Recent Posts - DAFNE Online

Oct 21, 2010

Kentbabe 10 posts

Topic: General Discussion / Dafne refresher courses

Hiya I've not heard of the refresher courses but I'm hoping that I will be getting a letter as to the date of the yearly up date. Has anyone else had there 6 monthly meeting cancelled?

Oct 20, 2010

Jenny Spollen 13 posts

Topic: General Discussion / Calling any and all archaeologists!

Cheers folks,

Cheered me up no end to see that I'm not the only one..... Very Happy

Ah yes....the fabled pump. Slowly going through the hoops and hoping to get my hands on one
Once again THANK YOU!

Jenny

Oct 20, 2010

marke 686 posts

Topic: General Discussion / type 1 during pregnancy- help!

Claire, you are more likely to get an answer to this question if you post it in the 'Questions for HCPs' forum. Obviously its not a situation I will ever be in but as I understand it you insulin requirements should return to normal after pregnancy. If you don't get a response on the other forums I would suggest you discuss your concerns with your DAFNE educator or your Diabetes Team, these people should be experts on the subject and hopefully explain all the likely changes to you.
Congratulations and good luck by the way....

Oct 20, 2010

marke 686 posts

Topic: General Discussion / Shortage of test strips

ah, but Alan what they probably didn't tell you was the drugs then get imported back into the UK and sold in the UK. Its often cheaper to source branded drugs in the EU and then relabel them for the UK market. This is common practice and so drugs being restricted by the makers in the UK would not really affect the market hugely. However as I say I have had the problem as well so I'm as interested as you to know why. What we need is a mole in the manufacturers company to tell us what is really going on. Sadly I don't know anyone, does any one else ?

Oct 20, 2010

claireadams 12 posts

Topic: General Discussion / type 1 during pregnancy- help!

Has anyone got any hints or suggestions how to control diabetes during pregnancy?? As soon as i conceived i seemed to be resistant to insulin and am not on HUGE amounts and still increasing it. Im hoping that when i give birth i'll go back to taking the amount of units i was on before? or will my body get used to this amount and i'll still be on it? Any tips on being pregnant with Type 1 will be useful

Thanks Claire

Oct 20, 2010

Alan 49 284 posts

Topic: General Discussion / Shortage of test strips

I have been told that last week, on the One Show (on BBC1), there was a piece about a cancer patient who was having trouble getting the drugs prescribed to treat her condition. The programme went on to say that after investigation, it was found that drug companies and wholesalers were restricting supplies to UK pharmacies because of the weakness of the Pound. They were maximising their profits by shipping more of their products to European countries - hence the shortages in the UK. I didn't see the programme myself, but it sounds feasible. On searching the BBC website, I found the following page: http://news.bbc.co.uk/1/hi/health/8516080.stm which is dated in February this year and would seem to be about the same problem. I wonder whether this was the cause of the problem I had.

Oct 20, 2010

novorapidboi26 1,819 posts

Topic: General Discussion / Calling any and all archaeologists!

Hey there..........

NiVZ is correct, on the forum www.diabetessupport.co.uk there is a female archeologist who goes by the name of SilentAssasin1642.

She is actually on a pump, but everyone on a pump needs to be trained to the same principals and standards as dafne, if not better.

I reccomend signing up over there and giving her a PM, you might find the answers your looking for.

Good luck...........

nrb

Oct 20, 2010

NiVZ 82 posts

Topic: General Discussion / Calling any and all archaeologists!

Hi Jenny,

I know of one other female diabetic archeaologist who posts on another diabetes forum I use. Don't think she is DAFNE trained so probably not on here tho.

NiVZ

Oct 20, 2010

Jenny Spollen 13 posts

Topic: General Discussion / Calling any and all archaeologists!

Hi all,
I've been a Diabetic for 20 odd years at this stage and completed the DAFNE course a year ago. best thing ever.

However, I work as an archaeologist and the huge array of variables that come with day-to-day work on a site especially as regards physical activity, it's unpredicability etc and the havoc it can reep in your hourly, never mind daily, BG levels is to say the least annoying.

I have also yet to meet another diabetic muck-shoveller and would be really interested to know if there are others in the same field and how things are working out for them Very Happy

Jenny

Oct 20, 2010

novorapidboi26 1,819 posts

Topic: General Discussion / not good !! help

Its good you have finally realised that you cant go on the way you have been............sometimes for most people that is all they need to change the way they control diabetes.......the time this takes varies for each person........

I would say 8 out of 12 years being diabetic were spent not really knowing how to manage it.......

Good luck at the doctors...

Oct 19, 2010

claireadams 12 posts

Topic: General Discussion / not good !! help

Hi Kelly,
I got type 1 diabetes 4 years ago during pregnancy and when i gave birth i lost so much weight through out of control diabetes that everyone was saying how skinny and ill i looked (i loved it!- ate what i liked and never gained a pound)... then over the years it actually made me ill.. the symptoms of high bg just werent worth it anymore and after 2 bouts in hospital (one in intensive care) and a young son to look after i just had to sort it out.... unfortunately with the control came weight gain, but i am much healthier and can live a normal life. I get help now with having an eating disorder, and to be honest i still struggle with the amount of weight i have gained, but it is worth it. I think with a balanced diet and exercise you can keep your weight in check without using your insulin. I really think you should look into getting help with having an eating disorder (you may not think you have but anyone who uses insulin to loose weight is risking their life). Please take it from someone who knows! I really hope you get healthy again and get back on track with dafne for the sake of your children... Good luck, Claire
ps i had cognitive behavioural therapy, it really helped me

Oct 19, 2010

marke 686 posts

Topic: General Discussion / Dafne refresher courses

Hi Jennifer Iden, yes its me you contact about being 'promoted' from a user to a graduate, just contact me via the 'contact us' link at the
bottom of every page or via the 'message inbox' in the right hand menu. We can then sort out what details we need from you to do it.

Oct 19, 2010

novorapidboi26 1,819 posts

Topic: General Discussion / Dafne refresher courses

how many folk attend..........is 3 hours enough............

Oct 19, 2010

emmacool 17 posts

Topic: General Discussion / Insulin Pumps

good luck thunderbolt if you get the chance ask about the new omnipod its wireless! emma x

Oct 19, 2010

emmacool 17 posts

Topic: General Discussion / Dafne refresher courses

ive been on a few refresher courses and find them really usefull to update my dafne knowledge because i keep forgeting stuff lol

Oct 19, 2010

emmacool 17 posts

Topic: DUAG Committee / workstream 2

sounds good to me em x

Oct 19, 2010

emmacool 17 posts

Topic: DUAG Committee / First draft of DUG letter

thte last part sounds better in revised version
emma x

Oct 19, 2010

addie 13 posts

Topic: General Discussion / Dafne refresher courses

Okay my local refresher courses are ran twice yearly. Ive missed this entry for Nov 2010 so going to attend the June 2011 course. 3 hours 6-9 for one night only. Cant do any harm. Apologies I was unaware these courses were not ran in all DAFNE centres.

Hope all you are in good health.

Best wishes
Ad

Oct 19, 2010

PNThompson 57 posts

Topic: General Discussion / Dafne refresher courses

I have not heard about any refresher course, but I have had a yearly review meeting.
I don't know if I would benefit from any review, but would certainly agree that people who do struggle could maybe do with attending a refresher course.

Given time, even those of us who have done quite well with the course could do with a refresher course, as there will no doubt be changes, and people will not doubt stray from what they had learnt.

Oct 19, 2010

Jennifer Iden 11 posts

Topic: General Discussion / Dafne refresher courses

I'm booked on a carb counting and dose adjustment refresher course later this year, having completed DAFNE last October....

Marke, is it you that I need to talk to about being promoted from a 'user' to a 'graduate'?

Oct 19, 2010

novorapidboi26 1,819 posts

Topic: General Discussion / Dafne refresher courses

When you say people like me are you reffering to people with internet access...............I was given the handbook home as well.

I do understand some people may struggle for whatever reason, but I believe only a small amount.....

I agree only time will tell and also to dafne drop ins, if there were staff commited to only dafne that would be brilliant.

Oct 19, 2010

Annette Bell 72 posts

Topic: DUAG Committee / First draft of DUG letter

Thanks Mark!

Oct 19, 2010

Annette Bell 72 posts

Topic: DUAG Committee / workstream 2

Ok thanks Brian, will do.

Oct 19, 2010

Brian Trench 17 posts

Topic: DUAG Committee / workstream 2

I also agree that if they do not enter comment then that is an implied acceptance. Its like building a 3 legged stool by committee with the result that the stool is never finished! Lets just bite bullets and get on with it. Pass it to Central DAFNE for them to issue to DUG either by email or by letter. A cover note/compliments slip from Central DAFNE would get over the signature bit

Oct 18, 2010

marke 686 posts

Topic: DUAG Committee / workstream 2

yes, we are already asking for contact details so clearly your ideas were in line with mine and vice-versa. i wrote the doc above a day or so after the meeting and have been waiting for Brian to return from holiday and review it before posting it here. Therefore some of the ideas have been overtaken by events. I approve the latest version but I'm not sure what the process is to move forward. I guess we just need responses from all those that have bothered to read the forum before you send it to Gill. Everyone else doesn't get a say since they evidently don't want to contribute.

Oct 21, 2010 Kentbabe 10 posts	Topic: General Discussion / Dafne refresher courses Hiya I've not heard of the refresher courses but I'm hoping that I will be getting a letter as to the date of the yearly up date. Has anyone else had there 6 monthly meeting cancelled?

Oct 20, 2010 Jenny Spollen 13 posts	Topic: General Discussion / Calling any and all archaeologists! Cheers folks, Cheered me up no end to see that I'm not the only one..... Ah yes....the fabled pump. Slowly going through the hoops and hoping to get my hands on one Once again THANK YOU! Jenny

Oct 20, 2010 marke 686 posts	Topic: General Discussion / type 1 during pregnancy- help! Claire, you are more likely to get an answer to this question if you post it in the 'Questions for HCPs' forum. Obviously its not a situation I will ever be in but as I understand it you insulin requirements should return to normal after pregnancy. If you don't get a response on the other forums I would suggest you discuss your concerns with your DAFNE educator or your Diabetes Team, these people should be experts on the subject and hopefully explain all the likely changes to you. Congratulations and good luck by the way....

Oct 20, 2010 marke 686 posts	Topic: General Discussion / Shortage of test strips ah, but Alan what they probably didn't tell you was the drugs then get imported back into the UK and sold in the UK. Its often cheaper to source branded drugs in the EU and then relabel them for the UK market. This is common practice and so drugs being restricted by the makers in the UK would not really affect the market hugely. However as I say I have had the problem as well so I'm as interested as you to know why. What we need is a mole in the manufacturers company to tell us what is really going on. Sadly I don't know anyone, does any one else ?

Oct 20, 2010 claireadams 12 posts	Topic: General Discussion / type 1 during pregnancy- help! Has anyone got any hints or suggestions how to control diabetes during pregnancy?? As soon as i conceived i seemed to be resistant to insulin and am not on HUGE amounts and still increasing it. Im hoping that when i give birth i'll go back to taking the amount of units i was on before? or will my body get used to this amount and i'll still be on it? Any tips on being pregnant with Type 1 will be useful Thanks Claire

Oct 20, 2010 Alan 49 284 posts	Topic: General Discussion / Shortage of test strips I have been told that last week, on the One Show (on BBC1), there was a piece about a cancer patient who was having trouble getting the drugs prescribed to treat her condition. The programme went on to say that after investigation, it was found that drug companies and wholesalers were restricting supplies to UK pharmacies because of the weakness of the Pound. They were maximising their profits by shipping more of their products to European countries - hence the shortages in the UK. I didn't see the programme myself, but it sounds feasible. On searching the BBC website, I found the following page: http://news.bbc.co.uk/1/hi/health/8516080.stm which is dated in February this year and would seem to be about the same problem. I wonder whether this was the cause of the problem I had.

Oct 20, 2010 novorapidboi26 1,819 posts	Topic: General Discussion / Calling any and all archaeologists! Hey there.......... NiVZ is correct, on the forum www.diabetessupport.co.uk there is a female archeologist who goes by the name of SilentAssasin1642. She is actually on a pump, but everyone on a pump needs to be trained to the same principals and standards as dafne, if not better. I reccomend signing up over there and giving her a PM, you might find the answers your looking for. Good luck........... nrb

Oct 20, 2010 NiVZ 82 posts	Topic: General Discussion / Calling any and all archaeologists! Hi Jenny, I know of one other female diabetic archeaologist who posts on another diabetes forum I use. Don't think she is DAFNE trained so probably not on here tho. NiVZ

Oct 20, 2010 Jenny Spollen 13 posts	Topic: General Discussion / Calling any and all archaeologists! Hi all, I've been a Diabetic for 20 odd years at this stage and completed the DAFNE course a year ago. best thing ever. However, I work as an archaeologist and the huge array of variables that come with day-to-day work on a site especially as regards physical activity, it's unpredicability etc and the havoc it can reep in your hourly, never mind daily, BG levels is to say the least annoying. I have also yet to meet another diabetic muck-shoveller and would be really interested to know if there are others in the same field and how things are working out for them Jenny

Oct 20, 2010 novorapidboi26 1,819 posts	Topic: General Discussion / not good !! help Its good you have finally realised that you cant go on the way you have been............sometimes for most people that is all they need to change the way they control diabetes.......the time this takes varies for each person........ I would say 8 out of 12 years being diabetic were spent not really knowing how to manage it....... Good luck at the doctors...

Oct 19, 2010 claireadams 12 posts	Topic: General Discussion / not good !! help Hi Kelly, I got type 1 diabetes 4 years ago during pregnancy and when i gave birth i lost so much weight through out of control diabetes that everyone was saying how skinny and ill i looked (i loved it!- ate what i liked and never gained a pound)... then over the years it actually made me ill.. the symptoms of high bg just werent worth it anymore and after 2 bouts in hospital (one in intensive care) and a young son to look after i just had to sort it out.... unfortunately with the control came weight gain, but i am much healthier and can live a normal life. I get help now with having an eating disorder, and to be honest i still struggle with the amount of weight i have gained, but it is worth it. I think with a balanced diet and exercise you can keep your weight in check without using your insulin. I really think you should look into getting help with having an eating disorder (you may not think you have but anyone who uses insulin to loose weight is risking their life). Please take it from someone who knows! I really hope you get healthy again and get back on track with dafne for the sake of your children... Good luck, Claire ps i had cognitive behavioural therapy, it really helped me

Oct 19, 2010 marke 686 posts	Topic: General Discussion / Dafne refresher courses Hi Jennifer Iden, yes its me you contact about being 'promoted' from a user to a graduate, just contact me via the 'contact us' link at the bottom of every page or via the 'message inbox' in the right hand menu. We can then sort out what details we need from you to do it.

Oct 19, 2010 novorapidboi26 1,819 posts	Topic: General Discussion / Dafne refresher courses how many folk attend..........is 3 hours enough............

Oct 19, 2010 emmacool 17 posts	Topic: General Discussion / Insulin Pumps good luck thunderbolt if you get the chance ask about the new omnipod its wireless! emma x

Oct 19, 2010 emmacool 17 posts	Topic: General Discussion / Dafne refresher courses ive been on a few refresher courses and find them really usefull to update my dafne knowledge because i keep forgeting stuff lol

Oct 19, 2010 emmacool 17 posts	Topic: DUAG Committee / workstream 2 sounds good to me em x

Oct 19, 2010 emmacool 17 posts	Topic: DUAG Committee / First draft of DUG letter thte last part sounds better in revised version emma x

Oct 19, 2010 addie 13 posts	Topic: General Discussion / Dafne refresher courses Okay my local refresher courses are ran twice yearly. Ive missed this entry for Nov 2010 so going to attend the June 2011 course. 3 hours 6-9 for one night only. Cant do any harm. Apologies I was unaware these courses were not ran in all DAFNE centres. Hope all you are in good health. Best wishes Ad

Oct 19, 2010 PNThompson 57 posts	Topic: General Discussion / Dafne refresher courses I have not heard about any refresher course, but I have had a yearly review meeting. I don't know if I would benefit from any review, but would certainly agree that people who do struggle could maybe do with attending a refresher course. Given time, even those of us who have done quite well with the course could do with a refresher course, as there will no doubt be changes, and people will not doubt stray from what they had learnt.

Oct 19, 2010 Jennifer Iden 11 posts	Topic: General Discussion / Dafne refresher courses I'm booked on a carb counting and dose adjustment refresher course later this year, having completed DAFNE last October.... Marke, is it you that I need to talk to about being promoted from a 'user' to a 'graduate'?

Oct 19, 2010 novorapidboi26 1,819 posts	Topic: General Discussion / Dafne refresher courses When you say people like me are you reffering to people with internet access...............I was given the handbook home as well. I do understand some people may struggle for whatever reason, but I believe only a small amount..... I agree only time will tell and also to dafne drop ins, if there were staff commited to only dafne that would be brilliant.

Oct 19, 2010 Annette Bell 72 posts	Topic: DUAG Committee / First draft of DUG letter Thanks Mark!

Oct 19, 2010 Annette Bell 72 posts	Topic: DUAG Committee / workstream 2 Ok thanks Brian, will do.

Oct 19, 2010 Brian Trench 17 posts	Topic: DUAG Committee / workstream 2 I also agree that if they do not enter comment then that is an implied acceptance. Its like building a 3 legged stool by committee with the result that the stool is never finished! Lets just bite bullets and get on with it. Pass it to Central DAFNE for them to issue to DUG either by email or by letter. A cover note/compliments slip from Central DAFNE would get over the signature bit

Oct 18, 2010 marke 686 posts	Topic: DUAG Committee / workstream 2 yes, we are already asking for contact details so clearly your ideas were in line with mine and vice-versa. i wrote the doc above a day or so after the meeting and have been waiting for Brian to return from holiday and review it before posting it here. Therefore some of the ideas have been overtaken by events. I approve the latest version but I'm not sure what the process is to move forward. I guess we just need responses from all those that have bothered to read the forum before you send it to Gill. Everyone else doesn't get a say since they evidently don't want to contribute.