the next meal time. For me this tends to work better, because I am never certain when my fast acting insulin has actually stopped working. I feel if I were to take a correction dose between meals, I might just be adding insulin to insulin, which could result in too much, and I ain't keen on hypos! I haven't had your experience where my BG has gone up rather than down. I always test BG before bed, and will take a correction dose if needed. Bed is usually about 4 or 5 hours after my last dose of fast acting insulin, so I am fairly confident the active period of my teatime jab will have been and gone!

Jul 28, 2010 PNThompson 57 posts	Topic: General Discussion / Correction between meals? I usually test between meals, when I have changed my ratio or the BI to ensure that I don't run too high. I was quite high mid morning but came back to range by lunchtime. Don't think you should correct, but if you eat something then obviously you will have to inject, but wouldn't suggest correcting then either until you work out some form of pattern to decide whether or not you need to.

Jul 28, 2010 Ffi010 8 posts	Topic: General Discussion / Correction between meals? Hi, I realise I shouldn't correct inbetween meals but sometimes (out of curiosity mainly) I will test my BG inbetween meals. If it is around 13 I dont correct, but I have done it before and it has shot up to 19! and then my next BG will have fallen by my next meal, even though a little higher than target, but I was wondering if I should be correcting this inbetween meals? it only occasionally happens with no real reason why. I am now getting a little paronoid/worried. can anyone help? thank you

Jul 28, 2010 novorapidboi26 1,819 posts	Topic: Questions for HCPs / Stress & Hyperglycemia Hey, sorry to hear about your dad, must be hard an you. Something needs to change to get those readings down. I would probably start with my BI insulin, easier if on levemir to notice a change. I would do that because I would not want to change any ration of QA if I thought they might settle back down again. If that causes problems, then you will have to adjust your QA ratios starting from your morning reading. It looks like your best time of the day is dinner. Also on the Monday 26 you took 12 BI units, this is a mistake? It must be hard to focus on yourself when your family needs all your support. Try the BI, then the QA, thats my opinion... The floor is open............

Jul 27, 2010 Jo Penn 24 posts	Topic: General Discussion / How good is dafne For me - this has been a life saver... feel fantastic losing about 2kg a fortnight too.. reduction in QA ; hopefully reduction in HBA1c

Jul 27, 2010 Jo Penn 24 posts	Topic: Questions for HCPs / Stress & Hyperglycemia I am having problems controlling my sugars due to stress with a family situation (dad been recently dxd with cancer) and am feeling rather :-S about this at the moment... Any tips?

Jul 27, 2010 weffer25 1 post	Topic: General Discussion / DAFNE and Employers I am a nurse and I worked Friday, Saturday, Sunday nightshifts so that I could attend the course during the week. It was exhausting but because the roster had been done by the time I knew I was attending the course, all I could do was change my shifts to this.

Jul 27, 2010 novorapidboi26 1,819 posts	Topic: Questions for HCPs / Insulin resistace and Alergy? I had similar, all be it smaller symptoms when on Levemir, and someone in my dafne classroom would not go on it either as she was allergic to it...... Its quite common I think, for Levemir anyway, there must be something in it..... If its a pain, you will just need to change insulin... I think the lumps might be a reaction to the insulin as opposed to actual static insulin, and I dont think your QA will be affected as you wont be injecting on those sites wth a bad reaction.??